Hey Lyn Oh! I think, given your video blogs and the informational video you have made for FNDHope.org, I think that you should tell people: Well, I used to do ___ but now I am a Health Advocate! It is what you do afterall. You are encouraging people to lead a healthy life and you are advocating for those of us with FND by just taking the time to post!!
Once again, even though I am tackling a totally different illness, your video was so relatable again! Whilst I am aware that there would definately be some tough times for you, I love your energy and hope in each of your video's. Very encouraging for me to try and take on the same mindset. Praying for you :)
Hiya. I'm glad to hear to have had a refreshing time away. The answer to the question you asked was the exact question I was asked yeaterday. A lady who i had just met yesterday said so what do you for a job? I really had to think about this one and how I answered but I was just honest and said to her that for the last 12 years I have been a care worker but this last year I have been off work due to my health. Then the questions started about my my condition which I really didn't mind. I would rather be asked about it so I can inform them. The whole thing just made me realise how much I miss my job. But maybe one day I might be able to work again. Keep smiling X x x x
Hello, You mentioned your wheelchair and how you were advised not to use it. I was advised the same about my walking stick when I was first diagnosed with FND 7 years ago and I have tried not to use it, feeling guilty when I do because I fear I am not helping myself, despite the fact that even with a walking stick, I struggle getting very far, and when I do, I end up so tired it is like I have hit the wall after running a marathon. So, after struggling with the guilt, I decided to buy a mobility scooter two days ago. Before, when I had a bad episode I would hardly leave the house and not walk my dogs for weeks! I love walking my dogs! I still feel guilty, I still don’t know if I have done the right thing spending all that money on my scooter, but this past two days I have gone out with my dogs and enjoyed the sun and the wind.... do you feel guilt? It is a difficult condition to have when it comes to acceptance.
Hey Lyn Oh! I think, given your video blogs and the informational video you have made for FNDHope.org, I think that you should tell people: Well, I used to do ___ but now I am a Health Advocate! It is what you do afterall. You are encouraging people to lead a healthy life and you are advocating for those of us with FND by just taking the time to post!!
Once again, even though I am tackling a totally different illness, your video was so relatable again! Whilst I am aware that there would definately be some tough times for you, I love your energy and hope in each of your video's. Very encouraging for me to try and take on the same mindset.
Praying for you :)
Thank you! Encouragement is infectious :)
Hiya.
I'm glad to hear to have had a refreshing time away.
The answer to the question you asked was the exact question I was asked yeaterday. A lady who i had just met yesterday said so what do you for a job?
I really had to think about this one and how I answered but I was just honest and said to her that for the last 12 years I have been a care worker but this last year I have been off work due to my health. Then the questions started about my my condition which I really didn't mind. I would rather be asked about it so I can inform them.
The whole thing just made me realise how much I miss my job. But maybe one day I might be able to work again.
Keep smiling
X x x x
Thank you for commenting! Yes it's tricky when a simple question can bring up a lot of emotion. I'm missing my job alot too!
Hello,
You mentioned your wheelchair and how you were advised not to use it. I was advised the same about my walking stick when I was first diagnosed with FND 7 years ago and I have tried not to use it, feeling guilty when I do because I fear I am not helping myself, despite the fact that even with a walking stick, I struggle getting very far, and when I do, I end up so tired it is like I have hit the wall after running a marathon. So, after struggling with the guilt, I decided to buy a mobility scooter two days ago. Before, when I had a bad episode I would hardly leave the house and not walk my dogs for weeks! I love walking my dogs! I still feel guilty, I still don’t know if I have done the right thing spending all that money on my scooter, but this past two days I have gone out with my dogs and enjoyed the sun and the wind.... do you feel guilt? It is a difficult condition to have when it comes to acceptance.
I say atm I am taking care of my health and learning how to adult
I say im disabled at the moment due to ill heath
why do you have to move all the time ?