Everything you said is absolutely true! I’m in my first year of treatment, and it does get worse before it gets better! It’s insidious! I have way more to say, but I’m in pain.
Thank you for kindly asking! I am feeling better, and it’s not acute anymore, but I have complex, chronic infections for which I’m taking Samento and Banderol, and other supplements and vitamins. I still have severe pain in my back (AS which has fused my spine) and legs, and I’m extremely fatigued and have nervous system dysfunction. The leg pain has me worried because I had the pain as a child until I was about 20 (diagnosed as “growing pains”, but I’m only 4’ 9”.), then they came back after I had surgery to remove breast implants 6 years ago and contracted pseudomonas aeriginosa for 8 weeks until my incision festered. Now I get them severely every day. I can’t function with the pain. My brain has not worked well either, but that’s getting better as well. However, I am now in a debilitating freeze response from trauma as a child and last year when my grown son went manic and started becoming violent. He went to jail for domestic violence for 3 months, but actually had mold and Lyme, and they got worse there. I’m getting extremely anxious even texting this part. I am afraid to drive and get panicky if I have to make phone calls. It’s the strangest thing, because I had a 40 year teaching career, and now I can’t even face paying bills that are wrong because they billed the incorrect insurance company. I’m trying to go get blood work and an ultrasound on my thyroid, and have other issues I need to take care of. I’m alone, pushing 70, my fiancé left me, but something happened to his brain recently, and he couldn’t remember anything, so he was unsupportive. I have a friend who will go run my errands with me, but I find it hard lately to get ready to go somewhere. My goal is to get this house looking good so I can move back to a condo. Unfortunately, my perfect condo had hidden mold, and I had to move. Thank you. I hope this wasn’t too much info!
@@TheRealClassroom I wrote a reply, but it disappeared. I’ll wait to see if it returns, because I was going to add that my former husband was a real estate appraiser and an agent, my mother was a commercial real estate appraiser and was the first woman president of the SE MI Appraisers Society, and my uncle owns a huge appraisal firm here in MI. I wish my ex would get back his real estate license or his appraisal license because he’s 73, and his job is killing him. I out him through school to get these licenses and after we divorced, he went back to his first job. It would be so much easier on him. My boyfriend is an appraiser as something to do because he’s wealthy. If I could just get healthy again, I could travel with him and have a life! If my comment doesn’t show up, I’ll try to remember what I said, and rewrite it. I think people should be aware if things that cause and can occur with Lyme, mold, breast implants, etc. I’m wondering how to prove my grown son has had it for 31 years so he can get disability based on having been ill since age 7 with Lyme, which I now believe caused his meningoencephalitis, and damaged his frontal lobe and central nervous system. He’s in constant pain and so am I.
Yep... nothing sat right with me. I have been told that my seizures are caused from my "anxiety disorder." At that point I went to a holistic practitioner and LLMD to get the best testing for lyme. Sure enough....I have had lyme since I was 5. I am now 40, and finally in treatment! Thank you for this video. Only you can fight for yourself!
@jeriweaver4561 just by assuming. I was up in Northern Wisconsin when I was 5. I had a huge deer tick in my scalp! I was SO SICK, people actually thought I had cancer. That's how I looked. All of my Lyme specialists said , "IF we can cure it, it will probably take 5 years because of the severity of your case." I'M CURED!!! IT TOOK 2.5 YEARS, NOT 5!!! I give all the glory to God.
Thank you so much for this video and for your support. I know that I have had Lyme, (and whatever other tick related illnesses/bacteria that I have) for decades. I lived in Missouri in the country with 4 dogs and was constantly picking ticks off of myself and them. Every time I went to a Dr. and told them how bad I felt, they just told me that I was depressed and gave me anti-depressents. Since then I have had heart problems, been diagnosed with Primary Immunodeficiency, ME/CFS, and more. Never did anyone ever test me for Lyme. In the meantime my career has gone down the drain. Im down to seeing one client a week. I lost everything in a flood in Hawaii in 2018 and have been without a home ever since then because I haven't been well enough to make enough money to even have a 500 square ft. apartment. I house-sit when I can but it is not consistent or sustainable.(I dont mean this to be a sob story, it is just my reality). When I recently asked my Dr. for a Lyme test it only came back with one positive band for Lyme so a specialist wouldn't see me, although i know that there are dozens of other tick born illnesses. Im not sure where to go or what to do from here, especially with my very limited resources but would be grateful for any suggestions.
@@elisabyler3421 Did you find any help? You can get a functional medicine doctor or look up Lyme Literate practitioners in your area to get a test. I’m so sorry for your situation. It’s unthinkable that doctors won’t acknowledge this chronic condition! They don’t learn it and don’t want to go back and find out. Check out Dr. William Rawls and maybe get on his protocol (Cowden). If you’re in Michigan, you can stay with me until you’re better! I live in Rochester.
Oh, wow, it was a 6 year journey-so intense, I could write a book. I don’t know if I can help anyone, I’m not a doctor but I’m 90% cured in my estimation. My doctor diagnosed me with poly myalgia and gave me prednisone. I did research everyday and knew that was wrong so I tapered out of it. I tried every alternative I could find. Some were like chemotherapy and nearly killed me. It helped narrow my research to remember that Lyme is a million intercellular parasites that colonize everywhere and migrate as they are targeted. I couldn’t drive a car, could hardly walk or stand or sit or lie down. Chronic all day all night no respite- got depressed deeply, I probably had those critters in my brain. Meanwhile I researched and tried this and that while I felt I would not survive and I forgot what good health felt like. Then I tried a protocol that involved massive amounts of vitamin C and SALT. with water. I couldn’t do the whole protocol, it felt like it would kill me. My guts exploded and I cleaned out like never before. The next day I glimpsed light in the darkness. I felt like maybe there could be a path to health after all, but the full protocol terrified me. ( it was called “water therapy”). It encouraged me though. Then searching my symptoms I found that boron deficiency has the same symptoms as Lyme disease. Don’t ask me. I don’t know. So I went on a protocol from a PDF online called “ the borax cure”. I started taking an eighth teaspoon of 20 mule team borax in my coffee. It took 6 weeks. (Forever) and I started feeling better and better. That was about 8 years ago. I still include borax in my bread and coffee at least once a week as a preventative. (20 mule team only. It is pure mineral straight from the earth).
I’m not able to work at all now. It’s attacking my occipital nerve- seeing double and dizzy as all get out. Along with my body aching like I was ran I over. This is a relapse so I got right on it. Started downhill in 2020 with the covid vaccine (didn’t want it, but couldn’t afford to lose my). It’s a tough battle but you need to stay strong and only have people that are positive for you. Clean up that friends list. And, like you said, find a good doctor I have three that between all of them are treating me.
There are so many it would take me days or hours to explain. I also can’t remember them all. I was in treatment for years and each time I saw the doctor it was a new protocol. I had coinfections and once something cleared up something else would flare up. It was a combination of oral remedies(western meds and eastern herbs) and IV therapies.
@@TheRealClassroom I get it. This is a complex issue. It’s that your title led me to watch thinking you had some input for others on actual protocols and treatments You know, like GcMAF, advanced parasite treatments with things like Fenbendazole, Ivermectin, Praziquantel, Doxy… Changing diet to keto and elimination of other things. Stuff like that
I had my right knee became swollen and my women doctor put me on a packet of steroids twice and when I asked for a third she said NO and sent me to another doctor that dealt with swollen joints she drained my knee but I was back to see her twice then she said I am going to figure this out and sent me for a simple blood test. BUT in the script was a question about lyme she called me the next day and told me I had Lyme disease. what was that so my husband and I spent weeks researching. there was no one in the Buffalo ny area that I could get an appointment with that underwood lyme. finally, Joe found a specialist but she did not take insurance but I had enough savings to start. she had me get a pic line for antibiotics to be put close to my heart,,,,,,, a month latter I took myself off and found another lyme doctor she said that was way longer than I needed. but my normal doctor had put me on maybe 5 bottles of antibiotics at the beginning and nothing worked. in the meantime, Joe found me on the driveway not knowing where I was or what had happened on my way to the mailbox. so I was taken into a hospital . I had no li
Everything you said is absolutely true! I’m in my first year of treatment, and it does get worse before it gets better! It’s insidious!
I have way more to say, but I’m in pain.
Thanks! I hope you’re feeling better. Update?
Thank you for kindly asking! I am feeling better, and it’s not acute anymore, but I have complex, chronic infections for which I’m taking Samento and Banderol, and other supplements and vitamins.
I still have severe pain in my back (AS which has fused my spine) and legs, and I’m extremely fatigued and have nervous system dysfunction.
The leg pain has me worried because I had the pain as a child until I was about 20 (diagnosed as “growing pains”, but I’m only 4’ 9”.), then they came back after I had surgery to remove breast implants 6 years ago and contracted pseudomonas aeriginosa for 8 weeks until my incision festered. Now I get them severely every day. I can’t function with the pain.
My brain has not worked well either, but that’s getting better as well. However, I am now in a debilitating freeze response from trauma as a child and last year when my grown son went manic and started becoming violent. He went to jail for domestic violence for 3 months, but actually had mold and Lyme, and they got worse there.
I’m getting extremely anxious even texting this part. I am afraid to drive and get panicky if I have to make phone calls. It’s the strangest thing, because I had a 40 year teaching career, and now I can’t even face paying bills that are wrong because they billed the incorrect insurance company. I’m trying to go get blood work and an ultrasound on my thyroid, and have other issues I need to take care of.
I’m alone, pushing 70, my fiancé left me, but something happened to his brain recently, and he couldn’t remember anything, so he was unsupportive. I have a friend who will go run my errands with me, but I find it hard lately to get ready to go somewhere. My goal is to get this house looking good so I can move back to a condo. Unfortunately, my perfect condo had hidden mold, and I had to move. Thank you. I hope this wasn’t too much info!
@@TheRealClassroom I wrote a reply, but it disappeared. I’ll wait to see if it returns, because I was going to add that my former husband was a real estate appraiser and an agent, my mother was a commercial real estate appraiser and was the first woman president of the SE MI Appraisers Society, and my uncle owns a huge appraisal firm here in MI. I wish my ex would get back his real estate license or his appraisal license because he’s 73, and his job is killing him. I out him through school to get these licenses and after we divorced, he went back to his first job. It would be so much easier on him. My boyfriend is an appraiser as something to do because he’s wealthy. If I could just get healthy again, I could travel with him and have a life!
If my comment doesn’t show up, I’ll try to remember what I said, and rewrite it. I think people should be aware if things that cause and can occur with Lyme, mold, breast implants, etc.
I’m wondering how to prove my grown son has had it for 31 years so he can get disability based on having been ill since age 7 with Lyme, which I now believe caused his meningoencephalitis, and damaged his frontal lobe and central nervous system. He’s in constant pain and so am I.
Yep... nothing sat right with me. I have been told that my seizures are caused from my "anxiety disorder." At that point I went to a holistic practitioner and LLMD to get the best testing for lyme. Sure enough....I have had lyme since I was 5. I am now 40, and finally in treatment! Thank you for this video. Only you can fight for yourself!
Wow! I’m so glad you’re finally in treatment. I can’t believe it took that long. You are very strong-keep up the hard work.
@@TheRealClassroomhow can I heal??? Seven years now bedridden caused by lyme 😭 can't tolerate antibiotics or herbal stuff
@@kirstensuhr7094 had to go super slow with herbals and build up. It's worse before better. 🙏
How did they find out that you’ve had it since you were five?
@jeriweaver4561 just by assuming. I was up in Northern Wisconsin when I was 5. I had a huge deer tick in my scalp! I was SO SICK, people actually thought I had cancer. That's how I looked. All of my Lyme specialists said , "IF we can cure it, it will probably take 5 years because of the severity of your case." I'M CURED!!! IT TOOK 2.5 YEARS, NOT 5!!! I give all the glory to God.
Thank you so much for this video and for your support. I know that I have had Lyme, (and whatever other tick related illnesses/bacteria that I have) for decades. I lived in Missouri in the country with 4 dogs and was constantly picking ticks off of myself and them. Every time I went to a Dr. and told them how bad I felt, they just told me that I was depressed and gave me anti-depressents. Since then I have had heart problems, been diagnosed with Primary Immunodeficiency, ME/CFS, and more. Never did anyone ever test me for Lyme. In the meantime my career has gone down the drain. Im down to seeing one client a week. I lost everything in a flood in Hawaii in 2018 and have been without a home ever since then because I haven't been well enough to make enough money to even have a 500 square ft. apartment. I house-sit when I can but it is not consistent or sustainable.(I dont mean this to be a sob story, it is just my reality). When I recently asked my Dr. for a Lyme test it only came back with one positive band for Lyme so a specialist wouldn't see me, although i know that there are dozens of other tick born illnesses. Im not sure where to go or what to do from here, especially with my very limited resources but would be grateful for any suggestions.
Thank you.
Its not really about the tix, its a cover for the n@n0-*poi§0ning, just like so many others inc. m0rgeII0ns/ms/aids/cancer/lupus, etc.
@@elisabyler3421 Did you find any help? You can get a functional medicine doctor or look up Lyme Literate practitioners in your area to get a test. I’m so sorry for your situation. It’s unthinkable that doctors won’t acknowledge this chronic condition! They don’t learn it and don’t want to go back and find out.
Check out Dr. William Rawls and maybe get on his protocol (Cowden).
If you’re in Michigan, you can stay with me until you’re better! I live in Rochester.
It was 10 years from my tick bite to fill out Lyme disease. It took me 6 years to beat it after the doctors washed their hands of me. I nearly died.
Oh no! Glad you beat it. Any tips tricks or secrets?
Oh, wow, it was a 6 year journey-so intense, I could write a book. I don’t know if I can help anyone, I’m not a doctor but I’m 90% cured in my estimation. My doctor diagnosed me with poly myalgia and gave me prednisone. I did research everyday and knew that was wrong so I tapered out of it. I tried every alternative I could find. Some were like chemotherapy and nearly killed me. It helped narrow my research to remember that Lyme is a million intercellular parasites that colonize everywhere and migrate as they are targeted. I couldn’t drive a car, could hardly walk or stand or sit or lie down. Chronic all day all night no respite- got depressed deeply, I probably had those critters in my brain. Meanwhile I researched and tried this and that while I felt I would not survive and I forgot what good health felt like. Then I tried a protocol that involved massive amounts of vitamin C and SALT. with water. I couldn’t do the whole protocol, it felt like it would kill me. My guts exploded and I cleaned out like never before. The next day I glimpsed light in the darkness. I felt like maybe there could be a path to health after all, but the full protocol terrified me. ( it was called “water therapy”). It encouraged me though. Then searching my symptoms I found that boron deficiency has the same symptoms as Lyme disease. Don’t ask me. I don’t know. So I went on a protocol from a PDF online called “ the borax cure”. I started taking an eighth teaspoon of 20 mule team borax in my coffee. It took 6 weeks. (Forever) and I started feeling better and better. That was about 8 years ago. I still include borax in my bread and coffee at least once a week as a preventative. (20 mule team only. It is pure mineral straight from the earth).
Adding to the above, I also keep food grade diatomaceous earth in my diet as that kills parasites and cleanses as well.
🍀And now the Big question; HOW did your great doctor heal your lyme desiece?😊
Lots of herbs and western meds.
Hello, found this searching- hoping for some help, but I don’t see any info? I don’t see any links. I have been on this Lyme rollercoaster for years.
I recommend you find and ILADS doctor. www.ilads.org/patient-care/provider-search/
I’m not able to work at all now. It’s attacking my occipital nerve- seeing double and dizzy as all get out. Along with my body aching like I was ran I over. This is a relapse so I got right on it. Started downhill in 2020 with the covid vaccine (didn’t want it, but couldn’t afford to lose my). It’s a tough battle but you need to stay strong and only have people that are positive for you. Clean up that friends list. And, like you said, find a good doctor I have three that between all of them are treating me.
Yes! Keep it up!
So…how did you beat Lyme disease? I thought you were going to address that. Certainly would be helpful
ILADS doctor and positive attitude and never giving up.
@@TheRealClassroom I mean as far as therapies and protocols...
There are so many it would take me days or hours to explain. I also can’t remember them all. I was in treatment for years and each time I saw the doctor it was a new protocol. I had coinfections and once something cleared up something else would flare up. It was a combination of oral remedies(western meds and eastern herbs) and IV therapies.
@@TheRealClassroom I get it. This is a complex issue. It’s that your title led me to watch thinking you had some input for others on actual protocols and treatments
You know, like GcMAF, advanced parasite treatments with things like Fenbendazole, Ivermectin, Praziquantel, Doxy…
Changing diet to keto and elimination of other things. Stuff like that
I had my right knee became swollen and my women doctor put me on a packet of steroids twice and when I asked for a third she said NO and sent me to another doctor
that dealt with swollen joints she drained my knee but I was back to see her twice then she said I am going to figure this out and sent me for a simple blood test. BUT
in the script was a question about lyme she called me the next day and told me I had Lyme disease. what was that so my husband and I spent weeks researching.
there was no one in the Buffalo ny area that I could get an appointment with that underwood lyme. finally, Joe found a specialist but she did not take insurance but
I had enough savings to start. she had me get a pic line for antibiotics to be put close to my heart,,,,,,, a month latter I took myself off and found another lyme doctor
she said that was way longer than I needed. but my normal doctor had put me on maybe 5 bottles of antibiotics at the beginning and nothing worked.
in the meantime, Joe found me on the driveway not knowing where I was or what had happened on my way to the mailbox. so I was taken into a hospital .
I had no li
Ugh. Keep up the fight. Take care.
Steroids weaken your bones.
I had to quit my husband worked 2 jobs for a while had this for 10 years! On Medicare they won’t pay for any medical treatment for Lyme!
Sorry to hear it!
Very interesting, thanks for the video
Thanks for watching!
Your 100% right.
Thank you.
What did you do?
Found a good doctor!
ILADS doctor.
@@TheRealClassroomhi from Germany!!! With antibiotics???
What treatment were you on?
A answer would be nice
How did you cure the Lyme disease?
That’s the million dollar question.
Lots of herbs and western meds
Yup!
👍🏼
biz is suffering.
im suffering.
i thought i had beat lyme.
its a new lifestyle.
Ugh. I know the feeling. I’m so sorry. Do you have a good doctor you can see?
Health and Wellness is so important - Mind and body. Cheers!:)
100% Thanks!