Ambulatory EEG (Electroencephalogram)
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- Опубліковано 17 чер 2018
- A look into my experience with a 3-day ambulatory EEG. I also share my insight into life with chronic illnesses. I compare invisible illnesses with visible illnesses and disabilities.
Thank you for having the courage to share your experience.
Thank you for sharing your experience. Not enough is said by epileptics themselves about their experiences with seizures, medication side effects and life style adjustments. It is a very useful conversation - for youngsters & adults alike. Wising you improving health and positive vibes. Take care!
Tinrah TV thank you!
Thank you so much for this video. I will be having my first ambulatory EEG put on tomorrow and taken off on Monday. I'm extremely nervous. I totally understand the desire for the doctors to see something so they can actually figure out what's going on. I realize this video is a few years old, and I haven't seen the rest of your posts yet, but I pray that you are in a better place now than you were when you posted it. Thank you for your bravery in sharing your story.
Amen to her and you i got me eeg done today mon taken it off on wed god bless all of going throw this
I have my awesome gauze hat on right now for my ambulatory EEG. Had a fall and hit my head on concrete. Hospitalized for 6 days and had a seizure a day after my injury. You are not alone!
Bless you❤ thank you for sharing your journey.
Thank you for having the courage to record this video. Your bravery will console and comfort so many people who need to have an Ambulatory EEG for a variety of reasons. I pray that your test has helped your doctors better understand how to treat your illness and that you are now living a life free of physical & electrical interruptions.
Finding & watching your video has really helped me to understand what I will be having in a months time, thank you so very much xx
I’m getting tears of joy knowing that there is someone out there that did the same test I’m doing and gave me some great advice and I don’t know about you but I don’t think of my epilepsy as a disability, I think of it as a condition. So enjoy your life to the fullest like that condition doesn’t and has never existed. 😊
I have a 3 day EEG currently and I am glad that I am not the only one that has been on this journey if you have any recommendations as to what to do to keep myself busy during that time pls lmk.
My son is going through this now...your attitude is uplifting!
Thank You so much for making this very helpful video. I am having a 24 hour Ambulatory one done tomorrow and wanted to see what it was going to look like. You are Truly an Old Soul & So Brave!! 😊 💪 God Bless You & thank you for even taking the time out to respond to other people’s questions! I hope you are doing well. 🙏😊💕
Watching while doing the same 3-day ambulatory EEG. Totally relate to that feeling of wanting them to find something wrong, glad I'm not alone on that! Thanks for sharing =)
Thank you for this!! I have to go on august 12th to get this put on! Now I am prepared for wearing it for 48 hours!
Good 👍 luck with the results.
thank you for providng this your very brave
Thank you for making this video! I’m watching it while also getting an electroencephalogram lol. Feels nice to know I’m not alone. This thing itches so bad! 😂Hope they figured it out for you. 💜💜💜
Yes, they have since controlled my seizures. Yay! I hope they were able to figure out what was going on for you too. I’m so glad this video helped you feel less alone. That means so much to me.❤
appreciate your video. im 32 and recently just started having seizures. its been alot but i hope they find something or maybe figure out that the medication i was taking is what caused them. so id say its normally as fudge for you to felt that way. hopefully things have worked out for you at this point.
Thank you for sharing your experience and I am going thru same thing. Why do I feel this way and it's not all in my head I don't feel normal. I zone out and stare for seconds and forgetting words and or experiencing area and feels scary and uneasy to go thru. I feel alone and it's hard on my family and me. What going on. They did find small tumor but they said not growing so u be ok. Your not alone I know how you feel. Thank you it was helpful. I hope they can help and I can tell your kind and caring person. Hope everything goes well! Take care your not alone my friend
I’m on my last day with mine thanks for sharing this and I put my eeg machine next to me I hardly carried it on my side instead of my shoulder
I am going tomorrow to get mine all hooked up. Thank you for this video. Ive had epilepsy since my teenage years (13, now im 36). I went a very very long time with no seizures and over the last few years, ive been having pretty big ones, at least once a year. I just had one on 4/26/23 and the doctor ordered this. Ive never had one before, not an ambulatory one. I really needed this video. Thank you.
I’m so glad this video helped you.❤ I hope your EEG goes well and that they’re able to figure out what’s going on in your brain!
@whitneycarter3721 what did your results show?
I'm going in tomorrow to get wired up, and feeling whiny about it. Thank you for sharing. 🤗
I am going for one of these and im not looking forward to it. I already have a visable disability and i dont want to be double starred at.
I miss being invisable so much because you can hide it if you need to for jobs or school.
Now i say my chair is a part of my body.
I was told if I did this overnight I would have to "have a calm day at home" so I'm curious on the comments about those who were able to get out and run errands, etc.
Thank you
I have my very first one march 28th throu 31st already done had my EEG in MRI in the hospital...we just have to pray for us all ...
my last eeg i had my hair down, going to do braids for my next! thank you :--)
Whitney, I am hoping that, they found out what you were looking for. Thank you for posting this. I have to have a portable EEG, next week and then go to a funeral and I was wondering what if looks like and how could I look a bit more normal for this funeral of a dear friend. He will be in Heaven laughing at me but you know how everyone around us are. I was thinking a scarf. I’m not a beanie person, maybe I can find a pretty floppy sun hat. I also have to buy a button down blouse, any believe I don’t have one.
I would love to hear from you and know how you are.
Hi Carol, I usually wore a beanie, but I wore a floppy sun hat once because I had to attend my cousin’s bridal shower, and it worked great! I wrapped a head scarf a few times for church and such too. I’m sorry for your loss, and I hope the funeral goes well.
Thanks for sharing, that stuff is a mess to get out of the hair, For a guy, I can not imagine what it was like for a woman to get the stuff out. but, testing is essential. I am thankfull for this technology, I was able to be with my family and my fur buddy. I hope you are doing well. I have absnecne seizures. with a bit of focal aware mixed in to the mix, I am also autisitc.
Thank you for sharing! Do you happen to know what company the equipment was from? Also did send you home with a tablet and camera to monitor you?
I do not remember what company the equipment was from. They did not send me home with a tablet or camera to monitor me. I later had a 7 day epilepsy unit admission so they could video record me while hooked up to the EEG but not at home.
I had one done recently and for me it was a procedure that was very painful and something that I would never wish on my worst enemy!
madkittyjoey70 the glue placement and removal or something else that was painful?
@@whitneycarter3721 The glue and electrodes and how they wrapped the bandage down my chin. Plus having to carry such a heavy monitor in a bag and the strap was digging into my arm. Having to actually sleep with that was the worst.
madkittyjoey70 ya, one time they wrapped it too tight and it gave me a terrible headache. It was better when they loosened it.
Thank you for sharing this. I am about to have my first EEG and your video helped! I totally understand the feeling of hoping they find something!!! You’re not crazy! You’re adorable and beautiful even with EEG hair! Lol! I hope they figured out what was going on and able to bring your seizures under control. 😘
Thanks Donna! I’m glad it was helpful!
I am having this done right now. It’s more difficult to sleep and that bothered me the most. I am still being monitored. For me it’s day 2.
Might be a long time ago since you had this, but do you remember how hard it was to wash off the glue they put on the electrodes to stick on your head?
Last time I had one at the hospital, the glue couldnt wash out so had to cut off my long hair
😥
In a few days my doctor wants me to message him and tell him how my seizures are and I may have to do an at home EEG. But I have done so many hospital EEGs, IDK if I could handle this.
I will have my first 24hr. Or 48hr EEG. This month.
Hi im going through this my self i have an ambulatory eeg this month im abit worried if im honest but this this has helped a lil bit i dont mean to pry but how long did it take doctors to diagnose you i have seizures while i sleep and sometimes have no control over my actions what so ever
I'm supposed to have an ambulatory eeg starting tomorrow. They said they will be putting cameras in my home. Did you have to have cameras? If so, how did you deal with it. Thanks.
Andrea's Life I didn’t have cameras when I did it at home, but I did when I was in the hospital. My longest EEG was a week in the hospital and they had cameras there. The short one hour EEGs have cameras too. Camera are always helpful because they can associate which movements happen with which brain waves during the seizure. Or they can see if you’re having a seizure but no movement etc.
im suppose to have it this weekend. they told me id be home bound. how true is that is what i wanted to findout about. i have a family event for a few hours on one of the days and waited to find out if i could at least sit in the car and kinda hang out. thx for the video.
Hi! Absolutely! I went to my cousins bridal shower, the store, etc and just wore a scarf or loose hat. It was only a couple hours to get it set up on the day it was placed and then I got to leave. I hope yours goes well!
I have a question. Can you still use technology and phones during an 3 day Eeg test?
I was allowed to during mine.
im getting a eeg today
I gotta have one fitted here in the UK. Dreading it If I am honest, doubt I'm gonna be able to sleep
yooo i have the same one.
I’m sad I have to do this bc I’m not gonna leave the house for three days ): and I don’t think I have epilepsy idk why I’m having seizures
julie d I’m sorry you have to do this too. Did the doctor say you couldn’t leave the house? I was allowed to, and I even went to a bridal shower. I definitely stood out with the weird wires, so that made me want to stay home for sure. Eventually I came to the conclusion that I have to live my life normally for the EEG to actually capture what happens on a day-to-day basis. If I just sat at home all day, it wouldn’t be realistic or accurate on the results.
Ima need a beanie then 😬
mine fell off my head 😭