Відео

Do you take vitamin D3 as well? Ms'ers usually have low vitamin d3 levels and need supplements according to my neurologist. I've had levels of 34, which is way too low and had lots of cramps, pain, bad sleep and fatigue. Now I feel much better.

Well you may feel like crap but your overall physicality (mental/emotional) looks to be going strong congratulations

I hate how steroids make me feel also, it’s terrible😒 goodluck ❤️🤞✌️

Hey Lii- Hope you are feeling a bit better since the infusion. Steroid's can do crazy things. You could mention a different DMT to them? I wonder. I've been on Kesimpta for 2-1/2 years and things have gone very well. Fatigue is for real. I do get a mild headaches sometimes before the next dose. I think it's call crap gap. Funny name. Good job advocating for yourself.... love from Colo

Sorry that you have reactions… o thank God that I’m able to do it fast. My first half infusion my throat was itchy but it’s gotten better

Those infusion are no joke huh. Can you fill your time with movies/ shows, crocheting or drawing, answering emails etc- anything to keep your mind off of it? A nice comfy blanket, eye mask for sleep? Just brainstorming for you!❤️ - Colorado USA

seems you are still very anxious, yoga and deep breathing could help......

"How it AFFECTS ....". These titles can influence viewing choice. I did give your video an upvote because it' good. It takes courage to share such intimate stuff about a condition that's highly misunderstood. Just my 2 cents.😊

Hi Lii I am so glad to see you give an update. I pray for you daily!!

Hi Lili, I have watched most of your videos by now. I am from Madrid but live abroad at the moment. My mother has MS. She has been treated very successfully in a hospital in Madrid. She is really fine now. She was in a much worse place when I was a teenager. This desease has affected me deeply. I am here, listening to everything you want to share with us.

🙏🏾

Praying for you. 🙏🏻

❤❤❤❤❤❤❤

I have experienced so many of the same comments and symptoms. Someone commented on support groups. I have joined 'BelongMS' and the MS society in the UK I believe has online supports. MS Canada has 'navigators' to help people. Spain may have similar options. What test will they do to determine where you are in your MS disease progress? I have never heard of this.

Thank you for updating us. I think about you and wonder how you are doing. I know it's just virtual, but know that there are people out here that care about you and wish you well.

I think you should look into a support group either in person and/ or online so you all can bounce ideas off each other and get support. They know exactly what you are going through as well. What do you think?

Sending you lots of good vibes Lii. Cheers from Montreal Canada 🇨🇦

Ahh, hang in there Lii. Rest assured you are doing all the right things re: your health, second opinions & genetic testing. All good direction. Give yourself a pat on the back for all these things you are doing to be proactive. :) I really do feel there is hope on the horizon for this remyelinating stuff/research going on around the globe. Infrared sauna's and baths have been helping me a ton. Take good care Lii

Bless your heart! God bless you and help you! Great to see you !❤

HI LIL! hope and pray your new medication helps you. thanks for your update. i keep praying for you!

Since 2013, everything went to Hell. M. S. Sucks, but, It seems to attack people who are workaholics. Present. Ma'am, I wish I could help you. M. S. Is a wall that you have to go Through, or Over. Don't worry, I won't Commit Suicide, For My Boys, sake. Uncle Pete, shot himself, his back problem, destroyed his life. Looking in the Past, For Your, Future, Can Never Work. I will be a pain in the Ass, Till my Dying Days, Google. Google this !

❤ Glad you are doing better!!! Good to hear from you.

You do notice a difference in your coherence when speaking at the beginning vs the end of the video, it seems you're improving. Take care and hope you feel better each day.

I’m glad to hear that you are doing a little better 🥰

Very happy to hear from you. You are doing great😇

Glad you're getting better, take care

🙏🏾

Hey, it‘s good to hear from you again. Has another diagnosis been made apart from MS? Sending a virtual hug from a fellow MS warrior. Best from Franziska from Hamburg

Yes that IS a huge change congratulations and your father and grandmother are fantastic people really good to hear that’s beautiful sounds like you have a lot of positive people around you that’s spectacular and yes your plants look great good for mind/heart/energy. Sounds like you’re stepping into your life good for you 👏

New to ur channel but glad I found you take care

Hi I’m new to your channel and find it very informative. I live in the U.K. and for the last 4 months I have been experiencing the worst MS relapse of my life. The only communication I’ve had with my neurology team is over the phone with no examination, yet they still class me as 2.0 EDSS when at times I’ve been in a wheelchair and I’m only able to walk very short distances with a cane. It really confuses me.

Wonderful to see you, glad to hear you have a new medicine, that is helping you❤️❤️

Hi, I enjoy your video's, I have often thought that I would send you another You Tuber that has Multiple Screrosis, in which she has healed through diet....the Carnivore Diet to be exact. I do hope you get time to check her out, it really is amazing. Good luck and may the LORD JESUS CHRIST not only heal you physically but that you look to Him for salvation ....here is the title to her channel....Cabaña Chronicles

That’s wonderful news!! I have been wondering how you were doing. I thought maybe not too well since you had gone silent. Glad to see you’re feeling hopeful with these new help aides!

❤ glad to hear an update from you

Glad to see you! Missed you. Glad you are doing well!❤

Hello. Just checking in on you. I hope you are doing okay. ❤

Come back to us please.

My heart goes out to you. I was recently diagnosed as well and the grieving process takes a toll for sure. Being a mom also I can understand everything that you’re feeling. I don’t have the same level of disability as you with the exception of brain fog. A saw a therapist and it helped- being on SSRI is important - just as important as a good DMT. Be kind to yourself and give yourself some grace. You are going through a life changing period and having help is critical. Much love.

Don't know if it will help but have you tried the carnivore diet? It seems to be helping many people with MS.

You look H🥵 T in this Episode Lii. By That I mean You Are in Hospital & They are H🥵T places. Yesterday I Had a Thyroid U/S and It was H🥵T. I told them to Speedy Gonzales or I would... And sure enough I Started with the Myoclonic Jerks. But the Sonographer didnt fetch her Supervisor, to then Fetch a Neurologist from the Upper Echelons of the 👉 🏥 Which I thought was a Bit.. Not Cool. Or even Cold & Uncaring

Hi, I'm an Australian female aged 60. I've written down all of your symptoms as I've thought if my symptoms match, newly subscribed, I have all symptoms and I am going for an MRI. I HAVEN'T had a spinal tap before and I'm scared of the prospect of the possibility I'll be asked to get one. I've had some of the symptoms since I was a child. I'd remembered that I had to use a chair to lean on to do the washing up. My leg or both legs would go numb. In the times we were in lockdown when covid was here, I got a Frozen shoulder in my right arm and the beginning of bone on bone in my shoulders and collarbone hurt. I had it for 3 years and about 4 months. My arm and shoulder still hurts. But different from the frozen type. I'm terribly tired and weak. I'm 60 years old. I have trouble walking and sometimes balance. I use a walking stick. Out in the garden I use a walker/seat. Our property is sloapping. IT'S hard to go up or down the land and stairs. My left arm has been hurting this year and it doesn't go away much now. My other symptoms is numbness, pain in my arches /feet and sore toes. I bruise easily, I tend to loose feeling in either legs, toes, tongue and bottom lip. I've had a sore jaw at times. A sharp pain in my body like lightning. Dry skin, my arms felt separated from the shoulder bones during my frozen shoulder.....like they were ripped off and gone down the road. I have trouble typing, and trouble thinking of words when in a conversation. Thanks for the info on the video.

Sounds Bad Lii. (What you are describing) Is "AGGRESSIVE RRMS" different from PROGRESSIVE MS? I guess it's opinion based. I'm getting more hand shakes too. My right 👉🏽 finger is doing a lot of Dancing like Elvis. But I had The Worst Myoclonic Jerks the other night. It was actually Very Scary & I felt a sense of Dread. What might happen next.. like a Black Out. Other times I've just felt Silly with my left Arm doing it. But it was Neck Head Torso Ones. Like lightning ⚡ With Warmer weather comes Eye Pain. I hate the Eye Pain. It Rocks my World. The 🧠 is such a mystery. Best Wishes Lii. I Scream, You Scream, We All Scream for 🍦🍨 & A Permanent Cure

Big hugs 🫂

Is it posible that you just had a very bad, terrible relapse? You have improved so much since when you were at the hospital. It takes time for the body to recover,

I think stem cell therapy with MSC's might be the best for you. I am no doctor but it has shown great outcomes.

It sounds like you have very good caring parents. Understand how big that is because a lot of people don’t. It’ll be the difference in your life family is the most important.

“You just want to be normal” get that out of your head there’s no such thing not on this planet so embrace it that’s how you develop anew from it

Yes another doctor’s inside experience is important to hear but don’t forget they can’t say for sure so you can fight regardless. I trust in talking to the body straight from the mind the thoughts and directing those thoughts to what I must do for myself as did my grandfather it may have power more than anyone will ever know it certainly helped him. You look well this is always a good sign you’re getting out and taking care of yourself regardless that’s it feels hard a really great start even if you don’t always feel like it. As for support, write a list of the ups and downs what you know you can do and what you think you’re not likely to go without it’ll help.

I hope that someone will take you for a second opinion. The pool looks very nice. 🌸