0:11 A 10-year progression of Alzheimer's 12:55 Frontotemporal Dementia 26:56 The Alzheimer's Laboratory (Part 1) 40:39 The Alzheimer's Laboratory (Part 2) 53:28 Master of the Mind (Part 1) 1:06:48 Master of the Mind (Part 2)
Does “sugar brain”. Can it be caused by diabetes or just consuming lots of sugars (any form of food that converts to sugar that the body cannot dispose of).
Procedure last an hour. How much does one treatment cost? Will any health plan cover any of the cost? What’s the estimated cost of one person’s addiction cycle (health incidences, jail, crimes to get a fix, parental neglect, generational trauma, etc) compared to combining early intervention at school and family and if needed these treatments for people addicted? Crime buys jailtime. But jail is not controllable nor geared to keeping drugs out nor does it seem aimed towards therapies. Lock up but then expect a person not feel loke thwy are still a caged animal.
The hardest part of my husband‘s dementia was one time when he was no longer speaking and just sitting in a wheelchair he suddenly started crying, and it broke my heart, because I knew he knew what was happening to him at that moment. I cry every time I think about it, we were married for 50 years
Wow, that's tough. I'm sorry you experienced this and you recall it to be sad.. so sorry to hear this. May you be with a peace of mind and not have the memory bring you sadness anymore. I do sincerely hope this for you.
Had the same experience...I went to the store ..left him with the person who helped me take care of him...I came in and started speaking...[ he stopped speaking also] he suddenly started crying I asked what happen...then realized it was the sound of my voice...he recognized it...I was so happy that he knew my voice since he didn't recognized me anymore.
My mother and. Grandfather died of it. You never had a hard job until this. If I forget something I think of this. By far the worst Joe ever by far....8 years of it will break you.
My wife had a stroke at 38 and she’s fully dependent on me. It’s been 6 years and this video is all too familiar and made me feel like I’m not alone. No one knows what a caregiver goes through until they become a caregiver!
I was a caregiver and delegated nurse, I used to say that too people as well. They think you only wipe butts for a living, you take care of Everything, every need. Emotional, physical, and medically. The reason why people hire us is because it's extremely difficult for the family. You must be exhausted in all ways 😢.
@@NumbersRnumbers went through the same thing with my mom at 68 and it almost took me down with her. I can only imagine how difficult it would be if it was my wife. If you want another story that's inspirational, check out the "stroke of madness" channel on youtube. Caregivers are true heroes - wishing you and your wife the best
@@haroldbell213so if this happens the person instantly dies and so forgetting to breathe symptom would be unproven, or the brain would be opened to check what caused the death
It's never for us to judge any situation when a loved one just disappears into something none of us understand 💯. So sorry for them all.what a cruel disease
Yes, my mom is going through that exactly. She's present but not there. It makes me extremely sad to the point of breaking down...then I leave. My poor dad lives this 24/7 at age 90. Life is very difficult right now.
Right he was doing all he could, but at that point she would want him to care for himself firstly, and live the best he could for the remainder of his life
i hv read somewhere that our brain need more oxygen and blood than other part of the body, did we do anything to our scalps? if the fascia is tight on the scalps, how is the lymph going to work? we can do scalp stretch by lifting our eyebrows and hold for few sec, repeat. Try doing at night. I hv symptoms of FTD a year ago. I heal myself thru accupressure on my head. for easier solution is stretch the scalp.
I was so impressed with the husband‘s response when the reporter asked, “but that’s not what you signed up for.” Referring to the role reversals and taking care of his wife. His response was a solid “Yes I did, when I took our oath”. That is a true man, a true husband. Loyalty and a sense of selflessness are things the world could use a little more of. LEGEND
Me too. I lived with my husband, who had dementia until he passed away, and it is heartbreaking, and I would never ever want to put that burden on my family.
Aww, Mike stole my heart when he declared lovingly, "I DID sign up for it!". What a charming man. Such a sad story. Condolences to all the families who lost a loved one like this ❤
It stinks to think that mom died twice from Alzheimer's once when she forgot who she was and who she loved their entire life and then again when she met the bitter end that awaits us all. It was a heartbreaking journey, but I would hold her hand through it again . "The brain may Forget but the Heart Will remember"
I have worked with people with all kinds of dementia diagnosis, and that quote at the end of your comment is so true. The patients I cared for may have forgotten a visit from a loved one moments after they left, but they were upbeat and content for hours. The memory fades, but emotions don't. It's a cruel illness, both for the person and their loved ones. I'll always be grateful that my father died before the disease developed too much in him. He had frequent clear moments when he was very aware of what was happening to him, and he cried a lot. It broke my heart watching him. He died suddenly from an aneurysm, and as painful as it was to lose him, I recognized what a blessing it was that he didn't have to struggle and worry anymore. I was already grieving the loss of the father I once had, so we both avoided years of emotional pain. Your comment hit me like an arrow to the heart. The love and sadness in what you shared about your mother was put to words in such a beautiful way, and it was very relatable. Thank you!
Mike is an absolute treasure, when he said how he hopes she dies before him truly broke my heart, because of how much he cares in spite of the rough situation.
My mom has dementia and it's heartbreaking. She used to be outgoing and social and now she looks "lost" and depressed. The most heartbreaking thing in life, imo, is watching your parents (or people you love) get old and weak.
So sorry that you and your mom and your entire family have to endure this. I'm sure you've heard it all before like, God bless you and all the other words of comfort, I only hope it helps. As for me, I mean the words I say. So from me to you, may God be with you now and forever. Sending positive thoughts &;energy your way
@dn9597, Just know that you are not alone. My mom has it too. It's devastating. My mom is my best friend. I have never had to explain anything to her about myself. It's my honor to care for her. It's the least I can do. I am exhausted but I would not do it any other way.
I have been diagnosed with Vascular Dementia in 2015. My husband is my all, as he stands by my side at all times. I do all that I can to stay mentally active but there's so many things that I cannot do anymore. I am now 65 years old and I was told when I was diagnosed that statistically after the diagnosis, people usually die within five years. I am grateful so far, to still be here.
I wonder how common your experience will become since the roll-out of the Covid vaccines. Excess illnesses and deaths have been on the rise in every nation since 2021. Either it's a major coincidence or I'm a crazy antivaxxer.
How much does diet play into Alzheimer’s and dementia? I know people that have these diseases and the amount of carbohydrates that they eat is insane. They do not exercise and, they eat and sleep horribly. And every single, one of them has type two diabetes and they take medication.
Please keep medication injuries like benzodiazepine injury in your differential. I was injured stopping Klonopin and realized immediately that my grandmother was suddenly having neurological issues a year after stopping a PRN Valium script she had taken the last 20+ years. The first thought it was Alzheimer’s, but she didn’t respond, perhaps even worsened. They turned around and reversed it right at the end to “advanced Alzheimer’s” but I’m certain after what I’ve learned that antidepressant injury and benzodiazepine injuries (especially tapering one like withdrawal akathisia and tardive akathisia.) “Bipolar” or “fibromyalgia” are practically “code” for these injuries. I had no idea medications could even do this? Then I went looking for answers and it turns out there have been over 200,000 hurt doctors, nurses, and patients who had been screaming about this harm online if I had just looked. Find Dr. Josef Witt-Doerring Psychiatry and hear about his work tapering injured patients. Watch his video interviews with benzodiazepine injured patients and antidepressant injured patients. Find Nicole Lamberson PA and hear about her benzodiazepine injury and listen to her discussions for the film “Medicating Normal”. Find Dr. Christy Huff MD and hear and her benzodiazepine injury and her work for The Benzodiazepine Information Coalition”. Christy just lost her life in March to her symptoms 5 years off. Read Robert Whitaker’s “Anatomy of an Epidemic”. Find Mark Horowitz. Medication harm isn’t even in a doctor’s differential. I went to the same international boarding school as Zuckerberg himself. Electrical engineering in college and I couldn’t be counted on to severe ice cream for children. It hurts to read or write. I had chronic akathisia and all kinds of neurological madness erupt after coming off Klonopin. My worst stuff took 4-18mths. Find JA Carter Windward or Dr.Stuart Shipko on Mad In American and read about this tardive harm. There are plenty of ways to simulate a dopamine blockade, especially during med switches and drug withdrawals that don’t involve a dopamine antagonists.
This dr deserves a Nobel peace prize award, thank you for all your time and energy, sacrifices, directed at such different illnesses, and doing so without judgment.
It's grieving the loss of the person while they're still physically present and completely dependent on you that is mindbendingly difficult. So hard to accept that the person you knew and loved is gone in every meaningful way while their body continues to function.
I've worked as a caregiver for someone with alzheimer's for awhile now. It steals everything, every piece of a person. The burden on the family is so insurmountably crushing. I'd go so far as saying it's worse than cancer.
Our family decided to keep my mom at home, so I quit my job and set up a team for mom's care. The family paid me, and I paid my team. We were told my mom only had about 4 to 6 months to live. Each family member had a role. My brother and his wife kept my dad company. Dad visited mom every day at my house where we would all have lunch together. My dad had care for my mom for 4years on his own. My sister who lived away was my Amazon person anything I needed for mom arrived the next day. Being at home surrounded by love, my mom lived 18mos. longer than predicted. It was wonderful to care for my mom there were days when she was lucid and knew me well and other days, I was the help. This all took a toll on my dad he passed away 6mos before my mom. It was an honor to care from my parents. I recommend it if you can, but it takes a team!
❤ That’s the way it should be. They cared for their children, in turn the children cared for them. That’s how we did for my 98 year old grandmother. Blessings
Unfortunately usually only one steps up for the most part,where the others only complain to what’s not being done, but they will come from Guam to get there inheritance 😮😢been there done that that! However it was an honor to take care of my failing parents!
Dementia is my fear. Not only would I not want my body to be here, but I wouldn't want to so severely burden anyone else. These poor people, it's so terribly awful.
It's awful, but we all can do it. I thank you for all that you share, so that we understand the till it takes on caregivers and the ones affected with this horrific disease 🙏🙏🙏🤢 Thank you Amie you are such a strong partner, wife, friend, mother and a caregiver. Take care of yourself please 🙏
My father died from Alzheimer's at 74. He was a bright, criminal lawyer with a photographic mind. I'm 67 now and I think I have 50-50 chance of getting it but I do a lot of things to keep me aware of everyhing and everyone around me. I do a lot of meditation early in the morning and physical and mental exercises. I do volunteer works which keep me busy every single day. I do not eat meat, fish or eggs. I honestly think that focus has a lot to do with it. I focus my life in serving others and God. My life is centered on how I can please God and others. There is nothing more fulfilling than this. I rarely think of Alzheimer's.
I was a CNA when I was 20 and I remember a young 42 year lady with dementia in the assisted nursing facility but everyone else was at least 30 years older than her. It broke my heart to know she didn’t get to enjoy living her life like everyone else and that her family didn’t either.
❤ 🙏🙏🙏 IT was heartbreaking VERY informative and there NEEDS to be MORE help available for caregivers to destress and have a little normalcy,so they can stay healthy too! MORE RESEARCH IS DESPERATELY NEEDED!
The first dementia segment was very well done. I would wish everyone could see this. I’ve been a geriatric NP for over 30 years and have seen so much devastation for both my patients and their loved ones. Seriously, well done
CNA - Thank you. It's gut wrenching. Caregiving for individuals with dementia/AZ is NOT EASY for ANYONE. Doing it professionally is even more tough. It's what you see here multiplied by 15 to 20, with lack of staff, GOOD staff, support from adminstrators and even SUPPLIES. Nothing is worse than my residents that receive NO visitors. None (until they pass...). Thank you for all your hardwork. ❤
I think A LOT of people do see it. My father. It was safer for him to go into a nursing home. He's long gone, but his heart is still beating and he still eats the mushy food that is put into his mouth.
@@JMSsssssssTbh, 40, 50 years ago, these patients would have died long since. We are keeping them ,,alive,, with medications. Is this cruel, or humane ???
@lottielane2486 they aren't giving my father anything special. His body is simply long outfunctioning his brain. It will ultimately be organ failure secondary to Alz that kills him.
i’m caring for my daughter-in-laws father, he is 90 and has dementia. i give my son and daughter-in/law a break for the summer. i’m a retired psych. nurse. He is a doll! he loves watching The Virginian (thank you FREEVE app). but getting him to take a shower is difficult. his appetite is great, He loves napping too!! I’m just glad i can care for him and giving the kids a break! wish everyone could have this kind of help!
I am crying as I watch this. I'm doing the same for my beloved wife Kellie. There is literally nothing I wouldn't do for her. Only my love for her keeps the fear of the future at bay.
i had it a year ago, i lost speech, ability to count and short term memory. I use accupressure on my head, do it everyday for 2 mths to get great improvement. Lots of muscus come out from nose and eyes for 2 weeks. Take dopa bean as vitamins. you can do it to urself because it need to be done everyday.
SO PROUD OF YOU. GOD HAVE A PURPOSE FOR YOUR LIFE. SO IMPORTANT TO TAKE CONTROL. EXERCISE INCREASES OXYGEN AND NUTRIENTS TO THE NEURONS FOR MAXIMUM REGENRATION. FACIAL MASSAGES TO SCALP BRAIN, STIUMATING ACTIVITIES FROM NEUROSUGEONS SLOWS PROGRESSION. IMPORTANT TO START EARLY, LOTS OF UP TO DATE RESEARCH NOW THAT REVERSES DEMENTIA, GO ON LINE, DO RESEARCH. PEOPLE LISTENING TO THIS WITH LOVES. ONES TAKE CONTROL.,
Keep strong buddy you’re not alone my mom is far gone with this disease and it doesn’t get easy and won’t lie that there has been moments I wish I had this diseases instead of my mom because my mom was always a good person to everyone. But always remember the good moments that you gone through with your wife and don’t give up. Remember you’re not alone on this.
Thank you for putting this together! It took me on a journey of seeing how an illness can progress, and how it also effects the people whom care for them, including the doctors. The last piece in this segment. Was a positive ending for an horrible condition(s)! Thank you 🙏
I took care of my mother for two years. She was helpless and had dementia. She didn't recognize me. I was 75 yrs old and she was 96 i finally had to put her in a group home I was just worn out
My husband’s father developed dementia about 7 years ago. 2 years ago we sold our house and moved in with his parents so we could help take care of both of them. My father-in-law was 87 when he passed away. He fell January 27th this year and had a subdural hematoma. Up until that point, he was walking and talking. He just didn’t know who we were and did not even recognize his wife. We brought him home from the hospital with hospice and he died 24 hours later. I’m a medical assistant so I took care of him. It was sad because my mother-in-law did not understand he wasn’t going to get “better”. Dementia is a cruel disease…for family and for the person who has it.
I'm so grateful to 60 minutes for airing this episode. And a huge thank you to Mike and Carol. I'm a mental health care professional. The role of the caregiver is not often addressed as well as the individual with the mental illness.
I just retired after 25 years as CNA in nursing homes and assisted living facilities for elder dementia and hospice residents in home health care aide. Pneumonia is big complications of dementia .Especially after a fall breaking the hip after surgery Pneumonia. This a horrible disease. I have watched rob some of the most brilliant minds of their memory mobility ability to verbally communicate able live alone even do simple task for their selves. 😢 💔
This is very true. I took care of my mother. It was one of the most difficult things I have ever done. I am 69 years old and I have Dementia too. I can so relate to both sides of these stories.
I take care of my 94 year old grandma and she doesn’t have Alzheimer’s but she’s a handful because she constantly wants to be doing something. I could never put her in a nursing home she took care of me when I was born and it’s the circle of life. She just lost my dad her youngest son in January and I’ll have to say God has made her a warrior. Bless these two! ❤
Unfortunately I simply don't have the emotional strength to get through all of this poignant and excellent video. I took care of my Mother and my Uncle who both had dementia. Mike is a great guy, and for his love for his wife, he has done what he had to do.
He’s very loyal and sweet. Unfortunately my Mom didn’t know how to handle my Dads Alzheimer’s and put him in a home, and decided to take him off of his “expensive” life saving medication to save money. We all begged her not to, and said we’d take him in and pay for the medication, but she insisted. Be careful who you marry and be sure that they’re in it for the long haul, and can handle the heavy burdens.
I feel for this man. I’m in the same position. My husband cannot take care of his own needs due to Alzheimer’s. It’s been six years. No communication any more. His mind is locked. I’m so exhausted.
I've been diagnosed with a brain tumor from 1995, which I contacted Erin Brockovitch Ellis. I live on Colorado River and Grandma lived on the Detroit River when she died. She was 60 years old and fought brain cancer for 3 years before death. Well. I'm still living and I drank water from the river. Erin told me to write to EPA regarding enforcing the Clean Water Acts. 🚱 When I wrote to EPA I couldn't believe the answer I got back. They refuse to enforce those laws. So idk if everyone has a water filter on their houses? How can I help people stay healthy? I've had 3x brain tumor surgeries, but idk how many more I may have? I'm 57 years old and counting.
our government is part of the reason why people are experiencing these diseases. Is everyone clueless of what’s been going on in and in America. That there’s things banned from certain countries that they won’t even allow in their food that America still does. All the processed foods that people eat the soda with all the chemicals in them I mean come on people let’s wake up here.
60 Minutes. You Make me LAUGH, you make me cry. But you never leave me wondering......the reason(s) WHY!!!! Kudos on another Masterpiece of journalism!!!
They call Alzheimers the long goodbye. My dad and grandmother had it and I'm deathly afraid of it. I'm exercising and trying to eat healthily to hopefully prevent it
I was diagnosed w frontal temporal dementia, then early onset Alzheimer's at just shy of 50. Im 57 now. My marriage did not survive this. He divorced me. "You are not you" I hear that SO MUCH. HELLO world 🌎 I'm still in here 😮😢
I lost both my parents in the past few months. My mother had dad Alzheimer’s, and my dad was her caregiver for many years and I know the stress is part of what killed him 3 months before we lost my mother to complications from Alzheimer’s. They both went from vibrant, happy, healthy and active people who traveled together and were very involved in the world to being unable to care for themselves at all. Alzheimer’s is a horrible, horrible disease, and takes a terrible toll on both the victim and their family.
Oh Mike, May God bless you with peace and understanding. I am caring in my home for my mother who is almost at the end of her life with dementia. It has taken a toll on me and my marriage, but I will try to care for her to the end. I’m only fifty, but so tired. My message to you…Please know you seem to be a great man who is trying to make the world a safe place for your wife for as long as you can. Please don’t feel guilt for trying to survive this devastating disease effects on spouses/ caregivers. Thank you all for sharing this…the information is needed.
I'm the same age as you Angela, 50 and taking care of my mother who has battled this disease for 10 years. My mom doesn't know who I am and the other month looked at a picture of myself and her, and didn't recognize herself. She said it was her sister. I'll say a prayer for you and your mom. Play her some of her favorite music, I know my mom's mood brightens when I do that for her.
I just lost my mother to this horrible disease. It really is a slow burn. My dad and my brother did an amazing job caring for my mom. I don’t think my dad could have done it alone I’m glad that brother was there with him to help him.
Heartbreaking. Great reporting on something that most people don’t think about but can happen to anyone, any family. One of those things that we don’t think about until it happens to us.
For me, it started with a loss of understanding of how to operate a washing machine. I just drew a complete blank. I now have a mild issue with typing. My fingers hit the wrong keys, and trying to think what to type doesn't help. I type one fingered and look at all the letters now. I reread EVERYTHING before sending. I used to love working on my cars. Did my own brakes, tuneups, and sensor changes. Now, it's not easy, and I have to watch videos over and over to prepare to do any car work. My vocabulary is noticeably reducing, which is so frustrating. I know I need to ask my GP to help me get to a specialist for full evaluation. My mother and grandmother developed dementia, alzheimers. I believe I am in early stages where it is affecting my daily life. Some days I feel clear. Others are darn near impossible to get started much less get things done.
SO PROUD OF YOU. GOD HAVE A PURPOSE FOR YOUR LIFE. SO IMPORTANT TO TAKE CONTROL. EXERCISE INCREASES OXYGEN AND NUTRIENTS TO THE NEURONS FOR MAXIMUM REGENRATION. FACIAL MASSAGES TO SCALP BRAIN, STIUMATING ACTIVITIES FROM NEUROSUGEONS SLOWS PROGRESSION. IMPORTANT TO START EARLY, LOTS OF UP TO DATE RESEARCH NOW THAT REVERSES DEMENTIA, GO ON LINE, DO RESEARCH. PEOPLE LISTENING TO THIS WITH LOVES. ONES TAKE CONTROL.,
Alzheimer's is my biggest fear. If i ever get to the point where I can't recognize my friends and family, or don't know who i am, then I'm already gone. I'd no longer be me. God forbid, if that ever happens, i want someone to pump me up with something to put me to sleep where i won't wake up. We spend so much money on weapons and war instead of figuring out cures for everything. It's so sad. 😟
So sorry to read this! I took care of my spouse until his journey with dementia ended almost 10 years ago. It definitely is THE LONGEST GOODBYE 😢 Prayers to all those walking this difficult journey 🙏
I’m a CNA and work with dementia patients. My heart breaks more for the families than the residents. It’s called the long goodbye because that’s literally what it is. I love what I do, but I get to go home. If you have family, neighbors, stop and chat, or offer to give them a break. Sometimes just having someone to talk to you, or run to the market is such relief.
Both of my grandmothers had it and my dad died with lewy body dementia. At 65 years of age I've already told my daughter "the plan" if the time comes. I will go t the Netherlands or another country and drink the cocktail with one of the assisted end of life clinics. I am not going to burden nor bankrupt my family by dragging it out and not even knowing who anyone is. Many may disagree but that is my choice and one I stand by. I hope and pray there will one day be a cure. Affordable cures that the drug companies do not try and manipulate.
I SO agree. We need this option in the states. I can't afford to go to the NL and I think you need to reside for a certain amount of time. So, my options would have to be self. This isn't cancer, and I almost wish I had a 6 week dx. Losing your brain is losing yourself.
I certainly understand what you are saying and would do the same. What a very selfless thing to do. I'm sure you're family would have you stay no matter what, buut sometimes we've got to make the decision for them.
Only at 8 minutes. I worked in facilities that provided care for these patients/clients. It is all heartbreaking but we treated them with care, honor and respect.
I can relate to every motion and feeling Mike had. I took care of my mother who died from DEMENTIA, for 3 and 1/2 years I could not leave her, she was dependent on me for EVERYTHING. I am glad I could do it, but it was by far the hardest thing I have ever done. RIP MOM. I love you.
Oh my, my hearts is breaking for both of them. My 83 yr old step mother has dementia and can’t do much anymore. My Dad, soon to be 91, is her full time care giver.
People should be allowed to decide for euthanasia in advance. I would not want to have my loved ones go through the pain for seeing me deteriorate to this. Its torture for everyone involved with a pinch of empathy.
I am 67. My wonderful step mom of 40 years died of Alzheimers last week at age 83 after 8 years. My father is 88 and they both lived in assisted living together until she fell, broke her hip and had to be moved to memory care/nursing home. He stayed in his assisted living across the street from his wife and saw her every day. My father chose to be involved with her care even with the staff. The stress he was under was evident to all. They live in Ohio and I went to the funeral and saw how far he declined in the 12 months since I saw him last. This couple in the story is beautiful and my heart is so sad for them. The husband obviously did not know what was in store for himself as a caregiver. I feel the husbands pain. People need to consult an estate attorney to try to preserve their estate well in advance if they can. Make plans for what if.....Putting a loved one in specialized care is the best thing to do for the person who has this disease. If not the caregivers life will be unbearable and shortened.
My mother in law had dementia and we cared for her in our home until she had to be put in a nursing home for her own safety. (she would try to walk the dogs when we slept and then fall on the sidewalk. She a hit her head at the end and almost bled out) .I’m adopted and found a half sister 3 years ago. She has early Alzheimer’s and I’m about to move her into my home. It touches all of us. I’m just glad I met my sister when I did. Two of my favorite women in this world have succumbed to this frustrating disease.
This makes me sad. My father-in-law recently passed. He had dementia and my mother-in-law was his caregiver. She is 79. She had hospice helping her. The children lived too far away. We often had to chase to him when she got ill. It is very difficult to experience. He is out of his misery and she can rest now but the loss does not make it easier.
I take care of my grandfather at 92 yrs old. We used to be st each other's throats as I got older. He left my abuella a long time ago and I hated him for it. Now I take care of him after being the only one that lives in the same state as him. Its been hard but I tell you what, being with him now has been one of the best blessings I have ever received. I really know my Puerto Rican heritage now that mom could never teach me. Watching him go from good to bad hourly is crazy,yet I've learned alot about the disease and how to work with it to keep him going. LoudLove
Omg this is the one of the best programs I have seen in my life. Having two sons with autism makes me wonder if this doctor is willing to work with people under the spectrum. Thank you do much 60m you are the best!!
Autism is not a disease, it’s a disorder. There is nothing to treat. You have to accept them as they are. Would you yell at the cat because it does not talk to you? (Bad example, sorry)
😢self-care is not selfish. It is so critical to care for a loved one. It doesn’t make the sorrow and challenges go away. But it is important for the survival of the care giver.
My wife and I had my mother living with us for the last three years of her dementia. For me, I made things more difficult for me and mom because I didn't learn how to let go of trying to tell her when she was repeating old news, responding inappropriately, and other things. I should have done so many things differently. There are great teachers out there on UA-cam (Teepa Snow is one). Mom's neurologists were less than supportive. Even though they promised to assign us a support person from their office, that person never called back after I left messages. That was the worst. I had been offered support but got very little. Even our experience with Hospice was a series of conflicting and confusing interactions until that one wonderful person who knew where mom was in her process. Please find those people who can teach you and guide you through this terribly sad and very difficult disease.
My uncle looked after my aunt with violent dementia until she died. When we said to him that she was lucky to have him, he replied that he was lucky to have had her in his life. 😢
My grandfather (thru adoption) had Alzheimer’s and lived about 10 years with it. Now, my sister who also lives with Down Syndrome has Alzheimer’s. It is hands down the worst disease you could have ever imagined happening to my sweet sister. Gone is the happy affectionate woman she was. It’s so sad.
I watched this heartbreaking episode 3 or 4 years ago. Anytime this type of conversation comes up, I reference this story. It’s devastating to think about, especially when Ive always said ‘no nursing homes’ I’ll sacrifice everything to take care of my elderly loved ones. Then to find out there’s a chance I may not be able to is hard for me to think about!
I work in them. I have vowed to NEVER let my father languish in one. I'd rather be in a homeless shelter caring for him than subjecting him to a nursing home. It's NOT safer. (It's supposed to be, but that's where they get dropped, don't receive their showers, might not get fed, might get abused.) But I understand that some don't have those options. Heads up - it doesn't matter if the nursing home is in Beverly Hills. There's a lot of crappy caregivers out there.)
My mother passed two weeks ago. Age 85. I lived this video. She had a Twenty+ year struggle with dementia. Eight years in "Memory" care. ALZ/dementia is a cruel disease.
@@lauraw.7008this is what my great aunt did after she broke her hip at 98. She drank little, ate nothing, said all her friends were dead, family gone and she was done. Yes! Aunt Ellene.
Get yourself into hospital where they can expose you to covid and then stop feeding you because it's hospital policy if the person is not expected to recover to full independent life after. That's how my dad went. He lived at home independently (he never told anyone he had been diagnosed) and only became incapable of fully taking care of himself a year before he died , cooking, taking meds etc and the toileting issue 6 months. He was in hospital for the last 3 months and then a nursing home for 6 days! That's it 3 months in hospital, finished him off. But the day they sent him to the nursing home was the day he gave up. Gave his friend a dirty look, turned his head the other way to state at a wall and never opened them again until an hour before he died and a tear rolled down his cheek as he stared at his grandson who lived with him 14 years since he took him in as a teenager. Cause of death was officially pneumonia but really it's starvation.
Amazing! It brings a lot of emotion to see such progress and hope for those afflicted with these heartbreaking brain disorders. Wonderful coverage of this topic.
Coming from a loving family full of love. My Mom selflessly kept my Dad home with her. She would accept and super appreciative of my kids helping in the early stages. Fortunately my Dad was never aggressive. The worst of it is my Mom was in great health before this started. With my Dads deterioration, he was hiding meds, money, etc. Years earlier my mom had a mechanical heart valve replacement due to a genetic condition. It required her to be on blood thinners afterwards. Well, as my Mom was so concerned about my Dad. Taking care of him and all that goes with that her own physical and mental health deteriorated. Combined with a heat wave, and a plumbing flood, she was so exhausted that it turns out she forgot to take her blood thinners. This resulted in her having a massive stroke that she died from within 10 days. I sure miss her. She was full of Love and such a great example. MyDad is now in a Memory care facility with great staff, and it’s close to home. He is thriving in this environment as good as can be. Please consider all options. 🙏
My mom was recently diagnosed with dementia. It’s hard as an only child… she doesn’t believe she has dementia. My daughter lives with her now. We have to sneak around to protect her from herself. I pray it doesn’t get worse than it is.
I found this film very helpful....I am aged 84, live alone after the death of my wife 5 years ago. I have a steadily deteriorating memory although still in good physical health. I struggle to remember people's names and where household items are placed in the house. I am blessed by having my 3 children and 4 grandchildren living within 10 miles and enjoy my electric bike on which I get almost daily exercise cycling in the local area.. But I am fearful for the future, air travel is intimidating on my own and living on my own is increasingly fearful. David McCabe Dublin Ireland.
@@davidmccabe4041 I live in Bermuda. I hope you find something today that puts a smile on your heart- take care David from Ireland 😊 sending you love and a hug
My girlfriend of forty years has alzheimers disease. Its terrible. My aunt had it also. When i paid her a visit she no longer remembered me. I cried afterwards and thats something I don't do easily. Hopefully theres something that can be done about it someday. Thanks for sharing.
My Dad has Dementia.. Last time home my brother went by. He was naked.. the neighbors said Dad was out naked earlier that day. Now he’s in a home. An apartment like, they watch over him as all the others.. the next day he doesn’t recall anything.. he wants to be home with his cats. mom died 6 years ago. Now Dad looks, and is so fragile. I live across the country. My 2 brothers takes care of him.. Breaks my heart.I’m crying now.. time stamp 5:46 I cannot watch anymore. Love prayers for all..🥺😢🙏🙏🙏🕊
We are going through this with my mom, also named Carol. My Dad won’t make plans, won’t acknowledge that it can/will get worse. His stress is off the charts. Incredibly hard. None of us kids live near them.
If at all possible get yourself near them. It really is our duty as children. It's the way it's set up to be. They raise us, take care of us, clothe us, feed us until we are 18. We then do the same in their time of need.
Thank you for this program. My mom is in the late stage of the disease. It is so painful to see her. Thank God so many brilliant doctors are working on a cure. God bless all of us. 🙏🙏🙏
My father passed away from complications of Parkinson's disease in December of 2020. Is heartbreaking what he went through. Now I wonder if that is how I am going to go because have been dealing with major depression for several years since he passed away. 😢
I father too suffered from Dementia, but only in his 80s, my mother had a tough time looking after him. It was coupled with acute diabetes and arthritis. Hats off to her that she was their to look after him .He felt us with great memories.
0:11 A 10-year progression of Alzheimer's
12:55 Frontotemporal Dementia
26:56 The Alzheimer's Laboratory (Part 1)
40:39 The Alzheimer's Laboratory (Part 2)
53:28 Master of the Mind (Part 1)
1:06:48 Master of the Mind (Part 2)
I went through it too. It's heartbreaking watching that first story. Much love
❤ 😊
Does “sugar brain”. Can it be caused by diabetes or just consuming lots of sugars (any form of food that converts to sugar that the body cannot dispose of).
Procedure last an hour. How much does one treatment cost? Will any health plan cover any of the cost? What’s the estimated cost of one person’s addiction cycle (health incidences, jail, crimes to get a fix, parental neglect, generational trauma, etc) compared to combining early intervention at school and family and if needed these treatments for people addicted? Crime buys jailtime. But jail is not controllable nor geared to keeping drugs out nor does it seem aimed towards therapies. Lock up but then expect a person not feel loke thwy are still a caged animal.
This story is 8 years old now. Do you have an update to this story ?
The hardest part of my husband‘s dementia was one time when he was no longer speaking and just sitting in a wheelchair he suddenly started crying, and it broke my heart, because I knew he knew what was happening to him at that moment. I cry every time I think about it, we were married for 50 years
Wow, that's tough. I'm sorry you experienced this and you recall it to be sad.. so sorry to hear this. May you be with a peace of mind and not have the memory bring you sadness anymore. I do sincerely hope this for you.
🙏🙌
Had the same experience...I went to the store
..left him with the person who helped me take care of him...I came in and started speaking...[ he stopped speaking also] he suddenly started crying I asked what happen...then realized it was the sound of my voice...he recognized it...I was so happy that he knew my voice since he didn't recognized me anymore.
May you both be blessed
God bless you❤
This husband is a man to be respected. Tears in my eyes. Thank you for sharing this story. ❤
He's feeding her to death
@@jakemelinkohow is he feeding her to death
@@Corazanaoroccç
My mother and. Grandfather died of it. You never had a hard job until this. If I forget something I think of this. By far the worst Joe ever by far....8 years of it will break you.
@@jakemelinkoinappropriate comment!!!
My wife had a stroke at 38 and she’s fully dependent on me. It’s been 6 years and this video is all too familiar and made me feel like I’m not alone. No one knows what a caregiver goes through until they become a caregiver!
Sending you love.
I was a caregiver and delegated nurse, I used to say that too people as well. They think you only wipe butts for a living, you take care of Everything, every need. Emotional, physical, and medically.
The reason why people hire us is because it's extremely difficult for the family. You must be exhausted in all ways 😢.
@@Shadoweknows76thanks for your kind comment! I try to do my best everyday because I know she would have done the same for me.
@@NumbersRnumbers went through the same thing with my mom at 68 and it almost took me down with her. I can only imagine how difficult it would be if it was my wife. If you want another story that's inspirational, check out the "stroke of madness" channel on youtube. Caregivers are true heroes - wishing you and your wife the best
Yes😢
I saw my mom “disappear” in front of my eyes for seven years. I would not wish Alzheimer’s on my worst enemy.
I've been through this for 8 years.. It will break you
They forget how to eat
They forget how to breathe.
My Dad is going through this.
This could be the worst thing to happen to a human being 😔@@haroldbell213
@@haroldbell213so if this happens the person instantly dies and so forgetting to breathe symptom would be unproven, or the brain would be opened to check what caused the death
The first story is so heartbreaking, but the husband stayed with his wife as long as he could♥️
It's never for us to judge any situation when a loved one just disappears into something none of us understand 💯. So sorry for them all.what a cruel disease
Yes, my mom is going through that exactly. She's present but not there. It makes me extremely sad to the point of breaking down...then I leave.
My poor dad lives this 24/7 at age 90.
Life is very difficult right now.
True love!
@philkim5834 I'm praying for you and your family. Keep God close he is here for you❤
Right he was doing all he could, but at that point she would want him to care for himself firstly, and live the best he could for the remainder of his life
What an absolutely sweet man. A real partner - the definition of a husband.
Cruelest disease ever. The loved ones suffer so much. 💔
So true. We do as much, if not more, than they do💔😪 Breaks your heart over & over but it's also an honor to be there for them💜
Nothing is as cruel as cancer
@@BklynSJU I've seen people die of cancer & its not good but dementia worse in so many other ways.
i hv read somewhere that our brain need more oxygen and blood than other part of the body, did we do anything to our scalps?
if the fascia is tight on the scalps, how is the lymph going to work? we can do scalp stretch by lifting our eyebrows and hold for few sec, repeat. Try doing at night. I hv symptoms of FTD a year ago. I heal myself thru accupressure on my head. for easier solution is stretch the scalp.
Yep. 💔
I was so impressed with the husband‘s response when the reporter asked, “but that’s not what you signed up for.” Referring to the role reversals and taking care of his wife. His response was a solid “Yes I did, when I took our oath”. That is a true man, a true husband. Loyalty and a sense of selflessness are things the world could use a little more of. LEGEND
Yeah, I'm absolutely side-eyeing that interviewer for that comment myself. It's pretty telling lol
I think I would rather be told I have a week to live than to be told I will slowly die from dementia over the course of 10-20 years.
I KNOW I would.
I think we all feel that way.
Absolutely
Me too. I lived with my husband, who had dementia until he passed away, and it is heartbreaking, and I would never ever want to put that burden on my family.
Yes
Aww, Mike stole my heart when he declared lovingly, "I DID sign up for it!". What a charming man. Such a sad story. Condolences to all the families who lost a loved one like this ❤
It stinks to think that mom died twice from Alzheimer's once when she forgot who she was and who she loved their entire life and then again when she met the bitter end that awaits us all. It was a heartbreaking journey, but I would hold her hand through it again .
"The brain may Forget but the Heart Will remember"
I have worked with people with all kinds of dementia diagnosis, and that quote at the end of your comment is so true. The patients I cared for may have forgotten a visit from a loved one moments after they left, but they were upbeat and content for hours. The memory fades, but emotions don't. It's a cruel illness, both for the person and their loved ones. I'll always be grateful that my father died before the disease developed too much in him. He had frequent clear moments when he was very aware of what was happening to him, and he cried a lot. It broke my heart watching him. He died suddenly from an aneurysm, and as painful as it was to lose him, I recognized what a blessing it was that he didn't have to struggle and worry anymore. I was already grieving the loss of the father I once had, so we both avoided years of emotional pain. Your comment hit me like an arrow to the heart. The love and sadness in what you shared about your mother was put to words in such a beautiful way, and it was very relatable. Thank you!
Me too 💔
Thank you for sharing your reflections. Been there, done that, and remain heartbroken.
Mike is an absolute treasure, when he said how he hopes she dies before him truly broke my heart, because of how much he cares in spite of the rough situation.
My mom has dementia and it's heartbreaking. She used to be outgoing and social and now she looks "lost" and depressed.
The most heartbreaking thing in life, imo, is watching your parents (or people you love) get old and weak.
😢
Or in extreme pain d......of cancer
So sorry that you and your mom and your entire family have to endure this. I'm sure you've heard it all before like, God bless you and all the other words of comfort, I only hope it helps. As for me, I mean the words I say. So from me to you, may God be with you now and forever. Sending positive thoughts &;energy your way
I agree my mom has dementia as well. Stay strong...xo
@dn9597, Just know that you are not alone. My mom has it too. It's devastating. My mom is my best friend. I have never had to explain anything to her about myself. It's my honor to care for her. It's the least I can do. I am exhausted but I would not do it any other way.
I have been diagnosed with Vascular Dementia in 2015. My husband is my all, as he stands by my side at all times. I do all that I can to stay mentally active but there's so many things that I cannot do anymore. I am now 65 years old and I was told when I was diagnosed that statistically after the diagnosis, people usually die within five years. I am grateful so far, to still be here.
I was the caretaker to both my father with lung cancer and my mom with advanced alzheimer both at the same time. Devastating yet humbling experience.
You are a hero. Sending you love and hugs
❤
True inspiration. I don't know you but I love you. It's hard.
God bless you
I wonder how common your experience will become since the roll-out of the Covid vaccines. Excess illnesses and deaths have been on the rise in every nation since 2021. Either it's a major coincidence or I'm a crazy antivaxxer.
This is so awful. People need to be able to make a choice about dying on their own terms rather than this torture.
I came here to say this. Where in this journey does Carol make a choice about dying with dignity?
Even as a neurologist, this is hard to watch. It reminds me of all my patients and their families with incredible challenges!😢
Thank you for your care for these people - I can only imagine. Hopefully medicine will progress quickly in this area!
I’m forgetting things just to remember like 5 min later. I’m 65 ! Don’t feel or look 65 ! So I don’t know what to do!!
How much does diet play into Alzheimer’s and dementia? I know people that have these diseases and the amount of carbohydrates that they eat is insane. They do not exercise and, they eat and sleep horribly. And every single, one of them has type two diabetes and they take medication.
Please keep medication injuries like benzodiazepine injury in your differential. I was injured stopping Klonopin and realized immediately that my grandmother was suddenly having neurological issues a year after stopping a PRN Valium script she had taken the last 20+ years. The first thought it was Alzheimer’s, but she didn’t respond, perhaps even worsened. They turned around and reversed it right at the end to “advanced Alzheimer’s” but I’m certain after what I’ve learned that antidepressant injury and benzodiazepine injuries (especially tapering one like withdrawal akathisia and tardive akathisia.)
“Bipolar” or “fibromyalgia” are practically “code” for these injuries. I had no idea medications could even do this? Then I went looking for answers and it turns out there have been over 200,000 hurt doctors, nurses, and patients who had been screaming about this harm online if I had just looked.
Find Dr. Josef Witt-Doerring Psychiatry and hear about his work tapering injured patients. Watch his video interviews with benzodiazepine injured patients and antidepressant injured patients. Find Nicole Lamberson PA and hear about her benzodiazepine injury and listen to her discussions for the film “Medicating Normal”. Find Dr. Christy Huff MD and hear and her benzodiazepine injury and her work for The Benzodiazepine Information Coalition”. Christy just lost her life in March to her symptoms 5 years off.
Read Robert Whitaker’s “Anatomy of an Epidemic”. Find Mark Horowitz. Medication harm isn’t even in a doctor’s differential.
I went to the same international boarding school as Zuckerberg himself. Electrical engineering in college and I couldn’t be counted on to severe ice cream for children. It hurts to read or write. I had chronic akathisia and all kinds of neurological madness erupt after coming off Klonopin. My worst stuff took 4-18mths. Find JA Carter Windward or Dr.Stuart Shipko on Mad In American and read about this tardive harm. There are plenty of ways to simulate a dopamine blockade, especially during med switches and drug withdrawals that don’t involve a dopamine antagonists.
@sherylskelley608 look into zero carbs and sugar diet. It's been known to really slow down the progression drastically.
This dr deserves a Nobel peace prize award, thank you for all your time and energy, sacrifices, directed at such different illnesses, and doing so without judgment.
Her husband Is so remarkable Thanks for sharing this story
He is amazing in all kind of ways❤ A very unique man❤
It's grieving the loss of the person while they're still physically present and completely dependent on you that is mindbendingly difficult. So hard to accept that the person you knew and loved is gone in every meaningful way while their body continues to function.
I've worked as a caregiver for someone with alzheimer's for awhile now. It steals everything, every piece of a person. The burden on the family is so insurmountably crushing. I'd go so far as saying it's worse than cancer.
alzheimer's has no pain right ?
@@MontyGumby it can be quite painful every day. Pain meds are frequently prescribed.
@@christinasisk2187 actual physical pain ? where ?
@@MontyGumby a quick Google check will probably answer your questions.
My husband has recently been diagnosed with MCI. Headaches daily.
Beautiful to see the commitment Mike has to Carol and the vow of marriage.
Our family decided to keep my mom at home, so I quit my job and set up a team for mom's care. The family paid me, and I paid my team. We were told my mom only had about 4 to 6 months to live. Each family member had a role. My brother and his wife kept my dad company. Dad visited mom every day at my house where we would all have lunch together. My dad had care for my mom for 4years on his own. My sister who lived away was my Amazon person anything I needed for mom arrived the next day. Being at home surrounded by love, my mom lived 18mos. longer than predicted. It was wonderful to care for my mom there were days when she was lucid and knew me well and other days, I was the help. This all took a toll on my dad he passed away 6mos before my mom. It was an honor to care from my parents. I recommend it if you can, but it takes a team!
God bless your family. It’s wonderful how all of you worked together.
❤ That’s the way it should be. They cared for their children, in turn the children cared for them. That’s how we did for my 98 year old grandmother.
Blessings
Me too.. such a blessing
Unfortunately usually only one steps up for the most part,where the others only complain to what’s not being done, but they will come from Guam to get there inheritance 😮😢been there done that that! However it was an honor to take care of my failing parents!
God bless you
"For better or for worse" What an amazing husband. 🙏🏽 bless them both.
Dementia is my fear. Not only would I not want my body to be here, but I wouldn't want to so severely burden anyone else.
These poor people, it's so terribly awful.
I would take pills to make me sleep forever. At least with cancer you are still aware and have your memory.
Same.
It's awful, but we all can do it. I thank you for all that you share, so that we understand the till it takes on caregivers and the ones affected with this horrific disease 🙏🙏🙏🤢
Thank you Amie you are such a strong partner, wife, friend, mother and a caregiver.
Take care of yourself please 🙏
If you don't want to get dementia, stay away from antidepressants
My father died from Alzheimer's at 74. He was a bright, criminal lawyer with a photographic mind. I'm 67 now and I think I have 50-50 chance of getting it but I do a lot of things to keep me aware of everyhing and everyone around me. I do a lot of meditation early in the morning and physical and mental exercises. I do volunteer works which keep me busy every single day. I do not eat meat, fish or eggs. I honestly think that focus has a lot to do with it. I focus my life in serving others and God. My life is centered on how I can please God and others. There is nothing more fulfilling than this. I rarely think of Alzheimer's.
we all going to the hole, who cares, you are going there anyway
@@ROXCANADA2023 The quality of life we live counts even after death. Birth, old age, disease and death happen to all of us.
I was a CNA when I was 20 and I remember a young 42 year lady with dementia in the assisted nursing facility but everyone else was at least 30 years older than her. It broke my heart to know she didn’t get to enjoy living her life like everyone else and that her family didn’t either.
Mike and Carol this is the greatest gift you could’ve given to the world. Thank you for allowing us to enter that world.
❤ 🙏🙏🙏 IT was heartbreaking VERY informative and there NEEDS to be MORE help available for caregivers to destress and have a little normalcy,so they can stay healthy too! MORE RESEARCH IS DESPERATELY NEEDED!
The first dementia segment was very well done. I would wish everyone could see this. I’ve been a geriatric NP for over 30 years and have seen so much devastation for both my patients and their loved ones. Seriously, well done
CNA - Thank you. It's gut wrenching. Caregiving for individuals with dementia/AZ is NOT EASY for ANYONE. Doing it professionally is even more tough. It's what you see here multiplied by 15 to 20, with lack of staff, GOOD staff, support from adminstrators and even SUPPLIES. Nothing is worse than my residents that receive NO visitors. None (until they pass...). Thank you for all your hardwork. ❤
I think A LOT of people do see it. My father. It was safer for him to go into a nursing home. He's long gone, but his heart is still beating and he still eats the mushy food that is put into his mouth.
@@unlistedandtwistedI guess the relatives feel that there is NO body to visit anymore, just a shell, who doesn't know who they or anyone else is. 😢
@@JMSsssssssTbh, 40, 50 years ago, these patients would have died long since. We are keeping them ,,alive,, with medications. Is this cruel, or humane ???
@lottielane2486 they aren't giving my father anything special. His body is simply long outfunctioning his brain. It will ultimately be organ failure secondary to Alz that kills him.
i’m caring for my daughter-in-laws father, he is 90 and has dementia. i give my son and daughter-in/law a break for the summer. i’m a retired psych. nurse. He is a doll! he loves watching The Virginian (thank you FREEVE app). but getting him to take a shower is difficult. his appetite is great, He loves napping too!! I’m just glad i can care for him and giving the kids a break! wish everyone could have this kind of help!
Get 2 pans of water and let him sit on toilet and bathe him that way.
I am crying as I watch this. I'm doing the same for my beloved wife Kellie. There is literally nothing I wouldn't do for her. Only my love for her keeps the fear of the future at bay.
Bless you. Ask for help...maybe a church member, your family. Take care of yourself. It's a hard road.❤
i had it a year ago, i lost speech, ability to count and short term memory. I use accupressure on my head, do it everyday for 2 mths to get great improvement. Lots of muscus come out from nose and eyes for 2 weeks. Take dopa bean as vitamins. you can do it to urself because it need to be done everyday.
Bless you both ❤❤
SO PROUD OF YOU. GOD HAVE A PURPOSE FOR YOUR LIFE. SO IMPORTANT TO TAKE CONTROL. EXERCISE INCREASES OXYGEN AND NUTRIENTS TO THE NEURONS FOR MAXIMUM REGENRATION. FACIAL MASSAGES TO SCALP BRAIN, STIUMATING ACTIVITIES FROM NEUROSUGEONS SLOWS PROGRESSION. IMPORTANT TO START EARLY, LOTS OF UP TO DATE RESEARCH NOW THAT REVERSES DEMENTIA, GO ON LINE, DO RESEARCH. PEOPLE LISTENING TO THIS WITH LOVES. ONES TAKE CONTROL.,
Keep strong buddy you’re not alone my mom is far gone with this disease and it doesn’t get easy and won’t lie that there has been moments I wish I had this diseases instead of my mom because my mom was always a good person to everyone. But always remember the good moments that you gone through with your wife and don’t give up. Remember you’re not alone on this.
Thank you for putting this together! It took me on a journey of seeing how an illness can progress, and how it also effects the people whom care for them, including the doctors. The last piece in this segment. Was a positive ending for an horrible condition(s)! Thank you 🙏
I took care of my mother for two years. She was helpless and had dementia. She didn't recognize me. I was 75 yrs old and she was 96 i finally had to put her in a group home I was just worn out
My husband’s father developed dementia about 7 years ago. 2 years ago we sold our house and moved in with his parents so we could help take care of both of them. My father-in-law was 87 when he passed away. He fell January 27th this year and had a subdural hematoma. Up until that point, he was walking and talking. He just didn’t know who we were and did not even recognize his wife. We brought him home from the hospital with hospice and he died 24 hours later. I’m a medical assistant so I took care of him. It was sad because my mother-in-law did not understand he wasn’t going to get “better”. Dementia is a cruel disease…for family and for the person who has it.
I'm so grateful to 60 minutes for airing this episode. And a huge thank you to Mike and Carol. I'm a mental health care professional. The role of the caregiver is not often addressed as well as the individual with the mental illness.
Wow what a stellar husband. A policeman with a big heart and and an unshaken love for his wife. Love those New Yorkers. ❤️
This is beyond heartbreaking. But THIS is what it means to truly love someone and be completely committed to them. God bless both of them...🙏
Yes! Really true love.
I just retired after 25 years as CNA in nursing homes and assisted living facilities for elder dementia and hospice residents in home health care aide. Pneumonia is big complications of dementia .Especially after a fall breaking the hip after surgery Pneumonia. This a horrible disease. I have watched rob some of the most brilliant minds of their memory mobility ability to verbally communicate able live alone even do simple task for their selves. 😢
💔
This is very true. I took care of my mother. It was one of the most difficult things I have ever done. I am 69 years old and I have Dementia too. I can so relate to both sides of these stories.
I'm so sorry you' both Alzheimer's. It's got to be double hard knowing what you are to meet.
🙏🙏🙏❤️
Thank you for reporting this. This needs exposure
I take care of my 94 year old grandma and she doesn’t have Alzheimer’s but she’s a handful because she constantly wants to be doing something. I could never put her in a nursing home she took care of me when I was born and it’s the circle of life. She just lost my dad her youngest son in January and I’ll have to say God has made her a warrior. Bless these two! ❤
Unfortunately I simply don't have the emotional strength to get through all of this poignant and excellent video. I took care of my Mother and my Uncle who both had dementia. Mike is a great guy, and for his love for his wife, he has done what he had to do.
“But that’s not what you signed up for”.
“Yes I did”.
Guy didn’t even have to think about it and was so confident in his answer. 🥺
That was true and honorable love. If only more people feel and think like that in this day and age.
In sickness and health - ❤
Don't you wish everyone who took their vows took them seriously. Too many couples give up as soon as it gets hard for whatever reason. Sad.
He pledged his life to her. He meant it. ❤
He’s very loyal and sweet. Unfortunately my Mom didn’t know how to handle my Dads Alzheimer’s and put him in a home, and decided to take him off of his “expensive” life saving medication to save money. We all begged her not to, and said we’d take him in and pay for the medication, but she insisted. Be careful who you marry and be sure that they’re in it for the long haul, and can handle the heavy burdens.
She still had her nails and hair done and beautiful clothes and jewelry. You can tell Mike took really good care of her.
I feel for this man. I’m in the same position. My husband cannot take care of his own needs due to Alzheimer’s. It’s been six years. No communication any more. His mind is locked. I’m so exhausted.
❤❤❤
We Love you stay strong
We hear you and send all the love, energy from the whole universe to get you thru what ever may come. Take good care of yourself.
❤❤
When you can't do it anymore, it is ok to reach out for assistance including skilled nursing facilities. ❤
Mike is a true example of a real man! 🙏🏾 We could all only wish for a love like Ms Carol got within our life time.❤ God bless them both.
Our government MUST help caregivers!
I wish more Americans understood what they can demand from our government.
I've been diagnosed with a brain tumor from 1995, which I contacted Erin Brockovitch Ellis. I live on Colorado River and Grandma lived on the Detroit River when she died. She was 60 years old and fought brain cancer for 3 years before death. Well. I'm still living and I drank water from the river.
Erin told me to write to EPA regarding enforcing the Clean Water Acts. 🚱 When I wrote to EPA I couldn't believe the answer I got back. They refuse to enforce those laws. So idk if everyone has a water filter on their houses? How can I help people stay healthy? I've had 3x brain tumor surgeries, but idk how many more I may have? I'm 57 years old and counting.
our government is part of the reason why people are experiencing these diseases. Is everyone clueless of what’s been going on in and in America. That there’s things banned from certain countries that they won’t even allow in their food that America still does. All the processed foods that people eat the soda with all the chemicals in them I mean come on people let’s wake up here.
totally.
That is the heartbreaking facts. It is the hardest sacrifice to take care of the elderly and sick especially when they are your parent.
60 Minutes. You Make me LAUGH, you make me cry. But you never leave me wondering......the reason(s) WHY!!!! Kudos on another Masterpiece of journalism!!!
They call Alzheimers the long goodbye. My dad and grandmother had it and I'm deathly afraid of it. I'm exercising and trying to eat healthily to hopefully prevent it
Mushrooms-lions mane and pscilocybin
The long goodbye...😐😐😐 how accurate and sad it sounds...sad but true...
I was diagnosed w frontal temporal dementia, then early onset Alzheimer's at just shy of 50. Im 57 now. My marriage did not survive this. He divorced me. "You are not you" I hear that SO MUCH. HELLO world 🌎 I'm still in here 😮😢
My mom died of Alzheimer's two years ago, at age of 75. My dad stood by her until his death at 79. Both my grandmothers died of Alzheimer's.
It’s a horrible disease. Watching your spouse with this is heartbreaking 💔 Us caregivers have so much grief and stress
The financial burden of getting caregivers is so frustrating 😢
I lost both my parents in the past few months. My mother had dad Alzheimer’s, and my dad was her caregiver for many years and I know the stress is part of what killed him 3 months before we lost my mother to complications from Alzheimer’s. They both went from vibrant, happy, healthy and active people who traveled together and were very involved in the world to being unable to care for themselves at all. Alzheimer’s is a horrible, horrible disease, and takes a terrible toll on both the victim and their family.
Sorry for your both mom and dad. RIP
Praying for you Mike & Carol.May God bless you both.
Oh Mike, May God bless you with peace and understanding. I am caring in my home for my mother who is almost at the end of her life with dementia. It has taken a toll on me and my marriage, but I will try to care for her to the end. I’m only fifty, but so tired. My message to you…Please know you seem to be a great man who is trying to make the world a safe place for your wife for as long as you can. Please don’t feel guilt for trying to survive this devastating disease effects on spouses/ caregivers.
Thank you all for sharing this…the information is needed.
I'm the same age as you Angela, 50 and taking care of my mother who has battled this disease for 10 years. My mom doesn't know who I am and the other month looked at a picture of myself and her, and didn't recognize herself. She said it was her sister.
I'll say a prayer for you and your mom. Play her some of her favorite music, I know my mom's mood brightens when I do that for her.
Hang in there. You'll get through it
I just lost my mother to this horrible disease. It really is a slow burn. My dad and my brother did an amazing job caring for my mom. I don’t think my dad could have done it alone I’m glad that brother was there with him to help him.
Heartbreaking. Great reporting on something that most people don’t think about but can happen to anyone, any family. One of those things that we don’t think about until it happens to us.
For me, it started with a loss of understanding of how to operate a washing machine. I just drew a complete blank. I now have a mild issue with typing. My fingers hit the wrong keys, and trying to think what to type doesn't help. I type one fingered and look at all the letters now. I reread EVERYTHING before sending. I used to love working on my cars. Did my own brakes, tuneups, and sensor changes. Now, it's not easy, and I have to watch videos over and over to prepare to do any car work. My vocabulary is noticeably reducing, which is so frustrating. I know I need to ask my GP to help me get to a specialist for full evaluation. My mother and grandmother developed dementia, alzheimers. I believe I am in early stages where it is affecting my daily life. Some days I feel clear. Others are darn near impossible to get started much less get things done.
Praying for you🙏🙏
❤ 🙏🙏🙏
SO PROUD OF YOU. GOD HAVE A PURPOSE FOR YOUR LIFE. SO IMPORTANT TO TAKE CONTROL. EXERCISE INCREASES OXYGEN AND NUTRIENTS TO THE NEURONS FOR MAXIMUM REGENRATION. FACIAL MASSAGES TO SCALP BRAIN, STIUMATING ACTIVITIES FROM NEUROSUGEONS SLOWS PROGRESSION. IMPORTANT TO START EARLY, LOTS OF UP TO DATE RESEARCH NOW THAT REVERSES DEMENTIA, GO ON LINE, DO RESEARCH. PEOPLE LISTENING TO THIS WITH LOVES. ONES TAKE CONTROL.,
I am so sorry ❤
Alzheimer's is my biggest fear. If i ever get to the point where I can't recognize my friends and family, or don't know who i am, then I'm already gone. I'd no longer be me. God forbid, if that ever happens, i want someone to pump me up with something to put me to sleep where i won't wake up.
We spend so much money on weapons and war instead of figuring out cures for everything. It's so sad. 😟
I agree with you
Me too! 😢
Check out the Carnivore lifestyle. You will be very surprised. Check out Dr. Anthony Chaffee. Check out metabolic syndrome .
@@visco154 30 seconds in, and I'm sure I consume WAY too much sugar. And pasta. Gotta sleep rn, but I'll check it out, thank you. Have a nice weekend.
I’m crying this is so beautifully human. What an amazing couple. What incredible man.
Carol Ann Daly
APRIL 18, 1943 - MARCH 25, 2022
May she rest in peace.
Awe! 😢
So sorry to read this! I took care of my spouse until his journey with dementia ended almost 10 years ago. It definitely is THE LONGEST GOODBYE 😢 Prayers to all those walking this difficult journey 🙏
🙏🏾
Took care of my best friend for 6 years...
So sad to watched him lose everything...
Rest in peace...
😔😔🙏🏻🙏🏻💜
I’m a CNA and work with dementia patients. My heart breaks more for the families than the residents. It’s called the long goodbye because that’s literally what it is. I love what I do, but I get to go home. If you have family, neighbors, stop and chat, or offer to give them a break. Sometimes just having someone to talk to you, or run to the market is such relief.
If only I’d had this…
Both of my grandmothers had it and my dad died with lewy body dementia. At 65 years of age I've already told my daughter "the plan" if the time comes. I will go t the Netherlands or another country and drink the cocktail with one of the assisted end of life clinics. I am not going to burden nor bankrupt my family by dragging it out and not even knowing who anyone is. Many may disagree but that is my choice and one I stand by. I hope and pray there will one day be a cure. Affordable cures that the drug companies do not try and manipulate.
I've put this in my advanced directive.
I SO agree. We need this option in the states. I can't afford to go to the NL and I think you need to reside for a certain amount of time. So, my options would have to be self. This isn't cancer, and I almost wish I had a 6 week dx. Losing your brain is losing yourself.
@@Bugsybear2 Yes, along with my DNR.
Vermont is the first state to allow terminally ill ppl from other states to go there to end their life. Thank you Vermont!
I certainly understand what you are saying and would do the same. What a very selfless thing to do. I'm sure you're family would have you stay no matter what, buut sometimes we've got to make the decision for them.
Only at 8 minutes. I worked in facilities that provided care for these patients/clients. It is all heartbreaking but we treated them with care, honor and respect.
I can relate to every motion and feeling Mike had. I took care of my mother who died from DEMENTIA, for 3 and 1/2 years I could not leave her, she was dependent on me for EVERYTHING. I am glad I could do it, but it was by far the hardest thing
I have ever done. RIP MOM. I love you.
Oh my, my hearts is breaking for both of them. My 83 yr old step mother has dementia and can’t do much anymore. My Dad, soon to be 91, is her full time care giver.
People should be allowed to decide for euthanasia in advance. I would not want to have my loved ones go through the pain for seeing me deteriorate to this. Its torture for everyone involved with a pinch of empathy.
Same ...
Cant imagine that ever happening but maybe in time
Absolutely. Pro-Choice for one's own life, the life of one's own fetus, and for one's own passing.
@@2_thumbs_up_baby some states allow it.
@@Valturnaqueen interesting
My Grandmother had this. It's so heartbreaking 💔 I pray one day soon they discover a cure for this 🙏
I am 67. My wonderful step mom of 40 years died of Alzheimers last week at age 83 after 8 years. My father is 88 and they both lived in assisted living together until she fell, broke her hip and had to be moved to memory care/nursing home. He stayed in his assisted living across the street from his wife and saw her every day. My father chose to be involved with her care even with the staff. The stress he was under was evident to all. They live in Ohio and I went to the funeral and saw how far he declined in the 12 months since I saw him last. This couple in the story is beautiful and my heart is so sad for them. The husband obviously did not know what was in store for himself as a caregiver. I feel the husbands pain. People need to consult an estate attorney to try to preserve their estate well in advance if they can. Make plans for what if.....Putting a loved one in specialized care is the best thing to do for the person who has this disease. If not the caregivers life will be unbearable and shortened.
Thank you for encouraging people to consider a nursing home. 🙏
My mother in law had dementia and we cared for her in our home until she had to be put in a nursing home for her own safety. (she would try to walk the dogs when we slept and then fall on the sidewalk. She a hit her head at the end and almost bled out) .I’m adopted and found a half sister 3 years ago. She has early Alzheimer’s and I’m about to move her into my home. It touches all of us. I’m just glad I met my sister when I did. Two of my favorite women in this world have succumbed to this frustrating disease.
These stories are heart wrenching! And the scary part is that this could happen to any of us. 😢
Why are the rates so high in the Occident…
@@lulazeta8965A Spaniard came to town and they are all descendants of his.
This was aired before.
I'm 53. My neurologist told me I got 20 on the test. Dementia. Now my insurance is deciding if I really need further testing.
@@chandrawood7594 THATS THE REAL CRIME....
This makes me sad. My father-in-law recently passed. He had dementia and my mother-in-law was his caregiver. She is 79. She had hospice helping her. The children lived too far away. We often had to chase to him when she got ill. It is very difficult to experience. He is out of his misery and she can rest now but the loss does not make it easier.
The last doctor deserves a Nobel price.❤❤❤
That would be Dr. Ali Rezai
I take care of my grandfather at 92 yrs old. We used to be st each other's throats as I got older. He left my abuella a long time ago and I hated him for it. Now I take care of him after being the only one that lives in the same state as him. Its been hard but I tell you what, being with him now has been one of the best blessings I have ever received. I really know my Puerto Rican heritage now that mom could never teach me. Watching him go from good to bad hourly is crazy,yet I've learned alot about the disease and how to work with it to keep him going. LoudLove
Omg this is the one of the best programs I have seen in my life. Having two sons with autism makes me wonder if this doctor is willing to work with people under the spectrum. Thank you do much 60m you are the best!!
Autism is not a disease, it’s a disorder. There is nothing to treat. You have to accept them as they are. Would you yell at the cat because it does not talk to you? (Bad example, sorry)
Caregivers should be highly appreciated and respected.
It's not easy to care for dementia patients 😕
This should be seen in schools all around the nation!
Including public middle schools. Most kids that age are curious and can be persuaded about life's important choices.
My thoughts and prayers are with all fellow viewers, family, friends and sufferers of such heartbreakingly sad neurological dementias / alzheimers.
😢self-care is not selfish. It is so critical to care for a loved one. It doesn’t make the sorrow and challenges go away. But it is important for the survival of the care giver.
Wow...Such a heartbreaking story... EVERYONE should see this..
My wife and I had my mother living with us for the last three years of her dementia. For me, I made things more difficult for me and mom because I didn't learn how to let go of trying to tell her when she was repeating old news, responding inappropriately, and other things. I should have done so many things differently. There are great teachers out there on UA-cam (Teepa Snow is one). Mom's neurologists were less than supportive. Even though they promised to assign us a support person from their office, that person never called back after I left messages. That was the worst. I had been offered support but got very little. Even our experience with Hospice was a series of conflicting and confusing interactions until that one wonderful person who knew where mom was in her process. Please find those people who can teach you and guide you through this terribly sad and very difficult disease.
My uncle looked after my aunt with violent dementia until she died. When we said to him that she was lucky to have him, he replied that he was lucky to have had her in his life. 😢
Thank you 60 minutes for this report. Instead of funding forever wars... fund research...for forever cures.
Intelligent idea. Very much so.
So agree!!!!😑
🙏🙏🙏❤️
My grandfather (thru adoption) had Alzheimer’s and lived about 10 years with it. Now, my sister who also lives with Down Syndrome has Alzheimer’s. It is hands down the worst disease you could have ever imagined happening to my sweet sister. Gone is the happy affectionate woman she was. It’s so sad.
I watched this heartbreaking episode 3 or 4 years ago. Anytime this type of conversation comes up, I reference this story. It’s devastating to think about, especially when Ive always said ‘no nursing homes’ I’ll sacrifice everything to take care of my elderly loved ones. Then to find out there’s a chance I may not be able to is hard for me to think about!
I work in them. I have vowed to NEVER let my father languish in one. I'd rather be in a homeless shelter caring for him than subjecting him to a nursing home. It's NOT safer. (It's supposed to be, but that's where they get dropped, don't receive their showers, might not get fed, might get abused.) But I understand that some don't have those options. Heads up - it doesn't matter if the nursing home is in Beverly Hills. There's a lot of crappy caregivers out there.)
Thank you. May God bless you and family
My sister takes care of my mother, sis is retired navy nurse if it gets to be to much for sis, I will go help
My mother passed two weeks ago. Age 85. I lived this video. She had a Twenty+ year struggle with dementia. Eight years in "Memory" care. ALZ/dementia is a cruel disease.
Just put me to sleep if this happens. We should have this choice.
You do. Grab a belt
If you are in the untied states, and are terminally ill, there are states where dying with dignity is legal. You can die peacefully.
@@yeeebayeeba4268an easier choice is to just stop eating if you find out before you lose your faculties.
@@lauraw.7008this is what my great aunt did after she broke her hip at 98. She drank little, ate nothing, said all her friends were dead, family gone and she was done. Yes! Aunt Ellene.
Get yourself into hospital where they can expose you to covid and then stop feeding you because it's hospital policy if the person is not expected to recover to full independent life after. That's how my dad went. He lived at home independently (he never told anyone he had been diagnosed) and only became incapable of fully taking care of himself a year before he died , cooking, taking meds etc and the toileting issue 6 months. He was in hospital for the last 3 months and then a nursing home for 6 days! That's it 3 months in hospital, finished him off. But the day they sent him to the nursing home was the day he gave up. Gave his friend a dirty look, turned his head the other way to state at a wall and never opened them again until an hour before he died and a tear rolled down his cheek as he stared at his grandson who lived with him 14 years since he took him in as a teenager. Cause of death was officially pneumonia but really it's starvation.
Amazing! It brings a lot of emotion to see such progress and hope for those afflicted with these heartbreaking brain disorders. Wonderful coverage of this topic.
This is just heartbreaking and understanding at the same time.
Coming from a loving family full of love. My Mom selflessly kept my Dad home with her. She would accept and super appreciative of my kids helping in the early stages. Fortunately my Dad was never aggressive. The worst of it is my Mom was in great health before this started. With my Dads deterioration, he was hiding meds, money, etc.
Years earlier my mom had a mechanical heart valve replacement due to a genetic condition. It required her to be on blood thinners afterwards. Well, as my Mom was so concerned about my Dad. Taking care of him and all that goes with that her own physical and mental health deteriorated. Combined with a heat wave, and a plumbing flood, she was so exhausted that it turns out she forgot to take her blood thinners. This resulted in her having a massive stroke that she died from within 10 days. I sure miss her. She was full of Love and such a great example. MyDad is now in a Memory care facility with great staff, and it’s close to home. He is thriving in this environment as good as can be. Please consider all options. 🙏
My mom was recently diagnosed with dementia. It’s hard as an only child… she doesn’t believe she has dementia. My daughter lives with her now. We have to sneak around to protect her from herself. I pray it doesn’t get worse than it is.
I am so scared of what the future holds with dementia 😢 57 years old
God take my hand and never leave it
I found this film very helpful....I am aged 84, live alone after the death of my wife 5 years ago. I have a steadily deteriorating memory although still in good physical health. I struggle to remember people's names and where household items are placed in the house. I am blessed by having my 3 children and 4 grandchildren living within 10 miles and enjoy my electric bike on which I get almost daily exercise cycling in the local area.. But I am fearful for the future, air travel is intimidating on my own and living on my own is increasingly fearful. David McCabe Dublin Ireland.
Take care of yourself David from Ireland- sending you love and hugs
@@happygucci5094 thank you for your encouragement....may I ask what country you live in? David living 12 miles south of Dublin ireland
@@davidmccabe4041 I live in Bermuda. I hope you find something today that puts a smile on your heart- take care David from Ireland 😊 sending you love and a hug
🙏🙏🙏❤️
My girlfriend of forty years has alzheimers disease. Its terrible. My aunt had it also. When i paid her a visit she no longer remembered me. I cried afterwards and thats something I don't do easily. Hopefully theres something that can be done about it someday. Thanks for sharing.
My Dad has Dementia.. Last time home my brother went by. He was naked.. the neighbors said Dad was out naked earlier that day. Now he’s in a home. An apartment like, they watch over him as all the others.. the next day he doesn’t recall anything.. he wants to be home with his cats. mom died 6 years ago. Now Dad looks, and is so fragile. I live across the country. My 2 brothers takes care of him.. Breaks my heart.I’m crying now.. time stamp 5:46 I cannot watch anymore. Love prayers for all..🥺😢🙏🙏🙏🕊
We are going through this with my mom, also named Carol. My Dad won’t make plans, won’t acknowledge that it can/will get worse. His stress is off the charts. Incredibly hard. None of us kids live near them.
Give him permission to put her in a memory care unit. 1 person alone can NOT care for an ALZ person. It takes teams of staff, round the clock.
If at all possible get yourself near them. It really is our duty as children. It's the way it's set up to be. They raise us, take care of us, clothe us, feed us until we are 18. We then do the same in their time of need.
@nickinurse6433 AM in a small rural area and there is two of these centers within a hour of where I live here in the Upper Peninsula of Michigan. 😊
@@Skipbo000some parents didn't do all that and some did but kids don't return the favor
How devastating. I hope all caregivers can find some reprieve.
Thank you for this program. My mom is in the late stage of the disease. It is so painful to see her. Thank God so many brilliant doctors are working on a cure. God bless all of us. 🙏🙏🙏
My father passed away from complications of Parkinson's disease in December of 2020. Is heartbreaking what he went through. Now I wonder if that is how I am going to go because have been dealing with major depression for several years since he passed away. 😢
So much money 💰 🤑 💸 in the USA 🇺🇸 and there should be a cure by now.
I father too suffered from Dementia, but only in his 80s, my mother had a tough time looking after him. It was coupled with acute diabetes and arthritis. Hats off to her that she was their to look after him .He felt us with great memories.