Wow! This is almost exactly what I’m experiencing after my Covid infection. This has been very debilitating for the past 3 weeks. I don’t feel like the same person that I was before. I am getting very nervous as to how long this will last because it’s been a very taxing on my body. I’m so happy I came across your video and to find someone else who is experiencing this as well. I’m only 6 weeks out from having the illness so I can’t imagine the struggle you have been going through all this time. I have good abs bad days but feel like the symptoms are intensifying as the days go on. I hope we both can get through these difficult times.
Hi Cory, Thank you for sharing and I really hope that you begin to see some improvements. The road to recovery is not a straight line and can feel like a yoyo between good days and bad days which is so mentally challenging. I know what you mean about feeling like the symptoms are intensifying, I experienced this too. The most helpful advice I have been given is rest even when you are not tired. Wishing you a speedy recovery.
I agree. Sharing knowledge at this time is so key. As one of the earliest covid Long Haulers your experiences can be specially helpful for recent sufferers. Wishing you a full and speedy recovery. x
13 months for me also I used to do a lot of parkour and rock climbing before this symptoms have been crazy but right now its mainly fatigue and tingling down my arms along with chest pain and digestive issues but compared to last year its far better its nice to see you sharing your experience i know from looking at older covid out breaks from pubmed it can take some people 3 years so i think it will just be a slow processes :)
Thank you for sharing. Yes it does seem to be a slow process requiring lots and lots of patience. Hopefully it won’t be too much longer before we can enjoy the activities we love again.
@@kungatseringgurung4291 I am taking quite a few different supplements at the moment which I think are all helping. The supplements I take specifically for digestion issues are magnesium carbonate and candex sibo. I also use senna and am on a low-fodmap diet.
Cytodyn from Vancouver, WA, USA is running two FDA trials for long haulers using leronlimab, a monoclonal antibody which blocks CCR5, and it also crosses the blood/brain barrier. Preliminary results indicate this single injection, given once a week, is working, so there is hope for patients with long haulers. Leronlimab is also the best medication for COVID, but the FDA is slow walking an EUA for leronlimab. (I suspect big pharma has more influence on the FDA than Cytodyn, which only has twenty some employees. Check their website cytodyn.com.
Thank you. I had the same experiencing the same experience from March 2020. Keep going. You are going to make it. Thank you thank you thank you. May god bless you ♥️
A long hauler for 9 months now, fatigue and headaches are the primary issues. I have tried Ivermectin and it helped but temporary. Now trying fluvoxamine and it is working. I started with 25mg for two days but could not tolerate, however after I recovered from it, I noticed and improvement, so now working my way up from 6mg. I am able to do things I never could before. Hopefully once I get ramped up to 100mg I improve even more.
Thank you for sharing I really hope that the fluvoxamine helps you to improve. Are you in the UK? I think we are a bit behind here and it has been a challenge getting hold of these treatments.
@@njoyliving Njoy, I am in the USA, but I had to ask my Doctor for the Fluvoxamine. Really just an experiment. I am having a hard time getting up to my target of 100mg, right now just up 50mg. So far not a cure but I do see an improvement in fatigue, maybe 25%. Hopefully they can find a true cure and end this problem for all of us. Good luck. Paul
@@jayantthakkar9695 I started having an allergic reaction at 50mg so I am ramping down right now. Check back with me in a week when I am off of it completely and had a few days to stabilize.
@@bellaa5576 Hello Bella A, I will say I was better than I was prior to taking Fluvoxamine even though I could not tolerate it very long. I am still far from being cured, but I can do things I could not do before. Exercise intolerance and higher heart rate are my primary symptoms still. Headaches and brain fog are much better. I would say if you can get fluvoxamine by all means do it. If you can tolerate it for for a few weeks, it might cure you.
I can so feel your pain Having the same symptoms as yours from past 6 months plus I am in my postpartum phase too.. I can provide one person, she is from India only and I hope she can help you as she is surely helping me Take care 🧿
I heard that yoga can help with post COVID symptoms. Based on your experience, it seems not work that way. I hope there is a breakthrough in the post treatment in the near future. Thanks for sharing your experience.
Hi Ming Xu Thank you for your message. In regards to yoga being helpful in recovery, I do believe that gentle yoga, stretching and qigong as well as other light physical movement such a walking is helpful in assisting recovery. What I have learned from my experience is that the most important thing is to find your threshold and not to over-exert, which is what I kept doing.
I had "my head's on crooked" where it locked in place like a broken bobble head i was at work and it hurt turning ito "my head only turns left" resolving to spastic dancing. I would have been funny but the spastic dance is a real thing and you die from it if you can't stop it. I did and I was exhausted and fell deep into the bowels of the earth for two months.. it's a hard climb out of that abyss... I know the way pretty well I go there regularly on unscheduled inconvenient excursions.
There is also the 'I feel good...really good" symptom that sets you up to try to do something then you curl up in the fetal position and get sucked into the earth for a while again. I never want to risk that in public again.
I can relate so much ! Have you had your cortisol and DHEAs levels checked ? Mine were very low but since I ´ve been supplementing I have so much vu more energy
Thanks for sharing. I think at this point I have tested everything under the sun. Supplements have been very helpful, I think it's a case of very slow progress.
Sounds like mast cell activation syndrome. Vitamin D over forty ng/ml, healthy Keto, intermittent fasting, breathing, to calm down your nervous system, Meditation, 3 month vitamin b complex to bring back your microbiom, only if you have gut issues.
Agree. Does sound lime mast cell. The Gupta programme or Annie Hoppers DNRS are doing wonders for people. An infectious disease specialist in Liverpool has documented his long COVID. He’s fully recovered after doing a brain retaining programme and published it in BMJ
Hi Emily, I am sorry to hear you are going through this experience as well and hope that you are recovering. I am still experiencing most of the symptoms and find that they improve with rest and flare up with overexertion.
Wow! This is almost exactly what I’m experiencing after my Covid infection. This has been very debilitating for the past 3 weeks. I don’t feel like the same person that I was before. I am getting very nervous as to how long this will last because it’s been a very taxing on my body. I’m so happy I came across your video and to find someone else who is experiencing this as well. I’m only 6 weeks out from having the illness so I can’t imagine the struggle you have been going through all this time. I have good abs bad days but feel like the symptoms are intensifying as the days go on. I hope we both can get through these difficult times.
Hi Cory,
Thank you for sharing and I really hope that you begin to see some improvements.
The road to recovery is not a straight line and can feel like a yoyo between good days and bad days which is so mentally challenging. I know what you mean about feeling like the symptoms are intensifying, I experienced this too. The most helpful advice I have been given is rest even when you are not tired.
Wishing you a speedy recovery.
6 weeks is nothing pal
@@MultiMcgurk Yeah,Here I m with 7 months
I agree. Sharing knowledge at this time is so key. As one of the earliest covid Long Haulers your experiences can be specially helpful for recent sufferers. Wishing you a full and speedy recovery. x
Thank you very much. Hopefully by sharing my experience some good can at least come from all this x
Thanks for sharing 🤍 wishing you a speedy and strong recovery
Thank you x
13 months for me also I used to do a lot of parkour and rock climbing before this symptoms have been crazy but right now its mainly fatigue and tingling down my arms along with chest pain and digestive issues but compared to last year its far better its nice to see you sharing your experience i know from looking at older covid out breaks from pubmed it can take some people 3 years so i think it will just be a slow processes :)
Thank you for sharing. Yes it does seem to be a slow process requiring lots and lots of patience. Hopefully it won’t be too much longer before we can enjoy the activities we love again.
What are taking for long term gi issue
@@kungatseringgurung4291 I am taking quite a few different supplements at the moment which I think are all helping. The supplements I take specifically for digestion issues are magnesium carbonate and candex sibo. I also use senna and am on a low-fodmap diet.
Look into the Gupta programme or Annie hoppers DnRS.
Cytodyn from Vancouver, WA, USA is running two FDA trials for long haulers using leronlimab, a monoclonal antibody which blocks CCR5, and it also crosses the blood/brain barrier.
Preliminary results indicate this single injection, given once a week, is working, so there is hope for patients with long haulers.
Leronlimab is also the best medication for COVID, but the FDA is slow walking an EUA for leronlimab. (I suspect big pharma has more influence on the FDA than Cytodyn, which only has twenty some employees. Check their website cytodyn.com.
Thank you for sharing I will have a look at the website.
Thank you. I had the same experiencing the same experience from March 2020. Keep going. You are going to make it. Thank you thank you thank you.
May god bless you ♥️
Thank you for your encouragement. How is your recovery going?
thank you for posting this video. It does help to hear another persons experience with this. I am at 7 months. Not easy
I am sorry to hear you are going through this experience. Wishing you a speedy recovery.
A long hauler for 9 months now, fatigue and headaches are the primary issues. I have tried Ivermectin and it helped but temporary. Now trying fluvoxamine and it is working. I started with 25mg for two days but could not tolerate, however after I recovered from it, I noticed and improvement, so now working my way up from 6mg. I am able to do things I never could before. Hopefully once I get ramped up to 100mg I improve even more.
Thank you for sharing I really hope that the fluvoxamine helps you to improve. Are you in the UK? I think we are a bit behind here and it has been a challenge getting hold of these treatments.
@@njoyliving Njoy, I am in the USA, but I had to ask my Doctor for the Fluvoxamine. Really just an experiment. I am having a hard time getting up to my target of 100mg, right now just up 50mg. So far not a cure but I do see an improvement in fatigue, maybe 25%. Hopefully they can find a true cure and end this problem for all of us. Good luck.
Paul
Hello paul ,
Any luck with fluvoximine.
Your revert would be appreciated and i guess you have to stop talking a lot more other drugs that might react
@@jayantthakkar9695 I started having an allergic reaction at 50mg so I am ramping down right now. Check back with me in a week when I am off of it completely and had a few days to stabilize.
@@bellaa5576 Hello Bella A, I will say I was better than I was prior to taking Fluvoxamine even though I could not tolerate it very long. I am still far from being cured, but I can do things I could not do before. Exercise intolerance and higher heart rate are my primary symptoms still. Headaches and brain fog are much better. I would say if you can get fluvoxamine by all means do it. If you can tolerate it for for a few weeks, it might cure you.
I can so feel your pain
Having the same symptoms as yours from past 6 months plus I am in my postpartum phase too..
I can provide one person, she is from India only and I hope she can help you as she is surely helping me
Take care 🧿
Hi there! did you take your 1st dose of vaccine already? some people recover from their long term symptoms because of the vaccine
I heard that yoga can help with post COVID symptoms. Based on your experience, it seems not work that way. I hope there is a breakthrough in the post treatment in the near future. Thanks for sharing your experience.
Hi Ming Xu
Thank you for your message.
In regards to yoga being helpful in recovery, I do believe that gentle yoga, stretching and qigong as well as other light physical movement such a walking is helpful in assisting recovery.
What I have learned from my experience is that the most important thing is to find your threshold and not to over-exert, which is what I kept doing.
Thank you for sharing!!
Have you found vagus nerve exercises help?
Thank you
Brave, thank you.
I had "my head's on crooked" where it locked in place like a broken bobble head i was at work and it hurt turning ito "my head only turns left" resolving to spastic dancing. I would have been funny but the spastic dance is a real thing and you die from it if you can't stop it. I did and I was exhausted and fell deep into the bowels of the earth for two months.. it's a hard climb out of that abyss... I know the way pretty well I go there regularly on unscheduled inconvenient excursions.
There is also the 'I feel good...really good" symptom that sets you up to try to do something then you curl up in the fetal position and get sucked into the earth for a while again. I never want to risk that in public again.
What an awful experience. I hope your symptoms have improved.
I can relate so much ! Have you had your cortisol and DHEAs levels checked ? Mine were very low but since I ´ve been supplementing I have so much vu more energy
Thanks for sharing. I think at this point I have tested everything under the sun. Supplements have been very helpful, I think it's a case of very slow progress.
Sounds like mast cell activation syndrome. Vitamin D over forty ng/ml, healthy Keto, intermittent fasting, breathing, to calm down your nervous system, Meditation, 3 month vitamin b complex to bring back your microbiom, only if you have gut issues.
Agree. Does sound lime mast cell. The Gupta programme or Annie Hoppers DNRS are doing wonders for people. An infectious disease specialist in Liverpool has documented his long COVID. He’s fully recovered after doing a brain retaining programme and published it in BMJ
I know that you mean. Felt it too. So how do you feel now
Hi Emily, I am sorry to hear you are going through this experience as well and hope that you are recovering. I am still experiencing most of the symptoms and find that they improve with rest and flare up with overexertion.
You should never reduce exercise . Exercise is important for inflammation can’t believe theses doctors keep saying no exercise .
Has the vaccine helped anyone with their long covid?
Any changes in heart rate
Hope you feel better now ???
@@rafeezkhan8996 no
@@rafeezkhan8996 no cure
sounds like Epstein Barr Virus alot of us long haulers have this...I've been down 15 months