I've had sepsis twice, both times it was pneumonia. The second time I was hospitalized for 3 weeks. After being home for 3 days I was expected to go back to cooking and cleaning at home. After a week at home I was expected to return to work and pretend I was fine. I was not fine. It took me over a year to start to feel like I was a normal human being. Not my old self but as best as I could get.
its been 4 months since I've left the hospital from severe sepsis. My life has changed completely, depression, PTSD, and hard to focus on things. I have no feeling or movement in my left leg below the knee, I have numbness throughout my lower half from severe nerve damage. I can't work, I can't take care of my son by myself, and dependent on others still. I pray no-one gets sepsis, I would do anything to have my old life back.
I had sepsis and MOF when i was 33years old. It will take 5 years to feel the same again. 1st year after sepsis its normal to be depressed because you feel so so weak mentally and physically . all so my short term memory was failing all the time. But your brain will never be same again something is changed in me. To day I am almost 38 years old and i can say i am on 90% for what i was before my sepsis. Butt i think it will never be 100%. Happy to be alive for sure. It made me a stronger person. Greatings from the Netherlands (I was born in christchurch NZ)
I am now 8 years post sepsis....It will take some more than 5 years. I still suffer from debilitating fatigue, organ malfunction, cognitive impairement.....I also have vision loss (left homonymous hemianopsia) and and legally blind in what vision I have left. Severe PTSD....and a new outlook on death...I am not suicidal but being brought back to life was very....chaotic. I long for that peace again and have no fear of dying.
Two and a half years post septic shock I don't know why I ever woke up. I don't think I'm going to get any better than I am now and I can't imagine living the rest of my life like this.
@@chovihanni523 💖✨💖✨💖✨ Well I am glad you are still with us! However with it now being 2023, it has been 8 years since I survived both severe septic shock and multi organ failure (including my brain- every single organ in my body was in failure). I can totally relate with your depression with having had to survive it. And the peace that you miss. 💐🌼💐🌺💐🌻💐🏵️💐🌸💐
Yes, I acquired PTSD, Generalized Anxiety Disorder and Major Depressive Disorder after being in ICU with Septic Shock from a cat bite. Everything is shutting down, MAJOR cause for anxiety and depression after being so healthy.
Thank you for this video I live in the uk & have had Sepsis twice. First time they gave my family the dreaded hour. Thankfully I'm still here but very poor short term memory & I feel a different person.
I also feel as though I’m a different person. Especially psychologically. My physical health has definitely suffered long germ, but the cognitive deficits are far worse for me.
Yes, it is a sad state when the general medical profession denies palliative care for the physical pain of Sepsis Survivors. For 5 years I have been living with cognitive decline, Fibromyalgia, and unbelievable fatigue. Also on the menu are liver tumors, a kidney shutting down, The doctor said, "Well, you have two. You should be fine"!! I almost took out one of his kidneys with a butter knife! They don't understand the pain of having a blood pressure of 175-200/ 95-115, body temp 95 degrees, pulse 95-120, combined with severe scoliosis, arthritis, blood clots in both legs, weekly swelling of limbs, insomnia from pain and restless leg plus body twitching. The constant infections, ER visits, and the quality of life is severely limited by pain. Three hospice representatives came to my home and told me that Sepsis Shock Survivors can't get palliative care since we have no definite, short term death date! "We kinda fall between the cracks of Medicare."
48 yo healthy besides some osteoarthritis.. then got sepsis after a surgery for a kidney stone. 2.2 years out.. age 50 now mostly house bound, difficult breathing, migraines, muscles twitching, cramping and unstable heart rate and blood pressure. No more dancing, swimming, concerts, shopping trips, hiking... was I depressed before sepsis? no.. am I depressed now.. you better believe it.
@Jo In I am now 4 years post sepsis. I am still very sick but I have improved quite a bit. My heart rate is now normal about 75% of the time. My BP has stabilized but occasionally will be wonky especially with low pulse pressure. I still have muscle aches pains and cramping often. I get migraines and brain fog approx 1 to 1. 5 weeks out of every month. My shortness of breath is still there but it now is not constant and comes and goes. I have many other symptoms but I am finally able to shower and shop and work very PT now... edited to add.. I lost quite a bit of weight right after sepsis. skinny! I have now gained it all back and actually need to lose 20 lbs.
@@lessons9745 same with me with the weight. I’m now nearly 6st heavier and I drink plenty, have no appetite but try to eat healthy……the inflammation just keeps getting worse - I assume it’s inflammation 🤷🏼♀️
I’m also 74 and had septic shock in September 2023, with six days of hospitalization to administer IV antibiotics. There appeared to be no permanent damage to my internal organs or extremities. I feel relatively normal at this point nearly six months later, both physically and mentally. It seems my energy level runs down more quickly than before sepsis, but this appears to be getting better with time. Mentally, I don’t believe I’m much different than before, except for natural changes due to aging. I didn’t have any comorbities except for somewhat elevated blood sugar. As time goes by, you should begin to feel more normal. I do think a lot of progress after sepsis depends on a positive state of mind. If you believe you’re going to get better, it should help quite a bit. All best wishes.
I've been severely depressed after sepsis, general anxiety disorder, and a long list of other symptoms. Lack of focus, as I do not think the same. Meaning I am not the same "personality change" weakness, and well I don't think the same...I have a degree in Electronics, afterward I have many memories of electronics but do not think the same I can no longer solve problems that I solved before sepsis...I was in a medically induced coma for three weeks with multiple organ failure!
I had multiple organ failure and was in a med.induced coma as well...Getting any info from doctors about long term affects of severe sepsis is impossible where I live..Depression,anxiety has been worse since.I was physically assaulted by a nurse while I was in the coma and dr's refuse to help with that or my PTSD from my experiences while in hospital.
I had sepsis in April 2017. Since then I have constant chronic pain, trouble focusing, memory issues, reduction in fine motor control, intense fatigue, depression, anxiety, kidney issues, plus other stuff that goes on intermittently. Due to being unable to exercise, I've gained weight and lost fitness and strength as a result. It's affected all aspects of my life.
omg you are joking, i am 17 months post sepsis, this is just horrible , put me in the coffin now, are they joking, I have left temporal seziures and a racing heart on betta blockers But dont think im ready for death yet
I’m 12 yrs post severe sepsis and septic shock and I felt so much better at 4 yrs post sepsis & septic shock than I do now. I can’t do anything and yes, I do have days when I’m in such a deep depression that I don’t want to go on…..but I’m still here, unfortunately!
The camera operator is evidence of the need for presenters to sign off to release a production. If one was to learn anything from this talk, it is how NOT to record a presentation that depends on additional content supporting the verbal content by just not showing any of it. Try another presentation. This is too hard to follow.
Sepsis is a reaction to an infection. There are 3 stages. Once you are in septic shock vitamin c is helpless against your organs shutting down. Maybe do more research about sepsis and what it actually is. I wish I had coronavirus a million times before I ever got sepsis. Sepsis changed my life.
I've had sepsis twice, both times it was pneumonia. The second time I was hospitalized for 3 weeks. After being home for 3 days I was expected to go back to cooking and cleaning at home. After a week at home I was expected to return to work and pretend I was fine. I was not fine. It took me over a year to start to feel like I was a normal human being. Not my old self but as best as I could get.
its been 4 months since I've left the hospital from severe sepsis. My life has changed completely, depression, PTSD, and hard to focus on things. I have no feeling or movement in my left leg below the knee, I have numbness throughout my lower half from severe nerve damage. I can't work, I can't take care of my son by myself, and dependent on others still. I pray no-one gets sepsis, I would do anything to have my old life back.
I had sepsis and MOF when i was 33years old. It will take 5 years to feel the same again. 1st year after sepsis its normal to be depressed because you feel so so weak mentally and physically . all so my short term memory was failing all the time. But your brain will never be same again something is changed in me. To day I am almost 38 years old and i can say i am on 90% for what i was before my sepsis. Butt i think it will never be 100%. Happy to be alive for sure. It made me a stronger person. Greatings from the Netherlands (I was born in christchurch NZ)
I am now 8 years post sepsis....It will take some more than 5 years. I still suffer from debilitating fatigue, organ malfunction, cognitive impairement.....I also have vision loss (left homonymous hemianopsia) and and legally blind in what vision I have left. Severe PTSD....and a new outlook on death...I am not suicidal but being brought back to life was very....chaotic. I long for that peace again and have no fear of dying.
Two and a half years post septic shock I don't know why I ever woke up. I don't think I'm going to get any better than I am now and I can't imagine living the rest of my life like this.
@@chovihanni523
💖✨💖✨💖✨
Well I am glad you are still with us! However with it now being 2023, it has been 8 years since I survived both severe septic shock and multi organ failure (including my brain- every single organ in my body was in failure). I can totally relate with your depression with having had to survive it. And the peace that you miss.
💐🌼💐🌺💐🌻💐🏵️💐🌸💐
@@anonymousme2159
Hang in there
💝💝💝
Thank you Jack for your dedication to the understanding of Sepsis and sepsis awareness.
I've had overwhelming anxiety ever since sepsis
Jacob Davidson me too xx
Join the club
Its PTSD
Yes, I acquired PTSD, Generalized Anxiety Disorder and Major Depressive Disorder after being in ICU with Septic Shock from a cat bite. Everything is shutting down, MAJOR cause for anxiety and depression after being so healthy.
its horrible and no one understands.
Thank you for this video I live in the uk & have had Sepsis twice. First time they gave my family the dreaded hour. Thankfully I'm still here but very poor short term memory & I feel a different person.
Yvette Dale you are not alone
I also feel as though I’m a different person. Especially psychologically. My physical health has definitely suffered long germ, but the cognitive deficits are far worse for me.
Yes, it is a sad state when the general medical profession denies palliative care for the physical pain of Sepsis Survivors. For 5 years I have been living with cognitive decline, Fibromyalgia, and unbelievable fatigue. Also on the menu are liver tumors, a kidney shutting down, The doctor said, "Well, you have two. You should be fine"!! I almost took out one of his kidneys with a butter knife! They don't understand the pain of having a blood pressure of 175-200/ 95-115, body temp 95 degrees, pulse 95-120, combined with severe scoliosis, arthritis, blood clots in both legs, weekly swelling of limbs, insomnia from pain and restless leg plus body twitching. The constant infections, ER visits, and the quality of life is severely limited by pain. Three hospice representatives came to my home and told me that Sepsis Shock Survivors can't get palliative care since we have no definite, short term death date! "We kinda fall between the cracks of Medicare."
Start taking chlorine dioxide orally it will solve all these problems
Start taking Mega doses of oral vit C and feel better. I found it works for generalized body aches and bulging disk pain.
48 yo healthy besides some osteoarthritis.. then got sepsis after a surgery for a kidney stone. 2.2 years out.. age 50 now mostly house bound, difficult breathing, migraines, muscles twitching, cramping and unstable heart rate and blood pressure.
No more dancing, swimming, concerts, shopping trips, hiking... was I depressed before sepsis? no.. am I depressed now.. you better believe it.
@Jo In I am now 4 years post sepsis. I am still very sick but I have improved quite a bit. My heart rate is now normal about 75% of the time. My BP has stabilized but occasionally will be wonky especially with low pulse pressure. I still have muscle aches pains and cramping often. I get migraines and brain fog approx 1 to 1. 5 weeks out of every month. My shortness of breath is still there but it now is not constant and comes and goes. I have many other symptoms but I am finally able to shower and shop and work very PT now... edited to add.. I lost quite a bit of weight right after sepsis. skinny! I have now gained it all back and actually need to lose 20 lbs.
@@lessons9745 same with me with the weight. I’m now nearly 6st heavier and I drink plenty, have no appetite but try to eat healthy……the inflammation just keeps getting worse - I assume it’s inflammation 🤷🏼♀️
Dr. Iwashyna frequently refers to information shown graphically in the slide presentation. Is there any way to read this information?
I am nearly 74 and was hospitalized with sepia in 2023. I am improving but at not myself yet. I finished my antibiotics a month ago.
I’m also 74 and had septic shock in September 2023, with six days of hospitalization to administer IV antibiotics. There appeared to be no permanent damage to my internal organs or extremities. I feel relatively normal at this point nearly six months later, both physically and mentally. It seems my energy level runs down more quickly than before sepsis, but this appears to be getting better with time. Mentally, I don’t believe I’m much different than before, except for natural changes due to aging. I didn’t have any comorbities except for somewhat elevated blood sugar. As time goes by, you should begin to feel more normal. I do think a lot of progress after sepsis depends on a positive state of mind. If you believe you’re going to get better, it should help quite a bit. All best wishes.
I've been severely depressed after sepsis, general anxiety disorder, and a long list of other symptoms. Lack of focus, as I do not think the same. Meaning I am not the same "personality change" weakness, and well I don't think the same...I have a degree in Electronics, afterward I have many memories of electronics but do not think the same I can no longer solve problems that I solved before sepsis...I was in a medically induced coma for three weeks with multiple organ failure!
I had multiple organ failure and was in a med.induced coma as well...Getting any info from doctors about long term affects of severe sepsis is impossible where I live..Depression,anxiety has been worse since.I was physically assaulted by a nurse while I was in the coma and dr's refuse to help with that or my PTSD from my experiences while in hospital.
I had sepsis in April 2017. Since then I have constant chronic pain, trouble focusing, memory issues, reduction in fine motor control, intense fatigue, depression, anxiety, kidney issues, plus other stuff that goes on intermittently. Due to being unable to exercise, I've gained weight and lost fitness and strength as a result. It's affected all aspects of my life.
I had sepsis in 2016. The Drs originally tried to dx me anxiety. Turns out that it is actually Pots. Postural tachycardia syndrome
Anyone got Post Sepsis, no strength in legs absolutely no energy, any tips please xx
I wish I had known
omg you are joking, i am 17 months post sepsis, this is just horrible , put me in the coffin now, are they joking,
I have left temporal seziures and a racing heart on betta blockers
But dont think im ready for death yet
I’m 12 yrs post severe sepsis and septic shock and I felt so much better at 4 yrs post sepsis & septic shock than I do now. I can’t do anything and yes, I do have days when I’m in such a deep depression that I don’t want to go on…..but I’m still here, unfortunately!
Get presenation. Extremely annoying that we cannot see the graphs that Dr. Iwashyna is referring everyone to!!!
Omg
Who thought not including a view of the graphs & charts was a good idea for this video? 👎🏽👎🏽👎🏽
The camera operator is evidence of the need for presenters to sign off to release a production. If one was to learn anything from this talk, it is how NOT to record a presentation that depends on additional content supporting the verbal content by just not showing any of it. Try another presentation. This is too hard to follow.
So.....
Are health care providers only treating gravely progressed ill people...☹️
What about vitamin C and thiamine?? That trrats sepsis and coronavirus
Sepsis is a reaction to an infection. There are 3 stages. Once you are in septic shock vitamin c is helpless against your organs shutting down. Maybe do more research about sepsis and what it actually is. I wish I had coronavirus a million times before I ever got sepsis. Sepsis changed my life.