The hidden source of fibromyalgia pain: fascia

Поділитися
Вставка
  • Опубліковано 16 січ 2024
  • Most doctors don't know that fibromyalgia pain originates in the fascia. Myofascial inflammation and pathologic levels of muscle tension are the trigger for the central sensitization and immune system problems seen in fibromyalgia. Fascia-directed therapies are key to finding effective fibromyalgia pain relief.
    This video summarizes my research journal article which you can find here: www.bodyworkmovementtherapies...
    Links to other articles referenced in video bottom of page
    About me: I graduated from Tufts University School of Medicine and am board-certified in internal medicine. After developing fibromyalgia in medical school I was able to find integrative treatments that helped me feel much better. In my videos I hope to inspire everyone dealing with #fibromyalgia to remember they are #fibrofierce!
    Sign for my email newsletter for all things #drginevra and #fibro at www.drginevra.com/
    References:
    journals.lww.com/jclinrheum/f...
    www.jrheum.org/content/48/4/5...
    www.tandfonline.com/doi/full/...

КОМЕНТАРІ • 123

  • @wendybenson5903
    @wendybenson5903 3 місяці тому +13

    I had a doctor's appointment yesterday and because of you I was armed with better information to give him to help me. I will be ordering your book next pay day. He moved my diagnosis from fibromyalgia to severe fibromyalgia and I'm being referred to a rheumatologist that I researched that deals with fibro patients and I have started the process of applying for disability as I haven't been able to teach voice lessons in two years. Hand cramps, back cramps, fatigue, and the brain fog that stops me mid-sentence while instructing and completely lose what I was saying or worse... I can't read my sheet music (very embarrassing and frustrating) I can't thank you enough for posting these videos and educating me so that maybe I can get back some of my life.

    • @heathergreenhalgh2289
      @heathergreenhalgh2289 2 місяці тому +3

      Can Totally Relate. A frustrating cycle 😢. May you have more moments of calm/ release from the tightening knots and find some better ways through this crazy condition. Drink all the water you can and move as well as the day allows. This Dr. Gives me hope that someone has begun to understand and untangle the mess we feel building up in our bodies. Gotta streTch now. ( don’t feel like it, but if I don’t I know I’ll pay with interest later! Take care. 😊

  • @sandrad7633
    @sandrad7633 4 місяці тому +21

    Started this 2 months ago with my osteopath . Absolutely life changing. I was so close to really, really leaving planet earth.

    • @humansnotai4912
      @humansnotai4912 4 місяці тому +3

      That made me really happy to hear that you've found some relief from suffering. I know exactly what you're talking about. Wish you all the best in finding more peace. Namaste x

    • @sandrad7633
      @sandrad7633 4 місяці тому +1

      @@humansnotai4912 thank you !

    • @yvonnejordanabdon6356
      @yvonnejordanabdon6356 3 місяці тому +1

      I will start on March 4th. I can’t wait!

    • @nasarthemax
      @nasarthemax 3 місяці тому

      How are you doing now?

    • @nasarthemax
      @nasarthemax 3 місяці тому

      ​@@yvonnejordanabdon6356 all the best

  • @wildrose912
    @wildrose912 4 місяці тому +15

    Fabulous info! I’m a RMT, practicing 20 years and specializing in Structural Myofascial Therapy and chronic pain management. I’ve seen how much pain relief slow, specific myofascial therapy can provide. I was diagnosed with fibromyalgia 22 years ago about 18/months after a serious car accident. Myofascial therapy can benefit everyone, but especially those with fibromyalgia. Thankfully there is so much more research and validation of this invisible excruciating condition.

    • @julieellis8517
      @julieellis8517 Місяць тому +1

      I, too am a connective tissue therapist. I am stunned that doctors cannot feel what we feel when palpating! Fibrotic tissue is a problem and Lyrica is not the answer.

  • @Dancin24241
    @Dancin24241 4 місяці тому +11

    Thank you so much for posting these videos and writing your book The Fibro Manual. You are the only doctor I have found who has this knowledge and I am so grateful to you! I go for myofascial release massages every 3 weeks as it significantly reduces my pain. I recently went to a functional medical doctor. I brought your book hoping we could make a plan, instead his ego was bruised because he interpreted that I was meaning he was not as knowledgeable as you and got into quite a tantrum. I have had so many bad experiences with doctors. So, if not for you I would be completely lost.
    I am trying how to figure out how to get deep sleep but have had no luck so the fatigue and brain fog disable me so I can’t live a normal life.
    Thank you again for all you do for those of us suffering with Finromyalgia.

  • @Namerof-wj1jy
    @Namerof-wj1jy 4 місяці тому +7

    I’m 78. Diagnosed with Fibromyalgia a few years ago. Have your manual. Appreciate what you share. ❤

  • @FindingHolm
    @FindingHolm 4 місяці тому +17

    Yay thanks for posting on Fibromyalgia. If you could also make a video on Myofascial Pain Syndrome & on that tiny organ that connects the fascia to the bone. I believe it’s called the Enthesis & feels like tiny extremely white hot & painful to the touch ropes along the bones. I can’t find much info on this in any literature. I’ve been researching since my disability in 2016.
    Doctors really don’t know much on anything around fascia. Luckily I’m able to still get opioid pain medication so I can get out of bed & at least use both my hands & arms to feed myself or take a shower. I can do more then about 10 things a day before the fascia in my forearms & hands completely seize up 🤷‍♀️
    Thank you so much for fighting for us here in Oregon when a group in the gov was trying to get opioids out of the schedule for back pain. This group was made of acupuncturists, NA doctors & the like.
    Without opioid pain medication I would be able to feed or bathe myself but most have know idea how debilitating this pain is or how the fascia will just seize up.

    • @lindaireland2751
      @lindaireland2751 4 місяці тому +5

      Yeah I think I have that aswel I get the same as u as I changed drs twice so far they are being right gits about my pain meds I can't have antiimflammatory expect steroids but don't even like giving me that. I have spondylitis spondylolisthesis etc aswel but they really don't care they just think some take it for the sake of it but that's not the case eh. U have my 😢sympathy ❤

    • @FindingHolm
      @FindingHolm 4 місяці тому +4

      @@lindaireland2751 omg! That’s horrific! I’ve had to bring a friend in with me at time where I felt a specialist wasn’t taking me seriously. If you’re not getting the care you need you can always speak to the admin of the hospital. Also do & bring in supporting research as to what you want as treatment & prove why it helps. I have done that often as well. I’m so sorry 😞 thanks for the comment 🙏

    • @lindaireland2751
      @lindaireland2751 4 місяці тому +4

      @@FindingHolm oh the admin at the hospital ok great thankyou so much hun I know it's horrible when they don't take people seriously. I hope u getting al the help u need thankyou so much il give it ago see what I can do. I know its so hard when you have health issues&always in pain. 💞🙏

    • @Dionysus_Athena
      @Dionysus_Athena 4 місяці тому +2

      @@FindingHolm I understand your pain my traps, scapula, shoulder biceps triceps and firearms muscles all ache, to the point I feel the attachments of ligaments to the bone, if I turn my forearm I can feel the two bones move and thus in-turn the ligaments move and create more pain. I get sensation that are worse than most people describe, they talk of pins and needles I wish I had that, instead it feels like prickly heat. The funny part is I can get sunburnt so bad that I won’t even feel it on my arms or back.
      Opiates we’re terrible for me, my tolerance always goes high. At one stage I was morphine 150mg up to twice a day. So far I’ve experimented on myself with HGH, Peptides, TRT all having incredible results. Unfortunately these aren’t legal treatments in my country. Peptides are, however they’re very expensive. Vitamin IV infusions worked wonders however again too expensive. Cortisone works wonders however too many and atrophy will occur. I’m going to be hopefully trying a ketamine cream soon. Hopefully that will help. Most of the data seems to be done for women as most fibromyalgia patients are women.

  • @stacywoods9368
    @stacywoods9368 4 місяці тому +9

    I have heard women with fibromyalgia have reduced their symptoms by increasing their fish/sardine consumption. Apparently a diet very high in omega-3 fatty acids helps with fibro pain. I will be testing out the theory very soon.

  • @saraoramas214
    @saraoramas214 4 місяці тому +12

    Bless you and all your videos. Believe me when I say that when I get better, expect an email from me. I've always loved nueropsychology and wanted to get my PhD in it. When I improve, I'd love to go back to school and use my knowledge to help others like you did 💙🙏🥰

    • @DrGinevra
      @DrGinevra  4 місяці тому

      I look forward to that email!! Sending you healing thoughts

  • @kmorgan1047
    @kmorgan1047 4 місяці тому +12

    Excited to see the rest of your new series!

  • @quaverskidgmail
    @quaverskidgmail 4 місяці тому +5

    Hi Dr Ginevra, thank you soooooo much, I have your books, my pain Dr took a screenshot of your book, and she says she is going to read it, also a couple of Drs at my surgery were interested, and took details, they said they’d pass this on to other fibro patients.
    Without you, I would have shuffled off this mortal coil a long while ago, so thank you again, with all my heart. ❤ (UK)

  • @juliao1255
    @juliao1255 4 місяці тому +19

    This makes so much sense! I am crying in relief just to have answers, because I am severely impacted by fibromyalgia, to the point where I am disabled, and went on gov't disability without being denied (and having to appeal) and no other diagnosis. That was in 2000. All this time I am so frustrated by the lack of answers and treatment! Since then I have developed other conditions, but the worst is still the fibromyalgia. Just having explanations gives me hope. There is a Dr. using ultrasound in brains to break up Alzheimer plaque in the brain, with astounding results. I wonder if it would be useful on the excess collagen in our fascia and muscles?

    • @DrGinevra
      @DrGinevra  4 місяці тому +1

      I am so glad to provide helpful information!! Ultrasound is often used by physical therapists and does seem helpful in certain conditions. I haven’t heard of it being helpful in fibromyalgia, but may need to be done differently to focus specifically on the fascia.

    • @chioma0300
      @chioma0300 Місяць тому

      I've been diagnosed with fibromyalgia and one of the most lasting relief I get is when my physical therapist uses ultrasound to treat my trigger points. I've developed autoimmune issues too.

  • @missylee3022
    @missylee3022 4 місяці тому +5

    Thank you! It means so much to find real medical information instead of alternative wellness nonsense.

  • @athomas5909
    @athomas5909 4 місяці тому +9

    Thank you for the explanation! I also do the myofascial release once a month and find it to be an important tool reducing pain.

  • @LorenasChesed1beads
    @LorenasChesed1beads День тому

    Hi, I've had fibromyalgia way before the name for this complex disorder came out. I did have Ankylosing Spondylitis that went into remission in my 50s.. It started in the the sacroiliac joints in 6th grade. My mom thought it was menstrual cycle pain. Back then, they didn't have a way to find the HLA B27 gene in the blood. Now I have 4 autoimmune disorders.

  • @karenjeffery1998
    @karenjeffery1998 4 місяці тому +9

    Glad to see you back on UA-cam 🙂

  • @katythielen439
    @katythielen439 4 місяці тому +3

    I have had your books for years and I have been to your clinic. I was diagnosed at age 30 with fibromyalgia and I notice that as I age(I am 67) it is getting worse. I need to pull out your book and get going again. I think I have been denying it and trying to mentally handle it. This is perfect timing as I was to a point of wanting to give up.

  • @lilyrodriguez7393
    @lilyrodriguez7393 2 місяці тому +3

    This might explain why muscle relaxant worked so well with me in the past

    • @DrGinevra
      @DrGinevra  2 місяці тому

      Muscle relaxants can be very helpful for some people with fibromyalgia, although they tend to have a lot of side effects.

  • @odeliazriker
    @odeliazriker 4 місяці тому +9

    Your explanation so clear, thank you for that. It's interesting indeed 😅 I already read your book. Unfortunately there isn't John Bara ns method therapist in Israel 😢

    • @DrGinevra
      @DrGinevra  4 місяці тому +3

      I wonder if there are other fascia-directed therapies available locally for you. I am doing a video really soon about mfr and other similar therapies, some of which originated in Europe so might be more likely to have therapist trained in those approaches in Israel.

    • @odeliazriker
      @odeliazriker 4 місяці тому +1

      @@DrGinevra Thank you! There are some therapists who claimed they're fascia release but it was too painful for me (with a metal tool that supposed to release the adhesions under the skin).
      Looking forward to your video.
      Thanks again ❤️

  • @robertscott4007
    @robertscott4007 4 місяці тому +4

    Amazing video have missed your videos hope you do more and maybe start some live blogs again hope your keeping well

  • @humansnotai4912
    @humansnotai4912 4 місяці тому +3

    Great video yet again :0) My fibro support list is below (not in order of importance) after decades of suffering.
    1) L-Citrulline is great for my energy levels (really good for men with ED also, as is converted to nitric oxide - viagra killer).
    2) Phosphatidylserine is great for brain fog and word recall.
    3) Clean food and high protein (with exercise if you can manage it).
    4) Stress management - remember the 1m2 rule (1 meter squared) - when everything is going to rats around you, bring it back to your immediate environment of 1m2. That's all you can control on the entire planet Earth.
    Love and peace to you all xxx

  • @jo-annsiebert4860
    @jo-annsiebert4860 8 днів тому

    Your information is so valuable to me. Learning about the fascia and how to relieve the pain caused by it has been beyond helpful. I am almost 59 and I only wish I knew this information earlier in my life.

    • @DrGinevra
      @DrGinevra  День тому

      I am so glad my information has been helpful for you !! 💜

  • @luvanime1986
    @luvanime1986 4 дні тому

    This video caught my eye though I am not a fibromyalgia patient, I have polyneuropathy, mixed fiber, and knew that some believed there may be some similarities, however few or many, between the two. I read both studies but neither says anything about fascia muscles and of course they state:
    Conclusion
    The results show that increased muscle pressure may be a significant cause of pain in FMS, and the etiology of the pain may have a large peripheral component in addition to a centralized origin of the pain.
    So, it seems to say that increased muscle pressure (the first cited study used the shoulder blade muscles, 2nd study uses already diagnosed fibromyalgic connective tissue) as well as some chemical imbalances may be contributing factors in the two origin theories of fibromyalgia noted above, but that this invites further study as it makes no definite conclusion on a specific cause of fibromyalgia. At least that seems to be the scientific view from the studies you cite, except your own, which I could not figure out how to look, at the cited material. But I'm curious how of the studies I've looked at, none other than yours has come to such a specific conclusion. Even the Mayo Clinic say in so many words, Myofascial Therapies may be as effective spine manipulation and deep massages (April 23, 2023). I have run across a couple fibromyalgia patients when I see my neurologist once a year, though they tend to be severe cases, which maybe outside of the scope of your theory? Or not? I have large fiber neuropathy in my hands, arse, ankles, feet and toes, all of which are starting into advanced stages. Half my toes are numb and I cannot feel them anymore and now I must be care and pickup drinking glasses with two hands as sometimes my right hand will drop it because I've suddenly lost the feeling of it (it's weird as hell!). Luckily I still have my left for my cane. I have small fiber neuropathy from the neck through the feet and have had 3 cores taken, all showed damaged small fiber nerves. I wasted 2 years at Mayo's neurology dept. taking $27K USD worth of tests just for them to say we don't know, come back, in 6 months. Ha! I found a neurologist closer to my house, who spent 45 minutes with (with only straight medicare!) me and his hammer and pointed stick and said you have large fiber neuropathy, we will keep talking and get your gp to obtain a bunch of (they used 11 tubes) blood draws to see if we can fine a reason but he said many times a cause is not found. Nothing happened around the time, I just went get off the bed to head to the bathroom and fell to the floor because the first and second step felt like 3" pieces of broken glass shoved up through the bottom of both feet. I was fine I second, and ajorly "f"d up the next. About 6-9 months later drying off out of the shower felt Iike 40grit sandpaper and picking up a spoon felt like I was sleeping a handful of razorblades in the palms and individual blades slicing the inside of my fingers. It accelerated quickly, again fine bloodwork and organ functions. But now I am bedridden and sleep 16-18 hours a day (the heavy fatigue is very recent) and only on my sides. I have to take a very large dose of gabapentin, mexiletine for the additional harsh hand pain, as well as the next best thing to morphine, all so I can get up and eat a meal with my family, or I pop an extra dr. feelgood (my pain doc gives me x at extra each month for this kind of purpose) and my wife and I went to a small mall nearby and went to a couple shops and sat in the shade and light breeze and relaxed. Things like this people don't care much about, but for me, even the 1½ hour out with my with is a treasure to me. I have tried many non-medical therapies and such, but at least in my case, they don't and will never work. Everything my neurologist told me years ago that could happen on the more negative side has/is happening and that's okay. There is a new drug in trials now or upcoming that they believe be able to repair damage mylienated (large fiber) nerves. That would be great especially for my hands. Anyway, I'm off topic, but I'm interested if you could cite any other studies working or peer reviews of your published study. I'm apparently not too bright when it comes wor,ING around those open source sites. Medical or therapeutic, I'm always interested in any topic that may have some crossover to mine, even if minor. I have lots of free time! 😊

  • @annwilliams6438
    @annwilliams6438 4 місяці тому +3

    I so wish that researchers would stop doing the stress testing on animals that is described here. There are plenty of us available with severe pain to ask about how this works and that would even be willing to help in research.

  • @kiblet
    @kiblet 4 місяці тому +4

    I read we have too many IGG antibodies. What role do these play? Thank you.

  • @d.l.bamlett4393
    @d.l.bamlett4393 28 днів тому

    The only release I experienced was from Thai massage. Myofacia was good for the moment, but in long-term deep tissue release was where I experienced the biggest and lasting impact on my lower legs.

  • @user-sk7ys8on6x
    @user-sk7ys8on6x 4 місяці тому

    I have been a fibromyalgia sufferer for years. Your breakdown of fibromyalgia is meaningful and accurately depicted. The information in your videos bring me so much comfort 1 because your a fybro warrior yourself and 2ndly because validating the existence of the condition with scientific reasoning n findings helps sufferers like myself feel validated. I have lost my ability to work due to the chronic debilitating symptoms associated with this condition . My muscle pain is so intense even when i use aids such as lidocaine patches, bio freeze, zanaflex epsom salt baths. I have recently filed for disability as it is nearly impossible to do things for myself without exacerbating my condition . I pray that the study in search for more answers for this condition continues to grow. I have forgotten what it feels like to live a pain free life but videos such as these keep me hopeful that more findings, newer treatments and more medical awareness from medical professions are near . Thank you for your stellar explanations and advocating on behalf of all fybro sufferers your work is needed 💜

  • @SN-sz7kw
    @SN-sz7kw 4 місяці тому +5

    Thank you for your dedication to sharing your knowledge & experience. I follow you closely. Wondering if you are also aware that some of us seem to have a B12/folic acid deficiency connection. I’ve struggled with these deficiencies for years with no medical explanation. The deficiency symptoms overlap with fibro/CFS symptoms. Mine can be quite severe but don’t always show up as anemia on labs. Had to test directly for active B12 & FA levels to figure it out. I now do self-injections 2xweekly & my levels stay high. It gives me not complete, but significant pain relief. But if I pause for even a month the Fibro pain returns like sledgehammer - even tho my lab levels stay high. There are studies published on the connection, but would love to hear your perspective.

    • @DrGinevra
      @DrGinevra  4 місяці тому

      I definitely think that looking for nutrient deficiencies ( iron, b12, folate, magnesium) is important in fibromyalgia, along with looking for MTHFR gene mutations that impair ability to utilize folic acid. So glad you have found some relief!!

  • @muratkara5016
    @muratkara5016 4 місяці тому +7

    Could you comment for dr john sarno/tms relationship for fibromyalgia?

    • @StarHarvestOfficial
      @StarHarvestOfficial 3 місяці тому

      Stop Chasing Pain marries the fascial / postural science with the TMS diagnosis very well.

  • @Bellarosa777
    @Bellarosa777 4 місяці тому +3

    So informative & helpful…thank you so much Dr. G 💜☯️💜

  • @LorenasChesed1beads
    @LorenasChesed1beads День тому

    What do you think about the mitochondria defect theory. From Oubre medical.

  • @kathb1683
    @kathb1683 4 місяці тому +1

    Awesome Video!

  • @user-oj1xv6cs7w
    @user-oj1xv6cs7w 3 місяці тому

    Thank you for your work.

  • @melinayorke7462
    @melinayorke7462 4 місяці тому +1

    Thank you!

  • @balebaildharmanand650
    @balebaildharmanand650 4 місяці тому +1

    Good to see you back! great information

    • @DrGinevra
      @DrGinevra  4 місяці тому

      Thank you! Nice to see you as well 😀

  • @chert2380
    @chert2380 4 місяці тому +1

    I'm so glad I stumbled on this video. I will definitely read your book to find out how better to treat my fibromyalgia. I broke my shoulder 9 months ago and even though the bone has healed, I still have tremendous muscle and soft tissue pain 24/7 even after 5 months of physical therapy. I wonder if it will ever go away.

    • @DrGinevra
      @DrGinevra  4 місяці тому

      Have you tried myofascial release? That might be worth a try to get pain levels down

  • @lisa-joyranger6261
    @lisa-joyranger6261 Місяць тому

    Thank-you for helping me to understand my fibromyalgia condition. You explain everything so well. 😊

  • @mandogrogurescuedogs
    @mandogrogurescuedogs 4 місяці тому +1

    Yay! Brakes are always good

  • @bookmarked-9771
    @bookmarked-9771 4 місяці тому +3

    I do appreciate your videos. It confirms many of the symptoms we have. I did get your book. Any suggestions on weight loss? I went from being highly active to gradually gaining weight. It seems I just can’t lose it the way I was once able. TY

    • @DrGinevra
      @DrGinevra  4 місяці тому +1

      Glad my videos are helpful! There are hormonal changes that happen in fibromyalgia that can affect weight, you can learn about these in my book The FibroManual.

    • @bookmarked-9771
      @bookmarked-9771 4 місяці тому

      @@DrGinevra thank you for taking the time to answer me. I have been reading it. I’ll bring it up with my Dr. Thank you again

  • @1ere1
    @1ere1 4 місяці тому +4

    Read your Fibromyalgia Manual and The Fibro Food Formula. They are helping. Thank you. 🙂
    Is there a second edition coming out of The Fibromyalgia Manual with your mouse study & more? If so, when please? I want to get a hard book 📕 copy for my primary physician.
    Also, thank you for informing us with your videos. You narrating them adds points of emphasis which is quite helpful. 😊

    • @DrGinevra
      @DrGinevra  4 місяці тому +1

      I hope to be able to do a second edition of my book! I am so glad my information has been helpful for you !!

  • @teribarr3773
    @teribarr3773 3 місяці тому +2

    What are your thoughts on the trending weight loss injections for ppl with Fibromyalgia? AKA Ozempic, Wegovy ect.

    • @DrGinevra
      @DrGinevra  2 місяці тому

      That's a timely but very complicated question! I have had many patients really struggle with the nausea these meds can cause, and a few found it made brain fog worse. But my sample size is not large. I am curious if any folks reading these comments who have tried this type of weight loss med found it impacted them and their fibromyalgia symptoms.

  • @sherrymotyl6770
    @sherrymotyl6770 4 місяці тому +3

    I knew it!

  • @bookmarked-9771
    @bookmarked-9771 4 місяці тому +2

    Problem is so many of these things aren’t covered by insurance. This disease gets expensive

    • @DrGinevra
      @DrGinevra  4 місяці тому +5

      I totally agree! I keep hoping that as more and more research shows these treatments help fibromyalgia pain that insurance will start covering it.

  • @janiceguyer7633
    @janiceguyer7633 4 місяці тому +6

    I have been trying Red Light Therapy for fibromyalgia release as it is supposed to address the cell mitochondria & help decrease inflammation as well as aiding sleep. Please let me know if u have any success with using RLT.

    • @kiblet
      @kiblet 4 місяці тому +1

      Hi, what kind of device do you use?

    • @terri6613
      @terri6613 4 місяці тому +1

      A forth year med student told me to use green light. He spoke doctor talk, so I can't spit it back to you why to use green, but another thought?

    • @JCHK.
      @JCHK. 4 місяці тому

      Not red light, but I started laser hair removal 3 months ago and since then I haven’t had a pain flare where it feels like my skin was burning. Before that I had burning pain 2-3 times a week.

    • @DrGinevra
      @DrGinevra  4 місяці тому +1

      I have not utilized red light therapy. I have found infrared light helpful. Let us know what your experience is with RLT!

  • @jennysweeth
    @jennysweeth 4 місяці тому +4

    Thank you so much, I do have your book too. I just have two questions, I'd wish I could get an answer?
    #1) collagen supplements~good or bad?
    #2) bullet massagers~go or no?
    I have a Renpho, it feels great, but not sure if I'm making my Fibro worse. 😭

    • @DrGinevra
      @DrGinevra  4 місяці тому +2

      Collagen supplements are not a problem. I think this is because it’s really the inflammation levels driving the process, not the amount of collagen in our body.

    • @DrGinevra
      @DrGinevra  4 місяці тому +2

      If a massager tool feels good, that’s definitely not making fibro worse!

    • @jennysweeth
      @jennysweeth 4 місяці тому +2

      @@DrGinevra Awesome, thank you so much for the reply.....😌

  • @jmj5388
    @jmj5388 3 місяці тому +2

    Yikes! How did you ever get through med school with FM?

    • @DrGinevra
      @DrGinevra  2 місяці тому

      Myofascial release!

  • @ninkacc
    @ninkacc 3 місяці тому +1

    Thank you so much for what you're doing. For years I have bin searching for answers but still was feeling a lot of the pieces of the puzzle where missing. While people keep on telling me my pain didn't have an underlying cause. I have believed for 20 years that if so many people have the same symptoms it must have causes. Thanks for providing answers and puzzle pieces. I have heard that genes can play a role in it to, and I have heard that people with fybromialga often not have effective results from surtain painkillers. I have, now you finally can make a genetic profile let myself tested, and I have a gene mutation with couses my liver not to break down sertan compounds of the painkillers. I was wondering if there are more fybromialgia patients who has bin tested for this, and if more people have this gen mutation. Maybe it's totally unrelated, and a coincidence, but I am wandering what if there is a small change it is a nother part of the puzzle? Again thank you so much for what you are doing , have a nice day

    • @DrGinevra
      @DrGinevra  2 місяці тому

      The pharmacogenetic testing that explores individual differences in how we metabolize medications can be really informative especially when it comes to pain medications.

  • @bookmarked-9771
    @bookmarked-9771 Місяць тому

    Has anyone had any luck using massage chairs?One in the 2k range. I recently sat in one for a short time and have to admit it did feel good, but what an expense for something that parks in your living room like a Cadillac (jk). I had a leg break two yrs ago and a meniscus, mcl surgery 6 months ago. From walking cock-eyed with the braces etc. I can’t get my hips and many other musculature parts to move correctly anymore. These things become a domino effect. Any idea? Thank you 😊

  • @metalvideo1
    @metalvideo1 2 місяці тому +1

    Do you have any fibromyalgia doctor recommendations for the Portland Oregon area?

    • @DrGinevra
      @DrGinevra  2 місяці тому +1

      I list some on my website www.drginevra.com/clinic

  • @rubybeard944
    @rubybeard944 4 місяці тому +1

    AIP diet can bring remission ❤

  • @annap1191
    @annap1191 Місяць тому +1

    Can stellate ganglion blocks be helpful in calming down pain?

    • @DrGinevra
      @DrGinevra  Місяць тому +1

      They can be helpful temporarily in regional areas of pain, but don’t help with the widespread pain.

  • @kiblet
    @kiblet 4 місяці тому

    Does the mouse study suggest the antibodies don’t need fascia to trigger their activity?

  • @sarahtaylor7198
    @sarahtaylor7198 4 місяці тому +4

    In light of the excess collagen, do you recommend not taking a collagen supplement?

    • @jennysweeth
      @jennysweeth 4 місяці тому +2

      Great question, I'd love an answer to that. I just drank my collagen powder supplement, now watching this wondering.... 🤔

    • @DrGinevra
      @DrGinevra  4 місяці тому +3

      Collagen supplements don’t seem to worsen pain

    • @sarahtaylor7198
      @sarahtaylor7198 3 місяці тому

      Thanks

  • @jfouts1979
    @jfouts1979 4 місяці тому +1

    Have there been any studies done on fascia as pertaining to anti-fgfr3 antibodies developing in some people with small fiber polyneuropathy?

    • @DrGinevra
      @DrGinevra  4 місяці тому +1

      I can’t find any studies on fascia and anti-fgfr3 , but would be really interesting. Small fiber neuropathy occurs in 40-50% of fibromyalgia patients. Would be good to look for that antibody in fibromyalgia.

    • @jfouts1979
      @jfouts1979 4 місяці тому

      @@DrGinevra there are now many other known antibodies associated with small fiber neuropathy - including anti-fgfr3....ts-hds....anti-plexin-d1......MX1, DBNL, and KRT8 are additional antibodies associated....so....how do we find a researcher to do this work?

  • @Amber4
    @Amber4 4 місяці тому

    Could it be that it is caused by a Salicylate sensitivity. It is present in vegetables, fruit, toiletry and cosmetics. It cumulates in the body and causes physical and mental problems.

  • @Catsaretherapy
    @Catsaretherapy 3 місяці тому +2

    Can fibromyalgia symptoms come after a spine misalignment? My symptoms came after a fall where my undiagnosed thoracic scoliosis at the time got affected with the fall? Ever since that fall I have daily upper back pain, fatigue, limb pain, ibs, brain fog

    • @DrGinevra
      @DrGinevra  2 місяці тому +1

      Fibromyalgia can definitely be triggered by a spinal injuries of all types.

    • @aliceroberts9150
      @aliceroberts9150 3 дні тому

      I began having symptoms after severe COVID which attacked my spine with stabbing pain worse than natural childbirth ever was! I suspect COVID was a trigger.

  • @teresabarcia3093
    @teresabarcia3093 13 днів тому

    What do you recommend? Ty amen 🙏

    • @DrGinevra
      @DrGinevra  11 днів тому

      I recommend myofascial release!

  • @kimm5555
    @kimm5555 4 місяці тому +3

    So would taking collagen powder actually increase my fibro pain? I try everything in hopes of something working and I read collagen can reduce pain so I am confused.

    • @jennysweeth
      @jennysweeth 4 місяці тому +1

      Exactly, what I'm wondering too, having just drank my collagen supplement.....🤔

    • @DrGinevra
      @DrGinevra  2 місяці тому +1

      In future videos I will be more clear about it because definitely confusing. Taking collagen supplements in fibro is not harmful, maybe even helpful. The problem in fibro fascia is really excess inflammation that overproduces collagen, and increases frequency of collagen cross links which makes sticky fascia. More collagen in the diet doesn’t make sticky fascia.

  • @Saraswati-gc6bo
    @Saraswati-gc6bo 2 місяці тому

    After following my neurologist's recommended treatment plan, which involved 12 vitamin B12 injections, 50 doses of pregabalin, and adopting a processed food-free diet, I, a 21-year-old man, have experienced a significant 75% relief from Fibromyalgic pain. Considering these positive outcomes, I am now considering the potential addition of low-dose naltrexone for continued pain management. What are your recommendations regarding incorporating low-dose naltrexone into my ongoing treatment plan?

    • @DrGinevra
      @DrGinevra  2 місяці тому +1

      I am so glad you have found so much relief. I can't give you specific medical advice, but I think LDN is worth discussing with your doctor for sure!

  • @amandanieuwoudt1614
    @amandanieuwoudt1614 4 місяці тому +2

    Can drinking collagen supplement make your fibromyalgia pain worse?

    • @DrGinevra
      @DrGinevra  4 місяці тому +1

      No collagen doesn’t seem to have negative effects in fibromyalgia. It’s really the inflammation in the body driving the process of laying down extra collagen, not the amount of collagen in our body.

  • @patsyachors5111
    @patsyachors5111 3 місяці тому

    I’m taking a collagen powder every day. Is this okay?

    • @DrGinevra
      @DrGinevra  3 місяці тому

      Yes, collagen powder is fine to take. It’s not the amount of collagen in our bodies that is the problem, it’s the inflammatory and neurological processes that cause collagen to be laid down incorrectly in the fascia that is the problem.

  • @kiblet
    @kiblet 4 місяці тому +1

    Thank you so much. In light of this, are floor exercises a bad idea? I wanted to try them because walking causes horrible foot and leg pain afterward, but calisthenics won’t make anything bear full body weight, and anything increasing blood flow (heat, my arthritis exercises) seems to ease pain. I don’t know what is different about walking and other chores when I’m overdoing it, that lead to pain. But shoulder exercises feel good for a day.

    • @on_top_of_the_world
      @on_top_of_the_world 4 місяці тому +2

      I realize this doesn't address your question about floor exercise, but if you have access to a warm water pool and funds to go (or parks and recreation funding for low income people) in your area, walking in a warm water pool may be helpful. It is at very least, relaxing.
      You can also look up pool exercises for chronic pain and/or arthritis. Using foam pool 'weights', like those used in aquafit type classes, can help create even more resistance.

  • @MariaDeAngelusMcCoy
    @MariaDeAngelusMcCoy 3 місяці тому

    👏👏👏

  • @yvonneleng3830
    @yvonneleng3830 3 місяці тому

    Why isnt the inflammation test able to pick up our chronic inflammation? Is it because their marker was set too high?

    • @DrGinevra
      @DrGinevra  2 місяці тому +3

      It's because the type of inflammation seen in fibromyalgia is not the type that shows up in the common lab tests used to assess for inflammation.

    • @yvonneleng3830
      @yvonneleng3830 2 місяці тому +1

      @drginevra So after we are diagnosed with fibro, is there any proper way I can propose to my doc to run the tests for our kind of inflammation? Because I find the inflammation is really bothering me a lot. Really thank u for replying me anyway

    • @YTStoleMyUsername
      @YTStoleMyUsername Місяць тому +2

      ​@@yvonneleng3830 A true diagnostic lab test would be a godsend, even in absence of any "cure" or widely effective treatment. Something to show your doctor there is in fact something physiologically wrong. Many of us get blown off that it's all in our head, we're just lazy, malingering, depressed, etc. I would be thrilled if even a standard lab test would be developed.

  • @bobbytill
    @bobbytill 3 місяці тому

    James L Oschman (Professor at Energy Medicine University) "Fascia is the semi-conductive liquid crystal matrix which stores and processes vast amounts of subliminal information, of non-neural information, and is the primordial matrix of consciousness"