You are very welcome Courtney, I can imagine 90% loss is difficult. Pre surgery I put my tongue in the bottom of my mouth and tried using other muscles to activate my vocal chords as I was terrified I wouldn't talk. Sounds weird at first but you can make yourself understood. For me the tongue exercises have been so useful. Stay strong.
Hello mam !! I am from India and I am a tongue cancer survivor since 1.5 yrs. I am doing good !! Madam can you suggest how to increase salaiva? And I have lost my taste due to radiation can my taste be returned in future?
Dear Sashi I am not a doctor so can only give advice that has worked for me and for my head and neck cancer support group. Artificial saliva stimulating products to help you produce more saliva are available on the Internet or over-the-counter as a lozenge, a rinse or spray. Also available are toothpastes and mouthwashes specially made for a dry mouth. Different people find different products work better than others as we have all had different types of mouth cancer particularly after radiation. Yes taste does come back but perhaps not as you once had it. I didn't have radiation and some of my taste buds were removed things taste a little different. Chocolate is a chocolate explosion (whooppee) and curries are good but I cannot eat them as spicy as I once did. Try to avoid: 1. Acidic, spicy, salty, dry and sugary foods and drinks. 2. Alcohol, strong caffeine. I drink non alcoholic beer and wine now. 3. Mouthwashes with alcohol which may dry your mouth. 4. Smoking. Although some sites suggest to avoid carbonated water, I find it easier to drink than still water. I bought a SodaStream to make my own fizzy water to avoid plastic. Some practical advice would be to drink plenty of water - about eight glasses of water a day, sipping frequently. Always keep a bottle with you. When walking with a friend avoid lengthy conversation as that dries your mouth. A humidifier, especially in your bedroom, can help prevent a dry mouth at night. When preparing to sleep, try and sleep on your side rather than on your back. On your side pull the end of the pillow down towards your chest so that your chin is on your chest. In this position your jaw cannot drop. Hope this helps Janet
I know wat your going thru im in my 5th week of radiation after tongue surgery keep strong and keep fighting god is good
I start radiation in a couple of weeks may I ask how did it go? Were there any side effects?
Thank you for making these videos. I lost 90% of my tongue after cancer surgery and I am in awe of how well you speak.
You are very welcome Courtney, I can imagine 90% loss is difficult. Pre surgery I put my tongue in the bottom of my mouth and tried using other muscles to activate my vocal chords as I was terrified I wouldn't talk. Sounds weird at first but you can make yourself understood. For me the tongue exercises have been so useful. Stay strong.
Thank you Courtney, have you tried my tongue exercises? Janet
Hello mam !!
I am from India and I am a tongue cancer survivor since 1.5 yrs.
I am doing good !! Madam can you suggest how to increase salaiva?
And I have lost my taste due to radiation can my taste be returned in future?
Dear Sashi
I am not a doctor so can only give advice that has worked for me and for my head and neck cancer support group.
Artificial saliva stimulating products to help you produce more saliva are available on the Internet or over-the-counter as a lozenge, a rinse or spray. Also available are toothpastes and mouthwashes specially made for a dry mouth. Different people find different products work better than others as we have all had different types of mouth cancer particularly after radiation. Yes taste does come back but perhaps not as you once had it. I didn't have radiation and some of my taste buds were removed things taste a little different. Chocolate is a chocolate explosion (whooppee) and curries are good but I cannot eat them as spicy as I once did.
Try to avoid:
1. Acidic, spicy, salty, dry and sugary foods and drinks.
2. Alcohol, strong caffeine. I drink non alcoholic beer and wine now.
3. Mouthwashes with alcohol which may dry your mouth.
4. Smoking.
Although some sites suggest to avoid carbonated water, I find it easier to drink than still water. I bought a SodaStream to make my own fizzy water to avoid plastic.
Some practical advice would be to drink plenty of water - about eight glasses of water a day, sipping frequently. Always keep a bottle with you. When walking with a friend avoid lengthy conversation as that dries your mouth. A humidifier, especially in your bedroom, can help prevent a dry mouth at night.
When preparing to sleep, try and sleep on your side rather than on your back. On your side pull the end of the pillow down towards your chest so that your chin is on your chest. In this position your jaw cannot drop.
Hope this helps
Janet
@@janetwest9985 thank you 😊
Hi I’m going in for the same at the end of the month At Nottingham QMC. I’d love to have a chat with you for some advice.
You didn’t have a tracheotomy, they’ve told me I will.
No but you must remember every case of head and neck cancer is different so different treatments. Good luck