FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
You are so right! I think the key to their great bond is the Mum's engagement in Luciana's life. The healthy one. She explains everything to her and makes the whole medical side of her condition understandable for her. I think that strengthens their relationship. Honesty and support
Horrible disease 💔We take our health for granted. Getting older makes you stiff and hurt everyday but I can only imaging how painful and awful it is what these people with this disease suffer with everyday.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
I want to believe Luciana’s condition will not progress any further. I admire her resilience and her mother’s efforts to provide her every opportunity to love and enjoy experiences. Love this little girl.
Inspirational… she is strong in spirit and a trooper. Mom is giving her confidence and helping her experience a childhood that is as normal as possible and making sure she explores her emotions. Great job Mom!!
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
Luciano I've listened & watched your story you're a beautiful little girl you're precious you're brave braver than I am. I'll think of you sweetheart don't give up princess. Loads of love xx
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
I felt so happy for Luciana among the dolphins! Mom you are doing the right thing wanting to let her having as many experiences as possible now. I wish you both the best ❣
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
Bless her little heart 💗💖💝. She’s such a trooper and it breaks my heart when she said several times that she just wanted to be normal 💔. She has a great mom! Good luck in the years to come and my prayers are with you all 🙏🤗😁
I hate that their marriage fell apart but I really hope it's true that her Dad will always be near by, involved and helping. As the parent of a little girl as well as a son with severe disabilities I know how important it is for a little girl to have their Dad and how important it is to have help with a child that has special needs. I'm very lucky to have a very happy, committed marriage and a loving husband. I couldn't do my son's disabilities without help. But, above that, children in general just need their fathers and sadly so many walk away and consider sending a check for child support, if they even do that, sufficient fatherly involvement. And, a child with special needs probably needs both parents even more than a "normal" child.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
Thank you for sharing her story. I really do appreciate it.. 😊😊 do you have an update of where she is now?❤❤ be safe everyone and let’s not take life for granite.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
I just wanted to say go out and try and date and don't hold back there is a girl out there that will love you know matter what, my son's father was born with Cerebral palsy and never thought he would have a kid and be a dad and whether he could walk or not I loved his personality so much that I never even gave it thought that he was different and you will definitely find the same it just takes a lot of trial and error but don't ever give up on meeting someone!
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
41:04 omg I swam with dolphins too! It was 2017! But definitely not young as she is! I don’t think I’d be brave as her at her age let alone the water is cold!
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
One of the many visions I've experienced in this life, was waking up inside the statue of a stone Angel hovering in an infinite blue sky filled with other stone Angels at varying heights and depths dispersed far and wide from one another, where i was only able to see out of its left eye. Maybe your daughter is an Angel made manifest in flesh form? Just volunteering another way of viewing her life rather than having her believe she's an abomination compared to humanity's "perfection." Also, our minds/spirit go through many changes through animating numerous forms ranging from mineral to fungi to vegetable and to animals from the minutest to these current forms labeled human and beyond.
No you can complain because it’s real and can be painful. I have back pain that has caused neuropathy’s and I complain too because it’s painful, but this disease is horrible and this little girl is so brave!!!
Luciana, your ballerina moves are some of the best I have ever seen, the toes the feet positions, and your body stance....WOW!!! As for voice, who do you get that awesome raspy deep voice from? Your voice needs to be in a singing session alongside the greatest artists TODAY. It's unlikely that anyone else your age has a voice like you!!!! Reach for the ballerina stars sweet, as YOU are the making of greatness!!!!!
It must be so incredibly frustrating for the scientists who know what gene causes this and if we just know how to switch it on or off (whatever is necessary) they would all be cured! We are literally on the very edge of being able to cure so many genetically caused diseases. We just need to stop having more than 2 or 3 kids per family because overpopulation is already a huge problem if we can cure diseases as well then??? I hope all the kids suffering get help.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
“How did Luciana overcome FOP?” Oh that’s easy. She didn’t, it’s still going to kill her eventually because the condition is incurable and invariably fatal. GFOH with this clickbait.
No, when Adam & Eve sinned against God by eating from the forbidden tree, sin came upon mankind and that includes moral sin and physical disease and genetic disorders. If she believes in Christ for her eternal salvation, she will one day have an eternal glorified body with no disease, sorrow, or pain.
I was taught as a child and adult being taught about god, that he created everything. If there is a god, he's got some explaining to do @theresarasche3173
No, CD has stiff person syndrome, it is different from FOP. It causes stiffness and rigidity but the muscles don't actually turn to bone. Also, it affects mostly middle aged people where FOP is present at birth.
Has her mum tried to seek prayers at church for her? Am sure this is deeply spiritual than what we see on the surface. She could visit Christ Embassy church in london.
Please say a prayer to Jesus Christ to touch her and that man and reverse this hideous disease. When Adam & Eve sinned against God, the result was fallibility in man through disease and sickness.
Her mom is so great with her! She is a happy little girl. They will be a great team as she grows. If she sees this, I will be sending lots of prayers.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
😊😊😊
You are so right! I think the key to their great bond is the Mum's engagement in Luciana's life. The healthy one. She explains everything to her and makes the whole medical side of her condition understandable for her. I think that strengthens their relationship. Honesty and support
Horrible disease 💔We take our health for granted. Getting older makes you stiff and hurt everyday but I can only imaging how painful and awful it is what these people with this disease suffer with everyday.
“She’s driving at the moment, better ring her at the weekend” 🥰 What a sweet, smart, funny girl and supportive mom!
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
I want to believe Luciana’s condition will not progress any further. I admire her resilience and her mother’s efforts to provide her every opportunity to love and enjoy experiences. Love this little girl.
Inspirational… she is strong in spirit and a trooper. Mom is giving her confidence and helping her experience a childhood that is as normal as possible and making sure she explores her emotions. Great job Mom!!
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
She's a young woman now! I remember seeing this year's ago, she's such a sweet adorable girl! It's great knowing she is still alive!
Good to know it. Do you know also how she's doing now? thanks
@@dadycreations100 I'm not sure. I heard she might have IG. U could check.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
Luciano I've listened & watched your story you're a beautiful little girl you're precious you're brave braver than I am. I'll think of you sweetheart don't give up princess. Loads of love xx
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
What a beautiful, precious, little girl. I'm amazed at her strength, maturity, and understanding of her condition. Best wishes to you all.
This is such an inspirational and emotional documentary. She is such an incredible girl fighting this horrible disease. Hope Luciana is doing well
You are doing a Amazing job Moma! She’s Beautiful and Blessed to have you!
You are a wonderful caring mother. So strong and supportive! 🙏
I felt so happy for Luciana among the dolphins! Mom you are doing the right thing wanting to let her having as many experiences as possible now. I wish you both the best ❣
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
@@65gtotrips Thanks a lot
I’d love to be her friend! She may be physically different but she’s a typical kid! 😊 she’s a special person!
Bless her little heart 💗💖💝. She’s such a trooper and it breaks my heart when she said several times that she just wanted to be normal 💔. She has a great mom! Good luck in the years to come and my prayers are with you all 🙏🤗😁
Luciana god bless you and your family! All love to you ❤❤🙏🏽🙏🏽
I hate that their marriage fell apart but I really hope it's true that her Dad will always be near by, involved and helping. As the parent of a little girl as well as a son with severe disabilities I know how important it is for a little girl to have their Dad and how important it is to have help with a child that has special needs. I'm very lucky to have a very happy, committed marriage and a loving husband. I couldn't do my son's disabilities without help. But, above that, children in general just need their fathers and sadly so many walk away and consider sending a check for child support, if they even do that, sufficient fatherly involvement. And, a child with special needs probably needs both parents even more than a "normal" child.
What a horrid rotten disease to happen to this little girl and others who have it😢
Poor Luciana, poor Adrian and poor Robert. Robert is far worse off, what a horrific state to be forced to live in.
She is now a beautiful 25 year old woman.....❤
She is the cutest of all pies. 🥧🩷 I wish her the absolute best.
So her dad just ran away? What a loser.
Girls, good luck and best wishes ❤❤
What a bright, happy little soul she is, I wonder how she's doing now?
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
I can't stop laughing at that phone call though. Sorry. Mummy is driving at the moment. Oh Luciana. We love you.
Thank you for sharing her story. I really do appreciate it.. 😊😊 do you have an update of where she is now?❤❤ be safe everyone and let’s not take life for granite.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
Beautiful brave girl 👏
3:04 love how people like her from lancshire say me arms instead of my arms! It sounds Irish!
Saw this many years ago, wonder how shes doing today. . .
She is now a beautiful 25 year old woman....❤
This is gonna sad isn’t it 😢
She is such a sweet sweet girl and very beautiful
I just wanted to say go out and try and date and don't hold back there is a girl out there that will love you know matter what, my son's father was born with Cerebral palsy and never thought he would have a kid and be a dad and whether he could walk or not I loved his personality so much that I never even gave it thought that he was
different and you will definitely find the same it just takes a lot of trial and error but don't ever give up on meeting someone!
I’m wondering since the disease gets worse as she gets older and with growth if her growth was stopped maybe she could keep her current mobility.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
@@crystalmobile7359 it will not stop. It will continue forever. That's what Progressiva means.
41:04 omg I swam with dolphins too! It was 2017! But definitely not young as she is! I don’t think I’d be brave as her at her age let alone the water is cold!
She has to be a young woman by now. I saw this ages ago. I hope they are both doing well.
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
@@65gtotrips
Thank you very much.
One of the many visions I've experienced in this life, was waking up inside the statue of a stone Angel hovering in an infinite blue sky filled with other stone Angels at varying heights and depths dispersed far and wide from one another, where i was only able to see out of its left eye.
Maybe your daughter is an Angel made manifest in flesh form?
Just volunteering another way of viewing her life rather than having her believe she's an abomination compared to humanity's "perfection."
Also, our minds/spirit go through many changes through animating numerous forms ranging from mineral to fungi to vegetable and to animals from the minutest to these current forms labeled human and beyond.
Povere creature, chissà quanto dolore portano via 🥺🥺🥺
What is the isotope that has the nickname, The Bone Seeker ??
I complained to today that my stomach hurt from bad Indian food. I should be ashamed of myself
No you can complain because it’s real and can be painful. I have back pain that has caused neuropathy’s and I complain too because it’s painful, but this disease is horrible and this little girl is so brave!!!
2 things may exist at once. Someone else's pain doesn't invalidate yours
I want to see an update
This is like the beautiful young lady from Glasgow. they called that program the human mannequin…
Where is this little girls Dad?
Luciana, your ballerina moves are some of the best I have ever seen, the toes the feet positions, and your body stance....WOW!!! As for voice, who do you get that awesome raspy deep voice from? Your voice needs to be in a singing session alongside the greatest artists TODAY.
It's unlikely that anyone else your age has a voice like you!!!!
Reach for the ballerina stars sweet, as YOU are the making of greatness!!!!!
Thanks for blurring out everything. Ruined the video
What are you blurring????
It must be so incredibly frustrating for the scientists who know what gene causes this and if we just know how to switch it on or off (whatever is necessary) they would all be cured! We are literally on the very edge of being able to cure so many genetically caused diseases. We just need to stop having more than 2 or 3 kids per family because overpopulation is already a huge problem if we can cure diseases as well then??? I hope all the kids suffering get help.
They should look into maybe getting a service dog or something so she can feel more independent
FYI, this documentary is about 18 years old, as Luciana is now 25. If you want to read how Luciana is doing now at age 25, she has an update called ‘A Chat with Luciana’ on the FOP Friends landing page.
“How did Luciana overcome FOP?”
Oh that’s easy. She didn’t, it’s still going to kill her eventually because the condition is incurable and invariably fatal.
GFOH with this clickbait.
What a horrible disease 😢😮😢
🙏🏻🙏🏻🙏🏻💜💜💜
Poor baby. 😢 She doesn’t deserve this. Proof there is no some sort of “God”
This is not God’s fault…it’s called genetics!
No, when Adam & Eve sinned against God by eating from the forbidden tree, sin came upon mankind and that includes moral sin and physical disease and genetic disorders. If she believes in Christ for her eternal salvation, she will one day have an eternal glorified body with no disease, sorrow, or pain.
I was taught as a child and adult being taught about god, that he created everything. If there is a god, he's got some explaining to do @theresarasche3173
I believe this is what Celine Dion is suffering from
No, CD has stiff person syndrome, it is different from FOP. It causes stiffness and rigidity but the muscles don't actually turn to bone. Also, it affects mostly middle aged people where FOP is present at birth.
No, Celine has stiff person syndrome which affects muscle. FOP displaces damaged tissues with bone.
No. It is not the same.
Would Celine Dion have had this, she would never have been Celine Dion ..
Has her mum tried to seek prayers at church for her? Am sure this is deeply spiritual than what we see on the surface. She could visit Christ Embassy church in london.
Don’t bring African fake arrsss pastors into this please..! 🙄🙄
Leave it for those in Africa. So effing dumb..!!!! Lawd!
You are not sure of ANYTHING..! Let that sink in.. 🙄🙄
@@Geneviev285 you may disregard everything about God but that right there,is demonic oppression. God didn't intend for his creation to live this way.
Praying won't help. If praying helped there wouldn't be fop.
Prayer is always the first thing to do and prayer does in fact work.
Please say a prayer to Jesus Christ to touch her and that man and reverse this hideous disease. When Adam & Eve sinned against God, the result was fallibility in man through disease and sickness.
“The condition started when I was 2 years old”… 😟