FIRST SIGNS / SYMPTOMS OF MS ⎥MY MULTIPLE SCLEROSIS STORY ⎥HOW I'M DOING RIGHT NOW ⎥Lii Borossy
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- Опубліковано 18 сер 2022
- These were the symptoms that made me seek help. I thought I was suffering from postpartum complications but in fact I was having a MS attack. If you are having similar symptoms I highly recommend you to go see your healthcare provider.
I'm a mom of 2 and I just got diagnosed with Multiple Sclerosis.
This is all pretty new to me so I'm sharing my MS journey as I go. If you are new here don't forget to SUBSCRIBE @LiiBorossy for more videos and watch this video → • PREGNANCY DID WHAT TO ... to get caught up on how this all started.
Much love
#msdiagnosis #multiplesclerosis #livingwithms #liiborossy
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I will make you smile till my last day my love...don't mind if your smile is more up or down. We are gonna have the Best life posible. We deserve it.
You do. We laugh even on our dark days. Te quiero mucho.❤️
Cesar you rock😎
had Primary Progressive MS since 2000. i am 72 now. mine started with optical neuritis. MS it is what it is another challenge in life. just eat well, sleep well, walk keep going, and enjoy your family. xxxxx my hardest challenge was loosing my beleoved husband in 2017 who was my care worker. you take care your a lovely person you have gorgeous children. xxx
Thank you for your kind words and for sharing part of your story with me. I’m sorry for your loss. I’m trying my best to live life “as normal” taking care of myself the best I can. Sending you all the love ❤️
@@LiiBorossy just want you to keep the faith i have had it 23 years probably longer and i still have some mobility. having PPMS there was never any DMD for us. but you can have it. i even managed to see my grandchildren grow up hun, one is 31 now lol. xxxxxxx
@@hedgehogwildlifejunction9119 with the risk of sounding stupid.. what does DMD stand for?
@@LiiBorossy oh sorry hun. disease modifying drugs. WE use it as abbreviation lol. xxxx your not stupid, i am, i should have used the correct words, just tired in morning sometimes as i wake about 4am lol. xxx
@@hedgehogwildlifejunction9119 no that’s perfectly fine I figured that’s what you meant but I wanted to ask.😅 Do you suffer from insomnia? I’ve herd it can be a very debilitating MS symptom. Sending you all the love ❤️
I was diagnosed last August, at 16 years old. My one-year anniversary of first infusion is today and I am so proud of myself for getting to where I am! I had similar onset of optic neuritis, balance issues, numbness. Everyone thought I was making it all up, they told me I was going crazy from exam stress.
Thank you for sharing your story. I hope to study pharmacology in the future to help find a cure for this and make people's lives better :)
Wow what an inspiration you are! I’m sure you will succeed in anything you put your mind to. 🥰❤️ Thank you for sharing with me. 😊
16 is so young! Did you take the Covid shot by any chance?
@@allie9015 don’t be unfeeling! I am 49 years old and got diagnosed with MS at 19. Well before Covid/ Covid vaccines. Illnesses existed before Covid. Challenge your biases- do research- talk to people who got diagnosed young.
@jenniferw1595 People need to be well informed before taking any kind of medicine. Nothing should be hidden.
16???😨😱
My cousin had Ms. Diagnosed in the 1960's when there were no meds except steroids. Take Vitamin D and eat a clean diet. My mom's cousin wS also diagnosed. My husband's niece and nephew were diagnosed at 50 and 47. We never had kids due to Msin my family and years later, his family. I send donations to the MS society and hope and pray they find a cause and acure. Blessings to you. 20:22
Wow so many in you family has MS! I send you all the love and strength. 🧡 Vitamin D ✔️😊
Such a brave woman I just found out last week I have MS had the same symptoms bad back limp on one side I was just trying to get on with life for 3 months only my wife got fed up with me moaning about pain that I went to a&e department for full Mir and bloods and lumbar puncher that I found out had RLS for about 10 years now and I have alopicia so I look a mess tbh hope you feel better I'm on iv steroids atm 3 massive doses witch has helped and I'm off to see the neurologist and MS nurse on the 1st of March for a care package it's all new to me hope we have a save journey and I will be watching you videos all the best rich
I’m so sorry for everything you have been trough! 🥺 I’m sending you all the love and strength and I will pray for that everything goes well on the 1st of March. You got this! Take care my friend 🧡
All the best to you from an MS warrior here🧡🧡
Sending you all my strength and love!
Great video! and thanks for sharing your experience. Hope you are doing well. We're all here with you!
Thank you 🙏🏼 I just said the same thing on your latest Instagram post lol. Community is so important and making people feel less alone by sharing our stories I believe is truly powerful. Sending you all the love and strength ✨
Thanks for sharing your diagnosis and symptoms. Many blessings to you!
I’m glad you find it helpful! That’s all I could ever ask for 🙏🏼❤️
Thank you so much! You are sharing so WELL all your symptoms! Many people just simply say..."some numbness in legs", but you are actually sharing very specific way.
Unfortunately, I know and understand all your symptoms all too well. I have no diagnosis yet. My MRIs were all "clean", but I definitely have symptoms which could be this condition. I think that I would be glad to have some diagnosis at this point. It is harder to be in this between-land of not knowing how to deal with this.
Specially that smile explanation...wow! Yes, I have that! I know *exactly* what you mean. Never heard anybody describing this and so well! I appreciate so much your share!
Tack så mycket!
I wish you and your family all the very best! Sending much love to you 💕💖💕💖💛💖💛💖💕💕💕
First of all I’m sorry for what you are going through! I hope you get the help you need. And thank you. I try to share the best way I can. Take care dear ❤️
Sending you big hugs 🤗Thanks for sharing your symptoms it helps a lot. 🌞
Thank you for taking the time to watch. Much love ❤️
Much love to you too 💕💕
Thank you Samantha ❤️ I hope you are well.
❤️ from USA- stay strong, you are amazing ☺️
Thank you my friend! You too! 🥰
A very brave girl
It‘s so hurtful to see how after your diagnose your thumbnails changed. Your smile changed…it almost dissapeared. I got. my diagnose a few weeks ago….and i totally can relate to that. Stay positive 🙏🏻 healthy mind and healthy diet can change a lot
This comment really touched me. Thank you my friend and I’m sorry for what you are going through. I’m here for you if you ever need someone to talk to. ❤️
Healthy mind and healthy diet DOES change a lot!
Thanks for sharing
Thank you for sharing your story. I was diagnosed one year ago. Optical neuritis triggered everything for me. Although I had many symptoms prior. Im experiencing almost all the symptoms you’ve mentioned - fatigue, extreme headaches, numbness. It’s so scary. My biggest fear is future pregnancy. You’re so lucky to have your babies. I’m 40 and time is running out - I have no babies and am so fearful of what pregnancy may look like. I know I’d have to come off the meds. Urghhh.
I don’t know if this will help but.. when I was pregnant 🤰🏼 I had never felt better in my life! Sure I had pregnancy symptoms but my MS symptoms completely went away! ❤️🙏🏼 I think the traumatic birth (giving birth during the pandemic and lockdown was not fun) was what triggered my biggest relapse and this is the relapse that led to my diagnosis later on. If I could stay pregnant forever I would 100 % want that lol. No DMT’s nothing. Just my body doing what it’s supposed to be doing. 🙏🏼 I think if you were to want to get pregnant and have a child. Working with your doctors on how to help you after birth then you will be much better of than I was. You can still have a family even if you have Multiple Sclerosis! I’m very passionate about this topic so if you have any questions I’m happy to share my thoughts with you.❤️
Dr Aaron Boster, an MS Specialist says that pregnancy does seem to make MS symptoms go away during it. Check out his videos.
You are a total inspiration,I have been ill since November with very similar symptoms,I have now been referred to neurologist so fingers crossed.i will continue to watch your vlogs you are amazing 💓
Thank you, so kind of you to say. If my story can help you I’m glad. For what ever you have in stored I hope you can find some comfort here.💕
How did the mri go?
Wow so sorry you are going through this especially as you have young children .
I'm wondering if I may
have ms...I get very dizzy, and the weirdest thing I've had is some mornings I can't seem to open my eyelids it's really difficult I haven't had that for a while but it's scarey get pains in my right arm for a year now I had pain in my knee for over a year them one year my shoulder and neck...I have weak legs sometimes gray spots in my vision at times very exhausted most days I get numb feet sometimes these symptoms all come and go but aren't so bad I've gone to the doctors
I don’t know for how long I’ve actually had MS. But for a long time I did not go to the doctor when I had something “weird” going on with my body.. mainly because it always passed or went away.. (very typical for relapsing remitting Multiple Sclerosis). My recommendation would be to absolutely go see your doctor. Because if it turns out you have MS you want to know about it before you get one attack that could be very serious and leave you with permanent damage or symptoms. My pain in my arm is permanent. I will most likely have to live with it for the rest of my life. Maybe if I had gotten help sooner it could have been prevented.
I hope you get the help you need. If I can help you in any way. Let me know. Much love ❤️
Thank you for this video. I’ve been having similar symptoms and have been worried about MS. My MRI is tomorrow and I’m anxious to know what’s wrong.
Hi Jodi, the unknown is sometimes worse. Just take one step at a time and one moment at a time. You got this. We are all here for you. You are not alone. ❤️❤️🩹
Don’t b scared. We will beat this.
I was diagnosed with having a lazy eye years ago before my Ms diagnosis too.
Yeah, I never knew it could be a sign of MS.
I have spinal stenosis, but have also struggled with migraines that inhibit my visual field since I was 12. “Hemianopsia” I can only see half of what I’m looking at. They were worse when I was on the birth control pill. Now they come if I take CBD tincture or if I’ve not slept long enough or if I’m really upset about something. My legs are so weak in the morning. I too walk like Frankenstein in when I first get out of bed. I’ve told several different drs that I suspect I may have MS. They all have fobbed me off. They all say my symptoms are due to my spinal stenosis and herniated discs. I guess I’ll just keep keeping on until I can’t anymore. I’m tired of being dismissed by drs. The medical system in the US has turned into crap. It’s no longer about treating people like humans but treating them like an ATM machine. Keep coming to appointments but I’m not going to do anything other than take your payment… that’s how I feel all of my drs are. I have chronic pain and use neurontin and norco to function. Since the “opioid crisis” began in 2016, (I always managed my pain on my own for 48 years- started the two meds in the end of 2020 as I couldn’t function at my job properly anymore). Anyway- if you’re branded in your medical records as taking those two drugs, drs treat you like an addict and as if you’re sub-scum. So when you go to the dr with symptoms they immediately think you’re just there for more medications or that you’re crazy. I’ve never been a drug user, never drink alcohol… I’m about as boring as it gets yet I’m treated like garbage by all my drs.
It’s so disheartening. Beyond what I can describe in words.
I will keep you and your family in my prayers. Be thankful, it sounds like you have a fantastic medical team caring for you. You WILL get through this.
I’m so sorry to hear about your struggles!! I think the best thing they could do for you would probably get a MRI on your brain, neck and spine.. and go from there. I really hope you can get the help you need. Thank you for sharing your story with me and I hope you feel like this is a place you can come to be part of our community. With or without a diagnosis, managing horrible symptoms is hard enough. I’m sending you all my strength. Much love ❤️
Same here
Keep working out. Exercise is key.
I have had MS for 8 years.I am on ocrevus .still okay go with the flow
Wonderful to hear 😊🙏🏼
Be very well ❤
Followed.
Thank you so much ☺️ same to you
I share many of the symptoms you had initially. I joke that I'm a 'gravity tester,' since I fell so often in the early days before my diagnosis.
I’m sorry for what you are going through. I do think that a sense of humor help so try to stay as positive as you possibly can. How long have you had your diagnosis? How are you doing now?
Thank you SO much for sharing. You did hreat and got everything across. Im just waoting for a confirmation from the neurologist for confirmation of MS from a lumbar puncture. MRI ses to indicate it is MS. Hearing yiur story is really helpful.
I know you must be scared and feeling all kinds of emotions. I’m thinking of you and all I can say is that it gets easier. The unknown is the worst. 🧡 much love
@@LiiBorossy thank you, I really appreciate you replying to me. It can be scary but like you say the unknown is worse than knowing what you're up against. Really good for me and my husband to know it gets easier. Bless you for your concern and support xx
@@RHM707 of course! I care about you guys. 😊
I suffer with restless leg syndrome. It's not easy so I know the situation. ❤🌼
I’m sorry it can be so difficult at times. Do you get it more in the evening? For me that’s usually the case. Much love ❤️
Gnesium and magnesium pills ,food and magnesium spray on legs
I have it as well. I'm also told it's MS related (at least in my case). I take Mg both pills and spray and it works only a little for me. I think what that helps with is my legs and feet cramping easily, specially when I stretch in bed. The retless leg is also in the evening for me, mostly when going to bed. However, I'm on a medication that works VERY well. It's called Ropinarole. It says "three times a day" but not being a big fan of drugs, I take a full 1mg pill around 20 minutes of going bed, but I break a pill in half and take it at around 5-6 pm. Not because I feel restless at that time, but because it ensures the nighttime dosage is strenghen enough to get me through the night. It's worked so far. I'm a software engineer by trade so debugging, even self-dbugging in kinda in my nature :). If you've never heard of this drug, tell your doc about it cause unlike a lot of other shit out there, this one works tremendously well.
Thank you for sharing your story- I’m waiting to find out what my diagnosis is- there’s a 4 month wait to be seen by a specialist. So frustrating. How did you cope with the wait?
First of all I’m sorry for what you are going trough! It’s so hard to just “wait” I tried my best to not think about it but we all know that’s impossible. I’m a person that think knowledge is power so I did my research and thanks to that I felt “prepared” for what my neurologist later explained to me. But limit yourself don’t just loose yourself in it. If that makes sense. I would recommend doing things that makes you feel good. Things like go for a nature walk or make yummy food or pamper yourself as much as possible to distract yourself. It gets easier ❤️ I’m here for you
My son's waist went numb so he went to the ER. They scanned him and found out he had lesions on the back of his eye, neck and brain. He lost his vision in one eye 4 years prior. They called in a neurologist and diagnosed him with MS.
my husband went to chiropractor. pain and weakness got worse. got MRI and appt with neurosurgeon who said if my husband had waited any longer or gone again to chiropractor he would be paralyzed. tendon (?) running along spine was so thin almost snapped and he had two broken vertebrae. please be careful going to chiropractors
Wow that’s scary. 😔 I hope he is doing better now.
God bless you all 🙏🏽
God bless you Oscar 🙏🏼
@@LiiBorossy thank you 🙏🏼
See a holistic Dr. see what they say, what they suggest. Praying for you.
Hello, thank you for posting this video.
Just diagnosed on my birthday last year, I understand you. I am trying to begin my DMT very soon..
I’m sorry, and on your birthday as well! 😨 I send you all my love and strength. How are you doing now? Have you chosen a DMT yet?
I wish you all the best on your birthday this year, enjoy your birthday party and sorry I can't talk. Enjoy it!
You’re so beautiful and you’re gonna be OK
Thank you so much 🙏🏼
What's being beautiful got to do with anything.
Where my hip and spine meet is constant burning pain down to my feet!
I’m sorry! 😣
Facial nerves are affected by. Central nervous system disorder, depending on where lesions in the brain are.
Do you remember what part?
I was diagnosed Sept 19 2023. I have weakness moreso on the left side. I have right big toe pain sometimes, and pins and needles in both legs and arms and hands. I have 8 lesions. I’m starting to Kesimpta in a week or so. I’m very terrified. 😢
First of all I’m sorry for what you are going trough! This is terrifying for everyone in your situation and I can relate 100%. ❤️
I’ve had my diagnosis for a little over a year now and it’s been a lot of ups and downs but I promise it gets better. The chock will subside after a while and it gets easier. If you need someone to talk to we are all here for you. You are not alone. Let us know how you get on with your treatment and I will see you soon in a future video. ❤️ You got this!
I'm sorry you are going through so much...thank you for sharing. I also want suggest you listen to Dr. Peter Osborne. He is a molecular biologist here on UA-cam. Have you been genetically tested for gluten intolerance? This is something you may wish to look into. Take care and God bless.
Thank you for your tips! I know that I have gluten intolerance and I’m sensitive to lactose. I try to stay away from both. 🙂
I will check out his channel. Have a wonderful day!!
I thought I always had a lazy eye but I guess it is ms symptom too
Esperemos que pronto sea curable.
🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Tratamiento mielinizante eficiente para lograr la curación !!!
🙏
Thanks for the info. Diagnosed in 2019 - taking Ocrevus every 6 months. I recently started a potassium channel blocker that really help my gait and my restless leg symptoms - dalfampridine. Oral - twice a day and inexpensive. Hope you find relief for the arm pain. Gabapentin did nothing for my symptoms
Thank you for sharing! I have some alternative medicine coming that I will be staying soon and hopefully it will help.🙏🏼
Do u have dizziness all the time like head is speening can't focus. headache pressure type balance problem. tingling burning sensations on body parts like hands arms n feet ???
Sometimes yes. All the above.. my dizziness is not constant thank goodness. If these are your symptoms I would recommend you talking to a doctor. I send you all the love and strength.
I know someone that had ms and she brest feed and it help her and after that she pumped it till she had no more
This gives me mixed feelings. I always felt and said that when I was pregnant/breastfeeding I have never felt better mentally or physically. I just never knew why.. I can understand why she would have wanted to pump for as long as possible.
God bless you!
God bless you my friend! Thank you ❤️
Do you need to have a brain MRI with contrast to be able to detect MS? I'm having similar symptoms to yours but I'm too afraid to do an MRI with contrast as I've heard you can have bad effects from contrast.
I have had many MRI’s with and without contrast by now. My first one was a nightmare because I did not know what to expect. But I think the more you have them you get use to it. It’s not the most fun experience but you will be ok! The contrast have been fine. I get tingly in my face for a bit but that’s about it. And I make sure to drink a lot of water after! That helps. Have you had any other tests done?
@@LiiBorossy Thank you for the reply. I have not had any tests yet but will be having them soon. I'm still in the first stage of talking to my doctor about symptoms so first I have to get my bloodwork out of the way in order to rule out stuff then after that is when the doctor will say what tests he thinks should be done.
@@LeeHanDSOME_BoyNextDoor I wish you the best of luck and I hope you get the help you need. If you have any other questions I’m happy to answer. Take care
I have chronic pain. Previously diagnosed with fibromyalgia but currently being tested for MS. I get a "pinch" in my shoulder that causes pain all down my arm. I have my wife give me shoulder and neck massages for about an hour almost every day to manage pain and she can get that pain to alleviate. It's a next day thing. But that's still better than it persisting. Have you done regular deep tissue shoulder massages to treat the arm pain?
First of all I’m sorry you are having pains. I hope you get answers soon. I’ve tried everything. My pain in my left arm is just not going away. It’s constant and no matter pain relief I try it’s just not helping.
@@LiiBorossy I'm really sorry about that.
@@thenerdgirl1 thank you. I hope you are feeling better 🙏🏼❤️
@@thenerdgirl1 when you were diagnosed with fm did you have mri that time ? I have a lot of Ms symptoms I did mri and came back clean and dr telling me it’s fm but I’m scared I have Ms !
@@haninshuaib7289 I did. And many x-rays. All clean.
I would look into hsct
I have started to look into it. We will see if it will be an option for me.
My MS began with 20 symptoms and severe emotional issues. I have no physical problems but a, lot of cognition issues. Diagnosed with aggressive ppms. Looking to get hsct
Gosh I’m so sorry. No matter where your or how your symptoms manifests in you. It’s just as hard!! Living with disability is hard. Sending you lots of love and strength. 💕
@@LiiBorossy sending you love too
Do all your aymptoms for the most part come and go? If not which ones have not gone away?
Hi! Good question. I have a few symptoms that are permanent, I have severe pain in my left arm and shoulder, reduced vision field, numbness and complete loss of sensation in the backside of my legs.. and other symptoms come and go. I’m sure I forgot something.😅 How about you?
Hi my name is Angie my pain Dr. Order a mri that came back with things one was ms what test do they do to determine ms
Hi Angela, depending on what county you live the tests vary slightly. But usually they need to make various blood tests, MRI and a spinal tap to determine if you have Multiple Sclerosis. Medical history and neurological examination will also be part of the testing.
Take care my friend xx
A thin veil over like half of my eye and peripheral vision. I could see but almost like a thin curtain hanging on the side.
Me too!!
Do you have breast implants by any chance? Pardon for asking but sometimes breast implants have causes MS symptoms
Actually yes. I wasn’t going to answer this but I don’t think I have anything to hide at this point. 😅 I’ve had mine for the past 15 years.
Do you ever feel like it’s rain drops on your head then next day get a migraine……?…..?????
I can’t say that I have but I do get migraines often and when I do I loose vision and I get very nauseous and sometimes the pressure in my bed feels like my teeth will fall out from it.🥺 Do you suffer from migraines?
Your English is perfect.
Thank you ☺️
I give up smiling, for walking again. I really wish I could walk. ONE day at a Time.
Everyday, will dictate your day.
M. S. Has been institutionalized, I Have a neice Sibling of father. And, I found out I have multiple Burn-outs,and I was talking to my Doctor, and said, how can you not say it's hereditary . But, like he said, there's no facts, covering my brain. Black.
Spots, all over. My
Brain. I am well aware of my problem, but, I have been dealing with this problem, for years. M.S., needs to be accepted, but, with double vision, starts to tell you, there is a problem. I knew this for years and went to work. Even during flare ups, while working. Trucking and loading trucks. And, when I worked in pain. I just worked.
I relate with you.. I just work.. No matter what.🥺 But I’m sorry for everything you are going trough. I send you all my love and strength. ❤️
@@LiiBorossy Thank You, I appreciate the thought.
MS is one of the bad diseases to have, because the Pathophysiology of it is unknown, and it could be heterogenous group of diseases manifested phenotypically as MS. Current treatments are only directed to reduce immune cells attack to neurons and their supporting cells (ODCs). These treatments sometimes can not stop attacks though, due to disease provocation to B and T lymphocyte, and disability will progress no matter what you do and follow. Early treatment is a must despite all these negative things. Oh and last the treatment despite not a guarantee to end it, it will end the money in your pocket!! So get insurance and be rich of course
Vitamin D.
Yep! Taking it daily since I got diagnosed. 🤗
Have you tried a strict diet? Absolutely no sugar. Lots of root vegetables
Hi! Sorry I haven’t seen your comment before. I was on the best bet diet for about 5 months. But I found I could not get enough kcal in. I was starting to loose my hair and I realized that following their guidelines but not restricting me of everything was the way to go for me. We need to find balance in everything I feel. 😊
@@LiiBorossy yes, so true. Eat well and eat enough to keep your energy and mental wellbeing. Just no junk food, no sugar. Lots of normal food, proteins and healthy full fat food.
I went to ketovore/paleo and after 5 months my disabling fatique started to lift. I am able to go for walks again and clean my house. It is AMAZING what a diet can do! I agree, sugar is the enemy number 1 with any condition or illness!
Dairy is really bad because of a protein that causes problems I don't know why but people can't digest it properly.
Trap nerve? Do you mean pinched nerve
Omg yes😅
@@LiiBorossy oh k I pray u get better
@@mistyknights8624 thank you 🙏🏼
Same differents
Doctors Alonso call it trapped nerve , trust me I’ve been with doctors that call it like that .
Need to improve content, very boring
Go away.
No one forced you to watch this video Paul
【p】【r】【o】【m】【o】【s】【m】 🙈