Rare Genetic Disorder Turns Muscle Into Bone: The Human Mannequin | Only Human
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- Опубліковано 22 тра 2024
- Teenager Louise Wedderburn has a rare genetic condition which is causing each of her joints to lock, as her muscle turns into bone. In spite of this she is determined to build a career in fashion. Will the notoriously image conscious fashion industry accept her, or will her extraordinary condition stand in her way?
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From: The Human Mannequin
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She has a natural eye for fashion. She can direct someone else to do the work from her vision. Someone give her a chance
Absolutely
I would hire her if I could afford an assistant! Her hair, makeup and clothing choices are professionally inspired.
I would hire her as a mannequin a couple of years later 😂😂😂😂
@@Danuxsy oh you have jokes do you?
@@ananolastname1605 tbh I thought it was kinda funny but I'm sorry if you felt offended Ana 😊
She’s aware of the lifespan associated with her medical condition. But her strong will and determination to use every single minute of her life constructively is so admirable. She is here to inspire us-so that when we feel we are at the lowest ebb in life, we have time to reflect that we shouldn’t underestimate the strength we all have in overcoming any challenges coming our way.
Well said. Thank you.
she is what truly “influencer” should mean.
She is here to LIVE. But if in so doing, her life inspires others, then that's wonderful ❤️
Yes! Amen to that💞💞
Very inspiring your a writer putting words together so beautifully
3 generations of beautiful, strong women. I wish them all the best and I hope they find a cure soon!
Right? I love her Granny ❤️
Perfectly said 3 generation of strong women. I feel so inspired by them. What an amazing young lady and an amazing family xx
What a trooper. I know you don't have a choice but to deal with it, but I still find her attitude immensely inspiring!
You might be surprised, but many people who battle chronic illness are extremely resilient. They tend to have a more positive look on life.
I have refractory epilepsy, in other words my seizures don't respond well to medications. I ended up with multiple gran-mal seizures every day, and I just learned to deal with it, to smile when I fell down and woke up in a strange place. I lived with teasing and rude remarks. I thank God medical science has come so far. I now have an implant, and I've been seizure free for 3 years. People like Louise don't have that kind of help, that makes it harder to smile. But with a positive outlook, even without "cures", anything can be done.
@@rachelmartin3631 You sound like a strong woman, Rachel. 👍🏼😊
She doesn't know the difference at all!
What a frightening condition for anyone to have to live with 😢 She seems like such a sweety and she is gorgeous ❤️ I'm so glad she has such a supportive and loving family 🙏
Except her father left them. What a coward!
@@sharonhein85 Just a sperm donor. Not everyone is meant to be a parent. Despise people like that.
It makes such a difference to have that loving family support. I wish I could get my make up done by Louise she has real talent and style, I hope that future treatment the dr talked about becomes a reality asap and all her career dreams come true.
I'm scared of having children due to my family having sociopaths, autisms, adhd, bipolar and psychopaths. I have adhd and autism and have suffered bullying all my life as I could not speak well to others face to face and I freeze. Typing doesn't seem to affect me so much.
She is gorgeous 😍
Her face is stunning. It would be nice if a make-up company saw her and had her model make-up and hair products
My sister has this disease. It's heartbreaking to see it in real life but they're all so brave
May God richly bless your family, as well. 🌹
❤😢❤
The best wishes for your family ❤️ I hope soon we'll have a cure for this disease. Have patience! Big hugs ❤️
Sending you both much love! You are both absolutely strong and such heroes!
I wish you and your sister all the best
I visited the Mütter Museum (College of Physicians) in Philadelphia with my husband once and was complaining about my feet hurting as we’d been walking a lot that day. We got to the display of a skeleton of someone who died in his 40’s of this disease. I swore then and there never to complain about sore feet again. What pain must they endure. This young woman is just so brave and beautiful.
What a lovely young woman. She’s so determined and tenacious! I have no doubt that no matter what she chooses to do she’ll be a success. Especially with her family, they’re also amazing. I just feel so inspired by all of them! I’m sending love and light to them all!❤
I am French. This young lady is incredible. So charming ! I do not have the right words in English to express what I felt watching this. She is brave and brings joy. Elegance and intelligence. Bravo !
Louise is such an inspiration to us all. She's not let her F.O.P. limit her from pursuing her life-long dream of being a part of the fashion world. I'm a chronic pain patient that has to battle with severe anxiety and depression. I feel so encouraged to live by her standards to never let my disability stop me from doing what I most enjoy in life anymore. The strength it took for her, knowing the pain she'd more than likely suffer from pushing herself brought me to tear's. Thank you for sharing your story with us, Louise. I truly wish you all the best!
Agreed! Another chronic pain patient here and she is amazing and inspirational!
She is so lovely!! I have RA and have the worst attitude about it. I need to be more like her. She is beautiful inside and out. ❤️
She can break the boundaries of what is expected of the fashion industry. She deserves the best. What an inspirational woman. 👏
I'm speechless. I cried through most of this! the pain she must be in and to be so positive and brave to do the things and gone the places she has gone is just amazing.
keep flying high you beautiful human.
and such a attractive girl too x
Its horrific and its also painful. Ive seen it before. Why Dads run away from disabled kids shows how weak n selfish many men are. She is so brave to endure.
This stunning young woman came out on the other side of this horrendous condition with a use for her love of fashion! How amazing!
Louise is a true inspiration. I am going to hush up about my osteoarthritis. Watching her story, seeing her positive attitude, viewing how optimistic she is have all made me realize how lucky my life has been.
This young woman is so beautiful both inside & out. Even with everything she goes through she is determined to live out her life & experience all her dreams. She would make a fabulous stylist.
She’s GORGEOUS! I’ve been feeling off for 3 weeks now and I kind of feel guilty now because I have a healthy body and I don’t do half the things she does, most of the time I don’t even feel like putting on make up or taking care of myself or even leaving the house she inspired me to just love yourself the way you are and make the most of your life. Use the time you have and enjoy life even if you have some road blocks along the way and be grateful and never take having a healthy body for granted it’s not a given. 👼🏼
What a fine talented young woman Louise is. She has her own sense of style and takes ideas from what she sees in magazines but also on the street.
During the two work placements she presented her ideas well and had them used. The people listened to what she had to say which is important in working at another business or with one's own employees.
After her return to Scotland, Louise made a brave choice to start her own fashion and consulting site. As this allows her to work from home, I can see how she deals with her disability and running her business at her own pace as she has good days and bad. And what a wonderful family that supports her. I believe that Louise will be successful because of her talent and her determination, and she truly has fun at it. All the best of luck.
A side note: I see that Louise looks a bit like Paris Hilton with her style and in the face.
I wanted to say the same. I saw Paris Hilton's face 😊
She is more beautiful!
I wanted to say the same. But Louise is way more beautiful...she exudes her inner beauty.
What a beautiful attitude this lovely young girl has. I hope she is very successful in her career!
💜😊
When her mother said she said to her I don’t know why you’re crying because I don’t I teared up, she’s such a strong girl! ♥️
I just love Louise Mom and Granny! How blessed are they to have her positivity around them. She is so strong in her personality and she is a great inspiration to so many teenagers who do not know what it is to long for a life without problems! You go Louise!
It's amazing that even with what she is going through, she is finding a way to do something she is passionate about. I wish you much success young lady!
It seems that this story is 10 years old, I hope she is doing ok today!🙏🏻🙏🏻🙏🏻
She’s so beautiful. I know someone who’s teenage daughter has this and she is also very beautiful. I really really wish they would find a cure for this.
CAN WE just SAY how BEAUTIFUL SHE IS AS a person..inside and out!! BEAUTIFUL SOUL
I absolutely love the support network that Louise has. No matter what endeavor she wants to pursue, her family is there for her. Brilliant. 🥰❤️
Don’t stop dreaming. You’re so beautiful and smart. The world is your oyster. 👸🏼
Louise has so much style. Not to mention she could be Paris Hilton's daughter.
This documentary is very old it’s 10 years ago I searched for update but couldn’t find any
@@nooraqueen2716 I found her, she’s on Instagram.
@@alloralou4722 what’s her insta ? And how is she doing
What an absolutely stunning young woman. I'm so glad that she's been given a chance to work in the fashion industry. She certainly has an incredible fashion sense!
There has been nothing new posted from or about this beautiful woman for years. 😢 She is such an inspiration esp. for women of all walks of life. I hope she is well ❤️
Her Instagram was last updated October of 2022 and she was doing well. I hope she's still doing good but she definitely seems to have accomplished a lot already
I love this whole family, they are all so positive. Could Gran be any more proud...😊 You are a Warrior Louise 🌟
Edit: Spray painting 🤣
What a lovely family.
Her sense of style is 😘 She has absolutely everything required to succeed and I admire her drive to follow her passion, hope with all of my heart that she defeats the odds of her disability!
Wow she's amazing! I have degenerative bone disease and she makes me look like an Olympic athlete and her attitude is truly inspirational! Makes me feel ashamed for feeling sorry for myself and complaining sometimes! I hope she's doing well! She's so beautiful physically too, she should be in front of the camera not behind the scenes.
She really does have an eye for fashion and she's absolutely gorgeous.
I went to grade school with a girl who has this rare disease. I still talk to her from time to time. What a horrible disease. But let me tell you she has confidence like no other and is so positive about life! What a wonderful woman this girl is.
Im crying for my joints ache but she...so strong will.inspired by her will
I love her style and how she uses her grandmothers thing! I love it!!!!
I’m so inspired by Louise! She is not letting anything hold her back. She is so beautiful, and her sense of fashion and makeup is spot on! Love that she got to work on a fashion show! She is in her element! Much Love! 💗💗💗💗💗💗. Do you have a UA-cam channel? Would love 5o learn makeup and fashion tips from you!
Reach for the stars Louise! I know you will win at whatever you set out to do!
I totally agree!
This was in 2012. I can't find much updated stuff on her.
They all are beautiful, Nan , mum and both daughters . It’s so sad the short life expectancy 😢 ❤
What a courageous, inspiring young lady. I have severe M.E and fibromyalgia. So I can relate to the frustration of having to factor in recovery-payback after any activity. She's a lot younger than me. I too was determined at her age. Sadly for me I went from full time work ,in fact several simultaneous jobs, then going to part time....then volunteering...eventually things became impossible to sustain without the impact on my health and I Havnt worked since 2010-12
I Don't have the support network she has . She's a very loving strong family of female role models and I think she's on the right path and certainly strong mind. I hope there really is a medical breakthrough in a few years to give her a better quality of life and a prolonged life as she certainly would really live her best life.
Really great to watch given me a little more fight to get through my days too...
*The whole family got beautiful faces including her grandma!* 😍
Louise is very beautiful. She could certainly be a magazine or online model for hair, make-up, clothes and jewelry . Her can do attitude is exceptional. She will do whatever it takes. I wish her all the best. Lovely family! I take exception with the foolish notion, to liken her to a mannequin. Mannequins do not move. She is very much a mover and a shaker. Anything but a mannequin. Live life large!!
I'm speechless! What a beautiful and determined young lady! Such an amazing support system behind her. I'm so happy that Elle Magazine, and fashion week gave her a chance. She's determined and is most talented, to follow her passion and ambition. Hope there is a cure for her and others like her really soon. That would be a game changer in the disease. Can't wait to see her future, fast forward 5 years. What an amazing family, truly wonderful how they all help and cope with her disease. Louise, you shine positivity, elegance, and tenacity. You're a warrior! 💕
Outstanding that Louise is following her dreams and not letting anything stop her! Great video! 👍:)
I'm going trough a tough time right now after having many surgeries on my ankle. This video is exactly what I needed. This girl is so amazing and inspiring. She should be so proud of herself. Her spirit and determination are just beautiful 😍
Louise,
You are so inspiring to Humanity, to those who think they cannot. You inspire me! Life with all its challenges, we can take charge of our own Destiny, at times with the suppprt of Family, Friends, and Strangers. I’m so proud of you, Louise.
With Aloha from Hawai’i,
Helen Walk
I cannot find a contemporary follow-up on what has become of her. It's like all the social media and internet presence stopped after 2014. Anybody know anything about her?
I wonder what happened to her. She was very positive and cute as a button. Hope she is still around.
I found her. Looks like she's doing well, thankfully
Such a beautiful young woman inside and out. Hope her dreams are fulfilled. Her whole family is full of beautiful women.I pray she gets to follow her dreams.
I have a condition that puberty brought to the fore. Kinda opposite to this, my body doesn't make collagen proteins normally. Issues include easy and frequent joint dislocation and subluxation, wounds reopen, widen or just do not heal well, scar permanently very easily, blood vessels and internal organs are weaker, rupture too easily...And it's progressive too. When genes go wrong...
❤💔❤
The whole family is just the sweetest. I hope she continues to find happiness.
I remember watching a documentary about this years ago and it was quite upsetting to watch this girl is truly amazing she’s beautiful aswell so determined to keep going
Hi Tiff, I can’t explain how happy I am for you. Right before sleep time, my 6 year old and I say prayers and we’ve prayed for this day for the longest time. ❤ Sending love from New Zealand.
Louise is Soooo Pretty!!!! She reminds me of Paris Hilton really. She is full of life and very positive. Very bright aura on her gave ❤❤❤She is a very beautiful woman with a pure soul. Love you Louise from the Philippines ❤❤❤ You inspired me tremendously ❤
So adorable, positive and energetic. Love this!
She’s so beautiful outside and inside
Shes so gorgeous. Shes doing pretty well for herself. She has her own website that looks very successful so good on her!
Precious girl ❤️
Precious young lady ❤️
Louise reminds me of my niece in so many ways, not least because she's a blue-eyed blonde, and carries herself with dignity, composure, and great style.
As I've watched this film, I've prayed that God would bless Louise and her family, and help them, and carry them through their challenges.
He loves them❤️🇭🇲
What a beautiful family and Louise’s positivity is inspiring. I can’t imagine how she deals with the pain and stays so positive. Good luck on your business!
Oh my !! What an amazing girl, and wonderful family support. Such an inspiration. Sending love to them all.
She is amazing, passionate and has a strong spirit! Her positivity and focus is truly fantastic. She is also lucky to have such a loving and supportive family and they are lucky to have her as well. 💖 Wishing her a joyful life and hope the researchers do come up with a solution soon. 🙏
You go girl. Sending all the love and healing energy 💙💙💙
I remember a similar documentary about a little girl named Luciana, who also has this disease. Some of the people in that documentary are no longer with us. Very sad 😔
Love Louise! She is so determined and talented. Plus she is so beautiful no question she could be a model herself! Her all-female family rock! I wish this Only Human channel had a "Where are the Now" feature.
It looks painful. I would be so scared about jaw locking that they described. She has an amazing attitude. I too deal with a rare swallowing disorder and disease. She is going to achieve so much in life! She has such a great work ethic. :) Her make up and fashion is super good too definitely in the right industry and good for her not dwelling on it and going out there. To never complain when being in so much pain is wow. I always seem to complain when I've been in pain with my condition. I am so glad I came across this video and hope she is doing okay
What a brave girl! 🔥🔥🔥
What a brave girl and so inspirational!
Love her granny too ❤ I think she got her confidence from her 😊
Courageous and inspiring, a truly beautiful young woman.Good luck, I hope all of your dreams come true.
This is so sad, she's so beautiful. I'm glad to see she's still pushing for some normalcy in her life
She’s absolutely beautiful inside and out! She has a warrior spirit! So strong!
This young woman is truly amazing...just beautiful!!! Her attitude is incredible... so inspiring!!! Hopefully there will be medical advancements soon and she will be able to continue to pursue her dreams.
Omg she has the perfect face though. Her face is top model quality. Beautiful!
I hope she will be able to fulfill all her wishes and accomplish her dreams. She is such a beauty. She is an epitome of determination. I truly admire her passion and her strong determination.
She is the most beautiful person i have ever seen till now , her smile on another level
Just amazing. I've got nothing else. She is beyond words. ❤️
You go, Louise! All of my best wishes are behind you!
She is so beautiful. She is so optimistic. God bless her.
This woman has 2 of the most beautiful daughters I've ever seen they are just breathtaking-i don't know what's more beautiful than these two young women they are simply amazing---the way Louise just looks at her sister there are no words to describe the love she has for her.........
very inspiring, strong and positive outlook in life despite of her condition.
You are such an inspiration to me I have lived with severe scoliosis my entire life. You make me feel like I can do anything. Thank you for sharing your story. I wish you the best from the USA Philadelphia Pennsylvania ty love may all your wishes come true
Same as me, i have a very severe scoliosis , i found her very inspiring ❤
Such an amazing girl! Beautiful inside and out.
And such a wonderful and supportive family...mother and grandmother...such gems.
What a amazing young lady.
I got told by drs when I was 7 the cure wasn’t far away. Oh the hope and excitement. 59 now, no cure. They shouldn’t make rash promises. Poor Louise.
Does someone you know have this condition?
@@anjarae8828 yes my dad
What condition are you talking about? Because if it's FOP and you have it and you're 59 then you need to contact the medical staff immediately. Because the oldest person to live with FOP was 54 and it's documented. So if you've surpassed that person, you need your name in the medical books.
@@imanic1928 my daddy told me long ago that we don't have to lie to make a friend 😢😢
Be careful of where you lie at because you have an IP address and if you lie about the wrong thing it can catch up to you fast.
@@All5AJz no one asked u
Gosh, that gran! She reminds me of my gran when I was a child x
never seen such conditions until i watch YT. shes strong, wonderful family
Unbelievable beautiful young lady 😊so positive,a big life lesson for all of us
Incredible Louise!! You have such talent and you are so kind and beautiful. I believe you can make your dreams come true. You have 3 very strong women at your back. I will pray everyday for some good news about the research going on for this disability. Your strength and commitment will take you where you want to go.
She is beautiful and sweet her Mom and sister are so special and her Grandma is a wonderful person who loves them all a lot, even if she does worry.I will pray for the genetic research.
Hey Louise, you're absolutely stunning inside and out. Glad you show the world how to do it!
A massive inspiration. Much love
Wishing Her the very best, what a sweet soul 😊
She’s so beautiful. It hurt me when I saw her walk😢 She’s truly an inspiration ❤❤
So sorry Darling that you are going through this. I am in similar situation and it sucks. But I am old and one day hopefully you will also be that, and in a wonderfully happy life. Thank you for sharing this you are giving so much information to a lot of women, who have it but are lost. Major hugs sorry , I know we are strangers, but if I could I would hug you. Blessings.
Dear How did you survive till old age? In the video it says the life expectancy is 41 years old
@@junc2191 Tbh, I don't know, nor do my drs lol. but it is possible and a few of the others I know have also done it. It can be very painful, but I live every day as if its the last, which is a possibility for anyone in life. Also I think that there is a diversity in the way it affects different people. like most other diseases.
@@sandrakennedy4877 thank you for your reply
Louise you are amazing ❤ Thank you for sharing your story ❤❤
Amazing talent! I love your style and work! 😊🧡
I absolutely love the supportive mom and especially the grandma. It would be so easy for her mother to baby her and keep her figuratively wrapped in bubblewrap. I'm sure letting her go to London with just her sister wasn't easy, but that's a memory that she will always treasure, regardless of how bad her condition may get 8n the furure. The grandma is so wonderful. You can hear the genuine pride and delight in her voice that *her* granddaughter will be wearing *her* jewelry and carrying *her* purse while exploring her dreams.
You can't overlook the fashion designer in London and ELLE Magazine for giving her the opportunities. No idea how things would have gone without all those cameras following her, but it's heartwarming that they made a place for her where she was able to make a tangible contribution.