Neuropsychiatric Symptoms In Bartonellosis | Chronic Bartonella Infections And Psychiatric Symptoms
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- Опубліковано 2 лип 2024
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Neuropsychiatric symptoms of bartonellosis (a chronic infection with Bartonella) include anxiety, depression, insomnia, irritability, PANS, OCD, mood swings, irritability, panic attacks, rage, phobias, irrational fears, agitation, restlessness, depersonalization, derealization, suicidal ideation, nightmares, auditory hallucinations, visual hallucinations, tactile hallucinations, olfactory hallucinations, eating disorders, school refusal, thoughts of self harm, aggressive behavior, mania, delusions, and Tourette syndrome.
0:00 Intro
0:58 Defining "Neuropsychiatric"
3:25 Neuropsychiatric Symptoms In Cat Scratch Disease
4:34 Neuropsychiatric Symptoms In Bartonellosis
7:00 Case Report Of Boy With PANS And Bartonella Infection
10:46 Role Of Infections In Neuropsychiatric Illness Generally
14:17 Host Response/One Pathogen ≠ One Disease
20:45 My (VERY) Unscientific Poll!
22:15 Treatment Overview
Breaking Down Bartonella
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References:
1. Crossley, N. A., Scott, J., Ellison-Wright, I., & Mechelli, A. (2015). Neuroimaging distinction between neurological and psychiatric disorders. The British Journal of Psychiatry, 207(5), 429-434.
pubmed.ncbi.nlm.nih.gov/26045...
2. Stevens, H. (1952). Cat-scratch fever encephalitis. AMA American journal of diseases of children, 84(2), 218-222.
3. Parrott, J. H., Dure, L., Sullender, W., Buraphacheep, W., Frye, T. A., Galliani, C. A., ... & Regnery, R. (1997). Central Nervous System Infection Associated WithBartonella quintana: A Report of Two Cases. Pediatrics, 100(3), 403-408.
4. Brenneis, C., Scherfler, C., Engelhardt, K., Helbok, R., Brössner, G., Beer, R., ... & Schmutzhard, E. (2007). Encephalitis lethargica following Bartonella henselae infection. Journal of neurology, 254(4), 546. www.researchgate.net/profile/...
5. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
www.ncbi.nlm.nih.gov/pmc/arti...
6. Breitschwerdt, E. B., Maggi, R. G., Nicholson, W. L., Cherry, N. A., & Woods, C. W. (2008). Bartonella sp. bacteremia in patients with neurological and neurocognitive dysfunction. Journal of clinical microbiology, 46(9), 2856-2861.
jcm.asm.org/content/jcm/46/9/...
7. Maggi, R. G., Mascarelli, P. E., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Mozayeni, B. R., & Breitschwerdt, E. B. (2011). Bartonella spp. bacteremia in high-risk immunocompetent patients. Diagnostic microbiology and infectious disease, 71(4), 430-437.
repository.lib.ncsu.edu/bitst...
8. Breitschwerdt, E. B., Mascarelli, P. E., Schweickert, L. A., Maggi, R. G., Hegarty, B. C., Bradley, J. M., & Woods, C. W. (2011). Hallucinations, sensory neuropathy, and peripheral visual deficits in a young woman infected with Bartonella koehlerae. Journal of clinical microbiology, 49(9), 3415-3417.
jcm.asm.org/content/jcm/49/9/...
9. Bradley, J. M., Mascarelli, P. E., Trull, C. L., Maggi, R. G., & Breitschwerdt, E. B. (2014). Bartonella henselae infections in an owner and two Papillon dogs exposed to tropical rat mites (Ornithonyssus bacoti). Vector-Borne and Zoonotic Diseases, 14(10), 703-709.
10. Breitschwerdt, E. B., Greenberg, R., Maggi, R. G., Mozayeni, B. R., Lewis, A., & Bradley, J. M. (2019). Bartonella henselae bloodstream infection in a boy with pediatric acute-onset neuropsychiatric syndrome. Journal of central nervous system disease, 11, 1179573519832014.
journals.sagepub.com/doi/pdf/...
11. www.psychiatrictimes.com/view...
12. www.nimh.nih.gov/health/publi...
13. Köhler-Forsberg, O., Petersen, L., Gasse, C., Mortensen, P. B., Dalsgaard, S., Yolken, R. H., ... & Benros, M. E. (2019). A nationwide study in Denmark of the association between treated infections and the subsequent risk of treated mental disorders in children and adolescents. JAMA psychiatry, 76(3), 271-279.
www.ncbi.nlm.nih.gov/pmc/arti...
14. Swedo, S. E., Frankovich, J., & Murphy, T. K. (2017). Overview of treatment of pediatric acute-onset neuropsychiatric syndrome. Journal of child and adolescent psychopharmacology, 27(7), 562-565.
www.liebertpub.com/doi/pdf/10...
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Hi Bartonella buddies! I do not experience neuropsychiatric symptoms from bartonellosis but my Bartonella buddy, Marty Jonah, has a UA-cam channel where she talks about her experiences with PANS and Tourette's induced by Bartonella. You can visit her channel here: ua-cam.com/channels/WM-NcQvb8LGus8-U518aGg.html.
My other Bartonella buddy, Nicole Vumbaco, DVM has an educational and personal blog discussing her experience with neurological and rheumatological symptoms of bartonellosis and you can find it here: nvumbaco.wixsite.com/recovery
please do a video regarding treatment. the low-histamine diet helps a little to avoid flare ups but doesn't help baseline symptoms. antivirals didn't help. H1 and H2 blockers seem to help a little but not much. have you been able to get a Rx that actually helps?
@@perennialistperspective hey Cale. Are you talking about a video on treatment for bartonellosis or a video on treatment for mast cell activation syndrome? I already have a video on my channel for treatment for mast cell activation syndrome. So you can check that out if you haven’t already. If you’re talking about treatment for bartonellosis, it’s definitely on my list of things to do
@@perennialistperspective what kind of additional info are you looking for? Always happy to take video ideas 🙂
Thank you for this. I’ve been going through this almost 2 years. Tested positive for Lyme, bartonella, parvovirus, parasites and mycoplasma and mycotoxins. My biggest symptoms are muscle twitches and mental issues- severe anxiety , paranoia, and depression.
So so grateful for these I am watching this again as I think I was manic last year at one point. I definitely suffer from the other neuropsychiatric symptoms as well. I have the inverted sleep schedule. Thank you, so so grateful for these videos.
Aww well I’m grateful for your support!
. I haven't felt like myself since I got Rocky Mountain Spotted Fever 3 years ago. I was never diagnosed with bartonella, but the doctor agreed I had a coinfection but did not want to do a brain biopsy to test for bartonella. I never had these mental health issues before and the vitamins, diet and exercise were only helping so much. This was AMAZING to see someone actually putting neuro symptoms with this disease. The mental health suggestions of clean space, routine, and health only help so much when they don't address the physical cause. I'm so tired of not feeling like me. This can't be the new norm. Now I just have to find a doctor that doesn't write me off for having my own prior knowledge of my disease.
A very LIVELY and INFORMATIVE presentation.
Thank you Jake ❤
Great work
Thank You
This video is so well done. You are incredible at synthesizing very difficult science into an understandable and entertaining format. This particular video hits very close to home. I just learned about you from a researcher a few months ago and just noticed that you have not posted for many months. I hope that you are doing as well as you can. You really have become a treasure to the science world of bacteriology, when research specialists are recommending you as a go to source to gain knowledge. I know it has been a cause of Alan Alda to have more people be able to communicate scientific ideas to the general public, you exemplify this ability like no one I’ve ever seen. Wishing you well. ❤️
Thank you for bringing awareness to this. My son presented with sudden onset neuropsychiatric problems almost 2 years ago. Its been a long journey of psychiatric hospitalizations, different medications and while he is improving, it has always concerned me the sudden onset, presenting with skin striae and other anomolies that he could be dealing with something underlying. I was researching misdiagnosed schizophrenia ironically and came across a picture of what my primary doctor described as common stretch marks and it was an article regarding Bartonella by Ed Breitschwerdt. The skin lesions associated with Bartonella looked almost exactly like the marks on my sons back. I contacted Ed immediately and sent him pictures of my sons skin lesions explained his animal exposure and he responded within a day or two. My son is currently being tested through galaxy and while I cant confirm a link to bartellosis yet Im thankful that he is at least being tested. Much thanks for bringing light to this and sharing your incredible personality and knowledge.
Just watched Again Fantastic so many great ones but this has to to be one of your best Jake!
thank you so much Susan! I think the most interesting thing I learned when researching this video was that we all need the same 3 things: address bacterial load, manage symptoms, and modulate immune system
Excellent video 👏 clap 👏 👏 and wow I learned SO MUCH , thanks you so much for Educating one’s about the many auto immune and neurological disorders which btw are the rise substantially and the connection with underlying infections .
It’s sad to know that many young ppl younger generations are affected as well :(
I will share your videos far and wide ❤️
You are wise beyond your years 🧠
I to have done a lot of research on this subject and have learned the same as you . I feel very confident one day in the near future you will find a cure for your own health issues it may take time and it will be a journey but you will get there no doubt about it 😉 just keep searching and digging , keep an open mind 🙏
My daughter has CHRONIC BARTONELLA ELIZABETHAE BECAUSE DURING PANDEMIC LOCKDOWN, MY DAUGHTER GOT WORSE. MY DAUGHTER FINALLY GOT AN APPT WITH HER AUNT TO SEE A SPECIALIST IN MAY OF 2021. NOW SHE HAS TEMPER TANTRUMS, ANXIETY ISSUES, CANNOT SPEAK, AND HAD TRIED TI HURT HERSELF. MY DAUGHTER HAS AN INTELLECTUAL DISABILITY. SHE IS A BEAUTIFUL GIRL. IT PAINS ME TO SEE HER SUFFER. THANK YOU FOR SHARING. I LOVE MY DAUGHTER ALOT!!!
You are so funny, im so glad I found your channel.
You are a wealth of knowledge. I just recently found your page and keep binge watching your videos! My daughter has ALL the neuropsychiatric symptoms and we have been through TOO many doctors that have been clueless. Finally found one that said it is bartonella (scratched by a barn cat at age 10 prior to onset of symptoms yet I just never even thought that was the reason!). She will begin IV antibiotic therapy through a picc line that is going in tomorrow. This video was spot on with our experience! Thank you for all your research!
Hi Michelle! I am so glad to hear that my videos have helped you with your daughter.Yup barn cat scratch will definitely do it 😕I'm so sorry to hear that she has been suffering but hope she is on a good path to healing now ❤️
You continue to amaze me with your energy and ability to do the research and weave it all together (in the midst of dealing with your own illness). Is your mom a former cheerleader? She's good at it! Thanks for another informative video. I will be listening to it again and taking notes. ;-)
She is my cheerleader but no she was not a former cheerleader. She was, however, captain of her high school rifle team! lol. Thanks for watching Denise 😊
awesome video! sent to my Dr.!
Wow! Aww thank you so much! 🥰 I hope your doctor watches it
Great informational video. Well researched and well presented. :)
You’re not your usual verbose self today! Are you mimosa deficient?
@@BartonellaBabe More like Prednisone polluted, med toxicity levels off the charts, sleep deprived, covfefe laden, degranulated, mismatched socks, flipping my chronically barking dogs off though the window (thankfully, no close neighbors), confusing the nebulizer mouthpiece with a snorkel, brain fogged to "farfegnugen", retaining water...while being perpetually dehydrated (seemingly not even a possibility) with a verapamil induced headache so bad....my hair hurts, nearly catatonic, wondering why I can't eat 99% of the food on the planet, while watching Pizza Hut/Doughnut/Taco Bell/Pepsi commercials, and questioning if this is the longest run-on sentence in the history of the "scribbled" word. Beyond that...things are just peachy! :)
@@trsavage9778 There's the TR Savage I know and love! We had two dogs. Stevie, the older one, wouldn't ever shut the hell up and would get Piper going. After Stevie died, Piper stopped barking and we have had peace ever since. So flipping your dogs off is always appropriate. Peachy...probably a fruit neither of us can eat
@@BartonellaBabe Allergic to peaches, and bananas, carrots and just about everything else. But telling people everything is "peachy" is something most can relate to. Telling people everything is "jabuticaba"...leaves them flummoxed...
And yes, I get puppies and kitties (whatever age, I call them all puppies and kitties) from the pound, pound mutts, the freaks, the aberrations, the abnormals, the mongrels, the financially destitute, the unpedigreed, the illegal immigrants, those with poor social graces, the ones that can't sit or have severe ADD, the jobless, the homeless, those that only bark or purr in a "foreign" language, bring them all home, make them fat and spoiled and heap expletive's on them every hour, on the hour. Hey, being a misanthropic freak hermit...I fit right in with them. :)
@@trsavage9778 Fellow misanthrope here as well! Despite all appearances to the contrary
Hey Bartonella babe, I was bit by a flea about 3 months ago and I think I have symptoms weird heartburn, brain fog , headache, and red blurry eyes What would you do in this case? What first antibiotics would you take. Please help
Nicely done! What testing is the best now? How long does treatment take?
Galaxy diagnostics and Tlab are the best testing labs and treatment can take quite a long time. I would say the average is around 2 years? That's just a guess based on all of the anecdotes I've come across (and some literature)
Your mom is Awesome!
I think so too!
You do not need psych meds if your symptoms are caused by a bacteria. The best approach is to address the bacteria and inflammation. Psych meds may make their condition worse.
Couldn't it be the case that antibiotic use associated with increased risk of mental disorders mean that in cases of poorly characterized immune deficiency/dysregulation, there is going to be more antibiotic use? I've had PANS and neuropsych symptoms since early teens, and only in my 40s found out I had TBD. Like you, I'm certain I became so ill (both with neuropsych symptoms and, much later, debilitating physical symptoms and pain) is because of poorly understood immune deficiency/dysregulation, both innate and acquired.
neuropsych gang 😔😔😔 I missed the poll because I don't have facebook but I do have np ocd. my bartonella presents very neurologically. also jamie is iconic.
Maybe make a Facebook just for the group? Or not lol. Some people have very strong feelings about FB. Sorry to hear about your OCD. It can be debilitating! And yes Jamie is a total mood 😂
I just used "mood" with my mom and she asked me what it meant and I looked it up and I've been using it completely wrong 😂
@@BartonellaBabe hahahaha words are hard
Well done and your beautiful
Hi, any experience with cinnamon or oregano treatment? I did not see this topic on your video list. Thanks!!
Hi! I don’t have any personal experience with those two things but one of my BLMDs is seeing a lot of success using liposomal oil of oregano with allicin and we have many members in our support group on Facebook using those
Watching the video at 4 AM... insomnia alright...
Hopefully I bore you to sleep 😂
@@BartonellaBabe :D Watched it all... perfect synthesis of all the things I also desperately read this spring/summer!
How soon can we expect reduction of symptoms following antibiotic therapy??
Hi Linda. I replied to your same question on my other video so I’m just going to copy and paste what I said here too: I have only been on antibiotics for very short periods of time because my MCAS is so severe. I felt improvement after 7 weeks of 150 mg of rifampin daily but had to stop due to MCAS reactions. Sometimes people don't notice they're feeling better because of MCAS reactions or “herxing” while antibiotics but once they stop they realize they feel better. However, if you stop prematurely, you can relapse. Some people don't feel markedly better until they get to the rifabutin step of treatment. I would say I am a quick responder in comparison to other bartonellosis patients. Also, some antibiotics have anti-inflammatory properties independent of killing microbes and some people feel better right away because of that
Do you mitigate EMFs ?
turn off WIFI & use a shielding tent ?
its a Klinghardt thing .
By any chance have you come across or know if alcohol makes bartonella symptoms worse ?
There is no scientific literature on that specifically but we know that alcohol is literally a carcinogen, it's inflammatory, and it is high in histamine, which can especially be a problem for MCAS. So, if you are sick with bartonellosis, you have systemic inflammation and alcohol will make this worse, even possibly at low amounts. I used to enjoy drinking so I don't judge anyone who does but it's definitely not healthy!
www.cancer.gov/about-cancer/causes-prevention/risk/alcohol/alcohol-fact-sheet
❤
Anyone else have depersonalization as a symptom?
@GUILLERMO GUTIERREZ ARMENTA I heard it’s usually from Bart not sure if it’s true though
I do, it’s one of my primary symptoms and I just tested positive for multiple species of bartonella and have been chronically depersonalized and sick for about 5 years now. It’s a horrible feeling that I can’t describe to anyone, but one your in it, you get it. It freaking sucks. I’m sorry you’re dealing with it too.
@@adamhouse8465 yeah been like this for like 8 years I forgot what everything feels like. You getting any type of treatment?
@@BG-fh5me I know, the longer time passes it’s harder to remember what the normal world used to feel and look like. Everything was vibrant, it’s like things had color to them. I used to hear birds in the morning and it had this tangible feeling that’s been ripped away. Instead I’m dissociated and numb from the familiarity of the wold I used to be in. I’m currently on rifampin and clarithromycin. I hope eventually we recover from this crap.
@@adamhouse8465 I heard those are the top treatments for Bart. Hope everything comes back for you bro no one should live like this👍
If someone gets bit by a flea from a dog, can they get bartonella and psychiatric conditions?
Yes they can if the flea is carrying the pathogen
your French c'est fantastique
Haha don’t lie!
Das wäre super in Deutsch zu übersetzen ❤️🙏
subtitles for this are available now! Spread the word! ❤️
If you have taken antibiotics you can restore the microbiome with FMTs
What is an FMT?
@@whitneymarsh5417 Fecal microbiome transplant
@@JC-ly8pz thank you. What doctor would even be able to prescribe that? And I wonder if you’d be able to have fecal matter from a family member used?
@@whitneymarsh5417 Theres a couple of FMT Facebook groups to get more information. Theres alot of UA-cam videos and podcasts on it
Found the presenter rather funny but presentation quite informative
Thank you Dennis! That was my goal
Where can I get tested for this? I'm afraid my doctor is going to laugh me off. She is a major gas lighter