Hi Ed, you are an inspiration to us . All you are having to deal with is hard. Keep fighting the country is behind you and the other people who are fighting this disease. hopefully, they will find a cure soon.
You're so brave. It's such a heartbreaking disease. I have symptoms and I'm terrified. I'm at the neurologist August, it's been a horrible 2 months waiting so far. Xxx
@@kellyofthehead So did they rule out MND but can't give you a diagnosis ? The fasciculations, can be benign but balance and slurring words must be hard to cope with when you have no explaination..Thinking of you in my prayers, maybe try alternative medicine like chinese ?
Hello About a year ago I started slurring words , numbess in my legs ,loss of balance. It was All down to work stress ... sometimes we just need a complete reset..have you been under any stress you will be surprised what stress can Mimic Good luck
This is 8 months after the Jim Hamilton interview. That shows how this horrible disease progresses. Please, if you can, help to raise awareness of MND - it is a lot more common than you may think…..
What a great man, and still has his sense of humor, and so articulate. He is so balanced, educational and realistic and even a bit cynical about his condition, talking honestly about the disease and its terrible negatives. And this kind of video is so helpful for people to understand what is actually not an uncommon disease. It is just an awful condition and needs more research and effective treatments.
ED!!!!! my heart breaks out for your suffering. Such an fucking cruel disease and arsehole disease can see anybody suffer of this terrible disease. My heart settle in the bottom of the sea because of this just lost my husband because of this and I can’t recover I love you and all the best. Thank you for what you doing.❤❤
I've watched many ALS videos and i have to say, that Ed is one of those people who put it in words better than anyone. The difficulties and absurdities of getting access to hopefully beneficial, possibly even life-saving medications, and the desperation of MND patients just waiting and hoping that something comes along. These people are suffering, scared, and they are fighting against time.
What a brave bloke
you're an inspiration to everyone Ed. Keep fighting!!!
Hi Ed, you are an inspiration to us . All you are having to deal with is hard. Keep fighting the country is behind you and the other people who are fighting this disease. hopefully, they will find a cure soon.
Ed , you are brilliant and so brave, keep up the fight❤❤❤xxx
My thoughts are with you Ed.
You're so brave. It's such a heartbreaking disease.
I have symptoms and I'm terrified. I'm at the neurologist August, it's been a horrible 2 months waiting so far. Xxx
I hope your appointment went OK. xx
@@Fairy-door-78-86 I didn't get any answers, still all the same neurological symptoms. Constant fasciculations, losing balance, slurring words. ❤️
@@kellyofthehead So did they rule out MND but can't give you a diagnosis ? The fasciculations, can be benign but balance and slurring words must be hard to cope with when you have no explaination..Thinking of you in my prayers, maybe try alternative medicine like chinese ?
Hello
About a year ago I started slurring words , numbess in my legs ,loss of balance. It was All down to work stress ... sometimes we just need a complete reset..have you been under any stress you will be surprised what stress can Mimic
Good luck
What's the latest?
Such an inspiration to us all ❤️
This is 8 months after the Jim Hamilton interview. That shows how this horrible disease progresses. Please, if you can, help to raise awareness of MND - it is a lot more common than you may think…..
Ed you are a legend❤
He is amazing man 👍❤️
What a great man, and still has his sense of humor, and so articulate. He is so balanced, educational and realistic and even a bit cynical about his condition, talking honestly about the disease and its terrible negatives. And this kind of video is so helpful for people to understand what is actually not an uncommon disease. It is just an awful condition and needs more research and effective treatments.
ED!!!!! my heart breaks out for your suffering. Such an fucking cruel disease and arsehole disease can see anybody suffer of this terrible disease. My heart settle in the bottom of the sea because of this just lost my husband because of this and I can’t recover I love you and all the best. Thank you for what you doing.❤❤
❤❤❤❤ thinking of you 💕
Ed, you dont know me, but i love you ❤️
Ed, this is a devastating disease and you are such an inspiration
I've watched many ALS videos and i have to say, that Ed is one of those people who put it in words better than anyone.
The difficulties and absurdities of getting access to hopefully beneficial, possibly even life-saving medications, and the desperation of MND patients just waiting and hoping that something comes along.
These people are suffering, scared, and they are fighting against time.
❤❤
An unbelievable cruel disease. Anybody who stays this balanced with this prognosis is beyond super-human.
These young guys getting ALS could be due to brain injuries playing sports.
You think?