More needs to be done about this disease as its painful, debilitating et al. Its often minimalist and seen as trivial. We need more research and a cure not just a sticking plaster.
I’ve been suffering from this condition for over 20 years now, and the only medication offered in all that time has been Betaderm steroid cream. There has not been any advance in the treatment of this very painful condition.
I wish more people would talk about Vulvodynia. I have had this for around 7 years and it took 5 years to diagnose this terrible condition. The burning can drive me nuts and a flare up can last over a week with the burning pain reaching a 9 or 10. More women need to know about this condition.
I've had lichen sclerosus for 7 years and it's AWFUL! Beyond awful. Fissures, ulcers, painful as hell. Takes a month or more for them to heal. Don't know how much I can take. :(
I did not know I had this until I was diagnosed at my last exam. My OB said I had white patches. I had no known symptoms, so if I hadn’t had a routine visit, I would not have known I had it. She prescribed ointment a couple months ago. I checked with a mirror and it still looks the same to me. I see her a again next month. I recently started taking probiotics for gut issues, and I am hoping they help. I also have other autoimmune disorders and hypothyroidism. Never heard of LS until I was diagnosed.
Thank you! Using a bidet is very helpful! I am 70 years old. I had uterine cancer and hysterectomy 18 years ago. Never had any follow up issues. 2 years ago my vulva started itching horrifically. It was not unusual for me to get up in the middle of the night to take a very hot localized shower. This helped a lot. I also use adult rash cream which also helped. Buying a $50. bidet ( from Target) and installing it myself was a game changer. It has reduced the itching considerably though it's not gone completely. It keeps my vulva clean and dry through and the day and night.
Yes, I have a bidet as well, and I think it has helped to keep my symptoms under control too. I also use Sudo Cream (a zinc-based cream used primarily for diaper rash). This cream doesn’t sting and keeps the area pain and itch free. It is readily available at any drug store.
olive oil really helped me with the itching and dryness and the white patches are almost gone! I also keep a tube of vaginal cortizone 10 which works perfect for the itch as well get that on amazon for a little of 4 dollars
Thank you lulu. I think I may be having a flare-up that involves my scalp. It was helpful to read your commentary. I've never had it on the scalp before, but I have been eating horribly as of late. Many thanks
I just got diagnosed with this yesterday, after having near constant 'infections' since early December of '22. At first I thought they were yeast infections but when 3 rounds of Monistat did absolutely nothing, I made an appointment. Came up positive for BV and strep B, got some metrogel and felt better for about a month. I thought it was finally over, but then whatever it was came back again. I meant to go back to the doc but life happened, my husband had some family issues, my kid started school, and I got too busy so I just started using boric acid capsules every time it flared back up. It kind of helped, I guess? The symptoms would seem to calm down for a week or so when I used the boric acid. Anyway, this went on for about 8 months until I finally went back to the doc yesterday. My swabs came up clean to my surprise, I was expecting to hear I had resistant strep B or something but after the doc took a good hard look down there he arrived at LS. I'd never heard of it before, but it explains everything and makes perfect sense cause this all started after my immune system got torpedoed by covid last thanksgiving. This sucks :(
Have had this for many years. Doctors did not pick up on it , several years of me stating pain,tearing and itch . Even gynaecologist did not pick up on it. Eventually dermatologist did. It is a nightmare with constant flare ups. Feels abnormal down there now. I have had underactive thyroid for 40 years so believe there is a link.
@@isadorafreespirit I am finding my extra virgin olive oil slathered on helps me just now . Certainly easing the dryness and hopefully will keep things more supple so less tearing. ❤️
@@isadorafreespiritI’m in the UK and have been prescribed Epimax ointment for washing and Dermovate (a steroid cream) for the itching. I have it mostly under control now, using the cream only once a week.
I have hypothyroidism and pernicious anaemia. It also started after I took up cycling in retirement. I ended up diagnosing myself so the doctor sent me to a dermatologist to get it confirmed.
I was diagnosed a couple of years ago. INteresting stuff on here about it being autoimmune - I also have alopecia and rosacea. I've found Estradiol pessaries twice a week and occasional clob keeps it under control. I also NEVER allow shower gel or soap near my bits - my GP recommended Dermol 500 for the shower which works well.
Dear Dr Arnold. Thank you for this amazing presentation. I am attending a lecture on this topic tomorrow and I wanted to be more informed on the matter. Now I feel I am prepared to learn more about this topic. You are a star!
Im very disappointed as this video is not informative of what causes actual flare ups (just what may cause LS) and there is no mention of how to treat it at all??
Thank you, very helpful. Going to meet a Gyny Dr next week, quite anxious about it. Having a very painful flair up at the moment. Happens around stressful periods and when I'm tired.
The weather can also make a significant difference. Just get all the help you need. I had annual appointments before Covid which was reassuring all is ok or I could request to see the consultant if I noticed any changes or flare up problems. I get nothing now. Sickening.
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
I saw one forum online that said you should go to an alternative medicine doctor to help you seek out the root cause. The girl who said this said she had something called a yeast overgrowth and when she started taking Lactobacillus acidophilus her symptoms went away. If you are someone who has repeatedly had yeast infections throughout your life this may help. I encourage everyone to go the natural route. I use shea butter and then vitamin e oil all over my private parts (like cover/saturate your private parts w it) & my skin is soft and looks normal. It's still thinning though so the skin is very delicate and sensitive. So I have a way to treat the symptoms now I need to get to the root cause. In the forum she mentions how theres some sort of deficiency or infection that leads to LS & can be different from everyone. I saw a person in the comments say they take vitamin d3 & b12 and they have no more symptoms, I tried that and it made my symptoms worse. But I have had yeast infections throughout my life so I'm going go try the Lactobacillus acidophilus and update whenever I get it. I encourage yall to 1. Read LS forums 2. Go to a doctor and get a blood test to figure out what your deficiencies are if you have any & start taking supplements to improve this 3. Go to an alternative medicine dr near you and see what insight they can provide 4. PUT DOWN THE STEROID CREAM. NOW! USE SHEA BUTTER AND VITAMIN E OIL!!!!
Coming to add an update bc I'm doing all the research and testing I can on myself since doctors can't offer anything of value. My skin is feeling normal, & not paper thin or sensitive to the touch. I suspect the ACV vinegar bath I took worked. So as I stated before an overgrowth of yeast in the body can be one root cause of LS. From what I've read there can be several different root causes depending on the person. I know I've had yeast infections in the past so I decided to try and treat it from this perspective and it seems to be working (I will keep updating bc I want us all to be rid of this horrible condition so I will spread as much info as possible). So I'm going to prescribe myself one ACV bath per week (I pour about half a bottle in my bath) because ACV is an anti-fungal and yeast is a fungus so they help reduce yeast overgrowth in your vaginal area. That may be enough for now but I do want to try the acidophilus tablets so I think I'll pick those up tmrw and start taking those as a daily supplement. And then continuing to apply a generous amount of shea butter and vitamin e oil to my vulva, clitoral hood and anal area. Not only does this application soothe the skin back to normal, it also makes your private parts more soft and better looking than before so it's a win win! I urge you guys to try it. I pray you all put down that useless steroid cream that will only make your symptoms worse and doesn't even cure the condition 🤦🏽♀️
@@xiomaraax3 the forum didn't mention a specific brand so I think you can do any but the one I'm going to get is by american health. My mom actually has always used that brand and I would sometimes steal a couple of hers cause they were strawberry flavored chewable tablets and tasted so good 😂
yes, holistic doctor is our best choice, doing our own research to resplve our bodies healing. I meditate daily and focus on healing, I was really disappointed to not be healing. but I do manage my symptoms with coco butter. I recently read that oregano essential oils with mint would help. so started bathing with it. been doing it about a month, not healing. Thank you for reminding me about apple cider vinegar I believe this may of what healed me the last time and I forgot, I use to also take the suppliment. but I am going to to add the acidophilus supplement. Thanknyou everyone for your i fomation and sharing what you have tried and what has worked. greatly appreciate you taking your time to share. (((HUGS))) It can really be discouraging to believe you are the only one trrying to heal your body over a disease you dont understand. but are aware it is a blockage within your body that is causing it.
I know exactly how you feel, visit Dr Isibor on his UA-cam channel I was able to beat LP with his natural herbal supplements and cleanser it worked perfectly well
Ladies it has been 2 months since I've had any symptoms from lichen sclerosis. Please try boric acid suppositories & lmk if it helps you too! I want to spread this to everyone. I feel like I found the cure! I inserted them with clean hands after a shower, right before bed. I slept with them inserted. I did this for 3/4 days. I don't remember exactly bc I wasnt using them for LS. I had a bacterial infection. But I suddenly had no more symptoms & I remembered reading a forum where women with lichen were saying boric acid baths helped them. I also saw another forum that said pH imbalances or yeast/bacteria dysregulation in the vagina could be the culprit behind lichen symptoms. So it makes sense!
I was in fact looking for and Missing Info as to what can be done when "classical" Treatment fails. Ive been and Off cortisone for a year now and as soon as I reduce or Stop using cortisone I flare Up again. unfortunately I have now reached a Point where my body Seems to react negatively to the cortisone. I notice Im flaring Up (with No Symptoms), I use Cortisone and Im in a nightmare. It Burns and itches. So cortisone is No longer an Option for me. id rather let the disease cause havoc (as Long as it Happens without causing me physical pain) than keeping what little is left but suffering for it. So unless I can find good alternatives to cortisone Im about to Just give Up and let the LS do its Work.
@@astridbauer8986 there are many different steroids and the ointment seems much better than the cream. It Can take many many months to get in remission and then use the steroids once or twice a week to stop symptoms recurring and help prevent cancer. There is no cure so we need to keep using steroids. What you use to wash with, as a barrier for urine and a moisturiser also helps.
@@vulvalcancerlichensclerosu5223 thanks for the input. I didn't know there were other steroids than the one I'm using right now (Dermovate in Austria). In light of how much worse it has gotten I've made an appointment with my dermatologist for this week anyway and I'll make sure to speak to him about it :-)
@@astridbauer8986 I am healing my gut, which contributes to autoimmune issues, and I eat low carb. This has helped a lot. Plus I stopped using the steroid cream. Instead, I use a mixture of organic Tamanu oil and Sovereign Silver fist aid gel. I use it after my shower every day and have not used the steroid cream for more than two years now.
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses.
Thank you so much, for the information you shared with us. I just found out I have LICHENSCLEROSUS it has been three days with drinking lots of water, and cutting off all gluten (flour) dairy and sugar I can see the difference.Less itching and discomfort in the day and night time . If you can share with us did you use theCream that doctorprescribes?I am very confused whether to use it or not I heard is cancerous. Thank you so much 😊
I don't think i have lichen sclerosus, but rather Classic lichen planus on the labia major (hair area) this flares up at the weirdest times. me and my partner have no sexual issues regarding this topic. Until recently. 3 years and 2 flare ups that last about 4 days maybe 7. This is the second flare up. After releasing my nectar during a hot session, it felt like it started to flare up. I showered and felt fine until the next morning. Thats when it really began to slowly start to itch. So I have to make sure to separate my lips with correct panties or else it will begin to affect the other side quickly. Creams don't do much other than keep it moist and I feel like spread it. i'm blessed I don't have any internal issues or pain or itch, just on the hair area on the labia major... wish this would go away. what i'm trying now: Aloe vera *from the actual plant* Sangre de drago *blood of the tree* also good for the gut. chamomile tea*
I was diagonised in 2018. Went for a surgery, and have continuously been using clob cream. It has made no difference. It has re-occured. Need to know is it cancerous
Hi Meera. So sorry you have been having difficulty managing your LS. May I ask if you soak before applying your steroid, and do you rub it in for 60-90 seconds? This has made a tremendous difference for myself and many women in managing our disease. I interviewed Dr. Jill Krapf, who detailed the science behind properly applying our steroids. ua-cam.com/video/eCC8swZqAac/v-deo.html I hope this helps!
@@meerapatel8007 I encourage you to listen to that interview and try soaking and rubbing. Hope it helps you. Stress is another important factor. Reducing it is super important.
@@meerapatel8007 Unfortunately this is not uncommon. Some ladies take birth control to skip every other period. Others increase their steroid when they get close to their period. I hope you find something that helps. 🥰🤗
So upset, just got diagnosed. I don’t like when they say the labia has thinned. It didn’t thin it disappeared. It’s gone, if it had thinned it might still be visible. It’s not thin it’s gone. I am 45 I still get my period. I lost one side of my labia minora it happened fast, maybe two months
I was also diagnosed at 21 y/o and Chron's at 30 y/o, I'm currently 36 y/o and am worried because it is getting worse :( I've done laser treatments and it's still hasn't improved..
Can i ask, did you develop this condition after switching to a vegan diet. Ive been vegan for 5 years now and have since been diagnosed with an autoimmune disease as well.
@@keithyoung7381 I've been Vegan for 11 yrs and not eaten meat majority of my life. I have a underactive thyroid and I definitely don't put it down to Veganism at all.
@@Bobsbud100 At least try low carb , eat meat, cut out processed food and vegetable oils It sounds like you are blindly attached to being a vegan. You might just get better. 3 months because it took you all your life to build up the toxins and depleat your body of the many necessary vitamins and minerals that vegans don’t get. Instead of getting all in a knot, take your health into your own hands. Or you could keep your head in the sand, take the drugs the doctor prescribes . Read up on functional medicine.
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses.
Hello and thank you. After 10 years and several doctors finally one Dr. today gave me this diagnosis. I will start a steroid cream. I thought I was a hypochondriac for several years😏 This all makes sense now.
It's like I am down in a well or a barrel and you are looking down at me and kindly explaining things- just a little feedback for you. Thank you for the info tho
I have just been diagnosed with LS by a gynaecologist (via biopsy) after an initial misdiagnosis by my GP who thought I had Vulvovaginal Atrophy. I also have Hypothyroidism and Vitiligo. The Vitiligo is all over my body as well as my vulva, perineum, and anus, so I assume this confused the situation for the GP. I just started using the steroid cream and hopefully relief will be forthcoming soon😪
Ja, das ist richtig! Gluten ist der Hauptauslöser. Es gibt aber noch andere Nahrungsmittel, die die Erkrankung weiterhin befeuern können, selbst, wenn man das Gluten konsequent weglässt.
Hello wanted to know if Tacrolimus ointment goot for LS. Just 3 day ago I found out the I have LS. Ill be going to a dermotogist in 2 weeks for the mean time I want to know if Tacrolimus ointment 0.1% is good for it?
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
I've done almost every treatment from my gyno, tacrolimus works for a limited time, then you have to switch back to clobetesol according to my doctor because tacrolimus can cause other issues in the long run
@@carol6445 hello search dr iyaremoses on UA-cam channel for permanent cure with his herbs medication am a living testimony it works perfectly with no side effects
Thank you. After almost 15 yrs sufferingvwith condition, I am in my mid seventies and quite active. L.S.it flares out and bleeds every so often. I know lack of iodine is a problem for the Thyroid to work well. Considering that, coyld it be logical to try and increase seriously the combustión of food high in iodine? If so, which atural food stuff would help? Thank you.
Durring recent flare-up, and absense of steroid cream, Burt's Bees' Hand Salve provided complete relief from itching and pain. Alrhough gynecologist instructed to use only water in region, Burt's Bees' Gentle Face Cleaner with aloe provided increased comfort and relief.
I am 71 and have just been diagnosed! The itch and pain is terrible! I am diabetic. The dr. Gave me Taro Clobetasol ! Also a burning feeling ,the labia feels wrinkled !
use olive oil saturated it with olive oil it will help with the itching and will eventually make it go away down there at least it did for me it took awhile but it stop the itching right away took months for my vagina to go back to normal. But Olive oil works!
Hello and thank u very much for the information. I have this problem and I am 30 years lady and also not married yet.Now, I am under the treatment. Can it affect my future pregnancy
If you manage your LS and continue your treatment, it should not affect your LS. I have several ladies in my group who are pregnant or have given birth with no effect from their LS. Without treatment, you run the risk of the vaginal opening scarring and not being able to have a vaginal birth.
@@LichenSclerosusPodcast I do treatment but now have vaginal opening scarring. Not sure how to use creams down there (Vaginal opening) as I feel this will lead to yeast infections. This disorder/disease is extremely defeating.
If it would become really bad in the future you can always deliver your child via C-section. Not nice but it might be a solution if your opening turns out t be too much damaged.
@@LichenSclerosusPodcast I have 8 years with this condition, nobody can help. I’m not using creams, not is getting worse very bad. Please anything can help, any recommendations will be very appreciated. 😢
I have EHK and last Nov I had a "patch" or coin shaped lesion show up on my thigh. It was flat, smooth and red (with EHK my body temp is always fairly high so the red is no surprise) but it's also very itchy. I am now at a point where it has spread all over my body including my scalp. These red areas, some have now turned either a light pink to white depending on where it's at. I also suspect possible Morphea. Is it possible I had LS in the vaginal area for years without knowing it (I tend to think anything unusual has to do with the EHK), and then years later have it start appearing on my body? I know it's not ringworms (I've been tested), and when a biopsy was done they were looking for eczema and all it showed was the EHK. So a second question is I use an exfoliating mitt to scrub off the dead skin. I tend to scrub fairly hard. Is it possible this could be what triggered this to start appearing on my body and spreading? If, of course it's either Morphea or LS? I am currently waiting to get in to see a Rheumatologist and hopefully get a Dx.
multiple places say this isn't caused by balanitis or transmitted but i promise i'm telling the complete truth and feel like i'm going to suffer for the rest of my life for my mistake. i hadn't had intercourse with anyone in around 9 years and mistakenly did in february. I was completely fine prior, my skin was like a child's and was without blemish apart from stretch marks. After the intercourse the very next day i had breakouts of spots everywhere and moles and freckles have infested my whole torso. my glans were tingly (still now), My body hair growth has gone off the scale and i now sweat when doing anything physical at around 3 times my normal rate, cuts what used to take 2/3 days to heal now don't at all. The same with spots, which is extremely depressing on the face. I had to have a day off work 4 days after as i couldn't stop sweating, i noticed that my glans downstairs had large hive like spots on them that looked like pictures of balanitis, so i self medicated with a hydrocortisone cream. Other than this i just worked all the while and tried to forget about it all. In May i thought it'd be for the best to get tested. I had all tests and my urine signaled to them that i had chlamydia or syphillis. I was given a weeks worth of d0xycycline, took them straight away and a week later said i was all clear (so angry). A month later my urine was like boiling kettle water and started to have white discharge instead of potentially any smegma. My dr is a romanian lady speaks to fast and feels like i can't talk with her at all. I was fully focused on the burning urine, nothing else. No examination just more antibiotics. The burning went but the smell since of my urine i wouldn't wish upon my enemy.
Apart from the smell that july at the drs to december 4th had been ok, i've lived my life. Few weeks leading up to it though i noticed it harder and harder to pass urine, leading to a stinging afterwards and it hard to retract my 4skin (i'm praying they don't ban petty words). Bumps appear on the glans to and i think there's a chance it could be allergy to the soap i use on this skin condition. This month has been the worst of my life, and i've lost a father. The pain, the constant tingling in my glans, the smell and the constant worry of going to the bathroom has completely bought me to my knees. I showed the clinic the moles and they shrugged them off originally so i keep that quiet as well as most other things. Because it's that hard to see my gp and feels as though she might not do much i demanded to go back to the clinic. The balanitis rash has returned and wanted an opinion from someone who essentially looks at those parts for a living. The skin under my genitals has completely changed to that of lichen sclerosis and the lady agreed. She gave me hydrocortisone and emollient cream. The emollient cream has softened the skin but have had the worst allergic reaction yet. Obviously stopping using it and going to start 2 weeks of the hydrocortisone tomorrow. I can't talk to anyone about this and genuinely feels as though i'm destined to suffer for my stupidness. I will have to go see my gp no doubt but I genuinely fear that if this keeps coming back every few months and worse i won't be able to take it much longer. It's destroying me. I would pay anything to go back a year. To anyone who's read i can't thankyou enough and i wish you all the best.
Hi, same problem I have, I m also getting cracks when I'm with my husband, and itching, white discharge, im just 35yrs, from last 2yrs no Intercourse, plz give me a suggestion
Thanks for the Internet I self diagnosed the condition after 3 years of Thrush treatment from my GP. So my GP recently withdrew my dermovate because I’m a long term user so I have to request it when required🤷♀️😳 it’s not as though I’m using it in a large area of my body😮
I found that very helpful, but I really suffer from flair ups I have been to the docs and hospital have cream and gel, but would like to control the odd flare up but thank you
Every time I get out of the shower now I moisturize the area with raw shea butter and then a layer of vitamin e oil and it really does work! It feels like I have a normal vagina again 😂
I saw another comment about taking supplements to get rid of flare ups so I'm going to purchase those today and see how the moisturizing plus the vitamins work for me
I'm facing this disease for one year, no doctor told me the name of this disease but one doctor prescribed me DEPO moderol 80mg steroids injection. I got 9 injection that ended the disease temporarily but I face weight gain and stretch marks on my body in the age of 29 and it again started itching on my hands and feet, any permanent solution for it?
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
Same. I try to pull the pad away from my vagina when I sit but sometimes it's unavoidable. I feel like the pads contributed to this, but I can't stop using them at least right now.
@@Lulu2u LS can be diagnosed visually. Id NEVER get another one. Area was NOT numbed and it hurt for days. But when they take that tool and corkscrew it into your delicate skin it hurts like hell.
It messes with your intimate life. I had to look into alternative treatments and I found an antiinflammatory tincture that cured mine or put me in "a very good remission" as my docs like to say
At the mercy of USA medics here and it changed my life to a disability. The pain & itching goes back & forth (from one Orphus to the other) Could this be FUNGAL ?
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
I know how I feel dealing with Lichen Sclerosus - I can't imagine having to try to deal with Lichen Planus on top of that. I feel like crying for women who have to deal with both conditions. I don't believe that anyone who does not have these conditions understand just how painful this is. It's horrible
@@saima119 hello friend am a living testimony to dr iyaremoses herbal medicine on UA-cam channel his natural herbs supplement works perfectly with no side effects.....
I have no idea if I have it, but all the areas I’ve searched, I think I have this. Going to my doctor this Monday. It’s super fucken annoying, starting to think about how I can’t even live my normal life from a few weeks back and it makes me so fucken sad 😞 I hope it clears up for you and that it improves significantly for you ♥️
@@adrir.h.7418 hey dear am a living testimony to Dr iyaremoses on UA-cam channel he cured me permanently reach out to him he tell you more about his medication and how to order
i went clinic, told i had chlamydia or syphillis put on antibiotics told 7 days later i have nothing. Then had to go drs for uti got treated. Then went back to clinic, told i have this.
Oh no! My doctor thought it was something psychological ... Although I 3 times told her that I did not have bad se..ual experiences and that my marriage and s..life is great. Yesterday I got the diagnosis LS ... So it is a real auto-immune disease and not something I imagine ....
More needs to be done about this disease as its painful, debilitating et al. Its often minimalist and seen as trivial. We need more research and a cure not just a sticking plaster.
I agree with this. There is NOT enough being done to research this, and it's being swept under the rug.
I’ve been suffering from this condition for over 20 years now, and the only medication offered in all that time has been Betaderm steroid cream. There has not been any advance in the treatment of this very painful condition.
@@kmk2451 are you male or female?
@@dalebaker5030 female
its likley caused by candida overgrowth ----- leaky gut. these can be remedied !
I wish more people would talk about Vulvodynia. I have had this for around 7 years and it took 5 years to diagnose this terrible condition. The burning can drive me nuts and a flare up can last over a week with the burning pain reaching a 9 or 10. More women need to know about this condition.
I've had lichen sclerosus for 7 years and it's AWFUL! Beyond awful. Fissures, ulcers, painful as hell. Takes a month or more for them to heal. Don't know how much I can take. :(
Stop gluten today!!!!!!
Painful beyond!! USA does very little to acknowledge or help. As now its spreading could this be fungal?
Did you feel sexaul arousal too ?
How are you doing now Josie?
I did not know I had this until I was diagnosed at my last exam. My OB said I had white patches. I had no known symptoms, so if I hadn’t had a routine visit, I would not have known I had it. She prescribed ointment a couple months ago. I checked with a mirror and it still looks the same to me. I see her a again next month. I recently started taking probiotics for gut issues, and I am hoping they help. I also have other autoimmune disorders and hypothyroidism. Never heard of LS until I was diagnosed.
Thank you! Using a bidet is very helpful! I am 70 years old. I had uterine cancer and hysterectomy 18 years ago. Never had any follow up issues. 2 years ago my vulva started itching horrifically. It was not unusual for me to get up in the middle of the night to take a very hot localized shower. This helped a lot. I also use adult rash cream which also helped. Buying a $50. bidet ( from Target) and installing it myself was a game changer. It has reduced the itching considerably though it's not gone completely. It keeps my vulva clean and dry through and the day and night.
Did you try PRP treatment?
Yes, I have a bidet as well, and I think it has helped to keep my symptoms under control too. I also use Sudo Cream (a zinc-based cream used primarily for diaper rash). This cream doesn’t sting and keeps the area pain and itch free. It is readily available at any drug store.
olive oil really helped me with the itching and dryness and the white patches are almost gone! I also keep a tube of vaginal cortizone 10 which works perfect for the itch as well get that on amazon for a little of 4 dollars
Bidet for the win, that’s how I discovered I had it. The high stream split right thru one of my patches. I keep it on low now.
@@lisah1692I ‘ve heard coconut oil is great too 😊
Oh thank you for taking the time to make this video
Thank you lulu. I think I may be having a flare-up that involves my scalp. It was helpful to read your commentary. I've never had it on the scalp before, but I have been eating horribly as of late. Many thanks
I just got diagnosed with this yesterday, after having near constant 'infections' since early December of '22. At first I thought they were yeast infections but when 3 rounds of Monistat did absolutely nothing, I made an appointment. Came up positive for BV and strep B, got some metrogel and felt better for about a month. I thought it was finally over, but then whatever it was came back again. I meant to go back to the doc but life happened, my husband had some family issues, my kid started school, and I got too busy so I just started using boric acid capsules every time it flared back up. It kind of helped, I guess? The symptoms would seem to calm down for a week or so when I used the boric acid. Anyway, this went on for about 8 months until I finally went back to the doc yesterday. My swabs came up clean to my surprise, I was expecting to hear I had resistant strep B or something but after the doc took a good hard look down there he arrived at LS. I'd never heard of it before, but it explains everything and makes perfect sense cause this all started after my immune system got torpedoed by covid last thanksgiving.
This sucks :(
Have had this for many years. Doctors did not pick up on it , several years of me stating pain,tearing and itch . Even gynaecologist did not pick up on it. Eventually dermatologist did. It is a nightmare with constant flare ups. Feels abnormal down there now. I have had underactive thyroid for 40 years so believe there is a link.
Do you use specific cream
I cannot wash rhe area somwtimes even plain water irritates my skin
@@isadorafreespirit I am finding my extra virgin olive oil slathered on helps me just now . Certainly easing the dryness and hopefully will keep things more supple so less tearing. ❤️
@@isadorafreespiritI’m in the UK and have been prescribed Epimax ointment for washing and Dermovate (a steroid cream) for the itching. I have it mostly under control now, using the cream only once a week.
I have hypothyroidism and pernicious anaemia. It also started after I took up cycling in retirement. I ended up diagnosing myself so the doctor sent me to a dermatologist to get it confirmed.
I was diagnosed a couple of years ago. INteresting stuff on here about it being autoimmune - I also have alopecia and rosacea. I've found Estradiol pessaries twice a week and occasional clob keeps it under control. I also NEVER allow shower gel or soap near my bits - my GP recommended Dermol 500 for the shower which works well.
Dear Dr Arnold. Thank you for this amazing presentation. I am attending a lecture on this topic tomorrow and I wanted to be more informed on the matter. Now I feel I am prepared to learn more about this topic. You are a star!
This was very informative, thank you Dr x
Thank you Doctor, this has been very helpful.
Im very disappointed as this video is not informative of what causes actual flare ups (just what may cause LS) and there is no mention of how to treat it at all??
So true…
Thank you, very helpful. Going to meet a Gyny Dr next week, quite anxious about it. Having a very painful flair up at the moment. Happens around stressful periods and when I'm tired.
The weather can also make a significant difference. Just get all the help you need. I had annual appointments before Covid which was reassuring all is ok or I could request to see the consultant if I noticed any changes or flare up problems. I get nothing now. Sickening.
The title said, what causes flare up and how it's treated....that wasn't in video??
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
Telling us what to avoid is relative to flare up causes and that it is autoimmune and no known cause is really it as its core.
Dear Dr. Arnold. Thank you for this informative clip. What do you think of Lasertherapy? Are there any numbers on improvement with patients?
I had mona lisa done..it helped sooo much !!
Thank you for the info , I have it and it’s painful
I saw one forum online that said you should go to an alternative medicine doctor to help you seek out the root cause. The girl who said this said she had something called a yeast overgrowth and when she started taking Lactobacillus acidophilus her symptoms went away. If you are someone who has repeatedly had yeast infections throughout your life this may help. I encourage everyone to go the natural route. I use shea butter and then vitamin e oil all over my private parts (like cover/saturate your private parts w it) & my skin is soft and looks normal. It's still thinning though so the skin is very delicate and sensitive. So I have a way to treat the symptoms now I need to get to the root cause. In the forum she mentions how theres some sort of deficiency or infection that leads to LS & can be different from everyone. I saw a person in the comments say they take vitamin d3 & b12 and they have no more symptoms, I tried that and it made my symptoms worse. But I have had yeast infections throughout my life so I'm going go try the Lactobacillus acidophilus and update whenever I get it. I encourage yall to 1. Read LS forums 2. Go to a doctor and get a blood test to figure out what your deficiencies are if you have any & start taking supplements to improve this 3. Go to an alternative medicine dr near you and see what insight they can provide 4. PUT DOWN THE STEROID CREAM. NOW! USE SHEA BUTTER AND VITAMIN E OIL!!!!
Coming to add an update bc I'm doing all the research and testing I can on myself since doctors can't offer anything of value. My skin is feeling normal, & not paper thin or sensitive to the touch. I suspect the ACV vinegar bath I took worked. So as I stated before an overgrowth of yeast in the body can be one root cause of LS. From what I've read there can be several different root causes depending on the person. I know I've had yeast infections in the past so I decided to try and treat it from this perspective and it seems to be working (I will keep updating bc I want us all to be rid of this horrible condition so I will spread as much info as possible). So I'm going to prescribe myself one ACV bath per week (I pour about half a bottle in my bath) because ACV is an anti-fungal and yeast is a fungus so they help reduce yeast overgrowth in your vaginal area. That may be enough for now but I do want to try the acidophilus tablets so I think I'll pick those up tmrw and start taking those as a daily supplement. And then continuing to apply a generous amount of shea butter and vitamin e oil to my vulva, clitoral hood and anal area. Not only does this application soothe the skin back to normal, it also makes your private parts more soft and better looking than before so it's a win win! I urge you guys to try it. I pray you all put down that useless steroid cream that will only make your symptoms worse and doesn't even cure the condition 🤦🏽♀️
@@Lulu2u any specific brand for the lactobacillus acidophilus?
@@xiomaraax3 the forum didn't mention a specific brand so I think you can do any but the one I'm going to get is by american health. My mom actually has always used that brand and I would sometimes steal a couple of hers cause they were strawberry flavored chewable tablets and tasted so good 😂
I am using olive oil and garlic mixed together at bed time and during the day I use coco butter.
yes, holistic doctor is our best choice, doing our own research to resplve our bodies healing. I meditate daily and focus on healing, I was really disappointed to not be healing. but I do manage my symptoms with coco butter.
I recently read that oregano essential oils with mint would help. so started bathing with it. been doing it about a month, not healing. Thank you for reminding me about apple cider vinegar I believe this may of what healed me the last time and I forgot, I use to also take the suppliment. but I am going to to add the acidophilus supplement.
Thanknyou everyone for your i fomation and sharing what you have tried and what has worked. greatly appreciate you taking your time to share. (((HUGS)))
It can really be discouraging to believe you are the only one trrying to heal your body over a disease you dont understand. but are aware it is a blockage within your body that is causing it.
Hello...is there a video on what treatments are recomended for people with one or both vulvar lichens and what to expect?
I know exactly how you feel, visit Dr Isibor on his UA-cam channel I was able to beat LP with his natural herbal supplements and cleanser it worked perfectly well
Ladies it has been 2 months since I've had any symptoms from lichen sclerosis. Please try boric acid suppositories & lmk if it helps you too! I want to spread this to everyone. I feel like I found the cure! I inserted them with clean hands after a shower, right before bed. I slept with them inserted. I did this for 3/4 days. I don't remember exactly bc I wasnt using them for LS. I had a bacterial infection. But I suddenly had no more symptoms & I remembered reading a forum where women with lichen were saying boric acid baths helped them. I also saw another forum that said pH imbalances or yeast/bacteria dysregulation in the vagina could be the culprit behind lichen symptoms. So it makes sense!
Ive just been diagnosed with this - please can I get some advice x
Where the heck do you get these?
@@samanthathompson9812 target
Thank you, I’ll try.
Lulu can I connect with you in regards to the boric acid. I've been suffering for 3 months now
Is there a part 2? No mention of flare ups and treatment
I was in fact looking for and Missing Info as to what can be done when "classical" Treatment fails. Ive been and Off cortisone for a year now and as soon as I reduce or Stop using cortisone I flare Up again. unfortunately I have now reached a Point where my body Seems to react negatively to the cortisone. I notice Im flaring Up (with No Symptoms), I use Cortisone and Im in a nightmare. It Burns and itches. So cortisone is No longer an Option for me. id rather let the disease cause havoc (as Long as it Happens without causing me physical pain) than keeping what little is left but suffering for it. So unless I can find good alternatives to cortisone Im about to Just give Up and let the LS do its Work.
@@astridbauer8986 there are many different steroids and the ointment seems much better than the cream. It Can take many many months to get in remission and then use the steroids once or twice a week to stop symptoms recurring and help prevent cancer. There is no cure so we need to keep using steroids.
What you use to wash with, as a barrier for urine and a moisturiser also helps.
@@vulvalcancerlichensclerosu5223 thanks for the input. I didn't know there were other steroids than the one I'm using right now (Dermovate in Austria). In light of how much worse it has gotten I've made an appointment with my dermatologist for this week anyway and I'll make sure to speak to him about it :-)
@@astridbauer8986 I am healing my gut, which contributes to autoimmune issues, and I eat low carb. This has helped a lot. Plus I stopped using the steroid cream. Instead, I use a mixture of organic Tamanu oil and Sovereign Silver fist aid gel. I use it after my shower every day and have not used the steroid cream for more than two years now.
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses.
I absolutely hate this painful disease. I also have graves disease but the lichen sclerosus is soo awful. I can at least talk about my graves openly.
Join in face book group very helpful
This can ruin someone’s life for sure
Thank you so much, for the information you shared with us. I just found out I have LICHENSCLEROSUS it has been three days with drinking lots of water, and cutting off all gluten (flour) dairy and sugar I can see the difference.Less itching and discomfort in the day and night time . If you can share with us did you use theCream that doctorprescribes?I am very confused whether to use it or not I heard is cancerous. Thank you so much 😊
I don't think i have lichen sclerosus, but rather Classic lichen planus on the labia major (hair area) this flares up at the weirdest times. me and my partner have no sexual issues regarding this topic. Until recently. 3 years and 2 flare ups that last about 4 days maybe 7. This is the second flare up. After releasing my nectar during a hot session, it felt like it started to flare up. I showered and felt fine until the next morning. Thats when it really began to slowly start to itch. So I have to make sure to separate my lips with correct panties or else it will begin to affect the other side quickly. Creams don't do much other than keep it moist and I feel like spread it.
i'm blessed I don't have any internal issues or pain or itch, just on the hair area on the labia major... wish this would go away.
what i'm trying now:
Aloe vera *from the actual plant*
Sangre de drago *blood of the tree* also good for the gut.
chamomile tea*
Try coconut oil, helps with the itch and kills the fungus temporarily
I was diagonised in 2018. Went for a surgery, and have continuously been using clob cream. It has made no difference. It has re-occured. Need to know is it cancerous
Hi Meera. So sorry you have been having difficulty managing your LS. May I ask if you soak before applying your steroid, and do you rub it in for 60-90 seconds? This has made a tremendous difference for myself and many women in managing our disease.
I interviewed Dr. Jill Krapf, who detailed the science behind properly applying our steroids. ua-cam.com/video/eCC8swZqAac/v-deo.html I hope this helps!
@@LichenSclerosusPodcast I am only told to use clob on daily basis. And the white patch is spreading fast....
@@meerapatel8007 I encourage you to listen to that interview and try soaking and rubbing. Hope it helps you. Stress is another important factor. Reducing it is super important.
I also face a lot of difficulties with LS when I am in my periods as well
@@meerapatel8007 Unfortunately this is not uncommon. Some ladies take birth control to skip every other period. Others increase their steroid when they get close to their period. I hope you find something that helps. 🥰🤗
So upset, just got diagnosed. I don’t like when they say the labia has thinned. It didn’t thin it disappeared. It’s gone, if it had thinned it might still be visible. It’s not thin it’s gone. I am 45 I still get my period. I lost one side of my labia minora it happened fast, maybe two months
Join fB group very helpful
What causes itchiness in the front I also gets alot of white discharge I'm in my 40s
I was also diagnosed at 21 y/o and Chron's at 30 y/o, I'm currently 36 y/o and am worried because it is getting worse :( I've done laser treatments and it's still hasn't improved..
I am sorry to hear this. Also disappointed that the laser treatment didn't work. I was hopeful for that.
use 999 chinese cream and change washing detergant
Thank you doctor
I've got it and it's bloody awful. Just off to the consultant again now. Had parts of my vulva removed as vin 3.
as part of vin 3?
Can i ask, did you develop this condition after switching to a vegan diet. Ive been vegan for 5 years now and have since been diagnosed with an autoimmune disease as well.
@@keithyoung7381 I've been Vegan for 11 yrs and not eaten meat majority of my life. I have a underactive thyroid and I definitely don't put it down to Veganism at all.
@@Bobsbud100 At least try low carb , eat meat, cut out processed food and vegetable oils
It sounds like you are blindly attached to being a vegan. You might just get better.
3 months because it took you all your life to build up the toxins and depleat your body of the many
necessary vitamins and minerals that vegans don’t get. Instead of getting all in a knot, take your
health into your own hands. Or you could keep your head in the sand, take the drugs the doctor
prescribes . Read up on functional medicine.
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses.
Hello and thank you. After 10 years and several doctors finally one Dr. today gave me this diagnosis. I will start a steroid cream. I thought I was a hypochondriac for several years😏 This all makes sense now.
literally same, yay for us!
@@llacali09 Thank god for the doctors who really care
@@livelovelaugh631 did it work
Did it work.
Right, did the steroid work
It's like I am down in a well or a barrel and you are looking down at me and kindly explaining things- just a little feedback for you. Thank you for the info tho
I have just been diagnosed with LS by a gynaecologist (via biopsy) after an initial misdiagnosis by my GP who thought I had Vulvovaginal Atrophy. I also have Hypothyroidism and Vitiligo. The Vitiligo is all over my body as well as my vulva, perineum, and anus, so I assume this confused the situation for the GP. I just started using the steroid cream and hopefully relief will be forthcoming soon😪
do you feel any better now?
Emujoy from Amazon has been working for me . I also have been taking probiotics, which has made a big difference.
Hi. Is it a oil, cream or stick from Amazon? And how are things going 8 months later? I'm researching about this condition & trying everything I can.
I think i have Lichen Sclerosus , I'm diabetic, menopausal, I'll make an appointment with my NHS GP. Thank you
What country ?
Gluten causes the condition. When I quit gluten, it went away and never came back.
If its FUNGAL so does sugar! Anything with sugar, honey or sugar substitute affects me.
Ja, das ist richtig! Gluten ist der Hauptauslöser. Es gibt aber noch andere Nahrungsmittel, die die Erkrankung weiterhin befeuern können, selbst, wenn man das Gluten konsequent weglässt.
Hello wanted to know if Tacrolimus ointment goot for LS. Just 3 day ago I found out the I have LS. Ill be going to a dermotogist in 2 weeks for the mean time I want to know if Tacrolimus ointment 0.1% is good for it?
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
YESSS ITS A MIRACLE !! How are you doing ??
@@melliee1 Are you a patient too??
I've done almost every treatment from my gyno, tacrolimus works for a limited time, then you have to switch back to clobetesol according to my doctor because tacrolimus can cause other issues in the long run
@@carol6445 hello search dr iyaremoses on UA-cam channel for permanent cure with his herbs medication am a living testimony it works perfectly with no side effects
thank you!
Thank you. After almost 15 yrs sufferingvwith condition, I am in my mid seventies and quite active. L.S.it flares out and bleeds every so often. I know lack of iodine is a problem for the Thyroid to work well. Considering that, coyld it be logical to try and increase seriously the combustión of food high in iodine? If so, which atural food stuff would help? Thank you.
Durring recent flare-up, and absense of steroid cream, Burt's Bees' Hand Salve provided complete relief from itching and pain. Alrhough gynecologist instructed to use only water in region, Burt's Bees' Gentle Face Cleaner with aloe provided increased comfort and relief.
I am 71 and have just been diagnosed! The itch and pain is terrible! I am diabetic. The dr. Gave me Taro Clobetasol ! Also a burning feeling ,the labia feels wrinkled !
yes, itches like hell and I'm 36 y/o :(
use olive oil saturated it with olive oil it will help with the itching and will eventually make it go away down there at least it did for me it took awhile but it stop the itching right away took months for my vagina to go back to normal. But Olive oil works!
Clobetasol works ! I’m using Bactine currently only because the RX last time I checked was way too expensive
What kind of Doctor should I look for? ??? Thank you!
What country?
Hello and thank u very much for the information. I have this problem and I am 30 years lady and also not married yet.Now, I am under the treatment. Can it affect my future pregnancy
If you manage your LS and continue your treatment, it should not affect your LS. I have several ladies in my group who are pregnant or have given birth with no effect from their LS. Without treatment, you run the risk of the vaginal opening scarring and not being able to have a vaginal birth.
@@LichenSclerosusPodcast I do treatment but now have vaginal opening scarring. Not sure how to use creams down there (Vaginal opening) as I feel this will lead to yeast infections. This disorder/disease is extremely defeating.
If it would become really bad in the future you can always deliver your child via C-section. Not nice but it might be a solution if your opening turns out t be too much damaged.
@@LichenSclerosusPodcast I have 8 years with this condition, nobody can help. I’m not using creams, not is getting worse very bad. Please anything can help, any recommendations will be very appreciated. 😢
I had raised prolactin and I know others that had that too with Lichen Sclerosus. once i addressed this with supplements the LS went away
@Adam Craig so, there is. hope then , what supplements did u took. if u dont mind me asking u .Iam suffering thanks
@Adam Crag Thank you so much for reply and giving me hope I will try and hope mine to will be gone ..Thank you so much ..
@Adam Craig can i ask u ,though, who recomanded you this supplements ?
@adamcraig May I ask the name of the supplement and where did you get it please
Adam Craig what supplements was it ?
I have EHK and last Nov I had a "patch" or coin shaped lesion show up on my thigh. It was flat, smooth and red (with EHK my body temp is always fairly high so the red is no surprise) but it's also very itchy. I am now at a point where it has spread all over my body including my scalp. These red areas, some have now turned either a light pink to white depending on where it's at. I also suspect possible Morphea. Is it possible I had LS in the vaginal area for years without knowing it (I tend to think anything unusual has to do with the EHK), and then years later have it start appearing on my body?
I know it's not ringworms (I've been tested), and when a biopsy was done they were looking for eczema and all it showed was the EHK. So a second question is I use an exfoliating mitt to scrub off the dead skin. I tend to scrub fairly hard. Is it possible this could be what triggered this to start appearing on my body and spreading? If, of course it's either Morphea or LS?
I am currently waiting to get in to see a Rheumatologist and hopefully get a Dx.
Can I use Onabet B cream in the affected area ?
multiple places say this isn't caused by balanitis or transmitted but i promise i'm telling the complete truth and feel like i'm going to suffer for the rest of my life for my mistake.
i hadn't had intercourse with anyone in around 9 years and mistakenly did in february. I was completely fine prior, my skin was like a child's and was without blemish apart from stretch marks. After the intercourse the very next day i had breakouts of spots everywhere and moles and freckles have infested my whole torso. my glans were tingly (still now), My body hair growth has gone off the scale and i now sweat when doing anything physical at around 3 times my normal rate, cuts what used to take 2/3 days to heal now don't at all. The same with spots, which is extremely depressing on the face. I had to have a day off work 4 days after as i couldn't stop sweating, i noticed that my glans downstairs had large hive like spots on them that looked like pictures of balanitis, so i self medicated with a hydrocortisone cream.
Other than this i just worked all the while and tried to forget about it all. In May i thought it'd be for the best to get tested. I had all tests and my urine signaled to them that i had chlamydia or syphillis. I was given a weeks worth of d0xycycline, took them straight away and a week later said i was all clear (so angry). A month later my urine was like boiling kettle water and started to have white discharge instead of potentially any smegma. My dr is a romanian lady speaks to fast and feels like i can't talk with her at all. I was fully focused on the burning urine, nothing else. No examination just more antibiotics. The burning went but the smell since of my urine i wouldn't wish upon my enemy.
Apart from the smell that july at the drs to december 4th had been ok, i've lived my life. Few weeks leading up to it though i noticed it harder and harder to pass urine, leading to a stinging afterwards and it hard to retract my 4skin (i'm praying they don't ban petty words). Bumps appear on the glans to and i think there's a chance it could be allergy to the soap i use on this skin condition. This month has been the worst of my life, and i've lost a father. The pain, the constant tingling in my glans, the smell and the constant worry of going to the bathroom has completely bought me to my knees. I showed the clinic the moles and they shrugged them off originally so i keep that quiet as well as most other things. Because it's that hard to see my gp and feels as though she might not do much i demanded to go back to the clinic. The balanitis rash has returned and wanted an opinion from someone who essentially looks at those parts for a living. The skin under my genitals has completely changed to that of lichen sclerosis and the lady agreed. She gave me hydrocortisone and emollient cream. The emollient cream has softened the skin but have had the worst allergic reaction yet. Obviously stopping using it and going to start 2 weeks of the hydrocortisone tomorrow. I can't talk to anyone about this and genuinely feels as though i'm destined to suffer for my stupidness. I will have to go see my gp no doubt but I genuinely fear that if this keeps coming back every few months and worse i won't be able to take it much longer. It's destroying me. I would pay anything to go back a year. To anyone who's read i can't thankyou enough and i wish you all the best.
Hi, same problem I have, I m also getting cracks when I'm with my husband, and itching, white discharge, im just 35yrs, from last 2yrs no Intercourse, plz give me a suggestion
I was just diagnosed with this condition by a dermatologist. I wonder if you would be willing to speak with me.
I used some herbs from Dr iyaremoses on UA-cam channel and it works perfectly am free from lichen planus.
Yes update i got it 3 weeks ago
I sure would like to ask a few questions
Do Dr's ever ask patients what they think might have caused it?
Thanks for the Internet I self diagnosed the condition after 3 years of Thrush treatment from my GP. So my GP recently withdrew my dermovate because I’m a long term user so I have to request it when required🤷♀️😳 it’s not as though I’m using it in a large area of my body😮
I found that very helpful, but I really suffer from flair ups I have been to the docs and hospital have cream and gel, but would like to control the odd flare up but thank you
Every time I get out of the shower now I moisturize the area with raw shea butter and then a layer of vitamin e oil and it really does work! It feels like I have a normal vagina again 😂
I saw another comment about taking supplements to get rid of flare ups so I'm going to purchase those today and see how the moisturizing plus the vitamins work for me
@@Lulu2u Hey , what supplements?
@@xiomaraax3 vitamin d3 &b12
@@Lulu2u thank you!!
I'm facing this disease for one year, no doctor told me the name of this disease but one doctor prescribed me DEPO moderol 80mg steroids injection. I got 9 injection that ended the disease temporarily but I face weight gain and stretch marks on my body in the age of 29 and it again started itching on my hands and feet, any permanent solution for it?
use 999 chinese cream and change washing detergant
May i also say..I had a brain tumor removed last year.
What part is the biopsy taken from?
Its taken from your inner labia. Its painful.
Also outside below. The pain is the needle at first. Once biopsy is taken, keep the area clean.
@@blschafer4310 The numbing injection was sharp, but I didn't feel the biopsy. It healed very quickly (there was a dissolving stitch).
I was diagnosed with a skin biopsy from my wrist..since it has spread everywhere!
Iv never had such pain in all my life wish i was better or dead
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
i'm genuinely with you all the way here. You're not alone and I don't want to suffer alone with no one to talk to about it.
I know the feeling. 😢 Steroids cream seems to help so far
I live in Iran, I also had the same feeling that it is better to die, but you have to fight, you have to live
So avoid what for relief??????
I nave l s for 24 years it is pure hell I'm 71 yezrs
I am happy not to have this auto immune condition but I have a whole lot of others
Unfort I have to wear pads day in and day out so no avoiding that
Same. I try to pull the pad away from my vagina when I sit but sometimes it's unavoidable. I feel like the pads contributed to this, but I can't stop using them at least right now.
Same happened to me
@@rubysohogirl I had this as well. Try the Always Discreet #3 pad -- it works for light bladder leaks.
@@vgs1285 I had this as well. Try the Always Discreet #3 pad --it works for light bladder leaks.
I was diagnosed with lichen sclerosus when I was 21! (I first noticed it when I was 19-20) I had biopsy and OMG that was not pleasant at all
I am 39 and diagnosed a week ago. I’m still recovering from my biopsy. It’s been very very uncomfortable and frustrating
@@brookeoliver7321 what do you mean recovering from your biopsy? I think I have this condition and yall making me scared to get a biopsy done
@@Lulu2u they will numb the area and take a small piece to biopsy.
No, they are not. Doctors always trivialize and say its not so bad...they should get one. Their opinion would change immediately.
@@Lulu2u LS can be diagnosed visually. Id NEVER get another one. Area was NOT numbed and it hurt for days. But when they take that tool and corkscrew it into your delicate skin it hurts like hell.
This is the worst thing that has ever happened to me. I wear loose clothes and avoid all the other factors
I'm a guy who has never been able to have sex and never will because of this terrible condition.
Dr iyaremoses on UA-cam channel has just cured me completely from lichen planus am so grateful
Bro why is it painful?
I know of herbal med that can work
It fixed mine
Ask about methotrexate. Even if they tell you it's not used for this disease (it is). Oral immunosuppressive medication.
May you be healed🙏🏾
I am not interested in a relationship!
Not much help from dr.makes me feel dirty.i. Hate this exam.i am 77.
I am 66 and incontinence so i have to use pads make my L S worse
I’ve had this for over 15 years it’s awful really effects the sex life
It messes with your intimate life. I had to look into alternative treatments and I found an antiinflammatory tincture that cured mine or put me in "a very good remission" as my docs like to say
At the mercy of USA medics here and it changed my life to a disability. The pain & itching goes back & forth (from one Orphus to the other) Could this be FUNGAL ?
@@PatriciaBrogdon-ud1kcwichi tincture?
I take vitamin D3 10000 u daily. It’s works very well for me.
My doctor prescribed HORMONE/Estrogen creme
Just started my treatment 4 days ago. Clobetsol propionate 0.05% ointment
DID IT WORK?
@@zeegrey3447 for me it doesnt .
Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses
Not for me either
@@zeegrey3447 yes!!! Yay!!!
No mention of treatment.
Dr iyaremoses on UA-cam channel has just cured me completely from lichen planus am so grateful
I got thyroid disease and pre-diabetes
I was diagnosised in 2020
I know how I feel dealing with Lichen Sclerosus - I can't imagine having to try to deal with Lichen Planus on top of that. I feel like crying for women who have to deal with both conditions. I don't believe that anyone who does not have these conditions understand just how painful this is. It's horrible
Why is she reading this if she’s an expert?
Coconut oil gone in a week
I have it and its so fcking annoying i hate it😭
Tell me about it. I can’t live my day to day life anymore 😢
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I have no idea if I have it, but all the areas I’ve searched, I think I have this. Going to my doctor this Monday. It’s super fucken annoying, starting to think about how I can’t even live my normal life from a few weeks back and it makes me so fucken sad 😞 I hope it clears up for you and that it improves significantly for you ♥️
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The skin looks like outside of celery.
999 chinese cream is the solution but also change the washing detergant
Where did you get the 999 Chinese cream?
Buy from chinese shop
Can it spread to our partner?
From everything I have read..no
Is there anyone who feels sex like feeling in this sitaution ?
My GP is useless she sent me to a STD clinic first 🙃
How horrible for you! I’m
so sorry that happened!
i went clinic, told i had chlamydia or syphillis put on antibiotics told 7 days later i have nothing. Then had to go drs for uti got treated. Then went back to clinic, told i have this.
Oh no! My doctor thought it was something psychological ... Although I 3 times told her that I did not have bad se..ual experiences and that my marriage and s..life is great. Yesterday I got the diagnosis LS ... So it is a real auto-immune disease and not something I imagine ....
Try hrt
CANDIDA!!!!!!!!!!!!!!!!!!!!!!!!!!!