Listen, IMHO if you have narcolepsy it's much more symptomatic than sleeping at inconvenient times. It can start that way but usually progress. Absolutely, one should get a sleep study. Statistically, it's more likely that one has apnea in the absence of cataplexy. Feeling tired all the time is serious regardless of the cause.
I struggle trying to convince my wife of 16 years to understand that Narcolepsy is a real disorder. I am 49 now, I was diagnosed with Narcolepsy at the age of 20 and have lived with this disorder for more than 30 years. I first started having symptoms around my senior year in high school. My wife, as well with others blames my eating habits, my weight, and pretty much everything else for my sleepiness. Most of our disagreements in our marriage have come from her not understanding that when I get in a "fog" as she says, and am not there for her have been around symptoms of my narcolepsy. I have ministers that don't think this is a real disorder as well, so the added stress of trying not to fall asleep during meetings is very stressful.
My neurologist did an all day on and off again sleep study because of my epilepsy but I was then diagnosed with narcolepsy as well. He said I went into rem & started dreaming faster than anyone he ever seen. I’ve been accused of being on drugs because of narcolepsy. People think I sleep a lot during the day because I enjoy it or I’m lazy. I tell them I’d give anything not to be tired all the time. Then you can’t sleep at night. Then here comes the other people saying “well maybe you shouldn’t sleep during the day then you can sleep at night” I have epilepsy,narcolepsy, and lupus…..awesome huh
I have Narcolepsy w cat, diabetes and a horrible back. Still, it's great to be alive. Screw folks that don't understand. Im sure at some point they will experience some karma that will adjust their lack of empathy. If you get flack at work, get a lawyer. I HATE lawyers, but everything has its place.
If you've got comorbidities, how do they tell? I've got cptsd with heavy ptsd symptoms. I've had sleep paralysis since I was 4. I started getting it after witnessing a very traumatic event involving my mother. I was abused from 2 weeks old, neglected, neglected not fed ect I read that people with any kind of ptsd can get narcolepsy as a result of all the feelings they feel. I've got ibs already from the cptsd, possible pots and possible narcolepsy. It doesn't stop.
Fyi, autoimmune, epilepsy, narcolepsy, chronic pain (often back pain) are all often associated with each other and can be due to childhood trauma or other major stressor. There is a form of epilepsy that is mentally triggered rather than physiologically. Its usually due to trauma. I cured my narcolepsy of 3 decades within minutes via Accelerated Resolution Therapy ($120). I also cured my debilitating back pain of 15 years by simply reading a paperback book (healing back pain by Dr John Sarnos). Good luck!
Thank you for your comment. I'm still getting tested and waiting for initial EEG results. I want a sleep study. I'm exhausted constantly with fibromyalgia and a lot of other illnesses. I can't sleep and have restless legs and muscle spasms, FND with tremors. Your comment made me feel validated. I've had public cataplexy episodes this week, and it's embarrassing! It scares people too. I'm in Australia & was lucky a lady saw me and told me she wears a Hidden Disabilities Lanyard you can buy online. Great idea if someone calls a medic 🌻 they're for sale on Etsy, Temu etc
No wonder I struggled so hard in high school and onto college. I can't even hold down a desk job. I literally dozed off during the calm parts of whitewater rafting. I remember going to church service and laying down on the bench for a nap at the age of 10. I've gone up to 18 hours in bed and waking up exhausted ready for another night of sleep again. Can't believe it took it 25 years and multiple doctors to finally diagnose me with narcolepsy, I'm starting to see some results with ritalin.
Oh my goodness, you could be describing me. I hope you have a good diagnosis, doctor, and you are finding a treatment that works. My psychiatrist just asked me to get a sleep study because he suspects I might have this or another sleep disorder. I never thought about it, I always just felt super ashamed and like a total failure.
Are you having medicine for narcolepsy ? Is it working ? Are you able to stay awake after having medicine during day ? I am asking since I too have narcolepsy and struggling with desk job. Afraid of having medicines. That's why I am asking
Same here but I’m just learning now, the dentist, movies that I actually want to watch, short car rides, laying out at beach or pool which has resulted in some bad sun burns lol 4-5 sleep paralysis episodes a year but more as I get older 29 now
Ive noticed a lot of these symptoms in the past 6 months. I can get 10 hours of sleep (waking up every hour or so throughout), get up in the morning, have a cup of coffee, and within a couple hours of waking up feel so sleepy its like i havent slept in days, and be forced to take a nap. Also, once i start to fall asleep, whether at night or during one of my uncalled for daytime naps, i start dreaming right away. Sometimes, ill even start to phase into a dream before im full asleep! And these dreams are super vivid, and i have almost perfect memory of the details of them. You know how you usually start to forget your dream after waking up, and will completely forget it by days end? Well, i can tell you the exact details of dreams i had a week ago or more. My usual night time sleep usually consists of 5 to 10 dreams, each followed by waking up. I have not experienced any muscle weakness though, and i really hope i dont develop that later, given how recent my symptoms are.
@@BriEMcN Yess! If I fight sleep for long enough, I start to basically hallucinate. I start to dream, but can feel my body and can halfway see my surroundings. Those are the weirdest ones.
This is pretty much my experience. I always thought it was normal. But the fact that I know for a fact I have adhd and I'm one of the weird ones that actually gets energy from stimulants. Taking vyvanse has been the only reason I don't have mininaps while driving, don't fall asleep while reading to my students, and am just generally able to not suffer being tired all day. When I was a kid I never had good sleep, I've cycled through various forms of insomnia my whole life. I've never been able to sleep a full 8 hours even when I try. Half the time I'm dreaming and hearing things before eyes are closed.y husband says I will go from having a normal conversation before bed to slurring and not making sense at all but still trying to talk. I will already be dreaming at this point and he will just be like go to bed you aren't making sense. It's like the permission I need to let my consciousness fully switch to dream state instead of being in both places at one. I thought this was normal! Maybe I should take a sleep study....idk.
When I try to explain the level of fatigue and sleepiness I feel... I was just sent to a rheumatologist and she asked me if I've been tested for narcolepsy. I could barely keep my eyes open while talking to her. I have to plan around being tired. If i fall asleep I'll think I've been asleep for hours and have full, vivid dreams but will only be asleep for a couple of minutes. Getting a new sleep test so we'll see. This has been going on since my teen years. Haven't been able to work properly in a few years 😫
I have Narcolepsy but had MS for many years before I was diagnosed with Narcolepsy. It was when I went to see my MD thinking I was having MS problems that they recognized the narcolepsy. Identifying the problem is step one to getting better...hope they find the problem for you.😊
@@melikka808 I actually question whether or not I have MS, but was diagnosed with fibromyalgia years ago and recently chronic fatigue syndrome. I'm just tired of feeling tired 😩.
What the rheumatologist says? In my case they where sure it is narcolepsy, because I have all the symptoms, and cataplexy..but sleep test come back normal..they gave me fnd diagnose..are you any better?
I took 3 MSLTs for me, I started worrying my insurance wouldn't cover a fourth. By your symptoms I'd guess they have already given a clinical diagnosis, unfortunately it can be a real pain jn the a$$ getting that medical diagnosis and the drugs that may change your life.
I’m 42 years old and have struggled with my health in general all my life. Went thru hell. Still fighting. All this sounds exactly like my entire life, as long as I can remember. I’m almost in tears right now. Thank you for this.
Wow, I feel the exact same way. I have always felt so ashamed about my constant falling asleep and sleepiness. I never thought I might have an actual disorder until my doctor just brought it up.
If you had childhood trauma then that would explain the narcolepsy and many health issues that you had. These are usually rooted from a nervous system that has trouble relaxing. ACE is the acronym for the childhood accumulated stressors. Once I learned this I was able to heal most of my health issues. I’m 38 and had these issues since about 7yrs old. I made a separate comment about how I cured my narcolepsy, etc
Just learned about this. Put me into shock because 7 months ago I started to lose muscle control. Couldn’t explain it. I would walk and my legs failed on me. Couldn’t pick myself up too.
I think that I have a form of narcolepsy, mixed with or exacerbated by other sleep disorders. It's very frustrating. I had a period of life in my early 20s when it was necessary for me to study early in the morning (like 7am) and I constantly fell asleep, no matter how much sleep I had gotten the night before.
I’ve been like this all my life and thought everyone else was like this too. I fall asleep while driving, while in class, while standing up, while working, and during conversations. But I “fight” it off using different methods like moving around or just letting myself nod off for a few minutes. I’m fine if I sleep for a few minutes. When I sleep, I hallucinate a version of reality..just now I came home from work, sat down, and hallucinated that my family members already ate dinner when in reality I just sat for a few minutes and slept while waiting for dinner. I fell asleep while working today but I continued working through it, just automatic movements. If I fall asleep while standing up, my knees buckle so I wake up from almost collapsing.
Hi, I was diagnosed with narcolepsy & cataplexy in 1999 at 25, although I had the symptoms for many years. Mine is so bad that I cannot drive ever. I fall asleep in any position including standing which results in either falling over like being shot, or instantly entering sleepwalk stage. When I wake up I can be doing things I didnt consciously start. Having it to this degree is very chall;enging & dangerous & I cant handle the side effects of stimulants. Cheers Daniel.
Scary. Most of us are only this bad if we have to chronically delay sleep attacks. Eventually, we lose, and most of my extreme symptoms happen then. I only drive with my wife as with any hint of fatigue she takes over. Nevertheless, I have nothing to complain about. Typically, my cataplexy isn't too bad. Have you tried Modafinil ? Sodium oxipat ? Is narcolepsy a dynamic disorder that worsens over time ? BTW, the dry humor of Monty Python places me in absolute cataplexy... thanks, Brits !
Do people with narcolepsy have frequent uncontrollable yawning fits? Those ones that cause full body tremors and your eyes to water like you’re crying. And teeth chatter. ?? You can’t stop yawning and it lasts for up to a whole hour, every couple seconds! It’s not always the same time of day either. It can happen multiple times a day. Is that a narcolepsy thing?? It’s a normal thing for me forever, but I’ve never met anyone else who it’s ever happened to, and it’s obviously not normal.
I have had it yes but only when I am tired and I know I have to find a place to rest or else I will be in discomfort. If I don’t sleep or fight it, I feel like I haven’t slept for days. My eyes hurt,I feel like I am going mad and worst part is that I cannot sleep even though I re😢want to. You don’t experience these with these yawns?
Any response should start with, See a sleep doctor... Aside from that, I do have narcolepsy with cataplexy, and I didn't think, nor have fielded any complaints, that I was excessively yawning. Of course, we are all unique. Narcolepsy is rare, and it is more likely you have sleep apnea... or something completely different. A one night sleep study will identify any apnea. It is mandatory to fix that before ANY narcolepsy sleep study is performed. If you think you may have narcolepsy its a LONG journey for a medical diagnosis. Consider a sleep study. In closing... these observations may not apply outside of the state I live in, inside of the USA.
Wait I didn't know sleep studies for narcolepsy can be done at home!!!? That's what's been putting me off getting diagnosed, I have a toddler that still wakes up at night but this has been absolutely crippling my life bc I'm constantly falling asleep and can't even drive much anymore. Is this a common thing for sleep specialists to offer now?
Yes, it’s often done at home. But you need the ability to take five naps each scheduled two hours apart. So you would need someone to watch your child for the day. You will need a dark, quiet place free of distractions to take your naps.
I have no idea what is going on with me, if I sit down I’m nodding out within 3-5 minutes. If I am out and about like at a store I am fine , I get in the car and can drive for about a half hour. I get home or wherever and I’m just nodding out again, I know people are thinking “ she must be a drug addict “ at night time I go to sleep but I fastly wake up within a hour and takes 1-3 hours to fall back asleep. I’m always tired!! But during the day when I nod off I sleep for a few minutes like 10 minutes or less and it goes on like this all throughout the day every day. I do take medication for anxiety but it n has been the same for 25 years now, I also take pain medication because I live in pain 24/7 but again same medication same dosages. 😢
I do this, but when I feel it coming on I jump up and start doing things; anything to stay awake, including having a cup of coffee (which doesn’t really work). It’s miserable. I take several 20-30 minute naps during the day too
@@RijasBusiness actually doing much better, I can drive fine it seems that as long as I don’t take one of my medications with another I do really good I’m back traveling, and when I get to my destination I take my medication, I just figured it out when to take it, I am aware when I do I won’t drive at least 2-3 hours after I take it. I realize I still have it so I still take extra precautions. But I do feel better. I hope you are doing better.
I might be narcoleptic. No matter how much I sleep I’m so exhausted. I will fall asleep randomly or at any given chance. For example, today I sat down on a big school desk, waiting for my teammates to finish coloring out project. Next thing you know, I wake up 20 minutes later from a nap. My friends are always poking fun at me for just being so sleepy. My father most likely has narcolepsy. At home, every other 10 minutes he’s falling asleep. I could be trying to talk to him and then I just hear snoressssss.
When you mentioned insomnia my jaw dropped. I had a literal "shut the fuck up?!" Moment. This whole time I thought it was strangle to have CFS and insomnia. Look at my sleep cycle on my fitbit and hearing all these symptom... There's no way I don't have Narcolepsy. Everything makes so much sense. I'm going to talk to my doctor about getting a sleep study to confirm it.
My brother and I also had narcolepsy. It may not be genetically rooted but is likely trauma rooted, at least in my case. We were heavily abused by my father. So I was able to cure my narcolepsy through one session of Accelerated Resolution Therapy. This therapy is used for all types of issues, like traumas or phobias. I used it for both.
So I've been having cataplexy attacks for a few years now. I remember mild ones when I was very young in school and unable to grip my pencil. I thought it was just normal. Then as an adult, I started getting them randomly after I had a bad psychedelic trip. I thought they were panic attacks because it happened every time I thought about the bad trip, and I was diagnosed with panic disorder. As far as eds, it's always been very normal for me so I didn't think much of it.
So i have adha but also had a sleep study done too and i have narcolepsy type 1 and sleep paralysis gets me 3 times already when behind the wheel and i done had 3 motor vehicle accidents within 1.5 year already and been off work due to this approaching 6 months already and been denied temporary disability so life is definitely down in the dump for me and not only that i actually love my job too because i did something when I was there to make me love it but i cant go back because i actually don't think its safe for me neither my doctor as well too until I get proper treatment but i don't think this is going to happen because of insurance companies don't want to pay someone like me because i picked up ot when i was working and i think they would have to pay me 80% of what I made during that time and been there for would be approaching 5 years and i feel its the best job i ever had too and before i started picking up overtime I dealt with the death of my mom and other things too that came right after that but only reason why im putting this on hear is that i can get some prayers because I don't know what is next of this 40 yr old man 😢
I'm not sure where your from, but in my case, my insurance turned me down but approved it on appeal. The initial denial shook me up so much that I got a lawyer. My lawyer became my dedicated advocate as he saw me melt down with cataplexy as I desperately told him how i felt. He told me that most initial denials occur because they wait till Socal Security Benefits take place. If the federal government recognizes disability, it's very difficult for private insurance to weasel out. Furthermore, in my situation the SSDI ruling ( first filing) reduced my private insurances liability. For those that suspect they may have narcolepsy, get on with testing. It's a long road between clinical diagnosis, medical diagnosis, start of treatment, and legal disability. Narcolepsy can progress to complete disability. if you start the journey late ( as I did ) you will find yourself without income, liquidating assets, and going crazy because of ridiculous delays while the bills are collecting. You may loose self worth and become depressed, thereby increasing the depth of and frequently of cataplexy. Be smart ! Quantify how dangerous your condition is to others and install a dash cam in your car. If it appears you're not going to kill someone driving. Hire a lawyer before you tell your employer of your issue. Since some employers are good and others are bad.... One needs to be smart and lay out a logical plan with full knowledge of legal protections and responsibilities. If things go great a treatment program will do wonders for you. In some states, the DMV doesn't require notification of narcolepsy. Indeed, I have my license, but I only drive on short trips with an aware passenger. I hope you get help and find a lawyer ! Some will take your case and accept a percentage of your initial settlement. Getting a lawyer will mentally help offset the feeling of hopelessness on can feel. One can't bear the weight of untreated narcolepsy and a disability system that must look at every claim with suspicion. It took 2 years for me...
I live in the Texas Hill Country i have severe sleep apnea, but also was diagnosed with Narcolepsy not through my MSLT, but a blood allele/marker test at a reputable Austin doctors office. My aunt and my grandma we believe also had narcolepsy, although undiagnosed.
I've had these symptoms for almost 7 years now and I have visited a sleep doctor but the doctor said it was nothing. It's really hard to stay awake while doing anything that requires me to be seated. I keep falling asleep in classes, I even fall asleep during my parents wedding reception. I don't know what to do since I've already visited the doctor.
Cataplexy is the absolute worst. I fall all the time. I used to get a warning feeling that it was coming and as I got older that is gone. I haven't slept for more than 2hrs straight in so long i can't remember. Nor can I stay awake for 4 hours straight without at least a 15 min nap.
Narcolepsy is a major burden. Not quite life ruining, but it can get pretty close if you let it. Hope there's a cure, or better treatment in my future.
Just had a clinical sleep study to check for Narcolepsy (among other things). Somewhat good news? I already have ADHD, so I am already concurrently treating (to a point) possible narcolepsy with Adderall. (Need my 10mg IR pills when driving distance...) (I DO nod off, and it's NOT fun)
Anytime i am comfortable in any setting and no responsibilities... Whether it be at a desk or on a couch.. Game over i fall asleep real quick. One time i was falling asleep while standing listening to my friends talking. Shocking stuff i tell ya
Default notice.. I have narcolepsy but am no doctor... Narcolepsy is due to an autoimmune disease that damages cells in the brain that regulate sleep cycles. Other forms of Narcolepsy can occur with mental illnesses. In either form the best way to highlight narcoleptic symptoms is to look at a sleep study. During the night phase sleep is monitored to ensure proper breathing and a minimum of 6 hours sleep. If a patient presents normal breathing they progress to the daytime test. Anyone in the daytime test has been "cleared " from apnea and remains for narcolepsy testing. During the day a patient will be asked on 5 occasions, to lay down and stay awake. It's considered a marker for narcolepsy if one falls asleep fast and immediately enters REM sleep. I can't remember any specific qualifications but I fell asleep 5 of 5 times within 30 seconds and immediately fell into REM. REM sleep is tracked by electrodes fixed to head, if It occurs near sleep it is NOT in proper sequence and by exclusion of apnea has narcolepsy. Frequently narcolepsy will cause cataplexy where its belived the paralysis state in dreams is active and triggering by emotion, although the patient is fully awake, a muscle paralysisis observed. Unfortunately chronic sleep apnea can mimic narcolepsy so just discussing symptoms without excluding one from the other is not possible and in either case only a clinical diagnosis can be made without testing. An insurance company considers non medical diagnosis week a water. Not all Narcolepsy patients experience cataplexy... No sleep apnea patients experience cataplexy. Sleep apnea will certainly affect a proper sleep patterns and a good doctor will insist that its checked for and treated first. I had to wear my mask for 6 months, without fail during sleep or be disqualified for my daytime narcolepsy test. Today's sleep machine uploads patient use to doctors office ! Expect a drug test before all testing. I probably weaved in info you didnt want to know.....
@@DevRonBey Thanks. I just had a in lab sleep study, I had an at home one done months ago. I have complex sleep apnea but have been wondering if narcolepsy may be present as well. I have experienced sleep paralysis but not cataplexy. we will see what the results are from the lab sleep study in a few weeks. hopefully get some answers.
I am seeing a sleep specialist this month because my neurologist is very sure I have it. I match every single symptom in this video. I am so sleepy every hour of the day it's not even funny...almost feels like my brain is fluttering or wrapped in cotton. At night I have insomnia and only sleep in an intense dream state, 99% of the time it's vivid nightmares and I've endured countless episodes of sleep paralysis. I feel best when I sleep a short amount...but last night went up to 13 hours and feel exhausted. Lately I think I've experienced some cataplexy...I will feel a weird tickle in my brain like it's shutting off and feel like I can't move my limbs as easily for a second. Very scary. Crazy to know this is what it's been all this time. Really makes life difficult.
Fyi, insomnia can be associated with narcolepsy along with other health issues. if your nervous system is stuck in fight or flight mode then your circadian rhythm can flip. Also, if you have vivid intense dreams then it could be due to serious sleep apnea during your sleep also. My sleep performance was better than 99% of the population. But I had pretty bad narcolepsy also. So like you, i had great naps but poor sleep in the evenings + insomnia. I found out that these issues and more were rooted from my childhood trauma. So i was able to cure the narcolepsy using a type of therapy called Accelerated Resolution Therapy
I see myself in this description 😢 I can fall asleep in the middle of a conversation in 2 seconds, then snap awake within 20 sec. It's only happened when the insomnia has been exaggerated. Help me.
Omg i do that uncontious scribble thing 😂 along with everything else here (not so much random muscle control loss, but ive only been experiencing this for half a year so it might come later)
May Allah protect you from any disorders and diseases that exist on this planet earth. Hope your symptoms are not of narcolepsy or any other serious problem and you can be cured soon. Ameen
I'M 22 yo I'm suffering specifically in time of study and focusing nd exams nd writing i can't resist a long time .the problem people don't understand actually i don't care so much about this i tell one of my friends to watch me while i sleep in bus school 😂 ... When i was little i suffered a lot specifically when i didn't understood what's going on i lived without knowing my illness nd i was depressed people always look at me strangely... only one doctor found the problem nd i was 17 yo i felt special honestly when he told me u have "narcolepsy " ... Excepting nd try to adapting is so important also searching about it... i'm scary that i can't drive in the future or work let me know if someone have experience ⏬️
If you have narcolepsy can it cause you to scream in your sleep or have conversations with your significant other or even have weird behaviors like asking your partner of 20 years who they are and hold up your fist threateningly at them with your eyes open and not remember anything in the morning?Just hypothetically....🥴. Lol.
This explains my life for the past 30+ years. But it also means that my neurologist likely misdiagnosed me with epilepsy. Any suggestions on Narcolepsy doctors?
Since you mentioned 30+ years (same with me), do you remember having any childhood traumas? This can also cause both narcolepsy and epileptic seizures.
I’m always so tired.. can sleep for 15-20 hours easily. People who have witnessed my sleeping pattern have always expressed shock and concern. I don’t fall asleep while working but I am not fully alert and give extra effort to stay focused throughout the day. Are these also symptoms of narcolepsy?
I don’t really know if I have it, considering I don’t feel daytime sleeping this more of when I just lay down I am out almost instantly I have a good sleep schedule and I don’t usually get tired.
I fall asleep standing up a lot during the day - sometimes I fall down - I’ve hurt myself pretty badly several times already- but I don’t know what is causing this. I’m 43, and it started about 5 years ago when I was doing a lot of hours at a nursing home - I would do double shifts overnight and I think I messed something up. However, it’s worse with electronics - I sort of just daze out and people make fun of me, they call me a junkie, and it hurts bc I am in recovery (8 years). I don’t go anywhere, esp when I have to sit and watch something bc I am afraid I will fall asleep. I wish I knew what was wrong with me. I don’t think I’m narcoleptic bc I’m so old. And I don’t think I have found anything about standing up sleeping. Am I the only weirdo that does this?
It doesnt matter how old you are..I have all the symptoms, and I also lost muscle control, and I need to stop working..but the sleep test was normal..so they couldnt conform narcolepsy, but they gave me Fnd diagnose, I still sleep most of the day, did you do some sleep test?
@gaylelauren5691 Sorry for injecting myself here.. In my situation the overnight sleep ( minimum +6 hours ) qualified me for the daytime test. I only qualified on the 3rd attempt. During day testing I fell asleep with seconds of laying down. Furthermore I immediately entered REM sleep. I'm going to give you some advice. Be prepared for no answers, because with narcolepsy it can be difficult just getting 2 hours a night without waking up for20 then going back asleep... disqualified, try again. You could just have a good day... disqualified. Don't mean you don't have it just you didn't present. Lastly, don't be surprised if the ask for a sample for a drug test before you get in bed. Relax, don't take things personally. Remember it takes 6 hours of sleep to qualify for the real test.
@@DevRonBey thanks, I mean I guess it doesn’t matter bc I won’t b able to take the medication they will prescribe for it - but that does sound like me I fall asleep very fast in the day and wake up a lot at night (I just woke up now - and at 340am & 1:30, it’s 4:58am rn. I don’t care about the drug test although the first time I was a little offended bc I told him I was in recovery. Idk what it is I did see a thing about shift work sleep disorder
I am facing all these things. I feel sleepy during daytime a lott, and take yawns after every few seconds . Facing severe sleep paralysis as well. But I know that a drug I took 7 years ago (Isotretnoin-acne curing drug) caused me. I also believe all people facing this is because of taking some kind of drug which has caused this side effect in the brain. If you also feel this, pls reply to my comment.
can anyone help me? i can sleep over 10 hours and still wake up wanting to go back to sleep. my day normally starts at 5am, i wake up and immediately go back to sleep, i then wake up around half 6. I force myself to stay awake. 3 hours later i want to go to sleep and im incredibly tired, even if i have an energy drink, i sometimes fall asleep half way through drinking it. if i manage to stay awake i will start to fight to keep myself awake at 4pm. Then i am asleep by 5pm. Other days ill be nocturnal and sleep the whole day and be awake all night. i need help
I’d try to get in for a sleep study and/or get some lab work done to make sure you’re not deficient in something. I’m tired a lot too even after sleeping a lot. Not sure what’s wrong with me
I did a sleep study and they didn't catch anything. But it seems I have times of horrible broken up sleep for no reason, and sometimes not. I have been perpetually sleepy and exhausted no matter how much sleep I get. And getting out of bed is the hardest thing in the world to do. I suspect it's narcolepsy because when I do have these screwed up broken sleep nights, I have the most dreams that I remember.
My guess is that your autoimmune did not cause it, but that they were both caused by something else. That something else could be being raised to always be productive (at home and at work) OR childhood trauma. Basically your nervous system learns that it cannot relax, which causes health issues like these
Never, I repeat never get a spinal tap. You might end up with arachnoiditis which is inflammation the spine. We were never meant to have tools inside our spines.
If you had these sleep issues since childhood then it could be due to childhood trauma or being raised to always be productive by your parents/caregiver
Constructive criticism - that background music is so distracting. I don't understand why people always put it there. It serves no purpose than to annoy the viewer.
It doesn't matter what you or I believe, as neither are qualified to offer any "Proof". I just go with my symptoms and medical reports that do their best to describe this illness and have developed tests to separate the liers from the suffering. If you have doubts, thats your right to voice them, but I suggest you go to a board that can address them with scientific argument. Otherwise, your voice is empty. Once you prove your medical certifications, I'm sure they will welcome you.
I thought I was just a really sleepy fella.
I'm in the same boat. I've had nearly all these symptoms for a long time now. Really makes it difficult to keep up with responsibilities.
Listen, IMHO if you have narcolepsy it's much more symptomatic than sleeping at inconvenient times. It can start that way but usually progress. Absolutely, one should get a sleep study. Statistically, it's more likely that one has apnea in the absence of cataplexy. Feeling tired all the time is serious regardless of the cause.
@@DevRonBeypretty sure I have both lmao, going to see a sleep specialist this Tuesday
Same... I even got diagnosed with Chronic Fatigue first, but I've been sleepy my whole life.
I struggle trying to convince my wife of 16 years to understand that Narcolepsy is a real disorder. I am 49 now, I was diagnosed with Narcolepsy at the age of 20 and have lived with this disorder for more than 30 years. I first started having symptoms around my senior year in high school. My wife, as well with others blames my eating habits, my weight, and pretty much everything else for my sleepiness. Most of our disagreements in our marriage have come from her not understanding that when I get in a "fog" as she says, and am not there for her have been around symptoms of my narcolepsy. I have ministers that don't think this is a real disorder as well, so the added stress of trying not to fall asleep during meetings is very stressful.
My neurologist did an all day on and off again sleep study because of my epilepsy but I was then diagnosed with narcolepsy as well. He said I went into rem & started dreaming faster than anyone he ever seen. I’ve been accused of being on drugs because of narcolepsy. People think I sleep a lot during the day because I enjoy it or I’m lazy. I tell them I’d give anything not to be tired all the time. Then you can’t sleep at night. Then here comes the other people saying “well maybe you shouldn’t sleep during the day then you can sleep at night”
I have epilepsy,narcolepsy, and lupus…..awesome huh
I have Narcolepsy w cat, diabetes and a horrible back. Still, it's great to be alive. Screw folks that don't understand. Im sure at some point they will experience some karma that will adjust their lack of empathy. If you get flack at work, get a lawyer. I HATE lawyers, but everything has its place.
If you've got comorbidities, how do they tell?
I've got cptsd with heavy ptsd symptoms. I've had sleep paralysis since I was 4. I started getting it after witnessing a very traumatic event involving my mother. I was abused from 2 weeks old, neglected, neglected not fed ect
I read that people with any kind of ptsd can get narcolepsy as a result of all the feelings they feel.
I've got ibs already from the cptsd, possible pots and possible narcolepsy. It doesn't stop.
Fyi, autoimmune, epilepsy, narcolepsy, chronic pain (often back pain) are all often associated with each other and can be due to childhood trauma or other major stressor.
There is a form of epilepsy that is mentally triggered rather than physiologically. Its usually due to trauma.
I cured my narcolepsy of 3 decades within minutes via Accelerated Resolution Therapy ($120). I also cured my debilitating back pain of 15 years by simply reading a paperback book (healing back pain by Dr John Sarnos). Good luck!
Thank you for your comment. I'm still getting tested and waiting for initial EEG results. I want a sleep study. I'm exhausted constantly with fibromyalgia and a lot of other illnesses. I can't sleep and have restless legs and muscle spasms, FND with tremors.
Your comment made me feel validated. I've had public cataplexy episodes this week, and it's embarrassing! It scares people too. I'm in Australia & was lucky a lady saw me and told me she wears a Hidden Disabilities Lanyard you can buy online. Great idea if someone calls a medic 🌻 they're for sale on Etsy, Temu etc
are you in Europe? it's so difficult to have a neurological polysomnography in Italy.
No wonder I struggled so hard in high school and onto college. I can't even hold down a desk job. I literally dozed off during the calm parts of whitewater rafting. I remember going to church service and laying down on the bench for a nap at the age of 10. I've gone up to 18 hours in bed and waking up exhausted ready for another night of sleep again. Can't believe it took it 25 years and multiple doctors to finally diagnose me with narcolepsy, I'm starting to see some results with ritalin.
Hope it gets better for us. I will get it right!
Oh my goodness, you could be describing me. I hope you have a good diagnosis, doctor, and you are finding a treatment that works. My psychiatrist just asked me to get a sleep study because he suspects I might have this or another sleep disorder. I never thought about it, I always just felt super ashamed and like a total failure.
Are you having medicine for narcolepsy ? Is it working ? Are you able to stay awake after having medicine during day ? I am asking since I too have narcolepsy and struggling with desk job. Afraid of having medicines. That's why I am asking
Same here but I’m just learning now, the dentist, movies that I actually want to watch, short car rides, laying out at beach or pool which has resulted in some bad sun burns lol 4-5 sleep paralysis episodes a year but more as I get older 29 now
Ive noticed a lot of these symptoms in the past 6 months. I can get 10 hours of sleep (waking up every hour or so throughout), get up in the morning, have a cup of coffee, and within a couple hours of waking up feel so sleepy its like i havent slept in days, and be forced to take a nap. Also, once i start to fall asleep, whether at night or during one of my uncalled for daytime naps, i start dreaming right away. Sometimes, ill even start to phase into a dream before im full asleep! And these dreams are super vivid, and i have almost perfect memory of the details of them. You know how you usually start to forget your dream after waking up, and will completely forget it by days end? Well, i can tell you the exact details of dreams i had a week ago or more. My usual night time sleep usually consists of 5 to 10 dreams, each followed by waking up. I have not experienced any muscle weakness though, and i really hope i dont develop that later, given how recent my symptoms are.
I have the exact same symptoms as you!! I start dreaming in a couples minutes and they’re also extremely vivid
Do you ever start to dream before you even close your eyes bc that always makes for a wild time lmao
@@BriEMcN Yess! If I fight sleep for long enough, I start to basically hallucinate. I start to dream, but can feel my body and can halfway see my surroundings. Those are the weirdest ones.
Have your thyroid checked.
This is pretty much my experience. I always thought it was normal. But the fact that I know for a fact I have adhd and I'm one of the weird ones that actually gets energy from stimulants. Taking vyvanse has been the only reason I don't have mininaps while driving, don't fall asleep while reading to my students, and am just generally able to not suffer being tired all day. When I was a kid I never had good sleep, I've cycled through various forms of insomnia my whole life. I've never been able to sleep a full 8 hours even when I try. Half the time I'm dreaming and hearing things before eyes are closed.y husband says I will go from having a normal conversation before bed to slurring and not making sense at all but still trying to talk. I will already be dreaming at this point and he will just be like go to bed you aren't making sense. It's like the permission I need to let my consciousness fully switch to dream state instead of being in both places at one. I thought this was normal! Maybe I should take a sleep study....idk.
When I try to explain the level of fatigue and sleepiness I feel... I was just sent to a rheumatologist and she asked me if I've been tested for narcolepsy. I could barely keep my eyes open while talking to her. I have to plan around being tired. If i fall asleep I'll think I've been asleep for hours and have full, vivid dreams but will only be asleep for a couple of minutes. Getting a new sleep test so we'll see. This has been going on since my teen years. Haven't been able to work properly in a few years 😫
I have Narcolepsy but had MS for many years before I was diagnosed with Narcolepsy. It was when I went to see my MD thinking I was having MS problems that they recognized the narcolepsy. Identifying the problem is step one to getting better...hope they find the problem for you.😊
@@melikka808 I actually question whether or not I have MS, but was diagnosed with fibromyalgia years ago and recently chronic fatigue syndrome.
I'm just tired of feeling tired 😩.
What the rheumatologist says? In my case they where sure it is narcolepsy, because I have all the symptoms, and cataplexy..but sleep test come back normal..they gave me fnd diagnose..are you any better?
I took 3 MSLTs for me, I started worrying my insurance wouldn't cover a fourth. By your symptoms I'd guess they have already given a clinical diagnosis, unfortunately it can be a real pain jn the a$$ getting that medical diagnosis and the drugs that may change your life.
@@melikka808Is MS a auto immune disease? It's amazing how many there are.. Narcolepsy and Diabetes, my illness are both auto immune.
I’m 42 years old and have struggled with my health in general all my life. Went thru hell. Still fighting. All this sounds exactly like my entire life, as long as I can remember. I’m almost in tears right now. Thank you for this.
Wow, I feel the exact same way. I have always felt so ashamed about my constant falling asleep and sleepiness. I never thought I might have an actual disorder until my doctor just brought it up.
If you had childhood trauma then that would explain the narcolepsy and many health issues that you had. These are usually rooted from a nervous system that has trouble relaxing. ACE is the acronym for the childhood accumulated stressors.
Once I learned this I was able to heal most of my health issues. I’m 38 and had these issues since about 7yrs old. I made a separate comment about how I cured my narcolepsy, etc
Just learned about this. Put me into shock because 7 months ago I started to lose muscle control. Couldn’t explain it. I would walk and my legs failed on me. Couldn’t pick myself up too.
I think that I have a form of narcolepsy, mixed with or exacerbated by other sleep disorders. It's very frustrating. I had a period of life in my early 20s when it was necessary for me to study early in the morning (like 7am) and I constantly fell asleep, no matter how much sleep I had gotten the night before.
Going through same thing right now have a lot to study but feeling sleepy.
.04% ? Damn, When they said I will never be special back in school, they were wrong.
I’ve been like this all my life and thought everyone else was like this too. I fall asleep while driving, while in class, while standing up, while working, and during conversations. But I “fight” it off using different methods like moving around or just letting myself nod off for a few minutes. I’m fine if I sleep for a few minutes. When I sleep, I hallucinate a version of reality..just now I came home from work, sat down, and hallucinated that my family members already ate dinner when in reality I just sat for a few minutes and slept while waiting for dinner. I fell asleep while working today but I continued working through it, just automatic movements. If I fall asleep while standing up, my knees buckle so I wake up from almost collapsing.
Haven't you check up??
Hi, I was diagnosed with narcolepsy & cataplexy in 1999 at 25, although I had the symptoms for many years. Mine is so bad that I cannot drive ever. I fall asleep in any position including standing which results in either falling over like being shot, or instantly entering sleepwalk stage. When I wake up I can be doing things I didnt consciously start. Having it to this degree is very chall;enging & dangerous & I cant handle the side effects of stimulants.
Cheers Daniel.
Quit lying
Scary. Most of us are only this bad if we have to chronically delay sleep attacks. Eventually, we lose, and most of my extreme symptoms happen then. I only drive with my wife as with any hint of fatigue she takes over. Nevertheless, I have nothing to complain about. Typically, my cataplexy isn't too bad. Have you tried Modafinil ? Sodium oxipat ? Is narcolepsy a dynamic disorder that worsens over time ? BTW, the dry humor of Monty Python places me in absolute cataplexy... thanks, Brits !
Do people with narcolepsy have frequent uncontrollable yawning fits? Those ones that cause full body tremors and your eyes to water like you’re crying. And teeth chatter. ?? You can’t stop yawning and it lasts for up to a whole hour, every couple seconds! It’s not always the same time of day either. It can happen multiple times a day. Is that a narcolepsy thing??
It’s a normal thing for me forever, but I’ve never met anyone else who it’s ever happened to, and it’s obviously not normal.
I have had it yes but only when I am tired and I know I have to find a place to rest or else I will be in discomfort. If I don’t sleep or fight it, I feel like I haven’t slept for days. My eyes hurt,I feel like I am going mad and worst part is that I cannot sleep even though I re😢want to. You don’t experience these with these yawns?
Any response should start with, See a sleep doctor... Aside from that, I do have narcolepsy with cataplexy, and I didn't think, nor have fielded any complaints, that I was excessively yawning. Of course, we are all unique. Narcolepsy is rare, and it is more likely you have sleep apnea... or something completely different.
A one night sleep study will identify any apnea. It is mandatory to fix that before ANY narcolepsy sleep study is performed. If you think you may have narcolepsy its a LONG journey for a medical diagnosis. Consider a sleep study. In closing... these observations may not apply outside of the state I live in, inside of the USA.
Wait I didn't know sleep studies for narcolepsy can be done at home!!!? That's what's been putting me off getting diagnosed, I have a toddler that still wakes up at night but this has been absolutely crippling my life bc I'm constantly falling asleep and can't even drive much anymore. Is this a common thing for sleep specialists to offer now?
Yes, it’s often done at home. But you need the ability to take five naps each scheduled two hours apart. So you would need someone to watch your child for the day. You will need a dark, quiet place free of distractions to take your naps.
Don't do it at home. Do it at a sleep center.
I have no idea what is going on with me, if I sit down I’m nodding out within 3-5 minutes. If I am out and about like at a store I am fine , I get in the car and can drive for about a half hour. I get home or wherever and I’m just nodding out again, I know people are thinking “ she must be a drug addict “ at night time I go to sleep but I fastly wake up within a hour and takes 1-3 hours to fall back asleep. I’m always tired!! But during the day when I nod off I sleep for a few minutes like 10 minutes or less and it goes on like this all throughout the day every day. I do take medication for anxiety but it n has been the same for 25 years now, I also take pain medication because I live in pain 24/7 but again same medication same dosages. 😢
I think I nodded off at least 3-5x just writing this out. 😢😢😢😢! I no longer dive on the interstate only in town to local stores.
I do this, but when I feel it coming on I jump up and start doing things; anything to stay awake, including having a cup of coffee (which doesn’t really work). It’s miserable. I take several 20-30 minute naps during the day too
How are you now?
@2shortshorty436 same here I'm before I was able to drive 3 to 4 hours continuously but now I can't drive more than 5km 😢
@@RijasBusiness actually doing much better, I can drive fine it seems that as long as I don’t take one of my medications with another I do really good I’m back traveling, and when I get to my destination I take my medication, I just figured it out when to take it, I am aware when I do I won’t drive at least 2-3 hours after I take it. I realize I still have it so I still take extra precautions. But I do feel better. I hope you are doing better.
I literally fell asleep while watching this huhu
This makes me feel heard..i just wish people were understanding
I might be narcoleptic. No matter how much I sleep I’m so exhausted. I will fall asleep randomly or at any given chance. For example, today I sat down on a big school desk, waiting for my teammates to finish coloring out project. Next thing you know, I wake up 20 minutes later from a nap. My friends are always poking fun at me for just being so sleepy.
My father most likely has narcolepsy. At home, every other 10 minutes he’s falling asleep. I could be trying to talk to him and then I just hear snoressssss.
When you mentioned insomnia my jaw dropped. I had a literal "shut the fuck up?!" Moment. This whole time I thought it was strangle to have CFS and insomnia. Look at my sleep cycle on my fitbit and hearing all these symptom... There's no way I don't have Narcolepsy. Everything makes so much sense. I'm going to talk to my doctor about getting a sleep study to confirm it.
My sister, mother, brother and I all have narcolepsy. Needless to say that I am skeptical that narcolepsy is not related to family history.
My brother and I also had narcolepsy. It may not be genetically rooted but is likely trauma rooted, at least in my case. We were heavily abused by my father.
So I was able to cure my narcolepsy through one session of Accelerated Resolution Therapy. This therapy is used for all types of issues, like traumas or phobias. I used it for both.
If I’m working at home or in the office, i end up being unable to focus my eyes no matter how hard I try and within a minute I’m nodding off
So I've been having cataplexy attacks for a few years now. I remember mild ones when I was very young in school and unable to grip my pencil. I thought it was just normal. Then as an adult, I started getting them randomly after I had a bad psychedelic trip. I thought they were panic attacks because it happened every time I thought about the bad trip, and I was diagnosed with panic disorder.
As far as eds, it's always been very normal for me so I didn't think much of it.
yo the bad trip one... that's been me since August of last year. Kept thinking I was gonna pass out cause of a panic attack...
So i have adha but also had a sleep study done too and i have narcolepsy type 1 and sleep paralysis gets me 3 times already when behind the wheel and i done had 3 motor vehicle accidents within 1.5 year already and been off work due to this approaching 6 months already and been denied temporary disability so life is definitely down in the dump for me and not only that i actually love my job too because i did something when I was there to make me love it but i cant go back because i actually don't think its safe for me neither my doctor as well too until I get proper treatment but i don't think this is going to happen because of insurance companies don't want to pay someone like me because i picked up ot when i was working and i think they would have to pay me 80% of what I made during that time and been there for would be approaching 5 years and i feel its the best job i ever had too and before i started picking up overtime I dealt with the death of my mom and other things too that came right after that but only reason why im putting this on hear is that i can get some prayers because I don't know what is next of this 40 yr old man 😢
Thank you for this post. I’m praying for you.
@@unspokentopics what solutions you thinking
I'm not sure where your from, but in my case, my insurance turned me down but approved it on appeal. The initial denial shook me up so much that I got a lawyer. My lawyer became my dedicated advocate as he saw me melt down with cataplexy as I desperately told him how i felt. He told me that most initial denials occur because they wait till Socal Security Benefits take place. If the federal government recognizes disability, it's very difficult for private insurance to weasel out. Furthermore, in my situation the SSDI ruling ( first filing) reduced my private insurances liability. For those that suspect they may have narcolepsy, get on with testing. It's a long road between clinical diagnosis, medical diagnosis, start of treatment, and legal disability. Narcolepsy can progress to complete disability. if you start the journey late ( as I did ) you will find yourself without income, liquidating assets, and going crazy because of ridiculous delays while the bills are collecting. You may loose self worth and become depressed, thereby increasing the depth of and frequently of cataplexy. Be smart ! Quantify how dangerous your condition is to others and install a dash cam in your car. If it appears you're not going to kill someone driving. Hire a lawyer before you tell your employer of your issue. Since some employers are good and others are bad.... One needs to be smart and lay out a logical plan with full knowledge of legal protections and responsibilities. If things go great a treatment program will do wonders for you. In some states, the DMV doesn't require notification of narcolepsy. Indeed, I have my license, but I only drive on short trips with an aware passenger. I hope you get help and find a lawyer ! Some will take your case and accept a percentage of your initial settlement. Getting a lawyer will mentally help offset the feeling of hopelessness on can feel. One can't bear the weight of untreated narcolepsy and a disability system that must look at every claim with suspicion. It took 2 years for me...
I live in the Texas Hill Country i have severe sleep apnea, but also was diagnosed with Narcolepsy not through my MSLT, but a blood allele/marker test at a reputable Austin doctors office. My aunt and my grandma we believe also had narcolepsy, although undiagnosed.
How are you now?
I've had these symptoms for almost 7 years now and I have visited a sleep doctor but the doctor said it was nothing. It's really hard to stay awake while doing anything that requires me to be seated. I keep falling asleep in classes, I even fall asleep during my parents wedding reception. I don't know what to do since I've already visited the doctor.
I got tested too, without a diagnosis. Cafeïne helps me and staying away from sugar too.
Have you gotten a sleep study done? A multiple sleep latency test is needed to screen for narcolepsy.
This comment section is that 0.4% of the world😢😮
I recently been having a lot of daytime SLEEPINESS.
Cataplexy is the absolute worst. I fall all the time. I used to get a warning feeling that it was coming and as I got older that is gone. I haven't slept for more than 2hrs straight in so long i can't remember. Nor can I stay awake for 4 hours straight without at least a 15 min nap.
Narcolepsy is a major burden. Not quite life ruining, but it can get pretty close if you let it. Hope there's a cure, or better treatment in my future.
Just had a clinical sleep study to check for Narcolepsy (among other things).
Somewhat good news? I already have ADHD, so I am already concurrently treating (to a point) possible narcolepsy with Adderall. (Need my 10mg IR pills when driving distance...) (I DO nod off, and it's NOT fun)
I have a 40 minute drive too work and from work and everyday I’m on the expressway fighting sleep. It’s terrible to deal with
I need so much my ritalin its not fair
@Mr_Biz wich ones im desesperate.
@Mystery bro how do you feel now?
Awesome and informative video. I am a diagnosed narcoleptic and I watched this during an insomniac stint tonight hahaha 🥴😅
Me too!!! 🤦🏾♀️
Anytime i am comfortable in any setting and no responsibilities... Whether it be at a desk or on a couch.. Game over i fall asleep real quick. One time i was falling asleep while standing listening to my friends talking. Shocking stuff i tell ya
I fell asleep while watching this 😩
how can you tell the difference between narcolepsy and sleep apnea related symptoms?
Default notice.. I have narcolepsy but am no doctor... Narcolepsy is due to an autoimmune disease that damages cells in the brain that regulate sleep cycles. Other forms of Narcolepsy can occur with mental illnesses. In either form the best way to highlight narcoleptic symptoms is to look at a sleep study. During the night phase sleep is monitored to ensure proper breathing and a minimum of 6 hours sleep. If a patient presents normal breathing they progress to the daytime test. Anyone in the daytime test has been "cleared " from apnea and remains for narcolepsy testing. During the day a patient will be asked on 5 occasions, to lay down and stay awake. It's considered a marker for narcolepsy if one falls asleep fast and immediately enters REM sleep. I can't remember any specific qualifications but I fell asleep 5 of 5 times within 30 seconds and immediately fell into REM. REM sleep is tracked by electrodes fixed to head, if It occurs near sleep it is NOT in proper sequence and by exclusion of apnea has narcolepsy.
Frequently narcolepsy will cause cataplexy where its belived the paralysis state in dreams is active and triggering by emotion, although the patient is fully awake, a muscle paralysisis observed.
Unfortunately chronic sleep apnea can mimic narcolepsy so just discussing symptoms without excluding one from the other is not possible and in either case only a clinical diagnosis can be made without testing. An insurance company considers non medical diagnosis week a water. Not all Narcolepsy patients experience cataplexy... No sleep apnea patients experience cataplexy.
Sleep apnea will certainly affect a proper sleep patterns and a good doctor will insist that its checked for and treated first. I had to wear my mask for 6 months, without fail during sleep or be disqualified for my daytime narcolepsy test. Today's sleep machine uploads patient use to doctors office ! Expect a drug test before all testing. I probably weaved in info you didnt want to know.....
@@DevRonBey Thanks. I just had a in lab sleep study, I had an at home one done months ago. I have complex sleep apnea but have been wondering if narcolepsy may be present as well. I have experienced sleep paralysis but not cataplexy. we will see what the results are from the lab sleep study in a few weeks. hopefully get some answers.
I have to have Adderall to stay awake and use trazodone to fully sleep.
I am seeing a sleep specialist this month because my neurologist is very sure I have it. I match every single symptom in this video. I am so sleepy every hour of the day it's not even funny...almost feels like my brain is fluttering or wrapped in cotton. At night I have insomnia and only sleep in an intense dream state, 99% of the time it's vivid nightmares and I've endured countless episodes of sleep paralysis. I feel best when I sleep a short amount...but last night went up to 13 hours and feel exhausted. Lately I think I've experienced some cataplexy...I will feel a weird tickle in my brain like it's shutting off and feel like I can't move my limbs as easily for a second. Very scary. Crazy to know this is what it's been all this time. Really makes life difficult.
Fyi, insomnia can be associated with narcolepsy along with other health issues. if your nervous system is stuck in fight or flight mode then your circadian rhythm can flip. Also, if you have vivid intense dreams then it could be due to serious sleep apnea during your sleep also.
My sleep performance was better than 99% of the population. But I had pretty bad narcolepsy also. So like you, i had great naps but poor sleep in the evenings + insomnia.
I found out that these issues and more were rooted from my childhood trauma. So i was able to cure the narcolepsy using a type of therapy called Accelerated Resolution Therapy
I don’t know if I have this but sometimes sleepiness hits me suddenly and I need a nap immediately. It happens frequently.
I have both Narcolepsy and Cataplexy majority of my day and night is spent sleeping
I see myself in this description 😢
I can fall asleep in the middle of a conversation in 2 seconds, then snap awake within 20 sec. It's only happened when the insomnia has been exaggerated. Help me.
Omg i do that uncontious scribble thing 😂 along with everything else here (not so much random muscle control loss, but ive only been experiencing this for half a year so it might come later)
May Allah protect you from any disorders and diseases that exist on this planet earth. Hope your symptoms are not of narcolepsy or any other serious problem and you can be cured soon. Ameen
I'M 22 yo I'm suffering specifically in time of study and focusing nd exams nd writing i can't resist a long time .the problem people don't understand actually i don't care so much about this i tell one of my friends to watch me while i sleep in bus school 😂 ...
When i was little i suffered a lot specifically when i didn't understood what's going on i lived without knowing my illness nd i was depressed people always look at me strangely... only one doctor found the problem nd i was 17 yo i felt special honestly when he told me u have "narcolepsy " ...
Excepting nd try to adapting is so important also searching about it... i'm scary that i can't drive in the future or work let me know if someone have experience ⏬️
If you have narcolepsy can it cause you to scream in your sleep or have conversations with your significant other or even have weird behaviors like asking your partner of 20 years who they are and hold up your fist threateningly at them with your eyes open and not remember anything in the morning?Just hypothetically....🥴. Lol.
Yes it can.
I was thinking about getting checked up, but then I heard spinal tap and I’m good now.
I need to talk to my doctor this fits what I'm experiencing
This is excellent! Thank you🙂
This explains my life for the past 30+ years. But it also means that my neurologist likely misdiagnosed me with epilepsy. Any suggestions on Narcolepsy doctors?
Since you mentioned 30+ years (same with me), do you remember having any childhood traumas? This can also cause both narcolepsy and epileptic seizures.
I’m always so tired.. can sleep for 15-20 hours easily. People who have witnessed my sleeping pattern have always expressed shock and concern. I don’t fall asleep while working but I am not fully alert and give extra effort to stay focused throughout the day. Are these also symptoms of narcolepsy?
Im always tired too. My hemoglobin and thyroid is normal. Not sure what’s wrong with me I can’t live like this
This sounds more like idiopathic hypersomnia
I feel drowsy while watching this
I don’t really know if I have it, considering I don’t feel daytime sleeping this more of when I just lay down I am out almost instantly I have a good sleep schedule and I don’t usually get tired.
I fall asleep standing up a lot during the day - sometimes I fall down - I’ve hurt myself pretty badly several times already- but I don’t know what is causing this. I’m 43, and it started about 5 years ago when I was doing a lot of hours at a nursing home - I would do double shifts overnight and I think I messed something up. However, it’s worse with electronics - I sort of just daze out and people make fun of me, they call me a junkie, and it hurts bc I am in recovery (8 years). I don’t go anywhere, esp when I have to sit and watch something bc I am afraid I will fall asleep. I wish I knew what was wrong with me. I don’t think I’m narcoleptic bc I’m so old. And I don’t think I have found anything about standing up sleeping. Am I the only weirdo that does this?
I'm definitely going to pray for you too
It doesnt matter how old you are..I have all the symptoms, and I also lost muscle control, and I need to stop working..but the sleep test was normal..so they couldnt conform narcolepsy, but they gave me Fnd diagnose, I still sleep most of the day, did you do some sleep test?
@@stellaancimer8505 I’m waiting for my appt - in the next month
@gaylelauren5691 Sorry for injecting myself here.. In my situation the overnight sleep ( minimum +6 hours ) qualified me for the daytime test. I only qualified on the 3rd attempt. During day testing I fell asleep with seconds of laying down. Furthermore I immediately entered REM sleep. I'm going to give you some advice. Be prepared for no answers, because with narcolepsy it can be difficult just getting 2 hours a night without waking up for20 then going back asleep... disqualified, try again. You could just have a good day... disqualified. Don't mean you don't have it just you didn't present. Lastly, don't be surprised if the ask for a sample for a drug test before you get in bed. Relax, don't take things personally. Remember it takes 6 hours of sleep to qualify for the real test.
@@DevRonBey thanks, I mean I guess it doesn’t matter bc I won’t b able to take the medication they will prescribe for it - but that does sound like me I fall asleep very fast in the day and wake up a lot at night (I just woke up now - and at 340am & 1:30, it’s 4:58am rn. I don’t care about the drug test although the first time I was a little offended bc I told him I was in recovery. Idk what it is I did see a thing about shift work sleep disorder
I've been diagnosed with RLS, but now I wonder if that was a misdiagnosis.
I am facing all these things. I feel sleepy during daytime a lott, and take yawns after every few seconds . Facing severe sleep paralysis as well.
But I know that a drug I took 7 years ago (Isotretnoin-acne curing drug) caused me. I also believe all people facing this is because of taking some kind of drug which has caused this side effect in the brain. If you also feel this, pls reply to my comment.
I think it’s maybe Covid too
can anyone help me? i can sleep over 10 hours and still wake up wanting to go back to sleep. my day normally starts at 5am, i wake up and immediately go back to sleep, i then wake up around half 6. I force myself to stay awake. 3 hours later i want to go to sleep and im incredibly tired, even if i have an energy drink, i sometimes fall asleep half way through drinking it. if i manage to stay awake i will start to fight to keep myself awake at 4pm. Then i am asleep by 5pm. Other days ill be nocturnal and sleep the whole day and be awake all night. i need help
also my dad has narcolespy and cataplexy and i have tourettes
I’d try to get in for a sleep study and/or get some lab work done to make sure you’re not deficient in something. I’m tired a lot too even after sleeping a lot. Not sure what’s wrong with me
@@milliem8051 I know I'm definicient in iron, vitamin D and B but idk i might ask doctors
same except i wasnt born with it my abusive dad caused me so much stress i started sleeping more often
"Hi I'm carol" *passes out* 😭😂
REALLY FLICKING FUNNY
Not funny inpassed out yesterday
@@karineaudet6270 I was literally quoting what was in the video not actual people passing out
@@R0sie. sorry. Im actually in a no meds phase and a bit edgy. Sorry.
@@karineaudet6270 No worries!
I’m wondering if I’ve been misdiagnosed with cfs the past 7 years..
the entire time i watched this video i was like 'huh that would explain the *symptoms of narcolepsy* i experience"
I have dreams as soon as my eyes shut I had to stop taking Ubers cause I fell asleep so fast
High-five! Thank you for this information. This describes my life. 😅😴
I did a sleep study and they didn't catch anything. But it seems I have times of horrible broken up sleep for no reason, and sometimes not. I have been perpetually sleepy and exhausted no matter how much sleep I get. And getting out of bed is the hardest thing in the world to do. I suspect it's narcolepsy because when I do have these screwed up broken sleep nights, I have the most dreams that I remember.
Are you from Europe? looking for a clinic for sleeping study
@@amedeocristiano2026 no I'm not
are you from USA? how did you treat those simptoms? I have something similar
@@amedeocristiano2026 I am. They didn't treat anything because it wasn't passable on the test.
@@TheOneTrueAJ Which is a possible similiar scenario for me. I have only excessive daytime sleepiness
Now I know why I always forget everything and lose everything. My Dr said my narcolepsy is cuz of my auto immune disease.
My guess is that your autoimmune did not cause it, but that they were both caused by something else. That something else could be being raised to always be productive (at home and at work) OR childhood trauma. Basically your nervous system learns that it cannot relax, which causes health issues like these
I dont sleep though
Sorry but I fell asleep 😴.
I fell asleep watching this twice… fuck
Never, I repeat never get a spinal tap. You might end up with arachnoiditis which is inflammation the spine. We were never meant to have tools inside our spines.
because it becomes progrssive inflammation and causes the most painful disease on earth called adhesive arachnoidits
Hundred percent my entire life this you just described yeah
If you had these sleep issues since childhood then it could be due to childhood trauma or being raised to always be productive by your parents/caregiver
Constructive criticism - that background music is so distracting. I don't understand why people always put it there. It serves no purpose than to annoy the viewer.
I have it too, but I just slap myself in the face when I get sleepy and then I’m good to go. 😂
Ok well... i think i accidentally made an oc with this
Zzzzzzzzz lol I work at the backyard so I sleep none……zzzzzzzz
Oh she's saying a whole lot of nothing
FYI, I reported the yelling troll...
SERIOUSLY ?
I would rather have A MASSIVE HEART ATTACKS DAILY
Your heart probably disagrees.
No u don’t
WHERE IS YOUR SPECIFIC MEDICAL PROOF
are u a doctor 😭
It doesn't matter what you or I believe, as neither are qualified to offer any "Proof". I just go with my symptoms and medical reports that do their best to describe this illness and have developed tests to separate the liers from the suffering. If you have doubts, thats your right to voice them, but I suggest you go to a board that can address them with scientific argument. Otherwise, your voice is empty. Once you prove your medical certifications, I'm sure they will welcome you.
NOT ACCURATE
SHOUTING DOESN'T PROVE YOUR POINT. WHERE'S YOUR EVIDENCE AGAINST THIS?!
NOT REMOTELY ACCURATE
NOT REMOTELY ACCURATE