The Dementia Experience: Frontotemporal Dementia (FTD)
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- Опубліковано 15 бер 2021
- This educational video focuses on Frontotemporal Dementia (or FTD). FTD is a form of dementia where symptoms can start as young as 45-65 years of age, and typically progress at a rapid, steady rate. Dementia is not only about older people. FTD is one of the neurodegenerative diseases studied by ONDRI in their research studies.
This video focuses on understanding symptoms of FTD and treating people with dementia with understanding and kindness. Related resources are available at Alzheimer's Society of Ontario and Ontario Caregivers Association.
This video is adapted from "The Dementia Experience", produced by the Durham Regional Police Services, in Ontario, Canada. The original video was made in collaboration with Alzheimer Durham. The intend is to use the video, along with other support material, to inform police officers and our community partners across Ontario, and possibly beyond, in the area of Dementia.
The Ontario Neurodegenerative Disease Research Initiative (ONDRI) is a provincial collaboration studying Dementia and how to improve the diagnosis, treatment and outcomes of associated diseases including Alzheimer’s disease/Mild cognitive impairment, Parkinson’s disease, Frontotemporal Dementia (FTD), Amyotrophic Lateral Sclerosis (ALS) and Stroke.
ONDRI is carried out in partnership with the Ontario Brain Institute.
More Info at: ondri.ca/
Follow ONDRI:
Twitter: / ondristudy
Instagram: / ondri__study
Facebook: / ondristudy - Наука та технологія
my dad got diagnosed with this at 63, 13 years on he is still doing well. worst symptom is speech and a little inappropriate behaviour but really nothing to bad. everyone who meets him loves him.
i hope everyone with this awful condition is able to do well for a very long time xx
Glad ur dads doing well! Is there any memory problems?
Best wishes to you and your family
I can't believe he was diagnosed with FTD - when he seems pretty normal and able to speak fluently which requires thinking. My husband was diagnosed with FTD - but by that time he struggled to speak complete sentences, he was confused and sometimes spoke nonsense, and could no longer hold down a job. He fell apart completely - in every way. Once he was diagnosed and I read about it, I looked back and realized the earliest symptoms had begun years earlier, but subtle. He was diagnosed in the Fall of 2009 and died in the Spring of 2015.
I'm sorry for your loss
My wife has this condition. Diagnosed in 2014 by scan. She’s had ms for 30 years too. It’s devastating. Her speech is now almost gone and she struggles to eat. Well done with this video David. It’s hard.🙏🏼
Thank you ❤ I have been diagnosed last year with FTD. It's getting really difficult. All the best.
My husband has this disease and it’s the hardest thing in the world to watch the decline and loss of function! On diagnosis we chose to do “bucket list” things and live in the moment which helped. I can only say thank you for sharing your story and bringing awareness to this rare, largely unknown disease. To keep adjusting to the new norm in your lives will take strength and support 🌷
Keep strong Glynis. All the best x
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God bless for health 🙏
My father was diagnosed with ftd this year. He started falling a lot recently. He fell and went into cardiac arrest recently and is now in a coma. Pray for his recovery ❤️🩹
My husband lived over 15 years with a form of FTD.
He never did get an exact diagnosis despite going to several quality neuro physicians.
He was told he had severe depression, that he was a hypochondriac, that he needed to check into a behavioral health center for inpatient treatment of mental disorders.
He had both physical and cognitive issues as well as a behavioral component.
I applaud you courage.
15 years is exceptionally long for FTD... typical length is half that. Was he diagnosed with FTD at autopsy?
@@Dinngg0
No, never a true diagnosis which was very hard for us. The last neurologist said it was a “tau” type but no details.
Death certificate just stated a “neurological disease”
@@catherine7147 You have my sincere condolences. My wife is suffering from this terrible disease, a type of FTD named Primary Progressive Aphasia. She did get a diagnosis almost two years ago but was misdiagnosed by the neurologist at first. It's been a steady decline since it started in 2017.
@@Dinngg0 Its so hard to watch the person you love struggle with dementia.
I was able to care for my husband at home and hospice helped during the last few months.
Prayers for you and your wife.
My father has FTD. He was diagnosed with it on 2019 december even though small language problems were there in 2018 itself. Now his behaviour is like a child and he's mute. He's 60 now and all other physical health is sound so it's very hard to appoint a care taker and he's aggressive some times. I have resigned my work to look after him. In my country there no proper institutions for dementia patients.
Lost my Mom to this. She was Dx at 56 and by age 61 she was passed in God's hands. Today would've been her 73d birthday. I wish more PPL would realize that Dementia is no longer an old person's disease.
Bravo David! I am full of admiration for your strength. I also admire the Durham police force in seeking to come to an understanding of such issues.
My late wife had this condition for more than a decade. One of the worries that we had was about what might happen if the police became involved, because some of her uninhibited behaviours in the later part of her journey were technically unlawful.
Thank you for a great contribution to the community affected by this condition.
Hi David I Hope you are doing Well. God Bless You. My mom was diagnosed two years ago, she is 74 and has always been a strong person. She’s hanging in there and seems to be Happy. She doesn’t realize she has Dementia. I Totally Agree, Please be Kind and Patient to your Loved one with FTD or any type of Dementia. My Dad had Prostate and Pancreatic cancers and unfortunately passed away in 2018. My mom and Dad were married over 51 years. You take Care and my Prayers are with you.
Thank you for sharing your story😢❤❤ I have cerebral small vessel disease and everything you say I feel and go thru but thought I'm going crazy because no doctor has been able to tell me what to expect or help me. This has helped me by your words I can show my family to explain. God bless you and your family❤
Thank you for posting this. I’d like to follow your journey as I’m being told it’s what I have as well.
How old are you?
I believe that I have it, as well. I am on sick leave. My colleagues thought that I was depressed. It’s awful, because I do not appear ill.
Very informative, thank you to all responsible for this video and especially the presenter for coming forward with his diagnosis and lived experience.
I have always loved working with this group.
I doubt I could be as accepting and brave in the face of this illness.Still the fact that you are so self aware is a good sign.(I hope at least)
One of the things that help these typeof diseases is keeping classic instrumental music, Chopin, List, Mozart....or any similar classic music playing all day....the brain keeps memory of music and softens the pain and emotional reaction to one's surroundings by listening to this type of music. Gives the calming power of continuing living with the music played always in the back ground.
I was of the impression that people with dementia have no insight or awareness into their condition. I guess I was wrong . Thanks for sharing and I hope your days are filled with love and joyful days .
I believe in the beginning they do.
I am 68 and have recognized a slightly milder form of similar symptoms since my late 20's. Since then, I have helped my ex-MIL, my father, my uncle, a couple of friends and now my current MIL, whom all had/have more aggressive forms of these symptoms. Eventually enough medical research will help pinpoint causes, and hopefully provide solutions, or better education to help people understand and assist.
Thank you for telling us what this is like for you.
Thank you for sharing. God Bless.
good on you david! youre an inspiration
God bless your heart a great video to get out there to people. My husband has moderate frontal temporal dementia. ❤
Unfortunately law enforcement don’t recognize neurological disease as a factor when dealing with someone who is irritable agitated or acting strange and many people end up dying by cop due to their lack of knowledge.
Everyone outside of the margins is treated at fault for existing crimes or as a precrime perpetrator by law enforcement. The general public seems fine with the disposal of 'outsiders', so nothing will change anytime soon.
Bless you. G.
God love you David. Totally agree that ALL first responders are schooled in these dementias. There's no way my husband would be able to follow commands.
My husband was diagnosed with FAHR, s DEMENTIA a very RARE DEMENTIA in 2008 and at that time he was the only one in SOUTH AFRICA according to his NEURO DR he lived with it 13yrs Was a Tough journey for me because I was his Carer 😢he did in 2020 of a HeartAtackt
God Bless you!
No….. not a death sentence… we all have an ‘Expiry’ Day on our birth certificates…? It’s when our time is up here that we cannot change, BUT we can change what we do whilst we are still here… I have same as you dementia frontotemporal but during my first couple of years i have met others with this same and they had their diagnosis over 20 years ago?? So, just live in today and let the future ‘you’ deal with the challenges when they occur? Blessings, John
20 yrs 😊😊😊... Its really Good to hear that man... Stay happy stay blessed ...
Good to hear some people have lived with it for 20 years. My bf was just diagnosed at age 46. I hope and pray he loves a long and healthy life
@@anthonyqcolosimo5374 bless you guys and hold onto the hope that every minute is spent filled with love and care knowing this is planted so deep inside us that it is the very last thing to go. Holding hands more is another benefit of this and helps us to feel ‘grounded’ in a happy place knowing someone is there travelling with us. Blessings, john
You will never know unless you live (lived) with it.......😢
I have this disease, and it is hard for me sometimes.
name the medicine.of dementie,iwas 40year help
❤
I have FTD dementia and I have been taking supplements Genius Mushrooms otc Walmart and MCT oil sublingual quality of life
💙🙏🏻💙
I am just the same, I think i should see my G.p.
If pain morphine sprinkled with flour of the coccain leaves
Do not over indulge 3 or 4 time ya hear
Take wine with ya pills and cheese or whateva it is good 👍🏼 the bible says how
Sh*t……