HIV Long Term Survivor, Aging & Addiction | Mark S King x Raif Derrazi
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- Опубліковано 11 лип 2024
- Mark S King, multiple award-winning blogger and activist, a long-term HIV survivor sat down with me to talk aging with HIV, managing addiction and healthy relationships.
Mark S King:
myfabulousdisease.com
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RAIF DERRAZI
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#HIV #Survivor #Addiction
Thank you, Raif. Your sincerity is crystal clear, and that keeps me honest and right there in the moment with you. Keep up your great work. You're changing lives in ways you will never fully know.
Mark, a lot of people are incredibly moved by our conversation. I’m sure they’ll be asking me to bring you back on at some point!
Great Job Mark
@@RaifDerrazihow do you know if u got hiv
Hello sir when you digonesed with hiv
@@rickygujjar9946 1985
I really enjoyed this interview as someone who had had HIV for just over 20 years. I was dianosed in 2003 when I was 20. I was an I.V heroin addict, started at 14, so thats most likely how I got it but you never know, could have been sex as I was a sex worker while an addict. Have been in 100% recovery since 2010. I didn't start taking meds until around 2014, because my numbers seemed fine to me and I was afraid to start,but Drs encouraged me to start taking it then before things become not so good. Became undetectable in 6 months .Been on the same meds, Biktarvy, for 4 years now. Works great for me, I'm undetectable and have been for years. My health is good. Nobody, except a few close friends, my Drs and pharmasist, even know I have it. You wouldn't know by looking at me that I have it. I haven't even told my own parents. I wish I was in a place where I could be more open and not feel the need to hide it so I really admire you both and all others out there who are so open about it but I'm working on that.I'm so thankful that the meds that they have these days are available because I know my situation would be a lot worse if it wasn't
May you always healthy and happy in life!
@@danishh1385Thank you 🙏
Similar to my story! You can read it above!
Thank you for sharing Amanda. I bet a lot of folks can relate to your story 🙏🏽
You were very young, for the experiences you had, I hope you currently have a peaceful life because from there happiness arises. Take care of yourself and have a lot of faith.
Excellent interview. As a 63 year old gay man, I was one of the few lucky ones who never became infected with HIV. But living with the fear and tragedy of watching friends die so young was very traumatic and mentally debilitating. It took many years of therapy to recover to a point where I can function , appreciate and enjoy my life again. ❤
I can’t even begin to imagine what it was like. Happy you found your way through all of that
You made me cry Raif.. your brave and God bless you
Outstanding conversation! Thanks for the topics you covered related to living with HIV, addiction, and aging. Love to see 2 different generations sharing their feelings and thoughts on an issue that they both are experiencing first hand. 💯💯
Love to see 2 different generations sharing their feelings and thoughts on an issue that they both are experiencing first hand
I was diagnosed in January 1997 (at the tender age of 36). My t-cells were at 179 at that time. I was fortunate that I had no opportunistic infections (and never had them) at that time. I failed the Crixivan then the Viracept. In 2000, my t-cells dropped to 89 and I thought "This is it". Fortunately for me, Kaletra was in Phase III and I was admitted in by my doctors (whom I am forever grateful!) into the Phase III trial. Kaletra saved my life. I got to high 300's on my t-cells. I am currently on Genvoya and undectable (less than 25 copies). I have even had my t-cells hit over 900! My doctor detests my fixation on my count since he always maintains its the "log" that is important. But still... The only side effect was lipoatrophy, Not horribly, but I did lose a LOT of my subcutaneous fat, causing me pain. I am really excited about the AGT phase I!! That looks very promising! My partner of 27 years is really lucky. He never had a drop in T-Cellls and has only in last few years been on any drugs. He could be classified as a long term survivor. My current Doctor (last 16 years) always shows my legs to the interns to show them what lipoatrophy looks like since hardly any new patients get that anymore! LOL! I don't mind in the least.
Lol well that’s very giving of you to be an example for your doctor. You have a great attitude tho! Thank you for sharing your story. Amazing
Thank you, thank you, thank you, Mark and Raif for this discussion and for keeping it real. Let me just say that I am a pathetically healthy and fit with most of my marbles, 74 year old trans woman, recovering alcoholic and long term survivor of HIV and Hep B and am still doing my dream job as a mental health professional embedded in a substance use treatment program, and am married to a man who is hiv negative. So yes, Mark, still living the dream!
You guys are my hope ❤❤❤
Thank you so much for this Raif 🙏🏾😓
Very welcome! I’m bringing him back ok at the beginning of September to discuss his new book release
GREAT work and wonderful communication with the Community!
Thx Jefferson 😌🙏🏽
In the early days without as full an understanding of the virus as we have today, people had to do self-analysis to find what you could do to counter the effects of HIV on your body. Like what was said, you naturally look around you to see what is happening with others in the same situation as yourself and why others died and not yourself.
Wow! How did I miss this? Great conversation Raif and Mark, thanks to you both for your candor and willingness to be vulnerable, such a rare quality and just what I needed today! ❤
You’re welcome Jeff, thx for watching!
Raif i know in my heart your the real deal. Im thinking you for people that did not see this video, your beautiful and i know your special. I can feel it in my bones. Bless you my friend.❤❤❤❤❤
Thank u so much for the kind words Mark ❤️🙏🏽 that means a lot
Amazing Interview Raif, you guys made me laugh and cry at the same time. This interview was touching and deep. I love Mark advise on keeping a long relationship. Love it. Raif great interview. Look forward for more interviews like this ☝️
Aw yay that’s awesome 🤗 Happy to hear that! Ikr, I experienced all the emotions filming it lol Mark was such a great guest. Looking forward to many more 😌🙏🏽 Thx for the feedback
mark is so wise and sweet
he’s got such a generous spirit 🙏🏽
Amazing Interview!
Thx Justin! ❤️🙏🏽
So true he is a hero to those of us that share this disease 😢
Wow such an incredibile story! Such strength..
Mark exudes resilience
Thank you for this very powerful
You’re very welcome
I love what he said " for give your self"
100 !
Thanks, both of u for this wonderful interview! it's only been a month ago since I was tested and turns out I'm positive for HIV, and my bf also got tested and also HIV+, so we started ARV treatment immediately, thank God, no side effects so far. People like you gives us hope, that turns out a lot of people can survive through this! I found your channel few weeks ago, and i found it so relatable to my life right now, and what i been going through, so thank you! keep up the good work Raif!
You guys will be ok i promise. I worried and stress out when I fond out too. You are lucky you have someone your partner to talk about it. I handled by myself. It cost me a lot too for the first month. I did research in our county and now I do not pay anything. Hope you guys do that too because it cost a lot. We all be ok soon!!
@@marklewis4647 thank you. yes, at least I didn't have to face this alone, I also have friends who are hiv+ that I can ask a question to. Sorry, u have to face this alone at first. Yes in my country also the same, we don't have to pay anything for arv treatment, all provided by the government. I'm from one country in Southeast Asia
You’re welcome, I’m glad you found the channel and I hope to keep giving you some comfort through the content
Raif , Mark has came though this , maybe you have a ways to go yet , but you have come so far ! Remember how much you are loved ! Will always be here for you ! Will do all I can to help ! ❤️Dennis
I don't struggle with substance abuse, personally, except maybe chocolate...but I have had to deal with loved ones who've had these issues all my life
@@RaifDerrazi love chocolate too and scotch and water but not together😂
Great interview! I can totally relate to Mark ! ❤️
The pure sincerity of you both have made this communication a very effective one. Thank you for that honesty and the understanding of how important it is for everyone to do the same. 50:03
Mark has great perspective and wisdom.
@@toms5996 As does Raif
Brilliant.👌
Hello my name is Rick thanks for being here I have been HIV 1981
Thx for sharing Rick
Raif pls. interview Mark how his life make long and how his daily routine of his daily life with HIV...i amaze bcoz he look very healthy strong of his age...
Please explain mark daily routine raif pls....
So true thank God for Ryan White program I started on it ❤️
I've met Mark a few times. He's a good guy.
YES, well loved by the community
You men are both wonderful men. An I have lived like both of you in the same but difference ways. My truth is the secret we keep has the most power over us. An you both have shown that to be true.
Love and God Bless
Charles
Thanks for the kind words, Charles. I agree. I’ve found it liberating to talk about things i might be hard pressed to share
@@RaifDerrazi I want to share your video is the first one I have ever taken the time to reply to because of the number of subjects you both were addressing.
@@ctreynolds5579 of course, share with whomever you like
Mark is really cool
Yes he is!
❤❤❤❤❤❤❤❤❤❤
You are so nice bro , love you from India😊.
Much love to you
Pls take another interview with him and wanna know what is his daily routine!! Really God father
I’ll invite him back when his new book release this fall
Raif..
God bless...
Is HIV infection associated with premature/accelerated ageing, even when it's treated, and your viral load undetectable?
Thank u
Ur very welcome
I believe there will be a cure one day. For hep C there are some already. But the stories of long term survivors are catchy and inspiring. We must never forget what life with HIV meant couple decades ago.
Hepatitis c already have medicine right?
@@danishh1385absolutely! It's now curable in 95% of cases 😊
@@danishh1385 I was taking the drug Zepatier last year (3 months). Now I am HCV free. My PrEP doctor tested me for this. Symptoms: diarrhea and chills (for about two weeks) and extreme fatigue in the afternoon and evening hours throughout the period. After the first pill I noticed a significant improvement.
I don’t have hiv but I love what you are doing for gay men Raif x
Thanks Dean! 😌🙏🏽 this year is really ramping up with content and interviews. I’m really excited to see how things progress from here. And I’d love to eventually expand more past HIV into lgbtq+, mental health, human rights etc
You look FRESH.
😁 ✂️
No one has ever told me tell me about it so sad
Mark, as you said, you’ve been a guinea pig so I would like to suggest that you might be on the verge of experiencing two other major changes.
Both of these changes I am alluding to will be serious game changers.
Game changer one: We have much better tools for developing cutting edge therapies, tools such as CRISPR, genomic medicine, etc. The potential of these technologies are so huge that I think we will have an approved HIV cure by 2030.
Game changer two: Human age reversal. There has been so much progress made in this area that, again, I think we will start seeing approved anti-aging drugs around 2028 -2030.
Mark, you may very well be an early beneficiary of both of the above.
Raif, you are still a young man and you have a LOT of life ahead of you. The therapies I mentioned will also play a significant role in your life. Add to this the fact that we are seeing tremendous progress in AI, quantum computing, genomic medicine, and nanotechnology, the future looks very bright.
Wish you both all the best.
Thank you for the insightful comment. I couldn’t agree more! So much potential with new technology for the future. 🙏🏽
@@RaifDerrazi ❤️
I'm praying both game changer s find me and revolutionise my life despite living in Africa.The wait has been long.
all these medical technological advancements are always extremely expensive and only the rich will be able to afford them at first. it will take at least 20 years until ordinary people with ordinary salaries will have access to new treatments. just look at ARVs for HIV they were extremely expensive in the beginning but have started to come down in price but are still expensive for many people.
It's not just about gays sir 😢😢😢😢😢😢
As an RN I disagree that medical has advanced. No cure after 50 years? Aww come on....let's all drag our feet. BTW you leave heteros behind. Truly....😢
I just have 1 question why do men like men what is is about a man that is liked.
Try to imagine a world where it is normal for men to like men. And that most men are attracted to men. You are the odd one out. For some reason you like women. Can you explain why you like women, and why you don’t like men like most everyone else?
Can people stop calling HIV AIDS; so annoying and ignorant they are not the same thing
Are you alluding to something said in the video where or just in general?
@@RaifDerrazi No just in general