Frontotemporal Dementia | 60 Minutes Archive
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- Опубліковано 22 бер 2021
- From 2019, Bill Whitaker reports on frontotemporal dementia, or FTD, the most common form of dementia among people under 60. Mark Johnson, one of the subjects of the story, recently lost his battle with the disease.
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Sending love to Bruce Willis and each and every other person affected by this disease. ❤😢
He's wealthy, and can pay for experimental treatments, health care and since he's famous, he shouldn't have to worry about ending up in jail/ prison or the worst nursing home possible.
There are many things worse than death, this (frontotemporal dementia) is one of them.
@@glennleslie6127 Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope, have faith not fear 🙏🙏🙏
@@glennleslie6127yeah
My 64 year old husband was just diagnosed with this disease on his birthday 3 weeks ago.
I’ve noticed changes with his speech, personality etc….I’m not sure what or how I will handle this or where to get help for him. We have insurance but the doctors aren’t really telling us much or helping at all. As far as our house well we lost our home 4 years ago and now we’re in a 3 story townhouse which I’m trying to get my credit score and finances together so I can get him into a ranch house so everything will be on one level.
I’m still working full time and can’t afford to quit at this time but I know soon I will have to.
Whoever reads this keep us in your prayers please! Thank You!
The sad answer is, nobody knows what to do. Research is ongoing, but very little is still known about brain functions. To be perfectly honest.
However this form of dementia, usually, progressing is slowly. But we are all different so... Sorry.
My prayers go out to you and your husband and I know the feeling my husband whom is in his 30's is starting to have those changes due to early dementia symptoms
no GMO, High Animal Fat Diet (carnivore), selective dairy
remove Glyphosate AMPA (roundup / COVID) sources Food, Water, Air, Soil as MUCH AS POSSIBLE
it's the CAUSE 100% - we're lied to for 45 yrs
I would like to look into Etanercept
we are being LIED TO, Miss Diagnosed, Passed around
See a NaturalPath, Gut Panel, Vitamin Deficiencies, Bloodwork, Stool, Saliva (test for Glyphosate too)
@@jeffmarkus5052 thank you I will be taking your advice and getting an appointment with a natural path right away
Here after Bruce Willis diagnosis. Man, this disease is heartbreaking.
My husband was diagnosed 3 yrs ago, they thought it was a stroke, to Ms, he has ppa w/ftd
What a horrible way to lose a loved one. Unimaginable, really. Strength to all those who are going through this.
sending love
My sister passed away at 57 years old from this horrible disease. It breaks my heart to think about what she went through. God bless anyone who has to go through this.
I’m very sorry❤️🌸🌼🌹🌷🌺🌻. How long ago was she dianosed with it before she passed?
I actually worked at the facility that Mr. Johnson was a resident at and on his unit. I remember we had to put a lock on the staff refrigerator because he would go in there and eat all of our food. And I tell ya! He was one strong guy because he tore the entire lock off one day! Lol He was a handful but he was such a pleasure to be around and I love him just as much as I did my other memory care patients. He was definitely the most challenging patient I've had in my CNA career BY FAR. Seeing this brings tears to my eyes because I remember Amy and the children coming to see Mark and spend time with him. She would always leave with such a sad look on her face. Amy and Mark had such a big heart. When I had my son, Amy gifted my baby a beautiful blue blanket with planets on it. I still have it to this day and will never get rid of it. Rest In Peace, Mark. I am glad you are no longer suffering and are now able to watch over your family from heaven.
Wow that’s really sad. Why would you work at a place like that it just seems so sad all around
It's a calling and we should be thankful for people like Chloie. They should also pay them more.
Not to intrude but many of the info you mentioned should’ve been kept confidential.
@@ranyataha7477 Nothing we didn't already know.
@@ranyataha7477 My first thoughts when I read it. I think it should be considered for deletion.
This poor woman had to find an extra $7,000 every month on top of ALL this? Losing her husband, raising 4 young kids, having a full time job, paying all bills/mortgage, etc. Oh yeah plus $7,000. Absolutely obscene. She has some seriously impressive strength.
Mark's poor wife. What a beautiful woman to care for him for so long. I wish her all the best now and hope she can move on with her life ❤️
@Anonymous ...
@Anonymous wow, you're an awful person. You're probably really "fun" at parties, or maybe don't get invited for the very same reason.
@Anonymous you think that eating all the time is ok? You stupid? That's not normal. Did you see him at the end of the video?
Her kids too. They were so young…babies even.
Man, this was heavy. I know mark has since passed away and my heart breaks for the loss of his life far too soon, his children & his wife. I don’t think I will ever forget this story 😔
@@marvelcomiks8078 You know you're a troll trying to get on people's nerves. That's like something a narcissist pretending to be someone else would say. It makes no sense.
@@scottg4520 Karma does not make sense to people who likes to do vile stuff, otherwise they would stop their vile ways. Its meant to be that way. Remain blind.
@@marvelcomiks8078 Well Marvel Comics---that explains a lot about your thoughtless comment. Stay on the planet longer and that Karma theory will get busted by the facts. wish it were true, but its not. by the way it is NOT GOOD KARMA TO MAKE THOUGHTLESS COMMENTS ABOUT THE TROUBLES OF OTHERS. sorry you are sooo butthurt
I have a friend who has this. Her whole personality changed. She divorced her husband of many years, exhibited bizarre behavior, and she's now aphasic. She gained about 200 pounds. Her kids are terrified because their grandmother also died from it. She was in a memory care facility and is now in a long-term care hospital. It's just awful.
My Husband whom passed away on January 11 2016 Had Frontal Dementia, He had wore a 24 Hour Patch, he also battled Parkinson’s Disease. God was so GOOD, Al was such a KIND MAN, he was a JOY to care for never A JOB...My Al was A JOY, I would do it all over again.
🙏💐😭 I'm so sorry for your tremendous loss.
I strongly suspect my father was in the early stages of FTD or something similar. He then got an aggressive cancer that took his life. In a way that might have been a blessing dementia is so incredibly cruel. A hug to everyone dealing with this.
Or maybe he had brain metastasis ?
@@lazarus8453 His behavioral changes preceded his cancer (by 5 years or so), so I think that chance is small.
@@greengorillah "I strongly suspect my father was in the early stages of FTD or something similar. He then got an aggressive cancer that took his life"
Both are the same disease. It's the same diseases as Obesity, Diabetes, Heart diesease and so on. These are just all manifestation of hyperinsulinaemia / insulin-resistance.
It is our western diet with a lot of sugar and plants and with a very little healthy meat which causes this.
It is a blessing. We are in the 11th year with my mom. She is basically a vegetable.
@@aBlueprint I think so, part of why I am saying this is that my mom developed dementia after my father passed away. She still realizes what is happening to her and that is awful. I am sorry for you and your mom and family.
I'm here to support Bruce by learning more about this disease.
This broke my heart. My mum had FTD Dementia, she was diagnosed in 2013, she died in 2016. It was so fast and progressive. The rapid change in her completely stripped my mums character & personality. My mum was such a beautiful kind caring giving person. Loved by everyone and she was my best friend in the world. When my mum lost her mobility and her speech. That was the hardest. She couldn't lift her head up and her neck just hung forward and her head would bend over. I remember I would push her everywhere in her wheelchair. It was very difficult but I didn't care as long as she got outside and continued to shopping or have some food. The first time she choked we were in a cafe, and she forgot how to swallow. They wouldn't put a tube because they said she would pull it out. She then got infections all the time. Then she got pneumonia and we slowly watched her die.
All I can say this is the cruelest disease I've ever known. It's so cruel and painful at the end. To watch my mum suffer in that way literally broke me. My mum passed and three months later I got breast cancer. The trauma from being my mums carer is still with me every day.
I'm so grateful for videos like this. We need to get FTD dementia out there to the world. I pray no one has to go through this. I Hope they do find a cure and soon. God bless all the people with FTD, their family and friends 🙏 ❤️
I’m so sorry to hear this.
Sorry for your loss
Oh I'm so sorry.
Thank you Nikola for sharing your mothers story. It helps us understand what to expect.
Such a horrible disease.. so sorry about your Mum. ♡
That totally sucks and sorry for your ma but we don't need another one. It seems like every year there's a new disease.
Man, these stories are heartbreaking. I’m scared of losing my mind most of all, so it’s horrifying as well.
One of the saddest things about this kind of illness is that after your loved one dies your strongest memories of them are about the last part of their lives. My father had always been a funny, creative, kind man who thought of others, but in his last years all that had gone. As his caretaker I witnessed the destruction of his personality and dealt with the negative behavior and now they are the main things I remember.
😔
Hugs. I’m so sorry.
😢
My great aunt, who was more of a grandmother to us, became aggressive and it was hard for me to accept that the most loving person in my life had become someone I couldn't recognize.
We are going through this now with my dad. That is some thing I worry about. Even now, it’s hard to remember what he sounded like and what his personality was like. So very hard
My wonderful neighbor back in NY was an eloquent, fun loving, witty, popular, much loved judge. When he was diagnosed, the sidewalk conversations we used to have...started to go...and I ached for that to return. John is no longer with us. I think of him so very often...
I feel so sorry for Amy and her little ones. I pray she finds peace of mind and strength when she needs it. She is a strong, good person.
Two very powerful episodes of 60 Minutes., which has compassionately educated the world for many years.
I feel so sorry for Amy and her children. May God be with you.
A family member of mine was diagnosed with FTD a couple years ago and it has been a really horrible decline since. Such a nightmarish diagnosis. It’s so hard caring for someone with it but I can’t imagine what it must be like for someone actually going through it- even if they aren’t aware of what’s going on it seems like there is so much suffering. Really heartbreaking. It’s so important to educate others about this.
Awww I love you comment and every word you said it so true. And yes it needs so much more attention on it. It seems anything to do with the brain they just say it's mental health. I think it's so much more complex. I was my mums full time carer. Until her mobility went, she was falling and I could not pull her up. It got so bad that I had no choice. The day we put her in a nursing facility my heart broke and I've never recovered. She really suffered. I would go visit every other day. I would watch all of the patients and it was such a sad place. My mum cried like a baby every time I left. My mum in the end could not swallow, move any part of her body, and got so many infections. The last was pneumonia and that was the one that she died from. Aug 8th 2016. Then in December 22nd 2016 I was diagnosed with cancer. So it was like oh well its my turn 😄 I got through it. But barely. I don't leave home as I have so much trauma grief. It's a hard life, I never imagined I would lose my mum at 55. It's like going down a rabbit hold and the door closes behind you. The world is forever changed and its darker and sharper In places. Some of it has light and you can pretend to go on. But deep inside what you went through never leaves. Ever.
@@jenniferrobinson1792 hey Jennifer I hope your doing ok? I know what your going through is so hard, frustrating and confusing. Stay close to love ones, take care of you. Sending you a big hug, best wishes 🤗
My husband was diagnosed with the behavioral variant of Frontotemporal Degeneration in 2016. I advocate for him daily.
Prayers to any family that suffer from this.
This is heartbreaking 💔 😢
Thoughts and prayers for Bruce Willis 😢
Yes, such an unforgiving disease. Aren’t they all. This one though is unforgiving in its own crappy way 😞🙏
Ts and Ps mean zero Ethan. Shame.
S. Chris,
Speak for yourself!
@@schrisdellopoulos9244 it’s ironic because I’m actually an atheist. It’s more of a sentiment of displaying hope and wishing good health despite the lack of a cure for such a terrible disease.
Absolutely heartbreaking 💔
May the medicine to treat such a brutal disease come out soon and reach every nook and corner of the world! 🙏🏻
My mom was an active athlete all her life - she developed a form of FTD called progressive supranuclear palsy which left her unable to move - not even her eyes. It’s heartbreaking. My childhood friend developed FTD
My husband has FTD and was diagnosed three years after I took him to a Neurologist. He is now 80 and cannot walk without assistance, is nonverbal, incontinent and has no movement in his left arm. It is very sad to see a very active man in this condition.
Same
My mother in law died of this. She was a smart psychologist at one time, reduced to nothing. Very sad.
I am so sorry for your family's loss. So heartbreaking.
God bless you and her soul.
It's so sad when I see stories on FTD. I have FTD myself and as a 47 year old 5 years into it you really have no places to turn for help or support. Most places are for elderly or for alzheimers . Very few places ,help and support are for younger. Also getting diagnosed is years of test and stress. Now I am in decline. Its so sad and worrisome not knowing what's going to happen to me. Support groups I find really don't exist. I am not speaking of zoom. I can't even get on stuff like that. The physical groups aren't their for the younger people with this horrible existence. Bless everyone and their family who have or know someone who has this. It's pure evil.
God bless you, dear. My husband has FTD. If no-one is pestering him to shower or go to the doctor, it seems like his day-to-day experience is pretty zen-like and mellow. I hope you can find a comfortable place and have a cozy time of it.
My heart goes out to you, Karen. I hope you have some sort of outlet, even if it's not in a group setting.
This disease is heartbreaking. I lost my Mom to it. She was just 55 at diagnosis when we noticed symptoms. 6 years later, at age 61 she passed away. The decline was swift, aggravating, aggressive, and sobering.
I’m so sorry to hear what you and your mum went through😔💔Can you explain the symptoms?🙏 Hope you’re okay
So sorry Heather, my mum is suffering with it now and it is so horrible. My life has been turned upside down. Hope you are okay xx
❤🌷🌻🌸❤️🌺🌹
My mother showed no sign of traditional dementia but living alone we noticed that there were reminder post it notes all over the house. Brain disease is the worst. Frustrating and painful to both patient and family. This country needs national health!
Sending blessings and best wishes to Bruce Willis and his family. May you be blessed with strength and surrounded by love throughout this journey.
My mom developed FTD. Her behaviors became so bad that I could not take care of her. It broke my heart and hers. The ugly truth of FTD is that it does not effect intelligence so it’s hard for family to understand.
No she didn’t. You just want attention
@@brettlinthicum9885 Shame on you
🙏🏿🙏🏿 sorry to hear that I took care of my grandmother for 4 years with dementia she passed the nursing home because you could no longer take care of her sending you healing and loving light and prayers to your family
None of the types of dementia affects intelligence i think
@@brettlinthicum9885 why would you assume that?
This is so very sad and there's nothing anybody can do!
It is really sad. Nothing can be done yet, however with more research there is hope. Maybe they can find preventative measures or a way to slow the progression of the disease to a point. 54 years ago saw the first human heart transplant. Science advances rapidly.
@@myce-liam they can’t do brain transplants though, and this disease is genetic so it’s highly unlikely to be cured. Maybe things to help it not be as terrible but that might be it
It can be completely reversed. Like all metabolic disorders, its root cause is insulin resistance. Consecutive dry fasts of 5-7 days duration will reverse the condition.
I lost my sister to FTD. It took only four years from normal to death for her. She died in February before she reached her 70th birthday. But at least she had most of her life. This poor woman with her 40 year old husband. . . omg.
@@ssmith6963 Thank you for your thoughtful comment. I miss her so much.
My sister died of this disease at the age of 60.
@@ssmith6963 thanks Sonia was hands down one of the best people ever. I’d run to her for help instead of my parents . I was lucky to have known her.
@@marciabradley7660 .
What amazing episode! Thank You
My mother was diagnosed with this in March 2023. It is really very difficult to see her in this condition. She was loving, respectful, caring and compassionate. She has always been charitable and generous to others. Now, she’s the opposite of it all. I sometimes wonder where did the good karma go? She’s mean, she calls me names and uses degrading words and sometimes hits or scratches my arm. It is very difficult living with her like this. Just hoping and praying for strength at this point. 😢 💔
Thank you for sharing your story.
I feel very sad for families that go thru this when someone is very young, I thank God that my husband’s dementia waited until he was 79
Bruce Willis FTD diagnosis brought me here. Such a terrible disease. Prayers to Bruce and his family.
I'm here because of Wendy Williams.
I had a friend who was diagnosed with this alongside ALS. Her behaviour was absolutely bizarre but she died after a few months. It was heartbreaking.
Im sorry for your loss. To have both of those is unbelievably cruel.
My sister has this combination. Keep us in your prayers.
@@rhondarobinson8443 Very sorry to hear that. And my heart goes out to you and your family. I am just curious whether she suffered a major trauma that triggered the condition? My friend's son and mother died in the years leading up to the onset. Her son was severely disabled from birth, so she had had 12 years of dealing with that, and then he died. It could also just be a coincidence. Did your sister suffer a trauma beforehand?
@@SedonaMethodPlus She had a traumatic divorce about 10 years ago which was preceded by an attempt to adopt 2 boys which ended with them returning the children after her husband became unexpectedly withdrawn. Also, a job loss 3 years ago. She’d never gotten enough therapy/counseling for these events in my opinion. She’s had rigid ideas about how the world should work. She had been periodically going to the ER for the last 4-5 years with stomach pains, but they never found much. She expressed to another sister that she’d be the 1st of us 4 sisters to pass away. She’s 57 y.o. I’m going to been leaning on prayer, EFT Tapping and other energy medicine.
How Amy says she misses Mark a lot, is heartbreaking…
FTD is so harrowing. I think probably most individuals would rate this as something they definitely do not want.
Thoughts Love and Payers for Bruce and his family ❤
If you can get medical assistance to end your life if you have a terminal disease, why can't you get help to end your life if you have dementia? It's absolutely crazy! I guess they need as many people as possible so they can do their research?? I am 72, I would end my life as soon as I got diagnosed with it! I can't imagine living like that and putting my family through the expense of taking care of me. It would be a living nightmare for everyone concerned. My heart goes out to anyone who has to endure this.
FTD and dementia are diseases that diminish people's capacity to realise that they have changed. Assisted death might be a blessing to those unable to pull the plug themselves or unable to recognise the degree of their decline. Many people with dementia retain a distinct personality and are often present or shift in and out of being lucid and adrift or lost. The carers no doubt suffer more witnessing the decline and coping with the changes. Assisted living helps and sometimes a neutral person with training or experience dealing with dementia is better able to cope with defiant, puzzling, inappropriate, potentially dangerous, irrational and demanding behaviour. If only all people had ongoing contact with elderly and sick people instead of locking them away then the community would be more aware of differences and diverse needs and changes that often occur with age and illness. We sanitise and avoid illness, old age and death like Victorians sanitised sex in the nineteenth century yet accepted and laid dead bodies out for viewing in their homes and took photos of deceased children sitting with the living.
Do they know why all of a sudden we re seeing this??? The speech part is aphasia. It's out of the blue, to me? This new diagnosed disease.
Thank you. I’d do the same. I just turned 76. Probably won’t get FTD but may someday get Alzheimer’s, especially if I live to 85 or so. Robin Williams killed himself after he was dx with Lewy Body Dementia. I wouldn’t want to become a shell of myself.
My mother was diagnosed with Alzheimer's at the age of 66, and she has an atypical form of the disease that makes it hard for her to remember names and nowadays often other words as well, so in that respect her symptoms are quite alike with FTD. In my mom's case her episodic memory will be affected much slower than it usually does in Alzheimer's. Her diagnosis was confirmed with an MRI scan, so it is very important to get proper medical examination and diagnosis early on in order to discern what's behind the symptoms. When it comes to Alzheimer's there is growing body of evidence that you can affect the course of the disease by lifestyle intervention, medication and supplements (e.g. Souvenaid), so early intervention is crucial. I truly hope more funding would be given for academic study of the many forms of dementias as pharmaceutical industry hasn't really come up with promising medications despite all money that has been poured in it.
Heartbreaking !!
I live in Australia and have recently been diagnosed with FTD. Thank you for this report. They don't seem as knowledgeable here and it's been wonderful to watch information on American tv.
I’m so sorry. Are you doing well nowadays?
@@jenniferrobinson1792times like these I wish I could send hugs over the internet ❤
Jennifer, I hope you received a diagnosis from a medical professional and it's something treatable or at least manageable.
Blessings and Prayers for Our Actor BRUCE WILLIS and his family! WE LOVE OUR ICONIC ACTOR BRUCE WILLIS!
I lost my mother to Alzheimers decades ago. As I understand it, Alzheimers is also always fatal. Mom's progression took a bit over five years. Some of her symptoms resemble those of Mark Johnson (as covered here). For anyone who has had someone special progressively lose their memory and basic mental capacities over the course of years, they will know why the experience is sometimes called 'the long goodbye'. You continue to meet with, and speak to them for years. But in truth, they had 'checked out' long before the final 'GoodBye'.
I'm shook. This is heartbreaking.
extremely painful
God bless and be with you sweetie.
Heart breaking for Amy’s story 💔
Wow, I felt so sad about her.
This is a sad story! I wish there was a way that this disease FTD could be detected.
Thank you for this great invaluable information!
It can be detected. Neuropsych eval then spinal tap and PET scan
Prayers to all who suffer.
So sorry to watch and listen to this testimonies, hope medicine will find a cure and my best wishes to the families keep fighting
It can be genetic and the main cause of it if not inherited is a mutation on a gene. So I think it’s highly u likely there will ever be a cure
Bruce Willis has just been diagnosed with this illness, his family said. How very sad😔 . This is a terrible affliction for everyone involved.
He was not “just diagnosed” theses symptoms have n\been going on for decades, they just told the world, b/c he could no longer fake acting. He had been fed his lines thru n earpiece for years.
@@Elena-rt9yu Tomatoes, tomaaatoes. It’s the first time the public heard about it. Thanks for your valuable contribution.
With learning of this due to Bruce Willis, I wonder how many more will be diagnosed since we’re all getting educated, so sad for Bruce and family .
Heartbreaking. 💔
This is devastating.
I'm praying for Bruce Willis and Wendy Williams as well as anyone else who's suffering. God Bless.
I feel you. My daughter is only 31 years old and has alzheimer's and seizures frontal lobe. It's a very hard road, but we all can do it. God doesn't give us things we can't handle. Bless you all 🙏
@Adam-qf8ps Yes. That is exactly what my daughter said. Hang in there. Don't let this bring your spirit down.
So sad about the father with the young family. And his wife.
Well she’s talking pretty well compared to my girlfriend who has it. Who has FTD. Now she can’t speak. She can’t walk. And she lost interest in everything, except food. Mostly sweets Coke, And french fries etc. so I really hope and pray she doesn’t end up like my girlfriend who was so independent and could dance great. It was very intelligent. That’s all gone. But I still go see her. And be with her. And tell her I love her and hold her hand.❤️
I had Brain Cancer, Surgery & Radiation & believe me, it has been a ruff road so in some ways I can relate. I am the only one that is still alive (BCancer) & I'm in an old people's home... I'm 57
🙏 I lost two friends to brain cancer...😔
I am sorry you went through all this. I hope recovery is possible and you can find joy and peace again.
Well I should of said I'm the only one who lived in the North West. I was in Alaska & had surgery in Seattle. I can't say for Dever.
I'm ok but life gets harder every time the year starts to change: Spring ~ Summer ~ Fall ~ Winter. That's what GOD does for me, what would I do without HIM... Amen!
@@xiqueira
I wanted to tell you personally, Thank ~ You.
My surgery was in 2005 & I was in Alaska, I moved back to Wyoming in 2018 were most of my family is & that's all good cus I come from a huge family. God bless you!
Why are you in an old people home? :(
Young mother Amy Johnson of Windom Minnesota needs help as she shoulders a $7000.00 a month bill for her disabled by frontal lobe dementia 40 yr old husband's facility bill; this is financially impossible for her to sustain for 5 more years and also have to work constantly to provide for her life alone w her small children. Please help her and her four very young boys.
I am very glad that lady stayed with her husband she didn't break up with him my mom would have broke up with him just like after I got diagnosed with epilepsy/seizures she put me in foster care and my dad wouldn't allow that so she broke up with him and he raised me since I was 6years old and diagnosed with epilepsy/seizures
Sorry to say this but your mom is a c*nt
this is so scary and sad
I'm here after learning of Bruce Willis's diagnosis hoping to learn more
I feel so bad for that lady it has to be devastating to have your best friend who u love not recognize u any more
Poor Wendy 😢
My Mom died 11 years ago from frontotemperal lobe dementia. She was 63 at death and 50 at diagnosis. She had aphasia and getting her to talk more than 2 words was hard.
$7,000 a month!! That poor woman...
Haha really a little selfish haha better check for ftd haha
I am here to support Carol and learn more of this horrible disease.
SO SAD...
We received the diagnosis that my mother had FTD after we took her to the emergency room for what we thought was a mental health crisis. The doctor told us it was the worst case he had ever seen. We thought she was suffering from severe anxiety and depression. She ended up dying a few days after we were given the news. Her health was failing and we had to make the decision to continue care or choose comfort care instead. Seeing this, I am glad we made the decision that we did. At least she was spared further suffering. The scary part is that there can be a genetic component to this. I don't worry about myself, but I would hate to think that my family might have to deal with this one day.
Yes, we finally have the diagnosis of FTD for my mother-in-law. We have relocated to England (2020) to care for her (she also has cancer) and my father-in-law who has been diagnosed with "Parkinson's disease with dementia". The psychiatrist told my husband that he may want to pursue genetic testing in the next few years.
What is the difference between comfort care and "continuing care"? Just wondering.
In my mother's case, she was in the end stage of life and they removed all other care except pain management. She died within a couple of hours once they removed the oxygen and other medicines that were maintaining her blood pressure@@CraftingChristian
@@hm5978 Im sorry to hear. That is so strange to me that they would remove care like that, but it's good to know.
@@CraftingChristian My mother also had end stage COPD. Honestly she probably only had a few months to live (if we continued treatment) but she would have suffered the entire time with all the problems she had. She had fallen and broken her back, terrible anxiety from both the dementia and the difficulty breathing. She had been on oxygen for years. She wasn't allowed to go home with us, we were frantically looking for a nursing home that would take her because they would only release her to a facility. That was her worst nightmare. It was our choice whether or not to continue care or basically let her die. It seemed the kindest thing to do to let her go. But it was devastating.
I can't believe that it is $7,000 a month. Coming from a speechless Australian. I just prayer that the pain has eased some. Much love and prayers to all of them.
Yes welcome to our crappy healthcare system here in the states. My mother was recently diagnosed with bvFTD and it will be expensive to find care for her.
The USA is terrible
I am a nurse assistant at a memory care facility in the states, average cost is around $30,000 a month. I make a little over minimum wage but I don't feel as sorry for myself as I do for the families that have to endure these costs.
Came here to learn about Bruce Willis' condition and now I wish I hadn't.
Heartbreaking.
I really like this channel
Who is here because of the Bruce ?
I took care of a patient that showed these symptoms and behavior. His daughter , her husband keep her at home but it was so difficult a lot of times. She died on 2015 .
As wonderful as life is we all have our crosses to carry...this is a tough one
Nothing you can do Amy. You are fine lady, be happy and still visit.
Prayers up to Bruce Willis and his family
So terrible, that mom of 4...such a heartbreak...
After coming to my mom's to relocate her husband to a care home I realized mom couldn't function alone. I moved to center Georgia several hours from home over 14 months ago.
I know it's some form of dementia. We have spoken to our doctor about testing to define the type only to realize.....what for? She takes a "memory pill" but who knows if it's of benefit. The doctors and pharmacist agree that no matter the type, no real treatment plan.
We got busy, walking two miles per morning. I took over cooking, paying bills, making appointments etc. Back in February covid pneumonia set her back. Well the lord spared her, we started our exercise regime but now 1 1/2 miles is a struggle. Mom's 78 and I commend her effort and exertion seems to help fight the dementia back.
Even though I don't feel productive and am penniless, this has been such the blessing, caring for the sweet girl. Some days the blessing is hard to see thru my tears but they do exist.
I may not be able to provide care once she slips further away and unable use the restroom alone? I worry that my never quit, marine corps ethos may keep me seeking better care later on. I guess I would be forced to sign over her home and car to the government in exchange for the care. It's a shame how the dollar keeps entering into the conversation. This disease that's killing her has laid waste to my personal future but I realize I would have had no chance at a future without her raising me. The Lord hasn't brought us this far to put us down and forget our needs.
Please keep us in you're prayers.
She loves and appreciates me greatly, but I feel like the old man son, interested on the SSI check arrival. My Ambition is gone.
Hi Steve, you need to seek legal advice on what to do so that your Mom's assets aren't taken for future care. There are ways around that, and so paying for a good estate attorney would be worth your while and money. Please do this ASAP
It’s sad it’s like having amnesia all your memories are erased.you don’t even no what makes you happy anymore
You are not wrong
i ACHE FOR WENDY WILLIAMS
Really sad Bruce Willis will have to get through this, I hope somehow he gets well and healthy again.
Sorry man. This is a terminally illness. Once diagnosed there is no going back.
There is no coming back from this, their. Brain is mush…..dead before dying
He won’t sadly.
I wish people would be honest with the reality of some medical conditions.
It seems like most don't pay
attention to the seriousness if the condition isn't visible.
he won't
Just lost someone to this. She was not herself in the end. She was completely out of it. She had to be under 24-7 care and it ran the entire family down with stressing about who was coming and sitting with Granny. We tried to keep her out of the nursing home until it wasn't possible. She was falling and gets injured. She was alsocdoqbetic and she would hit people who tried to help or check her insulin levels. She was an amazing person who loves Jesus and did what was right for anyone she came across. She didn't care about things or money. She loved her family and cooking for them. Once she had to go into a nursing home they placed her into a lockdown unit and medicated her so all she would do is sleep and wake up be mean to everyone. She would use the bathroom on herself then spread that all over her room herself and other patients rooms in the unit she couod get to. She constantly teied to escape and she alsp stole other patients belongings. It broke me having to watch this unfold and i would not wish it on my worst enemy.
Wow this is sad 🙏etc.
God bless Amy.
So scary and sad.
My husband is the exact same as Mark .. didn't think there was anything wrong with him abd didn't care.
I pray to god/Allah/Buddha..et that we find a cure for this and cancer soon. This was so heartbreaking to watch