Thank you for sharing your story. I was diagnosed in 2019. When you said, "It's frustrating when your muscles decide to paralyze on you," I felt like someone understands me.
I am 22 years old and have MG though it is mostly restricted to my eyes. It's such a misunderstood disease! Simple tasks, heat, stress, mild infections all turn our symptoms so bad but people are not ready to accept that. University classes and academics get very tough with uncooperative faculties but hey, we can do it thanks to some fantastic doctors❤
@@anonymouswanderer2479 Wish I could have or find some fantastic Dr's. Ugh. It's been So many years long struggle to get diagnosed. So frustrating and exhausting! Take care of you now
I have been an MG sufferer for 30 years now, I am going through menopause and having tremendous muscles and ligaments pain. Is there anyone with MG who feels the same? 😢
I have not had any pain associated with my MG, but I definitely am curious what work has been done to study the impact of menopause on MG. It seems like it would be as volatile as pregnancy
I have tremendous pain with my muscle weakness and tiredness. I'm 46 now, but from what I've observed along the way, because MG is rare and not affecting many people, plus it being an autoimmune disease affecting mostly women, and put on top of it menopause, I'd just have to say good luck with any research on it! But I'd summize that because the thymus is a gland that secrets hormones, when our hormones are in flux during pregnancy or menopause, I'd undoubtedly see a causation between the two. That's my two cents
Thank you for sharing your story. I was diagnosed in 2019. When you said, "It's frustrating when your muscles decide to paralyze on you," I felt like someone understands me.
I am 22 years old and have MG though it is mostly restricted to my eyes. It's such a misunderstood disease! Simple tasks, heat, stress, mild infections all turn our symptoms so bad but people are not ready to accept that. University classes and academics get very tough with uncooperative faculties but hey, we can do it thanks to some fantastic doctors❤
We can do it! :)
@@anonymouswanderer2479 Wish I could have or find some fantastic Dr's. Ugh. It's been So many years long struggle to get diagnosed. So frustrating and exhausting! Take care of you now
Beautiful sons 💙
🙏
Thank you
I have been an MG sufferer for 30 years now, I am going through menopause and having tremendous muscles and ligaments pain. Is there anyone with MG who feels the same? 😢
I have not had any pain associated with my MG, but I definitely am curious what work has been done to study the impact of menopause on MG. It seems like it would be as volatile as pregnancy
I have tremendous pain with my muscle weakness and tiredness. I'm 46 now, but from what I've observed along the way, because MG is rare and not affecting many people, plus it being an autoimmune disease affecting mostly women, and put on top of it menopause, I'd just have to say good luck with any research on it! But I'd summize that because the thymus is a gland that secrets hormones, when our hormones are in flux during pregnancy or menopause, I'd undoubtedly see a causation between the two. That's my two cents