Acceptance in Chronic Illness - Vlog
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- Опубліковано 7 бер 2024
- #fibromyalgia #chronicillness #lifeinspiration
So, I ended up vlogging today, totally unplanned, but guess what? I ran out of migraine meds on a long weekend. Classic me, right? Thought I had an extra stash, but nope, just an empty box. And yep, everything's closed. Today's been a rollercoaster - started off thinking I could just power through the migraine, but nope, ended up needing to ask for help and spending the day in bed. It's tough accepting these limitations, even though I talk about acceptance and kindness to oneself all the time here. And just when I thought I had my hands full, I caught a cold, which feels like the worst timing ever with my POTS acting up more than usual. Amidst this, I'm trying to stay hopeful about my dream trip to Thailand - something I've been planning for 30 years and had to cancel twice already. Fingers crossed I get better in time, especially with my POTS being so unpredictable. Through all this, I'm learning a lot about myself, the importance of listening to my body, and finding strength in acceptance. Join me in this unexpectedly raw vlog as I navigate through these challenges, share my struggles and hopes, and try to find the bright side of things, even when it's not so easy. Let's get through this together.
🔶s a y h e l l o
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🔶a b o u t m e
I’m Daniela I have been diagnosed with several chronic illnesses. I look normal, I do things, have a job and go on vacations, but inside I'm sick. I live with several chronic illnesses and they affect my daily life. I am in constant pain and struggle with brain fog. Although I'm constantly looking for new doctors, new treatments and solutions I have also accepted my illnesses and do not let them define me. In this channel, I share a little bit of everything. Information about my conditions, my travels, my dreams, my journey, my life. This channel is about life through chronic illness lenses. Come and join me and see what I'm up to lately.
Check out those other videos about my chronic illness story:
👉🏻 MY FIBROMYALGIA STORY
www.youtube.com/watch?v=mWb_r...
👉🏻 IF YOU COULD SEE. MY ILLNESS
• IF YOU COULD SEE MY PA...
I hope you get to go to Thailand. ❤🙏😊☀️
Thank you so much! I'll updated everyone on the next vlog. ♥️
In the first minute of this video, you write such a beautiful prose again, that deserves to be published and collected in your future anthology!!
I might publish a book with a collection of the channel's reflections, one day.
I always love your videos!🤍
Thank you so much. 😍
Hope you feel better soon ! much love,light and prayer ,hugs sent your way!
Thanks so much!
Oh friend! I'm so sorry to see and hear this! Praying Praying, ans Praying for you, Daniella. I'm praying that your pots and your sinus infection do a quick turn around,. I pray that you CAN go on your trip with minimal problems. Rest, rest, rest. The mess can wait. Please, may God heal you for this trip! 🙏. Can you link your other channel in my comment when you get the chance? Rest first!!!!! I really resonated with what you said about the emotional aspect of chronic illness. Just because my Lyme and POTS are gone, I'm still going to be chronically ill...had my surgery, and everything fell apart. Was in the ER 3 times in 3 weeks. I've had a catheter for a week, don't know when I can get it out yet, and I won't even mention the other embarrassments. Returning to work may be ano-go for me now. We will see. I'm super emotional about it, and have to keep reminding myself that God has a reason and a plan for everything. It's not easy. It's really scary with what you are going through with the pots. I'm SO sorry, friend. So much love ❤️ and prayers sent your way.
Praying it all works out for you 🙏🌷
Thank you so much! ♥️
have had since 1997. Use to be able to go places not much now. Had to learn to accept not being able to do the things I love
Thank you for sharing, it sounds like you've been through a lot. The journey of acceptance is tough but remember, you're not alone, there's a community here that understands and supports you.
I’m so sorry you’re having such a hard time right before your trip. Praying that you start feeling better!
🙏🙏🙏🍀🍀🍀
Thank you so much. I'm holding onto hope that things will look up soon. Let's keep our fingers crossed for some good luck and better days ahead. 🌟🍀
I’m so sorry!!!! Head colds always make me feel sick from head to toe and exhausted more than usual because of the conditions I deal with 24/7. I hope you feel better soon!!
Thank you so much for your kind words. It really means a lot to me, especially during times like these when everything feels a bit more overwhelming. I'm trying my best to rest and take care of myself. ❤️
Watching this with a hot pack wrapped around my head, shivering from a fever and severe body aches, sinus pain, coughing and severe severe exhaustion from my 2nd covid infection in 5 months. This experience made me realize how much chronic pain I have on a 'normal' day - last night I was in bed and it was like my body was going through a thunder storm - every single injury I have ever had - from a broken bone to a cut to a sprained wrist/ankle, everywhere it was thunder and lightning, every single tendinitis/bursitis bam bam, every surgery incision boom, heat, pain, my plantar fasciitis and my whole feet hurting so much, IBS. And like you, I have such a hard time trying to do nothing. I really can't do anything, but the mental side is horrendous. My dream destination is Japan but sadly I know I'll never ever make it - unless I win the lottery and can fly first class. Life is so unfair. I hope your trip goes through.
Oh man, reading your message really hit home for me. I'm so sorry you're going through this again, especially with all the pain and exhaustion. It's like, on a regular day, we're already at our limits with chronic pain, but then something like a second Covid infection just cranks everything up to eleven. I totally get that feeling of your body just revolting against you, bringing up every ache and pain you've ever had. It's brutal.
And I hear you on the struggle of trying to rest but your mind just won't quit. It's like, even when our bodies are screaming for a break, our brains are on this never-ending treadmill.
Japan's on my bucket list too. Some day maybe. We will see if I will survive this trip. It's tough feeling stuck and dreaming of something that seems so out of reach because of health and financial hurdles. But hey, let's not lose hope completely. Sometimes life surprises us, and who knows what the future holds? Sending you loads of good vibes for a speedy recovery from this COVID round. And who knows, maybe we'll both get to experience cherry blossoms in Japan someday. Hang in there, and take it one day at a time.
@@tt_looking_glass Thank you so much for your kind and very hopeful words. Until the day I see the cherry blossoms, I'll go on walking tours of Japan here on youtube. I love those videos, so relaxing and I really feel like I'm transported there. Sending you all the strength and wishing you a speedy recovery too. 🥰
Yes, I hear you. On my worst days I watch lots of camping, hiking and nature videos because that is what I wish I was doing. It keeps my dream alive.
Wow that really sucks! Theraflu really helped me with covid, it’s a medicine in form of a tea. I hope you can go to Japan one day, I’d love to go there too one day. Hope you feel better soon ☺️
Praying for you 🙏😔
Please permit yourself to feel weak and vulnerable. I can feel your pain. Thanks that you share and even say kind words to all of us. Remember in your previous video, you say:” Even on your darkest days, you bring light to this world”. So love you and thank you!
Your words truly warm my heart, and I'm so grateful for your compassion and understanding. Allowing ourselves to be vulnerable is indeed a strength. It's connections like these that shine a light even on the darkest days. I'm touched that you remember my words, and I hope to continue being a source of light and encouragement, just as you are for me. Much love and gratitude back to you! Let's keep lifting each other up. 💖
Do you feel better today?
@@jimmyching7293 yes, I feel much better today. In fact I’m going for a quick camping overnight by Lake Huron.
Happy to know you recover so fast!
I was sick for three weeks. Remember, when you see a video it probably was recorded about two weeks earlier. With vlogs, I try to make it a week but sometimes, especially if I am sick it can be longer than that. It takes time to edit the videos and if I have a lot of migraines I often can't look at my computer delaying the editing even further.
I hope you can go. I have always wanted to go. I lived close to there many years ago but never went. I definitely regret it.
Thank you! ♥️ I will updated everyone on my next vlog on how the plans are going.
Aww..that sucks. Know that your feelings are validated here. Some days you just have to surrender to what is going on.
Thank you for the validation and support. It really does make a difference to have a space where feelings can be acknowledged without judgment. Surrendering to the moment, especially on those tougher days, is sometimes the most compassionate choice we can make for ourselves. It's comforting to know I'm not alone in feeling this way, and your understanding helps more than you might realize. Your kindness is truly appreciated.
Being chronically sick and then getting regular person sick in top of it- it sucks. I wear a mask 😷 bc viruses could land me in the hospital with my POTS, MCAS, and immune system issues. No thank you. My sister in law just got two flu viruses back to back ( different strains).
Being chronically ill is tough enough without catching the usual bugs that go around. I'm in the same boat with POTS, MCAS, and my immune system just not cooperating. Feels like we can't catch a break, right? I'm sorry about your sister-in-law catching two flu strains one after the other, that's just wild. I hope she feels better soon.
I sleep on a magnet pillow for 2 days and mine went away. I do get the aura a couple times a year. I love th grass decor but, if I had that near my bed I would have allergies, Regular dys for me are like the flu sorry for the typos have pain in my hands. some of us use alka setzer original with the aspirin, crazy but, helps some of us
Wow, a magnet pillow! I'll have to look into that, considering how unique our bodies and health conditions can be. Thank you for sharing the tip about Alka-Seltzer, I have heard it helps with a lot of stuff but unfortunately I am allergic to aspirin, which is its main ingredient. But thank you for sharing, it may help someone else.
I feel you. I have had Fibromyal for many decades. I have run away heart beats and sometimes hesitations in my beats with dizziness upon standing. I have taken many trips to emergency. What helps correct and prevent these run away heart beats is a medication called Atenolol. Has your doctor ever suggested it? It could help
Thanks for opening up about your journey with Fibromyalgia and heart issues. It's been quite the ride, huh? I don't know what Atenolol is, I have never heard of it. Sharing experiences like yours really helps everyone in the community. I will look into it. Super grateful for the tip! 🌼
Love all your videos and I hope one day we all get cured🙏🏻🙏🏻🙏🏻 do you mind sharing what kind of migraine medicine you take??
Thank you so much! I take a preventative medication once a month which is an injection called Emgality and then I take an abortive medication on as as-needed basis when I get the migraines and that is Elitriptan.
Hi me from belgium again, a trip to Thailand with fibro on a svere level is like the same you accept the Challenges to run a marathon. Every fiber in your body is so under stress. Your are close to a panic attac i think… if you go you wil servive just on the adrelanine you body make to do the trip. But one day the slide of adrelanine your natural dopamine is compleet gone and than in is bedridden for how long.. i dont wane be pessimist and hoop you can do the trip. Dukkha is boeddhisme word for suvering and that is wath we fiel a lot as fibro or haelty humans it is always there. But most of the people put oil on it. So the dukkha is dubbel, it is like your heart beat on your Watch just to look at it make it worse or showing the mess in your house enz..You dont need that if you close your eays you feel your body is in a fight modus . The best shot of your vlogg was one the fire place. The power of now is a Nice book to read and accept weher your now . Not in Thailand,on the Himalaya on cruise, party in Ibiza in a raket to the moon. Sorry for my bad writing hoop you find inner peace first to do the trip… ik leef van dag tot dag, gisteren is dood en morgen bestaat niet. Geweldig waar je de energie vandaan haalt om toch deze vlog te maken groetjes uit België
Hello friend! It truly means a lot that you reached out with such honesty and kindness. Your analogy of travelling with severe fibro to running a marathon really hits home. It's a vivid reminder of the challenges and the intense stress our bodies go through. You're absolutely right about the adrenaline and the potential aftermath. It's a tough balance to honour your body and live life to the fullest. Thank you for reminding me (and all of us) about the importance of being present and finding peace within our current circumstances, rather than seeking it in far-flung places. Don't worry about your writing; your message is clear and heartwarming. Also, I do speak a bit of Dutch. I lived in The Netherlands for 7 years.
Simultaneously causes me anxious jitters and shortness of breath . It’s nuts
It's interesting how medications affect people differently. I wonder if it is a MCAS thing.
@@tt_looking_glass I think it’s 💯 an Mcas thing my drs say we are way more susceptible to side effects having that condition which explains my entire life lol in general because we are all different obviously we will all have different responses to medicines, but I’m allergic to at least nine antibiotics that is not normal
MCAS definitely keeps us on the edge of our seats!
It does for me because it’s all over the place with symptoms
I understand I have fibromyalgia, too. I had to quit working as a nurse, because, it was way too hard on me. The flare-ups were so bad. I couldn't take it. I'm going to add you to my prayer list. Please be safe and rest! Thank you. I'm grateful for your channel.
I'm really touched by your message. It's so challenging to make such big life changes, especially leaving a profession you care about due to health reasons. Your experience resonates deeply with me. Knowing we're not alone in this journey makes a world of difference. Thank you for adding me to your prayer list; your kindness and support mean so much. Please take care of yourself as well, and remember, rest is not only necessary but brave. I'm grateful to have you in this community, and your encouragement fuels my commitment to this channel. Let's continue to support each other. 💖
I take childrens benedryl can not take cold med or nervous wreck
Please the grasses next to your bed, they are terrible for allergies, I feel they will be so bad for you
Thank you for the tip.