Understanding the Differences Between Narcolepsy Type 1, Type 2, and Idiopathic Hypersomnia
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- Опубліковано 14 чер 2023
- Understanding the Differences Between Narcolepsy Type 1, Type 2, and Idiopathic Hypersomnia, by Dr. Thomas Scammell, MD
June 15th, 2023 - 2pm ET
Wake Up Narcolepsy June 2023 Brown Bag Webinar
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Resources from chat:
www.ncbi.nlm.nih.gov/pmc/arti...
academic.oup.com/brain/articl...
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Dr Scammell is a talented science communicator. This was very informative. Thank you.
Informative presentation with easy-to-understand language for even a non-medical professional :)
Some advice regarding the findings and impact of N and IH on social life as well as work regarding treatment options:
Patients and doctors should try high dosage therapy for MPH for example. I do it, I can’t and don’t want to nap during the day and this can only be achieved by using more MPH in my case.
Day to day life is still hard, but it feels better than limiting oneself in a working environment and also for going out with friends in the evening, though very rarely. Also night sleep is better for me.
I have the feeling, that many N patients think they need to combine MPH and naps, instead of taking more MPH to prevent mandatory naps.
Just my opinion.
Considering Narcolepsy is essentially a REM sleep disorder, I wonder if you could ask patients if they experience Maladaptive Daydreaming as well. I’m willing to bet most of them do. I know I do. It would make sense if the two are correlated, that the excessive sleepiness and daydreaming are linked. Daydreaming could be REM sleep creeping into waking hours?
If you happen to find this interesting and do ask several patients this, I’d be happy to hear back from you. If you end up publishing studies, just toss my name in there 😜
Thank you for this Webinar it was very helpful. If a person doesn't take trazadone but is given it the night of the sleep study would that make a difference on the results of the sleep study?
According to Dr. Scammell, "As an antidepressant, trazodone could suppress REM sleep overnight, and this could result in more REM sleep on the MSLT the next day. However, the effects of trazodone on REM sleep are smaller than with most antidepressants, and the impact on the MSLT may be small." We hope this clarifies things! Thank you for your question!
@@WakeUpNarcolepsy Thank you! This definitely addresses my concerns.
@@dianefrank3688 We are very glad to help!
Are there any predictions on how long it will take for it to be semi-curable/curable?
Given how complex the disorder is, things change frequently. We are unfortunately unable to give a prediction for a cure, but the future is hopeful for advancements surrounding treatments and research. Updates on research and a list of current clinical trials can be found here: www.wakeupnarcolepsy.org/research/clinical-trials/