Thank you for sharing your thoughts and feelings at this time. It's so so so hard and scary. I think MS really forces us to confront the human condition directly in very challenging ways. It asks us to accept the impermanence of absolutely everything, even our own perception of the world around us as MS changes our very sensory apparatus. We have to recognise that we have no way of knowing what will happen, and yet also take responsibility for the actions we take today that can impact outcomes in this unknown future. This is really, really hard stuff and it is totally understandable that you are struggling to process it. When I was first diagnosed the MS nurses told me it normally takes people around 9 months to accept what had happened, and I said that I think it will take me at least double that time. Even just the work of thinking back over your life in the past and thinking "was that an attack of MS?" can itself be destabilising, as you start telling the story of your life in a different way. It upturns so much of your identity. In terms of making sense of the comparison between Kesimpta and Ocrevus, this video by neurologist Brandon Beaber was helpful to me: ua-cam.com/video/BVhN4_sEi1s/v-deo.html This explanation helped me to understand how these drugs were developed and why, which helps me to feel a bit more comfortable I guess though I don't know if it helped me to choose between them: ua-cam.com/video/C0mvrES56rM/v-deo.html
I have watched both of the videos you recommended. By watching the first one I think I’m leaning towards Kesimpta. But that might change. I agree it takes time to accept something like this. And it’s easy to blame ourselves but there is nothing we could have done. We all have struggles in life (some more than others) but it’s how we deal with them that defines us. We need to stay strong and listen to our bodies. I send you all my strength and positive thoughts.
Been on Ocrevus since I was diagnosed 3 years ago. No issues to report. I have improved but I don’t know if it’s Ocrevus or changes to my diet and lifestyle (Wahls protocol).
Thank you for sharing with me! When did you start the Wahls protocol? I’ve been on the best bet diet since I found out about my diagnosis. I can tell a huge improvement in my gut health but so far my symptoms of MS are still there. I know I need to give it a year to tell but at least I feel like I’m doing something positive for my body and fighting MS. So are you going in every 6 months for infusions then? How do you normally feel after? Any recommendations there? All the best to you.
@@LiiBorossy I’ve been on the Wahls protocol since August 2019. Heat intolerance is still an issue but I’ve seen a lot of improvements overall. Regarding Ocrevus, yes every 6 months but my last one had a 9 month gap because of insurance issues. I get the infusions at home and haven’t experienced any issues.
I don’t know too much about this drug but my neurologist and I are agreed that taking daily medicine is just not a option for me. Do you have experience with this medicine?
Thank you for sharing your thoughts and feelings at this time. It's so so so hard and scary. I think MS really forces us to confront the human condition directly in very challenging ways. It asks us to accept the impermanence of absolutely everything, even our own perception of the world around us as MS changes our very sensory apparatus. We have to recognise that we have no way of knowing what will happen, and yet also take responsibility for the actions we take today that can impact outcomes in this unknown future.
This is really, really hard stuff and it is totally understandable that you are struggling to process it. When I was first diagnosed the MS nurses told me it normally takes people around 9 months to accept what had happened, and I said that I think it will take me at least double that time. Even just the work of thinking back over your life in the past and thinking "was that an attack of MS?" can itself be destabilising, as you start telling the story of your life in a different way. It upturns so much of your identity.
In terms of making sense of the comparison between Kesimpta and Ocrevus, this video by neurologist Brandon Beaber was helpful to me: ua-cam.com/video/BVhN4_sEi1s/v-deo.html
This explanation helped me to understand how these drugs were developed and why, which helps me to feel a bit more comfortable I guess though I don't know if it helped me to choose between them: ua-cam.com/video/C0mvrES56rM/v-deo.html
I have watched both of the videos you recommended. By watching the first one I think I’m leaning towards Kesimpta. But that might change.
I agree it takes time to accept something like this. And it’s easy to blame ourselves but there is nothing we could have done. We all have struggles in life (some more than others) but it’s how we deal with them that defines us. We need to stay strong and listen to our bodies. I send you all my strength and positive thoughts.
i pay for your healing and well being in Jesus name. amen
Thank you for that ❤️❤️
Look at Dr Aaron Boster, neurologist videos on UA-cam.. he is MS expert n educator. He goes over symptoms, medications n options!!
Thank you. I have watched a few of his videos now.
💕
❤
Im on ocrevus since a year. Nothing good, nothing bad so...
Thank you for sharing with me. I’m still deciding what to do about treatment.
Been on Ocrevus since I was diagnosed 3 years ago. No issues to report. I have improved but I don’t know if it’s Ocrevus or changes to my diet and lifestyle (Wahls protocol).
Thank you for sharing with me! When did you start the Wahls protocol? I’ve been on the best bet diet since I found out about my diagnosis. I can tell a huge improvement in my gut health but so far my symptoms of MS are still there. I know I need to give it a year to tell but at least I feel like I’m doing something positive for my body and fighting MS.
So are you going in every 6 months for infusions then? How do you normally feel after? Any recommendations there?
All the best to you.
@@LiiBorossy I’ve been on the Wahls protocol since August 2019. Heat intolerance is still an issue but I’ve seen a lot of improvements overall. Regarding Ocrevus, yes every 6 months but my last one had a 9 month gap because of insurance issues. I get the infusions at home and haven’t experienced any issues.
Why not Lemtrada?
I don’t know too much about this drug but my neurologist and I are agreed that taking daily medicine is just not a option for me. Do you have experience with this medicine?