72 hour ambulatory EEG vlog; experience, tips, & advice

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  • Опубліковано 18 лис 2024

КОМЕНТАРІ • 33

  • @cathytestagrossa6198
    @cathytestagrossa6198 7 місяців тому +12

    I don't know how you keep all your meds n which tubes to use while having the eeg. Plus have a headache, migraine on top of that then having a seizure. That's a lot to handle n I can see why you get so exhausted. Autumn, Simon, your mom n even Luna are very helpful n caring. I've noticed more in this video how after having a seizure takes all your energy for that day. Afterwards you always smile n are back on track. You truly are "Chronically fabulous!"🤕❤️‍🩹❤

  • @MsLoma1212
    @MsLoma1212 7 місяців тому +3

    Lindsay you're so inspiring, strong and positive! I want you to know that. Your babies Saimon and Luna defo feel whenever you need their support🫂🤍 This bond is so magical

  • @abbycap100
    @abbycap100 7 місяців тому +9

    I hope everyone is having a great day! (: I’m sending spoons to anyone who needs them!

    • @ChronicallyLindsay
      @ChronicallyLindsay  7 місяців тому +2

      I hope you are having a great day! Thank you for watching ❤️🫶🥄 sending you love and spoons as well!

    • @ElliesChronicLife
      @ElliesChronicLife 7 місяців тому +1

      Intercepting spoons
      Please wait ✋

  • @Caitlynandluna
    @Caitlynandluna 7 місяців тому +2

    Your amazing Lindsay! I hope your doing well sending all the love and spoons!!

  • @Horselovet87
    @Horselovet87 7 місяців тому +4

    wow lindsey your a strong woman to have to go through that. my boyfriend austin asked me to marry him and i ended up crying and saying yes. austin is my soulmare and my everything. i love you so much

  • @m0sspunk
    @m0sspunk 7 місяців тому +2

    it was so cute when your service dog was "licking" you during the seizure by just putting his tongue on your leg and not doing anything lmao, one of my pet dogs does that to me sometimes! he actually has epilepsy too, i never knew that dogs could have epilepsy until he started having seizures.
    hopefully you're having a good day today!

  • @Sonia.manitius0305
    @Sonia.manitius0305 7 місяців тому +3

    Hi,
    This was a great video!
    It was so so so helpful!
    It was also so informative!
    Thank you very much!
    Have a great day and sending spoons!
    💜💙🩵🦓🥄🦓🩵💙💜
    P.S.: the tips and tricks were great! Simon and Luna are so so cute :)
    Chronically fabulous :) :)

  • @jazstackhouse985
    @jazstackhouse985 7 місяців тому +2

    Chronically fabulous ❤❤❤

    • @ChronicallyLindsay
      @ChronicallyLindsay  7 місяців тому +1

      YES ILY 🫶❤️🥄 all the love and spoons! 🥄

  • @sabrinacoleman8399
    @sabrinacoleman8399 7 місяців тому +3

    Chronically Fabulous ❤

  • @LydiannaBella
    @LydiannaBella 7 місяців тому +1

    To revive your hair, try a conditioner or hair mask with biotin in it. Ngl the EEG hair wrap with the chin strap was a look 😂 love 💕

  • @highmater
    @highmater 7 місяців тому +1

    eeg are so annoying and overstimulating. Just a tip dawn dish soap is great for getting the glue out of your hair but follow it up with a conditioner as it dry the heck out of your hair. My skin was horrible after the eeg too ugh eds problems lol. So glad of simon and autumn for helping you through everything. You are so strong. love your fellow spoonie.

  • @mishaownsbey847
    @mishaownsbey847 Місяць тому

    I’m starting my diagnosis journey. Focal seizures we think 2-6 times a day. Looking forward to the crazy looks that lead to answers.

  • @ElliesChronicLife
    @ElliesChronicLife 7 місяців тому +1

    Thanks for the tips Lindsay!! ❤❤ I also take emend, my doctor said there are like less than 100 people in the world who have been able to get it approved.. (I feel like that’s wrong tho)

  • @jaydenp4975
    @jaydenp4975 4 місяці тому

    I saw your gallbladder surgery video from four years ago and then came to the more recent videos. Sorry you had so many health challenges. What is the bandage patch on your chest for. Thank you for sharing your journey with us all on UA-cam.

  • @HannahMcNabb-2024
    @HannahMcNabb-2024 6 місяців тому

    Omg, I was watching your video and doing something random and I don't remember why, all I know is it was in relation to chronic illness, I said oh god at the same time you did when you were having brain fog. The sounds of chronic illness. 🤣 My dad who has EDS also and I do our symptom-related sounds and mannerisms simultaneously all the time and it's so funny, gotta find the dark humor.

  • @caseyslifewithcp3727
    @caseyslifewithcp3727 7 місяців тому +1

    Hope you are feeling ok, Lindsay

  • @starklingspars8956
    @starklingspars8956 7 місяців тому +1

    Thank you for the sound warning. What do you do when your feed tube is blocked? Do you have to drink meal replacements etc? Ty

  • @caseyslifewithcp3727
    @caseyslifewithcp3727 7 місяців тому +1

    Chronically fabulous

  • @faithcooper8935
    @faithcooper8935 7 місяців тому +1

    When I had my 72 hour EEG they came to my place.

  • @dominikbenz8349
    @dominikbenz8349 7 місяців тому +2

    amazing vidoe i enjoy rock this strong girl love pretty stunning queen oh no get wells soon

  • @firstlast-js5yw
    @firstlast-js5yw 7 місяців тому

    When is your next live?

  • @alyssawssinging4039
    @alyssawssinging4039 6 місяців тому

    Hey hey ❤

  • @williemacon30
    @williemacon30 7 місяців тому

    I'm guessing I had to short one because I had to do it for a sleep test

  • @mrkittymeows
    @mrkittymeows 2 місяці тому

    Im doing a 72 hr with camera right now. This chin strap is awful

  • @spoonie123
    @spoonie123 7 місяців тому +4

    i loved your happy dance after getting all the wires removed lol
    ❤️🥄❤️🥄

    • @ChronicallyLindsay
      @ChronicallyLindsay  7 місяців тому +2

      It truly felt like the best thing in the world haha ❤️🥄❤️

  • @IKnowRosiesSecret
    @IKnowRosiesSecret 7 місяців тому +2

    I have an ambulatory ekg (holter monitor) on rn too lol
    Sending spoons! 🥄

    • @ChronicallyLindsay
      @ChronicallyLindsay  7 місяців тому +1

      Aye, I hope your testing goes well and gives you some answers! 🥄 Sending you spoons too! 🩵