I survived a severe Traumatic Brain Injury (TBI) and all the professionals wrote off my life. Despite this, I worked and worked and worked some more. I never gave up, went to college, graduated, got married, had some children and wrote a book, Being-Here (my pen name is Jake Band). "Life and living after surviving your TBI" is Being-Here's subtitle. In about a month, I will be a certified Post-TBI Wellness Life Coach. If you survived a TBI, Keep on Keepin' on, and do not give up. Work to be who you want to be!
Hello , my close friend had a craniotomy recently ..his left hand and leg is paralyzed from edh ..can you please help by giving some answers ? Can his paralysis go with time or it is permanent?
I wake up everyday and feel like I have someone else’s brain in my head. Lost everything after a TBI, career , home, and future. It’s been 8 years and I live with loss of vision, loss of sense of smell, anxiety, seizures, tinnitus, depression, stuttering, loss of confidence, tremors,vertigo and much more… you have to live through it to understand. I’ve.ost family and friends . I really lost myself
It breaks my heart that you’ve been going through all this pain and that you’re still suffering so much 😔💔 May God heal and comfort you with His love. Jesus promised everyone who believe in Him that one day “There will be no more death or mourning or crying or pain, for the old order of things has passed away." He who was seated on the throne said, "I am making everything new!" Then he said, "Write this down, for these words are trustworthy and true." I truly believe in Him and His promises and I hope that you will be in Heaven with me. I pray for that and for you. As things are going in our world I dare to believe that we might be the last generation that will witness the second coming of Jesus. You should be proud of yourself for fighting so hard all these years and for not giving up. What a warrior you have to be to handle all this pain for so long. I’m proud of you and I’m sending you lots of love and warm thoughts to comfort you in your fight and to know that you’re not alone. Remember also, that God is close to the broken-hearted as He said. Kindest regards from Serbia 🫂❤️
That last comment shook me to my core . As someone with several TBIs this really hits home . It’s a living hell for most of us who aren’t bed ridden because we literally have to face a feelingless world daily with no understanding from anyone . Even our closest family or spouses can’t or won’t understand mostly to no fault of their own . So you live and struggle daily . There are brain helmets now that are thousands of dollars . I purchased one as a last resort . Let’s see how it goes .
I’m so sorry beloved. I’ve always said there are many fates worse than death. I don’t know you, but I’m grateful for your life and that your choice to share your truth helped me appreciate things we all tend to take for granted. Much love, peace and blessings to you my friend. ♥️
thank you for not minimizing the reality of tbi. so many these days love to shove neuroplasticity at us as if to blame us for continuing to have difficulties even decades after the injury
It's frustrating for me to know about it, but people aren't talking to me about neuroplasticity. And it's gotten better, a lot better. But im not back to myself or ok & just have to live with it. It sucks and its hard.
It’s living hell with a TBI. Seizure disorder, cognitive deficit but I look a bit like I used to. I’m a shadow of my former self. Fatigued depressed and anxious it’s no life.
I had a minor TBI and I've experienced enough living hell in the past 3 years to understand why so many athletes with a brain injury are committing suiside. The pain gets pretty brutal.
@@michaellohre1470 Till now are you suffered from fatigue, headache.. Are u running now and doing hard activities ? How much you recover ? Please reply
I wish you were my neurologist, a lot of them want to down play every thing you go through. They are better at being surgeon....there bed side manner sucks.
Possible Thank you for sharing your story. I'm also a brain injury survivor. I never wish a brain injury on anyone, but I wish the ones who doubt our pain could spend a day in our shoes. Maybe then they would understand what it is like. It seems that nobody cares or understands or cares to understand what we go through. Most of my days are spent just going through the motions of life and not living it to the fullest. Hopefully one day things will get better. Peace
Now I’m starting to worry, because I’ve had several traumatic head impacts like this during my childhood which seemingly went unnoticed. My parents were also oblivious to these instances, and I can’t help but notice that around that exact time, I completely changed on a psychological and emotional level. It’s almost like I’m a different person from my younger self before it happened.
The pressure is the worst. Makes me want to scream. It could have been so much worse but i still wish i died that day. I fractured my skull and got sent back to work within an hour of getting my scalp stapled. Its strange, when you get an ABI youbpretend that youre super and its not that bad. Nobody to remind you that you need to follow protocol. Just feed your ego about how tough you are and "i cant believe yourr not dead" yeah im the terminator.
I've got damaged nerves/brain and my life is a living hell, the only thing that keeps me alive is just watching series/movies all the time, or some sort of distraction like talking to people, when i don't i've got no clue wheather i even exist.. But still.. my desire to live and my memories of how life was keep me going.. My scenario is different ofc since it's cause of drug abuse in the past.. Still it's just a 5% of a life what a healthy person would have..
No one gets it...i do you have acceptance to be able to do 5%.. i feel so bad for any victims of brain injuries they all are different but they all suck.. Most dont have daily headaches..mine is..any tips that help..
@@Kissmyanus0 hey i don't know what your brother is suffering from exactly and where you are from.. what i would recommend that helps me alot are certain breathing excercises by wim hof (may sound odd but it really elevates how i feel by alot), cold showers help alot aswell. there is certain supplements that could help too, can i contact you somewhere?
i got into a bar fight and got hit front in my forhead with a full bottle and knocked unconcience. it has taken me years to bounce back from that injury. my family thought i was on drugs because i had a history of drug addiction. this injury took my mental clarity and focus away. thank god i bounced back but it was a long road to recovery. I mostly think it was the lord who got me thru this bad period in my life. so you can bounce back but it is a slow process slower than a turtle. take it from me.
@@faisalbi1330 i hope someone replayed to you. from comments you made everywhere i sense that you were in high pain at that moment, i hope you are better now after 4 months
The worse thing is when a psychiatrist prescribed antipsychotics to a tbi patient causing more damage.... do you know a psychiatrist or medication for repairing the brain from psychiatric medication
Dan Hughes very true ppl will never truly understand what you are going through day n and day out... I wake with the same shit on my mind every.single.day wether it’s a good thought or a bad one I don’t know what point I’m really trying to make here just typing because that’s how my brain works now because I have a hard time processing and gathering new information.. constant hell man I wa s at northwestern university last year now I’m attending a community college in Boston and I have no motivation to continue my education because I know I will never reach my true potential man
I suffered a tbi... it was from being aubused.. I had to be put in a coma and get a feeding tube.. it sucked.. I dont really remember anything.. I only remember coming home from the hospital with the song Coming Home playing.. I also hate having a tbi because I get looked at differently... I was three when it happened and Im now 15.. Man does it suck.. I hate it!!! It makes me feel not normal yk??
I have a severe traumatic brain injury with a diffuse axonal injury. It is getting better how I feel, but it does feel like a living hell sometimes. I always feel like crying for basically no reason, it’s weird. My brain didn’t move as he said, but I fractured my skull. It does feel like a living hell sometimes.
Hello! How are you feeling now? My husband is currently recovering from a TBI with Diffuse Axonal Injury following a motorcycle accident on May 12, 2021. He didn’t have his helmet on. He woke up on 6/14/21 by the grace of God! He’s following commands, trying to sit up and holding his head up. He’s making sounds, but no real words yet. He’s also getting OT/PT & Speech therapy. I know that everyone is different, but how long did it take you to speak and get up to walk? How long were you in a facility? When you came back home, how did you readjust to everything?
@@katrinah1898 He’s doing well. Still recovering. No spoken words yet, but he did bust out laughing at a comedy show one night. It’s something we watched a long time ago and he remembered it. I’m still praying for his complete recovery. Thank you for asking.
@@kaji2546 Hello! I am doing well and so is Kevin. He is following more commands and starting to hold up his head when sitting on the side of the bed. Doctors are pleased with his progress. One day and one prayer at a time. God is always on time. Thank you so much for asking.
Hell is a place away from the Lord, but if you call on His name, He will answer you. And this is speaking from experience. Every Christian should know Jeremiah 33:3 by heart. "Call unto me and I shall answer thee, and show you great and mighty things which thou knowest not." Dying without Christ would be a far greater hell than what is described here, and trust me, I've been in that place between life and death with a moderate to severe TBI, three bleeding hematomas, 17 skull fractures, shearing, on Nov. 6, 2018. I should not be alive and writing here. Trust in the Lord every day you breath, friends. He will answer you, and abide with you when no one else will, even in a body that has become a seeming prison.
I don’t remember and never will and I was comatose and YEARS of Therapy and I’m still having major issues and depression and anxiety and anger issues? Mood Swings and just people piss me off
I am dating a girl with a tbi caused by a horse riding accident. It's very challenging, im just learning as i go.... i love her and she loves me but lately it's become very difficult because she has changed all of the sudden, believing she's psychic, communicates with demons, a demon has taken over me (sometimes),she's afraid she's going to hell.....i can be talking to her on the phone and a compliment will trigger her and she will not talk to me for days thinking i ment to hurt her. We've been dating for about 4-5 months. 4 months were the best days of our lives, then like a switch it changed... im trying to learn as much as i can, as fast as i can but...
Fat Furby - it's challenging. But i give her space when i see those tendencies start to come up. I know its not her fault. She's actually my angel, saved me from a dark time in my life. I won't give up on her. You're a survivor and have beat some very bad odds against you. That in itself is remarkable. I wish you nothing but the best in life Cheers!=)
Rob, One of the big problems that most doctors will not address is how hormones and the endocrine system are affected DRAMATICALLY. And with women, they all have a 30 day cycle of fluctuating estrogen and progesterone (among many hormones) already, and for some women, this is already crazy making, without the addition of a head trauma. Every TBI is different, and every individual is different, for both men and women. Just some suggestions here: Try to find a Functional Neurologist. A treatment called "Vestibular Rehabilitation" is individualized to each person, according to their needs. They are also trained to help in other ways, to get brain function returned as much as possible. Also, a fast and easy thing to help: Green sunglasses. With NO other colors, only green. Green will slow down the over reacting neuron activity. northoakchiro.com/blog/2018/01/02/light-sound-sensitivity-post-concussion-syndrome-patients/
i had encephalitis and lost 1/3 - 1/2 of my right frontal lobe......the neuro-psychiatrist told me to sell everything, move away ,leave my family & friends , start over, get a dog who would not judge me & love me unconditionally...personality changes, difficulty processing, no filter, lack of judgement, all of the trials involved with ABI [ ACQUIRED BRAIN INJURY] , i lost family & friends......" it's been a year, you should be fine now "........i heard that over and over as they dropped off the face of my world.....i gave them more credit than he did.....i didn't think i would lose them.....i was wrong.......i live alone.....see some family once a year, maybe.......I HAVE FOUR RESCUED DOGS THAT LOVE ME UNCONDITIONALLY........blood is not thicker than water.....
brenda mills - thank you for writing me today! You don't understand how much i needed to hear this. A few months ago, Delphi (on my birthday) dropped all communication with me and we split. I recently found out she waS making horrible accusations about me to people and I guess since its been months from the time we spoke, i lost the understanding of what its like to live with a tbi. So I've been pretty upset about it the last few days. After refreshing myself on this thread, I'm really not upset anymore. Thank you so much! Personally I like dogs are better then humans. I wish nothing but happiness and health to you and your rescues! Cheers! 8)
I'd like to see the outcome that he's describing. I know it's dark and morbid, but until you actually see it for yourself, you will never truly appreciate what he's talking about here. We talk all the time about the dangers of head injuries, and in Australia there's been a movement to end the cowards punch for quite a few years. But the program only focuses on the punch itself, the legal repercussions to the perpetrator...etc...I've never actually seen the end result. I've watched tons of knockouts here on youtube, and some go WAY too far....continuing to deliver ultimately deadly blows after the person's lost consciousness and is defenseless. I'd like to see what happens to these victims - if they survive, what sort of life do they go back to. I reckon a program that focused less on the perpetrators and more on the victims would be pretty powerful. Yes, you will go to prison for your assault, but show them what they're actually doing to people!
My cousin attempted to take his life March 2020. He was revived by paramedics after 30 minutes. He’s been in a vegetative state ever since. He’s still physically alive, but his arms and leg have contracted, he has many seizures, he has a treach that has to be suctioned regularly, he’s tube fed, he has to be turned every 4 hours to prevent sores. He’s 31. This is so much worse than if he had been successful.
Neurologist told me I had a 20% chance of recovery and almost lost the left side of my brain from a major stroke. I was in the operating room in an hour of having it. I took a helicopter ride to the hospital that I don't remember!!! This was a year ago this month from what I am told. July 31st 2023. I guess I came out of it alright I really don't know. I try to focus on what I can do instead of what I cant... As hard as that is. But simple things like taking a spoon out of a drawer in the kitchen I go to a cabinet instead of a drawer. I forget why I walk into the bathroom... Turn around walk out..... Oh yeah I gotta pee!!! Last night when laying in bed with my wife we arm wressled with my right arm (my affected side) And while shaking I almost won. Haven't been able to do that in a year. Yes recovery takes time but I now know and realize I will never be the person I was prior to having a stroke. I can't drive alone..... I get confused and lost at times....... But I can still drive! I can't cook on the stove...... I forget what im doing....... But I can still feed myself. I can't go fishing much any more..... No stamina..... But I can watch the fish and manatees in my back yard daily. My skin doesn't feel like its my own......nerve damage I guess..... But i.can still feel. I can't work, had to close my business down......cant think straight and forget numbers.... But I have a wonderful support system. I'm done typing but if you read this then you know.... Every brain injury is different for everyone. But we aren't alone.
even though I was hit by a large overhead lamp and was diagnosed with concussion and neck injury, no one here in sweden will say tbi, they started saying maybe ptsd and now are saying i am makig it up
Sorry for your loss :( You can't control impulsivity, compulsions, and things make sense to only you. I hope my nephew doesnt have to play sports anymore
You have to ask why if we were designed our brains lack the ability to regenerate and regrow neurons or repair cells. I understand if the control was turned off but I honestly think that now that we have to have research done into how to turn back on the sequence to repair with stem cells lost neurons. Also I can only imagine it due to how chemically and cellularly my brain was damaged to where I could do less and less cognitively and slowly fell to low average IQ, for me it happened from taking Seroquel which when i researched later and to the best of my ability Seroquel especially alters the cells of prefrontal and frontal cortex to slow it down explaining my mental decline. I'm slow, I didn't ask for down regulation for depression and anxiety from ADHD, I asked for upregulation with what had worked for me in the past a low dosage of stimulant.
True story...people have no clue...thank god for my tbi program...they know how and why..it still sucks..but they try so hard for me..im not going to let them down
got a moderate TBI from a little mopid on my first job,i wish i died on the road.I wanna die but i believe in god and rather not guarantee go into actual hell :(
I had a major traumatic brain in my skull was broken brain was cut and damaged they were not sure how I lived but I’m still here and able to live thankful I’m still alive
I don't like this video. I have a relative who suffer dai now. And she is lying in bed, doctors says that only thing we can do is praying. After watching this video I realized that my relative is in hell. With all family. I hadn't this feeling before I see this video.
melancholia01 you have no idea what and how they are thinking people on the outside can only guess which is impossible to know for sure. Millions of cases in brain injury are not fully understood by neurologists they only know a tiny fragment of it. Please don't believe in guesses. Trust in God. All happens for a reason. look for the silver lining
Same thing relative suffered a diffuse axonal injury and doctors said he had 9% of survival he survived. Then they said he’s got a 3% of ever waking from a coma. He was in it for a month woke up on Christmas and progressed to vegeatatove state for a month maybe two and after we brought him home and he progressed to minimally conscious state and is going to a rehab program soon. He can fulfill many commands and is recovering. These doctors can only tell what science does but we barely know anything about the brain. So there’s always hope bud just hang in
Reminds me of when I had a frontal lobe brain injury and had fluid oozing out my ear. I was lucky though. Even though I lost my career in engineering, some hearing, my eyesight was fine, my intellect was fine. I overcame alcoholism, almost depression by finding a woodworking hobby. Don't think it can't be you.
Just wanted to share my miraculous brain injury recovery in hopes that either someone in this comment section (or someone you know) may benefit. I had post-concussion syndrome for 9 years from a bad hit in hockey and I also used to play football and train MMA. I’ve been off work for over 2 years due to disability from my head injury but now I’m 1000% healthy and can live a completely normal life. This may be extremely hard to believe but I achieved all of this through a spiritual practice called Falun Dafa. The main emphasis of Falun Dafa is spiritual development and improving your moral character but it can have miraculous health benefits; people have cured cancers, tumors, paralysis, diabetes and all kinds of different abnormal/complex health conditions. I know that there maybe people in this UA-cam comment section that may be suffering like I did or knows someone that is suffering so I hope this is able to help you or someone you know!
My brother has also experienced global hypoxic brain injuury.... Its been a month now Only he can open his eyes but limited look around movement.. He can move his lips a little.. And he also yawns Its been a week he is breathing on his own initially was put on a ventilator I want to know about his future
I was hit by a car 3 and half years ago medical negligence from a hospital sent me home and had continued to ignore my symptoms after major fractures found in my ankle bones and cervical, thoraic, and lumber issues found, from bone scan, than other doctors still ignored my symptoms in my head my head aches the burning and stiffness just had mri brain and neck I have serious what matter demyleinating disease hemorraghagic gliosis and scattered subcortical foci, because of symptoms I presented to neurologist shinking left for arm with clenching left hand and smaller fingers and vertigo sleep disturbances, the list goes on with bladder and bowel problems, its a living hell as I have been telling doctors for years my arms feel like they are dying, honestly you have to live it to know it, my body energy swings from hot and cold in hands and one leg my blood circulation in my arms has been restricted serverly for years, not all doctors are anything like professor Andrew H kaye, im sure if I was one who was able to have seen him first when injured things might have been different for me,
Folks, look up on you tube, "Subliminals" containing 'Rife Fequencies' for cell repair/regeneration among many other health conditions. Heck there are a bunch on you tube now..
It's similar, but through different causes. Abdelhak Nouri suffered brain damage due to hypoxia. He suffered a cardiac arrest which caused his brain to be deprived of oxygen. This permanently damaged his brain. He will never recover but it does not appear that he is in pain or even conscious and aware of his condition.
Hi , Im'ma from (MIT) university freshmen. I've encountered a recent incident that has left me in need some advice . I wanted to share that I recently experienced a concussion two days ago, and unfortunately, it has occurred again in the same right side. I'm wondering, would a sudden sideways motorbike collision with a cycle at a speed of 30 km/hr., causing a forceful movement of my torso to lurch and my head in relative (lateral flexion) in the same area of the first concussion ,can it potentially cause some DAI and possibly axotomy to the previously concussed neurons ? very worried since i am difficulty speaking like finding right words and articulating fluently and even slight difficulty understanding words and its been 1 month no recovery? i initially have no symptoms after the incidence like nausea or dizziness , does it cause any permanent deficits or it is just temporary ? and Does this injury lead to the diminution of a handful of neurons?
So i guess it's trending perhaps- According to +Dizzle Dazzle people who have paralysis need to have electrical shock treatment. Not sure how to take that. ????????????????
T Zub I've been through a head injury and it wasn't that bad. Death wouldn't be best. I had my head injury in 2007 and now I've completely moved past it. I wouldn't speak on it if I didn't have experience in this area.
Lauren Finney It depends on the person and the amount of brain-damage that they have sustained. Some brain injuries leave the person with large and permanent deficits.
I survived a severe Traumatic Brain Injury (TBI) and all the professionals wrote off my life. Despite this, I worked and worked and worked some more. I never gave up, went to college, graduated, got married, had some children and wrote a book, Being-Here (my pen name is Jake Band). "Life and living after surviving your TBI" is Being-Here's subtitle. In about a month, I will be a certified Post-TBI Wellness Life Coach. If you survived a TBI, Keep on Keepin' on, and do not give up. Work to be who you want to be!
Have you used any red light or near red therapy or low level light treatment ? Photobiomodulation ?
Hello , my close friend had a craniotomy recently ..his left hand and leg is paralyzed from edh ..can you please help by giving some answers ?
Can his paralysis go with time or it is permanent?
I wake up everyday and feel like I have someone else’s brain in my head. Lost everything after a TBI, career , home, and future. It’s been 8 years and I live with loss of vision, loss of sense of smell, anxiety, seizures, tinnitus, depression, stuttering, loss of confidence, tremors,vertigo and much more… you have to live through it to understand. I’ve.ost family and friends . I really lost myself
It breaks my heart that you’ve been going through all this pain and that you’re still suffering so much 😔💔 May God heal and comfort you with His love. Jesus promised everyone who believe in Him that one day “There will be no more death or mourning or crying or pain, for the old order of things has passed away." He who was seated on the throne said, "I am making everything new!" Then he said, "Write this down, for these words are trustworthy and true." I truly believe in Him and His promises and I hope that you will be in Heaven with me. I pray for that and for you. As things are going in our world I dare to believe that we might be the last generation that will witness the second coming of Jesus.
You should be proud of yourself for fighting so hard all these years and for not giving up. What a warrior you have to be to handle all this pain for so long.
I’m proud of you and I’m sending you lots of love and warm thoughts to comfort you in your fight and to know that you’re not alone. Remember also, that God is close to the broken-hearted as He said. Kindest regards from Serbia 🫂❤️
Prioritize your sleep first. Sleep twice a day if necessary. Eat choline-rich foods. Be strong! Commit to take back your old life.
Me too. I feel like you too
It took me 11 years to finally feel like me again. There is hope. 🙂
Sorry Brother I’m in a similar situation myself.
That last comment shook me to my core . As someone with several TBIs this really hits home . It’s a living hell for most of us who aren’t bed ridden because we literally have to face a feelingless world daily with no understanding from anyone . Even our closest family or spouses can’t or won’t understand mostly to no fault of their own . So you live and struggle daily . There are brain helmets now that are thousands of dollars . I purchased one as a last resort . Let’s see how it goes .
"no understanding from anyone" I can relate to this. I wish you well.
Can relate
I’m so sorry beloved. I’ve always said there are many fates worse than death. I don’t know you, but I’m grateful for your life and that your choice to share your truth helped me appreciate things we all tend to take for granted.
Much love, peace and blessings to you my friend. ♥️
Same here
I haven't spoken with anyone in my family in over 5 years.
thank you for not minimizing the reality of tbi. so many these days love to shove neuroplasticity at us as if to blame us for continuing to have difficulties even decades after the injury
It's frustrating for me to know about it, but people aren't talking to me about neuroplasticity. And it's gotten better, a lot better. But im not back to myself or ok & just have to live with it. It sucks and its hard.
@@nosmartyr hi how are you .I am same as you please talk with me
It’s living hell with a TBI. Seizure disorder, cognitive deficit but I look a bit like I used to. I’m a shadow of my former self. Fatigued depressed and anxious it’s no life.
I had a minor TBI and I've experienced enough living hell in the past 3 years to understand why so many athletes with a brain injury are committing suiside. The pain gets pretty brutal.
Praying for you Melissa. I get it. I had a moderate TBI two years ago. Don't give up. Talk to the Lord, please. He will answer.
@@michaellohre1470 Till now are you suffered from fatigue, headache.. Are u running now and doing hard activities ? How much you recover ? Please reply
@@mintudas2433 hi how is your wife now please reply me
@@michaellohre1470 hi how are you now please reply me
@@faisalbi1330 She improving a lot... If she got tension little bit she feel headache other wise she is ok.. Her tbi is epidural hematoma..
TBI is a death sentence, there’s no way out until the end. I just try to make the most out of what I still have left.
Amen!!! A true living invisible hell!!!
I wish you were my neurologist, a lot of them want to down play every thing you go through. They are better at being surgeon....there bed side manner sucks.
Mindful Blessings to m
Possible Thank you for sharing your story. I'm also a brain injury survivor. I never wish a brain injury on anyone, but I wish the ones who doubt our pain could spend a day in our shoes. Maybe then they would understand what it is like. It seems that nobody cares or understands or cares to understand what we go through. Most of my days are spent just going through the motions of life and not living it to the fullest. Hopefully one day things will get better. Peace
I cant even get an apointment to see a neurologist
@@RussCobleigh same waiting to get eeg to see if still having seizures. But on waiting list for his free help
Now I’m starting to worry, because I’ve had several traumatic head impacts like this during my childhood which seemingly went unnoticed. My parents were also oblivious to these instances, and I can’t help but notice that around that exact time, I completely changed on a psychological and emotional level. It’s almost like I’m a different person from my younger self before it happened.
I suffered a TBI true true it is complete hell
Evanoff Jason yes it is
yes it is, brain injuries are hell.
Do you want to die like this scary doctor said?! 😖😢
@@Lindathemightywitch Dream of it sometimes
@@lisaellis9749 yes it's true. How are you now?
like this guys passion.
I'm suffering from PTSD with a lost one eye sight and it really a living hell , those around won't understand but deep inside it really painful
The pressure is the worst. Makes me want to scream. It could have been so much worse but i still wish i died that day. I fractured my skull and got sent back to work within an hour of getting my scalp stapled. Its strange, when you get an ABI youbpretend that youre super and its not that bad. Nobody to remind you that you need to follow protocol. Just feed your ego about how tough you are and "i cant believe yourr not dead" yeah im the terminator.
When did yours happen, mine was mild, does the pressure fix? It's annoying
I've got damaged nerves/brain and my life is a living hell, the only thing that keeps me alive is just watching series/movies all the time, or some sort of distraction like talking to people, when i don't i've got no clue wheather i even exist..
But still.. my desire to live and my memories of how life was keep me going..
My scenario is different ofc since it's cause of drug abuse in the past..
Still it's just a 5% of a life what a healthy person would have..
No one gets it...i do you have acceptance to be able to do 5%.. i feel so bad for any victims of brain injuries they all are different but they all suck..
Most dont have daily headaches..mine is..any tips that help..
My brother is currently going through this due to drug abuse :( it is a living hell. Idk what to do
@@Kissmyanus0 hey i don't know what your brother is suffering from exactly and where you are from.. what i would recommend that helps me alot are certain breathing excercises by wim hof (may sound odd but it really elevates how i feel by alot), cold showers help alot aswell. there is certain supplements that could help too, can i contact you somewhere?
@@Kissmyanus0hi, what drugs caused it? And was it an overdose or something?
Did a drug overdose cause it? Mine did to me, how are you now?
They need to start showing people that hurting your brain is bad. I have a brain injury
Candace Dunn-Kosusnik same here
How are you?
invisible hell..
it effects every aspect of your life and I do mean every aspect
True
i got into a bar fight and got hit front in my forhead with a full bottle and knocked unconcience. it has taken me years to bounce back from that injury. my family thought i was on drugs because i had a history of drug addiction. this injury took my mental clarity and focus away. thank god i bounced back but it was a long road to recovery. I mostly think it was the lord who got me thru this bad period in my life. so you can bounce back but it is a slow process slower than a turtle. take it from me.
Hi please reply me how are you back to normal?
@@faisalbi1330 i hope someone replayed to you. from comments you made everywhere i sense that you were in high pain at that moment, i hope you are better now after 4 months
@@roxydzey hi thank you for asking but unfortunately I m not well yet۔
@@faisalbi1330 give it time, just know you aren’t alone. pray to God, he will answer your prayers
The worse thing is when a psychiatrist prescribed antipsychotics to a tbi patient causing more damage.... do you know a psychiatrist or medication for repairing the brain from psychiatric medication
Just found out I have TBI on top of combat PTSD.
I hope you got better buddy, it’s been 2 years. Thank you for your service and everything you have sacrificed
Hey this happed to me also..
I have headache every day too
What works for you...i would like to know...i do know this
Its hell on earth..true story
Dan Hughes very true ppl will never truly understand what you are going through day n and day out... I wake with the same shit on my mind every.single.day wether it’s a good thought or a bad one I don’t know what point I’m really trying to make here just typing because that’s how my brain works now because I have a hard time processing and gathering new information.. constant hell man I wa s at northwestern university last year now I’m attending a community college in Boston and I have no motivation to continue my education because I know I will never reach my true potential man
The mood swings... ARE UN BEARABLE..
Today I wish my accident on 3/31/97 took my life... It would have saved a lot of people a lot of problems.. sad😢..
I suffered a tbi... it was from being aubused.. I had to be put in a coma and get a feeding tube.. it sucked.. I dont really remember anything.. I only remember coming home from the hospital with the song Coming Home playing.. I also hate having a tbi because I get looked at differently... I was three when it happened and Im now 15.. Man does it suck.. I hate it!!! It makes me feel not normal yk??
My son was killed by drunk driver while crossing the road his head was damaged I kept thinking I just wished he had lived my boy my son
Living 33 with the lasting effects of sTBI.
I have a severe traumatic brain injury with a diffuse axonal injury. It is getting better how I feel, but it does feel like a living hell sometimes. I always feel like crying for basically no reason, it’s weird. My brain didn’t move as he said, but I fractured my skull. It does feel like a living hell sometimes.
Hello! How are you feeling now? My husband is currently recovering from a TBI with Diffuse Axonal Injury following a motorcycle accident on May 12, 2021. He didn’t have his helmet on. He woke up on 6/14/21 by the grace of God! He’s following commands, trying to sit up and holding his head up. He’s making sounds, but no real words yet. He’s also getting OT/PT & Speech therapy. I know that everyone is different, but how long did it take you to speak and get up to walk? How long were you in a facility? When you came back home, how did you readjust to everything?
@@BabyBeyonce09 how is your husband doing?
@@katrinah1898 He’s doing well. Still recovering. No spoken words yet, but he did bust out laughing at a comedy show one night. It’s something we watched a long time ago and he remembered it. I’m still praying for his complete recovery. Thank you for asking.
@@kaji2546 Hello! I am doing well and so is Kevin. He is following more commands and starting to hold up his head when sitting on the side of the bed. Doctors are pleased with his progress. One day and one prayer at a time. God is always on time. Thank you so much for asking.
Hell is a place away from the Lord, but if you call on His name, He will answer you. And this is speaking from experience. Every Christian should know Jeremiah 33:3 by heart. "Call unto me and I shall answer thee, and show you great and mighty things which thou knowest not." Dying without Christ would be a far greater hell than what is described here, and trust me, I've been in that place between life and death with a moderate to severe TBI, three bleeding hematomas, 17 skull fractures, shearing, on Nov. 6, 2018. I should not be alive and writing here. Trust in the Lord every day you breath, friends. He will answer you, and abide with you when no one else will, even in a body that has become a seeming prison.
Thank GOD I had my hydrocephalus shunt that saved me. Pumped off the fluid. 💕✝️
I have a Severe TBI, I will never move in the direction that I intend to, it’s hell and I’m doomed permanently
Kind of like? Gary Busey? Same injury but! On separate parts of the brain? But any blow to the head can render any damage of any sort no matter how!
I don’t remember and never will and I was comatose and YEARS of Therapy and I’m still having major issues and depression and anxiety and anger issues? Mood Swings and just people piss me off
Can psycehedelics help? Brain is incredibly complex and there many backup neurons.
I was wondering the same thing, there absolutely needs to be some trials. Im gonna look this up
How are you please reply me
I am dating a girl with a tbi caused by a horse riding accident. It's very challenging, im just learning as i go.... i love her and she loves me but lately it's become very difficult because she has changed all of the sudden, believing she's psychic, communicates with demons, a demon has taken over me (sometimes),she's afraid she's going to hell.....i can be talking to her on the phone and a compliment will trigger her and she will not talk to me for days thinking i ment to hurt her. We've been dating for about 4-5 months. 4 months were the best days of our lives, then like a switch it changed... im trying to learn as much as i can, as fast as i can but...
Fat Furby - it's challenging. But i give her space when i see those tendencies start to come up. I know its not her fault. She's actually my angel, saved me from a dark time in my life. I won't give up on her. You're a survivor and have beat some very bad odds against you. That in itself is remarkable. I wish you nothing but the best in life
Cheers!=)
Rob, One of the big problems that most doctors will not address is how hormones and the endocrine system are affected DRAMATICALLY. And with women, they all have a 30 day cycle of fluctuating estrogen and progesterone (among many hormones) already, and for some women, this is already crazy making, without the addition of a head trauma.
Every TBI is different, and every individual is different, for both men and women.
Just some suggestions here: Try to find a Functional Neurologist. A treatment called "Vestibular Rehabilitation" is individualized to each person, according to their needs. They are also trained to help in other ways, to get brain function returned as much as possible.
Also, a fast and easy thing to help: Green sunglasses. With NO other colors, only green. Green will slow down the over reacting neuron activity.
northoakchiro.com/blog/2018/01/02/light-sound-sensitivity-post-concussion-syndrome-patients/
Pissy Pony - thank you for this information and link. I will definitely be looking into this...
Cheers!=)
i had encephalitis and lost 1/3 - 1/2 of my right frontal lobe......the neuro-psychiatrist told me to sell everything, move away ,leave my family & friends , start over, get a dog who would not judge me & love me unconditionally...personality changes, difficulty processing, no filter, lack of judgement, all of the trials involved with ABI [ ACQUIRED BRAIN INJURY] , i lost family & friends......" it's been a year, you should be fine now "........i heard that over and over as they dropped off the face of my world.....i gave them more credit than he did.....i didn't think i would lose them.....i was wrong.......i live alone.....see some family once a year, maybe.......I HAVE FOUR RESCUED DOGS THAT LOVE ME UNCONDITIONALLY........blood is not thicker than water.....
brenda mills - thank you for writing me today! You don't understand how much i needed to hear this. A few months ago, Delphi (on my birthday) dropped all communication with me and we split. I recently found out she waS making horrible accusations about me to people and I guess since its been months from the time we spoke, i lost the understanding of what its like to live with a tbi. So I've been pretty upset about it the last few days. After refreshing myself on this thread, I'm really not upset anymore. Thank you so much! Personally I like dogs are better then humans. I wish nothing but happiness and health to you and your rescues!
Cheers! 8)
I'd like to see the outcome that he's describing. I know it's dark and morbid, but until you actually see it for yourself, you will never truly appreciate what he's talking about here. We talk all the time about the dangers of head injuries, and in Australia there's been a movement to end the cowards punch for quite a few years. But the program only focuses on the punch itself, the legal repercussions to the perpetrator...etc...I've never actually seen the end result. I've watched tons of knockouts here on youtube, and some go WAY too far....continuing to deliver ultimately deadly blows after the person's lost consciousness and is defenseless. I'd like to see what happens to these victims - if they survive, what sort of life do they go back to.
I reckon a program that focused less on the perpetrators and more on the victims would be pretty powerful. Yes, you will go to prison for your assault, but show them what they're actually doing to people!
I feel the same way. Thank you for writing.
My cousin attempted to take his life March 2020. He was revived by paramedics after 30 minutes.
He’s been in a vegetative state ever since. He’s still physically alive, but his arms and leg have contracted, he has many seizures, he has a treach that has to be suctioned regularly, he’s tube fed, he has to be turned every 4 hours to prevent sores. He’s 31.
This is so much worse than if he had been successful.
I m struggling with living in a nursing home with tbi that don't understand this was awsome
Neurologist told me I had a 20% chance of recovery and almost lost the left side of my brain from a major stroke.
I was in the operating room in an hour of having it.
I took a helicopter ride to the hospital that I don't remember!!!
This was a year ago this month from what I am told. July 31st 2023.
I guess I came out of it alright I really don't know.
I try to focus on what I can do instead of what I cant... As hard as that is. But simple things like taking a spoon out of a drawer in the kitchen I go to a cabinet instead of a drawer.
I forget why I walk into the bathroom... Turn around walk out..... Oh yeah I gotta pee!!!
Last night when laying in bed with my wife we arm wressled with my right arm (my affected side)
And while shaking I almost won. Haven't been able to do that in a year.
Yes recovery takes time but I now know and realize I will never be the person I was prior to having a stroke.
I can't drive alone..... I get confused and lost at times....... But I can still drive!
I can't cook on the stove...... I forget what im doing....... But I can still feed myself.
I can't go fishing much any more..... No stamina..... But I can watch the fish and manatees in my back yard daily.
My skin doesn't feel like its my own......nerve damage I guess..... But i.can still feel.
I can't work, had to close my business down......cant think straight and forget numbers.... But I have a wonderful support system.
I'm done typing but if you read this then you know.... Every brain injury is different for everyone. But we aren't alone.
Brutally honest
I am preparing to undergo brain surgery. I should not have watched this. :( scary enough!
Hi how are you.?
even though I was hit by a large overhead lamp and was diagnosed with concussion and neck injury, no one here in sweden will say tbi, they started saying maybe ptsd and now are saying i am makig it up
I haved brain inyutrys😢2019 June 4
my brother just died last month, he took his life for like no reason. he was a professional athlete, i believe had a psychosis due to a TBI.
Sorry for your loss :(
You can't control impulsivity, compulsions, and things make sense to only you. I hope my nephew doesnt have to play sports anymore
I’m sorry for your loss ❤Godbless you
It’s fucking so bad
You have to ask why if we were designed our brains lack the ability to regenerate and regrow neurons or repair cells. I understand if the control was turned off but I honestly think that now that we have to have research done into how to turn back on the sequence to repair with stem cells lost neurons.
Also I can only imagine it due to how chemically and cellularly my brain was damaged to where I could do less and less cognitively and slowly fell to low average IQ, for me it happened from taking Seroquel which when i researched later and to the best of my ability Seroquel especially alters the cells of prefrontal and frontal cortex to slow it down explaining my mental decline.
I'm slow, I didn't ask for down regulation for depression and anxiety from ADHD, I asked for upregulation with what had worked for me in the past a low dosage of stimulant.
2:16 that woman smiling in the background just kick me out of that serious vibe of this whole video :D
True story...people have no clue...thank god for my tbi program...they know how and why..it still sucks..but they try so hard for me..im not going to let them down
My brother had an accident 3 year ago still not recovering no matter how hard we try he is not getting well day by day its getting worse
got a moderate TBI from a little mopid on my first job,i wish i died on the road.I wanna die but i believe in god and rather not guarantee go into actual hell :(
I had a major traumatic brain in my skull was broken brain was cut and damaged they were not sure how I lived but I’m still here and able to live thankful I’m still alive
What is your health now ?
Good god
I don't like this video. I have a relative who suffer dai now. And she is lying in bed, doctors says that only thing we can do is praying. After watching this video I realized that my relative is in hell. With all family. I hadn't this feeling before I see this video.
melancholia01 you have no idea what and how they are thinking people on the outside can only guess which is impossible to know for sure. Millions of cases in brain injury are not fully understood by neurologists they only know a tiny fragment of it. Please don't believe in guesses. Trust in God. All happens for a reason. look for the silver lining
Same thing relative suffered a diffuse axonal injury and doctors said he had 9% of survival he survived. Then they said he’s got a 3% of ever waking from a coma. He was in it for a month woke up on Christmas and progressed to vegeatatove state for a month maybe two and after we brought him home and he progressed to minimally conscious state and is going to a rehab program soon. He can fulfill many commands and is recovering. These doctors can only tell what science does but we barely know anything about the brain. So there’s always hope bud just hang in
Matt Bubbles do you have palinopsia?
While right side brain was damaged is any treatment and is any chance to get recovery the patient and she will perment bed rest
Pretty cool how the video in no way at all explained what it was trying to do.
Car accident trumatic
Why keep them alive then?
Reminds me of when I had a frontal lobe brain injury and had fluid oozing out my ear. I was lucky though. Even though I lost my career in engineering, some hearing, my eyesight was fine, my intellect was fine. I overcame alcoholism, almost depression by finding a woodworking hobby. Don't think it can't be you.
Just wanted to share my miraculous brain injury recovery in hopes that either someone in this comment section (or someone you know) may benefit.
I had post-concussion syndrome for 9 years from a bad hit in hockey and I also used to play football and train MMA. I’ve been off work for over 2 years due to disability from my head injury but now I’m 1000% healthy and can live a completely normal life.
This may be extremely hard to believe but I achieved all of this through a spiritual practice called Falun Dafa. The main emphasis of Falun Dafa is spiritual development and improving your moral character but it can have miraculous health benefits; people have cured cancers, tumors, paralysis, diabetes and all kinds of different abnormal/complex health conditions.
I know that there maybe people in this UA-cam comment section that may be suffering like I did or knows someone that is suffering so I hope this is able to help you or someone you know!
My brother has also experienced global hypoxic brain injuury....
Its been a month now
Only he can open his eyes but limited look around movement..
He can move his lips a little..
And he also yawns
Its been a week he is breathing on his own initially was put on a ventilator
I want to know about his future
I was hit by a car 3 and half years ago medical negligence from a hospital sent me home and had continued to ignore my symptoms after major fractures found in my ankle bones and cervical, thoraic, and lumber issues found, from bone scan, than other doctors still ignored my symptoms in my head my head aches the burning and stiffness just had mri brain and neck I have serious what matter demyleinating disease hemorraghagic gliosis and scattered subcortical foci, because of symptoms I presented to neurologist shinking left for arm with clenching left hand and smaller fingers and vertigo sleep disturbances, the list goes on with bladder and bowel problems, its a living hell as I have been telling doctors for years my arms feel like they are dying, honestly you have to live it to know it, my body energy swings from hot and cold in hands and one leg my blood circulation in my arms has been restricted serverly for years, not all doctors are anything like professor Andrew H kaye, im sure if I was one who was able to have seen him first when injured things might have been different for me,
Having suffered an ABI (not violent) I can attest to the fact that your life will never be the same...
Folks, look up on you tube, "Subliminals" containing 'Rife Fequencies' for cell repair/regeneration among many other health conditions. Heck there are a bunch on you tube now..
Plz is this the same case for abdelhak nouri (Ajax Amesterdam ) soccer player ?
It's similar, but through different causes. Abdelhak Nouri suffered brain damage due to hypoxia. He suffered a cardiac arrest which caused his brain to be deprived of oxygen.
This permanently damaged his brain. He will never recover but it does not appear that he is in pain or even conscious and aware of his condition.
@@TehNetherlands thank u bro for the explanation !
Boy howdy!
Thank you SO much.
Hi , Im'ma from (MIT) university freshmen. I've encountered a recent incident that has left me in need some advice . I wanted to share that I recently experienced a concussion two days ago, and unfortunately, it has occurred again in the same right side. I'm wondering, would a sudden sideways motorbike collision with a cycle at a speed of 30 km/hr., causing a forceful movement of my torso to lurch and my head in relative (lateral flexion) in the same area of the first concussion ,can it potentially cause some DAI and possibly axotomy to the previously concussed neurons ? very worried since i am difficulty speaking like finding right words and articulating fluently and even slight difficulty understanding words and its been 1 month no recovery? i initially have no symptoms after the incidence like nausea or dizziness , does it cause any permanent deficits or it is just temporary ? and Does this injury lead to the diminution of a handful of neurons?
Have you looked into Aphasia? I have that because the Brocas Area of my brain was hit the strongest; was looking slightly to the right at impact.
3 years into mine
So i guess it's trending perhaps-
According to +Dizzle Dazzle people who have paralysis need to have electrical shock treatment. Not sure how to take that.
????????????????
Teh
Is any solution for that now she was in ventilator she will recover or not
He's exaggerating.
What I mean is that he's exaggerating about it being a permanent hell. That's all.
T Zub I've been through a head injury and it wasn't that bad. Death wouldn't be best. I had my head injury in 2007 and now I've completely moved past it. I wouldn't speak on it if I didn't have experience in this area.
T Zub I have.
Lauren Finney It depends on the person and the amount of
brain-damage that they have sustained. Some brain injuries leave the person with large and permanent deficits.
tickyul Yes. I know. It's a sliding scale.
Thank you for this… I made the right choice with my son. 💔❤️🩹
Like, if your brain is hosed, you are doomed. Way to go, babe!