Diagnosed in 2019 i was 20. I was paralyzed on entire right side of my body head to toe... today 2024, working for Tesla ❤ staying strong 💪🏼 in remission!
Whilst this is an encouraging video as to the excellent work done by Dr Levin and his team, it is also a bit disingenuous. It’s not possible to be fully confident of the treatment being effective for everyone with MS or ALS until the trials have been done. The trials can take many years, some can take 15 years or even more. Also medications have to be approved and this can also take time. As someone with MS I sincerely hope Dr Levin has hit on the cause of MS and ALS and the way to prevent disease progression, but it might be along time before we can all be confident of this and see any treatment become widely available. I think perhaps not in time for me and others - being as how I’m sixty, but I’ll keep my fingers crossed for the future and for those children and young adults currently having to live with these awful diseases.
My son is 33 and has Progressive MS. 5 years ago he lost his vision in one eye. He's a good person who has so many medical problems now. I stay up many nights worrying about him. I hope there's a cure. He doesn't want to have infusions with those dangerous medications. Thank you for trying to find cure.
I have ALS. This is the best explanation on what I think is happening to me. This is a cure nit a slow down of the process which most drugs are that are being developed to day. I can't wait three to five years. I would do it now.
I lost my mother to ALS back in 1993. For years, I was afraid it is hereditary. Sometimes I am still afraid, as I am approaching the age when she fell sick. Every piece of new information is precious to me. Thank you very much.
Yet my brain is able to send msg to my eyes to take water out in the form of tears unlike the msg to my leg, after watching this. Desperately waiting before it hits employment. Thank you for the hard work! ❤
Thank you Dr for everything you do. I have been diagnosed with MS since 2 years. My first relapse has left me permanently blind in my left eye, i am still in my 20s. This is such a scary disease that leaves me fearing another attack every day. I hope your trials are successful and that you can speed through them as quickly as (scientifically) possible. This would be a game changer for tens of millions of people. Thank you and I hope to be taking the medication soon :)
@@martinschultz2631 currently on tecfidera - in the netherlands they still escalate and don't let you have the best medicine first for some reason. When I asked by neuro for ocrevus he proceeded to describe how someone died of it. and refused saying he would have to discuss internally with neurologists because it was a "strange request".. zero bedside manners. In my mind it isn't strange at all to want the best working medicine to prevent permanent damage and literal holes in my head.
Try fasting and the carnivore diet, help your body heal itself. Look up Dr Ken Berry or Dr Anthony Chaffee on UA-cam and just read the comments from people with MS they've helped. Drugs will never be the answer, the organisations that make them do not want you better, they want a lifelong customer.
Wow! To see these images and to hear Dr. Levin's evidence, it is truly amazing. Huge tks to him and his colleagues. Now what will happen with this critical research?❤
Were getting close to highly productive treatment, you can tell. Each company is building on top of previous breakthrough. One day, maybe 20 years from now, we'll start to look back at how bad it was for previous Als n ms patients. Especially als.
I have PPMS and its deteriorating daily. So when saw this videos my eyes open widely. Thanks dr we have hopes only because of ppl like you. Please share anything that comes up.
Why not just give the miracle drug right now to sufferers with such advanced cases of ALS that they literally have nothing to lose ? The problem with all those TED Innovations is that they take so long to come to fruition that it may not be in our lifetime .
just like hair growth lol, we've heard that a solution was very close for the past 30 years... they can't even grow one hair back. i understand it's not life threatening - hair lost - but it's very annoying. Good luck.
I agree. I find the scientific process ridiculous at times. Taking 5 years for trials and then another 5 years before production is WAY too long. People are suffering NOW. I am sure there are thousands who would be willing to try out the medication, I would for one.
Depends often on how it is given...tablet, infusion, lumbar puncture etc. Can the patient swallow? Van the tablet be crushed? What is the effect on the liver? These tests have to take safety of meds into account.
I congratulate Dr. Levin and his team. I hope he can continue to make progress. I have PPMS and really have just accepted it now. I do what I can, have not "given up", but I am a realist...
Diagnosed January of 2016. I would gladly join the clinical trials. Each year I lose a part of me. Not long now before I am wheelchair bound. If there is a 50/50 hope to gain 50% normality, I will gladly take it.
I have ms 20 yrs now. Dear Dr Levin, thank you! Will your very thorough "Aha moment" A1 protein breakthru get a most worthy research grant? Or will we hear the usual soundbite, "its years away still from testing, trials, approvals". Many a mice have benefited from yr A1 tests. When is it for us? 🤔🐦🙏😘🇨🇦
This sounds so promising! I've had MS for 25 years and feel very lucky in the course my disease has taken. My son was diagnosed 4 years ago, at 19 years old. I hope he will get to benefit from discoveries like this ❤
@Lordsofchaospodcast hi I kind of force myself. Pretend someone holding gun to your head. I have mobil scooter gogo had big fight with managed medicare to pay. I finally won case. Guess what never used once. I also have 3 wheel rollator. Very inconvenient storage bag design. Also no seat. Used 1-2 times. So how do I walk you ask? Small shopping cart. Left hand. Right hand cane. A neuro once told me he had a ms pt exact same choice of cart, cane. I said, How long did she last? No answer, just smiled.
I’ve had ms since 1974/1975, diagnosed in 1982. There were no drugs available only steroids to dampen the immune system. I hope someday a cell rejuvenation drug becomes available so I and others might experience what a semi-to normal life is.
take my advise, start by skipping breakfast, i'm not kidding, don't eat and watch yourself until lunch and drink as much water as you want, than take your lunch and compare yourself before and after eating
@@ABCabc-dd2lv I eat only when I’m hungry. I’m not a water aficionado but drinker of milk. As I may have mentioned, I was diagnosed in 1982, had multiple problems beginning in 1974 but was able to shrug those off. I’m quite aware of multiple sclerosis. I do have hope that there will come a time, a day when I’ll be able to feel “normal” again - there’s been so many years gone by I cannot recall what normal is. I’m 72. Many years have passed since my life was disrupted. I’d like to be normal before too many years elapse.
@@johnrice4273 i have had multiple sclerosis for nearly 30 years, i also stated forgetting what normal is, in fact i look at people walking normally, climbing up and down the stairs and wonder: how can they do that? my comment was not about eating normally, it was about not eating at all, i personally started testing myself and eliminated breakfast, and that had a nice impact, now i'm elliminating both lunch and breakfast, my goal is the 3 days complete fasting excluding water of course and see what happens, but gotta say, you being an MS patient for that long: RESPECT
But why focus on MS and not ALS? Sure, MS is a lot more common, but ALS is WAY more devastating, and directly fatal. It ruins lives INSTANTLY. If my daughter got this disease at like 12 years old, boom, life and all hopes and dreams ruined.
An awesome guy living off grid on an island for the past 8 years is slowly dying of Parkinson's. He has a channel of short videos on UA-cam and is very sick now. Hopefully somebody would reach out to him and help him. His name is Mark Hogben. 🧡🧡🧡🧡
Hi! Dr Levin needs a generous research grant to get his theory tested, then trial stages begin. If its showing good results, then it goes to next stages, expanding the # of ppl to join the research study medication, then hopefully, approvals. This is the Canadian protocol for any research projects. 😊
What’s the pathway of these “medications” - particularly with respect to the neurogenesis? This talk told me nothing. What were the results in the mice? Really annoying.
but as an MS patient, i was always told that MS is an autoimmune disease and it's because of ABV virus, were they wrong? my life have been literally destroyed by this disease
I am grateful to Dr ubarlo who gave so much of himself to keep me healthy and protected from ALS. You are the perfect combination of responsibility and care. Thank you for taking such sensitive care of your patients. Your positivity, helpfulness and dedication to patients truly stands out
I think there is a company in Australia progressing to 2/3 that has a drug that induces autophagy of mislocated protein from the nucleus. Phase 1 trial showed a potential slowing of ALS by 58% based on ALSFRS score
These drug inovations are well and good, but people who are suffering now have to wait 10 to 15 years to get them. Patients now will not befefit from these drugs if you have especially ALS. There got to be away to get these drugs to petients quikly to save lives.
Anxiety gave me nerve firing and skin burning, with other symptoms. But other symptoms has resolved on its own including panic attack except the nerves firing n burning. This is still happening even though I've been able to conquer what got me into chronic anxiety, though it took me approximately a year to conquer my fear. But I'm still getting these symptoms.
As a person with MS for 14 years, I clicked immediately!!
I immediately sent this to my brother whose wife has MS. I hope it's useful info. I am just now watching it!!
Really hope science finds a way to relief for you. Nothing but love to you
Watch „The living proof“, it’s a documentary.
Fifteen years for me. This is exciting!
I have als. I'm praying for a miracle
Diagnosed in September 2021 at 22 years old. You’re not alone!!
What have you been doing to try and reverse or stop the symptoms?
Diagnosed in 2019 i was 20. I was paralyzed on entire right side of my body head to toe... today 2024, working for Tesla ❤ staying strong 💪🏼 in remission!
that is *AMAZING* ! how did you do it?
I have had MS for 40 years. Going back home now from a stay in rehab for a broken kneecap!! Wish me luck. Never give.up!!😊
get well soon and take care!!
If only als patients could live as long as you..
Enjoy your life !
I cannot thank you enough for this work. Please bring this to market as soon as you can. A lot of people could use this treatment.
In future, this measures will disseminated expand. Coming soon I think it will useful for people rally need it.
This is incredible! I can’t wait for it to help my MS and everyone with MS! Thank you for your research and your efforts!!
Whilst this is an encouraging video as to the excellent work done by Dr Levin and his team, it is also a bit disingenuous. It’s not possible to be fully confident of the treatment being effective for everyone with MS or ALS until the trials have been done. The trials can take many years, some can take 15 years or even more. Also medications have to be approved and this can also take time. As someone with MS I sincerely hope Dr Levin has hit on the cause of MS and ALS and the way to prevent disease progression, but it might be along time before we can all be confident of this and see any treatment become widely available. I think perhaps not in time for me and others - being as how I’m sixty, but I’ll keep my fingers crossed for the future and for those children and young adults currently having to live with these awful diseases.
My son is 33 and has Progressive MS. 5 years ago he lost his vision in one eye. He's a good person who has so many medical problems now. I stay up many nights worrying about him. I hope there's a cure. He doesn't want to have infusions with those dangerous medications. Thank you for trying to find cure.
Tysabri (an infusion) has been a game changer for me. !!
Richard
This offers hope for those struggling from MS😊
Look up Dr Terry Wahls. She has an incredible story about being diagnosed with MS and her journey to better health.
I have ALS. This is the best explanation on what I think is happening to me. This is a cure nit a slow down of the process which most drugs are that are being developed to day. I can't wait three to five years. I would do it now.
Keeping fingers crossed that this becomes available worldwide 🤞🏽
I lost my mother to ALS back in 1993. For years, I was afraid it is hereditary. Sometimes I am still afraid, as I am approaching the age when she fell sick. Every piece of new information is precious to me. Thank you very much.
You should do a gen test, for piece of mind.
how long she managed to live with ALS? a relative of mine is diagnosed with ALS, we are devastated
Yet my brain is able to send msg to my eyes to take water out in the form of tears unlike the msg to my leg, after watching this. Desperately waiting before it hits employment. Thank you for the hard work! ❤
Thank you Dr for everything you do. I have been diagnosed with MS since 2 years. My first relapse has left me permanently blind in my left eye, i am still in my 20s. This is such a scary disease that leaves me fearing another attack every day. I hope your trials are successful and that you can speed through them as quickly as (scientifically) possible. This would be a game changer for tens of millions of people. Thank you and I hope to be taking the medication soon :)
What drug do you take? Kesimpta-Ocrevus?
@@martinschultz2631 currently on tecfidera - in the netherlands they still escalate and don't let you have the best medicine first for some reason. When I asked by neuro for ocrevus he proceeded to describe how someone died of it. and refused saying he would have to discuss internally with neurologists because it was a "strange request".. zero bedside manners. In my mind it isn't strange at all to want the best working medicine to prevent permanent damage and literal holes in my head.
Try fasting and the carnivore diet, help your body heal itself. Look up Dr Ken Berry or Dr Anthony Chaffee on UA-cam and just read the comments from people with MS they've helped. Drugs will never be the answer, the organisations that make them do not want you better, they want a lifelong customer.
This could be a huge breakthrough! Hope that the studies get the funding and prioritization they need.
Wow! To see these images and to hear Dr. Levin's evidence, it is truly amazing. Huge tks to him and his colleagues. Now what will happen with this critical research?❤
yeah but what is the drug that you invented would be nice to hear
Were getting close to highly productive treatment, you can tell. Each company is building on top of previous breakthrough. One day, maybe 20 years from now, we'll start to look back at how bad it was for previous Als n ms patients. Especially als.
I have PPMS and its deteriorating daily. So when saw this videos my eyes open widely. Thanks dr we have hopes only because of ppl like you. Please share anything that comes up.
I have a niece diagnosed with ALS in october 2023, given 6 months, shes dying slowly 💔 how would she get on the trials
Why not just give the miracle drug right now to sufferers with such advanced cases of ALS that they literally have nothing to lose ? The problem with all those TED Innovations is that they take so long to come to fruition that it may not be in our lifetime .
just like hair growth lol, we've heard that a solution was very close for the past 30 years... they can't even grow one hair back. i understand it's not life threatening - hair lost - but it's very annoying. Good luck.
I agree. I find the scientific process ridiculous at times. Taking 5 years for trials and then another 5 years before production is WAY too long. People are suffering NOW. I am sure there are thousands who would be willing to try out the medication, I would for one.
Soo long 😭 why when we can pop up a Covid vaccine in next to no time. We don't care being guinea pigs we just want a life
Depends often on how it is given...tablet, infusion, lumbar puncture etc. Can the patient swallow? Van the tablet be crushed? What is the effect on the liver? These tests have to take safety of meds into account.
@@HazelRobertson-y3ucovid vax had 15 years of work on it and ppl still think it caused issues.
Big thanks for this Doctor. People like you are our hope!
I congratulate Dr. Levin and his team. I hope he can continue to make progress. I have PPMS and really have just accepted it now. I do what I can, have not "given up", but I am a realist...
Thank God and God bless your endeavours, Dr.
No "god" was involved, all of them are imaginary.
Diagnosed January of 2016. I would gladly join the clinical trials. Each year I lose a part of me. Not long now before I am wheelchair bound. If there is a 50/50 hope to gain 50% normality, I will gladly take it.
I instantly burst into tears of joy when i saw that picture. When will this be ready
As a person recently diagnosed with ALS I am intrigued.
Me too and I hope they speed up the process 🙏
first here. I hope you get what you want in life
I have ms 20 yrs now. Dear Dr Levin, thank you! Will your very thorough "Aha moment" A1 protein breakthru get a most worthy research grant? Or will we hear the usual soundbite, "its years away still from testing, trials, approvals". Many a mice have benefited from yr A1 tests. When is it for us? 🤔🐦🙏😘🇨🇦
Let's hope that when / if this medication comes to fruition that it's not cost prohibitive and not just for those who can afford it !
Amazing! Your work is so rewarding! 👏🏻
This sounds so promising! I've had MS for 25 years and feel very lucky in the course my disease has taken. My son was diagnosed 4 years ago, at 19 years old. I hope he will get to benefit from discoveries like this ❤
The problem with all these miarcle drugs is that the creators have no sense of urgency. ALS does not give you time.
Believe it when i see it. But advancement is very slow because of authoritarian centralized medicine (and overall economy)
Hoping for further research and funding
Dr. Levin I was dx in 1989 at Elmhurst Hosp Queens. I am ppms 77f.
Nice to meet you and good luck with your work.
Best.
@Lordsofchaospodcast hi I kind of force myself. Pretend someone holding gun to your head. I have mobil scooter gogo had big fight with managed medicare to pay. I finally won case. Guess what never used once. I also have 3 wheel rollator. Very inconvenient storage bag design. Also no seat. Used 1-2 times. So how do I walk you ask?
Small shopping cart. Left hand. Right hand cane. A neuro once told me he had a ms pt exact same choice of cart, cane. I said, How long did she last? No answer, just smiled.
Diagnosed 17 years ago
Hurry up and wait.
That is interesting! Please can you look at the brain cells of those with ME/CFS? This disease is disabling. Many thanks for what you are doing.
Pleas just find it😢 we are really are suffering 🥺
My dad has als and ms so I clicked immediately pretty cool to learn more about this stuff
Please please please please please please get this drug out to people with ms immediately. I've been diagnosed with ms of for years and 43 years old.
Why not track why A1 leaks outa nucleus in the first place and fix that? E.g. how do you make mice get MS?!
Absolutely incredible... could this be the ending of the immense suffering?
I have Als and would love to be involved in the clinical trials.
What is the name of the drug?
I’ve had ms since 1974/1975, diagnosed in 1982. There were no drugs available only steroids to dampen the immune system.
I hope someday a cell rejuvenation drug becomes available so I and others might experience what a semi-to normal life is.
take my advise, start by skipping breakfast, i'm not kidding, don't eat and watch yourself until lunch and drink as much water as you want, than take your lunch and compare yourself before and after eating
@@ABCabc-dd2lv
I eat only when I’m hungry. I’m not a water aficionado but drinker of milk. As I may have mentioned, I was diagnosed in 1982, had multiple problems beginning in 1974 but was able to shrug those off. I’m quite aware of multiple sclerosis. I do have hope that there will come a time, a day when I’ll be able to feel “normal” again - there’s been so many years gone by I cannot recall what normal is. I’m 72. Many years have passed since my life was disrupted. I’d like to be normal before too many years elapse.
@@johnrice4273 i have had multiple sclerosis for nearly 30 years, i also stated forgetting what normal is, in fact i look at people walking normally, climbing up and down the stairs and wonder: how can they do that? my comment was not about eating normally, it was about not eating at all, i personally started testing myself and eliminated breakfast, and that had a nice impact, now i'm elliminating both lunch and breakfast, my goal is the 3 days complete fasting excluding water of course and see what happens, but gotta say, you being an MS patient for that long: RESPECT
please release this medication now,for my mother.
But why focus on MS and not ALS? Sure, MS is a lot more common, but ALS is WAY more devastating, and directly fatal. It ruins lives INSTANTLY. If my daughter got this disease at like 12 years old, boom, life and all hopes and dreams ruined.
What I do is Listen to Music to get Relaxed Deeply. Works for me.
was diagnosed with ms in october 2023 and just turned 22 the same day i was diagnosed.
Ive had it for over 15 years. I am grateful I am sill alive.
ALS? Or MS?
You have ALS or MS
may I know your life style pls
MS ? MMN? ALS
An awesome guy living off grid on an island for the past 8 years is slowly dying of Parkinson's. He has a channel of short videos on UA-cam and is very sick now. Hopefully somebody would reach out to him and help him. His name is Mark Hogben. 🧡🧡🧡🧡
So, is there a name for this new medication ???
Hi! Dr Levin needs a generous research grant to get his theory tested, then trial stages begin. If its showing good results, then it goes to next stages, expanding the # of ppl to join the research study medication, then hopefully, approvals. This is the Canadian protocol for any research projects. 😊
Very interesting talk, what is A1 protein, does it work downstream of TDP43 in ALS
God bless
What is the name of the drug and does Washington University in St.Louis participate in the clinical trail for this drug ?
Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me sir please
AP ko kia Alamat symptoms Hain.
thx
3-5 years
You must live in a dream world
What’s the pathway of these “medications” - particularly with respect to the neurogenesis? This talk told me nothing. What were the results in the mice? Really annoying.
but as an MS patient, i was always told that MS is an autoimmune disease and it's because of ABV virus, were they wrong? my life have been literally destroyed by this disease
😢
Whats the exact problem happened to you ?
Can I volunteer for the trial? RRMS since 2011. Remyelination would be amazing!
Can not wait until this end up in the pile of videos 5+ thought 7+ years old or older videos finding a potential solution that nothing comes of this,
Well, what are you waiting for!?
I'm ready for it I'll be your human test Mouse I'm ready to be gone with my MS
MS and ALS are very different:(
Let me try it!!!!!!!!!!!!!!!!!!!!!!!!!!!! PLEASE……literally going brain dead
Dr Klenner came up with a nutrient treatment in the 1940s. Reversed ms. N o pharmaceuticals needed
MS and ALS are completely different
I just commented the same thing.
I am grateful to Dr ubarlo who gave so much of himself to keep me healthy and protected from ALS. You are the perfect combination of responsibility and care. Thank you for taking such sensitive care of your patients. Your positivity, helpfulness and dedication to patients truly stands out
I think there is a company in Australia progressing to 2/3 that has a drug that induces autophagy of mislocated protein from the nucleus. Phase 1 trial showed a potential slowing of ALS by 58% based on ALSFRS score
Do you recall the company?. Thanks
@@jackyeferreira Hi there, I believe the company is called Pharmaust and the drug is Monepantel. All the best
Do u know the name of the company
@@jackyeferreira Hi there, the company is called Pharmaust. It's just about to start on the Healey ALS Platform Trial.
The company is called Pharmaust and is about to start a phase 2/3 study on the Healey ALS Platform Trial.
I HOPE SO .! IVE GOT MS! VIV XX.
My mother is suffering from this disease 💔
were u from bro
These drug inovations are well and good, but people who are suffering now have to wait 10 to 15 years to get them. Patients now will not befefit from these drugs if you have especially ALS. There got to be away to get these drugs to petients quikly to save lives.
There’s MS and then there’s MS like symptoms. People can cause the symptoms with improper nutrition and lifestyle along with toxin exposure
Anxiety gave me nerve firing and skin burning, with other symptoms. But other symptoms has resolved on its own including panic attack except the nerves firing n burning.
This is still happening even though I've been able to conquer what got me into chronic anxiety, though it took me approximately a year to conquer my fear. But I'm still getting these symptoms.
Strikes me as too confident. Not a good sign.
🙏
Spoiler alert. No. Diagnosed 5/2022 (ALS)
So sorry
Sucks this entire video is being heard through my left ear
Homeopathy - the most suppressed system of medicine
15 minutes where he says nothing except marketing for a "Medication we've invented".
Sarcoptes scabii var caninis
Sign me up
They literally could've given him clonidine or suboxone
He "created" a drug.....
L,
I NEED COCONUT BUTTER? CAN I GET IN H AND B? VIV XX.
@JasonBeckerOfficial This is phenomenal.
Terry wahls protocol works to supress ms
give us a break….another w ahls clout chaser🤖