It is so important this type of medical information is available so relatively easily. There is nothing "wrong" with anyone who has a condition they were born with. We are all multicellular life forms that are innately complex in development and across a lifetime.
I was told at 17 I had uterine and vaginal agenesis but no one gave me a name for this syndrome until I was much older. I actually found out about my syndrome with an online search! I cannot tell how happy I am to see videos like this! Thank you for helping people like me feel less like a freak!
Malmal Phil, though we do not know each other but we can help each other tnrough words of encouragement. That's what I need before when i found out my situation. Bit seems like no one understand my feelings. I struggle a lot, i cried a lot, and looked at myself like a desperate one. The only thing I did is I often cried it to God. He carried me into a long journey of my life. As time goes by, God helps me understand why its all happen. God's allow it so that the power of God will be shown in our life. There's a lot of things that happen in our life that its hard to understand. But we can trust our Creator. He has the best plan for us. Let's continue to pray and have hope that one day God will make us whole. Then, our Life will be a testimony of the goodness, love and grace of God.
Just incredible and so much inspiring!! My friend with MRKH told me she couldn't stop crying herself to sleep, every time she saw a pregnant woman it was like getting stab in the stomach.. She said her biggest fear in life was to not be able to have kids..Now the situation is changing. She did meet her Mr Right and together they're passing surrogacy in Ukraine to have a baby. Of course things got on hold because of covid-19 pandemic. Hoping it won't last for too long..
Being a girl that love child but a MRKH patient really make my heart hurt so much. I feel like i will faced with hardship and difficulty in my love live. It make me fear to even try to find love or seek for marriage. I know that there must somewhere who able accept this condition but it's not easy.
26, I found out at 21. I was buzzing! So long as it doesnt have long term effects the last thing I'd wanna do is treat it 😅 love the video, very informative
Hi I'm responding late but I just wanted to tell you this. I know exactly how you feel. I felt the same when I got diagnosed. It takes time to accept and embrace it. And it's totally okay if it takes a long time! It is a long and difficult process but you'll get there. Then you'll realise that this diagnosis doesn't define who you are!❤ only you can define that😊 I wish you the best in this process and hopefully you'll love every part of yourself one day! You deserve that :)
I mean you couldn't help it so you shouldn't really feel bad about it . And I'm sure there's more to you than what you can't do if you figure out what you can do instead
I am 24 and i am diagnosed with this syndrome.. this video is really helpful and inspiring .. thanks for this ❤️ i did an online research and found out that it has a treatment but i have not contacted any doctor in this matter for now because i hesitate to ask my indian parents about this ..i just wanted to know can i be treated ever or any age boundaries ?
I'm 27 year old.. I never had period... Ultrasound report results that I have hypoplastic uterus.. Both overies are normal shape, size, place. Both overies are unremarkable. Doctor examine and said there is absence of vagina. What do i do next???
I want to know why. If your seeing this tell me if your mom did any of the things my mom did while pregnant. She ate McDonald's everyday and she smoked. I think one of these things caused it but I can prove it if all of us had one or the other.
It is so important this type of medical information is available so relatively easily.
There is nothing "wrong" with anyone who has a condition they were born with.
We are all multicellular life forms that are innately complex in development and across a lifetime.
I was told at 17 I had uterine and vaginal agenesis but no one gave me a name for this syndrome until I was much older. I actually found out about my syndrome with an online search! I cannot tell how happy I am to see videos like this! Thank you for helping people like me feel less like a freak!
You're not alone in this kind of syndrome. Im one also...We are beautifully and wonderfully made by God.
@@Maishue1473 yes we are!
Malmal Phil, though we do not know each other but we can help each other tnrough words of encouragement. That's what I need before when i found out my situation. Bit seems like no one understand my feelings. I struggle a lot, i cried a lot, and looked at myself like a desperate one.
The only thing I did is I often cried it to God. He carried me into a long journey of my life. As time goes by, God helps me understand why its all happen. God's allow it so that the power of God will be shown in our life.
There's a lot of things that happen in our life that its hard to understand. But we can trust our Creator. He has the best plan for us. Let's continue to pray and have hope that one day God will make us whole. Then, our Life will be a testimony of the goodness, love and grace of God.
@@waheedabegum1148 I don't know. 😪
I'm so sorry honey. Have you found a support group?
I'm 48 and have MRKH. This was one of the best videos I've seen about the subject.
Just incredible and so much inspiring!! My friend with MRKH told me she couldn't stop crying herself to sleep, every time she saw a pregnant woman it was like getting stab in the stomach.. She said her biggest fear in life was to not be able to have kids..Now the situation is changing. She did meet her Mr Right and together they're passing surrogacy in Ukraine to have a baby. Of course things got on hold because of covid-19 pandemic. Hoping it won't last for too long..
Wow .. even I have MRKH and I hope I also get a mr.right just like ur frnd
Uterine transplants are happening now!
She is blessed
Can you pls tell me which agency she go to to get the surrogacy done in Ukrain please I’m having mrkh and dream to have kids 😔😔😔
Being a girl that love child but a MRKH patient really make my heart hurt so much. I feel like i will faced with hardship and difficulty in my love live. It make me fear to even try to find love or seek for marriage. I know that there must somewhere who able accept this condition but it's not easy.
26, I found out at 21. I was buzzing! So long as it doesnt have long term effects the last thing I'd wanna do is treat it 😅 love the video, very informative
With this condition I always see myself as useless especially with the part of the world I have found myself 😢😢 it's so difficult leaving with it
Hi I'm responding late but I just wanted to tell you this. I know exactly how you feel. I felt the same when I got diagnosed. It takes time to accept and embrace it. And it's totally okay if it takes a long time! It is a long and difficult process but you'll get there. Then you'll realise that this diagnosis doesn't define who you are!❤ only you can define that😊 I wish you the best in this process and hopefully you'll love every part of yourself one day! You deserve that :)
I mean you couldn't help it so you shouldn't really feel bad about it . And I'm sure there's more to you than what you can't do if you figure out what you can do instead
I am 24 and i am diagnosed with this syndrome.. this video is really helpful and inspiring .. thanks for this ❤️ i did an online research and found out that it has a treatment but i have not contacted any doctor in this matter for now because i hesitate to ask my indian parents about this ..i just wanted to know can i be treated ever or any age boundaries ?
Hello Prachi, I am also going through same issue. Where can I reach out to you, may be we can discuss and share the resources for a better health?
My name Homaira Jannat.. Bangladesh... Prachi what steps have you taken?dilator or surgery?? I'm depress 😔😔.i want contact with you.
Hy...I want to talk to with you bcoz I have also this problem please can we talk?
I have very good solution about it mrkh coz I am also suffering from this
I m also MRKH syndrome patient
I feel so sad because I'm one of them ..I have MRKH
Nice presentation ....👌👌 Perfect
Condition very well presented!
What could possibly be the reason for the lesions appearing perpetually all around groin area and lining vagina?
surgery for mrkh have any age limt?
I think I have mrkh 2. I have scoliosis, bicornate uterus and hearing loss.
Is there any serious side effects that can cause after the surgery.
I'm 27 year old.. I never had period... Ultrasound report results that I have hypoplastic uterus.. Both overies are normal shape, size, place. Both overies are unremarkable. Doctor examine and said there is absence of vagina. What do i do next???
Same to uh sister
😔😔😔😔😔
When u read my msg talk to me
Hii afshana
How old are you..?
Any age limit for vaginal surgery?
Plz your fb id.. I'm female.. My name Homaira
I want to know why. If your seeing this tell me if your mom did any of the things my mom did while pregnant. She ate McDonald's everyday and she smoked. I think one of these things caused it but I can prove it if all of us had one or the other.
No, my mother was very careful when she was pregnant😢
literally praying i have this rn because im asexual and have zero interest in having kids