Your videos are so helpful and to be honest, I was going through such a depression for days, crying my eyes out after the diagnosis my cardiologist is sending me to a specialist that specializes in dysautonomia. And I am just learning how to deal with this I feel weak and very very helpless so thank you for your videos are helping me see things in a positive light because I was feeling hopeless.
Hi Aimee, you asked for tips about diet for POTS/Dysautonomia. The first principle of my diet is to avoid foods that are likely to contain the agro-toxin glyphosate. Glyphosate mimics the natural amino acid glycine and can displace glycine in the production of proteins and enzymes. The autonomic nervous system is sensitive to low functional levels of the vitamin B1 Thiamine. Glyphosate damages the enzyme Thiamine Transferase, the result is functional Beriberi, a type of mitochondrial fatigue. I supplement with a B-Complex that has 1000% RDA of Thiamine in the form of Benfotiamin. I also eat Pho soup because the collagen in the broth is 33% glycine. Most importantly, is to choose foods that are not contaminated with the agro-toxin glyphosate. This approach to diet also helps some to reduce SIBO - probably because glyphosate is a selective antibiotic that wipes out beneficial gut bacteria. To learn more about what food have glyphosate, watch the lectures of Stephanie Seneff. To learn more about Thiamine, watch the videos of Elliot Overton. Cheers!
@@sandrabollocks16 Hi, I don't know of YT allows brand names to be posted in comments. I've used several good brands. Basically if the B-complex has Benfotiamin for B1 and Methylcobalamin for B12 then it's already one of the better brands. The one I currently like has Thiamine HCL for B1 and I like it pretty well because all of the vitamins are in liquid and are more absorbable than solid tablets. The liquid form does not cause burps like the solid tablets do. If you search for a green labelled glass bottle using the words Mega B-Complex Liquid Soft-Gels, then you might find the brand that I am using now in 2023. Cheers.
@@lynetteprice8519 Hi Lynette, I think that only the video can be shared. The UA-cam app does not seem to allow sharing a specific comment. You can make a screen-photo of the comment and send it as a text or re-type it into a notepad document and send that along with the link to the video or a video a lecture by Stephanie Seneff titled Toxic Legacy.
I had had hypoglycemia. I switched to carnivore or very low carb and never had a hypoglycemic episode again. It’s such a high protein diet you don’t get those dips in blood sugar. I have MCAS, Lyme, POTS, lichen schlerosus, interstitial cystitis. Going carnivore or at least very very low carb has been a total game changer for all my illnesses. I feel very unwell when I have a lot of carbs. Some of it is due to my body not being used to process that, but some of it was already there before I gave up the carbs. Everything improved when I moved away from plant based and moved toward a meat based diet. I have to stick to fresh meats due to histamine content, but this has truly changed my life. I also drink Redmond ReLyte or LMNT electrolytes all day.
I tried Keto once and my blood sugar got dangerously low. My doctor advised me to not do any more low carb diets. They just cans me to be hypoglycemic. I'm not sure why... But so glad you found something that worked for you! :)
I also had a few horrible weeks after going keto, I wonder if it’s cuz of loss of liquids that carbs retain.. but after about month I started feeling much better but I’m not fully keto I’m just low carb. No gluten
@@Aimee_Esther I'm thinking you weren't doing enough protein and or fat! Thinner people need more fat as you have none to burn. PS unfortified nutritional yeast has helped me with my pots! B1 is very good for pots
Have you ever taken B1? Intolerance to heat is a big sign of of a B1 deficiency. B1 has helped my pots significantly. I also read a book called the salt fix and even for normal healthy people. The recommended dose for salt is at least 3000 mg! So I could Imagine people with pots needing more salt!
I been on a low histamine, carnivore (Paul Saladino’s version) diet for the last 6 months and it had been a game changer. Raw milk has done wonders for me too!
Hey Amy, hoping you can do a video on way so many of us feel worse in the morning than better by the afternoon. Really curious about others experiences with feeling like their worse in the morning.
Yes! I will add this topic to my schedule! Life's a little crazy right now, so I can't give you a timeline just yet. But I will get to it as soon as I can!
@@jenniferw1595 so you feel bad in the morning normal by afternoon. It's like I feel horrible than I eat lunch and shortly I start to feel normal. So odd.
I'm the opposite. Initially getting up is hard but mornings are the only time I can get anything done and as the day goes on it gets worse. I know this is opposite of most people with POTS. If I don't get good sleep the entire day is bad.
I dont/can't sleep because I can't shut my brain off. I usually get about 2.5 hours a night. I've been like this since at least age 3 and now I'm 47 so my body has really broken down from not enough sleep. My blood sugar is especially horrible.
Thank you so much for doing this video. I recently was diagnosed with POTS. I find your videos very helpful and I really appreciate you making them. I'm also stuck on the whole diet thing because I recently gave up meat I just eat seafood and so I guess I'm a pescatarian. I also have gastroparesis non- diabetic ... so I know I can't have a whole lot of vegetables and I'm having a difficult time giving up carbs because I'm lacking the energy. When you figure out the diet will you please make a video?
Before I knew I had POTS I always craved very salty fries (still do). And when I lived in a tropical third world country I found when I walked up a steep hills I had to have a coke. Well after talking to my doctor we both thought my body was craving to salt vs the suger in the coke. It was hard to find Gatorade in this country so cokes was the fastest way to absorb it. And of course the caffeine would give me the boost I needed as well. When you say you wake with pain or what to you mean by pain with pots? I wake with pain so much around my back. I have all the pillows I need to support my body.
Before I diagnosed with Gp I would eat 5 family size bags of potatoes chips in one week. 😋 miss my chips . Can't digest foods now get super sick if I eat those foods.
Try a low histamine diet and definitely no gluten, it helps so much. I can relate exactly to the blood sugar stuff. I think I’ll start trying to eat some smaller, more frequent meals to help not have too much blood going to digestion
That's the trick with multiple chronic illnesses, what can help one can exacerbate another. I cannot have my upper body elevated or my low back and neck get so sore. But sleeping with a pillow under my legs helps!
I was waking up with a headache almost every day and tried so many pillows over the course of several years thinking it was neck tension and sleeping position. When you look up optimal sleeping position you find everything with no pillow, small pillows, keeping your neck perfectly in alignment with your spine etc so I was going for as flat as possible. Found out I have POTS and started sleeping elevated and now I rarely wake up with a headache!
Yes! The elevated sleep makes such a difference! I use a upper cervical alignment pillow and it helps so much too. This is the one I use: amzn.to/3TRSztE
Do you feel comfortable on a wheelchair when you are out? Sounds bizzare I'm sure, but I have a fear that someone will look at me and question why Im using a wheelchair, or ask me to leave them for someone who needs it, because "I look healthy". If I could face that fear, I bet I would be open to going out more. Do you have any experiences like these?
Yes exercise is important, but ye exercise while laying is the best , moving the feet and lower part of body..great tips. I wonder if there’s a correlation to being more sensitive nature. And god or however u wanna call it, is forcing us to listen to our body and get aligned faster than other ppl, and then sort of be able to guide others to an overall healthier lifestyle . And higher vibrational frequency .
My triggers are basically the same as you: heat, standing for too long, don't sleep enough.
Your videos are so helpful and to be honest, I was going through such a depression for days, crying my eyes out after the diagnosis my cardiologist is sending me to a specialist that specializes in dysautonomia. And I am just learning how to deal with this I feel weak and very very helpless so thank you for your videos are helping me see things in a positive light because I was feeling hopeless.
I'm so sorry you live with all that pain!! We will fight this together! 💪
Hi Aimee, you asked for tips about diet for POTS/Dysautonomia. The first principle of my diet is to avoid foods that are likely to contain the agro-toxin glyphosate. Glyphosate mimics the natural amino acid glycine and can displace glycine in the production of proteins and enzymes.
The autonomic nervous system is sensitive to low functional levels of the vitamin B1 Thiamine. Glyphosate damages the enzyme Thiamine Transferase, the result is functional Beriberi, a type of mitochondrial fatigue.
I supplement with a B-Complex that has 1000% RDA of Thiamine in the form of Benfotiamin. I also eat Pho soup because the collagen in the broth is 33% glycine. Most importantly, is to choose foods that are not contaminated with the agro-toxin glyphosate.
This approach to diet also helps some to reduce SIBO - probably because glyphosate is a selective antibiotic that wipes out beneficial gut bacteria.
To learn more about what food have glyphosate, watch the lectures of Stephanie Seneff. To learn more about Thiamine, watch the videos of Elliot Overton.
Cheers!
Dang god bless you. Which brand of the b-complex do you buy? I’m hearing more about b1 deficiency with POTS patients lately. Thank you for sharing
@@sandrabollocks16 Hi, I don't know of YT allows brand names to be posted in comments. I've used several good brands. Basically if the B-complex has Benfotiamin for B1 and Methylcobalamin for B12 then it's already one of the better brands. The one I currently like has Thiamine HCL for B1 and I like it pretty well because all of the vitamins are in liquid and are more absorbable than solid tablets. The liquid form does not cause burps like the solid tablets do. If you search for a green labelled glass bottle using the words Mega B-Complex Liquid Soft-Gels, then you might find the brand that I am using now in 2023. Cheers.
@@decodr-ring gotcha, many thanks. Take care!
Can you make your response shareable so I can copy and paste for future reference?
@@lynetteprice8519 Hi Lynette, I think that only the video can be shared. The UA-cam app does not seem to allow sharing a specific comment. You can make a screen-photo of the comment and send it as a text or re-type it into a notepad document and send that along with the link to the video or a video a lecture by Stephanie Seneff titled Toxic Legacy.
I had had hypoglycemia. I switched to carnivore or very low carb and never had a hypoglycemic episode again. It’s such a high protein diet you don’t get those dips in blood sugar. I have MCAS, Lyme, POTS, lichen schlerosus, interstitial cystitis. Going carnivore or at least very very low carb has been a total game changer for all my illnesses. I feel very unwell when I have a lot of carbs. Some of it is due to my body not being used to process that, but some of it was already there before I gave up the carbs. Everything improved when I moved away from plant based and moved toward a meat based diet. I have to stick to fresh meats due to histamine content, but this has truly changed my life. I also drink Redmond ReLyte or LMNT electrolytes all day.
I tried Keto once and my blood sugar got dangerously low. My doctor advised me to not do any more low carb diets. They just cans me to be hypoglycemic. I'm not sure why... But so glad you found something that worked for you! :)
I also had a few horrible weeks after going keto, I wonder if it’s cuz of loss of liquids that carbs retain.. but after about month I started feeling much better but I’m not fully keto I’m just low carb. No gluten
Drink real spring and Mineral Water please and See how much better you’ll feel
@@Aimee_Esther I'm thinking you weren't doing enough protein and or fat! Thinner people need more fat as you have none to burn.
PS unfortified nutritional yeast has helped me with my pots! B1 is very good for pots
Heat is huge. Living in AZ is awful. Yes, sleep is so important.
Have you ever taken B1? Intolerance to heat is a big sign of of a B1 deficiency. B1 has helped my pots significantly.
I also read a book called the salt fix and even for normal healthy people. The recommended dose for salt is at least 3000 mg! So I could Imagine people with pots needing more salt!
Look up Dr Paul Harch. Hyperbaric chamber, red light and bemer therapy! My wife’s now pots free 💪 research and spread the word!!
I been on a low histamine, carnivore (Paul Saladino’s version) diet for the last 6 months and it had been a game changer. Raw milk has done wonders for me too!
I get low blood sugar problems with POTS. Thank you for your videos. I just found out I have POTS.
Hi Aimee, could you share what mattress you have? Thanks so much for the video!
Hey Amy, hoping you can do a video on way so many of us feel worse in the morning than better by the afternoon. Really curious about others experiences with feeling like their worse in the morning.
Yes! I will add this topic to my schedule! Life's a little crazy right now, so I can't give you a timeline just yet. But I will get to it as soon as I can!
@@Aimee_Esther Thank you so much,
YES! This is me too. Feel like crap in the am and almost normal at night.
@@jenniferw1595 so you feel bad in the morning normal by afternoon. It's like I feel horrible than I eat lunch and shortly I start to feel normal. So odd.
I'm the opposite. Initially getting up is hard but mornings are the only time I can get anything done and as the day goes on it gets worse. I know this is opposite of most people with POTS. If I don't get good sleep the entire day is bad.
Thank you Aimee ❤. Helpful video! And yes! I am considered "borderline hypoglycemic," so i do have blood sugar problems, but unsure if linked to POTS.
Me too! I wondered if I was the only one. Maybe it is a POTS thing?? So hard to knw when I have so many illnesses haha
Same here but now no more hypoglycemia, thanks to dr Jason fung. And since then I eat a lot more high fat and vegt and little carbs.
I dont/can't sleep because I can't shut my brain off. I usually get about 2.5 hours a night. I've been like this since at least age 3 and now I'm 47 so my body has really broken down from not enough sleep. My blood sugar is especially horrible.
Thank you so much for doing this video. I recently was diagnosed with POTS. I find your videos very helpful and I really appreciate you making them. I'm also stuck on the whole diet thing because I recently gave up meat I just eat seafood and so I guess I'm a pescatarian. I also have gastroparesis non- diabetic ... so I know I can't have a whole lot of vegetables and I'm having a difficult time giving up carbs because I'm lacking the energy. When you figure out the diet will you please make a video?
Will do!!
Before I knew I had POTS I always craved very salty fries (still do). And when I lived in a tropical third world country I found when I walked up a steep hills I had to have a coke. Well after talking to my doctor we both thought my body was craving to salt vs the suger in the coke. It was hard to find Gatorade in this country so cokes was the fastest way to absorb it. And of course the caffeine would give me the boost I needed as well.
When you say you wake with pain or what to you mean by pain with pots? I wake with pain so much around my back. I have all the pillows I need to support my body.
Before I diagnosed with Gp I would eat 5 family size bags of potatoes chips in one week. 😋 miss my chips . Can't digest foods now get super sick if I eat those foods.
Such good information they are good for varicose veins
Try a low histamine diet and definitely no gluten, it helps so much. I can relate exactly to the blood sugar stuff. I think I’ll start trying to eat some smaller, more frequent meals to help not have too much blood going to digestion
Hey I just watched ur video living cortically but what does it mean
Have you ever tried maca root for energy and or Co Q10?
That's the trick with multiple chronic illnesses, what can help one can exacerbate another. I cannot have my upper body elevated or my low back and neck get so sore. But sleeping with a pillow under my legs helps!
Do you have mcas and histamine ? I dont know what else to eat I'm running out of foods
Me! On flare up times I need to have low histamine diet for the time I find myself better
I was waking up with a headache almost every day and tried so many pillows over the course of several years thinking it was neck tension and sleeping position. When you look up optimal sleeping position you find everything with no pillow, small pillows, keeping your neck perfectly in alignment with your spine etc so I was going for as flat as possible. Found out I have POTS and started sleeping elevated and now I rarely wake up with a headache!
I’m also considered borderline hypoglycemic and have struggled with blood sugar balance. The biggest thing that helps me is upping my fat intake.
Yes! The elevated sleep makes such a difference! I use a upper cervical alignment pillow and it helps so much too. This is the one I use: amzn.to/3TRSztE
Can you give some advise on how to take a shower with POTS?
Done! ua-cam.com/video/CheO_CURhD0/v-deo.html
Thanks
Did you have GI issues? If yes, how did you treat that ? Your reply will be much appreciated 😀
Do you feel comfortable on a wheelchair when you are out? Sounds bizzare I'm sure, but I have a fear that someone will look at me and question why Im using a wheelchair, or ask me to leave them for someone who needs it, because "I look healthy". If I could face that fear, I bet I would be open to going out more. Do you have any experiences like these?
ua-cam.com/video/Okk_PTuAlvk/v-deo.html
I did a podcast episode on this topic!
What types of salt you use?
Yes exercise is important, but ye exercise while laying is the best , moving the feet and lower part of body..great tips. I wonder if there’s a correlation to being more sensitive nature. And god or however u wanna call it, is forcing us to listen to our body and get aligned faster than other ppl, and then sort of be able to guide others to an overall healthier lifestyle . And higher vibrational frequency .
Thank you 😘
❤️❤️❤️
Don’t use table salt please