Teen Living With Cystic Fibrosis

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  • Опубліковано 12 січ 2025

КОМЕНТАРІ • 98

  • @christopherantonio3612
    @christopherantonio3612 3 роки тому +38

    What a great family. Especially the mother. So much love and strength. Keep fighting OJ! Hopefully you have many more birthdays!

  • @martybob55
    @martybob55 3 роки тому +23

    Such a beautiful family. Thank you for sharing some of OJ journey with us. May he find a sense of peace and a few great friends in the coming years.

  • @oriaaspenalexander
    @oriaaspenalexander 3 роки тому +36

    I hope New Zealand gets access to Trikafta as soon as possible.

  • @SymphonyTaylor
    @SymphonyTaylor 3 роки тому +33

    I’m a type 1 diabetic, I know having that is completely different from being a diabetic but I sure can relate on having a disease that you have to take care for the rest of your life in order to live as long as you can. ☹️💯

    • @lydiaj7492
      @lydiaj7492 3 роки тому

      Hey, it's totally valid to compare the two, that way! Just bc yours isn't theoretically as bad, the end result is having to babysit an illness indefinitely.

    • @naomideziel
      @naomideziel 3 роки тому

      T1D gang hype! ❤

  • @josephsanangelo
    @josephsanangelo 3 роки тому +9

    What a wonderful family you have OJ. I was nuked before birth. My dad's brother worked at Bikini when they tested nuclear weapons there and then came home to visit my dad and see his first born while I was still in mom's womb. I've had many health problems but am still alive at 69. May you keep courage and love and hope alive and may all your family and yourself experience great miracles of healing and breakthroughs of science and God.

  • @olivedog1880
    @olivedog1880 3 роки тому +14

    I love of his family. Especially of his momma. She’s amazing. Family is everything. I hope OJ can live many, many more years with his friends and family. So hard to watch him coughing, this is a nasty disease. We need a cure.

  • @river8760
    @river8760 3 роки тому +12

    Great guy, going through a ton. Wishing him the best.

  • @The.Pickle
    @The.Pickle 3 роки тому +7

    Kia Ora OJ, You're a truly wonderful young man with such a wonderful family.

  • @rebareebs
    @rebareebs 3 роки тому +4

    I could watch a show about OJ and his family all day. Love them all ❤️

  • @Kalijourneymaldives
    @Kalijourneymaldives 3 роки тому +6

    OJ you are a miracle, a blessing, a beautiful soul.
    Thank you for sharing your story with us. Continue to strive beyond your targets.
    Sending love and healing energy to you xxx

  • @traceywakefield3883
    @traceywakefield3883 3 роки тому +3

    I know this wonderful family. So much love and compassion abounds in OJs life by all that know him.

  • @devangel3614
    @devangel3614 3 роки тому +8

    Please get him some TriKafta NZ, its cheaper than transplant, hospitalizations, meds over time and OJ and all with CF deserve a chance at life, a chance to go to school, have a job, a family, a life outside of hospitals, people staring at your coughing fits, for his mother to sleep through the night. PLEASE NZ, people with CF matter, its a death sentence and now there is chance to really LIVE and BREATHE

  • @pamelacrawford4105
    @pamelacrawford4105 3 роки тому +7

    Love this family! So much love for each other. Sending them all the love I have! 💕💕💕

  • @ericvonwiegen5672
    @ericvonwiegen5672 3 роки тому +36

    I would love to move to New Zealand I m disabled. It’s seem more accepting of the disabled people there. It’s beautiful there, not as stressful as America.

    • @lovingmayberry2000
      @lovingmayberry2000 3 роки тому +8

      Hi Eric, are you familiar with the UA-cam channel SBSK? Check it out. Very uplifting! 💙

    • @ericvonwiegen5672
      @ericvonwiegen5672 3 роки тому +1

      @@lovingmayberry2000 yea, I like that to.thanks

    • @HilaryIsOkayssss
      @HilaryIsOkayssss 3 роки тому

      @@lovingmayberry2000 yes, such a great challenge.

    • @HilaryIsOkayssss
      @HilaryIsOkayssss 3 роки тому +1

      Eric, I’m so sorry, and yes, I think America still has a LONG way to go in helping people with disabilities. My mom has MS and can’t walk and I’m her caregiver. It’s hard getting services and help for her.

    • @phoebemillion7796
      @phoebemillion7796 3 роки тому +4

      New Zealand is an amazing place. I hope you get to visit us some day :)

  • @Kalijourneymaldives
    @Kalijourneymaldives 3 роки тому +4

    A friend of mine has the same condition and she was informed to avoid mucous forming foods such as dairy.
    Her health has improved.

    • @emilycf1885
      @emilycf1885 2 роки тому +1

      Isnt this is a myth?
      I have cf and chose not to consume dairy for personal reasons, milk is a great source of calories for a person with cf !

  • @jaapkoppenaal
    @jaapkoppenaal 3 роки тому +2

    MAY GOD BLESS OJ DANIELS AND HIS MOTHER FOR HER GOOD HELPING HER LOVING SON 18 YEARS OLD WARM GREATS FROM THE NETHERLANDS WHIT LOVE XXX.

  • @emilycf1885
    @emilycf1885 2 роки тому +2

    Everyone deserves access to trikafta !
    It's so horrible that there's finally this chance for plcf to take their lives back but they don't have access to it !
    Sending love to you and your family !

  • @hellaSwankkyToo
    @hellaSwankkyToo 3 роки тому +3

    god, i relate so hard to age 18 meaning, ‘gotta learn to manage my illness in the following ways,’ instead of it meaning, ‘ID//DL//club//drinking//smoking//voting, etc.’ those things may or may not come - either way, that’s certainly not the priority or what’s at the top of our 18yo bucket list.
    i see you, OJ!
    you’re kicking ass when it comes to this life thing. you got this!
    keep up the great work. 🖤✊🏾

  • @susanmargaretwills6432
    @susanmargaretwills6432 3 роки тому +6

    Big Brother is a GREAT driving instructor - relaxed - OJ should just do what his brother tells him to do in the car & he'll get his license, & then he'll be driving in safety

  • @alexandermatthewsmusic
    @alexandermatthewsmusic 3 роки тому +2

    My auntie died of cancer a few years ago now... One day at her house on paku Hill in tairua I was visiting and an own flew into the lounge... I never new the meaning but I new it had a special one... Comforting to watch this

  • @angelusavila3832
    @angelusavila3832 3 роки тому +3

    He is a wonderful inspiration! God bless you and I will pray for you, beautiful souls!!!!

  • @JimDarr-hx8ld
    @JimDarr-hx8ld 7 місяців тому

    Awesome family. My grandson has CF n my prayers for a cure is for each n everyone with this horrid disease.

  • @xXUpFromFlamesJC
    @xXUpFromFlamesJC 3 роки тому +4

    you know his personality traits from early on make him a “ strong courageous warrior”

  • @JP-mn5iv
    @JP-mn5iv 3 роки тому +1

    I was born with a autoimmune disease called alpha one antitrypsin disease that affects the lungs and the liver. It’s genetic and my father and brother had it as well. My father was one of the first patients in the United States to receive a double lung transplant some 18 years ago in Denver Colorado. It added 2-3 years to his life and he passed away at the age of 44 in 2005. I am currently about 2 months from my 39th birthday and am on the mend from both covid and long covid. Life is good, and god is good. My prayers go out to all the people living everyday with debilitating conditions and the amazing drs who are helping them to find some normalcy.

  • @Jammi990
    @Jammi990 20 днів тому

    ❤️❤️❤️❤️❤️Thank you for this video and thank you Daniel for pushing everyday I have a chronic condition and you are a inspiration to me, god bless you and god bless your family ❤️❤️❤️

  • @jeniromero1949
    @jeniromero1949 3 роки тому +1

    Aww Happy Birthday 🎂 cutie. I was deeply touched by your story, and I'm so sorry for your loss of your sister. I have also been dealing with chronic illnesses for many year's, and know how tough it can be to fight with the Hospitals, and other things that goes with it. I pray for God's healing power to heal your body and to give you peace my dear. Take care of yourself sweetie.

  • @devangel3614
    @devangel3614 Рік тому

    I pray OJ is doing well and on Trikafta . His Mom is just crazy amazing. I have had RTs not do CPT as well as she does. She really gets what is needed to stay as healthy as possible with CF . Really super family.❤

  • @LondonHasFallin
    @LondonHasFallin 3 роки тому +2

    18:00 💔 When he said we all know
    I don't have much left. He truly is
    counting the days left.

    • @patriciamoscato6586
      @patriciamoscato6586 2 роки тому

      Isn't there a medicine now that can help u

    • @renitafayeboyd7972
      @renitafayeboyd7972 Рік тому

      My 2 year old has cf, while medication is amazing only half of the people with cf live past their life expectancy, medication unfortunately isn’t a cure it only helps manage the condition, the more bacterias you grow on your lungs through catching colds and other germs it causes lung damage, unfortunately you can’t reverse lung damage which results in transplant, some can be on the waiting list that long they either don’t make it or there not in decent health for the surgery and if you are able to have a transplant it only gives an extra 5-10 years without organ failure xxx

  • @kat.b.7287
    @kat.b.7287 3 роки тому +3

    Thank you for sharing your story. It helps others like learn about your challenges and educate us.

  • @FranzPartello
    @FranzPartello 3 роки тому +1

    Big love from Cali OJ never tap I will ride for you and I will never Tap I been on a wild trip with this CF , your a badass true solider! Give it your all till the day we fall🧬

  • @michellehitt1976
    @michellehitt1976 3 роки тому +3

    Thank you for sharing a piece of your journey. 🤟💞

  • @SpiritualBabe101
    @SpiritualBabe101 3 роки тому +3

    Hi OJ 👋 thank you for the education. I thought it was about bones 🤦 feeling ignorant rn, but thankful for the blessing of you and many like you. Kia ora whanau

    • @olliepeck4316
      @olliepeck4316 2 роки тому

      Cf is different in everybody, a interesting fact is that if you where to kiss a cf kid like on the forehead they are extremely salty because they excrete more salt then they should when they sweat. Cf is 1 in 1,000 and there’s about 70,000 people with cf world wide and about 30,000 only in the US. I have a brother with cf and he is doing very well right now that’s why I know quite a bit about cf.

  • @koinoniasmith3687
    @koinoniasmith3687 3 роки тому +1

    I went to school with OJ's brother, Derek. They are an amazing family.

  • @SundayBoy72
    @SundayBoy72 3 роки тому +2

    God bless you. Be strong. Thank you for sharing. Hugs.

  • @madeleiner559
    @madeleiner559 2 роки тому

    what a wonderful mother!

  • @jujulipz1365
    @jujulipz1365 3 роки тому +5

    They definitely need a gofundme to help get treatment!

  • @treywhite4186
    @treywhite4186 3 роки тому +4

    I can't believe Trikafta isn't available in NZ! How an those of us in America help?

  • @kaymilburn343
    @kaymilburn343 3 роки тому +1

    What a beautiful family 💖

  • @maryannhope8276
    @maryannhope8276 3 роки тому +1

    🙏⚘🙏 Blessings to you and your family.

  • @olliepeck4316
    @olliepeck4316 2 роки тому

    Thank you for sharing your story.

  • @jemimalamb78
    @jemimalamb78 3 роки тому +3

    What a beautiful Whanau😍🥰..

  • @smiley78410
    @smiley78410 3 роки тому +2

    OJ amazing man and has an amazing family. Understand how it feels I have a chronic illness that there is not any cure for. I hope New Zealands gets that drug soon

  • @raeperonneau4941
    @raeperonneau4941 3 роки тому +4

    What an amazing Mum, a beautiful young man, and an amazing family! What can we do to help him get the drugs that he needs?

  • @jedjones5406
    @jedjones5406 3 роки тому +2

    Beautiful loving family

  • @sharonyearsley6720
    @sharonyearsley6720 3 роки тому +3

    I have bronchiectasis. Its sometimes referred to as non cystic fibrosis. I'm in my second flare up in 3 months.

  • @gwendixon74
    @gwendixon74 3 роки тому +3

    wow didn't think thr trifacta would be that far away its a shame when u see so many on u tube doing so much better.

  • @dollfactory
    @dollfactory Рік тому

    Hope everyone is still doing well ❤️

  • @mareeweir1784
    @mareeweir1784 3 роки тому +5

    It is so cruel not to make trikafta available to those with CF

    • @keroclow9059
      @keroclow9059 3 роки тому +1

      What do you mean?

    • @joancottam6956
      @joancottam6956 3 роки тому +1

      Mary Frey takes it and she has CF. Given her a new life! It’s also like 25,000 a year or a month.

    • @river8760
      @river8760 3 роки тому +1

      @@joancottam6956 it’s 25,000 a month I think.

    • @olliepeck4316
      @olliepeck4316 2 роки тому

      It’s just harder to get some places yes its terrible that some people can’t have access to it but as of right now people are doing their best

  • @jedjones5406
    @jedjones5406 3 роки тому +2

    My heart goes to you all

  • @michiganmom857
    @michiganmom857 3 роки тому +9

    I fear for Derek’s health, at his size he is at great risk.

  • @sheilahendrix5935
    @sheilahendrix5935 2 роки тому +1

    May💙 God❤️ Be💛 With💜 everyone❤️ Always❤️ Much💜 Love Blessings❤️ Always ☺️ ✌️ 🙌 🎇 🌈 🙏 ☺️ 💯💙💙💙❤️❤️❤️💙💙💙❤️❤️❤️❤️

  • @KobieBurleigh
    @KobieBurleigh 3 роки тому +2

    My boyfriend and his sister have cf so i know the difficulties it causes

  • @SirGriefALot
    @SirGriefALot 3 роки тому +1

    I think those shoes are the OG Chicago 13's. Those came out in 2017 was this filmed back then? Hope he's doing OK.

  • @sarahdore7884
    @sarahdore7884 3 роки тому +1

    Do they not have Trikafta in NZ?

  • @animcmillan5240
    @animcmillan5240 3 роки тому +2

    Would one of those massage chairs help him

  • @lovecunningham5235
    @lovecunningham5235 3 роки тому +1

    I have a question without sounding rude here why the hell would you even bother having another baby knowing the first one had this fatal illness why? So many parents do have many and they end up having the samething and dieing young I just don't get it and do they think maybe the other one they make it will skip this fatal illness?

  • @jaapkoppenaal
    @jaapkoppenaal 3 роки тому +3

    MAY GOD HELP THIS YOUNG BOY CAN YOU GIVE ME YOUR ADDRES I SEND A POST CART TO HIM AND THE FAM THANKS GREATS JAAP THE NETHERLANDS.

  • @gwendixon74
    @gwendixon74 3 роки тому +2

    can he not use a vest for the pt

  • @jacquitomlins2759
    @jacquitomlins2759 2 роки тому

    I understand Trikafta is a game changer for the illness …

  • @Lisa-ev6lw
    @Lisa-ev6lw 3 роки тому +3

    🙏😪💔

  • @H4CK41D
    @H4CK41D 3 роки тому +2

    what area was this filmed? its a lovely place

    • @AttitudeLive
      @AttitudeLive  3 роки тому +2

      Our documentaries are filmed down in New Zealand. This one is Rotorua, it IS a lovely place you should visit!

  • @jemmoeller1246
    @jemmoeller1246 2 роки тому

    He looks like Cameron Boyce from The Descendants

  • @joancottam6956
    @joancottam6956 3 роки тому +1

    What about Triafica? Spelling?

    • @marleenhoncoop4188
      @marleenhoncoop4188 3 роки тому +1

      They said that In NZ it can take another 4 years before it’s available.

  • @elineff2791
    @elineff2791 2 роки тому

    the sister was really pretty

  • @DrCory48
    @DrCory48 2 роки тому

    a nice video

  • @lotus4487
    @lotus4487 3 роки тому +1

    Is OJ still alive? Is he well? This made me cry

  • @James-yx1bh
    @James-yx1bh 2 роки тому

    🕊😇🕊

  • @azukarzuchastux8066
    @azukarzuchastux8066 6 місяців тому +1

    1 Corinthians 15:3-4 KJV
    3 For what I received I passed on to you as of first importance that Christ died for our sins according to the Scriptures, that he was buried, that he was raised on the third day according to the Scriptures
    John 3:16
    16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life
    Ephesians 2:8-9
    8 For by grace are ye saved through faith; and that not of yourselves: it is the gift of God:
    9 Not of works, lest any man should boast
    ROMANS 10:13
    For “whosoever shall call upon the name of the Lord shall be saved.”
    
Acts 2:38 - Then Peter said unto them, Repent, and be baptized every one of you in the name of Jesus Christ for the remission of sins, and ye shall receive the gift of the Holy Ghost

  • @chicajato
    @chicajato 3 роки тому +1

    😻😻😻😻😻

  • @zeldadesantiago6974
    @zeldadesantiago6974 3 роки тому

    Wow

  • @jedjones5406
    @jedjones5406 3 роки тому +1

    Lasagna is one of my favourites

  • @pablodejesus1373
    @pablodejesus1373 3 роки тому +1

    Hello guy