My husband just got his pd catheter and I went for a week of training for him but we've been on our own this weekend and I feel like everything that could have went wrong did so I Googled last night and found your very helpful video that I have saved because I'm sure I'll be watching it again lol God bless you your wife and fur babies 🙂 🙏 thank you!!
My partner just got her catheter, so this is all new for us. This is a great video! Thank you for your generosity in putting this out! Your explanations are clear and make this all look a little less scary!
Nicely done, mate. I'm starting my home thearpy July 17 24. At 70 years of age I'm really not the best choice for transplant, when you could give the kidney to a younger person. Thats life. Will follow you if you make more videos. I'm with kaiser they have a very comprehensive program using Baxter products. The pd team remains state of the art . I'm very happy with there program. Well take care of your self, and be well. Thanks!
Hi! Thank you for this very informative video. I just had my PD catheter inserted last Sept. 10, 2021. I have CKD IgA Nephropathy. I will start my Home dialysis training on the 1st week of October. You're video is a great help. Thanks! I'm happy to know that you already got a new kidney. Congratulations 😊
I am a dialysis nurse in Canada, work hemodiaylsis and soon to be cross trained to PD and hopefully train people to do this at home You did an excellent job demonstrating and teaching It was very authentic and helpful Thank you 😊
This will be my life starting this week. I got my PD cath last week. I guess it’s either this or die. Thanks for explaining the process. I haven’t met with my PD nurse yet and of course I’m nervous about learning this.
MAY GOD BLESS YOU ALL THE DAYS OF YOUR LIFE ... 🙏🙏🙏 I'm in stage 5 ... I'm going for my first counseling session Sept 11 2023 ... I have to decide what procedure to go with ... This helped me immensely ... Thank You! Stay Strong 💪💪💪 ❤
This is so helpful - thankyou. I've just had my catheter in ...going for my first bandage change and flush today. Every step of this process gives me anxiety; watching this helps relieve the anxiety a little as I understand more about what's ahead.
I'm 20 and soon i'll have PD too.I'm scared because i'm also overweight and the surgeon said they might need to cut off something.I also have cats and before this video i was scared that i might have to get rid of them,but you placed hope in me by saying you just kick them out at night.I hope myself and everyone who needs kidney will get one very soon!
You are a inspiration to me because I am about to start PD dialysis for my mom and your video has been an excellent resource for me since I am totally blind and I take care of her. Thank you so much for the gift that you have given me.
My wife goes in for surgery to morrow Morning to have the catheter installed... I will get her to watch your set up. next week as she heals.. Thanks for the info..
This video helped me cement my decision to switch to PD. I was going in-center for 3 months, switched to home-hemo for 5 months and I’ve had so many complications with it that my doctor wanted me to consider PD (I’ve been vehemently against it because I didn’t want the stomach tube). Thank you for sharing your experience and process!
Not so much stomach tube. But the possibility of something call drain pain. Apparently some people find it goes away in a couple months and some people always have it. Be aware it may not be painless. It might hurt every time you drain. I know it was horrible for me for my first flush. Please keep me updated. I hope you do well
Very nice well put together video. I just turned 21 and was diagnosed with stage 5 chronic kidney disease. (Dam genetics) I’ve been doing this at home dialysis for a week now and it’s not fun. It’s a pain in the but sometimes with drain pain. I would never wish any of this on my worst enemy. I’m just praying I can find a kidney and get rid of this machine and boxes. But you know it could always be worse. Im able to live and breath and walk this earth another day where some people aren’t. Life is crazy but I guess it could always be worse
I like your positivity. It not fun buts gets better with time. I don’t know your medical history but think being so young you would have a great opportunity at one. It is well worth the work and time you have to put in. Stay positive and do what you can to be in the position when that day comes so you are ready. Stay healthy as you can and show the doctors you will do your best to give that kidney it best chance. I am really rooting for you and wish you the best. If there is any I can do let me know. Things will get better!
I just got my PD catheter put in… in class train the intake fluids are not bad at all… but releasing the fluids out i thought I was about to pass out 🤦🏽♂️ but thanks for the video.. And congratulations on your new kidney!!
The drains got much better with time for me. Some times moving into another position can help a lot. )roll on another side or even standing) I hope things improve you.
This was an excellent presentation it helped to answer several questions that I had. I especially liked the part showing the cleaning of the black threads of the transfer. Many thanks
I was PD for a year before my transplant. I would unhook during the swell time and do whatever then hook back up for the drain refill. I would do this during the day do I was free at night
Hi , i am from Philippines, I am a PD dialysis patient too but unlike you , my PD dialysis is manual and there's a big differences i guess I'm between automated PD dialysis and manual Pd dialysis . I watched your video to get some idea , how long have u been doing that already in just a newbie Pd patient and it's really hard to adjust my self
Very interesting. If and when I need dialysis I'm leaning towards in clinic. I struggle with depression and anxiety, so my cat in my emotional support. Having him near me at night helps to ease my pain and worry. But I'll just have to see what my doctors suggest. That said I'm hoping and praying that I'll never need dialysis again.
@@lifewithkidneydisease Right now numbers are just being watched. That said if I start feelings symptoms then I might be looking at dialysis, unless one of my siblings is a match.
@LifeWithKidneyDisease Thank you so much for this video. You make it look so easy; I hope I’m as successful when I start. I literally just had my catheter inserted this morning. I’m wondering if you were trained on both the Manual type AND the Automatic at the same time? Or do you learn the manual first, do that for a while and then praise Ed to do the automatic? Thank you in advance and congratulations on your transplant!!! 🎉🎉
@LifeWithKidneyDisease Thank you so much for this video. You make it look so easy; I hope I’m as successful when I start. I literally just had my catheter inserted this morning. I’m wondering if you were trained on both the Manual type AND the Automatic at the same time? Or do you learn the manual first, do that for a while and then train to do the automatic? Thank you in advance and congratulations on your transplant!!! 🎉🎉
Very informative video and congrats on your transplant. I'm wanting to get the belt your using. I tried amazon and I can't seem to find one like yours. Would you please tell me where to find it. TY
@@lifewithkidneydisease so far so Good I've haven't had any problems. I like it so far , I'm just doing the manual bags right now 4x a day 🙄 but in a few more weeks my Dr said I can switch to the machine I can't wait
I was a blood and organ donor until I was told I was stage 3 ckd. But my other organs and was still a go. Then I started having trouble pulling a 40 so no more blood. Then I was diagnosed with prostate cancer so I’m giving to science.
Thank you for video! After I load cassettes for my dad I always leave the patient clamp open and I noticed you closed it. Ahh wonder if I’m doing it wrong. The PD nurse said leaving it open releases any air the hoses might have.
great video , thanks....i have a transplant kidney of 25 months and it's failing now because of dealing with BK virus so i will be going onto PD for the 1st time , didn't do dialysis before transplant , so my question is ....any problem with line tangle while sleeping because of movement at night ? thanks !
Hi my name is Amin and my mother 78 is doing PD Dialysis but we do the manual dialysis twice a day during the daytime. So we have been thinking to shift to a dialysis PD machine during the night but have some concerns/questions hope you can guide me. thx 1. Can one pause during night dialysis and go to the bathroom and then reconnect or the code/lead is long enough that u don't have to disconnect at all?? 2. I am assuming once you get on to the night machine you will not have to do any dialysis during the day, is that correct??
You can get long connections so depending how far your bathroom is away from your bedroom. You could get to it without disconnecting. I don’t get up very often in the night so I didn’t use the longer ones. When I did have to get up I was able to disconnect and reconnect when needed. Depends on many variables so it’s not the same for everyone, but I was able to do all my PD at night. I didn’t have to do any during the day.
Thank you for this video. My brother has the implanted one on his upper arm. but he said it hurts so bad. I am considering doing this, because it's getting hard at night to see driving, and his goes from 4 p.m. until 8 p.m., but he usually doesn't get out of there until 9. This would be much more convienant. He can't do it himself because he is blind now, and he has congestive heart failure. I don't know if Medicare would allow him to do this since he has only had the implate about a year. He is always so drained at the end of it. Headaches, and so tired. I have been looking for a video just like this, to see how to do it, but I know it's like a 10 week course to be able to do it at home in (illinois.)
my mom is on hemo and when I brought up PD with her she was worried about bloodpressure fluctuations during treatment. what do you do if its too high or too low.
I found that my blood pressure was greatly effected by fluids retention. If I was holding a lot of water I would use a stronger pd solution that night that would pull more water off. Limiting my salt intake greatly helped as well. But really the salt just makes you hold on to water. PD often runs over night depending on dwell time. It removes fluid at a slower rate then something like hemo (only 4 hours). I never had sudden drops in blood pressure like you hear people struggling with on hemo.
What if you have to go to the bathroom when hooked up? The machine does not look to be mobile. If you have IBD, this could be an issue for you. Thanks.
Is the port painful at all? Does it irritate your skin? My father will need pd soon and he had a gall bladder drain last year that really irritated his skin. I am concerned about the port.
For me it was not bad, something to get use to for sure. No pain with it once it healed. They had me use a cream on it every day So maybe that helps prevent it from getting itchy and staying clean. They had me use tape to hold it in place as well as hold a bandage cover over it when not in use. Not sure if he has any issues with adhesive but something to be aware of. I am sure they might have alternative options. Hope this helps!
Aiha....i'm nurse Cra Italy. 😢devo usare la macchina e sarò sola ... ricevuto spiegazione insufficiente...si jna ospite che entrerà prossimamente help me thankyou
I don’t have anything automated . We had a tornado come through last year. Lost power for 16 hours. I just did a manual drain the following morning. If power would of not returned I would of had to figure out A plan. (Run our generator or spend the night someplace else.) We have had short power outages loosing power for 10 - 15 minutes and the machine has a built in battery that keeps track of dwell time for up to two hours. When the power returns it just goes from there.
My husband just got his pd catheter and I went for a week of training for him but we've been on our own this weekend and I feel like everything that could have went wrong did so I Googled last night and found your very helpful video that I have saved because I'm sure I'll be watching it again lol God bless you your wife and fur babies 🙂 🙏 thank you!!
Just got a new kidney on the 24th of last month
That is huge! Congrats!!! I am so happy for you!
How long was your waiting time and is the kidney here in USA?
My partner just got her catheter, so this is all new for us. This is a great video! Thank you for your generosity in putting this out! Your explanations are clear and make this all look a little less scary!
Nicely done, mate. I'm starting my home thearpy July 17 24. At 70 years of age I'm really not the best choice for transplant, when you could give the kidney to a younger person. Thats life. Will follow you if you make more videos. I'm with kaiser they have a very comprehensive program using Baxter products. The pd team remains state of the art . I'm very happy with there program. Well take care of your self, and be well.
Thanks!
I love seeing this from the patient's perspective. Very well done!
Hi! Thank you for this very informative video. I just had my PD catheter inserted last Sept. 10, 2021. I have CKD IgA Nephropathy. I will start my Home dialysis training on the 1st week of October. You're video is a great help. Thanks! I'm happy to know that you already got a new kidney. Congratulations 😊
I am a dialysis nurse in Canada, work hemodiaylsis and soon to be cross trained to PD and hopefully train people to do this at home You did an excellent job demonstrating and teaching It was very authentic and helpful Thank you 😊
Omg totally agree, it was better in ways than the in-services I've gotten on PD😂 good luck becoming a renal care nurse! ❤️
This will be my life starting this week. I got my PD cath last week. I guess it’s either this or die. Thanks for explaining the process. I haven’t met with my PD nurse yet and of course I’m nervous about learning this.
My mom started pd on october 2023. 7 months ago i was here, researching as much as i was able to. Thank you for your videos.
Thank you for the demonstration. Feb 20th 2024 i have my first pd treatment after a year of hemodialysis
MAY GOD BLESS YOU ALL THE DAYS OF YOUR LIFE ...
🙏🙏🙏
I'm in stage 5 ...
I'm going for my first counseling session Sept 11 2023 ...
I have to decide what procedure to go with ...
This helped me immensely ...
Thank You!
Stay Strong 💪💪💪
❤
This is so helpful - thankyou. I've just had my catheter in ...going for my first bandage change and flush today. Every step of this process gives me anxiety; watching this helps relieve the anxiety a little as I understand more about what's ahead.
I'm 20 and soon i'll have PD too.I'm scared because i'm also overweight and the surgeon said they might need to cut off something.I also have cats and before this video i was scared that i might have to get rid of them,but you placed hope in me by saying you just kick them out at night.I hope myself and everyone who needs kidney will get one very soon!
It’s a little weird and scary at first. Do what you need to do (keep things clean, follow dr orders) it gets easier. You got this!
You are a inspiration to me because I am about to start PD dialysis for my mom and your video has been an excellent resource for me since I am totally blind and I take care of her. Thank you so much for the gift that you have given me.
My wife goes in for surgery to morrow Morning to have the catheter installed... I will get her to watch your set up. next week as she heals.. Thanks for the info..
Hope all goes well with a quick recovery.
Great information ! I go for Hemodialysis @ the hospital. I go 3x a week for a 7hrs period.
This video helped me cement my decision to switch to PD.
I was going in-center for 3 months, switched to home-hemo for 5 months and I’ve had so many complications with it that my doctor wanted me to consider PD (I’ve been vehemently against it because I didn’t want the stomach tube).
Thank you for sharing your experience and process!
Not so much stomach tube. But the possibility of something call drain pain. Apparently some people find it goes away in a couple months and some people always have it.
Be aware it may not be painless. It might hurt every time you drain.
I know it was horrible for me for my first flush.
Please keep me updated. I hope you do well
What was your impression of in center dialysis?
I've been in the hospital for 2 weeks & am getting my PD catheter put in, in 2 or 3 days. Thank you very much for this video
Peace and strength on your journey.
My daily routine....we all r warriors...
Keep strong bro!
Stay blessed 🙌
Same to you!!!
Very nice well put together video. I just turned 21 and was diagnosed with stage 5 chronic kidney disease. (Dam genetics) I’ve been doing this at home dialysis for a week now and it’s not fun. It’s a pain in the but sometimes with drain pain. I would never wish any of this on my worst enemy. I’m just praying I can find a kidney and get rid of this machine and boxes. But you know it could always be worse. Im able to live and breath and walk this earth another day where some people aren’t. Life is crazy but I guess it could always be worse
I like your positivity. It not fun buts gets better with time. I don’t know your medical history but think being so young you would have a great opportunity at one. It is well worth the work and time you have to put in. Stay positive and do what you can to be in the position when that day comes so you are ready. Stay healthy as you can and show the doctors you will do your best to give that kidney it best chance. I am really rooting for you and wish you the best. If there is any I can do let me know. Things will get better!
I just got my PD catheter put in… in class train the intake fluids are not bad at all… but releasing the fluids out i thought I was about to pass out 🤦🏽♂️ but thanks for the video.. And congratulations on your new kidney!!
The drains got much better with time for me. Some times moving into another position can help a lot. )roll on another side or even standing) I hope things improve you.
It was unbearable for me. I barely made it through 200ml on my first flush 1 week post op.
thank you for the review and tips, our son will be going on dialysis soon and this helped a lot. Take Care.
Great Video, my wife is about to start Dialysis and this was very helpful to myself as I will be performing the home dialysis for her. Thanks again
Keep up the great work I had friends that did this too
Excellent presentation. Thank you so much for sharing. ❤️
This was an excellent presentation it helped to answer several questions that I had. I especially liked the part showing the cleaning of the black threads of the transfer. Many thanks
Great video I wish you the best...God bless you
I was PD for a year before my transplant. I would unhook during the swell time and do whatever then hook back up for the drain refill. I would do this during the day do I was free at night
Hi , i am from Philippines,
I am a PD dialysis patient too but unlike you , my PD dialysis is manual and there's a big differences i guess I'm between automated PD dialysis and manual Pd dialysis . I watched your video to get some idea , how long have u been doing that already in just a newbie Pd patient and it's really hard to adjust my self
Very interesting. If and when I need dialysis I'm leaning towards in clinic. I struggle with depression and anxiety, so my cat in my emotional support. Having him near me at night helps to ease my pain and worry. But I'll just have to see what my doctors suggest. That said I'm hoping and praying that I'll never need dialysis again.
Stay strong! Cats sure can sooth the soul. I hope things go well for you.
@@lifewithkidneydisease Right now numbers are just being watched. That said if I start feelings symptoms then I might be looking at dialysis, unless one of my siblings is a match.
I am considering this method of dialysis. Thank you so much for this video is it was very helpful to me.
Thank you for making this video and sharing. I really appreciate it!
EXCELLENT VIDEO!!! Thank you!!!
@LifeWithKidneyDisease Thank you so much for this video. You make it look so easy; I hope I’m as successful when I start. I literally just had my catheter inserted this morning. I’m wondering if you were trained on both the Manual type AND the Automatic at the same time? Or do you learn the manual first, do that for a while and then praise Ed to do the automatic? Thank you in advance and congratulations on your transplant!!! 🎉🎉
Your videos helps make this a little less overwhelming
Thank you
It sure can be tough at times, just need to keep your head up and keep fighting forward. I hope things go the best they can go!
I feel for ya. It is very tough having gone thru this kidney disease. Hopefully you get a transplant soon.
The blue clamp is for Icodextrin which is the last fill for day time dialysis.
@LifeWithKidneyDisease Thank you so much for this video. You make it look so easy; I hope I’m as successful when I start. I literally just had my catheter inserted this morning. I’m wondering if you were trained on both the Manual type AND the Automatic at the same time? Or do you learn the manual first, do that for a while and then train to do the automatic? Thank you in advance and congratulations on your transplant!!! 🎉🎉
I've got it. Kidney failure too been waiting for year's or transplant I don't know what is going on with ir
Very informative video and congrats on your transplant. I'm wanting to get the belt your using. I tried amazon and I can't seem to find one like yours. Would you please tell me where to find it. TY
Thanks so much for this video I'm just now starting my home treatments and this was very helpful
Hope things go really well for you!
@@lifewithkidneydisease so far so Good I've haven't had any problems. I like it so far , I'm just doing the manual bags right now 4x a day 🙄 but in a few more weeks my Dr said I can switch to the machine I can't wait
Hi thank you so much for this information, I am about to have my port inserted in 2 weeks. I am from 🇦🇺
Hope everything goes really well for you! I felt so much better after starting dialysis.
@@lifewithkidneydisease thank you I hope so 🤞🏼
I was a blood and organ donor until I was told I was stage 3 ckd. But my other organs and was still a go. Then I started having trouble pulling a 40 so no more blood. Then I was diagnosed with prostate cancer so I’m giving to science.
Very good information from a patient standpoint.
Your video was helpful and informative
The machine is intimidating so much to do and a lot to keep everything Sterlized.
FYI: everyone saying that home dialysis sessions take about 8hours to complete. WRONG!
More like 8 and a half almost 9hrs.
Your so awesome, God Bless you ❤
Could you please put PD in the description… does it refer to a type of dialysis ? Peritoneal Dialysis?
Or is it a brand name
Thank you for video! After I load cassettes for my dad I always leave the patient clamp open and I noticed you closed it. Ahh wonder if I’m doing it wrong. The PD nurse said leaving it open releases any air the hoses might have.
Thanks and good job. I am going on this soon
Great video, great job explaining
How is everything going? Little scary at first but it gets easier. Hope it’s going well and you can find a transplant soon!
great video , thanks....i have a transplant kidney of 25 months and it's failing now because of dealing with BK virus so i will be going onto PD for the 1st time , didn't do dialysis before transplant , so my question is ....any problem with line tangle while sleeping because of movement at night ? thanks !
I just started PD
Hi my name is Amin and my mother 78 is doing PD Dialysis but we do the manual dialysis twice a day during the daytime. So we have been thinking to shift to a dialysis PD machine during the night but have some concerns/questions hope you can guide me. thx
1. Can one pause during night dialysis and go to the bathroom and then reconnect or the code/lead is long enough that u don't have to disconnect at all??
2. I am assuming once you get on to the night machine you will not have to do any dialysis during the day, is that correct??
You can get long connections so depending how far your bathroom is away from your bedroom. You could get to it without disconnecting.
I don’t get up very often in the night so I didn’t use the longer ones. When I did have to get up I was able to disconnect and reconnect when needed.
Depends on many variables so it’s not the same for everyone, but I was able to do all my PD at night. I didn’t have to do any during the day.
I like the paper towel dispenser. I’m still using manual. How long did it take to get on the cycler?
I had to got to trading fir a few days. Basically how to setting up and hooking up
I to also have kidney failure I to also have dialysis at DaVita dialysis and I know what you’ve been going through, so do I, you’re not alone
Thank you for this video. My brother has the implanted one on his upper arm. but he said it hurts so bad. I am considering doing this, because it's getting hard at night to see driving, and his goes from 4 p.m. until 8 p.m., but he usually doesn't get out of there until 9. This would be much more convienant. He can't do it himself because he is blind now, and he has congestive heart failure. I don't know if Medicare would allow him to do this since he has only had the implate about a year. He is always so drained at the end of it. Headaches, and so tired. I have been looking for a video just like this, to see how to do it, but I know it's like a 10 week course to be able to do it at home in (illinois.)
They only gave us one week of training. But you can call the nurse anytime of day.
Hello. I am currently doing in center dialysis and I am considering PD. I’m not eligible for any kind of transplant.
Dear Hero, what is the instrument name and price, I want one. Please
I MAY HAVE SOME ???MAYBE???I WELL CK WITH YOU LATER, GREAT VIDEO...
How long does it take to her a kidney transplant one. Been waiting for year's how
You don't happen to have a link to that waist band or know what it is called?
It's called Tuck-Away Belt. A handful of places sell them including amazon. Google Tuck-Away Belt and you will find them.
@@lifewithkidneydisease Fantastic! Thanks!
Did you get belt info ?
Strange not to have a connection shield on the end of the line. Asking for trouble.
Can you sleep on your stomach? I have a very difficult time laying on my back
I did many times, but found it to not be as easy then without the port. I would assume a lot of it matters your body type and port placement.
legend 👍
Ya Allah
Ya Rasool Allah
my mom is on hemo and when I brought up PD with her she was worried about bloodpressure fluctuations during treatment. what do you do if its too high or too low.
I found that my blood pressure was greatly effected by fluids retention. If I was holding a lot of water I would use a stronger pd solution that night that would pull more water off. Limiting my salt intake greatly helped as well. But really the salt just makes you hold on to water. PD often runs over night depending on dwell time. It removes fluid at a slower rate then something like hemo (only 4 hours). I never had sudden drops in blood pressure like you hear people struggling with on hemo.
@@lifewithkidneydisease thank you, this is helpful.
What if you have to go to the bathroom when hooked up? The machine does not look to be mobile. If you have IBD, this could be an issue for you. Thanks.
You can unhook from the machine as well as they have much longer lines. So if your bathroom is not too far, you might be able to reach.
🙏🏽🙏🏽😁😁thank you so very much…
Pray for you bro.
Is the port painful at all? Does it irritate your skin? My father will need pd soon and he had a gall bladder drain last year that really irritated his skin. I am concerned about the port.
For me it was not bad, something to get use to for sure. No pain with it once it healed. They had me use a cream on it every day So maybe that helps prevent it from getting itchy and staying clean.
They had me use tape to hold it in place as well as hold a bandage cover over it when not in use.
Not sure if he has any issues with adhesive but something to be aware of. I am sure they might have alternative options.
Hope this helps!
Aiha....i'm nurse Cra Italy. 😢devo usare la macchina e sarò sola ... ricevuto spiegazione insufficiente...si jna ospite che entrerà prossimamente help me thankyou
Is it painful do you get dizzy and sick
I didn’t have any sickness or dizziness. It would get uncomfortable at times during the draining but often I could roll to another position to help.
Do you use a backup generator with this machine?
I don’t have anything automated . We had a tornado come through last year. Lost power for 16 hours. I just did a manual drain the following morning. If power would of not returned I would of had to figure out A plan. (Run our generator or spend the night someplace else.)
We have had short power outages loosing power for 10 - 15 minutes and the machine has a built in battery that keeps track of dwell time for up to two hours. When the power returns it just goes from there.
Hey thanks for this video!!
They forget to say U can't swim in ocean and also sleep with wife or dogs and it's every day....hell no thanks happy at clinic 3 times a week
Lblvk
why are you talking so fast?
lose the mask for the next video.