My Thyroid Cancer Story - What a Month - 02/05/2023
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- Опубліковано 10 жов 2024
- Well sh*t, here we are a video series I didn't think I would have to make, on 03/10/2016 I was diagnosed with thyroid cancer.
I will be vlogging my treatment, thoughts and recovery when I can. If you are watching this and have any questions please ask.
I hope someone finds these useful.
If you like you can subscribe to follow my story.
Find me on Twitter @asksenseiplater
Guys got a broken freakin' neck, broken arm has been through hell and he is worried about getting us a video to keep us updated. Absolute legend, thinking of you Joe.
Thought are with you bro absolute Warrior bro you're an inspiration
Lamp
My spine broke but I refused surgery. It's tough i can sort of understand all my joints dislocate too
Lamp ❤
Legend, keep it up and be yourself and what you want!
"If I knew dying would be such a drag then I would have given it a hard pass." - My grandmother, days before her passing.
She sounds like a legend! I’m sorry for your loss nevertheless.
@@HCB-lb5og She had a sense of humour that sort of reminds me of Joe. But she got to live until she was 95, life was fair to her.
"At least I don't have to go to that damn family reunion..." -My mother, upon discovering she had stage 4 pancreatic cancer.
You are one incredible individual. You have been through hell, and you still have such candid eloquence. I admire your stoic nature, and I have been entirely moved by you. Bless you, sir. Thank you for all of your posts. You matter Joe. You always will.
I’ll second that he’s amazing he has so much resolve and to me will always be one of life’s heroes for many reasons ♥️
Beautifully said. I have so much respect for you, Joe. ❤️
We all love you Joe.
Lamp!! You are incredible, the courage and determination you show is humbling. I hope you are as comfortable as you can be. Thank you for sharing your journey and the pragmatic outlook you share. You matter and are loved and respected
Thank God you have your mind and your voice. I use you as a consumer I am a nurse. You cant learn what you teach. You have privileged us with A LIVED EXPERIENCE OF CANCER - we all must learn the difference between managing,
1 well being
- SYMPTOMS
and
2 disease
- DIAGNOSTICS TREATMENT ASSESSMENT AGGRESSIVE MONITORING and acute care.
Symptom relief - physical and emotional is PALLIATIVE CARE - it’s humour ,opioids,cake,scotch,caviar, lollies!old cheeses,music,tears,oxygen,fluids,love,love,hugs,kisses,pets,albums,friends, family, long hand holding .
When will we get this !
So much gratitude and strength love music and laughter.
You are living you legacy.
Share this everyone.
At the end of your days
what would you want for those you love the most ?
what would you want for you.
Think about it !
Thankyou. You beautiful beautiful human.
Laugh, cry, do whatever YOU want.
Xxxxxx❤
“As long as I have breathe I won’t stop fighting” Joe Plater. He kept his word. Love and light Joe. ❤️💙❤️💙❤️💙✨✨✨
You’ll lose. Everyone is dying as each day passes.
Norm MacDonald on battles with cancer: “I’m pretty sure, I’m not a doctor, but I’m pretty sure if you die, the cancer dies at the same time. That’s not a loss. That’s a draw.”
Exactly, cancer never wins
What a wonderful way to see it .
So, you think he should die to defeat the cancer. That is a shitty view no offense.
Happily surprised to see a norm quote here.
I loved this sentiment from Norm so much that I shamelessly stole it for a eulogy at my uncle's funeral.
Because, as norm also said: "stealing things is the highest form of flattery". RIP Norm and RIP Uncle Donny
Many of the bodies cells survive for a little while after death.
You are allowed to cry. You are allowed to feel tired. You are allowed to feel what you are feeling due to what you are going through. You are an amazing person Joe. Anyone that says anything harsh such as you're faking crying for views, has NO idea what it's like to live with what you're dealing with and they'd cry too. I know you've got limited time, but I'm always glad to see videos of yours and knowing you're still here. Keep fighting for your comfort because you deserve to be comfortable with whatever time you have left with the world.
Thank you, for sharing your story with us. Despite it not being easy to share your story to a lot of random people on the internet, it's a story that will for sure inform and help a lot of people in the future.
Tragic that even when in hospice dying of cancer that someone might be afraid to show emotion. Shame on everyone in Joe's life, including UA-cam commenters, that created that toxic of an environment.
@@rgemail no one in my life created that, I show emotion when I think its appropriate, I've always tried to focus on facts during my videos and not get too emotional thats been my choice.
@@JoePlater fair enough my man. In that case let's just say you have a very British sense of when posessing emotions may be appropriate. In some sense we're all products of our environment. But I hear you nobody really wants to be the sobbing wreck in the face of adversity - just saying it would be very understandable.. maybe outside the Queens territories. lamp.
I can actually see the high charged emotions in joe.
All his micro expressions give alot away ....
...even the silent smiles whilst staring at the camera
after hes said something utterly awful....
I see his invisible tears, frustration and anger .
Its heart breaking to watch...
Joe can do what he likes , but he reminds me of " stiff upper lips " of the british .
...but im not sure he realises how much we already see ..
Just hope he also understands people give suggestions of new treatments
..not just for him, but for everyone else who has thyroid cancer
..who may be seeking help and still fighting...
It might be a god send to someone ..
You never know .
Joes channel helps many others who are dying ...
I hope to god he leaves this channel open forever
..to help everyone ..patients , doctors ,, medical staff alike...
After all , we are always learning.
The channel is a great documentary and will be comforting and informative to current and future victims of Thyroid cancer facing awful life expectancy estimates. He was given what, months to live and is still out here kicking 4 years later.
It's a net positive that he isn't entertaining every novel treatment idea the internet can imagine outside the ones with lots of real medical research supporting them. There are too many folks who can be convinced there is no need for painful chemotherapy and radiation when you can just rub mint on your temples or whatever, and those people would be actively harmed by reading yet another anecdote on 'new' treatments that will bolster their insistence on avoiding real medicine. Early and aggressive treatment is pivotal for long term survival in cancer paients, so those people who avoid hospitals will almost certainly die sooner for having put their lives in the hands of anecdotes. There are endless other places on the internet to find a bounty of herbs and techniques and guesses on how to 'treat cancer "naturally"' for them to find.
I hope you know that your strength, personality, and sense of humour will be remembered by many watching you across the globe. I've never met you, but through these videos, I've come to really appreciate everything you represent as a human being. Sorry life was so tough to you - you didn't deserve this at all. But you have, and will continue to inspire many people with your videos.
So very true…
💕🙏🏻💕🙏🏻💕
You seem to be handling it with composure and dignity. As a fellow cancer sufferer around the same age, I find it inspiring.
As a fellow stage 4 who just had a curve ball and lying in specialist unit trying to fight multiple issues. Thank you for this and wishing you as many pain free and joyful hours & days that you can have x
I wish you all the best and hope you'll be okay
I am wishing the same for you Angel, many joyful days, months...years. I
God bless
I'll say a prayer for you - I hope for your health to return strong 💪
I've been having some symptoms for months now been to hospital loads of times been told every time it's not cancer but my throat been at me they been say its in my head and I'm worried all the time don't mean to prye but did being really gasy at night and in the morning mostly come up in ur thoughts and not being able to sleep would be a great help if any 1 thinks or experienced I'm very sorry to hear wat ur going through ur very brave and a inspired thing u are doing try to help and inform people wish u the best from Ireland 🇮🇪
Truly sad that he passed away a few days ago.. Condolences to his family and may his story help others..
You have more courage in your little finger than most people have in their entire body xx
Lamp. I'm just a random internet nobody but I want you to know you and your story have touched me deeply. Thank you for the update and thank you for always being your amazing self.
I agree - well said
No words. You're incredible. Wish more people in this world would be as straightforward and real as you are.
Watching you has changed my entire look on life and I’m not scared to say I’ve cried watching every single one of your videos. I’ve taken my life for granted and at 45 I’m healthy and everything works. I make such a huge deal about ageing and it’s made me mentally unwell as the years progress, I’ve no idea why I suffer so much over something so trivial but I do. After watching your videos I’ve started to change my mindset as well as way of living. I’ve stopped smoking after 30 years, will never touch one again. I’ve gone to the gym and feel more settled in cherishing my years on this earth instead of dreading them. You have the axes to grind even though u don’t ever complain, what you’re going through is crueler than cruel and incredibly difficult for me to watch. I do it out of sheer respect and admiration for you but also to help me try and enjoy my existence since none of us know when that’s gonna change, you are proof of that. I’m terribly sorry for what’s happening to you but I’m incredibly proud of you for keeping such positivity through these toughest of times. My father passed away at only 62 with prostate cancer and I watched him go from the dad I knew to a thin skeleton laying in a bed not able to hold his bodily functions, talk or walk, it’s a loss I will never be able to move on from but listening to you gives me a little more strength, I’ve no idea why but you single handedly have changed my entire view on how I feel and how I see things. You’re absolutely incredible and I salute you and want to say thank you.
You did not know that we all die ?
@@fatoumata7624 I cant answer a stupid question like that which has no bearing on the post I've written. If you want an answer then ask a question which warrants one
@@leemcarthy4550 what you shared was a beautiful thing.
Don't let anyone tarnish it.
Wish more people were willing to change their outlook, and recognize that as Joe has said, "life is equal parts joy and misery. And if it wasn't, it would be effin boring."
The reality is, we train ourselves to see the joy or the pain.
Very few of us choose to actively train ourselves to see both.
Good journey to you!
@@leemcarthy4550 Good answer not rude but to the point respect
I love your comment. Your honesty is refreshing. Be well, my friend💞
Stage 4 for going on 11 years. Starting new chemo this week and have gained strength from seeing you pushing on. May you find relief from physical pain and comfort with those you love for as long as you are able to.❤
Caroline you've been at stage 4 for 11 years? What type of Thyroid cancer do you have. Wishing you the best.
This gives me hope! I'm stage 4 nine months in with an outlook of 2 years lucky to get 5.
I hope I make it as far as you have ❤
Stage 4 Men2a thyroid cancer and now 15 years metastaic in spine,liver, lungs, now adrenals pheocytochroma sending love Caroline keep fighting this horrible fight u got this Joe is such an awesome guy isn't he sending you both love and my thoughts through everything thrown your way❤❤
Stage 3b metastatic thyroid cancer with BRAFV600E mutation and some tall cell variant. 10 yrs this Halloween. Cheers to 10 more, finger 🤞 crossed. 1 paralyzed vocal cord from 5 cm tumor in thyroid. i think it's worse for men. We need more help finding cures for this. I'm a women. First diagnosed at 38.
Lamp!! Joe you are an inspiration, always. My Dad passed of Anaplastic thyroid cancer, he was tough, he would never mentally give in during life, always find a way to push forward. He grew weak. At some point in the weeks before he passed, he quietly told me he was running out of fight. He was ashamed of that. I told him that there is no shame in honesty. It’s ok to have days where you just can’t, you have cancer for goodness sake. He would sometimes cry, and feel ashamed because he was not a crier in normal life. Again, there is zero shame in being wide open and honest. His pain was, as you were in, full pain, physical and spiritual and emotional and mental pain. He had days where he was more stable, we had great laughs on those days which I’ll always treasure. Dad wanted to die at home, and because Marie Curie, Hospice At Home, and other similar options were not in the catchment area, I moved back home to care for him, to let him die where he wanted to.
Joe, I only tell you this because I want you to know that you too are more than entitled to cry, to run out of steam on some days, all days, whatever the case may be for you. This is your time. If you need a softer pillow, it’s your right to have it. You are still the driver of your own train, and while the train may keep puffing along while you are taking some well deserved rest, it’s puffing along because of your prior instructions and wants and needs. You can take time off while still being in full control.
As a nurse myself, I would like to say that I agree entirely with everything you said about the hospital. While I have never visited nor worked in that specific hospital, it’s an awful epidemic nationwide. There are sadly, nurses and other staff members, who in the midst of overwork and underpay, forget that people are individuals with opinions and thoughts and family and entitlement. One of the things that I despise is how we treat our dementia patients, nurses often think that the louder they speak, the better a confused patient will hear, it makes no sense. While I was a ward sister, I really truly came down on that sort of treatment, and I would like to offer my sincerest apology on behalf of my profession.
Take this example if you will. A confused patient in pain who needs to be turned and cleaned for fear of bedsores forming or worsening. Example A: staff hold down the patient while talking louder and louder, despite the voicing of fear and pain. The reasoning is bevause it needs to be done, there are a million more patients and this patient is just holding up the process line, so we tell them that. “You realise you are just holding us up while there are people more poorly than you here that need us much more than you do”.
Example B: same patient as before, same reasoning for turning and cleaning. We lower ourselves to the patients level, we speak softly and calmly and explain the what, where, when and why of the process. Even if they don’t understand us, we treat them with the same respect and explanation as though they did. One nurse holds a hand and talks softly with eye contact, while the other nurse starts the washing, slowly and gently. Perhaps this patient says he will only tolerate this once his family arrives. That’s ok, he may have an odour, but we juggle our order of jobs to revisit him later. Perhaps he has too much pain for this, so we assess and treat pain to the best of our ability firstly, and return in an hour to see how his pain is…. Perhaps we can clean his top half now, lower half later. Something that I really dislike is when newer nurses assume every patient is unable to do anything. If the situation allows, I will always hand the patient a washcloth and suggest they get to work on their face and hands, while I do harder to reach areas…. Often times the patient will continue and wash most of their body themselves. If they need help, we give it. Distraction is key, we talk about pets, family, tv shows, we build a rapport with that patient regardless of if they are staying for an hour, or a month. Human to human contact and kindness is key. We still have a million jobs to do, but that patient will never know that we are in a rush, because when we are with him, our focus is on him. He didn’t ask to be here, he would rather not be here, and our workload is not his concern.
Sadly, I left bedside nursing for this very reason. There is a saying in nursing, the moment you stop feeling, it’s time to leave. I had to leave because so many staff members had stopped feeling due to huge demands, and I couldn’t bear to see it anymore. I tried my best to advocate for everyone, and make it a better place, but being just 1 nurse I failed. I moved into trauma and anaesthetics, then left my job to are for my dad for 3 months from diagnosis to his passing. Unfortunately, I have been left with quite severe CPTSD for various reasons, and am at present too unstable to return to work.
Hospice is an entirely different thing, and I’m so glad you found somewhere that looks at you holistically, is able to talk to you and sit with you, and allow you to sit back and take that well needed break while still being the boss of your own train. My auntie was a nurse, and in her day, the staff would have to whisper at night, and check patients quietly by torchlight, ensuring the best environment for sleeping, as sleeping is so important to the body, whether to get better, or to manage the dying process easier. Thesedays, it’s a shitshow … it doesn’t surprise me that people were cleaning around you at 5am. You are in a great environment now. Make it a home from home, be demanding if you want, you are entitled to the things you want and need. This is a time for you, your family and your loved ones now, and I hope you can settle in to the new normal for now. With lots of love and huge respect, from Jo (Cotswolds, UK 🇬🇧)
Wow! Your comment made me teary-eyed. I wish we had more nurses like you in this world 💜
I hear you. But. As a nurse you can't feel all the time. I gather you did... but you also left.
@@Lyndzi85 bless your heart, I think most nurses (and other similar related patient care roles) begin with full optimism. The workload is beyond what I could explain, but I do feel that that human connection is key. There are also times when we have to be a little harder with patients, it varies person to person and situation to situation. But on the whole, I do feel that kindness and care is so important. Sending blessings. X
@@monaebreak561 I agree so much. You can’t feel all the time. There are times when you have to switch off, if only for your own mental health protection. I faltered in that area, I was unable to switch it off. I felt deeply for all of my patients. I have left nursing for now while I get over some of the harrowing things I saw while caring for Dad (I won’t go into details as dear Joe may read and I’d hate for him to think the same may happen to him, unfortunately Dad just got dealt a really shit deck of cards and had a super rough time especially at the end). But I still retain my nursing pin, and will be returning to work someday. Until then, I think it would be irresponsible of me to put myself in a position of care for others while only just being able to care for myself and my children at present, but, with hard work and lots of therapy, it’s getting easier everyday.
I would like to thank you from the bottom of my heart for all that you do as a nurse. It’s not an easy profession, and goodness knows we don’t enter this profession for the non existent “perks”, the pay isn’t great. But without people like you, sticking with it, pushing through the pandemic and just putting one foot in front of the other, we would be in a really crappy situation as normal citizens, so thank you for all you do. You are wonderful xxx
This video is so heart-wrenching but you still manage to make me laugh -- you listing all the fake "cures" and telling "big pharma" loons to shut the fu*k up was my personal favourite moment. Your complete intolerance for bullshit is a beautiful aspect of your character, and has probably steered some vulnerable people away from that nonsense. Your videos are life-saving and I'll forever be grateful I found your channel. I look forward to the next upload. Lots of love. Lamp.
The light you still have in your eyes is something amazing. There is something really powerful in how you “watch us” through your camera and you are trusting us with your honest message.
You are a magnificent human being…
Lamp 💡
I’m in a similar situation. My Cancer treatment has side effects that totally wipe me out. I’m thinking of quitting. Your journey has helped me immensely. You do you young man. Your courage is inspiring. We will both pass soon. I salute you young Man. I wish you the best. I’ve learned how to cope with Cancer thru you.
Sometimes, you just have to let go, Lester. The earth and humanity has existed before and will exist still after you, so there are times when you realize you can't stop Fate.
I'm so very sorry ❤
I wouldn't call it quitting Lester. You are only doing what you think is best for you and your situation. Your quality of life is far more important than quantity. I wish you all the best. I am just starting out on my cancer journey and have no idea where it will end up, but if I die, the cancer dies too. It will not beat me.
Whatever you need to hear right now, pretend I just whispered it in your ear. ❤
Good luck!
My heart is broken , what a wonderful and amazing man , RIP dear one and I’m SO relieved you are finally at peace now 🕊️
You continue to articulate your shit show beautifully. Lamp
The entire health care INDUSTRY should adopt the Hospice care model. Joe, you will be in my thoughts here on in. By the way, the video and audio was perfect. Heartfelt gratitude.
When I was first diagnosed with melanoma, I had some send me a message. At first, I was thinking how nice. And then I read it. Basically, I was told I had caused my cancer because I ate meat and if I changed my diet, I wouldn’t need surgery, chemo or radiation. I blocked her.
I am a nurse and my heart broke when I heard about your care. I hope hospice is good for you.
Much love to you.
I had that happen as well. Thyroid cancer with braf mutation, they don't know why I got cancer? But asked me if I had been in chernobyl or Fukushima. ❤
My grandmother told my mom, the day she was diagnoses terminal, which was on my f-ing high school graduation, that she didn't get to feel bad because she "didn't subconsciously NOT want cancer enough" so that's why she had cancer. I hate that woman with every fiber of my being. She and my grandfather were kicked out of my life.
@Michelle R.T. stay strong lovely lady. You did exactly the right thing cutting your toxic grandparents out of your life. They did exactly the wrong thing treating your mum like that. Hoping you have a great life and spend it happily on your own terms.
Your pupils are different sizes. Is that from the brain cancer ? Lamp 🪔
Hey Joe, we are still here with you and send you much love and hugs and comfort. You are such a wonderful inspiration to so many, more than you know.
Keep fighting Joe, you are an absolute warrior 💜
I love your sense of humor and the way you tell off big pharma and even your providers. I absolutely adore my oncologist who's been nothing but kind and honest with me and I can't see myself saying anything negative to him. It's not his fault I have stage 4 met breast cancer to ribs, spine, long bones, lung and lymph. I'm ok for right now but already going into my 3rd year after diagnosis and I don't have a lot of "good time" left. I eat what I want, sleep a lot and watch movies and tv and read books. I try to exercise and walk a lot but I'm more tired than ever. I'm not sad, not resentful, not negative. It's time to sort of "go with it because there's nothing I can do to stop it". All I can do is hope for painfree comfort on my way out when it happens. That's what I wish for you, Joe---peace and comfort. Still gonna pray for your atheist arse! HUGS from Alabama!
Hey Joe, we never met but you feel like the friend i never had, but wanted. Huge respect to you, i have learnt much of myself through your journey.
Well said
I second that! also: LAMP!
🎉
Awh !
I honestly don't know how you do this - documenting your declining health and morale. You're amazing.
How dare anyone accuse you of crying for likes?
Lamp, lamp, lamp, lamp, lamp, lamp . . .
Hey Joe, great to see you, we’re all thinking about you and wishing well to your family. Hope you can find meaning in the time that you have
Lamp
I have been following you for such a long time I lost track. I think you are a fascinating man that is going through an incredibly hard time. I wish I had pearls of wisdom to share but unfortunately I do not. I will continue to look forward to hearing from you.😘
Thanks for the update, you still make laugh when you start about obscure treatments and big Pharma haha , I love it, hope all goes well and glad you are out of the hell hole , take care, I look forward to your next video…. Lamp …..
Amazing isn’t strong enough a word to describe you. I wish peace for you so you can feel better ❤ during the time you are here no matter what that looks like. Give yourself grace for being up and down in your emotions lesser people who are well aren’t doing as well as you are. How could you not expect to be down, in pain, losing options and wanting against all that to continue to live. It’s not too much to ask for. It’s the least you deserve. I only wish someone could help you my friend.
Just don’t see the light
Never seen you before, but you popped up on my stream. I see you now, and you are mighty. Thank you for your generous spirit. Peace.
Lamp… because you ARE the light 💡 even though the journey was dark you held your head high ❤ RIP brave soldier.
Lamp! The freaking courage you have Joe
You're right about people telling you to try some alternative treatments. They don't work, it's nonsense.
But we can be grateful for the Facts and Science we have today! Please don't forget that.
O, and Lamp of course!
Thank you for updating Joe. It can’t have been easy. I don’t think anyone really cares about any technical shortfalls, we’re here because we care about you and are invested in you, not your tech. It sounds like a really rough week, I hope radiation gives you some relief, and I’m glad you’re in a place that can care for you more appropriately, the Hospital sounds horrendous. Sending you support and best wishes from Oz.
Couldnt have said it better myself xx
2nd watch through of this video…I learn new insights every time. I love when you said,”People criticize me for crying to get clicks…I have cancer you idiots. It hurts.” I butchered the quote…but I have cried so many times because of the intense pain. Keep being real Joe. I love ya man!!!! Keep fighting. So inspiring to another Stage 4 thyroid guy.
Never forget you Joe, Your courage and intelligence shined through all the pain you suffered. You put others first to tell your story in order to help others. A real hero. You are missed. Hope someone writes your story, it should be read.
Be at peace wherever you are. Your fans and friends loved you.
Glad to see you!!
You've come a very, VERY long way, and it's okay for you to be tired, just like you said. It's okay to cry, too. You're at the highest peak of this mountain, you've been through so much, you've seen so much, you're been robbed of a lot- but I hope at the very least youve been surrounded by love the entire time.
You yourself as so strong for how hard you've fought, and you've done everything in your power- and that in itself is inspiring. I can't know what you've been through, I'm only 19, but you make me cherish the little things and inspire me to pursue medicine and cancer research in hopes of even bumping something a little further along for people. Because you deserve the world, you deserve a long, prosperous life and time with your wife and family. I wish I could give you my own time, as lame to think as that it.
Lamp!!
Farewell for now, Joe. Be well,
"Lamp Joe Plater bringing the light to UA-cam", kidding :). I can`t explain why I love to see you so much and share your experience even tho is something so horrible you are living trough. You really change the way I see so many things, and I'm gratefull that you let us be a part of your existence. Thank you from Argentina (WHAT A REACH JOE🤣😚)
Thank you for sharing your story.
I lost my sister to stomach cancer on the 30th of January. She was 44.
She fought so hard and so long, and I always wondered what was going through her head, it sounds mad but we didn’t talk about it much, she didn’t want to and we respected that.
Towards the end she was totally shut down. Lost in “total pain” as they call it.
We all tried to second guess what she may be thinking or feeling and react the right way and do the right things - I know I worry I may have made mistakes. Some days I was just there, I hope that was enough.
Your videos have given me an insight into what she may have been thinking and feeling and I am comforted by that, tho you and she were different people, your stories and attitudes to it all are so eerily similar. She was given no hope but she was as tough as they come, just as you are.
LAMP fella, and thank you again.
Best wishes.
x
Dear Joe, despite all of cancer's attempts over the years, there's one thing it's never been able to take away from you : your charm ! It's always there: when you laugh, when you cry, when you're scared, when you're calm, when you have hair, when you don't... Screw you cancer, you can never steal that !
Look up bravery and courage in the dictionary (yeah I’m that old…pre-Google) and you’ll find this man’s name and picture. Still keeping you in my thoughts and prayers. Lamp! You’re a beacon of light!
Lamp! 100% Facts courageous and brave. #JoePlater
You're one brave guy, Joe. I admire your strength and honesty and hope things even out for you now you're settled in the hospice. Shining a light on this horrible disease is selfless and very important work. I wish you peace and happiness for the time that you have. Stay strong, Commander.
Lamp, sending love and strength❤️
LAMP. ❤️ Searing honesty is hard to hear, Joe, but you’re not sparing us any of your experiences. I have no wish to see you suffer any more, but I can see you want to relish what life you have while you can. Thank you Joe, that’s all I can say. May your final journey be as peaceful and pain free as possible. You have left a huge impression on me and so many others. Love and peace to you and yours. ❤
Lamp. You are strong, you are brave, you smile, you put forth the effort to update us…even tho you’re feeling so unwell. I.. and so so many others … admire you for your uniqueness…and for sharing your journey. We all have a journey in our lifetimes. You are consciously aware of all that is happening….and I wish you could stay here with us for many many more years. I’m a 75 yr old tiny woman living alone. Life, unfortunately, often brings with it, many many hardships, pain, illness, grief and heartache. Try to remind yourself of the positives..you’re still fighting..you’re still here. Life also brings with it joy, contentment, love, gratitude and what we all have to do is accept whatever is occurring right now. That’s enough. Right now is all we really do have. From a young child, I’ve lost so many loved ones…and this continued throughout my life. All heart related issues… my daughter suddenly passed almost 12 years ago..her medical tests all came back perfect. The first line of the medical paperwork I found in her room..stated “this patient is at low risk of coronary disease”. 5 weeks later she was gone. 36 yrs old. She was alone. That’s the hardest thing for me. Thankfully, her 4 kids were all in school….and her husband found her. My dad went the same way..when I was only 15 yrs old. I have several health issues and pain…yet I’m still here. If I could, I’d switch places with you. Life hasn’t been easy…but, somehow, I’m still here….emotionally and physically I feel exhausted. Absolutely not one thing in my life turned out the way I had thought it would. We may perceive that others have easier lives..but do we truly know? I was suicidal at one point..maybe 2/3 times…and no one knew. I was working and taking care of all my grandchildren. I’ve always been the caregiver. Only child..single parent. Animal rescuer. I think I was born caring way way way too much about everyone, except me. Until 7/8 yrs ago. I can’t do what is end to be able to do. I understand frustration…I pass out from glucose issues and I, too, am anemic and drs don’t know why..and at this old age I don’t care.
I only believe in vibrational energy. I meditate and envision my heart and every cell of my body overflowing with love and gratitude. And I believe, this causes positive, healing energy to arise throughout me. I envision radiating that healing positive energy out to other and this universe. It’s just a thing I do which I feel benefits my mind and body…and the minds and bodies of others…and this weary universe.
You are one hell of a guy. Amazing in so so so many ways. You need no one’s permission to feel any particular way…and you keep making decisions which you feel will benefit you. I’m hoping you get some comfort from the pain medication. Take it when you need it.
I never think ahead since I’ve gotten older. I am mindful of the present moment..fully.. and I don’t try to get through the days anymore. I try to make it through this moment in time. One moment at a time is all we really have.
Peace, light and love to you..and your family. 💥💫❤️✌🏻
Don't ever say you don't have the courage. You've been one of the most courageous people on the planet. Any person fighting for this long is courageous! 💚💚💚
Spent the afternoon with Joe & Kim yesterday. We “chewed the cud”, had lunch together, and I spent meaningful time with my best mate.
To those “numpties” on here, you know who you are, go crawl back under the rock you emerged from.
The majority seem like loving descent people, it’s a shame that a sad and twisted few have to try and ruin things for everyone else… they try, but ultimately they will always fail. Marc V x
Thank you, Marc. It's so good to hear you spent time with Joe and Kim. I hope Joe is bearing up. As for the haters, what can we do? They are losers.
Thank you for updating us Marc. Joe is lucky to have you as a friend, he deserves the very best. Its heartwarming to hear that you spent some quality time with Kim & Joe. Lets not waste any space or time on the numpties for they are but that. Sending you, Joe, Kim, family & friends love & best wishes ❤️❤️❤️❤️
Thank you Marc and appreciate the update and well said about the "Numpties"
Joe and Kim, we are all thinking of you both and sending love and hugs your way. Joe, you are super awesome and a true inspiration. 💜💙💜💙
Thinking of you Joe. Your unwavering strength, resolve and sense of humour in the face of overwhelming challenges, are a sobering source of inspiration and focus.
You are the Lamp to continue to share videos in your state of pain. God bless you, man.👍
I cracked up when you said water fasting for 30 days. I really don't think that's a good idea in normal circumstances but it's even worse when you're very unwell and need energy to fight.
It sucks man. I've been watching you since the beginning. It just seems so unfair how some people have to deal with this BS.
Im in bed with broken knees so im bed bound and bored and cant move, but i know its not as bad as cancer , i admire your courage and bravery ❤❤❤❤love from Spain ❤
Lamp 🛋️. The people accusing you of crying for attention are horrible. Thank you for sharing your story. I hope you have comfort and peace in your final days.
LAMP ! Joe, when you said " I'm running low on hope.. running low on courage ".. unashamedly this made me tear up, because one of the things I've adored about you is the incredible way you have faced this, and worked your way through this to the point you are now. I think when your time comes you're going to be staring it straight in the eye and saying " Here I am fucker.. it is what it is.. " . It's an honour to bear witness to your journey, Joe. You have already made and continue to make your unmistakeable mark on the world.. and goddamnit, if you find tears in your eyes, just know that goddamnit, we're already teared up, wishing like hell your journey could be otherwise.. Joe.. KNOW that you're a hell of a guy, and I will never forget your ways of dealing with the shit that's been dealt to you, and showing me the courage it takes to life a life well lived..
Thank you Joe for sharing your journey, hope you remain pain free & the hospice look after you. You are one brave guy, respect to you
So lovely to see you again Joe but incredibly sad to hear what a tough time you are having. Thank goodness the hospice and hospice staff are kind and caring. Thinking of you and your family. You're so articulate. X
Lamp! And love to you and yours from a stranger who is in awe of your courage, humour and straightforward talking. All power to you. Tears are good. Crying is ok. Thank you for showing us the way x
This reminds me of when our 5 yr old son was dying from liver cancer and was in the hospital. The nurse didn't think he needed anymore pain medication. It didn't take long for my husband to throw himself over the nurse's station to go after the nurse who refused to call the Dr for permission to give him another shot before the 8 hours from his previous injection. Fortunately, he prevented himself from inflicting any harm to the nurse, the doctor was called, more medication given to a young boy who was dying.
Shame on any hospital or doctor who tells you what you know you need! God Bless you!
Hi Joe, I'm just checking in to see how you are. Thinking about you mate.
Total respect to you and what you've achieved in the last 6+ years, from raising so much money for charity to help educate others in such an honest way...oh and respect to the lamp too 💪🏼
I wish everyone affected comfort and peace.
Hey Joe, you are a truly brave and inspiring human, and your light shines so bright despite all the hell you’ve been through. You’ve been on my mind for a while and I’m sending you my very best wishes from halfway around the world. Thank you for being you.
Yesterday there was a big event in the UK. I kept thinking about you and hope you are surrounded by love and as comfortable as possible.
With everything life has thrown at you, you've earned the right to cry any time you want or need to. You have my respect, Joe!
Thank you for this upload. I have been thinking of you everyday since your last upload. Seeing you now has given me both hope and sadness (for the previous weeks of challenges and pain). You are a teacher, whether you know that or not, as well as a friend to many people whom you've never met personally. Thank you, friend, for your generosity and humanity in these harsh times. And yes, you are a shining light in the world.
What a lovely comment. I agree completely with everything you said
So true.
You are a brave man Joe! I take my hat of and make a deep bow for you. Lots of hugs! 😘❤️
Been following you for a while now. I've learned a lot, especially how you tell it like it is, and do it will that amazing grin of yours. Hope they can get your pain under control! Even with that giant lump on your heard you are still simply adorable! Peace!
So incredibly sad hearing of Joes passing. My heart sank when I read it. You touched the life of so many. Such a cool smart man Joe was. Total King. Rest in peace my friend. The world mourns you.
I can tell you're getting towards the final chapter mate. Thanks for making this video. I was born in Watford general, and now live abroad. It will always be too soon, but I'm glad you spent a few years on this planet, and I'm grateful to hear your story. Enjoy as best you can what you have left, enjoy Kobra Kai, enjoy the memories. If there's another side I'll buy you a pint.
You are a complete champion of a human being. Thankyou for sacrificing your time to give perspective on this gauntlet of difficulty you have endured.
So good to see you. I think about you and your wife daily. Your blogs have been life changing and I will never forget the respect I have gained for you both. ❤❤
Such a sharp brain & mind, AND with that lovely sense of humour intact, despite everything that's going on. Have nothing but the deepest respect for you.Courage & strength!🍀🌸
LAMP 😭😭😭😭
I literally just found you and you delivered some info I wasn't ready to hear 😅
Okay so, I'm a nurse. I am am RPN/LPN and an RN.
I did a placement on the oncology ward and i learned a LOT. Everyone LOOKS SO healthy. But they arent. They have literally no immune system and any infection can kill them. Nothing more nerve wracking as a nurse I swear 😂
But i really empathize with you listening to your roommate call out because his words sound very much like someone who is confused or has no memory of whats happening or why theyre there. So many nurses are unnecessarily rough, but this is a very common call out. Its just... nursing is not set up for people's comfort and it isn't set up to make our jobs easier. I don't work with physically sick people anymore, I work psychiatry, but before this I worked ... basically ICU during COVID, and I worked rehab (not drug, physical rehab). And I'm the type of person who sits with their patients and takes my time. I wasn't built for rushing. To this day I'm slow. And typically... I'm a night nurse but on this floor i worked both. Oftentimes myself and another nurse had to change garbages, take the laundry down, put out towels for the morning for the patients, stock everything.. etc. A bunch of night duties plus. Then around 530 we had to start changing people because day shift starts at 7. A lot of people were confused or unable to help the nurses and so they couldn't shower themselves or know to go to the bathroom. So wed have to change their brief, wash them, dry them, dress them. On this ward there were something like 18 patients and we each had 9 and at least 12 of those were full changes. If you didnt get those done, you were reprimanded. Because the hospital just doesn't give you NEARLY enough time!
I worked a singular day there. One day. And i had 7 patients. They all had to be up, dressed, fed, and had their meds by the time physio showed up around 8-830. Its literally. Impossible. I got screamed at by a nurse because my patient had physio and a family visit right after and i couldnt get to them on time. Its awful.
Something seriously needs to change. Nurses are so unfeeling and disconnected because we have no time to act like humans and connect, nurses just have to get every job done as fast as possible. And patients absolutely do not deserve to be wlken up at 530 in the morning. And obviously it isn't just them we're waking up. Just BEING there can wake a roommate up. Nevermind if bed alarms go off, or i smack my knee off the bed 😂 or the patient is upset. As an empathetic person it hurts my soul.
My point is, I'm Canadian and i have no idea where the hospital is that you're talking about, but everywhere is always chronically understaffed and treated like a factory line rather than a care place.
I have more freedom now on psych because most of my patients are able to do these things themselves, but as the years progress, as ive heard from other nurses, every year you just have less and less time to be a NURSE. Its unacceptable. Rest is imperative for EVERYONE for things to go smoothly. I hate the way healthcare is treated like a business no matter where you go. Ive been beaten down but I'm still me. I still care. I do the best i can with what i have. But youre absolutely right.
Also, i dont even know if youll READ this, but doctors 1) always look offended and 2) feel the absolute NEED to heal you. Physically. They take an oath to do no harm. But its easy to forget that harm is more than physical harm. They probably just didn't feel right letting you go but you did the right thing and advocated for yourself - something your nurse shouldve done (if she didnt, that is).
Not to mention that hospice beds dont just APPEAR magically. Most of the time you're waiting for someone else to die and that feels wrong to rusb 😅 so take the beds when you can. You CAN leave hospice when you want or if you get stronger/better. Its rare but it happens. Just take the bed.
Finally, I'm very glad youre in hospice. I dont think i have enough mental strength to work hospice but i hope i do someday. Hospice care is TRUE care. Its how all healthcare should be. But as someone whos had a few patients pass in hospital, getting hospice orders (like meds) for a patient whos clearly in pain and passing (this is rare by the way, to get orders. All of the doctors are in denial about dying people) is a breath of fresh air. Some families freak out because we can almost freely give pain medication, like hourly or less. They dont need IVs, they dont need to eat or drink if they dont feel like it (sometimes we'll still give fluids if they have an IV already because it can help with the discomforts of dehydration), and we make them as comfortable as we can. They can have family, there can be soft music, etc. There are no visitation limits for someone who is actively passing where i am. It means relatives dont have to get there at a certain time to see them. They can come all night. We dont care anyway, managers arent around. Theres a lot more leeway at night. Plus nurses love doing sneaky things for good 🤍
Anyway this has been a long comment but i just want you to know that its more than okay to cry. I'm crying right now. And its more than okay to have bad days and lose hope. Or want to give up. Its just a day. Maybe tomorrow you'll feel better 🤍 these are normal things most humans experience. I lose hope all the time. Metally ill nurses taking care of mentally ill patients is really the best 😅 theres the most empathy. But i struggle a lot with continuing on, or seeing a purpose. Im young and I worked so hard to get where i am... through so much trauma... just to end up with Fibromyalgia and ME/CFS. I'm in pain every day, can't work consistently (currently off) and I'm so tired ive told my doctor i FEEL like im dying. Literally ill wake up, move to the couch, and fall back to sleep. Some days i sleep 18 hours. I cant do the things i used to and theres a lot to grieve.
BUT i have an absolutely wonderful partner, and absolutely wonderful KIDtins (i have 3 ragdoll cats, Freya, Zelda, and Pip).
You have inspired myself and CLEARLY many others. The world will surely feel a loss when it is your time.
I'm absolutely terrified of death, but we all have to do it and we never know when that'll be. Just... someday.
You'll be in my thoughts, probably constantly to be honest, and i very much look forward to seeing more content from you. Keep going, keep laughing, but rest when you need. Cry when you need. Give yourself some grace. ❤ I hope you're as well as you can be
Signed,
Brooke
Thinking of you tonight, Joe.. I hope you are comfortable and surrounded by peace and love.. ♥️
It is nice to know that you have so many people that care about you! Don't give up! You are an amazing human being! We all love you Joe!
So pissed off hearing about your NHS experience. It’s not acceptable. Much better where you are now and It looks peaceful. I do worry when you haven’t posted in a while, so I’m glad you are managing the pain and still having that quality time with family and cool movies!! It’s not over until it’s over Joe, so savour all the good things and don’t ever feel bad for crying about the bad, I’m amazed at how you DO cope. Speaks volumes about your personality and mind set.
I'm glad you're still with us! Lots of love buddy, I hope things stay manageable for you
So very sorry for your loss 💔Kim & Joe’s family my heart breaks for you all. Joe is a hero in my eyes, such a wonderful, tenacious, kind, intelligent and brave human being he will be missed by many Rest In Peace Joe ♥️😢x
Thank you for sharing all you have, I’m going to school starting in a month to be a nurse. What that means to me is to help someone feel as comfortable as possible mentally and physically while they go through a difficult time. I don’t like how many nurses handle (or don’t..) their patients. I will make a difference when I step through those doors, I promise.
Thank you for having an honest conversation about all of this. Cheers to your life!!!! You did it. :)
As someone who recently finished nursing (by recently I mean 4 years ago... yikes..), keep that mindset. Hold onto it. Remember it. I've been absolutely beaten down, especially during covid, taken advantage of, etc. Recently I got my patient a glass of water (because the dining room gets locked and hospital water sucks), and to preface this, I work psych. Basically any time I do something for a patient (grab a blanket, warm it in the dryer because we're in the basement and it's COLD and don't have a warmer, get water or some patients have stuff we keep in the fridge so I'll grab that.. literally anything) I get told I'm being taken advantage of and manipulated and that one day I'll "learn". Every goddamn time. It wears you down. Makes you feel like somehow you're doing something wrong. When I did my placement in child psych my preceptor got on my case because I gave my patients a space to talk about how they were feeling. Anyway. Don't let ANYONE kill your kindness. Kill others with your kindness. Don't listen to anyone who disagrees. And take care of yourself. You are more important as hard as that is (especially for me) to believe, you can't care for anyone if you're drowning. 🤍 that's my best advice. It's not an easy journey to the finish line but you can do it. Go make a difference :)
@@brookewilson1950 thank you so much for your words of encouragement, I want to make this world a better place, and I will for some people. I’ll make sure of it!! I’ll never loose my kindness! ☀️💕
Hey joe, im sorry your situation is so shit. Please take some comfort in knowing you are incredibly brave and inspiring. Even though you are terrified, just making these videos show your strength in character. I hope your last days are beautiful. All of us that have followed you love you.
You are an amazing human. You and others like you are exactly why I have worked in cancer research for the past 12 years. All the best to you and your family and I hope the radiotherapy goes well.
Lamp!
Thank you for your 12 yrs of research. Please find out how to kill this plague of thyroid cancer. I was told it's so rare they don't have the funds to find a cure 😢,
We've been worried about you Joe...good to see you! Your story is heartbreaking yet your strength of character is astonishing!
Morning Joe... Just checking in... Thinking of you as i do every day. Much love 💙
I hope you're still here and not suffering
I live just outside of St Albans so my nearest A&E is Watford General.
I'm sorry you were treated so poorly and yes, it's normal for patients to be left waiting on beds in the corridors outside of A&E. 😢
I also agree with you about the wards being extremely hot. We asked to open a window when they said they couldn't manually turn down the heating. Crazy when the NHS should be saving money and not throwing it away!
I agree. My experiences with Watford general have been very bad too.
Another thing the healthcare professionals are very good at is focusing entirely on your other health problems, and dismissing why your actually there. 🤦🏼♀️
This just brakes my fuc**ng heart.sorry you are going threw this Joe,i followed the journey of a chap called peewee toms he hd the courage similar to yourself.its amazing to see people like you with next level courage.
Hi Joe, there are no adequate words to describe what you’ve endured and continue to endure. So glad a hospice space became available for you to get you out of the ward. Blimey, that seems a strange thing to say but hopefully you know what I mean. I hope the pain and any other symptoms can be managed well and that you’ll have access to all you need to make this as comfortable and smooth as it can possibly be for you and all you love. I hope you can feel the love from people commenting here for you and your family. You are an exceptional man. 💞
I didn't know you, now you've let me in, and now that you've shared your spirit with the world, I will remember you Joe. And the world will be losing another star. Bless your wife and of course u. With peace, comfort, no pain.. u have said so many things that we've all said to attempt to share our feelings and well wishes, etc.. u know they are all doing their best to make you feel better and know we are out here caring about ur awful struggle. Is there ANYTHING that we CAN say to make u happy , or at ease? I've left several messages that just say *fukk cancer* .. u just want us to listen and not try to "fix it "? Is that it?
Much love from N Carolina ❤Daria~
Lamp = Lightsaber!! Use it wisely you must. ❤❤❤❤ May the force be with you 😊😊
I admire you so much Joe. Your strength and fight are truly astonishing. It hurts me to see such a wonderful guy suffering this hateful disease . Best wishes Joe. Lamp !
Lamp. Gosh, what a time you've had. Thank you for documenting everything. It's okay to not be okay and definitely not embarrassing - it's tough, and we have no real idea of how much mental energy it must take. Thinking of you and your family ❤
Lamp 🙏 Thank you so much for the effort you have put in to this post Joe… the editing is spot on so don’t worry about that!
I used to live in Watford so know the General very well… it needs more than just help!!
I was going to write stay strong but no.. you don’t need to stay strong now Joe, you let others be strong for you. I love you man… x
Sending you so much love, Joe. Always in my thoughts! Even in all your pain, you still make us laugh. Youre truly an amazing man! ❤❤❤
I hate that he still thinks about what other people think of him. I'm the same way in such a big way. A people pleaser. I would hope I'd rid myself of that burden if in this situation. God knows I don't know due to not being in that situation. Thank you for sharing your story and life with us. It'll give all that listen knowledge we may one day use or need. Love those around you. No matter their situation.
Lamp. You are often in my thoughts and grateful to see this video of you even though it was hard to hear how tough it’s been. Your tears are warranted and I cried with you. Thinking of you all the way from Australia 🦋💙💚💗
You are one incredible human. I’m sorry you ever had to go through this. & just praying you are comfortable and with those you love most ♥️
That's one epic LAMP! Thanks for the update and continuing to share your story. (The audio ways perfect btw 👍) Stay strong and I hope to hear from you again soon!
I just found you. Perhaps too late.I wish it not to be so. I am so touched by your sensibility and struggle. You have suffered too much-often needlessly from your descriptions. I wish you better days and nights on your journey. It is the 17th of May and I will be looking for you. I have subscribed for that reason. You are respected and loved. Thank you for being you. Till the next........
It’s beautiful to see an update. Your personality is one in a billion. Special guy for sure. We’re right here with you, if only digitally. Sending you all the love in the world.
Lamp! I am glad you are out of the horrible hospital. May you have peace in your heart.❤
I want to wish you all the best buddy. you are an inspiration. i cherish every day due to your story and vids. im planning Christmas and it feels wrong you may had you your last. youve been dealt a hand and held it so well. no one knows what is around the corner but what a man! you have inspired alot of people and you have put thyroid cancer out there. you should be so proud. i hope you are pain free and can enjoy your time with your family and friends.
Joe I’m so happy to see you. I have been thinking about you hoping you were still with us.
Thank you for sharing with us what has been happening, a-bit of a shit show you’ve had.
Glad your are receiving the care and support from the hospice team you so deserve. They are truly amazing people.
Try to keep your courage up and your sense of humour too. Good luck with the radio therapy. Will be thinking of you. ❤
Hi Joe, Keep fighting mate until the end, that's how you beat it, not matter the outcome. If I can have half the courage you have shown when it's my time, I will be a very proud man indeed.
Lamp. You are helping and going to help so many people by recording your journey through this awful disease. Wishing you peace, Joe.
How?
Joe, my fiancé & I have the utmost respect for you. You’re such a huge inspiration to us all. After everything you’ve been through and you’re still smiling. That takes one hell of a strong man. 💚 My father has neuroendocrine cancer. He has been in & out of hospital lately unfortunately. Dad has said exactly the same to me about the nurses, wards etc. Sorry you had to go through that. Glad to hear you’re being well looked after now. Hope to see more of you and your lamp soon. Sending love & best wishes to you and your family. B x