Hang in there sir I hope you are recovering well young man. I hope the drs can find something to where one day you will be siezure free or to lessen them. Here for you if you ever need a friend to talk to.
@@UnshapedLynx I am one of the ones who has been siezure free for 20years as the last cluster siezure I had was a few months before i turned 15. I am now 34 going to be 35. But yes when was younger I had siezures similar to you and my friend Alfie usually once a month upwards to 10 a day in a week period sometimes lasting two weeks my clusters involved were usually 70 to 140 depending on the severity over a week or two Time period. My friend Alfie is from over in the UK he has them very similar to yours and pretty much at the same frequency it seems.
As someone who experiences tonic clonic seizures constantly, it’s different sitting from another persons perspective. I’m sorry you are struggling right now
Yes I’ve had that aswell as the 7 day video telemetry and I’ve also tried many medication options with each causes side effects or increasing my seizure rate
Prayers for you 🙏🏾
Hang in there sir I hope you are recovering well young man. I hope the drs can find something to where one day you will be siezure free or to lessen them. Here for you if you ever need a friend to talk to.
Do you suffer with seizures yourself if you don’t mind me asking trying to find out as much as I can about how others experience them
@@UnshapedLynx I am one of the ones who has been siezure free for 20years as the last cluster siezure I had was a few months before i turned 15. I am now 34 going to be 35. But yes when was younger I had siezures similar to you and my friend Alfie usually once a month upwards to 10 a day in a week period sometimes lasting two weeks my clusters involved were usually 70 to 140 depending on the severity over a week or two Time period. My friend Alfie is from over in the UK he has them very similar to yours and pretty much at the same frequency it seems.
As someone who experiences tonic clonic seizures constantly, it’s different sitting from another persons perspective. I’m sorry you are struggling right now
I feel alone with tonic clonic epilepsy.
I wish I had someone to talk with
@@Greencloud8 I’m always here if you want someone to talk to!
@@BellLiz-zj7ki good how do i get a hold of you
Devi fare la respirazione diaframmatica
Have you had a 24 hour eeg
Yes I’ve had that aswell as the 7 day video telemetry and I’ve also tried many medication options with each causes side effects or increasing my seizure rate
@@UnshapedLynx are you a candidate for brain surgery