You truly are an amazing woman😁Not only do you represent the diabetic community so well but you take the time to answer all the questions fellow diabetics have. Kudos. I've been intrigued by this inhaled insulin option since all other injectables now take nearly 1 hour for it to work on me. I'm not sure why but it could be my age and the fact that I've now been a T1D for 30 years but seeing high numbers for awhile and not being able to bring them down timely may eventually allow me to try this option. Many thanks again👏👏👏
Thank you so much for the video, I’ve been using Afrezza for 3-years now with Lantus. Very important, after exercise I only need four units then need to eat. Otherwise I will experience a low blood sugar pretty quickly. I hope you do another video soon :-) Thank you, Mike D
Thanks. I tried last month to get my dr to change my prescription from metformin to an inhaler. He got very upset with me. I'm looking for a new doc that will listen. Thanks for the information it is really helpful. 😊
The only "problem" I have with Afrezza is that many times I forgot to take it because I would eat first and take Afrezza right after. And when I am working and eating a handful of times I would forget to take it after. It is my fault and I hate myself for this. When I missed a dose I often thought of how I had just deteriorate my body a little bit more! I have to speak up at work. If I have lunch/dinner I would not allowed any interruptions. In the end it is my body and nobody would give a damn about me except for me.
I think establishing new routines will always take a little time, whether that’s injecting 15 min before or 5 min after. I understand the frustration but hope you won’t be that hard on yourself 💙
It's only been approved in the US and Brazil so far. There are plans in the future to get it approved in Europe, but not sure exactly when that will happen.
Hey new here I take Bazalar long acting and adelong Insulin short acting. My ineurance Horizon health from FamilyCare of NJ. I would love to use Afrezza instead of injecting myself. I be ccol with just one shot of bazalar and using Afrezza instead.
My endocrinologist and I have found that I am manufacturer and type specific for my insulin. The only kind that works effectively on me is the vials of Novolin 70/30. No other manufacturers or types work appropriately on me without needing at least quadruple the amount of insulin equivalent of the Novolin 70/30 (40 units, 40 units, 40 units and finally 35 units [before meals and bedtime]) that would normally be given to another diabetic patient. Have you heard of anyone else being manufacturer or type specific for their insulin?
@@lozetchells9164 as I'm manufacturer specific for several other medicines as well my doctors have always called it being "manufacturer specific" -> my guess is the difference in the types of fillers used by the different manufacturers. While other insulin of the same type can be used and I won't react badly per say (think allergic reactions), I do require more of the other manufacturer's/types of the insulin for the same effect on my blood sugar. However, with two previous medications that I was on -> lithium carbonate and also the generic for Depakote ER, I was also manufacturer specific due to having allergic reactions to different manufacturers formulations which my doctors chalked up to the likely differences in the fillers used. Additionally, I have adrenal insufficiency and I like so many others (at least on the Facebook group I'm in for it) have found that one manufacturer just works better with each of our particular bodies than other manufacturers. The difference between the different manufacturers formulations of the same generic medication (typical drug used in treating baseline needs is hydrocortisone) is that one manufacturer version might not work at all, another will work but need a higher amount of MGs while another manufacturer works so well with the body that the person actually requires less MGs to get in the same normal limits for cortisol replacement. However, there is a medical condition (Mast Cell Activation Syndrome) in which an individual can react badly to the most random triggers, especially medications and they also typically end up being manufacturer and formulation specific (tablets vs liquid) all due to filler or more commonly dye differences.
You’ll need your doctor to advise you on that. Mixing rapid-acting injected insulin (what’s in your pump) with inhaled insulin can be done but you have to be careful not to overdose
So what insurance will pay for this? And what is the inhaler called to use the inhaled insulin? My insurance won't pay for any of this and I'm tired of shots all the time
I have Blue Shield of California and they cover it. But you could try giving the company a call and ask (the manufacturer is called MannKind, but just go to afrezza.com). The inhaler doesn't have a name and comes in the box with the insulin
Hi Good day!, would you mind telling us which pharmacy your getting your afreeza?, ive tried every major pharmacy around but everyone says they dont carry it. Would really appreciate it thank you!
@@DiabetesStrong hi thanks for the reply, we live in southern california. So not sure why. One Walgreens did say they are backordered so they can't order. Did you just get your refill recently? I've tried calling cvs-walgreens-walmart-riteaid. And they all said they don't have it. So frustrating
@@DiabetesStrong hi I just found this video, I love your channel I’ve been watching for a month since my 6 yo was diagnosed type 1. Is there a reason you don’t use the inhaler anymore? I want to see if this is an option at her next endo appointment
Currently (June 2022) the inhale-1 Phase 3 trail is being conducted to clear the way for approval for minors. Expected available to 17 & younger by early '24.
Currently (June 2022) Cipla is partnering and conducting a Phase 3 trial (effectively the last step before approval) in India in order to eventually get adult approval there. Coming soon to you.
Well, first, she fails to mention that starting afrezza REQUIRES satisfactory completion of pulmonary function testing -- something the insurance WON'T cover unless there is clear indication that afrezza is medically necessary. She also FAILS to mention that practically EVERY insurer REQUIRES "prior authorization" BEFORE they will reimburse afrezza. In EVERY case, there are SEVERAL hurdles, the most prominent of which being that you MUST have FAILED to control your diabetes using injectable insulins. Since afrezza requires about TWICE as much insulin as injectable, without prior authorization, you're looking at $500-1.500 a month for afrezza versus as low as $35 a month for injectable.
Not quite correct. Some might have to go through all of those hurdles but not everyone. And I certainly never have had to show that I “failed” on injectables. As I mention in the video I use both Afrezza and Humalog. And for me, using the copay card, this is the cheapest of my insulin. But it sounds like you’ve had a bad experience. And it’s always good to get more perspectives out there
@@fragslap5229yes, all of my insulin is covered by my insurance. That includes my Levemir, Humalog as well as Afrezza. And when I add the co-pay card the Afrezza is only $15 (which is much cheaper than any of my regular insulin). I buy my insurance through the marketplace and this year went with Blue Shield of California. But I do believe a few plans still don't cover Afrezza or any of the newer insulin. And finally, as I say in the video, Afrezza is not for everyone, and it's not my main insulin. But for some, it's a good option
@@DiabetesStrong Formulary of Blue Shield of California -- www.blueshieldca.com/bsca/bsc/public/broker/PortalComponents/StreamDocumentServlet?fileName=Plus%20drug%20formulary%20DMHC%20Jan%202020.pdf&msi=true -- shows afrezza requires prior authorization AND has a quantity limit of one box per month. Their prior authorization -- www.blueshieldca.com/bsca/bsc/public/common/PortalComponents/provider/StreamDocumentServlet?fileName=PRV_Afrezza_COMMext.pdf -- "Intolerable side effect or contraindication to injectable rapid-acting insulin that is not also expected with the use of inhaled rapid-acting insulin Afrezza, and • Provider attests patient does NOT have chronic lung disease." Don't satisfy those and they DON'T reimburse.
@@fragslap5229OK, that was not the case for me. Not sure what to tell you, the box I'm showing in the video was picked up using my insurance plus the copay card, and I"ve been doing it for a few years now.
Insulin pumps aren’t for everyone, and it was not the right choice for me. I did a full video about it: ua-cam.com/video/3dFRDTi4FvE/v-deo.html Afrezza is quite a unique way to manage blood sugars because it works so fast. I even know some people who combine it with using an insulin pump
You truly are an amazing woman😁Not only do you represent the diabetic community so well but you take the time to answer all the questions fellow diabetics have. Kudos. I've been intrigued by this inhaled insulin option since all other injectables now take nearly 1 hour for it to work on me. I'm not sure why but it could be my age and the fact that I've now been a T1D for 30 years but seeing high numbers for awhile and not being able to bring them down timely may eventually allow me to try this option. Many thanks again👏👏👏
Thank you so much, and I'm so happy to hear that! Awesome when we find what works for us
You did a better job than the Afrezza channel. Their video didn't answer questions. It showed only how to use the product.
Thanks. I’m glad you found it informative
Thank you so much for the video,
I’ve been using Afrezza for 3-years now with Lantus.
Very important, after exercise I only need four units then need to eat. Otherwise I will experience a low blood sugar pretty quickly.
I hope you do another video soon :-)
Thank you, Mike D
Thank you. Yes, that increased insulin sensitivity after workouts is so important to take into consideration. I'm glad you're happy using Afrezza
Thanks. I tried last month to get my dr to change my prescription from metformin to an inhaler. He got very upset with me. I'm looking for a new doc that will listen. Thanks for the information it is really helpful. 😊
The only "problem" I have with Afrezza is that many times I forgot to take it because I would eat first and take Afrezza right after. And when I am working and eating a handful of times I would forget to take it after. It is my fault and I hate myself for this. When I missed a dose I often thought of how I had just deteriorate my body a little bit more! I have to speak up at work. If I have lunch/dinner I would not allowed any interruptions. In the end it is my body and nobody would give a damn about me except for me.
I think establishing new routines will always take a little time, whether that’s injecting 15 min before or 5 min after. I understand the frustration but hope you won’t be that hard on yourself 💙
This is a game changer, but is it suitable for asthma sufferers….
But a great idea.
Haven't heard about this, nice that have subscribed your channel. Lots of information is shared. Is it going to be available internationally?
I hope it will! I haven't heard any official international release information but would make sense
Tengo Medicare
Y Medical.
Califico para esta Medicina.
Always so informative thanks so much for all ya do!
Thank you, appreciate the love
@Engelbert Humperdinck oh, that's scary! I"m glad it worked well for you
Enjoyed the 4 minute video about poop at the beginning!
😆
Is FDA approved like is in pharmacy or just for trails? I'm from Europ and never heard of afrazza
It means that it's approved for commercial sale in the U.S. I don't know what their plan is for international approval and distribution
It's only been approved in the US and Brazil so far. There are plans in the future to get it approved in Europe, but not sure exactly when that will happen.
@@VanLe-ne8eg you are right, I should have added the Brazilian approval as well
It was overwhelmingly approved.
Do these cartridges get refrigerated?
Yes, like injected insulin you leave it in the fridge until opened
Great vid- thanks!
I need more information on this. No one is talking about how long it takes before it expires, does it require any special storage?
You store it like your other insulin. In the fridge when not in use and at room temperature when in use for up to 10 days
Hey new here I take Bazalar long acting and adelong Insulin short acting. My ineurance Horizon health from FamilyCare of NJ. I would love to use Afrezza instead of injecting myself. I be ccol with just one shot of bazalar and using Afrezza instead.
I don't know if your insurance would cover it, but it could be worth a shot
My endocrinologist and I have found that I am manufacturer and type specific for my insulin. The only kind that works effectively on me is the vials of Novolin 70/30. No other manufacturers or types work appropriately on me without needing at least quadruple the amount of insulin equivalent of the Novolin 70/30 (40 units, 40 units, 40 units and finally 35 units [before meals and bedtime]) that would normally be given to another diabetic patient.
Have you heard of anyone else being manufacturer or type specific for their insulin?
No, I’ve never heard about such a situation before. But good thing you figured it out
@lesliehyde - Interesting. Do you know if there's an accepted name for this condition?
@@lozetchells9164 as I'm manufacturer specific for several other medicines as well my doctors have always called it being "manufacturer specific" -> my guess is the difference in the types of fillers used by the different manufacturers. While other insulin of the same type can be used and I won't react badly per say (think allergic reactions), I do require more of the other manufacturer's/types of the insulin for the same effect on my blood sugar. However, with two previous medications that I was on -> lithium carbonate and also the generic for Depakote ER, I was also manufacturer specific due to having allergic reactions to different manufacturers formulations which my doctors chalked up to the likely differences in the fillers used. Additionally, I have adrenal insufficiency and I like so many others (at least on the Facebook group I'm in for it) have found that one manufacturer just works better with each of our particular bodies than other manufacturers. The difference between the different manufacturers formulations of the same generic medication (typical drug used in treating baseline needs is hydrocortisone) is that one manufacturer version might not work at all, another will work but need a higher amount of MGs while another manufacturer works so well with the body that the person actually requires less MGs to get in the same normal limits for cortisol replacement.
However, there is a medical condition (Mast Cell Activation Syndrome) in which an individual can react badly to the most random triggers, especially medications and they also typically end up being manufacturer and formulation specific (tablets vs liquid) all due to filler or more commonly dye differences.
I would love to stop having to have so many jabs.
Is that available in Australia?
Well there's the answer to that...
@@bossdog1480 😑 I know, it would be nice to have this option available internationally
I am new to Afrezza and I am on the OmniPod 5. How do you use this product with a pump? I'm nervous to use it!!
You’ll need your doctor to advise you on that. Mixing rapid-acting injected insulin (what’s in your pump) with inhaled insulin can be done but you have to be careful not to overdose
Iam debatic 2, age 42, iam sleeping apnea using cap machine for sleeping can a use this product to reduce blood sugar. Pls tell.
That I don’t know. Try reaching out to the manufacturer through the Afrezza website they should be able to give you an answer
So what insurance will pay for this? And what is the inhaler called to use the inhaled insulin? My insurance won't pay for any of this and I'm tired of shots all the time
I have Blue Shield of California and they cover it. But you could try giving the company a call and ask (the manufacturer is called MannKind, but just go to afrezza.com). The inhaler doesn't have a name and comes in the box with the insulin
@@DiabetesStrong thanks
Hi Good day!, would you mind telling us which pharmacy your getting your afreeza?, ive tried every major pharmacy around but everyone says they dont carry it. Would really appreciate it thank you!
Oh really? I just got it at CVS
@@DiabetesStrong hi thanks for the reply, we live in southern california. So not sure why. One Walgreens did say they are backordered so they can't order. Did you just get your refill recently? I've tried calling cvs-walgreens-walmart-riteaid. And they all said they don't have it. So frustrating
@@Over-jv3zg I haven't refilled in 2022 so it might be a recent issue. That's frustrating
Eagle Pharmacy or contact Afrezza Assist for assistance.
@@DiabetesStrong hi I just found this video, I love your channel I’ve been watching for a month since my 6 yo was diagnosed type 1. Is there a reason you don’t use the inhaler anymore? I want to see if this is an option at her next endo appointment
Can teens use it ? Im 15
It’s only approved for age 18 and up
Currently (June 2022) the inhale-1 Phase 3 trail is being conducted to clear the way for approval for minors. Expected available to 17 & younger by early '24.
Is this insulin available in Bangladesh? Can 12-year-old children of type-1 diabetes eligible to use inhaled insulin?
I don’t believe it’s available in Bangladesh 😐 In the U.S it’s not approved for anyone younger than 18
What's in it other than insulin?
I found this on the Afrezza website:”Active ingredient: human insulin Inactive ingredients: fumaryl diketopiperazine, polysorbate 80”
Is this needs prescription from the doctor before buy it ?
Yes, Afrezza is a prescription drug
Plase pueden dar el testimonio en espanol.
I'm sorry, I don't speak spanish
GOD BLESS YOU DEAR, 😆
Thank you
This is available in india
Not that I'm aware of
Currently (June 2022) Cipla is partnering and conducting a Phase 3 trial (effectively the last step before approval) in India in order to eventually get adult approval there. Coming soon to you.
Is this harmful for lungs health?
People who smoke, have asthma or other lung conditions should not use this product. You can read the whole list on the Afrezza website
@@DiabetesStrong , they sounds scary.
Afrezza has been available/used for over a half a decade and no reports of any serious events reported.
Well, first, she fails to mention that starting afrezza REQUIRES satisfactory completion of pulmonary function testing -- something the insurance WON'T cover unless there is clear indication that afrezza is medically necessary. She also FAILS to mention that practically EVERY insurer REQUIRES "prior authorization" BEFORE they will reimburse afrezza. In EVERY case, there are SEVERAL hurdles, the most prominent of which being that you MUST have FAILED to control your diabetes using injectable insulins. Since afrezza requires about TWICE as much insulin as injectable, without prior authorization, you're looking at $500-1.500 a month for afrezza versus as low as $35 a month for injectable.
Not quite correct. Some might have to go through all of those hurdles but not everyone. And I certainly never have had to show that I “failed” on injectables. As I mention in the video I use both Afrezza and Humalog. And for me, using the copay card, this is the cheapest of my insulin. But it sounds like you’ve had a bad experience. And it’s always good to get more perspectives out there
@@DiabetesStrong You "never have had to show," but have you ever been reimbursed by your insurer for afrezza? If so, which company?
@@fragslap5229yes, all of my insulin is covered by my insurance. That includes my Levemir, Humalog as well as Afrezza. And when I add the co-pay card the Afrezza is only $15 (which is much cheaper than any of my regular insulin). I buy my insurance through the marketplace and this year went with Blue Shield of California. But I do believe a few plans still don't cover Afrezza or any of the newer insulin. And finally, as I say in the video, Afrezza is not for everyone, and it's not my main insulin. But for some, it's a good option
@@DiabetesStrong Formulary of Blue Shield of California -- www.blueshieldca.com/bsca/bsc/public/broker/PortalComponents/StreamDocumentServlet?fileName=Plus%20drug%20formulary%20DMHC%20Jan%202020.pdf&msi=true -- shows afrezza requires prior authorization AND has a quantity limit of one box per month. Their prior authorization -- www.blueshieldca.com/bsca/bsc/public/common/PortalComponents/provider/StreamDocumentServlet?fileName=PRV_Afrezza_COMMext.pdf -- "Intolerable side effect or contraindication to injectable rapid-acting insulin that is not also expected with the use of inhaled rapid-acting insulin Afrezza, and
• Provider attests patient does NOT have chronic lung disease." Don't satisfy those and they DON'T reimburse.
@@fragslap5229OK, that was not the case for me. Not sure what to tell you, the box I'm showing in the video was picked up using my insurance plus the copay card, and I"ve been doing it for a few years now.
Not sure why you would want to use this when you can use a insulin pump.
Insulin pumps aren’t for everyone, and it was not the right choice for me. I did a full video about it: ua-cam.com/video/3dFRDTi4FvE/v-deo.html
Afrezza is quite a unique way to manage blood sugars because it works so fast. I even know some people who combine it with using an insulin pump
Pumps can fail. Afrezza is perfect for correcting highs due to speed. Afrezza is the best medical treatment as it is human insulin.
Can I snort this through my nose?
NO, needs to be inhaled directly into the lungs