Sjogren's Disease: A Nasty Autoimmune Disease That Your Eye Doctor Can Help Treat
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- Опубліковано 5 бер 2021
- Anywhere from 1 to 4 million Americans suffer from Sjogren's disease each year. Your eye care provider can detect the earliest onset of this disease, connect you with the right care of other practitioners, and treatments to help you manage the health of your eyes.
Optometric Associates
117 W Main St, New Holland, PA 17557
Phone: 717-354-2020
www.optometricassociates.net
Sjogrens can be sneaky….one can have all the symptoms of it for a clinical diagnosis but be negative for Ro and La. The University of Buffalo developed The Early Sjogrens Panel that looks for antisalivary antibodies and anti carbonic anhydrase. Some people never have a positive Ro and La and go without proper treatment because docs think they don’t have it. The worst thing is getting diagnosed with Fibromyalgia when you have multiple autoimmune disorders🤦🏻♀️
So if you test positive for the early antibodies do you then have Sjogrens? I tested positive for 2 of 3 antibodies and some Drs say yes and some say no.
@@pleasesendyourmind According to my docs, there’s a difference between having Sjogrens disease vs syndrome. I was told I don’t have the disease because Sjogrens is not my sole autoimmune disorder. He said if I had Sjogrens disease, it would be my only diagnosis. 🤷🏻♀️ I have multiple AI disorders and many overlap in symptoms…for instance: someone with lupus can have dry eyes and mouth and not necessarily have Sjogrens! It’s so complicated!! Thankfully, many treatments can address a number of disorders at the same time even when docs can’t agree on what to call them🤦🏻♀️
I have every symptom! Dentist had to pull 3 teeth due to dry mouth. However, the Dr. Says my test fir Sjordgrens is negative. What test should I be given to verify that I have Sjordgrens? Please help!
@@barbarajackson8053 What tests did your doc order? There’s a few that are done with the most common being SSA and SSB known as Ro and La. Not everyone with Sjogrens has a positive Ro and La. Did they run the Early Sjogrens Panel? It can also be confirmed via a lip biopsy.
I have fibromyalgia and Sjorgen autoimmune and rheumatoid arthritis and chronic dehydration Tack on hypothyroidism
I went to an ophthalmologist to get my glasses prescription updated, and she told me that I must sleep with my eyes open, because my bottom eyelid was really dry. Four years later, when I went to see a rheumatologist to see if I had arthritis, and he told me that I have Sjogrens. Now I'm taking hyrdroxychloroquin, which can damage my eyes and is making my hair fall out, I have to see an eye doctor every six months to check my eyes for damage. I also have teeth that are randomly dying and have to be pulled. So I'll be bald, blind and toothless by the time I'm 60 🦷😎🎱
I developed Sjogren’s when I had breast implants, which totally screwed up my entire body and my life. I had MGD, lost teeth and I can’t afford $20,000 for dental implants, lost organs, had dry skin was so dry, I had to put coconut oil everywhere and walk around until it soaked in, I was extremely fatigued, had body pain, insomnia and diarrhea for 6 months, and strange symptoms like sweat in between my toes! That, RA, and other infections ruined my life for years.
My regular young doctor thought I had allergies, and had me using Flonase! How stupid!
An ophthalmologist diagnosed me and then a rheumatologist, but it ulcerated my eyes were so painful that I couldn’t drive, couldn’t sit by my fireplace, had to wear double sunglasses, etc. I then saw a cornea specialist who put plugs in, but they kept falling out, and he had me on Restasis, and blood drops. I couldn’t wear scleral contacts because they got a buildup within 15 minutes.
I was teaching high school English; not good when you need to read! I had to retire and go on disability. It was horrific, but my symptoms subsided when I had the implants removed. Toxins!!
BTW, please pronounce it “Show-grins”. Thanks❣️
Up
So glad your symptoms got so much better after you took out the implants! 🙏🏻
Did the implants made you have an autoimmune disease? Can you explain how?
@@lorestrahan8608 They create incredible toxins in your body, which wear on your systems. This weakens the immune system so much that am autoimmune disease can, and usually manifests. I have/ had about 6 severe ones and I feel them every day! A hardened tissue called a capsule forms around the implant to protect the body from the foreign invader. Mine came out looking like big slabs of bacon or salami. No wonder I couldn’t breathe!
If you are thinking of getting them…….. D O N ‘ T!!!!!!!!!!!!
@@lorestrahan8608 Above Resonse.
I am a 68 yr old female. September of 1987 to March of 1991 was hell. Finally had a neurologist diagnose Lyme Disease. Two full years of hardcore antibiotics and then seven years of powerful holistic treatment and I kind of got my life back. Yet as I aged more and more autoimmune problems starting happening. The official diagnosis is Post Lyme Syndrome. Yet all the RNA tests come back positive. Eyes, heart, gut, joints, muscle and skin are all affected in varying degrees. Deep fatigue, blinding headaches, gritty, dry eyes, irregular heartbeat, migrating pain in my joints, muscles with odd skin sensations, many food allergies and sensitivities are just a few of the issues I deal with daily. My eye doctor says Sjogrens, my family doctor says Fibromyalgia and signs of Scleroderma. Had one rheumatologist treat me for Lupus for 18 months and then kind of shrug and say that there wasn't much she could do. Had a second say that she doesn't treat Post Lyme Syndrome and that she didn't believe that I had any other autoimmune problems. "The tests must be false positives." I am frustrated and feel very defeated. Every single day is a battle. I just wish someone could and would help me figure it out a bit. 💔
So frustrating for sure. I’m on a similar path. Think I’m going crazy at times! Never give up hope. I’m eating a clean healthy diet, exercise and staying close to the Lord. My best to you.
@@debrapowell7467 I am so sorry to hear that you also struggle. Thank you for your understanding! I will be praying for you 🙏
Find better Drs, don't give up!
Seek a Doctor in Mexico have them run tests, labs, etc whatever it takes to find out what is wrong with you. I decide whether u want to proceed to next step of treatment options with them or whether u want to do your treatment here in USA.
The tests must be false positives??! Are you 🤬 kidding??! Ohhh God I would’ve lost it 😭 I am so sorry.. ugh. As someone who’s been suffering too and treated like a hypochondriac, that makes me so angry for you. 🫂🫶🏼
I am from the Netherlands. My treatment is going home and check inflammation once a year and some eyedrops. That’s all. Feels kind of lonely.
I have punctal plugs. They make my eyes much more comfortable😊
Thank you for making this video easy enough for me to follow and understand. 😎
So helpful and comprehensive. Many thanks.
I tested positive for Sjorgrens via a lip biopsy and have every symptom mentioned, my mouth and burning and no moisture in my lips being the worst. I have use saliva replacement products, Rinses and chew sugar free gum. I have lost 10 kgs. I was small to begin with, anyway I try to not let it get me to stop training students.
thank you very easy to understand
Thank you sir.
I have EVERY SINGLE SYMPTOM! This explains the blocked tear, salivary glands for the last 15 years! And why I seldom sweat!
And yet I also have all the symptoms and can’t wear anything but a vest, even in a blizzard!
I've had SS for 30 years. Optical occlusion, autologous eye drops, salagen, and plaquinal. That what works for me.
My blood test for sjogrens was negative. But I’ve experienced occasional (depending on stress level) dry eyes and mouth/throat due to Hashimoto, also dryness worsen when I took anti histamines pills for my allergies. I would literally wake up at night feeling I have not drink liquid for daysss and eyes feel gritty that it would not help me sleep at all. LOL.
Very informative! And boy are you handsome! 😍
I had plugs put in when I was 50 and he only put it in my right eye to see how I tolerated it. The next morning I was back in his office because the plug fell out and so he had to replace it and that really hurt!! He stated that I had very tiny tear ducts?
I’m very curious because both of my children, my daughter and son have this????
What are the symptoms?
Ive been diagnoisd with this. I have a ton of problems . they say the sweat from my face is because there is to much going on in my body❤
My sister just past away with complications in her lungs.
Sorry about your sister.😥
I get rashes a lot . To be on Plaquemine
I had one cataract removed last year.. my eye still is affected…nothing I do helps..
I had both eyes done, with good results. However within a short time, all the benefits were gone and it’s as if I never had cataract surgery. Definitely as a result of Sjogrens.
I had both and my eyes done were never the same. I had to use steroid ointment for about 2 months, any light was so painful. I’m ok until mid day then my eyes hurt so bad. Using preservative free lubricant drops and it’s still very uncomfortable.
Would I need to see an optometrist or ophthalmologist? I get confused between all the different types of providers.
Thanks! You can see either - just make sure you are confident that the optometrist or ophthalmologist specializes in dry eye disease :)
You need both of them
Lots of info here. Just wish the presenter had spoken a little more slowly, and pronounced Sjogrens correctly. It sounded like he was saying 'Shro-grens'.
You can slow the speed down by clicking on the gear icon next to the CC (closed captions.) You can click playback speed and choose .75 speed or slower. I do that when the speakers talk too fast.