diopathic is right !! Don't know sh.t ! Fought with this for 3 years.... MY CURE... 2 shots 80 proof every morning,,, first thing,, empty stomach. And I swore off all drinking years before it hit. I killed the neuralgia,,, dead,, in 5 days. Cheap and easy fix for an awful affliction. It was one of 100 shots in the dark I tried,,,, THAT WORKED !. I keep a bottle in pantry ,,,, just in case it reemerges. Jim Beam saved; me.
A Sonicare toothbrush at least 1-1.5 minutes every day has saved my sanity. When using this toothbrush I can go a year without pain. Any episodes last a week or 2. It takes about two weeks of consistant use to get relief, so you have to power through the pain for that time. Diagnosed in my late 30s, stopped trying meds when I had a bad skin reaction to oxcarbazepine. Also they Autoimmune Protocol for nutrition and lifestyle to reduce overall inflammation in your body. Additional Note about toothbrush: for me, if I have a flare up, I use the toothbrush to massage my face (both sides, not just the side with TN pain), making sure to get the whole area from eye brow to jawline and nose to ear. No more than 1-2 min in am and pm. This has been working for me for almost 8 years.
Benzocane based gel, (oral tooth gel) e.g. 20% oragel is very helpful, it doesn't last too long when you have realy long periods of pain, but putting it right at the back of the hinge of the jaw on the side that has an issue can cause short term relief for severe pain
Thank you thank you thank you!!!! My face has been in throbbing pain the last 2 days worse than ever. I’ve had moments where I was in constant pain for 2 weeks but never this bad. I started tapping on my cheek after reading this and it took a lot a bunch of pain. It’s still there but it has taken the edge off. Tomorrow I’m buying a electric tooth brush so I can really massage the area properly. I’ve yet to see a doctor but at least now I know I can survive until I get a date and time to see one. Thank you so much for sharing this information.
God bless you for sharing this ! I just started noticing this pain 2 weeks ago. Luckily I have a Sonicare and just massage my whole face! Look forward to seeing the results !
I also had kind of simptom. I'm using Carbamazepine and it make my body to a state of relax. My condition is ok for now but I can still feal the pain just for a moment when I'm eating or when it's getting cold.
I have pain from the top of my head around both foreheads Jaws chin, collarbone. This pain last 3 hours or longer. At least I know there's an end or I don't know what I would do. I have other variables like a benign tumor at the end of my tongue that might be pressing on a nerve... Fibromyalgia, at dinner time death in my neck, and I guess cranial on pain
My experience of TN involved pain when I ate, talked and blew my nose. I was diagnosed with TN about three years ago by my gp. Specialists at the hospital thought it might be Temperomandibular Joint Disfunction (TMD or TMJ) though. One of them recently tested this and anaesthetised the nerve by injecting into my gums on the side of the face where the problem was. As soon as he did this, the tingling/little electric shock sensations I was experiencing when talking to him went away. I've now been prescribed Tegretol (carbamazapine). I'm not too happy about taking the tablets, but will do so for now until I make further enquiries about any surgical procedures that may be available. I live in the UK.
@@ianjoe1678 Mine comes and goes and hopefully yours will too. I've come off the tablets now, and, to be honest, I don't think I will ever take them again because I don't like the side effects. It's a bit sore this morning, but there's no tingling or little electric shocks. I'm finding the cold or damp in the air can make it worse. If you can cope with the discomfort until it goes away, you might be okay.
Mine happens suddenly when I'm sleeping. I get a cramp in my neck then before I even have time to react it feels as if the right side of my face has been smashed in with a baseball bat. I've been told many times that the nerves in my neck aren't connected to the nerves in my face so I don't understand why my neck triggers my TN. When I massage my neck, if I hit that nerve on the right side just under the base of my skull it cases a TN flare up.
See a neurologist for TN. I was put on gabepentin & prednisone if your primary dr can help with medication. It started with a chipped infected tooth that was pulled. My dentist took x-rays found nothing. I have a numb left face, twitches, eye pain coming from my neck stenosis. Physical therapy was suggested. Pinched inflamed nerve from my neck. Improving after 4 months.
I hope you feel better than before becareful of gabapentin and Prednisone steroids, it will get better try to eat better and slow down jaw and neck , what helps me is an antibiotic not amox or amoxicillin clav something stronger , it does has something to do with the mouth and there are a lot of nerves in around face that teeth and gums do , I use a hand massager and massage my face head neck every where massage it helps a lot alot , and not chew as much I have tmj it's terrible, so I try to not overdo jaw movements by chewing tough meats or fruit veggies, also tendonitis is terrible too the Nevers get affected, I hope u are doing ok
Thank you, I have this, but I didn't know what it was, it just started and I saw my doctor and he couldn't figure it out. I'm over 50, and it started like 3-4 weeks ago. It happens at least once or twice a day now.
I also had trigeminal neuralgia ..extreme pain in my left jawline...i used vit b complex in earlier phase abd massage over temporomandibular joint and i feel so relaxed😊
I have Trigeminal Neuralgia the pain is so awful. I've found extreme heat from a heating pad helps and upping my neuropathy meds. Thank you for the info the compression is very interesting because I have vasculitis. It's been always assumed related to my Lupus, RA, neuropathy. Thank you.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
@@raniqueblackman8096 the best way I've always explained the pain is to imagine the worst ear ache, toothache in every tooth on one side and a bad sinus infection all at the same time. The pain around my eye and sinus is always the last thing that starts but I can control that a little better because I start with upping my Lyrica and Cymbalta and the heating pad before it starts or gets to bad.
@@karensutherland9142 oh no I Haye your going through this thank you you are so kind I normally don't comment but I'm glad I did I was born without a neck curve and my lower back is fused the ear ache never put it together it happened all last night my jaw and lower teeth I also get shocks in my eye you are in my prayers for healing thank you again Ms. Karen enjoy the rest of your weekend and I pray it's pain free take care!😊
I'm so sorry. I'm 27 and I think I'm having the prodromes. I hope there will be a good solution fitting for everyone/multiple good solutions for different causes ❤
diopathic is right !! Don't know sh.t ! Fought with this for 3 years.... MY CURE... 2 shots 80 proof every morning,,, first thing,, empty stomach. And I swore off all drinking years before it hit. I killed the neuralgia,,, dead,, in 5 days. Cheap and easy fix for an awful affliction. It was one of 100 shots in the dark I tried,,,, THAT WORKED !. I keep a bottle in pantry ,,,, just in case it reemerges. Jim Beam saved; me.
I live in a small village in the northern part of Sweden. And got this knife stabbing pain and was absolutely sure it was a tooth. Two weeks prior to this, I had my tooths checked by a dentist, so I called her and got an appointment. She examined me again and took some new x-ray images but ruled out problems with my tooth. She was almost sure it was neurological and told me to get an appointment at our health care centre in our village. The doctor was almost sur it was Trigeminal neuralgia so I got Pregabalin (what it's called in Sweden) and it helped. But after a while, I had to increase the dose, and then when I had my blood tested, they said that I couldn't increase the dose anymore. So I was sent to a neuro specialist who gave me 3 options. 1 continue with medication (which I didn't want. By this time, occasionally, my fingers would twitch because of the medication) 2 they could push a needle to the trigeminus nerve and with a balloon squeeze the nerv so it more or less died. This could fix the pain for a couple of weeks to up to 10 years. 3 They could make a microvascular decompression. Where they drilled a 1 Inc hole in my neck and then put some Teflon padding between the nerve and a blood vessel. I went for the third option. And after that, I've been out of pain for 4 years. That surgery did cost me something like 70 usd (or in Swedish 700 kronor), but that was not for my medical treatment it was for the cost of having a bed and the food while I was at the hospital. Yes, we have high taxes here but I won't complain about that.
Do you wear a mouth guard at night? I was told I clench and this is most likely what caused my issue. I too have a stabbing tooth pain. They seem to be getting more intense😢
@alexndannycasillas5526 Yes I wear a mouth guard at night. But the reason for my trigeminus neuralgia more likely came from when I fell and hit my neck at work.
I had pain in a tooth area that floored me. I pulled at my teeth and it did not cause or do anything. pushed and pulled my teeth. It just happened one night and was horrible. Now I had pain under jaw and it takes away my ability to speak.
I find it intriguing that you didn’t mention chiropractic or biofeedback as a therapy. I found this information on an MD site, even though these two modalities were listed at the very bottom. For me, and I’m not suggesting anything to anyone, I have found that chiropractic works best for my condition. Apparently the cause for me was a structural problem which could be alleviated by such, although I’m not recommending it.
@@Chs3__1234 I have scoliosis and was in a motorcycle accident at a young age, landing on the side of my face. I tried biofeedback and it didn’t work either. Only when I have a chiro adjustment as well as laser therapy does the problem resolve.
شكرا لحضرتك ع المعلومات كأن الشرح فقط للدكاترة من متابعتي لهذا الفيديوا حاولت افهم بعض المعلومات والتوضيحات اعاني من هذا المرض الم لا يوصف في الآن عمري٦٩عاما
Have you thought that chronic sinusitis causes this? Inflamation in sinuses? Solty water drops cleaning of the sinuses is one of the best handlings I tried, comparable to no other in its effectiveness and without use of drugs, also cheap and always available
I too have chronic sinusitis and tonsillitis problem since the age of 7 but now I am having this new problem of neuralgia I think may be this is due to sinus
Hey, my mom has issues with sinuses, and recently discovered she had Trigeminal Neuralgia. We are treating both with medications. What is solty water drops and how does it work? Thanks!
i’m glad you got diagnosed. welcome to the club lmao. i got diagnosed with MS when i was 16 and i found out, i have a higher chance of developing this. i’m 20 and i have TN as well. all of it sucks
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
You need medications or the very last, an operation. The pain will not stop and will start appearing more frequently. Check it out with a Neurolog and he might suggest doing an MRI.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
My brother has had TM for the last 14 years. He is suffering from pain all day and night. He had the procedure where they suck something from his face, put the camera in the nerve from the face. And give electric shock. It's a very painful procedure. Also he has been taking medicine ( tegoral, gabix or lalap ) for almost 7 years but he still suffers from pain. We are very worried about him.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
@@Thisguy2736he should be fine? Have you tried living your normal life with severe sudden onset pain? It’s excruciating and can debilitate your entire life. I’ve been dealing with something very similar for the last 4 months. 35 years old, healthy, worked out, ate healthy, etc. All the sudden I started having extreme pains in different areas of my body and most recently jolts of extreme nerve pain into random teeth. Unless you have been there don’t say it’s not a big deal bc it is. A lot of the ways to get rid of the pain are really bad for you like using opioids and stuff like that.
I have trigeminal neuralgia due to a botched surgery at age 18 to remove an eye. The surgeon hit the trigeminal nerve and it is excruciating. Only one medication has ever helped and if I don’t get it I cannot think or function. It’s from the left orbit working out towards the nasal area, and then the head itself.
I go Tuesday to see doctor it will make you cry as if you were in childbirth and I almost died outer body experience no one could hear me I kept telling my mom and both of my sisters that I could hear them
Thank you so much I just found out I have this. I was in the emergency room in two states, my primary care, and oral surgeon. Now I have to go to a neurologist. They all think that’s the best place for me.
i turned 14 march of this year and i had this horrible pain since June of 2021, it’s on the left side of my face and sometimes goes and comes. i’m so scared because i don’t know how to fix this, no meds help me and when an mri was done, they found nothing. it hurts most when i’m in a mask for a long time because of the heat. this is rlly a suicide disease
I'm with you pain on left a side of my face for a year. I'm going through tmj treatment but it's still bothering me. Stay strong man we can do this together. Ill keep you updated
Please try Gelsemium C 1000. It is a homôopathig medicine, no side effects and very powerful. Take 7 Globuli and wait. See a homôopathig working doctor.
I FEEL YOU ON THAT - this def can make one question suicide im in so much pain that i yell at people,when they use blender or are yelling as my whole face already hurts with my ear 👂 nobody else knows how it feels so its really annoying when people ask me why i dont want to,run or eat or SLEEP or SLEEP at different times bc all,i can do,ia take what i can get like the other day I prayed all day all I got was 20 minutes pain free but it was PAIN FREE from 906pm til 926pm I was so happy then,it came back,and I cried all,over
i hope you all feel better, i’ve noticed that stress actually could take a toll on this pain which rlly sucks. idk if you’ve tried this but try using a towel with hot or cold water on it and see if it relieves the pain, for me cold water worked best but for some it’s different. but be careful because it might trigger it more. also try to not touch and massage the area too much as it sort of awakes the beast😭 massages definitely feel relieving but i’m afraid that it could actually cause more pain. this might sound kinda dumb but if u know the movie venom, i kind of accepted this thing as a venom in me. the pain right now for me is veryyy minimal and i’m really grateful, for me it was just to be patient and wait. i really wish you the best results in your treatment because i rlly think no one should go through this 😕
I recently spent the entire 24 hours in the emergency room with no answers. Literally crying the whole time due to the severe pain. I also have multiples sclerosis and am 45 years old.
This happen to me now I am 44 now been suffer for few years and I also pulled my 2 wisdom tooth because I was thought Is because the toothache even after pulled and even went for surgical gor the tooth I still feel the pain for long until Dr confirm that I have TN this is real nightmare for me i can’t stand the pain anymore 😢
I have TN, but I also have Ehlers-Danlos Syndrome as the primary contributor to many of my conditions. With that said, a combination of Valium, Oxcarbazepine, Methylprednisolone, keeps things at bay, and if I have to go to the ER, morphine is introduced to assist the other medications. It's scary and frustrating dealing with TN
I have pain in my right side face when I go in cold temperatures like fan air AC outside cold temperatures..pain started...but when I get worm air from any heater then I feel okay...I don't know what is the problem
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
IMO it is stemming from Cervical Instabilities. The Atlas /Axis Vertebrae pinching the Vagus Nerve will Yield Havoc to the branch nerves . TMJ , Tinnitus, Lightheadedness, Sinusitis... and lots more . When my cervical issues from disc herniations, Military Neck from Forward Head Posture (commuted by car for 48 Years), DDD in the discs, and C4-C7 issues inflames the Occipital areas of the neck into the face. Even My teeth / cheeks hurt and causes left eye twitches. Info at Caring Medical YT Channel has enlightened me about the gravity and effects of Cervical Instabilities affecting the Vagus Nerve. .
ive spent a lot of money for dentists, nothing helped, root canal treatment , x-rays etc. They've told me that my teeth are good. Than i found this video and I'm afraid it might be a TN...
Same as me. Definitely it sounds TN Thanks for the information in the video. Used to be on baclofen post kidney transplant and when I stopped it's flaring up now and the pain is unbearable
See a neurologist for TN. I was put on gabepentin & prednisone if your primary dr can help with medication. It started with a chipped infected tooth that was pulled. My dentist took x-rays found nothing. I have a numb left face, twitches, eye pain coming from my neck stenosis. Physical therapy was suggested. Pinched inflamed nerve. Improving after 4 months.
I have facial pain..cheek pain. Jaw hang. Pain around eyes. Forehead pain. Eye squinting. I have chronic sinus too. What specialist doctor should I go to???
@@shelongreene7619 7 days went by with pain i started visiting dentists and doctors, 2 specialists diagnosed neuralgia trigeminus. i received a cocktail trough a needle right under/inside my chekbone (i was desperate becuase the pain was constant) one day after that an abscess formed above the tooth i treated right before i went on holiday turns out the dentist infected my rootcanal during the tretment, i let them clean everything and the pain went away.
When would surgery be indicated if patient has been suffering for many years off and on. And my episodes last several days in length. Upping my Lyrica and Cymbalta seem to help but mostly I'm stuck laying on a heating pad in bed a minute or two off and pain comes immediately back.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
I have this. It’s a allergic reaction. It’s caused by mast cell activation disease. I take lyrica, Zyrtec, Montelukast, and Metformin. It takes up to 8 weeks for mast cells to turn over. My reactions are decreasing in severity. I don’t have a blood vessel on top of any nerves.
My mother suffered from this and I fear I might suffer from this as well... My pain tolerance is extremely high, or moreso, my perception of pain is somewhat distorted, so I'm not sure though. It's hard to find if its actually a hereditary disease
I have tn. The pain is on another level. It's worse then having a combination of the worse tooth ache ever with sinus burning and pressure in and around my ear and face. This episode has lasted 6 weeks this time and I'm taking prednisolone for it. It stops the pain being unbearable but still pretty shocking to be honest. I'm managing to work but only just. My mum and dad didn't have it but my mum did suffer terrible migraines when I was a child. I belive mine came from a previous injury as a teenager although it never raised its head till I was 43. Good luck and don't worry because its rare and very unlikely hereditary
Got pain on left jaw, spreading all over left face. I got no issues with chewing or talking, but pressure just stays there n about. I experience shooting pain few times a day. There are no signs of inflammation. I had root canal few months back n pain started few days back. I have to take painkillers to sleep at night for last 1 week. I'm a college student n now a bit confused bout this thing.
Can anyone shed some light on the following. Facial pain from ear, cheekbones, eyebrows bone, side of upper jaw. The pain is mild, comes and goes for weeks. Pain is not intense or electric type pain.
@@jonathanryan5828 so at the time I’ve never done any drugs besides smoking about a few times in my life. I told my friend what I was going through. I was 2 months in with cluster headaches, 3 hour episodes and about 4-6 times a day. He told me that he saw an episode of drugs inc, you can actually find it on UA-cam “drugs inc magic mushrooms cluster headaches”. I saw the video and felt “well what do i have to lose” I bought an 8th for $30. Split it with my friend and tripped for 6hrs while my gf at the time watched over me.
I have severe bilateral dengerative jaw joints disorder . And I'm 100% sure it is causing this. The pain is severe and absolutely renders me. My maxillofacial surgeons don't understand this and I'm still only just taking paracetamol ! I'm not on any heavy duty pain meds. I work and have a 7 year old and when these attacks happen (I had one this morning ) i genuinely feel like jumping out of a window . Does anyone have any recommendations for natural pain meds ?! I used heat if needs be but that's not doing as well as before and it leaves my face feeling numb . I'm struggling a lot :( my maxillofacial is refusing a double jaw joint replacement due to mw only being 29 so I'm out of options I think :(
I have Keratitis Dendritic disease, aka Herpedic Eye (herpes simplex type 1). I already had 5 epiosdes of these ulcers in my eye, and I have have medicatiom to keep it dormante for longer time. But since I work with kids, I can get sick often and sometimes if I get fever, it can trigger this. Needless to say, this virus lives exactly in the trigeminal nerve and it has damaged my tear glands, causing dry eye syndrome. And even dry mouth now. I get epioses of Trigeminal nerve pain on the side of my face,nose and upper gums area. It feels like electrical shocking pain and the pain can migrate to the side of your head. It feels horrible. Not sure if this can also trigger Sjogren's Disease but I feel like I have sympotms. In conclusion to all of this, I got this eye problem during 2020 when Covid was declaired official en the U.S. I still worked at the time, I got really sick, had high fever off and on for 3 days. Didn't know what it was. There was no Covid testing at the time and I felt like I had a foreign object in my eye and sunlight would hurt so so bad. And long story short, that is how it all started and how I was diagnost with Keratitis Disease. Now I have to get evaluated with a specialist in this disease to get a 3 opinion because I already had too many episodes.
Does this condition provoke electrical shocks to the head? I got one powerful shock to my head that knocked my down on the floor and made me dizzy for days after.
well I had a stage 4 cancer of the trigeminal nerve I've been suffering for 2 years I didn't know I had I was going to the dentist well I had to get chemo radiation because it went to the base of my brain I'm in a lot of pain can't do nothing can't drive it's a very hard life
Hi why can I do in the meantime to reduce my pain and discomfort whilst waiting to see neurologist? Not currently receiving treatment. I believe I have compression of trigeminal nerve including spasms. Any home remedies like please help
I’ve been diagnosed this kind of illness about 6 weeks ago and the doctor prescribed tegretol 200mg twice a day to me but the point is that medicine didn’t help with the pain at all and it makes my symptoms get more worse! I’ve told my doctor about that problem but he still ask me to continue using that medicine. I’m so stressed because every time I take that medicine my pain, numbness and tingling get more worse. 😢 should I go to find the treatment with another doctor? I live alone so I don’t have anybody to discuss with. Please anybody help me. I could not bare with the pain anymore. It’s destroying my life 😔
there are also some solutions by operation, although for some people not permanent, it can be pain free for a couple of years at least. Depending on the operation method.
Hi, I have been feeling the same symptoms for 5 weeks now. I have visited 3 doctors so far and been taking the same medicines. If you wanna talk, I am right here. We can even share results to find a quicker way to get rid of this pain.
@@lot.bajrami thanks for your comment. now I stop taking that medicine I've mentioned above for 1 month already. yes! the pain, numbness and tingling still hit me everyday but it's not so bad, so I can manage with it.
Is like you are passing the same situation iam into. I have tried many doctors but still no solution. It was a friend pharmacist that recommended me Alprazolam(xanar) 1 mg a day. The medication help me to calm the pain and you feel normal like a human. I take 1mg everyday and it control the pain the whole day. Now Ian reducing to 0.5 mg. A doctor told me is not a long term use medication bit i really don't care provided it is given Mr pain relieve that I want. I take green tea to detox my body. When people don't know the gravity of pain people who have this condition pass through, they will tell you all sort of things. Don't use this , use this, avoid this. I am now interested on what give me pain free any day I took it than what doctors said. If doctors can't find the solution, then i should go for what helps. I have used lyrica, pregabalin 150mg and it makes my situation worst. But this Alprazolam is given me relieved everyday. How I calmed my nerve i don't know but it does
what if i have 24/7 pain for like 7 years? my upper teeth all hurt, face hurts, jaw muscles hurt, eyes hurt and they hurt more when seeing light. Ive been goiong to doctors so much but still they cant decide either its trimeninal nerve or not.
I wake up to my face and right side of my neck completely numb then I move a little bit and i can feel it like slowly unumbing then I'll wake up with excrutiating pain in my riggt side of the face and my ear 👂 always feels full like,im underwater, got water in it on an airplane etc it feels like someone is stabbing me in the ear with a pencil
I'm wondering if this is what I have.. I have a strange skin pulling feeling on one side of my cheek. It's so strange almost like I can hear the pulling of the skin, or like nerves are being popped in that section.. lasts for about 30msecomds then goes but that area can stay tender if touched.
i used CBD heavy as you can find and combo naproxen or similiar its inflamaition and your reflexes, head i dunno im not a doctor lol...cbd and naproxen i found worked for me, if it did for anyone else let me know!
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 .., I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
It hurts pls help I’m only 11 I wanna tell my parents but I have school and it’s night idk what to do it hurts so much is there anything I can do at home to stop the pain
I'm having ongoing severe pain and numbness in my forehead face, jaw and scalp. I've had MRIs and all they say is a couple minor bulging discs .. does anyone know if anything besides ms can cause this? The shooting pain in the back if my head is like an electric shock and then burning. I'm getting to the end of my rope here lolol
Does it cause a sense of dizzines mu pain is concentrateed in opthalmic area as well as the ears it is a burning senasation but the worst is feeling dizzy esp. if i look at mobile or computer
Hey fellas, how is you experience with this? I’m worried that I have it because yesterday out of nowhere got pain as it is described. Electric pain in the face. Like in the jaw below the ear.
@@dejectedsnow4127 it's likely your wisdom teeth!! That's what it ended up being for me and haven't got them out yet but the feeling left after one week
I was suffering this TN its starting from ny right face from tooth to shooting from head soooooo much pain i feel ..it was hard do have just like you can't eat coz it too painful even my sleep is affected coz you never know when its attacking its like electricity thats flow on my half face under the right nose ro my gums to head ...its affecting my emotions you cant even smile ir laugh,you can't talk in properly 😢.TN it is likes killing me softly 😢😢😢
Can anyone in these comments help me plz I got an apointment on jan 20th but im in so much pain every strong meds ain't touching me and im on the brink of suicide.
There is some evidence that Vitamin B-12 can reduce the pain of Trigeminal Neuralgia in some people. (Search on Google Scholar.) Generally, the preferred form of Vitamin B-12 is Methylcobalamin in sublingual Lozenge form. (Not cyanocobalamin). I use KAL brand, a combination of Methylcobalamin and Adenosylcobalamin, at a dosage of 2,000 micrograms per Lozenge. The Lozenge is very small. (Other brands are fine too.) Vitamin B-12 helps to repair the myelin sheath of nerves. It will take weeks, at least, to see improvement (if it does help). Meanwhile, consider calling a nurseline (if your insurance provides one) or, if things are unbearable, visiting the ER. If there's any chance your pain could be from an infected tooth, don't ignore that. I'm Not a medical professional and this isn't medical advice.
I'm suffering at the moment it came on suddenly today feels like getting hit hard, with an ice pick just in one spot in front of my ear, its been on and off for hours it comes on suddenly of course there's an OOUCH or an OH S***. Its not funny and its not a headache. No wonder its called the "suicide head pain". ❤
I've heard this....sucks big time.
Hope all you sufferers get well
I have this condition and take one of those medications. Mine is getting worse. 😩😩 Bless anyone going thru this
hi! how are you doing?
Me to they have me on meds and it doesn't help.
I had the occipital version, took meds … went away for 4 months, now it returned near my jaw this time…
diopathic is right !! Don't know sh.t ! Fought with this for 3 years.... MY CURE... 2 shots 80 proof every morning,,, first thing,, empty stomach. And I swore off all drinking years before it hit. I killed the neuralgia,,, dead,, in 5 days. Cheap and easy fix for an awful affliction. It was one of 100 shots in the dark I tried,,,, THAT WORKED !. I keep a bottle in pantry ,,,, just in case it reemerges. Jim Beam saved; me.
Look me guys,got a solution. Don't die in pain of medications are also disturbing with side effects
A Sonicare toothbrush at least 1-1.5 minutes every day has saved my sanity. When using this toothbrush I can go a year without pain. Any episodes last a week or 2. It takes about two weeks of consistant use to get relief, so you have to power through the pain for that time. Diagnosed in my late 30s, stopped trying meds when I had a bad skin reaction to oxcarbazepine. Also they Autoimmune Protocol for nutrition and lifestyle to reduce overall inflammation in your body.
Additional Note about toothbrush: for me, if I have a flare up, I use the toothbrush to massage my face (both sides, not just the side with TN pain), making sure to get the whole area from eye brow to jawline and nose to ear. No more than 1-2 min in am and pm. This has been working for me for almost 8 years.
Benzocane based gel, (oral tooth gel) e.g. 20% oragel is very helpful, it doesn't last too long when you have realy long periods of pain, but putting it right at the back of the hinge of the jaw on the side that has an issue can cause short term relief for severe pain
Thank you thank you thank you!!!! My face has been in throbbing pain the last 2 days worse than ever. I’ve had moments where I was in constant pain for 2 weeks but never this bad. I started tapping on my cheek after reading this and it took a lot a bunch of pain. It’s still there but it has taken the edge off. Tomorrow I’m buying a electric tooth brush so I can really massage the area properly. I’ve yet to see a doctor but at least now I know I can survive until I get a date and time to see one. Thank you so much for sharing this information.
hi! is it effective?@@johnjoe2989
Hi there. I want to try this . Am I understanding right you use the sonic toothbrush on your face ?
God bless you for sharing this ! I just started noticing this pain 2 weeks ago. Luckily I have a Sonicare and just massage my whole face! Look forward to seeing the results !
I also had kind of simptom. I'm using Carbamazepine and it make my body to a state of relax. My condition is ok for now but I can still feal the pain just for a moment when I'm eating or when it's getting cold.
I get the pains in my scalp on the top of my head when I am talking
What about yours?
My pain always flares up at night. Do you know why that is?
@@Cw-wi6uj I agree with you
Do you have fibromyalgia too?
I have pain from the top of my head around both foreheads Jaws chin, collarbone. This pain last 3 hours or longer. At least I know there's an end or I don't know what I would do. I have other variables like a benign tumor at the end of my tongue that might be pressing on a nerve... Fibromyalgia, at dinner time death in my neck, and I guess cranial on pain
My experience of TN involved pain when I ate, talked and blew my nose. I was diagnosed with TN about three years ago by my gp. Specialists at the hospital thought it might be Temperomandibular Joint Disfunction (TMD or TMJ) though. One of them recently tested this and anaesthetised the nerve by injecting into my gums on the side of the face where the problem was. As soon as he did this, the tingling/little electric shock sensations I was experiencing when talking to him went away. I've now been prescribed Tegretol (carbamazapine). I'm not too happy about taking the tablets, but will do so for now until I make further enquiries about any surgical procedures that may be available. I live in the UK.
Mine is identical to yours this my second week dealing with this
Does it go away, or will I have to deal with this forever
@@ianjoe1678 Mine comes and goes and hopefully yours will too. I've come off the tablets now, and, to be honest, I don't think I will ever take them again because I don't like the side effects. It's a bit sore this morning, but there's no tingling or little electric shocks. I'm finding the cold or damp in the air can make it worse. If you can cope with the discomfort until it goes away, you might be okay.
those pills made me an angry nutcase!
@@ianjoe1678 whats ure symptoms
Mine happens suddenly when I'm sleeping. I get a cramp in my neck then before I even have time to react it feels as if the right side of my face has been smashed in with a baseball bat. I've been told many times that the nerves in my neck aren't connected to the nerves in my face so I don't understand why my neck triggers my TN. When I massage my neck, if I hit that nerve on the right side just under the base of my skull it cases a TN flare up.
See a neurologist for TN. I was put on gabepentin & prednisone if your primary dr can help with medication.
It started with a chipped infected tooth that was pulled. My dentist took x-rays found nothing.
I have a numb left face, twitches, eye pain coming from my neck stenosis. Physical therapy was suggested. Pinched inflamed nerve from my neck.
Improving after 4 months.
I hope you feel better than before becareful of gabapentin and Prednisone steroids, it will get better try to eat better and slow down jaw and neck , what helps me is an antibiotic not amox or amoxicillin clav something stronger , it does has something to do with the mouth and there are a lot of nerves in around face that teeth and gums do , I use a hand massager and massage my face head neck every where massage it helps a lot alot , and not chew as much I have tmj it's terrible, so I try to not overdo jaw movements by chewing tough meats or fruit veggies, also tendonitis is terrible too the Nevers get affected, I hope u are doing ok
I have trIgemInal neuralgia.. I was in my early thirties. Its one of the worse pains I have ever had.😥
What does it feel like and how did you develop it. I have pressure in my face that came from nowhere.
How did you get rid of it?
I know I had it also. It had been 1 year get this kind of disease.
@@meladiesjackel8585 How did you get rid of it???
I still had it and still continue with Carbamazepine. Still when I'm eat or getting cold the pain is there. Just a flash.
May Allah heal us and protect us from diseases
Aameen🤲
@@nazimaalli7778 amin
Ameen
@@yazma8022 amin
amen
Thank you, I have this, but I didn't know what it was, it just started and I saw my doctor and he couldn't figure it out. I'm over 50, and it started like 3-4 weeks ago. It happens at least once or twice a day now.
I also had trigeminal neuralgia ..extreme pain in my left jawline...i used vit b complex in earlier phase abd massage over temporomandibular joint and i feel so relaxed😊
What type of massages and how often?
I need to marry a massage therapist lol
Yesterday my father started to feel this pain, hope taking b complex will help to lessen the attacks 🙏
I'm also feeling the same pain that too in my left jawline suggest me what you have followed 😣
I have Trigeminal Neuralgia the pain is so awful. I've found extreme heat from a heating pad helps and upping my neuropathy meds. Thank you for the info the compression is very interesting because I have vasculitis. It's been always assumed related to my Lupus, RA, neuropathy. Thank you.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
Wow I have lupus as well and the same I'm going to try a heating pad as well I have severe occipital nerve pain as well
@@raniqueblackman8096 the best way I've always explained the pain is to imagine the worst ear ache, toothache in every tooth on one side and a bad sinus infection all at the same time. The pain around my eye and sinus is always the last thing that starts but I can control that a little better because I start with upping my Lyrica and Cymbalta and the heating pad before it starts or gets to bad.
@@karensutherland9142 oh no I Haye your going through this thank you you are so kind I normally don't comment but I'm glad I did I was born without a neck curve and my lower back is fused the ear ache never put it together it happened all last night my jaw and lower teeth I also get shocks in my eye you are in my prayers for healing thank you again Ms. Karen enjoy the rest of your weekend and I pray it's pain free take care!😊
@@raniqueblackman8096 prayers and blessings to you and yours. I hope the heating pad helps.
I have been recently been put on Emgality, since the nerves that cause migraines and TN are similar, hoping this will help. We'll see
I am 28yrs old and I have trigeminal neuralgia. Everything is so hard for me right now. 18months of constant pain and headaches 😢
I'm so sorry. I'm 27 and I think I'm having the prodromes. I hope there will be a good solution fitting for everyone/multiple good solutions for different causes ❤
diopathic is right !! Don't know sh.t ! Fought with this for 3 years.... MY CURE... 2 shots 80 proof every morning,,, first thing,, empty stomach. And I swore off all drinking years before it hit. I killed the neuralgia,,, dead,, in 5 days. Cheap and easy fix for an awful affliction. It was one of 100 shots in the dark I tried,,,, THAT WORKED !. I keep a bottle in pantry ,,,, just in case it reemerges. Jim Beam saved; me.
I live in a small village in the northern part of Sweden. And got this knife stabbing pain and was absolutely sure it was a tooth.
Two weeks prior to this, I had my tooths checked by a dentist, so I called her and got an appointment. She examined me again and took some new x-ray images but ruled out problems with my tooth. She was almost sure it was neurological and told me to get an appointment at our health care centre in our village. The doctor was almost sur it was Trigeminal neuralgia so I got Pregabalin (what it's called in Sweden) and it helped. But after a while, I had to increase the dose, and then when I had my blood tested, they said that I couldn't increase the dose anymore. So I was sent to a neuro specialist who gave me 3 options.
1 continue with medication (which I didn't want. By this time, occasionally, my fingers would twitch because of the medication)
2 they could push a needle to the trigeminus nerve and with a balloon squeeze the nerv so it more or less died. This could fix the pain for a couple of weeks to up to 10 years.
3 They could make a microvascular decompression. Where they drilled a 1 Inc hole in my neck and then put some Teflon padding between the nerve and a blood vessel.
I went for the third option. And after that, I've been out of pain for 4 years.
That surgery did cost me something like 70 usd (or in Swedish 700 kronor), but that was not for my medical treatment it was for the cost of having a bed and the food while I was at the hospital.
Yes, we have high taxes here but I won't complain about that.
Do you wear a mouth guard at night? I was told I clench and this is most likely what caused my issue. I too have a stabbing tooth pain. They seem to be getting more intense😢
@alexndannycasillas5526 Yes I wear a mouth guard at night. But the reason for my trigeminus neuralgia more likely came from when I fell and hit my neck at work.
surgery for $70. wow.😂
Yes 70 usd without health insurance.
I had pain in a tooth area that floored me. I pulled at my teeth and it did not cause or do anything. pushed and pulled my teeth. It just happened one night and was horrible. Now I had pain under jaw and it takes away my ability to speak.
I still manage to stay alive even I suffered for about 8 years up till now.
I find it intriguing that you didn’t mention chiropractic or biofeedback as a therapy. I found this information on an MD site, even though these two modalities were listed at the very bottom. For me, and I’m not suggesting anything to anyone, I have found that chiropractic works best for my condition. Apparently the cause for me was a structural problem which could be alleviated by such, although I’m not recommending it.
I tried biofeedback for 16 weeks, sadly to no affect.
What do you mean under structural problem?
@@Chs3__1234 I have scoliosis and was in a motorcycle accident at a young age, landing on the side of my face. I tried biofeedback and it didn’t work either. Only when I have a chiro adjustment as well as laser therapy does the problem resolve.
stay away from quack medicine.
شكرا لحضرتك
ع المعلومات كأن الشرح فقط للدكاترة
من متابعتي لهذا الفيديوا حاولت افهم بعض المعلومات والتوضيحات
اعاني من هذا المرض الم لا يوصف
في الآن عمري٦٩عاما
How are you now sir ??
Carbamazepine had no effect. I'm on Gabapentin now. It took a month to kick in, but seems to be working . . . at the moment !
My co worker had this. It is rare and it effected her in a negative way.
It’s not rare. It’s very common
Have you thought that chronic sinusitis causes this? Inflamation in sinuses? Solty water drops cleaning of the sinuses is one of the best handlings I tried, comparable to no other in its effectiveness and without use of drugs, also cheap and always available
Mast cells are the inflammatory cells in sinuses. Allergic hypothesis is correct.
I too have chronic sinusitis and tonsillitis problem since the age of 7 but now I am having this new problem of neuralgia I think may be this is due to sinus
Hey, my mom has issues with sinuses, and recently discovered she had Trigeminal Neuralgia. We are treating both with medications. What is solty water drops and how does it work? Thanks!
Thank You... I just found out I have MS a few months ago. Because of your video I think my dentist will understand now.
i’m glad you got diagnosed. welcome to the club lmao. i got diagnosed with MS when i was 16 and i found out, i have a higher chance of developing this. i’m 20 and i have TN as well. all of it sucks
@@kaitsenpaiare you better now?
@@vldRO i wish. there’s no cure for it
Side of my face near my ear is in pain when moving my jaw in any way. First time this is happening to me..all I can do I’d hope it goes away
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
You need medications or the very last, an operation. The pain will not stop and will start appearing more frequently. Check it out with a Neurolog and he might suggest doing an MRI.
What about non-pharma options?
Chiropractic, physical therapy?
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
I use the vagus nerve simulator, and oxygen therapy
My brother has had TM for the last 14 years. He is suffering from pain all day and night. He had the procedure where they suck something from his face, put the camera in the nerve from the face. And give electric shock. It's a very painful procedure. Also he has been taking medicine ( tegoral, gabix or lalap ) for almost 7 years but he still suffers from pain. We are very worried about him.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
He should be fine it's mostly just pain and not really fatal just hurts like hell
@@Thisguy2736he should be fine? Have you tried living your normal life with severe sudden onset pain? It’s excruciating and can debilitate your entire life. I’ve been dealing with something very similar for the last 4 months. 35 years old, healthy, worked out, ate healthy, etc. All the sudden I started having extreme pains in different areas of my body and most recently jolts of extreme nerve pain into random teeth. Unless you have been there don’t say it’s not a big deal bc it is. A lot of the ways to get rid of the pain are really bad for you like using opioids and stuff like that.
That's not fine. You don't understand. @@Thisguy2736
@@Thisguy2736 it's a horribly debilitating pain you have no idea what you're talking about
I have trigeminal neuralgia due to a botched surgery at age 18 to remove an eye. The surgeon hit the trigeminal nerve and it is excruciating. Only one medication has ever helped and if I don’t get it I cannot think or function. It’s from the left orbit working out towards the nasal area, and then the head itself.
I go Tuesday to see doctor it will make you cry as if you were in childbirth and I almost died outer body experience no one could hear me I kept telling my mom and both of my sisters that I could hear them
I had a two other body experiences. I have Post-concussion
I have TN due to MS - I have found any movement helps me usually walking 😊
Thank you so much I just found out I have this. I was in the emergency room in two states, my primary care, and oral surgeon. Now I have to go to a neurologist. They all think that’s the best place for me.
i turned 14 march of this year and i had this horrible pain since June of 2021, it’s on the left side of my face and sometimes goes and comes. i’m so scared because i don’t know how to fix this, no meds help me and when an mri was done, they found nothing. it hurts most when i’m in a mask for a long time because of the heat. this is rlly a suicide disease
Omg I'm sorry to hear that! See a neurologist!
I'm with you pain on left a side of my face for a year. I'm going through tmj treatment but it's still bothering me. Stay strong man we can do this together. Ill keep you updated
Please try Gelsemium C 1000. It is a homôopathig medicine, no side effects and very powerful. Take 7 Globuli and wait. See a homôopathig working doctor.
I FEEL YOU ON THAT - this def can make one question suicide im in so much pain that i yell at people,when they use blender or are yelling as my whole face already hurts with my ear 👂 nobody else knows how it feels so its really annoying when people ask me why i dont want to,run or eat or SLEEP or SLEEP at different times bc all,i can do,ia take what i can get like the other day I prayed all day all I got was 20 minutes pain free but it was PAIN FREE from 906pm til 926pm I was so happy then,it came back,and I cried all,over
i hope you all feel better, i’ve noticed that stress actually could take a toll on this pain which rlly sucks. idk if you’ve tried this but try using a towel with hot or cold water on it and see if it relieves the pain, for me cold water worked best but for some it’s different. but be careful because it might trigger it more. also try to not touch and massage the area too much as it sort of awakes the beast😭 massages definitely feel relieving but i’m afraid that it could actually cause more pain. this might sound kinda dumb but if u know the movie venom, i kind of accepted this thing as a venom in me. the pain right now for me is veryyy minimal and i’m really grateful, for me it was just to be patient and wait. i really wish you the best results in your treatment because i rlly think no one should go through this 😕
I recently spent the entire 24 hours in the emergency room with no answers. Literally crying the whole time due to the severe pain. I also have multiples sclerosis and am 45 years old.
This happen to me now I am 44 now been suffer for few years and I also pulled my 2 wisdom tooth because I was thought Is because the toothache even after pulled and even went for surgical gor the tooth I still feel the pain for long until Dr confirm that I have TN this is real nightmare for me i can’t stand the pain anymore 😢
I didn't know men got ms
Been trying to get this diagnosed for 2 years and everyone's getting sick of me complaining about it. Dunno what to do.
I no the feeling
Them who don't suffer haven't got a clue I usually get "oh got headache again" if only
I have TN, but I also have Ehlers-Danlos Syndrome as the primary contributor to many of my conditions.
With that said, a combination of Valium, Oxcarbazepine, Methylprednisolone, keeps things at bay, and if I have to go to the ER, morphine is introduced to assist the other medications.
It's scary and frustrating dealing with TN
I have pain in my right side face when I go in cold temperatures like fan air AC outside cold temperatures..pain started...but when I get worm air from any heater then I feel okay...I don't know what is the problem
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
IMO it is stemming from Cervical Instabilities. The Atlas /Axis Vertebrae pinching the Vagus Nerve will Yield Havoc to the branch nerves . TMJ , Tinnitus, Lightheadedness, Sinusitis... and lots more . When my cervical issues from disc herniations, Military Neck from Forward Head Posture (commuted by car for 48 Years), DDD in the discs, and C4-C7 issues inflames the Occipital areas of the neck into the face. Even My teeth / cheeks hurt and causes left eye twitches. Info at Caring Medical YT Channel has enlightened me about the gravity and effects of Cervical Instabilities affecting the Vagus Nerve. .
You seem to of coveted all angles with this comment do you suffer from all?
Have you had any treatment?
I suffer to
Thank you for this
ive spent a lot of money for dentists, nothing helped, root canal treatment , x-rays etc. They've told me that my teeth are good. Than i found this video and I'm afraid it might be a TN...
Same as me. Definitely it sounds TN
Thanks for the information in the video. Used to be on baclofen post kidney transplant and when I stopped it's flaring up now and the pain is unbearable
See a neurologist for TN. I was put on gabepentin & prednisone if your primary dr can help with medication.
It started with a chipped infected tooth that was pulled. My dentist took x-rays found nothing.
I have a numb left face, twitches, eye pain coming from my neck stenosis. Physical therapy was suggested. Pinched inflamed nerve. Improving after 4 months.
ياريت تعلمنا ما هي الأسباب ل الاصابه بهذا المرض ؟؟؟؟لو تكرمت وشكرا
My mother was also suffering from this but I went to the dr of kgmc Lucknow they treated very well
Ab kese h vo
Hope apki mother thik h ab puri tarah se, aap please kuch details Share to helpful rahega
Plz share some details now her pain is gone or not my mother also have same problem
Plz
@@skanwar2023khi can you plz tell now your tn pain is gone or not plz consider sharing some details meri mom Ko bhi same problem hai
@@Thorfi_nn86857 mere father ko tha...augest m surgery huyi...puri tarah se thik h abb or koi problem nhi h surgery se
But w hy does that nerve compress? Like the deep cause to understand and prevent an illness is always missing imo
I have a left temporal arachnoid cyst and bad left facial pain, I’m convinced I have TN 😢
Hi how are you
@@sportsstars4182 not good dude
😢
One thing not mentioned, post shingles, I had it in for places, I have learned to live with it!
Exactly
So painful
Im 17and i have it bc of depression
I have facial pain..cheek pain. Jaw hang. Pain around eyes. Forehead pain. Eye squinting.
I have chronic sinus too. What specialist doctor should I go to???
Hi, same with me I have really bad facial pain, cheek pain together with alot of teeth pain and sensitivity 😢
@@yazma8022 how are you? Me same
Same issues😢
got this after i went on holiday, had a cool room and my face is now in pain since my return
i can tell i have never seen pain like this
Same here. How are u makin out.
@@shelongreene7619 7 days went by with pain
i started visiting dentists and doctors, 2 specialists diagnosed neuralgia trigeminus.
i received a cocktail trough a needle right under/inside my chekbone (i was desperate becuase the pain was constant)
one day after that an abscess formed above the tooth i treated right before i went on holiday
turns out the dentist infected my rootcanal during the tretment, i let them clean everything and the pain went away.
I have this my spine Is outer wack so everything is affected. I take mst, pregabalin and codeine.
Yeah codeine is the only thing that works for me
When would surgery be indicated if patient has been suffering for many years off and on. And my episodes last several days in length. Upping my Lyrica and Cymbalta seem to help but mostly I'm stuck laying on a heating pad in bed a minute or two off and pain comes immediately back.
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
I have this. It’s a allergic reaction. It’s caused by mast cell activation disease. I take lyrica, Zyrtec, Montelukast, and Metformin. It takes up to 8 weeks for mast cells to turn over. My reactions are decreasing in severity. I don’t have a blood vessel on top of any nerves.
I have been facing this since my teenage started, sudden sharp shock like pain in my face that last 5 to 10 seconds..the pain is horrible
Everyone talks about pain relief!!! How to beat it... am suffering 3,5 years...
what's the treatment cause am really in pain too
Medications or operation, you need to see a Neurolog. Tegretol 200mg, is often suggested, but dont take it by yourself.
I’m feeling pain while eating near my ear , I need to look after this , I thought this was just some cheek nerve stretch
Last slide of treatment not visible clearly,plz anyone write that here ..
first line carbamazepine and oxcarbazepine and second line i also didn't got
My mother suffered from this and I fear I might suffer from this as well... My pain tolerance is extremely high, or moreso, my perception of pain is somewhat distorted, so I'm not sure though. It's hard to find if its actually a hereditary disease
I have tn. The pain is on another level. It's worse then having a combination of the worse tooth ache ever with sinus burning and pressure in and around my ear and face. This episode has lasted 6 weeks this time and I'm taking prednisolone for it. It stops the pain being unbearable but still pretty shocking to be honest. I'm managing to work but only just. My mum and dad didn't have it but my mum did suffer terrible migraines when I was a child. I belive mine came from a previous injury as a teenager although it never raised its head till I was 43. Good luck and don't worry because its rare and very unlikely hereditary
This pain can feel which parts ?? And also causes of feeling dizzy?
Got pain on left jaw, spreading all over left face. I got no issues with chewing or talking, but pressure just stays there n about. I experience shooting pain few times a day. There are no signs of inflammation.
I had root canal few months back n pain started few days back.
I have to take painkillers to sleep at night for last 1 week.
I'm a college student n now a bit confused bout this thing.
Samee how are you now
Same with me. I have my neurologist app this Monday and currently wear a orthotic to see I'd it helps... so far it hasn't 😢
Look into the possible health consequences for root canals. It's really best to not get them.
Same esa h mere bhi...apki age kya h
Can anyone shed some light on the following. Facial pain from ear, cheekbones, eyebrows bone, side of upper jaw. The pain is mild, comes and goes for weeks. Pain is not intense or electric type pain.
Same now how it's going??
I m suffering , don't know how long I have to bear it
I cured mine with magic mushrooms. Haven’t had an episode since 2014 July 4th.
@زعطيطة I am dead serious, you can ask me questions about it
@زعطيطة hahaha okay man, you must really love to suffer with TN, good luck with that wise choice 😂
Wow how ignorant, I'd love to ask you some questions, what dose did you take and did you do it with the intention of curing it?
@@jonathanryan5828 so at the time I’ve never done any drugs besides smoking about a few times in my life. I told my friend what I was going through. I was 2 months in with cluster headaches, 3 hour episodes and about 4-6 times a day. He told me that he saw an episode of drugs inc, you can actually find it on UA-cam “drugs inc magic mushrooms cluster headaches”. I saw the video and felt “well what do i have to lose” I bought an 8th for $30. Split it with my friend and tripped for 6hrs while my gf at the time watched over me.
I'm also struggling this left face side pain since 4 to 5 years please 🙏 give some advice nd medicine 😢
Aapki age kya hai abhi
I have been struggling with this pain its severe, it just attach I have been lucky not to be driving.
I have severe bilateral dengerative jaw joints disorder . And I'm 100% sure it is causing this. The pain is severe and absolutely renders me. My maxillofacial surgeons don't understand this and I'm still only just taking paracetamol ! I'm not on any heavy duty pain meds. I work and have a 7 year old and when these attacks happen (I had one this morning ) i genuinely feel like jumping out of a window . Does anyone have any recommendations for natural pain meds ?! I used heat if needs be but that's not doing as well as before and it leaves my face feeling numb . I'm struggling a lot :( my maxillofacial is refusing a double jaw joint replacement due to mw only being 29 so I'm out of options I think :(
I get burning ear tip of nose and some jaw pain at my ears is this a symptom
I have Keratitis Dendritic disease, aka Herpedic Eye (herpes simplex type 1). I already had 5 epiosdes of these ulcers in my eye, and I have have medicatiom to keep it dormante for longer time. But since I work with kids, I can get sick often and sometimes if I get fever, it can trigger this. Needless to say, this virus lives exactly in the trigeminal nerve and it has damaged my tear glands, causing dry eye syndrome. And even dry mouth now. I get epioses of Trigeminal nerve pain on the side of my face,nose and upper gums area. It feels like electrical shocking pain and the pain can migrate to the side of your head. It feels horrible. Not sure if this can also trigger Sjogren's Disease but I feel like I have sympotms. In conclusion to all of this, I got this eye problem during 2020 when Covid was declaired official en the U.S. I still worked at the time, I got really sick, had high fever off and on for 3 days. Didn't know what it was. There was no Covid testing at the time and I felt like I had a foreign object in my eye and sunlight would hurt so so bad. And long story short, that is how it all started and how I was diagnost with Keratitis Disease. Now I have to get evaluated with a specialist in this disease to get a 3 opinion because I already had too many episodes.
Does this condition provoke electrical shocks to the head? I got one powerful shock to my head that knocked my down on the floor and made me dizzy for days after.
Very helpful, thank you
I am in agony crying with the pain nothing seems to work anyone know what works best
Is everyone working with TN? Are all of you able to safely drive while on the prescribed meds for TN?
Yes. I drive. The medicine is working great. My symptoms are decreasing. I’m almost in remission.
@@lauriekline178 Can you tell us what medicines helped you? My mom just started using Tegretol 200mg
I have been suffering from this pain..its been 10 years😢
@@skanwar2023k still dealing with it...
@@skanwar2023khii shivraj..muje bhi same problem h.ab relief h kya aapko tn se
I have had this for 21 years, and spine injury after hitting my jaw and head on concrete, eating, talking is a big problem.
@@pankajsuwalka5506 mujhe nhi h mere father ko tha...augest m mvd surgery se thik h abb puri tarah
@@pankajsuwalka5506 aapki age kya hai abhi
well I had a stage 4 cancer of the trigeminal nerve I've been suffering for 2 years I didn't know I had I was going to the dentist well I had to get chemo radiation because it went to the base of my brain I'm in a lot of pain can't do nothing can't drive it's a very hard life
You had stage 4 cancer? Are you okay now? Was the tumor pressing on your trigeminal nerve?
What about holistic treatment options?
I be getting really bad headache on my left side of my head .
Hi why can I do in the meantime to reduce my pain and discomfort whilst waiting to see neurologist? Not currently receiving treatment. I believe I have compression of trigeminal nerve including spasms. Any home remedies like please help
I’ve been diagnosed this kind of illness about 6 weeks ago and the doctor prescribed tegretol 200mg twice a day to me but the point is that medicine didn’t help with the pain at all and it makes my symptoms get more worse! I’ve told my doctor about that problem but he still ask me to continue using that medicine. I’m so stressed because every time I take that medicine my pain, numbness and tingling get more worse. 😢 should I go to find the treatment with another doctor? I live alone so I don’t have anybody to discuss with. Please anybody help me. I could not bare with the pain anymore. It’s destroying my life 😔
there are also some solutions by operation, although for some people not permanent, it can be pain free for a couple of years at least. Depending on the operation method.
Hi, I have been feeling the same symptoms for 5 weeks now. I have visited 3 doctors so far and been taking the same medicines. If you wanna talk, I am right here. We can even share results to find a quicker way to get rid of this pain.
@@lot.bajrami thanks for your comment. now I stop taking that medicine I've mentioned above for 1 month already. yes! the pain, numbness and tingling still hit me everyday but it's not so bad, so I can manage with it.
@@nextoid thanks for your comment. how are you feeling now? does the medicine help with your symptoms?
Is like you are passing the same situation iam into. I have tried many doctors but still no solution. It was a friend pharmacist that recommended me Alprazolam(xanar) 1 mg a day. The medication help me to calm the pain and you feel normal like a human. I take 1mg everyday and it control the pain the whole day. Now Ian reducing to 0.5 mg. A doctor told me is not a long term use medication bit i really don't care provided it is given Mr pain relieve that I want. I take green tea to detox my body. When people don't know the gravity of pain people who have this condition pass through, they will tell you all sort of things. Don't use this , use this, avoid this. I am now interested on what give me pain free any day I took it than what doctors said. If doctors can't find the solution, then i should go for what helps. I have used lyrica, pregabalin 150mg and it makes my situation worst. But this Alprazolam is given me relieved everyday. How I calmed my nerve i don't know but it does
I'm so in pain
Flare up
My head is so tight and I can't breathe 😭
what if i have 24/7 pain for like 7 years? my upper teeth all hurt, face hurts, jaw muscles hurt, eyes hurt and they hurt more when seeing light. Ive been goiong to doctors so much but still they cant decide either its trimeninal nerve or not.
Sleeping late can affect trigeminal neuralgia ?
I can't sleep for more than 5 or 6 hours a night without mine flaring up. Lately naps have been out of the question too.
@@medic5ever740 me right now I don’t know what to do!!! I can’t sleep .. the pain begin when my body about to fall asleep
I wake up to my face and right side of my neck completely numb then I move a little bit and i can feel it like slowly unumbing then I'll wake up with excrutiating pain in my riggt side of the face and my ear 👂 always feels full like,im underwater, got water in it on an airplane etc it feels like someone is stabbing me in the ear with a pencil
I smeared coconut oil with a few drops of lavender essential oil... the pain went +/- instantly 🧚♀
Oil on teeth or at face?
almost every time I insert an earbud in my left ear, I get an electric jolt across the side of my face. I wonder if I have this condition
Please Any one tell me treatment
I'm wondering if this is what I have.. I have a strange skin pulling feeling on one side of my cheek. It's so strange almost like I can hear the pulling of the skin, or like nerves are being popped in that section.. lasts for about 30msecomds then goes but that area can stay tender if touched.
I have severe ear pain like a stabbing pain, I wouldn’t say it’s face pain though. Not sure if I have trigemenial nerve.
Yes it like an electric stabbing pain through my ears to my brain. Ouch
No it's not tn ......it is something related with ear
@@dianafrancisspencer I was told I have Eustachian tube dysfunction which is causing the ear pain.
Mine was caused by a PCR test! V1 & V2 damage!
U need to sue them bastards
@@jerryaldridge9640 Looks like we're going that way. It happened at work in March 2021 & the lies about the cause are flowing.
Dr kaha hain iska adress
i used CBD heavy as you can find and combo naproxen or similiar its inflamaition and your reflexes, head i dunno im not a doctor lol...cbd and naproxen i found worked for me, if it did for anyone else let me know!
OMG, it was like a movie to me, I can’t still believe my test result came out negative THANK GOD🙏 ..,
I was cured permanently from this same Shingle Hsv1&2 virus with the help of Doctor Ani John herbal supplements
A mix of my carbamazine, muscle relaxers and pot seem to work for me. We'll see how long that lasts though, it's been getting more frequent.
It hurts pls help I’m only 11 I wanna tell my parents but I have school and it’s night idk what to do it hurts so much is there anything I can do at home to stop the pain
hello docter, please help me heal ataxia .
I am just 19 is it dangerous according to my age, can anyone answer?
keep researching online. I'll pray God shows you an answer
My left cheek got swell and its painful....also look my face shape different
Me 2.
Same here
having it currently at 16 yrs old
Thats insane, how are you now?
I'm having ongoing severe pain and numbness in my forehead face, jaw and scalp. I've had MRIs and all they say is a couple minor bulging discs .. does anyone know if anything besides ms can cause this? The shooting pain in the back if my head is like an electric shock and then burning. I'm getting to the end of my rope here lolol
Can the patient take B complex for his vitamins?
Can we get the pdf
Is this change face shape
Does it cause a sense of dizzines mu pain is concentrateed in opthalmic area as well as the ears it is a burning senasation but the worst is feeling dizzy esp. if i look at mobile or computer
I took a Zyrtec and my eye pain disappeared 😊
I have this problem since 16 age,
Now I'm 19
How are you now?
Is there any herbal remedies for this??? Maybe ?
Magna phos, speak to a homeopath and get advice. See a kinesiologist, they can help too.
Best Made has a product for TN. It helps. Vitamin B-12 I think helped me too.
My wisdom tooth is coming in. It may be that pressing on my nerves
Who said it affects above 50 , I am only 19 but I have this condition as a sensational pain of electric shock
Me too. Has it gone away is there anything that's helped you?
Hey fellas, how is you experience with this? I’m worried that I have it because yesterday out of nowhere got pain as it is described. Electric pain in the face. Like in the jaw below the ear.
@@dejectedsnow4127 it's likely your wisdom teeth!! That's what it ended up being for me and haven't got them out yet but the feeling left after one week
Thank u so much sir
I use to treat the pain episodes with hot water bag.... heat cure it
I was suffering this TN its starting from ny right face from tooth to shooting from head soooooo much pain i feel ..it was hard do have just like you can't eat coz it too painful even my sleep is affected coz you never know when its attacking its like electricity thats flow on my half face under the right nose ro my gums to head ...its affecting my emotions you cant even smile ir laugh,you can't talk in properly 😢.TN it is likes killing me softly 😢😢😢
What is your condition now? Have you recovered from this?
Can anyone in these comments help me plz I got an apointment on jan 20th but im in so much pain every strong meds ain't touching me and im on the brink of suicide.
There is some evidence that Vitamin B-12 can reduce the pain of Trigeminal Neuralgia in some people. (Search on Google Scholar.) Generally, the preferred form of Vitamin B-12 is Methylcobalamin in sublingual Lozenge form. (Not cyanocobalamin). I use KAL brand, a combination of Methylcobalamin and Adenosylcobalamin, at a dosage of 2,000 micrograms per Lozenge. The Lozenge is very small. (Other brands are fine too.) Vitamin B-12 helps to repair the myelin sheath of nerves. It will take weeks, at least, to see improvement (if it does help). Meanwhile, consider calling a nurseline (if your insurance provides one) or, if things are unbearable, visiting the ER. If there's any chance your pain could be from an infected tooth, don't ignore that. I'm Not a medical professional and this isn't medical advice.
@@davidsarr7852 thanks I will try that soon
Hang in there
@@feliciaboston6365 thanks
I'm suffering at the moment it came on suddenly today feels like getting hit hard, with an ice pick just in one spot in front of my ear, its been on and off for hours it comes on suddenly of course there's an OOUCH or an OH S***. Its not funny and its not a headache. No wonder its called the "suicide head pain". ❤