An Intro to Aging w/ HIV | Jeff Taylor x Raif Derrazi
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- Опубліковано 23 сер 2023
- Jeff Taylor is a long-term survivor who has been active in HIV research advocacy since enrolling in the first AZT trials in the late ’80s. He is currently the executive director of the HIV+ Aging Research Project-Palm Springs, which conducts patient-centered, community-based research on aging and HIV in California’s Coachella Valley.
Jeff has served on the community scientific subcommittee of the AIDS Clinical Trials Group and as a community representative to the National Cancer Institute’s AIDS Malignancy Consortium, where he was a part of the HPV Working Group and the ANCHOR Study.
He previously served on the Department of Health and Human Services Antiretroviral Guidelines Panel. Jeff is currently on community advisory boards for the UCSF Gladstone amfAR Cure Institute and the UCSF DARE Collaboratory for HIV cure research. He’s also on the AIDS Treatment Activists Coalition's Drug Development Committee, which meets regularly with pharmaceutical and Food and Drug Administration on HIV drug development issues. He was recently appointed to PACHA--the President's Advisory Council on HIV/AIDS.
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RAIF DERRAZI
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Keep up your excellent work, Raif! Love, prayers and support from Portugal.
Oh wow, thank you so much Flavio. I’m super humbled by your generosity. 🙏🏽 I’ll absolutely continue to work hard to provide you and everyone with some really great, valuable content ❤
Thank you so much. Diagnosed 31 years ago and in my mid 50's. Was near dying when the Proteasse Inhibitors came out in 1996, turned everything around. These conversations are needed so badly. The work you are doing is extremely important. Accessing and sharing information. Just like the early days Jeff was talking about at groups .. here at NYC Gay Center. I remember early Act Up meetings. People were sharing research, experimental drugs, alternative treatments, etc. This is the modern version of that work.
Wow, thank you for the comment. And thanks for sharing some of your story! I'm happy to hear you appreciate the content; it motivates me to keep going if/whenever I doubt its significance. And creating a communal space that enriches our community is everything I could strive for; long ways to go yet but that's the goal.
@@RaifDerrazi I left you a messaged you on Instagram, but realized you see these comments first. I only recently found your channel in my recommendations. You've probably watched it, but the documentary How To Survive A Plague brought me back to the early days of Act Up at the Gay Center and how they changed everything. I recommend it to anyone to learn the history of how we got to today.
What's about your health?
@@danieldominiak647 My health slowly came back over 5-8 years to a new normal. Undetectable, good energy, living a normal life. My issues now are middle age concerns, and things aching, not AIDS. Being sick seems like a lifetime ago. I don't even get colds very often. I use to feel stigmatized and traumatized by a death sentence, after just living my life and not dying . . . still here to tell the story . . . the stigma and trauma that I once felt fell away. . . I couldn't tell you when the trauma fell away. I know many people have different experiences and people are still dying, so I know that I am a very blessed man and thankful for every day the eyes open. Raif's focus on HIV and aging is a big topic for me going forward.
41:28 'Somebody who was on PrEP and had a lapse and got HIV, started on treatment right away before T cells dropped' OMG This is exactly what happened to me! I was on PrEP, got a bit careless and that was enought to catch HIV. This happened three months ago, thank God I got immediate medical help and I've been on ART daily for the past two months.
Way to go! Starting ART promptly after diagnosis is the best way to reduce the long-term effects of living with HIV. Stick with it!
@@thomasvilla6109 Thanks! I don't even think about anymore, I just take my pills and lead a perfectly normal life.
@@Lee-1 I was on PrEP but got careless and didn't take it everyday. I believe this is a common mistake, health campaigns should stress the importance of taking it correctly.
Wonderful video! Jeff is a true hero and survivor, he gives us hope.
Thanks for the hard hitting and honesty for sharing both your journey!! So much to learn.. totally agree!
Thanks again Raif for another outstanding discussion. The depth of your interview is very effective in teaching all of us not only a bit of history but also provides a greater understanding that we cannot get anywhere else. Your sincerity in all these interviews is what truly makes them so effective. Thanks again and looking forward to more of the same. Cheers and stay healthy.
Thank you so much for posting... I've been living with HIV about 22 years by my estimate - officially diagnosed 2003 and i gotta say the comments about the psycho-social aspect of this is truly important still... I mean i go to the gym everyday I work full-time as a Registered Nurse my CD4 count is great as is my viral count so on paper everyone think ah well he's fine but Ive just been told i need a new hip and when i tell people i get stares like but you're way to young etc etc they don't realize my body is now riddled with arthritis...anyway my point being that yep I'm closing in on 50 in a couple of years and already Im going through some things i wouldn't have expected until my early 60's
Thanks Raif.. I can’t find much info on aging with HIV.. so really glad you brought someone to help educate us.. ♥️
Thanks for the video and thanks for your work.
you're welcome. thank you for watching and learning with me!
Excellent video
Thanks!
Thank you 🙏🏻
You are very welcome
Thanks for the video wich food to eat to boost T Cells?
This is one of those conversations that are so difficult to find answers to. Everyone says that we can live a normal lifespan, and that may be true, but is such a complex question. Family history with Illnesses, our diets, physical activity, and of course our pill adherence. So my question is; Which are the general deseases that are most common in the HIV+ aging community? At my clinic the most I get screened for Cancers all the time.
Start using GLYNAC supplements, it can really change things for PLWH
I never hear you talking about peripheral neuropathy. And how so many people suffer from it!!
Sir hiv test ofter exposure 44 days ictc hiv hbs negative I am saf or not saf sir
Telegram link is not working
21 years and counting... I'm 40 and I love it. I have many years ahead of me and it would be nice to kind of know what to expect.
I have been having itching since 2021
When was he born?
Hiv testing window period please answer my high risk exposure but 3 month 6 month 9 month all test nagetiv.. testing again yes no please answer
So then you are negative
I've been positive for the last 5 years and I have been doing fairly well. My biggest issue is my weight. I'm 6'2" but I constantly fluctuate between 155 - 175. I heard he mentioned he was prescribed a steroid that helped him gain 30 lbs in about 6 weeks. What was that called?
I’m not sure but his doctor was able to recommend a steroid to help; might be the best route for you if you’re struggling. Have you adjusted your diet as well? Tried weight gainers (protein + carb shake)? Etc
@@RaifDerrazi I've done the protein shakes and weight gainers. my metabolism is so high I think I need to eat a caloric surplus to keep the weight on. I'm not really in a position to afford a nutritionist or anything like that at the moment and food isn't cheap.
I'm pretty sure human growth hormone
Hi! Positive for 20+ years now - being a tad flippant, I wish I had your challenge as I'm the opposite! After starting ARV's I gained weight and find it hard to drop. I do know that some HIV combination therapies can cause weight gain - maybe worth investigating whether you could change to such a combination. A nutritionist would suggest increasing the number and frequency of meals during the day. Raif's suggestion of the inclusion of a high caloric protein & carb drink would also help .... definitely, if you access some professional help, I'd make that a priority.
@@RaifDerrazican you meintion the name of the protein
Can you speak about how the medication 💊 also ruins your body and make some people feeling terrible with hiv.
I’ve had so many friends who reach out to me and told me they are on a medication called Atripla that makes them feeling worst than before their diagnosis 😢
Constantly being hospitalized for something that should be helping them feel better.
Atripla is an older medication that has been known to cause more side effects. I suggest your friends talk to their healthcare providers about switching to something else if they’re struggling
@@RaifDerraziit’s tough. My friends are from the Caribbean. We don’t have the leading medications that are available in first world countries like the USA 🇺🇸. Atripla is the number one drug in the Caribbean. It’s sad and unfortunate to know it cost so much side effects and yet still in 2023 it’s being used . 😢
I feel so bad for my friends cause I’ve seen how much it have affected them and there’s nothing they can do because they are told to keep taking it everyday.
This is why many stop taking their medication 💊 because it seems like no one cares how they feel. They were doing much better prior to their diagnosis and to know they are feeling worst being in care breaks my heart.
Artipla can cause headaches in morning and vivid dreams at night can make you drowsy. But that doesn’t happen to everyone, I took that drug for 1 year and didn’t have much problems except headaches in morning. I suggest please take NAC (acetyle cystine) supplements, it will help manage your symptoms.
Long term use 25+ years can cause liver stenosis with older drugs. Get a echo liver scan for enlarged liver and fibro scan a blood test bio marker for fibrogenisis. Mitachondral damage can cause metabolic disorders such as insulin resistance, low T, hypothyroidism. The low insulin can cause more fat. Egrifta growth hormone helps as well as well as testosterone Cyperonate. The acumulative effects over decades as you reach 65 and older require more monitoring by your specialist. Losing 10% of your body fat with triglyceride and cholestrol lowering statins or vacepa omega 3 prescriptions help. There are also drugs for insulin sensitivity. I am not a medical worker so always ask your doctor first.
I just want to say something, I think it should be prescribed along with ARV meds that supplement like NAC and Glycine should be taken by everyone living with HIV. It can really slow down rapid aging and improve metabolic health,improve lots of bio markers and there are dedicated research on hiv people using these supplements. Many people doesn’t not know this. Please spread awareness about GLYNAC supplementation. I am personally benefited from this.
Also GLYNAC has no drug interactions with most HIV meds out there. It’s totally safe and nd effective
How has it helped you? I heard that it can mitigate some of cytotoxicity of ART and improve mitochondrial dysfunction.
Do you sell this drug for this disease
Neither of us sell any drugs
Maybe AI will help to get rid of diseases