Q&A // Blood Patch Update, Service Dog Insights, Baby #3 Musings, and More!
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- Опубліковано 24 сер 2023
- Hey there, lovely souls! It's time for us to dive into the realm of Q&A! First off, I've got to send a massive shoutout to all my amazing Instagram fam for flooding my inbox with these curious queries. Now, let me confess, I've got the nervous jitters, but, we've got to start somewhere, right?
From heartwarming tales of Buddy's finest moments to insights on what it takes to welcome a service dog into your life - we're covering it all.
Oh, and speaking of life, the big question - will there be a tiny addition to our crew? Baby #3 talk is on the table! Plus, let's get real about embracing chronic illness. I'm unpacking some tried-and-true tips that might just light up your journey.
Plus, a few more topics we're going to talk about so stay tuned and buckle up as we wander through a garden of questions and revelations.
Video Highlights:
➩ How have you been feeling since your blood patch?
➩ Favorite memory of Buddy working?
➩ What would you recommend to a person trying to get a service dog?
➩ Do you want to have baby #3 or are you happy with the two?
➩ I’m working on my journey to accepting my chronic illness. Do you have any tips to help?
➩ UK and AUS assistance dogs teams have IDs for legitimacy, should the US consider it for against fakes?
➩ What are your favorite snacks?
➩ What do you feel is your oddest symptom of all of them, doesn’t matter what condition
➩ Do you have any advice for someone who’s about to start training their future service dog?
○ Main WEBSITE: mommingwithmigraine.com
○ Daily Life: mommingwithmigraine
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SOME PREVIOUS VIDEOS…
First Blood Patch (patched June 2023):
○ Brain Leak MRI Findings! • SHOCKING NEWS // My OL...
○ Learning I'm getting treatment! • CONFIRMED: A BLOOD PAT...
○ Wavering on the path forward: • "I think I was wrong" ...
○ Choosing blood patch vs CT myelogram: • My Spinal CSF Leak- BI...
○ What is a blood patch? • What is a BLOOD PATCH?...
○ What the patch procedure was like: • My First BLOOD PATCH P...
○ Dr. Phil Q&A: • DR. PHIL SHOW Q&A // T...
○ Buddy & Baby A’s First Year Together: • Service Dog and Baby's...
○ Buddy’s Pet-to-Service Dog Story: • Why Buddy WASN'T Alway...
○ Service Dog Training, Basic Commands: • Service Dog Training: ...
○ Choosing Service Dog Gear: • Picking Out New SERVIC...
○ POTS Task- DPT: • Our #1 Service Dog TAS...
○ Service Dog Response Story: • STORY: Medical Episode...
○ Types of Working Dogs: • Types of WORKING DOGS ...
○ Need vs Want a Service Dog: • Do I NEED a Service Do...
○ Time Required for a Service Dog: • SERVICE DOG MAINTENANC...
○ Service Dog Misconceptions I Had: • MIGRAINE & SERVICE DOG...
○ Prong Collar: • Service Dog Training /...
○ Buddy’s Tricks: • SERVICE DOG TRICKS // ...
○ Walk Rules when Off-Duty on a Hike: • Off-Duty SERVICE DOG W...
○ Infant Potty Training (EC): • Infant Potty Training!...
○ Baby Potty Training 1 yr Update: • Infant Potty Training ...
○ Day in the Life Vlog (Making a UA-cam Video): • Behind the Scenes // A...
○ Life w/ 2 babies under 13 months: • 2 BABIES UNDER 13 MONT...
○ Our Nursery: • NURSERY REVEAL // Full...
○ Baby A’s Birth Story: • NATURAL LABOR & DELIVE...
○ Baby B’s Birth Story: • Second Baby Natural Bi...
○ 4th Trimester Overwhelm: • Is the 4th Trimester R...
○ Breastfeeding & Mental Health: • BREASTFEEDING & MENTAL...
○ My 1st Year UA-cam Analytics: • My FIRST YEAR on YouTu...
○ Butterfly Logo Meanings: • THE BUTTERFLY LOGO // ...
Content ID Code: ATPJZTZFSJ0JBERC
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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.
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People also don't realize how much attention a service dog brings! I have anxiety and having a service dog draws a lot of attention to me ALL the time.
I’m in Canada, I have a service dog who is fully trained. Here the requirement is the handler requires a note from a medical professional like a doctor that indicates they have the need for a service dog. Some provinces have a voluntary public access test for (owner training usually) handlers to take with their dog. My province does not have such test so when I was setting the bar for when I would consider my boy graduated I decided to use the criteria from an access test in another province and had my trainer (and his apprentice) run the test with us. I selected a busy farmer’s market which includes an indoor area for dining as well. Lots of meat smells and super busy with people. I think having the letter is a good start, there’s a long list of medical professionals who can write such a letter.
I agree on having social circles that if you were to imagine a life without being sick, you have a different way to fill your life with your interests outside of health so that you emotionally have the structure to feel comfortable with how you'd spend your time and stimulate your brain if illness were no longer a major identity or time-consuming and brain-space-consuming aspect. It helps to feel comfortable with moving towards that full life of being well (even if it is unrealistic that it 100% is going to be gone), imagining helps offer steps towards alternatives to fill your life, time, interests and brain space so the psychological attachment has space to grow away from chronic illness life if recovery were to be effective.
YOU PUT INTO WORDS WHAT I COULD NOT
My mom had 5 kids. She had the first 3 within 3 years.
15 months between #1 & 2, & between #2 & 3 20 months. Then 38 months between #3 & 4, then 9 years between #4 & 5,
She always said it was so much harder when she went from 2 to 3, that having more kids after that didn't seem like much of a difference.
I had #1 & 2 22 months apart with #2 & 3 being 3 years & 49 weeks apart. For me it was harder adjusting to #1 & 2 before #2 began walking, & when #1 wasn't walking all the time, & still a runer, especially when pg with #2 & newborn. With #3 both #1 & 2 (both girls) at almost 4 & 7yo were the greatest helpers running for diapers & eventually chasing after him, they both absolutely adored their baby brother when he born. Still somewhat adore him now.
As a kid growing up as an amputee I was always the slowest runner out of all my friends. In every single foot race I was in I finished in last place. Usually by a lot. The one time I finished 2nd to last was the time in 1st grade when I pushed a girl down as she passed me.
There is something I realized much later that I could have used when I was a kid. The person who finished the race in last place, finished the race.
It was unfair to compare myself to my class mates. They had an unfair advantage the was just impossible for me to over come: 2 healthy legs.
In auto racing they have racing events where cars from different classes all running on the same track at the same time.
These classes vary wildly from the highest performing cars to the lowest, not all the cars are racing each other. Each class races against the cars in its own class. That was me.
13:12 I’m from the Middle East, and in my country all they demand for entry with a service dog is a disability card, anyone with a disability has this card and it’s the same card that lets them get ahead of lines, priority parking, etc. as long as you have a recognized disability you can have a service dog with all its benefits. I find that more fitting and highly convenient, probably more than the need of proof of video to enter a restaurant etc.
I totally understand what you mean about keeping an able bodied community (so long as they advocate for you!!).
That part is important!
Thank you for taking time to answer questions, and being completely honest with your answers. There is so much to dealing with chronic illness and also with having a service dog. I love getting to learn how others handle it. Love you Jen! ❤
I think that as long as all dogs are able to go in posing as service dogs, service dogs will have a hard time with their jobs. I once saw a service dog who was very well behaved heeling by its handler while they were waiting to check out. When someone’s untrained puppy came running up yipping and nipping at the service dogs legs. The handler was very good with the situation and just moved to a different check out line; however I don’t feel like that should’ve had to happen.
Thanks for sharing Jen! Still praying for your upcoming procedures. 💜💜💜
A great place to start as far as documenting service dog training in the United States would be AKC CGCU, This documents the dogs training not the disability. CGCU testing is available thru clubs and businesses for individuals who self train.
I am blind and have had a chronic headache for 10 months. I totally get the good days and bad days thing, I feel like 75% of the time I have a bad day. So yay.
It is also important to think about healthcare for a service dog before getting one. Taking a non-service dog in for surgery is not easy but, once you start depending on a service dog, having them gone during surgery and not able to fully work during recovery requires major adjustments. Not only will you be dealing with not having the support of your dog, your dog is going to be dealing with stress from not being able to care for you as much or as easily. When they LOVE their job they miss their job.
I think the best answer to certification is to require a standardized public access test. Local municipalities can make this even easier for handlers and employees of businesses by supplying certified service dogs with registration tags in a unique color so that employees can see it when you walk into a business.
Ooh! Interesting. I do feel like CGC registration would be a great compromise, without double checking tasks. That checks the behavior without invading handler privacy.
I just think requiring the public access test would address the safety issues without overly burdening handlers with extra paperwork or giving out a lot of personal information.
Personally I think people should have to train their pet dogs to AKC canine good citizen status to keep them licensed. The test is only $25 and it would protect the public including service dog handlers.
One of the hardest things for me, but is just part of having a service dog, is remembering my service dog isn't going to resent me if I am stuck mostly in bed for days at a time during a really bad patch. Thankfully hubby can take her out to run around each day, and we have another dog that comes to play with her in our room. But I still find myself feeling guilty when I just don't have the energy to play with her myself.
Thank you for this comment! This was me yesterday. I just simply could not get out of bed most of the day. My sdit is currently recovering from her spay, so she's sleepy too, but a few times throughout the day she would pick up and bring me her leash and start wagging her tail and telling me she wanted to get up and go play. I felt like crying cause I was hardly able to open my eyes. She laid in bed next to me all day, and I'm trying so hard not to feel super guilty about it. My husband made sure she had what she needed, but then she came back in the bed every time and nuzzled next to me.
@@nicoletarratt602 I am sorry you are having a hard time right now. My heart goes out to you and your furry partner and I pray you both recover quickly.❤
I know the guilt hits hard at times like this, I have been stuck mostly in bed recently myself and feel it too, but the love these dogs have for us is truly unconditional. They know when we are not at our best, even better than we do ourselves most of the time. Trust your bond. The love our service dogs have for us is absolutely amazing! As long as we show them love and affection, and play with them how and when we are able, they are content. They just want to be with us, and care for us, wherever we are. 😊
I have had my Sadie for almost 4 years now. She has been by my side during my worst days and my best days all that time. I have seen how easily she adjusts to my energy level and know that she just wants to be with me, wherever I am. Even when I was in bed for over a month, due to a bad reaction to trying to change my diet, she was right there. All I could do was love on her and sometimes play a little with a tug toy, but that was enough for her.
When I finally recovered and started getting out of bed, she was right there bringing me her toys to throw and running around with our other dogs like nothing happened. When I was finally able to leave the house again, she was back to working like a pro as if nothing had happened!
You and your service dog will be together through good days and bad days. But all your days will be a bit brighter because you have her. And I promise she feels the same! ❤❤
This was interesting Jen. I like your idea about videoing training as a way of showing that owner trainers have put time and work into training their dogs to perform specific tasks that assist with their disability and learn how to behave safely and nondestructive in public, the same way program dog would be. I think probably one of the tricky thing about that would be who to send them to because you know there’s so many different training styles, methods, tools, and gear not to mention different types of tasks, and I feel like many of the ones that are often owner train rather than programmed trained are invisible and or less or known things for instance chronicle illnesses, psychiatric conditions, medical response, allergy detection, etc. etc. I would worry that whomever would be looking at the footage might make an assessment on something based on a particular training tool or method or task that they have an opinion or not the proper knowledge of fully understand rather than simply recognize that it shows the dog had thorough and comprehensive training. I definitely think if they ever were to make an addition or alteration to the current federal law like amendment to the ADA like how they did in 2010 that they should consult with owner trainers and service dog programs so that both sides of the issue a representative from the people that actually will be impacted by whatever new regulations they put in place.
agree agree agree. I don't think we'd need to task-certify, because that's personal and not too important for PA. I feel we just need to double-check the CGC stuff to make sure they're not a terror. A human who wants to take their dog out for PA should have no problem getting a video of 2 minutes of ANY outing... and whether there is tasking or not, you'll be able to tell whether the dog is actually trained, or just a pet on a walk =P
@@MommingwithMigraine I do think that not a terror is definitely important LOL. While you’re right that tasking is personal and one of the reasons I would worry about having footage as a requirement would be because I would be concerned that who ever would be with looking at it would maybe not be well-informed enough on the wide variety of disability specific tasks that are possible, and so in advertently based their assessment Judge the dogs performance on that, I think it would be important to include task work in the footage since tasking is the one distinction that differentiate service dogs from other types of categories like therapy and emotional support. Since people often try to use that as their justification for bringing pets in places, not that I would think people with therapy or emotional support dogs who actually do those things would do that because they’re probably more well informed the average person, but either way I think the task work would be important to highlight. But I do agree that safety first of course and the most important thing if any are going in to public has been taught the necessary skills and self-control to do so without being a danger to others. I know some service dog training programs include public access tests like the CGC as part of their graduation requirement for clients and that sometimes these are videoed. Maybe if there was one of these tests agreed-upon and someone designated to you know watch that footage then it could be used as a standard for providing some kind of an ID or other method of proving that the service dog had undergone public access and task training. I also think that would be a way of doing it which would not disadvantage a program train dogs because many schools also give out their own ID’s and they would just need to be to make sure that it didn’t get confused with all the fake IDs on the Internet like the ones that say things like service dog registry and such.
Hi! I’m a therapist (social work license) and wanted to mention that unless something has recently changed, it’s actually illegal for an establishment to ask for proof of a service dog/ disability. If somewhere is giving you a difficult time about your service animal, you may need to give them a friendly reminder that that’s considered discrimination 🙃
Congrats on the walker! I hope that's in my future too :)
Thank you!! Trying to figure out how to make it lighter weight now... if that's even possible. It's 17 lbs.
I don't know how feasible that is and ofc it wouldn't prove whether your dog is in fact a trained service dog. But maybe they could come up with a list of conditions where a service dog can provide assistance and give proof that you suffer from something like it to a person. That would at least weed out perfectly healthy people who abuse the system with their pet dogs.
Another issue is, if they have a registry people are going to counterfeit the papers, so the issue of fake service dogs will continue.
I think the answer to the issue of fake service dogs is to criminalize the act.
If you are caught faking your pet dog as a service dog, you get a huge fine or you go to jail. I think it should be a capital offense but that may be a bit much.
Some states already have criminalized it - problem is, it's not enforced by establishments.
@@SnowySpiritRuby It's not an easy thing to know, a fake dog from a real dog.
I have seen fake service dogs that I know are fake, still I say nothing, no matter how much I want to.
Knowing it is one thing, proving it so others will know is another thing.
@@erictaylor5462True. The 2 questions would do most of the work, though, along with employees keeping customers from putting their pets in the shopping carts (I couldn't find it specifically mentioned in the ADA, but my understanding based on all the research I've done, as well as certain signs I've seen in some non-pet-friendly establishments, is that people generally aren't allowed to put their dog - whether SD/SDiT or not - in the shopping carts provided by the establishment; in carts is where most of the fakes I've seen have been, though I've seen them in other places, too).
hey I just discovered your channel, I'm having a boat load of symptoms for over a year now (base skull pain, pressure headed, pots, post nasal drip that tastes like pool water, etc , I've seen many so doctors but no help, I've had to quit my job and move back home. I just discovered theres a possibility of csf leak? I had an MRI last year (when I only had a few symptoms mainly neck pain , they found a syrinx cyst , sent me to a neurosurgeon who said it was probably nothing and don't worry about it (he didnt even look at the image though he said they had a problem pulling it up in the computer.) I'm thinking of getting another MRI, is there any test or questions I should bring up with my Dr you would recommend ?
Odd is an odd word, but it's not as weird as weird.
That’s deep! 🤪
17:20 I'll send you some of my dried banana chips, assuming you can trust me.
What most people think of as banana chips are fried chips. They are made from unripe bananas and they are coated with sugar and lack flavor. Dried banana chips are made from fully ripe bananas so they are sweet all on their own and because the water has been removed the flavor is extremely intense. And they are just bananas nothing added at all.
They can come out looking a bit like magic mushrooms and a cop may question them, but one sniff will tell you they are presently legal bananas.
just a few seconds in and i'm pretty sure the reason why i never tried being a youtuber is my migraine would never let me sit in front of bright lights like that. i can only last a few minutes when i want to take pics
I personally could not imagine having children whilst dealing with chronic migraine. I require a lot of "me time" in order to take care of myself, and that just wouldn't happen if I had little humans to raise.
I honestly don't know how you do it...especially raising kids while dealing with so much fatigue! Kuddos to you.
Thanks very much it's a delicate balance of being impressed with myself and losing my mind. Haha!
@@MommingwithMigraineI love so much the way you describe that. Lol. Raising even one kid while dealing with chronic illness should definitely be something to be proud of yourself for. Something I'm constantly struggling to remind myself of.
6:30 "I'm 32 so I have lots of time to have more kids."
This is true, of course, but in my experience going from 32 to 53 happened with shocking speed.
If feels like I was 32 a week ago.
When I was in high school (1980's) I was a huge fan of Phill Collins even though he seemed much to old to be a rock star.
I recently found out that I am now *20* years older than Phil Collins was in the 80's, when I thought he was "pretty old."
*20 YEARS*
I was at IKEA to and was a puppy that was cleary not a SD or a SDIT.
My son works at a grocery store. They refuse to even ask the questions about any dogs. When dogs are there in carts managers don't do anything about it even though that is against the rules. The staff treats all dogs as DOG instead of SD. I have them asking to pet my dogs every time I am in the store. It has been bad.
I'm a handler from a service dog and have a ID card for her. Our photo (together)is on the card, her name and my name and a phone number from the organization. I were the ID card so that everybody can see it. Since I do that, they never ask anymore in a store or so.
Some people put the ID card on the vest, that's okay for people to see it too! I love it! Because it's so annoying that people from a store ask 5 times if you will leave the store with your dog. And I have to tell it's a service dog! 🙄 Also always those discussions about what she is doing for me and what breed she is (Havanese) so it's impossible that she is a service dog.... So I have to tell them she alerts seizures , and so on. Before I knew I had a whole conversation about medical stuff. If I need to go to the store, I want to shop not to discuss my medical issues! And by the way it's private!
So yes I am very happy with a harness that all the dogs from that organization have the wear (no self-made harness anymore) and the ID card.
Greetings from the Netherlands ❤😊
Well I had my first ocular migraine yesterday. Thought I was stroking out….this condition is going to scare me to death…
Why is a building called building, if its already built?
I really like the guidelines in the US where there aren’t a lot of restrictions except that they are doing a task and that their behavior is appropriate because in reality even if they are a service dog, they should be removed if their behavior is dangerous
I am traveling and Trusted Housesitting and watching dogs. Through this experience, I have learned, 10/10 do not want a service dog for celiac disease (dogs can sniff out gluten). It would be great to have a gluten sniffer...if I alsk had a partner who was the main caregiver of the pet. I do not want to be in full charge of Vet Stuff, Feeding Stuff, Walking Stuff, Giving Attention to Stuff.
If my partner's BFF was a golden retriever who was trained in gluten sniffing, that'd be great.
As my companion? Nope. I am a cat person.
Out of curiosity, if you were living alone, do you think a service dog would be possible for you? My biggest worry is being too sick to even feed/offer water to the dog when I get sick for very long periods of time but I really think I'd benefit from one.
Great question. Before the babies? No I could not have. Current health, having the SD AND the babies? No. Bur current health, SD only and with no babies? Yes.
@MommingwithMigraine thanks so much! I wonder if there are ways to train the dog on food and water acquisition without overfeeding for the random, very uncommon days that I'm out 100% of commission for more than a full 24h and can't even get those things for myself either. It's uncommon but it happens and I'd never want to harm an animal--working thru those logistics is my priority to ensure mutual safety. My doctors have recommended a service animal for my own care needs when I'm out of commission to that degree so just sorting through feasibility of responsibilities and such; that info was super helpful! 😁
@@natalieedelstein There are definitely ways around that. There are automatic feeders for example. Buddy is actually a graze feeder, I just always leave kibble out for him. That's SUPER easy. The harder logistic on our end is getting him out for walk every day, which I rely on my husband for. We have a big yard so potty breaks aren't an issue, but he needs and deserves those sniffy breaks.
@MommingwithMigraine oh absolutely! Cool on those other options. I'm thinking in that case I could definitely do it when I have the income. I imagine those sniffy breaks by missing a day here or there are not the end of the world and even then that something to simulate the public outdoors as best as possible in the yard could be available. This boosted my confidence quite a lot! Thank you!!
13:50 The really horrible thing is, there are people who will give you fake papers to "prove" your dog is a service dog.
If someone sees these papers they are fooled into thinking real service dogs have papers.
It takes a bit of observation to tell if a service dog is real or fake. You need to look at how the dogs behave.
7:55 Sorry, but there is no way you are Frank. I know Frank, he looks nothing like you. 😜😜
People just shouldn’t use fake service dogs
I personally prefer no registration. Many disabled dont have the govt label of disabled. If any govt official ask if needed, I have a doc prescription for one. I did the cane and dog. Motor planning is one of my biggest weakness. cane takes more motor planning, having the dog for balance frees up mental power for motor planning. Havin an SD for 10 yrs, has made me a better dog mom. I am aware more of their needs. My retired SD still loves to train. 🦮
I prefer no reg and also hate that I can't prove myself. It's a catch-22!