How ALS Affects Breathing - Addressing Respiratory Changes in ALS - Video 1

Dr. Lou Libby, Pulmonologist at The Providence ALS Center at the Oregon Clinic, discusses the muscles we use to breathe, and the importance of having a care plan and a pulmonologist on your care team

[@karimjamal2762]

God bless you in your als journey

[@Sukhjeetworld]

My mother is suffering from MND ALS. she has difficulty in breathing . Her oxygen in blood goes below 85. Now we gave her oxygen with the help of oxygen concentrator.

[@timhuffmaster3588]

I’ve been newly diagnosed with ALS. I have, over two years, noticed that I have multiple periods each day that I’m not breathing. Once I’m aware that I’m essentially holding my breath involuntarily I have to consciously take a breath to get things started again. I do have complex central sleep apnea and OSA. I do use BiPap at night. Is daytime breath holding common in ALS?

[@sitsia3808]

Dont know

[@mriyke4719]

I am having same symptoms too exactly but I have not been diagnosed or buy Biap machine how are u now

[@Sukhjeetworld]

It's really very chronic desease

[@belindaweber9043]

You're very kind doc Jude Robert. You have given me reasons to live again. Thanks for reversing my als disease with your her bs. #drjuderobert

[@miriyalasivaji1918]

r u als patient?