What I would tell myself in the beginning of my illness | bartonellosis, MCAS, hydrogen sulfide SIBO
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- Опубліковано 18 кві 2021
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✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
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Helpful playlists:
→ My life with bartonellosis and MCAS: • My Life With Bartonell...
→ Bartonella Success Stories!: • Success Stories!
→ Interviews: • Interviews
→ Bartonella Basics: • Bartonella Basics
→ MCAS: • MCAS (mast cell activa...
→ SIBO • SIBO
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✩Facebook: bartonellababe
✩Inquiries: jakethebartonellababe@gmail.com
More helpful playlists!
→ Testing for Bartonella: • Testing for Bartonella
→ Exosomes: • Exosomes Experiences a...
→ GI symptoms: • Gastrointestinal Sympt...
JOIN our NEW bartonellosis support group on Facebook called BREAKING DOWN BARTONELLA:
/ 1104493829902071
JOIN my NEW Exosomes Experiences group on Facebook for patients only so we can be open and honest there:
/ 296677724702506
Understanding Bartonella Webinar:
• Understanding Bartonel...
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
High quality journal articles on bartonellosis:
1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
4. Breitschwerdt, E. B., Maggi, R. G., Mozayeni, B. R., Hegarty, B. C., Bradley, J. M., & Mascarelli, P. E. (2010). PCR amplification of Bartonella koehlerae from human blood and enrichment blood cultures. Parasites & vectors, 3(1), 76.
5. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
6. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
7. Breitschwerdt, E. B., Maggi, R. G., Nicholson, W. L., Cherry, N. A., & Woods, C. W. (2008). Bartonella sp. bacteremia in patients with neurological and neurocognitive dysfunction. Journal of clinical microbiology, 46(9), 2856-2861.
8. Breitschwerdt, E. B., Mascarelli, P. E., Schweickert, L. A., Maggi, R. G., Hegarty, B. C., Bradley, J. M., & Woods, C. W. (2011). Hallucinations, sensory neuropathy, and peripheral visual deficits in a young woman infected with Bartonella koehlerae. Journal of clinical microbiology, 49(9), 3415-3417.
9. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
Blog Post on Bartonella and the Eyes from Galaxy Diagnostics
www.galaxydx.com/bartonella-a...
Mast Cell Activation Resources:
www.mastattack.org/
/ mcas
tmsforacure.org/
Mast Cell Activation Facebook Support Groups:
/ mastcell
/ 207077049364043
/ 688215441273764
#bartonellababe #bartonella #bartonellosis
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Everything you’ve built is insane !!!! I love watching your videos and it’s not just because I know you, it’s because your videos are informative and funny and inspiring and important. I love u keep going ur gonna dunk this shitttt!!!!!
AWWW thank you Sideara! That means so much coming from someone as famous as you! Lol. I can only aspire 😭 But seriously thank you. I know I'm going to beat this and I know that this channel is helping a small but significant amount of people and I think in the coming years science will realize that bartonellosis, SIBO, and MCAS are a lot more prevalent than is currently appreciated. I voted for your shoes btw!!! I'm sorry you didn't win but having 2/5 of the options is already a win in my book
You're lucky for having such supportive friends.
@Cyril those too
You’re both very right. I’m lucky to have both of those things and I don’t take them for granted and I wish all of us who are sick had the same
You always make me cry when you cry because I know exactly what ur going through and all the life changes that needed to be made. It breaks my heart. I hope we all get better. I hope an easier more effective treatment is discovered.
It's good to cry! ❤️ Well ya know if it's cathartic. We will all get better if we keep trying. I do believe that. I haven't announced this yet but I've gone from 5 foods to 13 foods in about 6 weeks so there is hope
@@BartonellaBabe that’s amazing!! I’m very happy for you!
You give me hope you are truly a wonderful kind hearted person I wish you love and wellness I’m absolutely terrified all the time that I’m dying but watching this video has helped me feel more like I am going to make it and get at least some of my life back thank you
Oh I’m so glad to hear that. I know the feeling and we will get our lives back. Maybe not as quickly as we would hope but we just have to keep trying ❤️
🥒 stay brave - you’re helping a lot of people!
Good video Jake and so valuable for anyone with chronic illness. You are so lucky to have retained your friendships and your friends remained so kind and supportive. Most of us lose our friends.
Yes I truly am lucky for that and I am so grateful. These illnesses are hard enough with friends
❤❤❤❤❤ Thank you for all you do!!! This video was much needed. The support groups are very helpful but between the opinions and the research it can get very overwhelming but ive definitely learned alot from them. Thank you!
I’m so glad this video was helpful! And yes all the opinions are overwhelming but eventually you find your way. You might take some wrong turns or get stuck in a ditch but eventually we will get there! ❤️
Thank you for your hard work!!!
Please post link to video wherein you explain your testing with Quest
Hi Susan! I'm not exactly sure which video you're talking about. I did test negative on Quest's IFA for Bartonella but positive on Galaxy's IFA
Is Bart the only co infection you are working on or just the first one? Thank you for sharing! Great tips!
I "just" have bartonellosis but Bartonella is very much a stand-alone infection and can make people very very sick all on its own. That's why I make sure to never call it a co-infection because that helps spread awareness of how devastating bartonellosis can be on its own 🙂, which has been my experience
Hi Jake,
Thank you for your videos. I noticed you’re still dealing with alot and I really feel for you. Do you feel that you’re going in the right direction or maybe you’re still lost? Do you feel exosomes helped you even though you still have limited use of hands and feet and are on an extremely limited diet? I have had alot of the same symptoms but not quite the same severity. I have considered exosomes, but they’re super expensive and I keep seeing very temporary results with people. Also, I mean this comment is the kindest way possible, I don’t want to trigger you in any way. Sending hope and love.
Hi Gaia! Thank you so much for the way you worded your comment. I don't feel lost! Treating the SIBO was what was standing in the way of me making progress. I have now gained back 7 foods in 1 month. And the exosomes have reduced my pain by so much. Yes they are expensive and yes you have to keep doing them if you still have your source of the inflammation (for me that's the Bartonella) but I wasn't able to use my phone at all and now I can type this message to you and edit videos (which is A LOT of clicking). I can't do things that require grip and weight (like holding a pot of water for cooking) because I still am very sick with bartonellosis. Should be starting clarith in the next 6 weeks or so if all goes according to plan
@@BartonellaBabe thank you so much for your message! I really appreciate hearing your story as lyme and co’s (like bartonella) can be so tricky to treat. It feels like there’s always a crisis or roadblock to work around at every turn. I’m glad to hear exosomes have helped you a lot with pain. This is very reassuring. I’m looking forward to continuing to watch you on this journey to be well. We will both get there. Sending love and prayers ❤️
Where did you find Doctors to help you? I don't think there are any in my area. My doctor looked at me like I'm crazy when I brought this up.
I recommend you join our support group on Facebook called breaking down Bartonella so our admin can point you in the right direction practitioner wise
- Whatever it is, ramp the dose whenever possible.
- Don't be attached to any theories, diagnoses, or treatments.
Bartonella Brave!
Coming to a t-shirt near you! lol but actually. It's more kid appropriate than "BUCK BARTONELLA"
Do you ever experience muscle twitching? I have lyme bartonella and babesia. I'm not sure what one cause's it 🤔
Muscle twitching is common in bartonellosis due to decreased blood flow due to vasculitis. I explain more in this video: ua-cam.com/video/lySmaiFGgAs/v-deo.html
@@BartonellaBabe that might explain why my legs feel like they are always burning 🤯
@@GTschumacher definitely a possibility!
❤️
glad this study room is empty because I'm WEEPING right now. I can't come up with a coherent thought but yeah this one hit all the spots for me ❤️
Awww I CAN ALWAYS COUNT ON YOUR COMMENT. Even my friends know who "N T" is ❤️
@@BartonellaBabe omg wow I feel so special haha
also my name is nini btw lol I try to keep a lil bit of privacy but it's on facebook so ¯\_(ツ)_/¯
Cujo Piper, a Prairie Dog, and some sort of...Pterodactyl over your shoulder...nice zoo there "StillJake". :)
Off topic question, since you not only know stuff, you seem, to me at least, to know *all* the stuff. Insomnia issues. I've watched/seen/read about a myriad of diseases, and my main issue MCAD, but rarely see or hear others talk about the...no-sleep sleep. From literature I've absorbed, Histamine is allegedly at its highest level about 3:00AM. One might presume other body chemicals are as well, due to some of our bodies being..."whack". Do you possess in your brain, or have the facility to expound/dispense anything on this topic? (Maybe you sleep like a babe in a bassinet though.) And does the same (insomnia) possibly apply to Bartonella, SIBO, and other medical issues? I sleep maybe, 2 hours a night, sometimes go weeks and weeks without REM, its horrific and so detrimental to my life, but I can't take sleep meds, over or behind the counter, can't smoke weed, etc. Just seeing if your educated and spectacularly edifying erudite mind has any insight into this, for a possible future podcast. :)
Bahaha my mom is offended at "Cujo Piper." Her breath was pretty Cujo but she got a deep cleaning and it has been nothing short of miraculous. I love her even more and I didn't know that was possible!
I know absolutely NOTHING about sleep. I do sleep like a Bartonella babe in a bassinet. I have heard about the middle of the night histamine dump a lot but have never experienced it myself. As we know MCAS is very heterogeneous and I mostly react to things I ingest and when I'm sleeping, I'm not ingesting.
I'm sure you've tried the basics, like sedating H1s, since those can be for MCAS and sleep. Benzos can also have this dual action. I know some people with bartonellosis have an inverted sleep schedule due to brain inflammation (much like some Autistic people don't sleep through the night).
But perhaps I can research this in the future and if you come across anything you think I should include, you let me know TR Savage
@@BartonellaBabe Oh man, the very last thing I would *ever* want to do...is upset the Marvelous Majestic Magically Magnificent Maternal Unit known as Mom! Please pass my sincere heartfelt condolences on to her for my grievous error in ever deigning to make what would appear to be a slight, a disparagement, an insult, about that fabulous canine unit, she of impeccable moral lassitude, a puppy paragon of virtue, a pillar of the community, the antithesis of turpitude and perfidiousness "puppyitude". :)
I'm glad you sleep. We all have our "thing" and for me, Benadryl, Hydroxyzine (only word in the English language with xyz in a row) have the infamous "Paradox effect" and affect me like coffee, amphetamines or whatever. Benzos mess me up, got a circadian rhythm disruption where my body wants to stay up for about 22 or so hours, its a challenge. But thank you for the consideration, the suggestions, and enjoy your weekend. :)