Battling DIPG: An Incurable Childhood Brain Tumor
Вставка
- Опубліковано 16 тра 2019
- As 4-year-old Vivian Rose Weaver from Husum, Washington, fights a terminal brain tumor, her parents balance end-of-life decisions with making each moment count.
Subscribe to our channel for new OPB videos every week: ua-cam.com/users/opb?sub_confi...
Stories like this are so sad. I have terminal brain cancer & I always think to my self thank god it is me and not my daughter. Even with that I am so scared to not be there for her when she get's older.
Sorry to hear this :(
You will always be there with her! ❤ Just like my Dad is for me even though he passed away years ago... have you thought about doing daily vlogs dedicated to her?
You are a true soul, God bless you !! Yes you will allways be with your daughter, spiritually.
Omg!! I am so so sorry☹️☹️☹️ I cannot even imagine what your going through or how you feel but I know this....God will take care of you and their is definitely 💯 life on the other side. Don't worry and know that your daughter will always have you no matter what. You will see her again. Also I hope you are able to live your life to the fullest ❤️🙏💗 until God calls you home. I wish you all the blessings and love in the world.
May God Bless You and your daughter .. 🙏🏻🙏🏻
My four year old died of DIPG. He was a great soul and even though he is gone I love him to pieces. I am thankful for the wonderful time we had together but I wish for others not to have to go trough this, a cure MUST be found. Please!
z1cke92 truly my condolences
So sorry about your angel😭
I'm sorry for your loss dear can you tell me the symptoms
Cures ARE found.. this is simply genocide. Sorry to tell you. ua-cam.com/video/uSw0nc914IM/v-deo.html
@@missyartistic1760 fuck off
Sweet angel passed away on March 6 2020. Forever prayers for her and her family through this tough time
Was mine bday also. So sad.
I’m so sorry
Oh nooo. Rest in Paradise Sweetheart ♥️♥️😥
Oh no Rest In Peace baby girl
Breaks my heart. I know she is an angel now, with Jesus.
My 5 year daughter died of DIPG just one month ago..Hope no parents ever suffer the pain we are suffering after seeing our cute babe suffered for nearly 2 months and then succumbed to her fate..
My 5 year old brother has it now. He has DIPG and was diagnosed april 2nd or 3rd. More info on the "Mighty Matt" facebook page
I'm so sorry...we lost our beautiful daughter in 2005 with the same tumor. So hard, and miss her so much. Love and hugs to you and your family. The longs
@@deanalong211 thanks, im sorry you guys had to go through it.
Sending strength to your family💛
So sorry to hear from families who have suffered the loss of a child from this horrific Illness. As a parent myself I can't imagine how you cope with something like that 💔💔💔
They have got to do more research on this!!! This DIPG is so devastating. These babies don't deserve this!
They are trying but so far nothing is working. They have clinical trials and such but so far nothing is working.
Noone does not just kids!
@@camilamontoya3447 ok lol
No one does
@@donatedbaconunicorn8853 DUH. My reply is specific to THIS video. My comment pertains to THIS video. MY opinion is for THIS VIDEO.
This is the most unfair disease ever... There was a little girl in our area that I watched progress though the disease and I thought why isn’t more being done.... It just makes your heartache for these poor babies....
and the most mistreated
Between this and ALS, they break my heart.
very true
The absolute horror is to know there are cures. Its a big genocide done by the elites, just watch the doc ua-cam.com/video/uSw0nc914IM/v-deo.html. Its not only the covid lie... the whole medical science is a lie
i think all diseases are unfair..
My 3 year old daughter was just diagnosed. She is our only child.
I'm continuously praying for her and for other children.
It's my sincere hope that funding increases as awareness spreads.
Please spread the word if you can.
prayers ops
It turns out that I know her uncle, she recently passed away at the age of 5. Rest in peace Vivian.
Omg...I was wondering. Her poor parents must be heartbroken
That’s so sad I’m so sorry for there loss that breaks my heart 😞😔
My gosh 😔. I can't imagine the grief they're enduring right now. May God comfort their hearts and give them hope
It breaks my heart. It's very sad
😢 Sweet Vivian. May she be rest in peace in the arms of Jesus. My prayers go out to the family. I can't imagine that pain.
I know two families who’s daughters had DIPG. So sad to watch them go through it.
You’ll always be remembered Tatum and Molly.
So sad
So heart breaking
It broke my heart when the mother told her child to close her eyes. Imagining what what this family are going through, is so unbearable
My little sister savannah has dipg and shes only 11 diagnosed back in november and i know the pain you guys are going thru and no one deserves this keep your head up guys. Shed want it. Bc ik savannah would
Bastian6z9 i‘m so sorry for you.💗
so sorry ur family is going through this! i will be praying for your little sister!
I'm praying for you !!!!
So so sorry 😢
My brother is 5 and he has it too. How is your sister?
Please take me instead of one of these children Lord. I’ve lived a good life.
I'm progressively ill and honestly I'm so glad it was me and not some sweet little youngin. I mean I'm only 20 but still, better me than a child. It would just be so hard for them to understand.
@@sneepsnorp1404 You are very young. Praying for your recovery.
Look at all those chickens such a beautiful soul to say that🤧♥️Praying for your recovery and sending you strength🙏🏼🙏🏼
@@Hari-bz1mh Thank you 💕
@@yessikacee9427 I am humbled. Thank you so much 💕🌺
I can’t imagine that little girls fear & confusion and her parents heartbreak. This is so so wrong ☹️
I am 21 years old and I was just diagnosed with DIPG three months ago.
This video has truly made me cry somebody’s so Young has no reason to die so quick. God has bigger plans for this young lady and her family. I believe she is going to a better place. As will I eventually. It’s a horrible reality to overcome each and every day my life is been taken away from me. There is nothing that can help. I love my family and my girlfriend to the death. I plan to guide them through this thing called life once I’m upstairs in heaven.
😔
I wish you the best of luck young man!!! I m still in tears over this video it's truly sad little ones and people going through all this at a young age!!! There is a better place for us all I hope you don't see yours any time soon!!! Take care of your self and your loved ones!!!
Start writing in a journal. Random things. The good bad and the ugly. Leave it for your family and gf.
I’m so sorry you are going through this.
@@Princessslayer00 he passed away
We lost our darling grandson Jack to this horrendous disease in February 2020 💔
He fought so hard for 12 months...
We love and miss him every moment of every day ☹️😢
#forever4💙
I am so sorry
I'm usually pretty good at getting through the tragic illness videos, as I've been through leukemia with my husband, & I've been dealing with a chronic cancer myself for over 4 years. But when I saw little Vivian in her daddy's arms as they danced, I lost it. I'm still crying. I'm crying for them, but also for the little-girl me who's daddy died when she was only seven. I can't imagine being a parent who has to face the oncoming death of their child. Life can be so cruel.
I am sorry for anybody else that has to go through this, my 12 year old brother was diagnosed 3 months ago and it is a whirlwind of emotions
prayers ops
Update my brother passed in September we gave him the best 1.5 years we possibly could. I love and miss him so much and hope to meet him again in the afterlife. Please, if you want to read about his story search FrommieStrong online.
I've heard that when diagnosed in older kids DIPG is less aggressive, is that true? how things went for him?
We so often take for granted having healthy children. This is just so sad. Seeing her little sparkly boots on that table....
I can't imagine the soul crushing pain of no longer feeling the warm embrace of you child. The absence of her tiny arms around mom and dads neck 😭💔
When she said unreasonably optimistic- I felt the tears
When the father daughter dance started - I balled 😓
Turned this on and the little girl has my grandmas name that died of cancer when I was 11. Hearing her name just brought me to tears. Sending the family prayers and ♥️
My first born daughter passed away at 19 years old with hers. She started having symptoms at the end of summer whe she was still 18 years and she lived 9 months and 7 days. December 13th. 1979 - June 7th,1999 rest in peace sweetheart, your out of pain and can see and can walk again. I love you Leeah Marie ❤
I’m so sorry for your lost, as a mother I can imagine your pain. May your daughter Rest In Peace. 💕🌸
I am so sorry for your loss
I am so very thankful that you had her. I am so sorry for your loss. So very sorry.
One thing I'm thankful for, all the children I've seen struggle with this seem to have amazingly loving parents. Thank God for that
Poor poor baby.. my heart breaks and I feel for her parents .. God Bless all those having to suffer from this.
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
If there was a god, wouldn’t he be the one making them suffer, if he, according to Christians, controls everything? And what would his blessing do if he made them suffer? There’s no God, and if there was, he would deffinetely not be loving how Christians picture him, but very mean and cruel
My parents work at OHSU and they are trying their best!
At my school, a teachers daughter had this disease. She passed away in November. It’s so sad to hear about. Sending love to anyone who unfortunately has to go through this
My 10 year boy is suffering from this disease,its so brutal
Car-T cells cleared most of DIPG cancer cells from mice in a Standford research in 2019. I hope the treatment will be approved for humans soon and Vivian will share a miracle story with us.
she passed 5 days ago. that sweet girl
I will be the second candidate in Seattle doing that
@@garrettweber7062 best of luck man
@@garrettweber7062 good luck!! Hoping for the best!
@@marylennardi6201 sadly he died this year
I can't imagine being a doctor going through this because you know exactly what they're saying and the prognosis.
The title alone broke my heart. The moment I saw Vivian’s face, I just cried. Such a brutal disease no child should ever have to endure. Precious little girl.
I can literally feel the raw desperation from the parents.... I hope Vivian is stable ❤️
Lejla Letic she passed away at 10:40 pm last night surrounded with people who loved her
@@Elizabeth_-lq3jk so sorry to hear. Hoping her parents are getting by...nothing could be more tragic
Vivian rose passed away at 10:40 last night. This world is so cruel.
Si triste !!!
Very sad
What a beautiful child and such loving parents.
She died on March 06, 2020. RIP little one.
So sad
Such a brave and courageous little girl.
Sorry to hear about it. Hope she doesn't have to suffer too much discomfort n live cheerfully.
I lost it when she rang the bell after receiving radiation. 😭
I'm just about freaking tired of cancer, and parents being robbed of their children, where is the freaking cure?
Stories like this are why I have such a hard time with faith. Why do babies have to suffer? They should live long lives, not suffer with brain tumors. I don't understand..
Both of your daughters are beautiful.
Dude no one makes it out alive. Has nothing to do with faith
3 year olds getting brain tumors is all part of “gods plan” apparently
M 98 ridiculous, isn’t it?
Just accept that there is no plan... it may be more comfortable to think there's some intelligent being planning every second of your life and death, but there's not... technological advancement is the closest thing to god you will find. As Arthur C Clarke said, "any sufficiently advanced technology is indestinguishable from magic." Technology is the only real chance we have at an afterlife.
BDLIME my niece was one of 7 children that were killed when a tornado hit their elementary school. The kids were following the teachers safety plan and hiding under tables in the lunch room. She was actually under the same table as her sister & brother. They watched her die. That’s when I started question Why God would do this considering a tornado is in itself an act of God. I still struggle with it. So, I understand your feelings. 💙
I can't imagine what you are going through.
And to find out that research in this cancer is so small.
You are wonderful parents .
My little treasure.. 💝💝 It is very sad to see that a child is suffering in this way 😞 love for her family, so courageous and strong 🌹💖💖🌟
Vivian sadly passed away on March 6, 2020. My heart breaks for this family💔
great parents🙏god will reward these parents in heaven🙏🙏🙏🙏🙏
so wrong she was just a kid
I am so sorry
So sorry for your loss. I cannot imagine what it must be like for a parent in that situation. Words Escape me. Be good to each other. Your daughter's memory lives in your love.
God bless Vivian and her family. Praying for them.❤
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
This is so sad. This reminds of Little Stevie Lynn Stock who died just 10 days after her 3rd birthday
This is terrifyingly scary one week they are normal then this tumor hits them and shortens there life expectation so so sad as no cure so you see your child deteriorate in front of your eyes how the parents cope with this I will never know as the strength it must take just to get by day by day is something I don't possess God bless them all
Thank you for sharing your story with us!♥️
This breaks my heart, my prayers go out to this family
What a brave little girl. I was supposed to have one of those head cages put on me and into that machine and I panicked and didn't do it.
These children are SO brave. As someone who is very claustrophobic I absolutely would not wear a head cage or go in to an MRI. Children should be sedated for this.
This beautiful little girl passed away on the 6th of March 2020, fly high Vivian Rose 🕊
Very sad
So sorry for the loss of your beautiful child....May God comfort and keep you in his care...Now and Always.
Very sad to see kids like this or even adults going thru this. I myself have brain cancer and it came back the 3rd time. Have two daughters 23 and 14. I want to make for my youngest graduation. I have hope everyday but I still truly believe in GOD. I am not afraid but I know when I’m called upon then it’s my time. Remember the best medicine is within and do something active and don’t stop living the Life we are given. I also hope this little girl is still around. I am not sure what the update was. 🙏🏻 Pray for all cancer patients
Sending love and prayers to this family. We lost one of our twin daughters to this cancer at age 10. She passed away 39 days after diagnosis. 💜
I am so sorry for your loss
I had Cervical Cancer stage 4 Twice in 9yrs, thankfully the second time my Specialist allowed me to try Stem Cell Transfer (From Childs Cord blood) the 2nd time had shrunk it faster, I wasn’t as sick n I lost no hair.
3yrs ago my uncle had the deadly kind of hogintons lymphoma, our son saved his lupine as we donated some cells to him n he got better and stronger much quicker . I’m hi;
We can donate to people outside Australia 🇦🇺 and still have plenty left for if ever we n our families need to. It doesn’t cost anyone anything because we are donating it.
His Blood type is A+
Makes no sense. They would have removed the cervix if any cancer was detected. I had a complete hysterectomy. If u truly had cancer once the entire cervix, uterus, tubes and ovaries would have been removed.
guardians animal rescue/ state certified 501c3 nobody can force you to remove your cervix if you refuse. Also, if it is stage 4, it had effected other lymph nodes so they would need to use chemo or more likely radiation.
@@guardiansanimalrescuestate7289 that isnt true...I have a family member that had stage 4 cervical cancer and they didnt remove anything. I was told it depends on where exactly the cancer is...not everything can be removed.
Alone in the Dark of course no one can force u to remove anything but they can give a person their best hope for a longer life.
marlisse light I mean if it’s terminal then of course removing something would be fruitless. But my husband is a doctor and u can argue with him. He’s sitting right here.
Poor baby girl hope she will go on to have more years with her beautiful family have hope stay strong and keep having fun with her she is so adorable ❤️
From her fb page a few days ago: she is very weak, too weak to even give a thumbs up and sleeps most of the day. 😥😢😭🙏🏻😇
She passed away last night at 10:40 pm. This world is so cruel.
Elizabeth _0424 so very sad
@@Elizabeth_-lq3jk 💔💔💔💔💔 I was hoping she will get better but 😭😭😭😭😭😭😭😭
Awesome family! She is a precious little girl! I will put her c in my prayers! !
this is a horrible and devastating disease that nobody should go through especially a child. We just lost our nephew this morning from DIPG he fought it like a champ for a little over a year and now we have an Angel watching over all of us .... RIP Liam Rodriguez ....
I can’t watch these kind videos. It’s so heartbreaking. AS i watch this, my soul is hurting for the baby girl. Lord please hold her in your arms, and hug her with your spirit. Let her live her days in love and harmony, until its her day to go back home to you oh lord. Amen.
They need a cure for cancer! My Best friend just lost her baby December 14 from this beast! He was only 5😢😢😢
My heart goes out to you , I have no idea how desperate you must feel. You do appear to me to be VERY special and gracefilled and pray that a miracle happens with a cure.
I'm just blown away by the fact that only 4% of cancer research funding is for pediatrics. These poor sweet babies.🥺
life can completely change in a second...that is a terrifying yet sobering thought. I cannot imagine the pain and struggle if these parents and their beautiful daughter...but I pray for happiness and peace for all of u. and may your daughters life..however long...be a wonderful one.
There are just no words to describe in having to see any child going though something like this. My heart goes out to the parents
My sincere thoughts of love and healing to these parents
These is so sad 😭. I am a mother of 3 and is hard to see kids so young going true these, and also parent having to endure so much pain 😢😭😢
Same
My sister diagnosed with brain tumour 1965 at age 16, she had it a long time before diagnosis, she too didn't have it removed, was on the motor part of her brain, she had radiation therapy and a stent to eleviate the pressure, she was told not to get married, she did, told not to have children, she had three with five grandchildren, has out lived our parents, her husband, she will turn 80 Feb 2024, just let her live and be greedy about life.
Thank you for all the experimental treatments.
My son Tony passed with this same cancer 2 years ago ❤
😪🙏
My 8 year old step brother passed away from a brain tumor, it's messed my life up so much.
Hamish Wilson I’m sorry x
Rip stay strong bro
Your brother is at peace now. Live your life for you and you brother to the fullest. God bless you
The love between you two is stronger than death, believe in that true love, my friend.
So sorry.. #prayers
Heartbreaking story. I am so sorry for the loss of your beautiful daughter. God Bless all the family. RIP Vivian 🌹❤️🌹
I'm so sorry for your loss. RIP little angel. 🕊💕
I don’t understand why things like this happen. Prayers for advances in treatment. There’s a lot of people thinking of your family.
This is so sad , I am literally sobbing. 😢😢😢😔
Really sorry to hear about your sweet little girl. It's so sad to know. Heaven she be now. May her little soul RIP..
Thank you for sharing your story
Poor kid. Prayers.
God bless this courageous family.
You have taught me compassion.
Rest peacefully, Vivian😭❤️
May God Bless you both. Just
remember, you will be together again...❤️
How bittersweet! Nobody is exempt from suffering! God bless Vivian Rose and her family!
I am so sorry for your loss...it never makes sense, why a child? it’s just not fair.
We lost our beautiful, kind 10 year old Granddaughter 3 years ago to a very aggressive DIPG tumor...from diagnosis to passing was 26 days....she was home with all of her loving family...we miss her so much...blessed with her love for almost 11 years...
Bless you all.Brain cancer struck our family...my very very precious 4 yr old grandson was diagnosed with medullablastoma.Albeit hell and holds no promise.It is not comparable to DIPG.BLESS YOU ALL & forever will be in my prayers🙏🏻💜✝️
Have fun dancing, love them like there's no tomorrow. I know how it is bc one of my CB Pals passed from this 8 years ago.
They are amazing parents
God bless this special child, and her family. Xx I'm sobbing.....such a cruel disease. X
Being a mother and watching this …. To know so many children suffer from this disease ~ and the parents who have to deal with watching their baby die….. there are NO Words to describe …. I can’t stop crying…..❤️🩹…. A true nightmare which you’ll never wake from!
Sending Big Love & Hugs to these little warriors & their parents.🥹
:( They seem like such sweet people.
its so painful to watch these babies suffering this much.may God be with them.
Earlier Last year I was diagnosed with CANCER in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about a herbalist preparing herbal medicines to cure everything type of diseases. including CANCER, at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CANCER and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now CANCER free, all thanks to Dr. PETER You can also contact this great herbalist for help by email: peteroare0@gmail.com or contact Dr. PETER through his whatsapp number: +2348161615389 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you ...
What beautiful parents. Such a lovely family.
So heartbreaking, this poor child and family.
Sending healing prayers to this & other families 🙏❤️. You child should ever be sick. I don't understand it.
There have been several girls to have this and 2 have died and 1 is still living but doesn't have long. they are from the saraland/mobile Alabama area. I'm so sorry y'all are going through this.
Wow Paula Howard, Prayers is all that is needed.. Your post is very upsetting.. Hope the family doesn't see it..
@@irmajgarcia6009 After what they've been through a measly comment isn't much ... Acceptance will come ... God bless!
my friends sister died from it in may of this year at 6 years old, you are loved Emma 💜
Praying for all the little ones that are fighting this horrible disease. 😢
I’m so heartbroken I can only imagine the level of pain
Earlier Last year I was diagnosed with CANCER in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about a herbalist preparing herbal medicines to cure everything type of diseases. including CANCER, at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CANCER and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now CANCER free, all thanks to Dr. PETER You can also contact this great herbalist for help by email: peteroare0@gmail.com or contact Dr. PETER through his whatsapp number: +2348161615389 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you ...
It's a hard story to watch..thank you for sharing
Rest in peace beautiful angel, love to the family💕🤍
Im 18 right now but when I was 10 one of my best freinds was diagnosed with DIPG. He unfortunantley passed away when I was 11. DIPG, along with all cancer is so awful. He went from a normal boy, then had trouble with speech and slowly lost everything else. He went in the hospital because he choked on food from not being able to chew it up and never came out. Its a horrible disease. And my hearts go out to the families and kids who deal with this
Life isn't fair; could've been you or me or anyone.