HOW I TREAT POTS NATURALLY | Postural Orthostatic Tachycardia Syndrome Treatment | Dysautonomia
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- Опубліковано 4 чер 2024
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Hello my friends! Today I'd like to share with you all my tips and tricks on how I treat my Postural Orthostatic Tachycardia Syndrome (POTS) all natural. I have a drug free approach that will help you control your dysautonomia symptoms and feel so much better!
Videos:
ALL ABOUT POTS VIDEO: • LETS TALK ABOUT POTS! ...
CHRONICALLY ME: • Video
ORTHOSTATIC INTOLERANCE EXERCISE: • Orthostatic Intoleranc...
PRODUCTS/RESOURCES TALKED ABOUT:
The Dysautonomia Project: amzn.to/3e5IAwv
Dysautonomia International: www.dysautonomiainternational....
COMPRESSION SOCKS:
Open Toes: amzn.to/2zP4JAn OR www.jobststockings.com/jobst-...
Exercise: amzn.to/3eelLqz
Full Body: amzn.to/2LVqKjP
ELECTROLYTES: amzn.to/2WOorW0
VIT C DRINK AID: amzn.to/36gLE5Y
WATER BOTTLE: amzn.to/2zS2Cvt
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For more info on my chronic illnesses check out the links below!
Hashimotos: • ALL ABOUT HASHIMOTOS T...
POTS (Postural Orthostatic Tachycardia Syndrome)/ Dysautonomia www.youtube.com/watch?v=VohFc...
Fibromyalgia • ALL THINGS FIBROMYALGI...
CFS (Chronic Fatigue Syndrome) medlineplus.gov/chronicfatigu...
SIBO (Small Intestine Bacteria Overgrowth) • ALL ABOUT SIBO | Small...
IBS (Irritable Bowel Syndrome) www.mayoclinic.org/diseases-c...
Leaky Gut Syndrome www.health.harvard.edu/blog/l...
Chronic Migraines www.migrainetrust.org/about-m...
PCOS (Polycystic Ovarian Syndrome) www.mayoclinic.org/diseases-c...
Endometriosis www.mayoclinic.org/diseases-c...
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Tips start at 5:21
From the video:
1. Compression socks, wear them at all times except showering and sleeping. Use cheaper ones you don’t mind getting sweaty during exercise.
2. Increase fluids. No sugary or fake sugary drinks. Add pure electrolyte drops to your water.
3. Increase salt but also make sure you drink enough water while increasing the salt.
4. Avoid triggers like heat, sun, sugar, stress, and insufficient sleep.
5. Exercise, specifically weight lifting/strength training. Avoid cardio, even walking can become too much. Start out by lifting weights while sitting down for 5 mins each day and work up a little more each day til you can do it while standing and for a longer period of time. Max 30 mins per day.
6. Healthy diet. Try to eat low carb, like Paleo/Keto. If you must eat carbs, stick to non-starchy ones like veggies and fruits.
7. Sleep elevated. Make sure your head is elevated above your body. Also elevate your knees. Adjustable base beds make this much easier, but otherwise just use pillows.
Thanks!
Thank you ☺️ 💖
Thank you!
You are an angel..
That is not a life that is he'll..
Don't go swimming and sun etc
i cured pots by high dose of thiamine and magnesium 1000mg per day and keto diet in 3 months
I was diagnosed with pots 2 years ago but I was born with it. I have tried all the natural ways like compression socks, salt, Gatorade, exercise, drinking water, and vitamins. All those things have helped alittle but I’m on 7 salt pills a day and tons of medicine plus iv saline bags just to stay hydrated. The reason I’m writing this is that maybe this can help/reduce your pots but I would love that you don’t say that these tricks can naturally heal you because every person is different and every person’s severity is different.
I feel bad for people that has pots and nobody is there for them to help them economically bc living with worth it’s horrible you can’t do the things you want to do
It is so hard! We are in this together!
I lost everything and had to move in with my step daughter. It’s just humiliating.
It’s sucks terribly
You're a life coach!!! Awesome!!
I'm a bit late to the party but just found your channel today! Thanks for a very informative video. Looking forward to watching more of them
When you said about feeling like being upside down when laying down to my back.....ooooohhhh....the sense of validation!!! I knew exactly what you were talking about! I cried a little for that.
I am undiagnosed, but I am finding that I am matching with most of if not all symptoms of POTS.
The sweet sense of relief! I am not crazy!
Thank you so much for the wholesome video!!! And I am going to sleep elevated from now on! Thank you so much for your help!!!
Hi Aimee! Thanks SO much for this information. The compression socks are a game changer for my son! I wanted to tell you that a couple of your Amazon links need to be updated. Thanks again!!
For some reason B-1 helps me tremendously, particularly with the fainty feeling. I also have chronic fatigue and vestibular migraine. Also, been seeing an upper cervical chiropractor and oh my gosh! After the first treatment the constant feeling if being on a boat is subdued so much.
Thanks for the info!
B deficiency can cause pots
I also heard b1 helped a lot of people!
how much b1 do u take?? i’ve been researching this a lot!
Never heard of cervical chiropractor, but I will look it up. It is heavy swelling seas in here so wonderful to hear about it!!! Thank you so much for mentioning it!!!
I just got diagnosed today, this helps so much, thank you!
I think it's super important to note that the type of POTS you have isn't the only type! There are actually 3 main types of POTS and compression socks are mainly used to treat the hypovolemic type but can be lacking for the other 2 types. These tips can help a lot of us but remember that there are so many other POTS sufferers out there who don't have this type.
I have hyperadrenergic POTS and compression socks are life savers for me
@@smudge8882ME too!
Hi Amiee, thank u so much for this informative video. I was diagnosed with POTS literally yesterday after suffering from POTSie episodes for 25yrs. I don’t think my POTS is severe form because I can live normally except for those POTSie days that visit me once or twice a year for a week or so. Let’s stay positive. PS: I love the compression stockings and I am afraid of taking them off even when I sleep. I started wearing as my PC suggested even before I was diagnosed with POTS. They just saved me :)
Hi! So I do take mine off at night but I sleep with my feet elevated. It is a nice break from the socks, since I wear them every second I'm not asleep haha. But elevating my head and my feet helps so I can take them off at night.
I love this hat on you! So pretty.
Awe. Thanks❤
Also, with salt intake, make sure you’re getting enough potassium. Sodium depletes potassium and vice versa. All of us need potassium, but especially those of us with methyl cycle/MTHFR issues as we try to balance our methylation with methyl B12/methylfolate.
I just came across POTS Syndrome this week because I'm having all the symptoms. All of this made SO MUCH SENSE TO ME. I see my cardiologist Wednesday and I really hope he takes me seriously and does testing. I just had a carby dinner, felt the attack coming on, and I elevated my head and feet in bed like you said and it feels SO MUCH BETTER.
How are you now?
I was diagnosed with POTS almost ten years ago, I’m 27 now and find that exercise, as hard as it gets for us, may be one of the things that helps me the most. I also have endometriosis and IBS and I find it so interesting that we have those diseases along with POTS. I wonder if there’s a reason for it? Anyway, I love your videos! Thanks for helping spread the word :)
I had no idea there was a correlation! I have POTS and endometriosis and have always had stomach issues.
Who diagnosed you? A neurologist? I have been talking to my family doctor about me being sick for more than 7 years and cannot get a diagnosis.
@@stephaniefischer7930 Your gut can be the root cause of many issues. Try to start a new diet, either carnivore, keto, or paleo. In case you have leaky gut, stop drinking coffee or any type of caffeine. On empty stomach, Take 2 tsp of L-Glutamine powder with cold water. Later, take 2 tsp of Wheatgrass Juice Powder not regular wheatgrass powder, with cold water. Do not eat for 1.5 to 2 hrs after drinking either of these. Do this until to start to see most of your symptoms reduce
@@angelicannihilator Stop pushing your crappy diets and disinformation.
@stephaniefischer7930 I was diagnosed by a Cardiologist. I went to him because of the tachycardia and discussed the possible diagnosis of POTS. He had me do a EKG, Holter Monitor, stress test and finally a tilt table test and was diagnosed with POTS. He the told me compression socks, water and salt everything
He also gave me medication to help keep my heartbeat & BP lower
Good Luck!
You look so pretty! Great video. Thank you
Great video. Was diagnosed with post Covid POTS two days ago. My Arrhythmologist has put me on Ivabradine and I'm taking electrolytes and a high sodium/potassium diet. Thanks to this video, I've just ordered some compression socks and going to check out your exercise video shortly. Thanks again.
How is your pots now after the socks and everything?
Eve Russell how are you today?
@ikram Nizam
Are you bettet now?
@ikram Nizam
Excellent you gonna be fine
I have compression socks but I don’t wear them all the time because they make my legs itchy(I have really sensitive skin). And for electrolytes I use nuun tablets. I find them to taste better than drops or anything like that. Awesome video!
Thanks for the recommendation!! Do compression socks help your symptoms??
Thank you so much for the wonderful tips. I think these will really help my 15 yr daughter. I haven’t been able to get any doctors to check her for POTS
Thank you for this info!! I'm pretty sure I have pots. Gonna try to get tested for it.
I read that vitamin B1 can help pots too.
Have you heard anything about this?
How can you avoid stress with these symptoms, I am so worried nonstop because when my pulse increases and my chest feels tight it’s so hard to stay calm
It is so hard!! I have videos coming out soon about mental health and chronic illness that may help!
Hw is ur pots now
Try Hydroxyzine 10 mg help me a ton.
Hydroxyzine helps with anxiety... it's a MIRICLE for pots
I’m in tears watching this video. Thank you so much for this! I don’t feel alone anymore. I just recently got told I MAY have POTS. Still getting tested and monitored by cardiologist and I see a blood doctor tomorrow.
QUESTION: (for anyone who may know and sees this.) Does POTS cause elevated d dimer?
I am VERY new to this and I cry everyday because I can’t do normal things everyday anymore and I have a 5 year old. I want to feel better for her. Thank you again for this information!!!! ❤️
I had a high d dimer once early on before I knew I had dysautonomia. Mine levels did go back to normal though. I have 4 kids and understand how lonely this journey feels.
How are you know?
@@knrock5163
How are you now?
@@christiandeluxer2926 getting better ❤️
@@knrock5163
How long you have POTS?
And how high is your heart rate?
As you know, POTS often comes in the setting of ME/CFS. I think why some fellow sufferers are saying the compression socks are too hard to get on is because their ME/CFS drains their muscles of energy and causes a crash when they struggle to get high-compression stockings on. I have personal experience with that struggle causing a crash, and that’s why I switched to waist-high, high-compression Fabletics pants. Not as compressive as medical stockings, but doesn’t cause crashes. (My ME/CFS is borderline severe, so sadly I’m no longer able to exercise).
I agree! My me/cfs is worse than my POTS, and putting on my dad's compression socks when he couldn't caused a huge crash and would take several hours to feel better. I wonder if there's a medical aid device that could help get those tight socks on.
@@dianefelice9730 Maybe, but in the meantime, I’ll settle for the NIH directing more taxpayer research money to ME/CFS than they do towards male pattern baldness 😕
Compression socks are life!!
Great video! Please do the insomnia video! It would be really helpful 😄
I will add it to the list!❤
Be careful everyone with these suggested standing exercises, especially if you have bad PoTs or are known to faint. Raising your arms increases symptoms, which is why most people will be instructed by their health care worker NOT to do this.
You could have a serious injury if you faint, especially with heavy weights. So this doesn't sound like wise advice to me.
Also, if you have M.E/CFS (which most people with PoTs do have), you could cause Post-exertional malaise. Exercise is no longer a recommended treatment plan for this condition.
Also salt is NOT for all types of PoTs, infact I believe it can actually be dangerous for hyperagrenergic PoTs.
Please be careful everyone.
Interesting about diet because I’ve found the literature (via my public health degree) and my personal experience dealing with a dietitian is that beans and whole grains are important, largely because all humans need fibre and carbs to reduce chronic disease (the keto diet is heavily condemned by the field of dietetics), but also because it keeps the gut healthy and maintains stable blood sugar. Whereas a high fat diet = unstable blood sugar so the first time you eat a whole grain or vegetable it’ll probably cause problems. Vegetables digest much faster than meat so if someone’s reacting to a potato there’s likely other gut health issues or intolerances which is taking more energy than it should. Taking digestive enzymes helped me better tolerate some foods I used to read to.
If your gut bacteria are dysrupted, then your eating pattern also needs to adjust to that. The ketogenic diet for example is extremely effective in people with epilepsy, schizophrenia, dementia and a bunch of rheumatic autoimmune diseases. There is one case study of a women whose PoTs got healed with anti-Bartonella antibiotic treatment. Now, there is a lot of circumstantial evidence that shows that some bacteria like Bartonella or Borrelia need you to eat carbs in order to not starve.
Carbs can also feed fungi or dental pathogens which might compromise your immune system which then will lead to your body not beeing able to clear Covid, Ebstein Bar virus, Bartonella and Co. This might then lead to POTS.
I’ve been dealing with POTS symptoms my whole life but only been diagnosed last year (I’m 19). I’ve been looking for help for my POTS because unfortunately doctors in the UK are not very good at treating patients with the condition. I hope these tips really help cos I’ve only just been discharged from hospital and I’m trying to get back to normal life after deconditioning from being bedbound for a while so thanks for this video 💜
how you doing now after following these tips ?
I have dysautonomia as well and I have a droop on one side of my mouth like yours. I wonder if it’s associated with dysautonomia? Have you always had it?
All patient use in smokeless tobacco very help ful in pots .
Toeless socks! Why didn’t I think of that!? That’s so helpful down here in Atlanta! Have you ever tried just the leg ones without feet at all?
I don't like the ones that don't go to my feet because i just need that little bit of extra help. But the toe-less ones are LIFE CHANGING for summer!!
How did your Crash look like? PEM? I love walking but it's so exhausting with 150bpm
How can I wear compression socks when I have severe burning neuropathy which hurts more if my feet are constricted? Is there any exercise I can do with my lower limbs to help?
I have shortness of breath all the time is any treatment for
Hi, I am new to watching your videos. My mom just learned that she might have pots and that lead me to wonder if I might have it also. I was wondering during if there is a conference this year 2023 in Utah? I am hoping to see the same Dr she is seeing and get answers. Thank you for your videos.
This has been so helpful for me! I have POTS and sometimes I feel like my blood is pooling in my legs so can you tell me how to help that? Love you! ❤️
All the tips is this video should help! For more detailed answer... Ill chat more about this question on my weekly Q+A i do on wednesdays. So come Wednesday LIVE at 7pm MST . Or watch the replay of the video any time after!
Hi. I just found your videos. Great information. I was diagnosed with POTS 2 years ago and I just had a really bad flare up recently, I think because of a panic attack. So now my heart increases again when I stand, how did you get that to stop?
I had that symptom before and it went away and now its back.
All the treatments I talk about in this video are what help me the most! :)
does anyone else get hair loss when your skin goes really dry as im getting sleight bald patches. the crazy thins is before getting ill like this i was 220lbs of muscle naturally and had very good genetics but now i weigh 179lbs and havent been able to go the gym for 3 months. its really mentally challenging feeling a nd looking a greek god stature then suddenly looking ill and feeling like im 90 years old. hopefull some of these tips will help me as my doctors have been useless and my cardioligist puts me on super long waiting lists due to covid issues in the uk.
Same here bro used to be in shape and do sports then all of the sudden had this low energy and gained fat even if I sleep well and eat healthy I feel like you said a old man now but just pray 🙏 to god and he will make us strong again don’t give up
How do you feel about the Covid Vaccine having POTS? By the way your video was helpful! I’m new to having POTS… I developed it from having Covid 2 times.. I’m scared to get the vaccine
Always consult with your doctor. My experience: my POTS got so much worse with COVID, and while I didn’t know it was POTS at the time, I was very grateful to get the vaccine so that I wouldn’t have COVID again or develop harsh symptoms if I had a breakthrough infection. Vaccine injuries are very very uncommon. So consult with your doctors above all else, but the vaccine is very safe and will most likely prevent you from getting COVID again. Long COVID is no joke!
I didn't get the vaccine and got covid 2 years ago. A couple weeks ago I probably did had covid and I was offered to take the test but I didn't want to take it because I knew I had to jump through hoops to get back to work again. But a week or two after that, I injured my neck by putting a stupid hula hoop together which was hard to do and I somehow injured my neck and that's when all of my pot symptoms started and as well as having mini seizures because as far as I know, I had been seizure free for 2 years but then the neck injury happened. At first my mom thought it was an anxiety attack but then one day I asked her if it was possible if I had some seizures since the incident?
Thanks for all of your helpful tips and tricks! For compression stockings, mm Hg means ‘millimeters of mercury’. Like a thermometer measuring temperature, mercury can also be used to measure pressure, and is thus used to denote units of pressure. Also, as an ME/CFS, SIBO, IBS, leaky gut, and POTS sufferer myself, I feel compelled to tell you that it’s pronounced “Diss-auto-NO-mee-ya” 😬...I think a lot of us have GI issues, and I wonder if there isn’t a link between these issues and ME/CFS/Fibro.
Can you work and live?
@@christiandeluxer2926Why do you ask pls?
I'm new to this. What's a flare up vs normal?
did you ever take medication for it? or you just did the natural route?
Are there any supplements you can take?
I would be interested in hearing more about insomnia
POTS may be a secondary condition but during a flare up it can make its presence known above all else. I’ve found eating very small meals 200-250 calories at a time 6 times a day for me is far less nauseating than 3 meals. I have an allergy to animal protein so I eat a lot of veggies and get protein through whole grains, nuts and seeds and even natural protein powders. But yes please make the insomnia video. That seems to be my biggest problem.
Totally agree! Eating less more often helps a ton! I'm so sorry to hear about your animal protein allergy, meat is one of the few things that doesn't kill my stomach. I can't even imagine! Good luck,!
Thanks!
😭❤️ thank you!!!
Did you ever listen to EONUTRITION on UA-cam about dysautonomia and B1 deficiency?
After contracting an infection in November I developed blood pooling in my knees and ankles and the blood flow in my hands is similar to raynauds. I have aches and pains and can’t walk without compression socks. My legs throb after a hot bath. I do not have the fast heart rate form of POTS. I don’t know which kind I have and it’s so hard to get a doctor to acknowledge my issues 😩
What about lying down exercises like bridges, planks etc?
Have you experienced unintentional weight loss from the dysautonomia (vagus issues)? Thanks
I havent. I also have pcos, sibo and Hashimotos disease which all cause weight gain. So i deal with the opposite actually.
@@Aimee_Esther Oh ok.. thanks for the response and the informative videos👍
I have discovered eating 5-6 times a day, eating meat separately from veg and carb with a 1 to 2hrs gap helps putting on weight, also helping alleviate nausea and easing digestion… Stimulating the vagus nerve also helps with rest and digest… 👍🏼😉
I was just recently diagnosed with POTS so if anyone has any tips please tell me. Thanks 🥰
My biggest tip is to get on a good sleep schedule. Sleep naturally makes your body regenerate cells including blood cells so it’s VERY important that you get plenty of sleep. I have an alarm at night to let me know when i need to take my melatonin ( i have insomnia) so that i get plenty of rest whether my body is ready to sleep or not. Taking a small nap some time during the day helps too. Hope that helps!
Gluten is a trigger for pots.
For me, taking several cold showers over the day is a gamechanger.
Has anybody noticed that the dizzynes is worse when you squat down for a min and stand up than if you lay down for a min and than stand up? Also i get pressure in my head eaven if i pick something from the floor. Does thus happen you guys also? Tnx for the video
Yes! Right there with you... it's so much worse if I crouch and sit on my lower legs or squat. The pressure in my head doesn't seem to come with anything in particular, I have been trying to figure that one out. Have you had any breakthroughs with your symptoms in the last 11 months?
What’s your experience with alcohol? I found that I react poorly….even a minor quantity.
Hi, I was just recently diagnosed with pots. I have had fibromyalgia for 25 years. I possibly also have another autoimmune disease but they are so hard to diagnose. I have a couple questions. Mine started out with severe debilitating nausea. I don’t throw up but feel nauseous all day every day for a year and a half. Have you had this and is there anyway to get rid of it? None of the nausea medicines or natural medicines have worked. Also, I have worked my whole life through the pain with the fibromyalgia but now that I have pots on top of it I have not been able to work. I am not married and really need to get back to work. Will it ever be possible for me to feel well enough to go back to work?
How are you now?
@@christiandeluxer2926 a little better but still struggling. I haven’t been able to find a doctor that can do anything. My nausea is not so strong. I have been on multiple antidepressants and nothing was helping my depression. I am on one now that is helping me not cry every day but I am still depressed. I am on LDN and it is helping some with the pain but not enough. I don’t know where to go from here. These doctors don’t understand these chronic illnesses!
@@likesandsthroughthehourgla2197
Do me a favor please check and restore your adrenal gland it is a long way but that is the answer for POTS, CFS , Fibromyalgie etc..
Pls find a specialist for this organ and try to restore the function and be healthy..
You have nothing to lose as long you will find a good therapist a lot of people got better and fond a relief ..
I will do it by myself Suffering 2 month's after a heavy covid19 infection
Do you have specific weight exercises for legs? Since having POTS my legs have become so weak. They feel dysfunctional. I am also 24 weeks pregnant.
I have trouble wearing compression socks, they cause me to overheat, especially in the summer.
If we're not outside we need vitamin D3
Sunshine is the BEST vitD
My pots gets triggered by standing up..but also stress..
I cant function anymore...most of the time I'm in bed laying.and I'm home bound...its been like that the past 3 years since I crashed wiht adrenal fatigue stage 4..so at this point I'm to put it frank. Disabled...can please anyone give me hope or am I screwed??
Hi I am so sorry that you are suffering from this , have you ever tried an alkaline / clean diet or drinking seamoss ??? If you have not I gently suggest that you change your diet (if it is possible ) and start drinking Seamoss it contains 92 of the 102 vitamins and minerals our body needs to function properly !!!! It is also excellent for providing energy !! The Seamoss should be 100% wildcrafted . Please let me know how things turn out!!!
How does pots efficient you during pregnancy
I don’t know how you do the weight lifting. Lifting my arms is a huge trigger for me, especially above my head.
I have some exercise routine videos coming soon to show what i do!
I was just diagnosed with POTS and I was told by my Cardiologist that compression socks weren't that effective(?). That it is more important to compress your abdominal area with high waisted leggings or compression wear like Spanx.
I'm curious if its different for each person.
for me personally compression socks can only do so much and I only wear them on bad days for that reason. I haven't tried waist compression but I could see how that would work better
I think it's different for each person. I do really well with the knee high socks. abdominal area compression helps a bit more, but it is just so hot and doesn't help enough for it to be worth it to me.. But If it works for you then go for it!
Let me know how they work for you Kaleigh!
I have POTS and when I initially wore compression socks I didn't notice a huge difference. When Aimee mentioned toeless socks for the summer, I went and ordered some and on a whim went up to 20-30mmhg (my socks were 10-15mmhg), I felt a big difference. So it might be worth trying some tighter compression on your legs.
I have 55-60 resting heart rate when not anxious. Lately I’ve noticed heart racing and beating hard in chest when standing up. Also I get 100bpm and it seem to stay there. You think I got POTS? Have done 3 EKGs. Have been having brain fog for many years. However the high spike in HR happened a few days ago. Should be said I’ve been suffering from severe anxiety and panic attacks for the last couple of weeks
That could be POTS for sure. The criteria is that it increases more than 30 bpm when standing. I'd talk to your doctor for sure!
Hey! I really need help, im not diagnosed with pots but i really think i have it,i dont have anemia, it gets worse with my antidepressants also, plus when i wake up from bed in the morning i even find it really hard to life myself up like theres alot of ton on me, also on my period or before or after abit it gets way worse, its horrible that when i start or raise my head from bed i feel dizzy and sick and lightheaded and my heart was beating like crazy and i get out of balance, the drs did some blood tests for my thyroid and said all is ok, i dont think they know about pots, im suffering alot from this please help its really putting me down and affecting my daily life sometimes its ok i dont feel it and sometimes i do, im finding it to a point that its a disability could it be pots? Or something else?.im very depressed 😞
I'm not a doctor so I can't tell you for sure, but I'd say just try the natural things I mentioned in this video and ask your doctor about it. If they don't know about POTS then go find another doctor!
@@Aimee_Esther thank you i willl give it a try and see a good experienced doctor im so sick of this😔
I live in the U.K. and PoTS U.K. is a very good website too… They have information for doctors you can print off and show your doctor too… There is such a lack of information in the medical profession…. I hope this helps…
@@DominiqueWright1976 thank you 🙏 yes not many drs know about pots sadly it needs more awareness
pots is taking a toll on me :/ i love the natural route but i’m not sure where to start :/ i have severe dizziness that is not relieved by laying down as well as a horrid brain grogginess and tired where i cant barely keep my eyes open i need to nap every few hours :/ any idea where to start?
Just choose one natural treatment at a time. Take it slow. Jumping into a drastic new lifestyle is so hard. Socks helped me the most so I'd suggest starting there. Next I'd say diet and exercise. Good luck! :)
Does pots leads to heart failure ?
Do you do weight training both arms and legs?
Strengthening legs is very important with pots. But train both
My son was diagnosed this month and is struggling daily.
How tight do the socks need to be? I just got some that was for my recommend size and they are so tight the sock is completely stretched out on calf, but fits my foot. I have some manly looking ones I used for my pregnancy that fit good on the leg, but not my foot. My calfs are fat and my foot is small. Any who I know they help, but I dont want to make other problems if they are to tight.
There are different tightness and in reality it was just trial and error i use 30-40mmHg but there is 20-30 and 10-20 i think
Go by the calf size not shoe size when you order. There are different mmhg.. POTS recommendation is 20-30mmhg or 30-40mmhg
Can you get on ssi disability for pots? I'm having a hard time finding a job where I don't have to constantly be standing on the job.
I heard somewhere that you can. You should speak to your doctor about it.
I tried in Nevada and they denied me 3 times. I stopped trying after the last time. You should try though because it might be better where you live!
Keep applying and fighting and you may win it, it's hard for anyone to get so thats normal, meaning it's hard for anyone to get disability
Are you ok?
Im freezing in slightly cold weather...... Heat and sun make me feel better ...but have much symptoms of pots...im sooo confused!!!
Ive had extreme pots symptoms for a year ive lessened symptoms throughout the day by reducing water intake and reducing any sugar and sodium. Ive heard that drinking water and sodium helps BP, my issue is my BP goes way up when sitting and standing. Water and sodium can make it a lot worse anyone know what could be causing this?
Maybe you are hypervolemic instead of hypovolemic? But that could also be unrelated i don't know
@@cassandrakagan9800 that's so strange, but is it possible to experience both hypo and hypervolemic symptoms from PoTs or Dysautonomia? Thank you for letting me know about hypervolemia, I can use this information to better describe how I feel to medical professionals instead of always complaining about "water somehow makes my pots worse" lol. Although the Saline IV at the hospital never made me I'll no matter how much they gave me, very strange...
@@linkswords10 you can experience both symptoms from one of them I'm hypovolemic pots and idk talk to your doctor about it and see what happens
@@cassandrakagan9800 will do👌
it does the same for me, because i was flush out all my little bit of electrolytes i have lol
How do we get pots ?
Interesting about the head and feet up in bed. I sleep in a hammock which definitely is butt lowest position. It's not only comfortable, it's soothing. It hugs me.
Autoimmune diseases, I have numerous
How can i manage my pots or dysautonomia please help
How are you today?
I wear dresses and skirts most of the time. How do deal with compression socks if they will show?
I put on boots to knee. This looks nice and grungy
People with autoimmune conditions are at risk for POTS
My son says it hurts to wear them
I don't belive the drink that you have would be enough potassium for me. I use liquid IV hydration. But it's 27 dollars for 16 days. I need to find a cheaper alternative 🤔 it has potassium 370 sodiom 500..
9:00 minutes- answer- probably have EDS and it hurts their hands and skin. Dislocating joints is painful... my fingers dislocate very easy and prescription level compression ripped my skin, hurt my knees and my hands.
I'm 67 and just came down with pots after an Ablation. 😢😢😢 terrible ... I was better fit about 3 mths
You are so gorgeous❤
18:50 Orthostatic intolerance is not something that happens when you have POTS :) POTS is a form of orthostatic intolerance. OI is a broad term.
I myself have orthostatic intolerance but my heart rate doesn't go high enough (thank goodness!) when just standing, so I don't have POTS.
I thought orthostatic intolerance was the thing that causes POTS???
@@kaleighm993 I am diagnosed with orthostatic intolerance by my doctor, but I don't have POTS.
As my doctor explained, OI is an umbrella term for Dysautonomia conditions. You have to meet certain creteria to be diagnosed with POTS, which I don't. Tilt table test showed that I have OI, but I don't have POTS.
This is what Wikipedia says:
"Orthostatic intolerance (OI) is the development of symptoms when standing upright which are relieved when reclining. There are many types of orthostatic intolerance."
Mmhg=millimeters of Mercury
Good to know!
My compression socks are life savers but they were leaving bruises on my feet (I bruise so easily) any advice on why that’s happening or how to stop it?
Oh I'm so sorry! I don't experience that so I don't have any advice for you 😖
Hey Aimee I can’t find the link or comment about what compression socks you use are you able to post here please. Thanks Julia
@@juliasmith1080 it's in the description of the video!
@@juliasmith1080 amzn.to/3YRRPb0
Talk to your doctor about EDS?
has anyone else ever felt feint from there compression socks being to tight?
At least 200 mg per day of...
THiAMiNE and MAGNESiUM
Yielded significant improvements for me.
I live in Georgia and it is so hot and humid that sometimes wearing the compression socks just make me hot and sweaty. Even the toeless. I love my compression socks but sometimes its a choice between the socks or not having a heat stroke.
Yes I understand! I have heat intolerance so it's a struggle. I just stay inside all summer. It is miserable but i can't walk without socks, so I just have to make it work and miss out on a lot during the hot days. Hope you can find something that works for you!
Put your legs with socks on into water. So refreshing. Then the wind on eBike❤
😘
Does anyone have issues with driving and their eyes rolling and shaking?
I don't know why, but I can't exersise my arms 😢 I get a very bad post exertional malaise. I can exercise my legs though. Need to start doing it again.
How about you, have you always been able to exercise your arms? How did you start and build up your exercise routine?
Going on walks is less of a problem of me, my heart rate goes up but I don't crush as hard as when I exercise my arms.
Weird. When I exercise my arms I feel so much better! It gets all the blood pumping! I will answer the rest of your questions in my weekly LIVE Q+A next Wednesday! :) (replay will be on my channel next Thursday!
Same here: Arms are totally weak, can' t use them except very light movements. Legs are very much stronger. I ride my EBike: In germany that' s common.
@@AE-sd2vv cool to see my comment of 3 years ago and see my progress :)
I don't crash from arm exercises any more. But my shoulders are still a weak point. Could be due to my forward head posture, which I'm working at atm.
Keep up the good work and you'll see improvement with time! 🙏
Have you ever looked into chronic lyme disease? I have POTS and Fibro along with other conditions, and it turns out that it's all due to chronic lyme. Fibro, POTS, MCAS, PMDD, anemia...all thanks to lyme.
Yes I've been tested for lymes many times. all negative.
@@Aimee_Esther did you ever get an igenex or vibrant wellness test? I ask because most doctors know very little about chronic lyme and the most common tests that they use are extremely inaccurate. Many docs don't know how to read them properly either. I tested negative with the western blot before getting a positive lyme test from vibrant wellness. I showed my regular doctor my vibrant wellness test results, and because he didn't know how to read them properly, he told me that he "thought" that I was negative as well. I had to take my test to a lyme literate doctor that my sister in-law knew to in order for my results to be read properly. The Igenex and vibrant tests also show co-infections, which most test won't look for. Since being treated for lyme, co-infections, and mold exposure, my POTS, MCAS, PMDD, and fibro have all gotten so much better. I still have a couple more co-infections to treat, but I'm at least 60% more functional. Babesia, which is a co-infection of lyme, exacerbated my POTS symptoms significantly, and treating it has been life changing.
I am sorry if I am annoying, I am coming from a place of genuine care. I just hear so much of my story in yours and lyme was such a vital piece that I felt compelled to say something. Thank you for replying. I wouldn't be able to get it out of my head watching your videos if you hadn't. I won't bug you anymore about the lyme thing. I hope for healing for you and I think it's wonderful that you are getting knowledge and content on these subjects out there!
@@AutumnC22 can you please tell me what treatments are you doing to get rid of this? I have many of these symptoms, and just got tested for mold, still waiting on those results.
@@AutumnC22 hello , I also thought of lyme , everything you describe is so true. Just a quick question, how do you get tested for co-infections as there are so many possibilities? Is there a test for all co-infections or do you have to choose depending on symptoms? Thanks and take care
@@Claudia-fp4qd I'm so sorry 😔 I just now saw this thanks to the other reply. You will need to find a Lyme literate doctor to help you treat. I have been treating with a combination of antibiotics and herbal tinctures. I'm feeling much much better, but it does take awhile to improve and you will feel worse during treatment (herxing). Did you ever get tested?
What helped you with slowing your heart rate? This POTS is making my life pretty miserable.
Thanks for the great info. Distracting person in the background👎🏼
Sunshine is GOOD for us !!! .. this is silly
Yes it is good for most people and for some parts of my body, but my POTS flares when I am in the sun unfortunately... I'm glad you can go in the sun though! That's great. Do what is best for you.
Does anyone else wake up or lie down and feel like there’s a 20 ton weight on you? Newly dx and I think drs are missing something.
Yes when I go to sleep/wake up my head especially feels so heavy and dizzy.
Yes! And I wake up with a brain fog
I feel like a 500 lb weight is constantly on my diaphragm!