I was diagnosed, tested for ALS this year, after two and a half years of doctors. Final result came from electrical motor neuron test. I am not mad at the world, its a fallen and cursed place i love to be a part of, for now. I pray for every person who is a victim, the caregivers. There is no fairness in this world, but my Hope is in Jesus, the promises of God's Word. We should really start pulling together, not fight so much on every issue. God bless you all, love everyone.
You might have been misdiagnosed. Have a methylmalonic acid blood test, which will show your tissue level B12. A low B12 at the tissue level is often misdiagnosed as ALS
I would definitely suggest finding a doctor that specializes in lyme disease lou gehrig who the diseease was named after spent many summers in lyme Connecticut and if you watch the documentary under our skin a clinic in Washington said in the last 5 years they've not had a single als ms or Parkinson patient that didn't test positive for the bacteria
@leaveittolefty I'm really sorry to hear that and wish you The best but it should be noted that you do not need a tick bite you can get it from mosquitos and even passed down congenital at birth there also finding the poppy seed sized ones can transmit which can be very hard to spot on you it's also far more then just lyme connecticut I got it in kentucky most don't ever even recall a bite either
@@leaveittoleftyim def no doctor by any means but if it were me It would absolutely be worth ruling out these types of things, viral bacterial and parasitic infections including but definitely far from limited to lyme are extremely underdiagnosed and very damaging to the central, peripheral and autonomic nervous system so is mold and heavy metals, and I think as time moves forward were gonna see a lot of neurological conditions are linked to various infections and toxins
If this were true, why do we have people with ALS, MS, Parkinson’s etc in Australia where Lyme disease doesn’t exist? Lots of questions and not enough answers. I would rather not go down that rabbit hole but maybe someone will. 😂 And I am suspected to have MS and I have never left the country or been bit by a tick.
Ulcerative colitis prior to all this? 🧐 perhaps not coincidental. Hippocrates called it right 2500 years ago: “All disease begins in the gut”. Thank you for being so open and sharing the details of your health journey.
I was diagnosed just over two years ago at the age of 59. I really feel for those who get this at such a young age. Just one tip: Ask your neurologists if you might have "PLS" rather than ALS.
this is why im atheist, i had to watch my 77 year old nanna go through this disease, its even more horrible to see someone the same age as me go through it
I am so very sorry you had to go through that. My heart goes out to you. Please know that God has a plan to end our suffering. Revelations 21:3 & 4 gives me hope. Take care
Well most persons would say if god is love why does he allow suffering. But he has a time to end suffering isiah 33:24 soon no one will say i am sick. We cannot see oxygen i am sure you will never say it does not exist. Speak to one of jehovahs witnes to find out more. Eg gods name, most religions teach gods name is jesus. But psalms 83:18 says gods name is Jehovah he is the almighty watching you right now
Not sure about that you might want to get a second opinion I’ve never heard or seen als present itself that way not with the patients I’ve worked with.
@@Trigger-xw9gq my darling I have tons of experience so please don’t assume that your symptoms and diagnosis aren’t typical at all! And the fact that your sitting the way you were in the video is absolutely not als sorry darling it’s not. I think maybe you need to get more educated on the terminal disease.
@@teresawilson3893 It's "you're", not "your", Einstein. But thanks for calling me darling twice in one rant, perhaps you should have been a waitress instead.
I was diagnosed, tested for ALS this year, after two and a half years of doctors. Final result came from electrical motor neuron test. I am not mad at the world, its a fallen and cursed place i love to be a part of, for now. I pray for every person who is a victim, the caregivers. There is no fairness in this world, but my Hope is in Jesus, the promises of God's Word. We should really start pulling together, not fight so much on every issue. God bless you all, love everyone.
Much love from Ireland, thanks for all you do
You are an incredible fighter & soooo many people, incl me, are rooting for you!!!!! 🙏🏻❤️🙏🏻❤️🙏🏻
Brooke You are my hero! I am praying for a cure!
You might have been misdiagnosed. Have a methylmalonic acid blood test, which will show your tissue level B12. A low B12 at the tissue level is often misdiagnosed as ALS
Rip 😢❤❤❤
I would definitely suggest finding a doctor that specializes in lyme disease lou gehrig who the diseease was named after spent many summers in lyme Connecticut and if you watch the documentary under our skin a clinic in Washington said in the last 5 years they've not had a single als ms or Parkinson patient that didn't test positive for the bacteria
ive not had a tick bite, dont live anywhere remotely close to that area and i was diagnosed three days ago with ALS so there’s that.
@leaveittolefty I'm really sorry to hear that and wish you The best but it should be noted that you do not need a tick bite you can get it from mosquitos and even passed down congenital at birth there also finding the poppy seed sized ones can transmit which can be very hard to spot on you it's also far more then just lyme connecticut I got it in kentucky most don't ever even recall a bite either
@@leaveittoleftyim def no doctor by any means but if it were me It would absolutely be worth ruling out these types of things, viral bacterial and parasitic infections including but definitely far from limited to lyme are extremely underdiagnosed and very damaging to the central, peripheral and autonomic nervous system so is mold and heavy metals, and I think as time moves forward were gonna see a lot of neurological conditions are linked to various infections and toxins
If this were true, why do we have people with ALS, MS, Parkinson’s etc in Australia where Lyme disease doesn’t exist? Lots of questions and not enough answers. I would rather not go down that rabbit hole but maybe someone will. 😂 And I am suspected to have MS and I have never left the country or been bit by a tick.
@@iSheree i live in middle of desert with none of those risk factors and i was diagnosed with ALS last week.
Ulcerative colitis prior to all this? 🧐 perhaps not coincidental. Hippocrates called it right 2500 years ago: “All disease begins in the gut”.
Thank you for being so open and sharing the details of your health journey.
Why not start with the real trigger of the ALS disease n how to mitigate this,.. before going straight to the diagnosis n the aftermath....??!!
I was diagnosed just over two years ago at the age of 59. I really feel for those who get this at such a young age. Just one tip: Ask your neurologists if you might have "PLS" rather than ALS.
?? what is PLS? i was diagnosed 3 days ago with ALS, possibly FALS when tests result
@@leaveittolefty "Primary Lateral Sclerosis"
Google ALS vs PLS.
THATS RIDICULOUS THAT IT TOOK THAT LONG TO DIAGNOSE...🙄🙄
this is why im atheist, i had to watch my 77 year old nanna go through this disease, its even more horrible to see someone the same age as me go through it
I am so very sorry you had to go through that. My heart goes out to you. Please know that God has a plan to end our suffering. Revelations 21:3 & 4 gives me hope. Take care
@@MrCoolh20thank you but spare me of the sermon
Well most persons would say if god is love why does he allow suffering. But he has a time to end suffering isiah 33:24 soon no one will say i am sick. We cannot see oxygen i am sure you will never say it does not exist. Speak to one of jehovahs witnes to find out more. Eg gods name, most religions teach gods name is jesus. But psalms 83:18 says gods name is Jehovah he is the almighty watching you right now
@@robertbrighton9797the sermons wasnt meant for you dude
Same. F "god."
Not sure about that you might want to get a second opinion I’ve never heard or seen als present itself that way not with the patients I’ve worked with.
Why does she have to present a certain way .whats different compared tov others?
@@elanamccullum1677 because that’s not how als typically happens I know from experience do you?
@@teresawilson3893 You obviously don't have much experience, for this is quite typical, it was for me too.
@@Trigger-xw9gq my darling I have tons of experience so please don’t assume that your symptoms and diagnosis aren’t typical at all! And the fact that your sitting the way you were in the video is absolutely not als sorry darling it’s not. I think maybe you need to get more educated on the terminal disease.
@@teresawilson3893 It's "you're", not "your", Einstein. But thanks for calling me darling twice in one rant, perhaps you should have been a waitress instead.