My heart goes out to you. I was recently diagnosed as well and the grieving process takes a toll for sure. Being a mom also I can understand everything that you’re feeling. I don’t have the same level of disability as you with the exception of brain fog. A saw a therapist and it helped- being on SSRI is important - just as important as a good DMT. Be kind to yourself and give yourself some grace. You are going through a life changing period and having help is critical. Much love.
Thank you dear! And I’m so sorry you are going through this too. I hope you will find some comfort and peace from my videos. You are not alone. Much love 💕☺️
Oh Lii hugs to you!! Mental health counseling is a huge part of chronic illness. I understand the struggle of physical pain that people can’t see and that your whole life has changed. I PRAY FOR YOU!!!
I’ve tried getting counseling through my GP but she told me that they don’t have that available currently… 🤯 looks like I would have to go private. It’s just not possible for me at the moment. I’m currently on sick leave and I only get 70% of my salary and it’s not enough as it is. 😔 Talking to you guys is my therapy at the moment. So thank you for taking the time to listen and share your thoughts with me. Much love
Stay strong, anxiety and stress will make your symptoms seem worse. I suggest you talk to your doctor about getting on an SSRI, I like Lexapro. Some relapses are worse than others. You are on a great treatment so I doubt it is SPMS but you need to get rest and try not to stress. I know it's hard but this is our life.
i have MS and was diagnosed 32 years ago. I never take steroids,even after having attacks that leave me unable to function much at all.I found that just resting and waiting for the attack to pass the best thing for my MS.Also eating a diet full of fruit and veg helps me get better quicker.You will get to know your MS and you will soon learn what helps you. The best thing you can do is look after your body by relaxing and meditation and also not pushing yourself too much. I find relapses are really bad for about 6 weeks,and then i start to get better,and by about 10 weeks i find,i am just about recoverd from the relapse. I have had relapses that have left me bed bound for many months but i have always got back to normal,in time.Its very frightening when you first get diagnosed,but you will find a way to cope and manage your MS.
I’m glad you have found what works best for you and thank you for sharing with me. For me, my body rarely recovers fully after an attack and that’s what’s so stressful and painful.
Oh bless you.. They frightened you with diagnosis and your body froze! Body recovers and you will get back to being able to do all the things you love to do. Please don't worry!
Sending love and blessings 💚 hope you find relief. I have lived with MS since 21 am now 40. Would say the best thing I ever did was change my diet, stopped dairy and gluten, which helped so much I was in less pain straight away so could then start moving my body more, I stopped taking my prescribed medications and found the natural way much kinder to my body and my body responded very well to natural therapies, Accupuncture, massage, vitamins and minerals, diet and eventually exercise. Steroids never worked for my RRMS either just made me feel worse but buzzed and unable to rest or relax The human body is amazing and you can be well again and cure yourself from most dis-eases. Sending you lots of love and hugs 🤗 and hope you find health and wellness. 💚💚💚 please never accept that this is it now and how you will be forever, keep hope and faith you will find a way through this. Lots of hugs my love 🤗💚😮
Dear Lii, sorry about what you are going through. I appreciate your authenticity and spreading awareness about MS and that you keep uploading videos even when you are feeling so unwell and in distress. The uncertainty and unpredictability of the illness must be overwhelming physically and mentally. I wish your symptoms to ease soon!!! Big bear hug to you ❤
So sorry to hear this :( Stay strong - there is a good chance you can recover in the coming days / weeks. I have seen many videos of people who have also had walking issues and then made a miraculous recovery. Hoping and wishing you will also have a good recovery. Look after yourself, eat healthy, drink well, take time to relax if you can and hopefully the steroids will work their magic. Hoping for the best - lots of love
Hi Lii, I'm praying for you and sending love & lightness your way. So sorry to hear what you're experiencing. Thanks for being so brave and sharing this with us. I have a newly diagnosed dear friend, and perhaps it will help me understand her journey better. Peace & love to you.
Hi dear, I’m glad if my videos can help in any way. I’m sorry for your friend. Just know every MS journey is different but we all go through the same sadness and morn our former selves. Just be there for your friend and never give up on them. Much love ❤️
I am praying for you. For peace, pain relief and complete healing. I have psoriatic arthritis and it is awful. God bless us all and heal us from these diseases. 🙏❤️🙏
Thank you Lii for being real and true - you are so brave to share this. You spoke of things that I feel mentally and physically but am too afraid to admit. You are not asking for much - you just want to feel like yourself🧡and all of us with MS deserve to but we have to push through this obstacle. It is absolutely not fair. Don't you just want to slap people who are able to do things but don't because they are just being lazy😂 I have the exact leg feeling you described and always have on and off for 24 years - pain and numbness, so awful. I have trouble falling asleep each night because I fear I will wake up and not be able to walk. You will feel better - give it time. Like me, you don't want to miss anything but allow yourself to take things slowly. Also those medications can mess with our heads. Once it all gets through your system, you will feel more positive too🧡Love, Lee
lol maybe sometimes 🤭 I sit in my house thinking of all the things I want but cannot do. But I know I will find a way. I just need time. Time to accept, recover, get all the medication out of my system… What have you found that has helped you? 🧡
Dear Lii. I’ve not been much on social media over the last 2 years. I miss seeing updates on you and the kids on your instagram. Ashton is doing well and has grown. I’m so saddened to get on here and see what has been going on with you health wise. My deepest sympathy and prayers go out to you. May the Lord fully restore your health. 🙏 Stay strong mama.
Thank you my friend! It’s been hard for sure. The kids are doing well. Héctor is suffering from some skin issues but hopefully we can get at proper treatment that works for him. 🙏🏼🤞🏼
Wish you strength at difficult times. My brother got MS when he was about 28 years. He was a sporty person before that, so surely was difficult. Now he is 56. He somehow learned to live with it and is always lively and smiles when we visit him - but surely he had his mourning days before I think. I am a christian, let me pray strength for you right now.
Keep the faith and hope. My partner died of ms i the 90s. We managed to get a combo van and my best friend and I drove him around europe in a combi van. Best thing we ever did. It gave him memories that gave him joy and hope. You don’t give up hope and you make goals that are authentic to you and then you make them happen. medical system is amazing but it’s about getting back to nature and and finding creating your dreams. Your life. it’s quality over adversity in life.
Thank you for sharing Lii. Best wishes for you, whatever your body does, you are still you. I understand the feeling in your legs and the pain, where you can feel the bones, but not the muscles, etc, as i have that. Be gentle with yourself and let yourself go through the emotions
Jag vet inte vad man ska säga Lii, det här är så fruktansvärt orättvist. Fruktansvärt läskigt. Jag är så ledsen att du upplever det såhär. Vad vi alla skulle göra för att fixa allting och gör det så att livet är normalt igen för dig 😓💔 I’m sending all the warmest, most positive thoughts up into the universe that this is temporary and that doctors discover what is going on and can reverse it. There must be a way, with modern medicine being what it is. Vi är här för dig 💛💛💛
I also have MS. Diagnosed 9/12/1995. I use a scooter, beasy boards are easier to use to transfer, get grippers/reachers, shower bench, raised toilet seat with handles. All these help me feel better, doing more things for myself. (I haven't walked for years, been legally blind twice-steroids got my sight back) leg lift to help me get my legs into bed, sock aid . Look into all the items to help make your life better and feel better. God bless you.
This is my first time on this channel, stay strong i know it's not easy, because i leave in pain basically 24 hours a day, as I'm getting elder it's worse I'm 63 there's times I'm walking with a Walker or a cane, don't think negative you're so young, believe in yourself you're going to get better with GOD'S help but you need to be strong. Girl don't say you're not going to get better,i just feel your pain and feel like hugging you. Let's pray for the best. Blessings from Canada 😘😘😘😘😘😘
Thank you for your kind words. I try my best to think I will get better. I will never stop believing that it’s possible. I have 2 kids that need their mommy and I want to be able to do our normal things that we use to do. One day at the time.
Hi Lii!! This shall pass too!! You are a strong person! I don't know what to say but I want you to know that I feel for you! And I am sure you will find a way to deal with this too!!
Aaaaawwww I wish I could take away your pain.I also have MS mine is secondary progressive now& I'm 54 had it since early 20s.I take so many tablets& have morphine patches.I can't walk very well& I use a scooter to get around.I walk a few steps.I can get tired all time& it's just so shitty.I won't give up though.Im praying for you & god bless you.xx
Im MS patient, i live in Mexico and under Fingolimod treatment; be calm, and search in your late days what did you change in your routine and what you eat. Hope you get any better
I’m so sorry about the symptoms you are experiencing. Have they diagnosed you with RRMS or Progressive? I know the only medicine that really preserves walking is Ocrevus and also Rituxan (off-label). I was just diagnosed with MS a year ago tomorrow. Everything has gone horrible since then - and I have had 2 treatments of Rituxan. Steroids are really rough for me - and I can’t use them. I just subscribed to your channel - and I will be praying for you. Courage from Fresno, CA. ❤
Hi and welcome to our little family. 😊🧡I’m sorry you are going through this too. It can be really lonely but hopefully you can find a community here just like I did. You guys are just so uplifting and kind. Thank you ❤️
You can alleviate a lot of your suffering simply by not comparing yourself to what you don’t have and rather what you do have. Gratitude as it’s often expressed. That may be family or friends or the ocean or an animal or a hobby or other people in your position etc. Many years ago I heard about a woman who became paralyzed when she dove into a lake in which she hit a rock. With her mouth she learned to paint. And she was very good at it. Humans get attached to things, but they can learn to love new things.
Hola Lili, te escribo en español porque me ha sorprendido encontrar tu canal y descubrir que vives en España. Yo fui diagnosticada en 2009, vivo en Barcelona y durante 10 años my trayectoria con la enfermedad fue horrible, un brote nuevo cada medio año y como tu las opciones de tratamiento me llenaban de miedo en especial por el futuro hasta que decidí que tenia que encontrar alguna mejora por mi misma pues en el sistema sanitario español no lo encontraba y por fortuna encontré un doctor aquí mismo en Barcelona con un tratamiento distinto. No tenia nada que perder, no tenia muchas esperanzas pero después de tener una consulta de mas de dos horas pensé que no tenia nada que perder, pues era un tratamiento extremadamente seguro y no podría haber notado un cambio mas grande e inmediato con la trayectoria de mi enfermedad. Por desgracia ni somos homogéneos y lo que sirve para uno puede que no sirva para otro pero si te interesa lo que me funcionó personalmente o tan solo quieres a alguien español para hablar de las frustraciones, la rabia y la injusticia de esta enfermedad no dudes en contactar conmigo. Un abrazo bien grande
Hola Ester, gracias por tu mensaje. Estoy en Orihuela Costa. Siento como no hay muchas opciones de tratamiento ni apoyo mental ni otras como yo. Me gustaría hablar más contigo. Puedes contactar conmigo por DM en instagram por ejemplo. Espero que estés bien y un abrazo fuerte. 🧡
Hola! Si, a mi también me gustaría seguir en contacto y poder contarte un poco mi aventura con esta enfermedad para si te sirve de algo. No tengo instagram pero he visto un correo electrónico tuyo así que te mandaré un mail y seguimos desde ahí si te parece bien, mucha fuerza guapa que he visto que no lo estás pasando nada bien
Oh, my dear. It does sound like a very bad attack. I would also recommend takiing something against your anxiety. Do you still take Lyrica (Pregabalin) as a muscle relaxant? I combine Lyrica with Floxetin (Prozac) and it works brilliantly. Anxiety is strong with you. Understandably. I send you love and energy.
I only took Lyrica for a very short period of time. It did not sit well with me. I have something new called baklofen and it’s to treat spasms. It works well and I take it before bed. Yes something to help with my anxiety when it gets bad would not be a bad idea. Thank you so much for all the love and same to you!!
Wow! This is shocking!! I am soooo sorry. I can only imagine how scary this must be for you! My first thought is that you might have what I have in terms of the steroids. I have developed an allergy to steroids. The first 5 days I feel fine and then I start having muscle spasms rapid heart rate dizzy and confused. I feel like I’m dying!! It took 10 days to get the steroids out of my system before I’m starting to feel normal again. I’m hoping you will start to feel better soon!!
Thankyou for sharing. I have something like what you have and I am having a bunch of tests done. Do you have an update since this video?Love and prayers
@@LiiBorossy naively l’m more scared of shaving my long hair off than the actual chemotherapy regime. I watched this story on 60 minutes in Australia and found it inspiring ua-cam.com/video/MwUgzuNQZWw/v-deo.htmlsi=krlOixrK2YYlhA-D
I wish I could. ❤️ I have considered going to Sweden (where I’m from) they are more advanced there when it comes to ms I believe. But that would be a very big decision to make.
That reminds me you’re better off staying positive. That means that no matter what you believe in yourself. My grandfather contracted polio after the war and was told he’d never walk again. He didn’t believe them. For some reason he had a strong belief in himself maybe an intuition he never really had an answer other than he didn’t believe that God had come this far to paralyze him. I’m not a believer and I don’t know that he was for certain as he wasn’t always and had had his doubts. Anyway one day a nurse found him face flat on the floor. You can picture her surprise it was shocking but funny at the same time. Because he was a stubborn man. A year later that man was walking again and throughout his life. With a cane, but by himself with a simple little cane that didn’t require much help for he did most of the work himself. It is true that perspective changes the way a person feels. Maybe start there. Everyone needs something to believe in and it should start with you believing in yourself.
@@LiiBorossy yes you MUST keep at the top of your mind that ‘feelings come and go.’ That’s all these do. That’s it, that’s all. Just as thoughts do. You can make it your life goal to rise above those. Didn’t I just see somewhere that ‘you are more than your thoughts.’ Thoughts are limited. Feelings are limited. Reach beyond that then as there’s surely more to discover about yourself.
Please please please ask them if maybe you’ve developed an allergy to the steroids!! What you’re describing- some of it, sounds like adverse reaction. It happened to me!!
Thank you for sharing this with me!!! You could see clearly in my video prior to this one a huge reaction in my face and body. I hate how I feel on steroids. But I hear it’s a “necessary evil”… not sure. 🤔
I feel like it’s all just up in the air.. and it’s up to me to educate myself on what rights I have and so on. We are doing more testing. Hopefully we can get some more answers.
Cut out all the crap food and Go keto/carnivore. There’s a lady in Spain who reversed her ms by going carnivore. God bless take a look and see if it helps 🙏🙏
My heart goes out to you. I was recently diagnosed as well and the grieving process takes a toll for sure. Being a mom also I can understand everything that you’re feeling. I don’t have the same level of disability as you with the exception of brain fog. A saw a therapist and it helped- being on SSRI is important - just as important as a good DMT. Be kind to yourself and give yourself some grace. You are going through a life changing period and having help is critical. Much love.
Thank you dear! And I’m so sorry you are going through this too. I hope you will find some comfort and peace from my videos. You are not alone. Much love 💕☺️
Oh Lii hugs to you!! Mental health counseling is a huge part of chronic illness. I understand the struggle of physical pain that people can’t see and that your whole life has changed. I PRAY FOR YOU!!!
Please get counseling. Depression is real
I’ve tried getting counseling through my GP but she told me that they don’t have that available currently… 🤯 looks like I would have to go private. It’s just not possible for me at the moment. I’m currently on sick leave and I only get 70% of my salary and it’s not enough as it is. 😔 Talking to you guys is my therapy at the moment. So thank you for taking the time to listen and share your thoughts with me. Much love
@@LiiBorossyI'm praying for you now 🙏
Stay strong, anxiety and stress will make your symptoms seem worse. I suggest you talk to your doctor about getting on an SSRI, I like Lexapro. Some relapses are worse than others. You are on a great treatment so I doubt it is SPMS but you need to get rest and try not to stress. I know it's hard but this is our life.
Yes, I’ve tried really hard to try managing my anxiety after coming home. It’s a lot of ups and downs I’m afraid but one day at the time..
Sending love and positivity to you 🙏🧡 We're all here with you.
Thank you! You guys are the best support 🧡
i have MS and was diagnosed 32 years ago. I never take steroids,even after having attacks that leave me unable to function much at all.I found that just resting and waiting for the attack to pass the best thing for my MS.Also eating a diet full of fruit and veg helps me get better quicker.You will get to know your MS and you will soon learn what helps you. The best thing you can do is look after your body by relaxing and meditation and also not pushing yourself too much. I find relapses are really bad for about 6 weeks,and then i start to get better,and by about 10 weeks i find,i am just about recoverd from the relapse. I have had relapses that have left me bed bound for many months but i have always got back to normal,in time.Its very frightening when you first get diagnosed,but you will find a way to cope and manage your MS.
I’m glad you have found what works best for you and thank you for sharing with me. For me, my body rarely recovers fully after an attack and that’s what’s so stressful and painful.
Oh bless you.. They frightened you with diagnosis and your body froze! Body recovers and you will get back to being able to do all the things you love to do. Please don't worry!
Let’s hope 🙏🏼🤞🏼🧡
Sending love and blessings 💚 hope you find relief. I have lived with MS since 21 am now 40. Would say the best thing I ever did was change my diet, stopped dairy and gluten, which helped so much I was in less pain straight away so could then start moving my body more, I stopped taking my prescribed medications and found the natural way much kinder to my body and my body responded very well to natural therapies, Accupuncture, massage, vitamins and minerals, diet and eventually exercise. Steroids never worked for my RRMS either just made me feel worse but buzzed and unable to rest or relax The human body is amazing and you can be well again and cure yourself from most dis-eases. Sending you lots of love and hugs 🤗 and hope you find health and wellness. 💚💚💚 please never accept that this is it now and how you will be forever, keep hope and faith you will find a way through this. Lots of hugs my love 🤗💚😮
I will not accept it. I will get better. I just have to believe that. 🙏🏼❤️
Dear Lii, sorry about what you are going through. I appreciate your authenticity and spreading awareness about MS and that you keep uploading videos even when you are feeling so unwell and in distress. The uncertainty and unpredictability of the illness must be overwhelming physically and mentally. I wish your symptoms to ease soon!!! Big bear hug to you ❤
Thank you for saying this and making me feel like I’m making a difference. I think you guys help me as well. Sending love your way
I’m sorry you’re going through this condition. Thank you for sharing take care.
Thank you for watching and being part of our little community here. Much love
I’m so sorry this has happened to you Lii 😢 I hope things get a little bit better soon! Please keep us all updated 🧡🧡
Thank you Sarah, I really hope so too. 🧡🙏🏼
@@LiiBorossy 🧡🧡
So sorry to hear this :( Stay strong - there is a good chance you can recover in the coming days / weeks. I have seen many videos of people who have also had walking issues and then made a miraculous recovery. Hoping and wishing you will also have a good recovery. Look after yourself, eat healthy, drink well, take time to relax if you can and hopefully the steroids will work their magic. Hoping for the best - lots of love
This is what I’m praying for. I’m really wanting to get back to rehab training to improve my mobility 🤞🏼
Hi Lii, I'm praying for you and sending love & lightness your way. So sorry to hear what you're experiencing. Thanks for being so brave and sharing this with us. I have a newly diagnosed dear friend, and perhaps it will help me understand her journey better. Peace & love to you.
Hi dear, I’m glad if my videos can help in any way. I’m sorry for your friend. Just know every MS journey is different but we all go through the same sadness and morn our former selves. Just be there for your friend and never give up on them. Much love ❤️
I am praying for you. For peace, pain relief and complete healing. I have psoriatic arthritis and it is awful. God bless us all and heal us from these diseases. 🙏❤️🙏
I pray for you too! ❤️
God bless you. Youre facing a lot. I hope the doctor can imorove things for you.
Thank you ❤️🙏🏼
I'm so sorry that you are going through this. I will pray for you. Stay strong ❤❤
Thank you so much 🙏🏼❤️
Thank you Lii for being real and true - you are so brave to share this. You spoke of things that I feel mentally and physically but am too afraid to admit. You are not asking for much - you just want to feel like yourself🧡and all of us with MS deserve to but we have to push through this obstacle. It is absolutely not fair. Don't you just want to slap people who are able to do things but don't because they are just being lazy😂
I have the exact leg feeling you described and always have on and off for 24 years - pain and numbness, so awful. I have trouble falling asleep each night because I fear I will wake up and not be able to walk.
You will feel better - give it time. Like me, you don't want to miss anything but allow yourself to take things slowly. Also those medications can mess with our heads. Once it all gets through your system, you will feel more positive too🧡Love, Lee
lol maybe sometimes 🤭
I sit in my house thinking of all the things I want but cannot do. But I know I will find a way. I just need time. Time to accept, recover, get all the medication out of my system…
What have you found that has helped you? 🧡
UA-cam thought I should see this video. I’m sending you all of my love and healing thoughts. 💜
Thank you so much! 😭❤️ I appreciate you taking the time to write me a comment.
Dear Lii. I’ve not been much on social media over the last 2 years. I miss seeing updates on you and the kids on your instagram. Ashton is doing well and has grown. I’m so saddened to get on here and see what has been going on with you health wise. My deepest sympathy and prayers go out to you. May the Lord fully restore your health. 🙏 Stay strong mama.
Thank you my friend! It’s been hard for sure. The kids are doing well. Héctor is suffering from some skin issues but hopefully we can get at proper treatment that works for him. 🙏🏼🤞🏼
Wish you strength at difficult times. My brother got MS when he was about 28 years. He was a sporty person before that, so surely was difficult. Now he is 56. He somehow learned to live with it and is always lively and smiles when we visit him - but surely he had his mourning days before I think. I am a christian, let me pray strength for you right now.
Thank you for sharing with me and I send love and hugs to you and your brother. 🧡
Keep the faith and hope. My partner died of ms i the 90s. We managed to get a combo van and my best friend and I drove him around europe in a combi van. Best thing we ever did. It gave him memories that gave him joy and hope. You don’t give up hope and you make goals that are authentic to you and then you make them happen. medical system is amazing but it’s about getting back to nature and and finding creating your dreams. Your life. it’s quality over adversity in life.
“Getting back to nature” resonates with me. I’m finding myself wanting to do just that more and more. ❤️
Thank you for sharing Lii. Best wishes for you, whatever your body does, you are still you. I understand the feeling in your legs and the pain, where you can feel the bones, but not the muscles, etc, as i have that. Be gentle with yourself and let yourself go through the emotions
I’m sorry that you are going through the same. It’s awful. We learn to adapt but excepting it I find it’s harder. Maybe I will get there one day. 🙏🏼❤️
I’m so sorry about this. Sending much love & positive energy from California ❤
Thank you dear❤️
Jag vet inte vad man ska säga Lii, det här är så fruktansvärt orättvist. Fruktansvärt läskigt. Jag är så ledsen att du upplever det såhär. Vad vi alla skulle göra för att fixa allting och gör det så att livet är normalt igen för dig 😓💔 I’m sending all the warmest, most positive thoughts up into the universe that this is temporary and that doctors discover what is going on and can reverse it. There must be a way, with modern medicine being what it is. Vi är här för dig 💛💛💛
That’s what we need to pray for. A cure. 🙏🏼❤️
I'm praying for you. I'm sorry this is happening.
Thank you 🙏🏼 I appreciate your prayers it means a lot to me ❤️
❤❤❤❤😟😟 Sending you alot of strength 💌
Thank you sweet Emilie ❤️
Can't get on your premiere but I'm here sending love and hugs🧡 I'll keep trying....
Thank you! 🧡
I also have MS. Diagnosed 9/12/1995. I use a scooter, beasy boards are easier to use to transfer, get grippers/reachers, shower bench, raised toilet seat with handles. All these help me feel better, doing more things for myself. (I haven't walked for years, been legally blind twice-steroids got my sight back) leg lift to help me get my legs into bed, sock aid . Look into all the items to help make your life better and feel better. God bless you.
I’m starting to look into the world of disability aids and I’m surprised by how many cool things are out there!
Take care my friend 🧡
@@LiiBorossy I just found a very cool neck fan on Amazon that is USB rechargeable. :)
@@LiiBorossy prayers for you and yours.
Stay strong beautiful Lii...oh sending you love and hugs😘
Thank you my friend 🧡🙏🏼
I cried with you 🥺 sending you a giant hug 🤗
Thank you ❤️ this video was definitely my lowest point yet.
All the hugs and love to you, Lii! I'm so sorry you are going through this. You are such a strong person, such a fighter, remember that.
Thank you my friend ❤️
This is my first time on this channel, stay strong i know it's not easy, because i leave in pain basically 24 hours a day, as I'm getting elder it's worse I'm 63 there's times I'm walking with a Walker or a cane, don't think negative you're so young, believe in yourself you're going to get better with GOD'S help but you need to be strong. Girl don't say you're not going to get better,i just feel your pain and feel like hugging you. Let's pray for the best. Blessings from Canada 😘😘😘😘😘😘
Thank you for your kind words. I try my best to think I will get better. I will never stop believing that it’s possible. I have 2 kids that need their mommy and I want to be able to do our normal things that we use to do. One day at the time.
Hi Lii!! This shall pass too!! You are a strong person! I don't know what to say but I want you to know that I feel for you! And I am sure you will find a way to deal with this too!!
Thank you ❤️ I appreciate it very much
Sending uou prayers and healing.
Thank you 🙏🏼
Aaaaawwww I wish I could take away your pain.I also have MS mine is secondary progressive now& I'm 54 had it since early 20s.I take so many tablets& have morphine patches.I can't walk very well& I use a scooter to get around.I walk a few steps.I can get tired all time& it's just so shitty.I won't give up though.Im praying for you & god bless you.xx
I’m so sorry! Are you on any DMT? Or have you stopped that? ❤️
Im MS patient, i live in Mexico and under Fingolimod treatment; be calm, and search in your late days what did you change in your routine and what you eat.
Hope you get any better
Thank you dear ❤️
I’m so sorry about the symptoms you are experiencing. Have they diagnosed you with RRMS or Progressive? I know the only medicine that really preserves walking is Ocrevus and also Rituxan (off-label). I was just diagnosed with MS a year ago tomorrow. Everything has gone horrible since then - and I have had 2 treatments of Rituxan. Steroids are really rough for me - and I can’t use them. I just subscribed to your channel - and I will be praying for you. Courage from Fresno, CA. ❤
Hi and welcome to our little family. 😊🧡I’m sorry you are going through this too. It can be really lonely but hopefully you can find a community here just like I did. You guys are just so uplifting and kind. Thank you ❤️
You can alleviate a lot of your suffering simply by not comparing yourself to what you don’t have and rather what you do have. Gratitude as it’s often expressed. That may be family or friends or the ocean or an animal or a hobby or other people in your position etc. Many years ago I heard about a woman who became paralyzed when she dove into a lake in which she hit a rock. With her mouth she learned to paint. And she was very good at it. Humans get attached to things, but they can learn to love new things.
❤️❤️❤️❤️
Praying 🙏 for you ❤
Thank you 🙏🏼❤️❤️
Hola Lili, te escribo en español porque me ha sorprendido encontrar tu canal y descubrir que vives en España. Yo fui diagnosticada en 2009, vivo en Barcelona y durante 10 años my trayectoria con la enfermedad fue horrible, un brote nuevo cada medio año y como tu las opciones de tratamiento me llenaban de miedo en especial por el futuro hasta que decidí que tenia que encontrar alguna mejora por mi misma pues en el sistema sanitario español no lo encontraba y por fortuna encontré un doctor aquí mismo en Barcelona con un tratamiento distinto. No tenia nada que perder, no tenia muchas esperanzas pero después de tener una consulta de mas de dos horas pensé que no tenia nada que perder, pues era un tratamiento extremadamente seguro y no podría haber notado un cambio mas grande e inmediato con la trayectoria de mi enfermedad. Por desgracia ni somos homogéneos y lo que sirve para uno puede que no sirva para otro pero si te interesa lo que me funcionó personalmente o tan solo quieres a alguien español para hablar de las frustraciones, la rabia y la injusticia de esta enfermedad no dudes en contactar conmigo. Un abrazo bien grande
Hola Ester, gracias por tu mensaje. Estoy en Orihuela Costa. Siento como no hay muchas opciones de tratamiento ni apoyo mental ni otras como yo. Me gustaría hablar más contigo. Puedes contactar conmigo por DM en instagram por ejemplo. Espero que estés bien y un abrazo fuerte. 🧡
Hola! Si, a mi también me gustaría seguir en contacto y poder contarte un poco mi aventura con esta enfermedad para si te sirve de algo. No tengo instagram pero he visto un correo electrónico tuyo así que te mandaré un mail y seguimos desde ahí si te parece bien, mucha fuerza guapa que he visto que no lo estás pasando nada bien
Oh, my dear. It does sound like a very bad attack. I would also recommend takiing something against your anxiety. Do you still take Lyrica (Pregabalin) as a muscle relaxant? I combine Lyrica with Floxetin (Prozac) and it works brilliantly. Anxiety is strong with you. Understandably. I send you love and energy.
I only took Lyrica for a very short period of time. It did not sit well with me. I have something new called baklofen and it’s to treat spasms. It works well and I take it before bed. Yes something to help with my anxiety when it gets bad would not be a bad idea. Thank you so much for all the love and same to you!!
Horrible but it can be soo much worse than this si be careful to be grateful for what you still have.
Absolutely 🙏🏼❤️
Wow! This is shocking!! I am soooo sorry. I can only imagine how scary this must be for you! My first thought is that you might have what I have in terms of the steroids. I have developed an allergy to steroids. The first 5 days I feel fine and then I start having muscle spasms rapid heart rate dizzy and confused. I feel like I’m dying!! It took 10 days to get the steroids out of my system before I’m starting to feel normal again. I’m hoping you will start to feel better soon!!
I’m about 3 days off the steroids now. We will see what happens.🤞🏼❤️
So courageous 👏👏
Thankyou for sharing. I have something like what you have and I am having a bunch of tests done. Do you have an update since this video?Love and prayers
Hi dear, I’m still very much in process of testing. We have a few things we are looking into. I promise I will update as soon as I know more. 🧡
Hopefully you will be able to enjoy your life again very soon, despite all of this
One day at the time. 🙏🏼❤️
Have you considered HSCT? It’s my back up plan. Give yourself time to heal, be kind to yourself and know that you are not alone. Sending you hugs 🤗
I’ve thought about it many time but it scares the life out of me.
Sending you love and strength
@@LiiBorossy naively l’m more scared of shaving my long hair off than the actual chemotherapy regime. I watched this story on 60 minutes in Australia and found it inspiring ua-cam.com/video/MwUgzuNQZWw/v-deo.htmlsi=krlOixrK2YYlhA-D
Jab side-effects?
I'm sorry this is happening, if possible come to the US and try the MS clinic in New York
I wish I could. ❤️ I have considered going to Sweden (where I’m from) they are more advanced there when it comes to ms I believe. But that would be a very big decision to make.
@@LiiBorossy I wish you nothing but the best ❤️
You have no idea how bad this could get so be careful about your thoughts...
❤😢
That reminds me you’re better off staying positive. That means that no matter what you believe in yourself. My grandfather contracted polio after the war and was told he’d never walk again. He didn’t believe them. For some reason he had a strong belief in himself maybe an intuition he never really had an answer other than he didn’t believe that God had come this far to paralyze him. I’m not a believer and I don’t know that he was for certain as he wasn’t always and had had his doubts. Anyway one day a nurse found him face flat on the floor. You can picture her surprise it was shocking but funny at the same time. Because he was a stubborn man. A year later that man was walking again and throughout his life. With a cane, but by himself with a simple little cane that didn’t require much help for he did most of the work himself. It is true that perspective changes the way a person feels. Maybe start there. Everyone needs something to believe in and it should start with you believing in yourself.
Thank you. Your message has a powerful message. I think we can change a lot by staying positive and believing that improvement is possible!! 💪🏼💪🏼🙏🏼🧡
@@LiiBorossy yes you MUST keep at the top of your mind that ‘feelings come and go.’ That’s all these do. That’s it, that’s all. Just as thoughts do. You can make it your life goal to rise above those. Didn’t I just see somewhere that ‘you are more than your thoughts.’ Thoughts are limited. Feelings are limited. Reach beyond that then as there’s surely more to discover about yourself.
I love you I love you I love you❤
I love you too ❤️
God watch over you and help you. In Jesus name!
Thank you and God bless you 🙏🏼❤️
Please please please ask them if maybe you’ve developed an allergy to the steroids!! What you’re describing- some of it, sounds like adverse reaction. It happened to me!!
Thank you for sharing this with me!!! You could see clearly in my video prior to this one a huge reaction in my face and body. I hate how I feel on steroids. But I hear it’s a “necessary evil”… not sure. 🤔
There is a lady on youtbe who went totally carnivore and her MS is gone
I’m glad she found something that works for her!
Hi Lil, can the neurologist not be more helpful to you. 😢
I feel like it’s all just up in the air.. and it’s up to me to educate myself on what rights I have and so on. We are doing more testing. Hopefully we can get some more answers.
Cut out all the crap food and Go keto/carnivore. There’s a lady in Spain who reversed her ms by going carnivore. God bless take a look and see if it helps 🙏🙏
Excellent advice
Thank you for your suggestions. God bless you too 🙏🏼
100% great advice I think start carnivore you can change to Keto at any time.
@@orbitingdecay6797 what a crock of shit diet has everything to do with health.
@@orbitingdecay6797 Your wrong diet has huge impact on health issues many reverse them with keto and carnivore and fasting.