Your feelings are absolutely valid! I do not have CF, but have friends who do. People with certain other illnesses have similar feelings to what you shared.
I can relate in a small way. I was born with Spina Bifida, (SB) and growing up, I didn’t t know anyone with SB over the age of 30. So, I grew up believing I would die by the time I was 30. As a result of that belief, I didn’t plan for my future. I told people I wanted to be a writer, which *has* always been my dream, but after taking five years to graduate high school (9th-12th grade), and *really* struggling my first year in college, I have been struggling with the idea of what to do with my future. Now, I’m past 30, and I feel paralyzed by fear. When I’ve tried to seriously work toward goals, I got sick. So now, I am terrified of the idea that here I am at almost 50, and I haven’t accomplished anything I had wanted to when I was a child, all because of my fear of it being yanked out from under me.
ahh this video was just perfection - so well thought out, so beautifully edited, thank you so much for creating such a balanced & sensitive commentary on Kaftrio & it’s effects !! I could relate to so much of what you were saying, it’s just sooo reassuring to hear other people voice these concerns too, just a massive thank you 💛 (also so happy for you & your boyf, & you being able to get into the gym again!!)
I started kaftrio with a lung function of 18% , and now I’m at 40’s, and with that comes my mental health and I’ve never felt so low in my life. I think because I’m in this limbo of not being well enough to work being well enough to live is so hard. And again I never planned this life. The door to this life has ALWAYS been locked and now it’s open and I’m to scared to even walk in. It’s so hard to explain to people how it feels. But surviving a life you didn’t plan for it’s the most terrifying thing. Kaftrio saved me but also leaving me with this depression & anxiety I’ve never experienced xx
I had and still get that depression, i live in a council flat and never thought about buying a house because of cf.... now they are moving drug addicts in my area and i worry so bad i will get one next door. I worry i will get burgled or mugged... life made hell by county lines dealers in my block..... kaftrio does bring up all sorts of thoughts. just keep going x
Fantastic documentary! I am glad you shared a perspective that would otherwise perhaps not have been heard. Change is scary, identity is complex, but life is always full of surprises.....💜
This was absolutely beautiful, so wonderfully done and thought out. Thank you so much for sharing your story. Your looking absolutely glowing and congratulations with uni. Have an amazing graduation. With love and hugs, Siobhan xx
This was so well done and I can relate to so many of the things you talked about, like the shock that came from realizing a longer life is now possible. I've wanted to make a video like this for a long time and I love the way you did yours, it's inspired me a lot.
Excellent video! It's hard hitting, honest and ends on a nice positive. I enjoyed it all. I'm honoured to be featured in it, my mum and dad will love watching this 🤣. You're fantastic. Keep crushing it!
I don’t know if you’ll remember me from our Becket form class but Bethin you’re beautiful!💕I wish you luck and sooo much happiness and love on this new journey and chapter! Keep smiling💕 You are an inspiration to so many people ✨
Cystic Fibrosis.. words that horrified me and My husband. I was diagnosed very late at 22. I'm 23 now. I've had a double lung transplant as well as a heart transplant (different condition) but I don't know of what I'm about to type will offend you and if it does I'm sorry. CF should bugger off.
Your feelings are absolutely valid! I do not have CF, but have friends who do. People with certain other illnesses have similar feelings to what you shared.
I can relate in a small way. I was born with Spina Bifida, (SB) and growing up, I didn’t t know anyone with SB over the age of 30. So, I grew up believing I would die by the time I was 30. As a result of that belief, I didn’t plan for my future. I told people I wanted to be a writer, which *has* always been my dream, but after taking five years to graduate high school (9th-12th grade), and *really* struggling my first year in college, I have been struggling with the idea of what to do with my future. Now, I’m past 30, and I feel paralyzed by fear. When I’ve tried to seriously work toward goals, I got sick. So now, I am terrified of the idea that here I am at almost 50, and I haven’t accomplished anything I had wanted to when I was a child, all because of my fear of it being yanked out from under me.
ahh this video was just perfection - so well thought out, so beautifully edited, thank you so much for creating such a balanced & sensitive commentary on Kaftrio & it’s effects !! I could relate to so much of what you were saying, it’s just sooo reassuring to hear other people voice these concerns too, just a massive thank you 💛 (also so happy for you & your boyf, & you being able to get into the gym again!!)
I started kaftrio with a lung function of 18% , and now I’m at 40’s, and with that comes my mental health and I’ve never felt so low in my life. I think because I’m in this limbo of not being well enough to work being well enough to live is so hard. And again I never planned this life. The door to this life has ALWAYS been locked and now it’s open and I’m to scared to even walk in. It’s so hard to explain to people how it feels. But surviving a life you didn’t plan for it’s the most terrifying thing. Kaftrio saved me but also leaving me with this depression & anxiety I’ve never experienced xx
I had and still get that depression, i live in a council flat and never thought about buying a house because of cf.... now they are moving drug addicts in my area and i worry so bad i will get one next door. I worry i will get burgled or mugged... life made hell by county lines dealers in my block..... kaftrio does bring up all sorts of thoughts. just keep going x
Fantastic documentary! I am glad you shared a perspective that would otherwise perhaps not have been heard. Change is scary, identity is complex, but life is always full of surprises.....💜
Amazing video. You deserve the world ❤️❤️
This was absolutely beautiful, so wonderfully done and thought out. Thank you so much for sharing your story. Your looking absolutely glowing and congratulations with uni. Have an amazing graduation. With love and hugs, Siobhan xx
This was so well done and I can relate to so many of the things you talked about, like the shock that came from realizing a longer life is now possible. I've wanted to make a video like this for a long time and I love the way you did yours, it's inspired me a lot.
Excellent video! It's hard hitting, honest and ends on a nice positive. I enjoyed it all. I'm honoured to be featured in it, my mum and dad will love watching this 🤣. You're fantastic. Keep crushing it!
I don’t know if you’ll remember me from our Becket form class but Bethin you’re beautiful!💕I wish you luck and sooo much happiness and love on this new journey and chapter! Keep smiling💕 You are an inspiration to so many people ✨
Amazing, especially the ending song, when’s it coming to Spotify and who’s the talented artist ?
Cystic Fibrosis.. words that horrified me and My husband. I was diagnosed very late at 22. I'm 23 now. I've had a double lung transplant as well as a heart transplant (different condition) but I don't know of what I'm about to type will offend you and if it does I'm sorry. CF should bugger off.
👨🏻⚕️ drop 1:44