My Face is Changing - Prednisone
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- Опубліковано 9 тра 2024
- Please note that this video was taken before I had the Mohs Surgery. After the procedure, I had a difficult time adjusting to all the changes happening to my face. This video is a good reminder as to the mindset I want to have. If you have your down days, that is okay! It is not easy being on prednisone or having a chronic illness that changes how you look and feel.
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My name is Samantha Wayne and I have been creating advocacy videos on UA-cam since 2009. This channel was formerly known as Live Hope Lupus and was created in order to start a community for those living with chronic illnesses. In September 2019, I transitioned to a plant-based diet and I have found my body is responding well to it. Along with my lifestyle change, I am learning to alter my focus more on the positive. My current content will focus on my healing journey, what food I am eating, and everyday life. I will still be posting an occasional update about my health. I hope you all are ready to join me on this crazy journey of healing. We are all learning how to navigate this life together. If you have subscribed, thank you! I appreciate your support and look forward to talking with you all in the comments.
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DISCLAIMER: This content within this video is not medical advice. The purpose of these videos are for general education and to share my own experience. This content should not be used to self-diagnose or self-treat any health condition. Please consult a healthcare professional before attempting anything in this video.
You have such a beautiful mindset towards the medication and treatment process. Love that about you. ❤
Prednisone or not, you are beautiful!❤️🫶
Beautiful! Stay positive and keep your mind busy!🙏
Thank you for sharing your experiences with all of us ❤ I’ve felt so alone in all of this and you expressing details will hopefully bring awareness as well as comfort others 🤗
Literally just got off the phone with my doc to address my edema caused by prednisone. I'm thankfull for my kidneys being ok so I can take water pills. It's been hard gaining ~20lbs, especially right after graduating cardiac rehab for open heart surgery. With lupus it always feels like one step forward one step back, but what matters is that we keep moving forward and eventually we'll get to where we're going!
i love u so much sooo much. i fr did feel crazy on prednisone
Sam stay encourage your inspiration❤❤😊
I've been on 5 mg since my diagnosis in 2013. My biggest issues have been weight gain, overeating, and acne. I get breakouts on my face, neck, chest, shoulders, and back. It's been a stressful struggle, especially with the weight gain, but I try to keep that positive attitude; that's all I can do. No matter what, you're still beautiful, blessed, and awesome, Samantha!! 🙏🏽🤗💜
Thank you so much! Gahh that 5mg is the hardest to wean off of. I was on that dose for many years in the beginning. Hoping I'll be able to wean off fine this time. It is such a struggle. Thanks for sharing your experience.
I was on 5mg as well. But sometimes I needed a little more my doctor prescribed 2.5 mg three times a day. So if I wake up kind of okay I can adjust it to one and a half tablets. I may be doing this totally wrong. But it's kept away moon face and acne.
Are ur ok right now...are u on ur all size
Ditto. Started at 50mg and at 5mg for 6 mths. Now trying to SLOWLY ween down more. I have adrenal insufficiency so the opposite of the usual and have to carry special adrenal injection. Yay! 😊 My family doc helped me with weight gain, round face etc in the first year. It worked but very hard. Now I just want my little adrenals to wake UP. 😴🫤 I’d say my nickname for pred but it’s not very positive. 😂 Peace and health to all of us our journey with it.
Hi I'm weining down from 7 mg , at the moment I'm on 4 mg. I just went down another half a mg today. I've been wanting to know how do they check if your adtenal gland is beginning to wake up again and what are the shots because I'm completely in the dark about this. I feel like I'm doing it all on my own. The doctor wants me off it but there is no real specific plans so I'm a little bit concerned but I'm still doing it anyway. I'm feeling a lot of needles in my hands and feet the past couple of days and it's really annoying.
I am currently on Prednisone. I hate the fact it blows my face and body up, but I am huge anyway. I really find this little white pill they call the "devils tic tac" to alliviate my symptoms and pain. So I just grit my teeth with all the side effects and feel thankful that there is something that pulls me out of my flares. UGH! Hang in there sweet lady, you have a beautiful face.
the "devils tic tac" is so accurate. Take care!
Thank you.
You have a pretty face despite the changes. ❤
Sending positive energy…I love doing my makeup and it makes me feel better. I have learned to contour because I get inflamed parotid glands (think mumps…chipmunk face). I know that it is just a visual effect…but it does make me feel better.
You are beautiful and look beautiful!
I would love to learn this technique. Btw do you think Beauty procédures could Help with Moon face?
Ive been on prednisone for months now! :( I finally got to lower my dose and just started to notice my face kinda getting back to normal and my mood swings slowing down. But it's still exhausting and extremely annoying to still be on predinsone. I totally understand how you feel & I'm sending all the love and support! You got this :)
how much are you on right now?
I am glad you are seeing some relief from the decrease. I hope it continues!
Hi ! I have lupus too and for fews months i had to be on prednisone 60mg for weeks. The only way to not gain weight is to control your sodium intake and remove completely salt from your alimentation. You can add salt progressively into your diet when your dose of prednisone is getting lower. I hope this will help some of you :) I wish you the best.
I have craniofriogioma and panhypopituitarism which means i don't produce any hormones and i need to take my hormones from medicines i was diagnosed in march and had a pituitary tumor removed in April during which i was on very heavy dose and even after my surgery i was on very heavy dose it only until recently that i have gone on 5 mg i will have to take prednisolone for the rest of my life probably i will go on 2.5mg i think soon i felt really lonely and alone during this time i used to be very skinny so suddenly having a moon face and such a bloated body made me feel and look uncomfortable im honestly very scared because i will start school after two weeks which means 3 months after my surgery to see how my friends react but this video helped me alot and those who are on heavy dose and feel like ur not gonna go back to normal i felt the same but im seeing very little differences which makes me feel alot better that i will go back to normal :))also I'm 14 years old
Just wondering how long you stayed on Dr Goldners protocol for?
Sam I’m glad you’re doing good. I freakin hate steroids. Trying everything to get off of them. But I love watching your story I’m so encouraged!❤❤❤much love
Have you tried the mycotoxin test to check if it’s the underlying cause of your disease? Curious
I was on 40mg for awhile and it definitely showed in the face. I'm on 5mg now with occasional flares but it's been more manageable. Diagnosed May 2019.
Glad you were able to get down to 5mg!
My Wife been thru all treatments for years . maptera, plakenil ,metotextate, predisone , and now started on mycphenolate, .
How long does mycophenolate delays in take effect?
Wish you well….!
Do you do exercise and is there any help in weight loss
I have been on prednisone for over a year 😢 still on 12mg. I hate that I have to be on it.
Are you still taking benlysta?
What’s wild is the prednisone actually clears my face completely of acne and hyperpigmentation. No redness. But it’s now been two weeks since I’ve been off it, and now I’m breaking out so bad everywhere. I’m confused because a lot of people get the side effects while they’re on it? Mine hit me so hard after.
The same her too
I was just on. Predisone for. 14. Days. Hate it!!!
Are you still hpv free?
I left this on an old video of yours. Did you have any luck with Rituxamab and why did you stop Plaquenil? My son is considering one of these options for an autoimmune condition he is battling.
🙏💞….Have you heard of Dr. Brooke Goldener? She beat a really tough lupus battle with a special vegan diet her and her hubby stumbled into…just and fyi for you and much love and prayers from one lupus patient to another😉🙏💞
How about a video about being wiped out after sex? Is there anything you can do about it?
American women..