Axonics SNS trial period review and experience
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- Опубліковано 29 вер 2024
- Just a little information about my experience with the Axonics sacral nerve stimulator. Hope this is helpful for anyone who is thinking or looking to get the implant and has lots of questions :)
I think you're the first person who I've ever come across, who had almost identical bladder issues to mine now.
I've had this my entire life and nothing else has worked, not even slightly.
I've just been referred for SNS, after being messed about for years.
I'm awaiting my initial consultation, to find out if they think I'm even a suitable candidate.
I'm looking forward to watching the rest of your videos now, as this has given me some actual hope, for the first time ever, that something can ease this miserable existence.
Thank you very much for making these videos!
All the other videos and info have made me feel queasy, if I'm honest.. I'm willing to at least, consider this properly now. I'll join the Facebook group next, as I didn't know about that until now either.
Many thanks, again.
@@Chappylass3 I’m so pleased you have found this helpful ❤️ It’s such a frustrating time being palmed off from one person to another and constantly waiting for appointments. This device has been totally life changing for me and I’m so grateful for it. I hope my videos give you a little light at the end of the tunnel and that you get your appointments quickly so you can start your axonics journey too🤞🏼 x
Hi April, I just wanted to thank you so very much for doing this video. I’m fixing to start my trial next week and I’ve been searching and searching for this type of video to see what it detailed and what were other’s experience. I’m a bit nervous but you have helped tremendously. My brain and bladder don’t communicate anymore, and I’m praying I have good results and restore that connection. Thank you again!
How did it work for you?
Hi April, I have had my permanent implant for about 6 weeks now. I have had good results with occasional times when I would need to turn up or down the stimulation until it would settle down and work more consistently. My permanent implant was put in 5 days after my temporary one. Only after getting the permanent one was I given a few days of pain pills which I didn't need unless I put pressure on the implant or tried sleeping on it. I can't believe the difference after getting the implant. Before I had terrible desperation to have to go that sometimes just came out of the blue. If I was near air conditioning or even seeing a bathroom I would need to go instantly. Also getting up in the middle of the night and first thing in the morning, I would have accidents because I couldn't get there fast enough. I also find it quite easy to use and would recommend anyone who has an urgency problem or accidents that this is what you need to finally feel more normal. I'm 66 and live in Florida. 😉
Hi Nadene, I am so pleased to hear you are getting a good result from the therapy. It really is life changing! X
Thank you so much for this. I wanted to hear from a real life person their experience before getting this procedure!
I just find out my bladder is extremely small so my doctor told me about this and Monday I’ll do the therapy before they permanently put the device in. To see someone young like you help me see I’m not the only one going through such shame and I have this problem all of my 30yrs of life and finally find a result that may help
Keeping my fingers crossed its successful for you and you finally get the relief you need! X
I go in Monday for part one, I’m 46 and have had OAB for about 18 years now. Finally could not stand it and started getting tested all over again. I was tested in 2004 and they could not come up with a treatment then so I gave up. 3 x an hour is not uncommon. If I could get 5 hours sleep a night it would change my life. Thank you for sharing and I hope your doing well.
From Tennessee
Really appreciate this video! I have tried botox and it’s not working, so this would be the next step, which I am very nervous about😩 Thank you for sharing!
Thanks for the video! My husband is thinking about getting it.
Thank you so much for sharing your experience. I'm strongly considering this surgery so it's great that you've shared your journey with it. I'm going to watch your other videos too xx
Thank you!
Can this be helpful for patients with constipation/incomplete evacuation issues? I heard it's very helpful with oab..
Hi I've had the axonic for fetal incontinence. I was constipated alot too. My schinter muscle doesn't work so I can't push. It may be worth having tests.
Thank you April!!!!! I can’t wait to get my quality of life back💪🏽♥️
I’m excited for you ☺️
I only have two incisions. I thought mine was permanent,but perhaps not. Having trouble finding correct setting. Changing pad sometimes 8 times,very very wet. Then other times 1 - 3 changes. Urinating 6-I times a day. HOWEVER it is an improvement from before the implant. Hopefully it gets better and CONSISTENT.
Hello
I have an implant and I like this
Thank you so much for making this video! Answered so many questions for me!
I’m so pleased you have found this helpful 😊
I’m not getting connected.can you help me
I’m sorry to hear you are having problems, if you reach out to your nurse specialist, they will be able to help x
How has the permanent implant been? This video is over a year old. Ty😊
Hi Francine, I have loaded 3 videos since this one. Do have a look on my channel. Hope they help 🙂
Wow, I hope it helps and you're doing well. I was just on here because I was researching about the company, which I'm starting on Monday as software and electronic validation.
Mine started giving me leg pain due to contraction. Turned it off pain went away. Dr. still looking into it.
You are giving me hope! I was dx with ms and nothing works so I hope insurance will cover it so i can feel like a human again!
Didn't help me, I wasn't offered free trial!!!! Had to go on UA-cam to learn,, company sucks!! Pull-up an 2 long bladder pads,, good luck Patricia Howard, usa
When and how do you use the remote control?
If you're getting it done they will tell you how and when to use it. Its just used basically to turn it up or down to control the implant device and also to shut it off when you have an mri or having surgery then you turn it again with the remote I just had mine done in June
Thank u so much for this video. I’m scheduled for part 1 tomorrow morning and I can’t wait to get rid of this problem. I have ORB n tests have shown my bladder can only hold 7 ounces of urine before it lets it all out not giving me time to get to the bathroom. I’m scheduled for part 2 next week 6-13-2023 so hopefully all goes well. 🙏🏽
Thank you , this i was looking to know more details im going to hv acionics trial march 17 and it is ok ill hv the implant in April . Now i know what im expecting the tap and how to use the remote control , the implant affects your sensation during intercouse when you have sexual activity becuase during surgery i saw a video and the lady say she has feeling on her uterous please coment greeting frim Connecticut , Usa❤
Thank you so much for this!
Thank you, your video is very helpful, you’ve taken the fear out of it, and given hope
SNS Facebook group is wonderful!
Corrr you’re pretty 😍
My family memberr has other meds that interact will the meds for this condition. She carries urine and can't void it all. Actually post void was 286. I'm worried about surgery for her. She wouldn't be able to remember not to bend over or twist as directions tell you. She couldn't journal her success. Anything going into the spine worries me. Multiple surgeries to replace batteries and fix broken leads could be a mess. Besides meds and this, is there any other way to help?
I didn’t know this can interfiere with meds but I have been noticing my meds are not helping me as before
I like what you have shared. Just heard about this device tonight. Was looking at the Interstim. Sounds like this is the way to go. My issue is a problem waking up multiple times a night.
I can’t comment for interstim but other than not getting it working yet, axonics is amazing! I’ve had it work and it was life changing. Hopefully a wire resit will get me those amazing results back! I feel your frustration with getting up at night 🥴
@@aprilmiles1541 hope it works for you! Sounds like it will be quite life changing for you.
If you research Axionics OAB devices you will discover they are superior to Interstim, so make sure you check out both. Axionics also lasts longer even taking into account the amount of stimulation used. I know I am not keen to keep having to go to hospital to have the device changed. and the Axionics remote is much simpler/easier to use than the Interstim one. Both are MRI compatible.
@@sjordan7085 thanks!
Hi I just got this battery implant my self last month
Thank you, April! That was so helpful and reassuring to know that I'm not the only one going through this nightmare and that there is a viable solution. Please update with your results after the axonics was permanently implanted.
Joanne Miller hi Joanne, there’s another video which I have loaded since with an update. So pleased to hear that sharing my experience is reassuring others. Good luck with everything, I hope it is successful for you x
Thank you!!
My foot twitches from the device, doesnt work.
@mariahwilliams5333 it doesn’t work me either , can you tell me your experience.
I have mine implanted 3 months ago and is not working
@@monicaorellana12 I still have accidents in the night every now and then. Sugar, especially soda and Gatorade makes it worse. Also no liquids a few hours before bed
@@mariahwilliams5333 I guess it doesn’t work for everyone
I had my accidents in reunions with my family 🤦🏻♀️
Me too! Left leg and foot went haywire.
I'm a little confused. Will the wire always be out of the body and taped down or will it eventually be all internal. I have mobility issues and worry about how I will deal with this.
The external battery wire is just for throughout the trial only. Once you have had your trial and if found to be successful, you’ll have the permanent procedure where the battery will be implanted along with the wire which connects the battery to the tin wire which is touching your nerve x
@@aprilmiles1541 Thanks for your reply. Unfortunately my doctor was not as clear with "his" explanation.
The trial one will be for 2weeks. But if that works as the surgeon gets results. Then the perminant one in under the skin and the machine itself is at the top of the buttock
@@lisajones7371 Thanks, but I decided not to proceed with this.
Can I ask why? I’m schedule for the trial tomorrow and I’m nervous about it.