Dr Liz O'Riordan Breast Cancer Vlog Week 4
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- Опубліковано 1 жов 2023
- Welcome to my Breast Cancer Vlog
My breast cancer came back for the second time in July 2023.
I'm keeping a vlog to record what happened - partly as therapy for me and partly to educate you - find out what it's like to be treated as a doctor and a patient, share with you the highs and the lows and how I cope with the side effects
Week 4 - It's all about the bum injections....
Speaker, Author and Storyteller - liz.oriordan.co.uk
Author ‘Under The Knife’ and ‘The Complete Guide to Breast Cancer’
Podcast Host - Don’t Ignore The Elephant
Instagram @oriordanliz
Twitter @Liz_ORiordan - Наука та технологія
No one deserves this, no one! I am sorry you’re going through this.
For me, I believe, being left alone with my own thoughts are some of the worst moments of going through treatment. Often worse than the "treatment" itself. We must be strong even when we want to curl up in a little ball. Which is really typical for women when you think about it. I wish you all, strength, love, comfort and cure.
Dear Dr. O'Riordan wish I could give you a humble gentle hug. In my deep gratitude for all the upbeat encouragement tempered with those statistical studies giving us all those unemotional reality checks of all the side effects with Chemo and all the other drugs given to fight the cancer. We see this gentle woman, struggling to overcome this aweful disease. That you devoted your life to give it your best fight. Meanwhile giving up your personal time creating all these videos, educating, simplifying medical terms and offering all of us heartfelt & sincere encouragement. Your so loved and appreciated by women all over the world. Cause you don't just do the talk your also doing walk. Human and vulnerable like all of us. A prayer from me to you that this new treatme t
stops the growth and spread of your cancer. God bless you! We're all praying for your recovery! ❤️❤️❤️👍🙏🙏🙏🌹🌹
Be well and strong, thanks Dr. Liz for giving all of us Cancer patients thrivers survivors with these informative health teachings
Sending you lots of love on your journey. I’m a year and a half out from my last chemo. I’m on an AI and I’m the age my mother died from metastatic disease. It’s very emotional. ❤ thank you for sharing your story.
Thanks for all of your helpful videos, Dr. Liz. I'm so sorry you are having recurrences. I have had my own cancer journey last May-lumpectomy -followed by a mastectomy in June. I had radiotherapy but, thankfully, no chemo. I'm on Anastrozole now. So far, so good. You are on my prayer list to St. Peregrine, the Saint for cancer patients. Blessings ♥.
Oh I got the same reaction from people. I look so good NOBODY would say I hav metastatic b cancer. I even put on weight cos of the hormone blockers. I feel like 90 years old but I am 42.
❤
I loved getting my little lifts box during my chemo, it really lifted my spirits x
Quite simply Liz, I love you .For your bravery, openness and the eloquent, concise way you explain the processes that I and many others are going through. I'm so grateful for your videos. Wishing you all the very best,. You're a great Doctor and an amazing lady
Aww thank you x
Thanks for this Liz, you are helping many other sufferers with your videos. Thank you and I hope your ok 🌹🙏
Wishing you the best Liz I'm stage 4 metastatic breast cancer er-pr-her2+ any tips would be great 😍
Dr Liz thank you for all you have shared on your cancer. The information on the medications which I'm switching to the steroidal one as I hope I don't get to many side effects wrist pain was one of them and body and joint pain. Inspiring all that share your cancer experience.
I have followed you on Twitter for a while and am now really enjoying your videos. Keep going Dr Liz - we need to hear voices like yours. A very dear friend of mine has breast cancer and she has thanked me several times for introducing her to you. Xx
Your videos are so important! Sharing your experiences through your treatments, wow, you are helping so many people dealing with this disease. I have diffuse systemic scleroderma and multiple myeloma. Many of the treatments I don't think that providers are always aware of how painful, stressful and emotionally challenged we can be. Thank you for taking the time to educate!
I try my best x
Where would we be without you Liz? Your information is like gold dust. You answer our questions. The ones we forget to ask our oncoligist! More than anything, i want to say you are so brave, putting the painful bits of your life out there. Keep being resilient Liz, one day at a time and the love from the importsnt people will steer you through this rocky passage. 💖
Thank you for sharing your journey Liz, you have and still are helping so many going through this. Sending hugs and positive healing energy your way xx
Thank you for sharing Liz. Sending you a healing hug. Jxxx💞💞💞
Hope for you a complete recovery. I like very much your videos
Thank you for the update Dr Liz. You are certainly rising to meet your new challenges. As you always have. You are finding your balance. I can tell. You can ABSOLUTELY do this. You WILL!! You ARE!!!
Very good information, telling it like it is. Best wishes 🙏🏻
So much love as always. Thank you for sharing.
You are so welcome
Thank you so much for sharing your experience, It is helping me so much because I never know what questions to ask at consultations but I know that you’ll give me all the information I need online! I loved your autobiography because I too have a history of depression. Remember that thanks to your videos you now have a huge team of “breast buddies” to lend support when you need it! ❤❤❤
I totally understand and appreciate you sharing your expertise. Thank you. 🙏
Thanks x
I’m sorry you’re going through this 🙏🏼🙏🏼🙏🏼
That is a lot of roles coming together: doctor, patient, daughter, advocate…Glad the bumshots aren’t too much of a bummer! And the fatigue: yes, it helps to go to the gym. I cry everytime I am able to finish a class or to lift a heavier weight. Thinking of you. Take care. Love from Amsterdam ❤
Your vlog is really insightful. Taking medications for the rest of one's life is sobering for someone your age. What seems most tough to me is that the side effects sound at least as hard as chemotherapy!. I remember becoming really impatient with the chemo and counting the days to the end! I hope the dosage adjustments will help, in addition to your admirable determination to keep so active and your generosity to share so much with us. I believe that keeping my passions for classical singing and yoga alive during the breast cancer treatments have helped me a lot with recovery...and my learning curves have benefitted a lot from all the adaptations I had to make during treatments! I wish well!
Keep well
I will say again, you are so loved. I am going to pray for you.
Thank you x
Big hugs, Liz. I remember having my bag and it went with me to the ER when my temperature went up and I got an infection during my nadir after my 3rd AC infusion (in the midst of the pandemic, no less). This is absolutely stellar and necessary advice that can apply to anyone. I've kept a go-bag packed since I finished my treatment (plus one for my dog) because you never know when you'll have to leave your home in an emergency (medical, natural disaster, gas leak, fire, etc.) Continued best wishes you tolerate these meds.
Thanks for sharing this with us. Great idea
Thank you so much for sharing. So many of the things you mention strike deep chords with those of us going through similar experiences. Keep plodding on, and hopefully everything will stabilise and become the new (not so bad, but still missing grapefruit juice) normal!
Plus you will be amazing on the TV shows!
Hugs from the US. Said a prayer for your healing. 🤗
Thank you x
I’m glad to see that i’am not the only one who studies the ‘side effects’ meticulously! Then wishes l hadn’t looked at them.
All the best with your treatments.
thanks x
Thank you for your honest feelings about your current situation! I just began Verzenio (taking Letrazole too) so am a few weeks behind you, but definitely similar feelings! You’re so helpful with your discussion about fatigue and exercise! I needed that!😊
You got this!
Dr. Riordan. I’m passing along your book and U-tube in the U.S. we will hold your hand during your injections🙏
You always say exactly how it feels I was just introduced to a woman that just got diagnosed and wanted to ask me questions. Her doctor sugar coated everything. So I couldn’t tell her the truth. I just kept saying you’ll be okay
I totally get where you are coming from with the tablets. I say and stared at my tamoxifen for a week before I finally took them in June.
I said to my BCN, I feel well and all the stuff you are going to do to me is going to make me feel like shit! Managing the symptoms and love my chillow.
I also don't like aniseed/liquorice.
Thank you for sharing your experience, I hope it is helping you process things.
Sending hugs ❤
Thank you so much for your videos. They are helping me to prepare for what lies ahead. I was diagnosed with BC a month ago and go next week for a bilateral mastectomy. My tumor is also highly estrogen positive so tamoxifen is in my future. I just turned 48 and have not gone through menopause. Of course I am dreading it and all the side effects of the medication. Praying you are able to tolerate the meds you are on and your cancer stays away for good! #cancersucks
I don't know if this will give you any comfort, but my mother was one of the first women to take Tamoxifen in her 50s and she lived until her early 80s dying eventually of something different.
Testamoniny to our NHS that you're getting your treatment with them. I had it in my mind that surgeons would be private 🙈 I can't help but feel, it's tougher for you being a patient as you can't truly expose your vulnerability as you're known. Thank you for your honest insight into what has now become your 'new normal'.
P.s. I agree with your brother. Your beloved Mum WILL be holding your hand and in time, I hope the location and closeness to her will bring you comfort. 🙏🏽
Glad you can have less of a dose. It must feel like a 2nd and 3rd guessing game. I totally relate to that insomnia issue. Be careful with Botox please. I was hurt by it- and was injected too aggressively in my shoulder muscles! Severe problems for long time!! All my best to you. And remember- It’s Always your choice!
Thank you again Liz for sharing so much of your private life and your journey! I’m not sure if marijuana is legal in your country but I can tell you this what does helped me so much at night is taking a gummy with CBD,CBG and THC in it I get at least a good 5 to 6 hours sleep now… I am no longer on ibrance. I’m just on Letzorole even though I’m stage four, but I do remember how exhausted I was and how depressed it made me feel because my kids call me the energizer bunny lol and I am 54 years old, so it was very hard for me to lose that energy as like yourself I’m sure… I am so glad that your team is willing to lower your dose. It’s still works even at a lower dose… I also had troubles on the high-dose when I was on it if I ever do have to go back on it again, I will ask for a lower dose just because I’ve done research myself on it and it does still work very well! I hope you get your energy back soon! I do miss running I use to run to 4 5k’s a year I can no longer run just because of a lot of joint issues but I still can ride my street bike 15 miles a day! So I’m not complaining lol. Best wishes to you.❤ and thank you for acknowledging how hard it is for metastatic patients knowing you’re living between two lives it feels like I don’t know if that makes sense, but I feel like I live two separate lives… Having metastatic disease, living in a world of people around me, who don’t have it it’s like living in two separate worlds…
Very touching video. I'd love to see some of your knitting projects, if I heard you correctly saying you are going to be doing some knitting during October at the end of your video
Hi I'm fr Philippines always watching your video doc
Thank you so much!!
Dear Liz. Your videos are incredibly helpful so thank thank you. I have had a recent lumpectomy which was sucessful but am very fearful and investigating a mastectomy. I have been repeatedly told that my survival chances are the same with radiotherapy. However, what about risk of local recurrence? I am only in ny early 40s so also fearful of a new cancer as I have very dense breasts. Do you have a video on this? Doctors are reluctant to remove healthy tissue but I feel almost convinced this will happen again 😢
Your video is amazing it touches my feelings because my mom died of cancer and I will die from it too 😢😢 why we have to inherited from family and passed to our kids that's awful tell me how I get out from frear 😢😢
Such useful info - thank you! For ovarian suppression, could you do a video about ovarian suppression injections? I could not face the stomach fat injections - I had trouble during chemo with the tiny stomach injections for white blood cells. So - instead of goserelin I got leuprolide as an intra muscular injection into the glutes. It's a big needle but if you get it in the ventrogluteal muscle it doesn't hurt at all. Many women don't know this is even an option, and I wasn't initially offered this - it took a while to get it sorted. I think it could help others and since you are doing such a fabulous job helping women with breast cancer and have a lot of viewers, could you put this on your "not urgent but maybe another topic to cover" list? Also, I notice your ring on your chain. I did that with my rings for the entire 5 years I was on an aromatase inhibitor because my finger joints - well - all my joints - and my tendons - got very swollen. Hope that's not why you are wearing it on your chain but if so, I suggest a sauna - I bought one and it helped me a lot (also acupuncture, yoga, movement as you know).
I have always wondered who drinks grapefruit juice, but you do, when possible... Thanks for sharing and good luck with the treatment. Oh 100% with you on the exercise.
What exercise are you doing at the moment?
Nothing :( . I had my gallbladder out three weeks ago. I should have been running the Kielder half last weekend @@DrLizORiordan
it is a very pretty run, but hilly....
Dearest Dr. Liz, I am so sorry for all you're enduring. I am a newer survivor. (Finished treatment summer 2022.) Is it possible for you to have a home health onc nurse come to your home to do the injection? I can't even imagine the double whammy of the grief triggers when you go in for the injection. I am cheering you on from across the pond and send you love.
I'll look into it
That card is a great idea
Do you mind if I suggest this to Medical Professionals here ?
I admire your practical approach to your treatment and positive outlook
As always,Doctor,thanks for sharing
Warm,gentle Hugs 🤗
Thank you for watching and subscribing x
I had 8cm lobular breast cancer . Missed by many mammograms last year .Had mastectomy and 24 nodes out . 3 we're cancerous. Had radiotherapy now on letrozole . Every ache / pain I think my cancer has returned!
I have drastically cut my sugar intake and carbs . But still have a belly due to letrozole.
I found the brand accord made me feel terrible so swapped to femera . Less side effects but can't get them anywhere. Now on crescent . Due to see my surgeon tomorrow relay any fears !
hope it goes well x
@@DrLizORiordan
I found a tiny hard lump down the side of my implant . Surgeon didn't seem overly concerned but waiting for scan to check . You made me aware to keep checking scar etc . Hoping it's just a fat necrosis from the op ! Trying not to worry but hard .
Oh I had the covid vaccine on Palbociclib. I had 42 Celsius !!!!temperature and loosing consciousness. I was told it’s perfectly ok to take the vaccine by hospital
People may not fully grasp our inner emotions. I've heard the phrase 'you look fantastic' numerous times, but maintaining a façade is essential to uplift their spirits, even if it holds no significance for me.
I read your book Under the Knife & I was struck how stressful your life was. It even rubbed off on me whilst reading! This made me think how bad stress is on our bodies. What do you think? I wish you all the best, & think you’re helping so many people with your advice and down-to-earth manner. ❤.
I would strongly advise you to have some therapy: you might benefit from CBT. I've had it. You seem to have PTSD: i have complex PTSD. Maybe counselling too. Had my drain removed today: it kept blocking up. I couldn't get the nurses to understand. The design is awful: blood clots bunch up & block near the bottle. The spring didn't come up, obviously because it wasn't re-pressurised. The nurses kept saying if the spring is down it's working: they don't seem to understand how vacuums work! A blockage will not cause the vacuum seal to break, so the spring will stay down but the clot doesn't allow liquid through. A solution would be a system that allows the tubing to be replaced or cleared out periodically.
Does chemotherapy put the body into a hyper metabolic state? I know a cancer tumor alone can do this and post pelvic radiation on large Inoperable tumors can do this. I wonder also about the super fatigue you mention and then the inability to fall asleep is possibly related to this hyper metabolic rate and/or loss of estrogen?
The fatigue is a side effect of most cancer treatments. Lack of oestrogen can have a small part to play
Can you take a sleeping tablet when needed ?
I might - but I don't like taking them
Is there a study that says woman over 70 don't need radiation doesn't help much
My radiologist says he won't do radiation. Just want to find that study
Yeahhh so many people love to say how great I look. I take care of my skin, and wear fun make up every day so of course I look pretty good. But like the way my face looks has nothing to do with the rest of me.
exactly
🌻👀🫶🏽
Interesting the video:"Burzynski Movie"..
I hope that your laboratory test results will improve and that you will regain the joy of eating and the strength to fight the disease. Thank you for sharing your unique experience with us🫂
Thank you x
I wonder if it's scarier having breast cancer with a medical degree. "Meta-thriver" here, been on Ibrance 125mg for a little over 3 years. Sounds like you've been through a LOT, dear! 🫂 I heard a few weeks ago that Ibrance is being used on lower stages, and I wondered what for... This answers all my questions in a relatively short video. Thank you!
If I could offer any single piece of advice no one asked for: worry less. Exercise is kinda hard with pain, and if you're in this for the long haul; one thing that does more for me than even exercise is worrying less. I know it sounds cliche, but laughter can be surprisingly healing.
Thanks for sharing this