My diagnosis story

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  • Опубліковано 27 сер 2024
  • My diagnosis story #grwm #diagnosis #terminalillness #als

КОМЕНТАРІ • 12

  • @gophersk
    @gophersk 12 днів тому

    I also had only one limb affected. Left arm. Took over two years to diagnose. Thanks for sharing.

  • @emilythomas2577
    @emilythomas2577 7 місяців тому +7

    I love your positive spirit so much ❤

  • @powerboy322
    @powerboy322 7 місяців тому +8

    "we gotta live life in dog years here". I love that! Can I use it? I'm in year 17 with ALS.

    • @tbhstarr
      @tbhstarr 6 місяців тому +2

      you’re so strong for dealing with ALS, hope you’re doing well xx

  • @parwinomar8804
    @parwinomar8804 7 місяців тому +3

    ❤❤❤❤❤ love you’re positive attitudes .

  • @rochcharron9835
    @rochcharron9835 7 місяців тому +3

    How not to be impressed by you and your family and friends! All the best from tes amis du Canada

  • @publiceyes473
    @publiceyes473 7 місяців тому +3

    ❤ kind of a just holy crap❤ but good to see you❤🐶✔❤👍

  • @davidderoux7552
    @davidderoux7552 7 місяців тому +2

    So sorry for your diagnose!!! 😢 Is there a small chanse for a wrong diagnose? The evolution till now is very very slow!!! I wish you all the best!!!

  • @snobby_lobster
    @snobby_lobster 6 місяців тому

    Thanks for bravely sharing your story with the world. Can I ask if you got a second or third opinion? It would be easy to be in denial the first time you get the diagnosis, right? Also, did they test your blood or urine for any biomarkers and for the gene for familial ALS?

  • @anthonyformichelli5318
    @anthonyformichelli5318 7 місяців тому

    Was there ever an associated cause to your ALS? Do you remember the day your fasciculations or spasticity started? I had some old contaminated AC water drip down on my right forearm and woke up with that exact location spastic the next morning. Then the following days it went in both my calves and left my right arm. Progressed from there oddly enough

  • @Peety56
    @Peety56 7 місяців тому

    What did the cleane taste like and did you notice and change I'm going to start the trial shortly. 67 with ALS.

  • @bethgabel8605
    @bethgabel8605 4 місяці тому

    I love you Brooke! You're an inspiration! However, I really don't like watching you put makeup on 😢 I hate to be rude