Thanks for posting these videos. They really help my dad, who is suffering from various kidney failure and diabetes complications. It can be very emotional and exhausting sometimes. I feel for you kidney patients, and wish there was a faster solution besides just waiting for a transplant. Take care.
Thanks for making these videos. My husband will be starting at home dialysis. He is currently using an emergency chest port and going to a clinic three times a week. Your videos helped us see what to expect.
This is very similar to mine. However I have to scrub my transfer set for 1 min with a 4 x 4 and Alcavis solution and then use another 4x4 to soak the transfer set for 2 min which I do toward the end of the priming phase and then hook to the patient line immediately. And then tape the line to my stomach to keep it secure. Also I have tremendous drain pain, so I have been given lidocaine to inject 5ml into each bag . I shake them vigorously to help the lidocaine blend with the solution and it does take the edge off. So I usually can sleep through drain 2&3, but I guess by 4 it either wears off or my pain medicine has been removed as a “toxin” because it almost always jolts me awake like a bolt of lightening spreading through my pc. Not to mention the cleaning of the port site with the except solution then apply the gentamicin cream and then wrap the small bandages around the tubing exit site and then tape all that down. I just wish I would have studied up on it a little more before just jumping into it only a few months after being on Hemo. It’s a lot of supplies and a lot of trash and a higher risk for infection especially for people with animals. Luckily I don’t have any but I do have a five year old fairy active son who is definitely fascinated with the process. Oh, I either have to mask him up and make him sit very still or wait until he falls asleep. But I did find this pretty informative. I’ve been looking for a video to share on my Facebook because I get so many questions and it’s so hard to explain. Well done.
Thank you for sharing your experience with dialysis. The more we share and take about what worked and what didn't will help other know what form of dialysis will work best for them. Thanks again!
I found this video especially interesting as your routine is different than mine. When setting up the cycler I have to enter my weight and lowest BP measurement from my morning BP. I’m orthostatic so for me it’s typically my standing BP. Every morning I have to record my temperature, initial drain amount, total UF, average dwell time, and lost dwell time. I also use two different sized bags with the larger on the warming tray. You didn’t mention anything about cramping when the cycler drains the fluid. Do you not have any cramping? Some people apparently have cramping bad enough that they have switched to hemodialysis. Mine is bad enough to be irritating if I’m awake.
Thank you for the video, on the second bag that is not on the warmer, how does it get warmed up? Do you get up in the middle of night to place in on the warmer? Thank you
Another great demonstration, Kidney Keeping. I'm seriously considering PD but didn't completely understand the ambulatory cycle. I suppose there are free intervals between cycles to perform activities?
This has been so helpful. I’ve been binge watching all of your videos because my husband will be starting PD soon. Can you please tell me if this is the Baxter PD cycler?
Thabks. You made this so simple. Im n training now for PD and will be starting soon. Do you have drain pain? Cause ive heard that the drain pain is awful
hello, my dad is a PD patient, and he also uses the baxter cycler too. he experience low drain volume alarm every single night from 2-4 times a night, he is not getting enough sleep because he has to wake up and standup to allow the drain to process. Sometime during drain phase of the cycle he also experience pain too. He is taking Lactulose 3 times a day, but other than that with your experience is there any other advice you could give regarding the low drain volume alarm ? Many thanks and wish all the best to you !
I made another video on PD tips that might be helpful. By rolling over to my right side (my PD catheter is on my left) and adjusting the tubing I was able to stop the cycler from peeping at me. I also made sure I didn't eat anything after an early dinner. That seemed to help. If your Father has to stand up to allow the fluid to drain better it might be helpful to sleep propped up? Also is the cycler height situated above or below the level of the bed? Maybe lowering the height of the cycler will make the draining process easier on the machine? I experienced drain pain also. If it is very painful, you can have more fluid left in your peritoneal cavity and that should help. Make sure your Father talks with the nurse at his clinic. They'll be able to help.
My daughter did this for 1 week and it went left ! Her body wasnt draining the fluid properly and put her into fluid overload,whic caused her to be hosptalized for a few weeks! She prefers hemo at the center now, where you have trained people there just in case something happens.
Doing therapy overnight (8 hours) is enough to keep my blood levels within a safe range throughout the day. I still eat really healthy and I'm sure that helps.
Why does your machine screen flicker. That would be annoying 😞 And wouldn't you disinfect the connecters before and after to protect yourself from possible infection. I watched another video and the girl disinfected before and after using.
It flickers because the speed of my phone camera and the "refreshing" of the cycler's screen does not match up. The screen doesn't flicker when looking at it normally. Each clinic or company that supplies the machine, fluids and tubing have different safety measures. I follow the steps my nurse trained me with. I don't need to disinfect the connecters before hooking up and de-attaching, because each tube where I need to connect is covered with a rubber seal ( which I have to pull off) and the mini caps I use are filled with iodine. I do wash my hands a wear a mask each time I connect or disconnect.
Thanks for posting these videos. They really help my dad, who is suffering from various kidney failure and diabetes complications. It can be very emotional and exhausting sometimes. I feel for you kidney patients, and wish there was a faster solution besides just waiting for a transplant. Take care.
The perfect video i needed !!!
Thanks for making these videos. My husband will be starting at home dialysis. He is currently using an emergency chest port and going to a clinic three times a week. Your videos helped us see what to expect.
I'm glad this method is working out for you.
Thank You. Very well done. I will be going on next month. Kind of scared. Chuck
It is scary because it will be a big life change. But for me things got better once my body got used to dialysis. I hope everything works out for you!
Thank you so much for sharing and teaching us on how to use the dialysis machine ❤❤❤
Thank you so much 🙏🏼
Im an RN in training for this modality. This helped alot thank you
cool !!!. You make it look easy 🙂
This is very similar to mine. However I have to scrub my transfer set for 1 min with a 4 x 4 and Alcavis solution and then use another 4x4 to soak the transfer set for 2 min which I do toward the end of the priming phase and then hook to the patient line immediately. And then tape the line to my stomach to keep it secure. Also I have tremendous drain pain, so I have been given lidocaine to inject 5ml into each bag . I shake them vigorously to help the lidocaine blend with the solution and it does take the edge off. So I usually can sleep through drain 2&3, but I guess by 4 it either wears off or my pain medicine has been removed as a “toxin” because it almost always jolts me awake like a bolt of lightening spreading through my pc.
Not to mention the cleaning of the port site with the except solution then apply the gentamicin cream and then wrap the small bandages around the tubing exit site and then tape all that down.
I just wish I would have studied up on it a little more before just jumping into it only a few months after being on Hemo. It’s a lot of supplies and a lot of trash and a higher risk for infection especially for people with animals. Luckily I don’t have any but I do have a five year old fairy active son who is definitely fascinated with the process. Oh, I either have to mask him up and make him sit very still or wait until he falls asleep.
But I did find this pretty informative. I’ve been looking for a video to share on my Facebook because I get so many questions and it’s so hard to explain. Well done.
Thank you for sharing your experience with dialysis. The more we share and take about what worked and what didn't will help other know what form of dialysis will work best for them. Thanks again!
I found this video especially interesting as your routine is different than mine. When setting up the cycler I have to enter my weight and lowest BP measurement from my morning BP. I’m orthostatic so for me it’s typically my standing BP. Every morning I have to record my temperature, initial drain amount, total UF, average dwell time, and lost dwell time. I also use two different sized bags with the larger on the warming tray. You didn’t mention anything about cramping when the cycler drains the fluid. Do you not have any cramping? Some people apparently have cramping bad enough that they have switched to hemodialysis. Mine is bad enough to be irritating if I’m awake.
Thank you for the video, on the second bag that is not on the warmer, how does it get warmed up? Do you get up in the middle of night to place in on the warmer? Thank you
Good morning, I am looking on technical documentation about Gambro Intergra, an old model dialysis machine. Thank you for your help.
🙄
Another great demonstration, Kidney Keeping. I'm seriously considering PD but didn't completely understand the ambulatory cycle. I suppose there are free intervals between cycles to perform activities?
This has been so helpful. I’ve been binge watching all of your videos because my husband will be starting PD soon. Can you please tell me if this is the Baxter PD cycler?
Thabks. You made this so simple. Im n training now for PD and will be starting soon. Do you have drain pain? Cause ive heard that the drain pain is awful
interesting !!!
Didn't show input of bags. But I understand it was a moch start.
hello, my dad is a PD patient, and he also uses the baxter cycler too. he experience low drain volume alarm every single night from 2-4 times a night, he is not getting enough sleep because he has to wake up and standup to allow the drain to process. Sometime during drain phase of the cycle he also experience pain too.
He is taking Lactulose 3 times a day, but other than that with your experience is there any other advice you could give regarding the low drain volume alarm ?
Many thanks and wish all the best to you !
I made another video on PD tips that might be helpful. By rolling over to my right side (my PD catheter is on my left) and adjusting the tubing I was able to stop the cycler from peeping at me. I also made sure I didn't eat anything after an early dinner. That seemed to help.
If your Father has to stand up to allow the fluid to drain better it might be helpful to sleep propped up? Also is the cycler height situated above or below the level of the bed? Maybe lowering the height of the cycler will make the draining process easier on the machine?
I experienced drain pain also. If it is very painful, you can have more fluid left in your peritoneal cavity and that should help. Make sure your Father talks with the nurse at his clinic. They'll be able to help.
He can also have lidocaine to inject into his bags to help with drain pain if his doc agrees to it
This have all the arguments for me to prefer hemodialysys.
My daughter did this for 1 week and it went left ! Her body wasnt draining the fluid properly and put her into fluid overload,whic caused her to be hosptalized for a few weeks! She prefers hemo at the center now, where you have trained people there just in case something happens.
Is there a reason you don’t use the cycles during the day as well?
Doing therapy overnight (8 hours) is enough to keep my blood levels within a safe range throughout the day. I still eat really healthy and I'm sure that helps.
Why does your machine screen flicker. That would be annoying 😞
And wouldn't you disinfect the connecters before and after to protect yourself from possible infection. I watched another video and the girl disinfected before and after using.
It flickers because the speed of my phone camera and the "refreshing" of the cycler's screen does not match up. The screen doesn't flicker when looking at it normally.
Each clinic or company that supplies the machine, fluids and tubing have different safety measures. I follow the steps my nurse trained me with.
I don't need to disinfect the connecters before hooking up and de-attaching, because each tube where I need to connect is covered with a rubber seal ( which I have to pull off) and the mini caps I use are filled with iodine. I do wash my hands a wear a mask each time I connect or disconnect.
Madm ye beg chyhe hum ko