Thank you for taking the time to share your beautiful life. I, too, am a former model who also suffered a traumatic brain injury from a horse accident 10 years ago. Life has never been the same. Some days it’s very lonely knowing others can’t see how truly difficult it can be day to day. Living with a brain injury can get better. Your vid helped me this day. God bless you. 🌸
I had a frontal lobe brain injury in 2010, an since then my symptoms are pretty much identical to how you have described yours. Constant headaches, fatigue, going off on tangents, which I call it brain farts, depression, an a constant thought of my previous self. Having to accept that life will never be the same.
@Oni I hope this message is not too late and by now you have learned to LET GO. It is sooooooo much easier, when we let go. Only YOU can do it. Only you can decide for yourself. Trust me. Life with a brain injury is still LIFE. We minimize stimuli. Do not do what she does here. She pushes herself so much! And I ask myself: for what? What is the purpose? Why punish herself like this? I hope by now she has changed her mindset. Our first goal commitment should be to treat ourselves kindly. Be mindful of your needs. Sleep well. Eat healthy. Take walks, dance 💃 whatever exercise your body and brain can tolerate. Do meditation to train your mind and control your body. Even helps control pain. Life is so much more easy when we make the decision to take care of ourselves first. Best regards.
We all seem to share the same types of issues, but its the frontal lobe injuries that are so difficult because you are recovering from the death of who you were pre-accident & you have to accept the person you are now, but all anyone wants to talk about is that person NOT the new person because to them you just lost a part of who you were NOT a whole different personality & person. sorry babbling on and on what shatters me is how people use my TBI to attack me hurt me .. I hope people learn & change understand how much changes when everything looks the same to them
My aunt had a brain aneurysm . She was intelligent and beautiful. Unless you knew her and spent time with her, you would not see the deficits. Very similar to yours. Was difficult for her to get disability because she presented so well. It was horrible because it wasn’t an external visible injury so it’s hard for people to see. I’ve had a couple of concussions in my life. One I could only work half a day because my brain got so tired. Some people thought I was being a baby and making a big deal out of nothing. Again, hard for others to see and understand other than the blank look that would come across my face. Thank you for sharing your story and getting people to understand this type of injury. God Bless!
I too suffered from a brain aneurysm due to being a micro preemie. Getting services has been extremely hard and frustrating because like your aunt I present so well.
I had a big brain aneurysm, but localised and had surgery /1995/ accidently on the op table got epileptic. So it was challanging but I was 27 and back then I thought I was healthy, strong. I recovered well but yes I can recognise that my temperament changed, I became bipolar what is also can be handled but not easy. I am on medications since then. At age 50 I got tired with my busy, ,,always on the top,, carreer. I resigned, moved another country, I work in a Restaurant /part-timer/ have less money but hardly have stress and I alwaysed loved this country, ppl and the mild weather and that's all I need. I feel happy, living healthy and volunteering if Im fine. So who knows how long we leave, I wanna enjoy my life and help others as we..
I can appreciate this video and hope it brings more awareness to life after a brain injury. My son suffered a tbi a few years back and has not fully recovered and its painful when my husband says things like he's lazy, or that was a long time ago there's nothing wrong with him. People need education before they judge or speak negatively.
Thanks Lizzie, I'm going through the same thing. It's an invisible injury and people say you look fine, but you're not. I'm hoping I could start some community awareness about TBI like you have. Congrats!
I remember watching this 2 years ago after I had a traumatic brain injury. What a difference another 2 years make! What a difference therapist advice, research, meditation, changing eating habits a complete lifestyle awareness makes. I truly hope she has learned to listen to her body; rest, and make a decision to start a new life with a positive mindset and healthy lifestyle not punishing herself like in this episode. Let go. Start new. Be the best you that the new you can be.
The brain is a far too complicated of an organ for us to compare one TBI to another. Not all of us respond to lifestyle changes and must trudge through years of medication adjustments.
It breaks my heart how often she puts herself down, calls herself pathetic. She's had an injury that caused permanent damage, and she is now coping. She's doing amazing. I wish she could be proud of how far she's come.
It comes from the frustration of being able to only do some things some ot the time, wanting to do more cause you're a high achiever. Also the brain gets in a negative funk. Makes it tougher to be positive
This was very eye-opening for me. I think most of the general public, when hearing "brain injury", automatically thinks of people we've seen in wheelchairs, who have many obvious problems with speech, feeding themselves, & general inability to function without someone doing nearly everything for them. The media rarely shows stories of the Lizzies out there... beautiful, articulate, & appearing quite functional & independent. I hope this video goes a long way in educating the rest of us about the struggles of ALL brain injury victims. I myself have a rather invisible illness, & it is quite embarrassing & frustrating at times, as people don't understand that you're tired, or don't feel well, even though you look fine & haven't done much to exhaust you. Just trying to do the small everyday things is what exhausts me- before I even get out around people! I wish Lizzie all the best.
I am a stroke victim, my disabilities are clearly obvious, so I get treated without respect, and ostracised, I would much prefer to have hidden disabilities, I have had to spend the last 20 years trying to hide my disabilities in order to be accepted by society in general
@@mareewragg177 I don't know which is worse. An obvious disability or a hidden one. I have a hidden brain injury my family don't understand. They think that the symptoms are a curse which is only due to arrogance and lack of awareness 💜
Hidden are worse...I was an ED/trauma nurse...and former paramedic...lost my leg in an accident, have a high end prosthetic...so I can move around...but i suffered nerve damage in my arm and a mild concussion...I can't start an IV very well anymore...and I became tired fairly quickly...and get migraines...fortunately my memory and speech are ok...but these symptoms were far more disabling than losing my leg. I switched to outpatient psychiatric nursing because it's less tiring and doesn't require me to start IVs...🤷♂️ definitely the invisible is worse...I'm going back to school for my nurse practitioner and am nervous but have fingers crossed...
Wow this was so nice to come upon this. I harbour some shame for myself and my life post head injury. I had zero support from the medical system to my own family whom I have cut out of my life and to the close friend I had at the time of my injury. No one believes you, no one can fathom just how bad it is. It was worse than a living hell for about 2.5 yrs after my injury. I am 5 years out. Watching this made me feel less ashamed. I used to be highly athletic like work out at gym for 2 hrs and then go for a long hike and bike ride in the same day. I have pushed myself very hard but after a days work I guess I am very fatigued and have no energy for anything else. All of the things you said remind me of my life. It is terrible. It is limiting. My passions were in dance, sports and the gym. I cant get that back. I am still working on not feeling sick after a walk on the flat. This video clip gave me the comfort to know I am not alone and to remember that the reason why I do not feel very young anymore is because of the accident and its longterm reprocussions. It is living a life in limbo. When you said you feel like a disgruntled 80 yr old man, I totally get that. I am 40 now but I know of 50 and 60 yr olds who are more youthful and athletic than me. Head injury takes your life away and gives you sort of an echo of the life you once had, it becomes a distant memory
I so relate to this dear girl. I survived a brain aneurysm and a stroke on the OR table during the coiling procedure in 2011. I was fortunate to come through it without physical disabilities but the mental part is so bad! I vomit a lot, esp when brushing my teeth so now my teeth are going bad. I've already lost 3. I rly miss the person I was but I remind myself I survived and get to watch my kids grow. Sending love and healing to every survivor here.
I never knew there was so many head injuries, ever since mine I hear nothing but these. The same on and off rage...the confusion, the struggle of others seeing me as a freak because they think I'm taking faking...the burning on fire and pulling nerves back my head....it's hard specially on ourselves and ones we love.
I'm currently dealing with a head injury from work.....I'm always tired, and have mood swings and sometimes forget what I'm talking about during a conversation
have your primary physician give you a referral to a speech therapist. a speech therapist can evaluate cognitive functioning ... memory loss ... and more. that's how I started my road to recovery.
Yes. I had minor car accident it's been over a year...headaches are better. But living with dizziness and unable to nod head due to dizziness. Weakness. Know exactly.
Thank goodness you made this video. I had a severe brain injury and appear normal, but my experience of the smallest things is difficult in ways I cannot describe. I fake wellness with my friends and change the subject if I don’t remember the answer to something. Very few people truly understand this fate.
I am so sorry to see anyone with a head injury. It has to take a lot of adjustments to cope with this change in one's life. Bless her heart and cheers for her. She is a trooper. Hopefully, she will get to where she accepts herself again and regains her self confidence.
I have a head injury and has affected my memory, cognitive function and speech. My family and friends see it outsiders not so much. Only in stressful situation where I try to retreat back to home.
Bobbie Abbott I hit my head twice in less than 6 months. The drs. Kept telling me that I'll go back to normal. But it's been a year and nothing has came back.
Thankyou for speaking out about your tbi !!!! I’m so sorry you suffered like this the hopsitals should have done more . I also suffered a head injury around 4 years ago , I get really short fused I still feel like a ghost , I have permanent ringing in my ears and my head swells inside sometimes. I’m 25 and still can’t live alone I still need support . Some days I miss the person I was it took a huge part of my life, I think I used to be a happy girl now I’m depressed easily short fused at people and situations , I get angry at many things now but deep down to me it’s not anger. The hopsital didn’t do anything for my head injury they refused me a mri scan. The headaches get too much and make inside my head swell , I also can’t look up at the sky because the injury left me with double vision. It’s a hidden disability !!! It’s quite sad to think there are others out there who actually know what a head injury feels like I d hats anybody to understand that feeling. I get so tired easily by conversation it’s unbelievable I wanted to have time with my family but my concentration is none existent and my focus has gone . I pray you find inner peace with this awful hidden disability
You are definitely not alone. I had a TBI in 2007 in a car accident. I didn’t lose consciousness and didn’t realize I had hit my head or that I had injured my brain until 2 weeks after the accident when the brain swelling got bad enough. All of the sudden I couldn’t understand what people were saying when they talked and I had trouble talking. I started stuttering and couldn’t remember two things at a time. It took me almost an hour to make a pot of coffee because I had lost my working memory not just short term memory. I couldn’t handle noise, crowds, I couldn’t answer the phone or open mail because it was too overwhelming. I would get angry easily if I got overwhelmed and I wanted to be left alone to lay in bed in a dimly lit room and read for hours. I couldn’t make meals for myself so I lived on peanut butter and jelly and milk and actually lost 15 lbs the first month. I am a nurse but I didn’t know what was wrong with me. I finally went back to the doctor after I tried to drive and realized I couldn’t remember what the signs meant or what the light colors represented and I couldn’t figure out why I was constantly slamming my brakes on behind other drivers who were slowing or stopping. I could see their taillights turn red and could see them slowing down but for some reason i couldn’t respond fast enough and had to eventually slam on my brakes to avoid hitting the cars in front of me. Of course I know now what had happened but at the time I was literally bewildered. My doctor was not help and didn’t even send me for rehab or to a neurologist for testing. I tried to go back to work not having a clue what a disaster that would be as a nurse. I couldn’t remember all the steps to giving a pain medication and I was the charge nurse! I had immense trouble writing and noticed my handwriting had changed and was almost illegible. finding words was torture and it took me hours to finish charting because I had to say in many words what one word or term would have done. I lost three nursing jobs because of trouble with emotional regulation, time organization and not getting the same amount of work done that my peers could. It took 18 months and it seemed some brain swelling was diminishing. I started to be able to make my own meals though it still took a long time. I started being able to visit friends and family more. I could handle more noise and i was able to remember more than one thing at a time. I still have deficits like; i can’t remember events in time unless I write down when they happen. Spans of time are no longer something I can judge with any accuracy. I still have great difficulty with word finding and my handwriting never recovered. I still don’t like crowds and they exhaust me but I can tolerate them for short periods like going to church. I never had any physical deficits that I’m aware of but just cognitive deficits.
I had Severe TBI with Hydrocephalus, among a slew of other injuries in an accident. This happened from a careless driver that ran a stop sign and blocked my path while I rode my Harley. The driver fled the scene, never to be found again. This was July of 2015. I'm trying to restart my life. A few months ago I was finally done with hospitals and rehab. Patience and your videos have really helped me out, thank you very, very much.
I had sever TBI from riding also, A driver sped up whilst I was trying to pass her on an open road. I entered the corner a bit too fast and couldnt get myself into the corner properly. She fled the scene also, I dont understand why anybody flees the scene when a motorcyclist crashes because of them.
@@RealElongatedMuskrat it's definitely been quite a journey but I'm texting you as I lay on a couch of my own house I was finally able to get. I lived alone in an apartment when my I had my accident, now I share a house with my dog Mindy! 🤣 Be safe out there!!
Please see a neurologist and a psychologist because you have so much insight, you would be a dream to work with. Good luck for continued recovery. You're braves and courageous, love from Australia ❤️
It's been 5 years for me too, Ive tried working again and I cant make it past the 3rd day. But I keep the faith and am grateful there's people like Lizzie willing to share...
Understand your situation a lot better now Steve. Wondering about frequency therapy to help you focus. Don't give up looking, I know a lot of folks are behind you.
Thank you for speaking out about TBI. Same here- someone ran a red light blindsiding me, doctors sent me back to work wrangling packs of dogs WITH a severe brain injury, which resulted in losing my business, my home, and everything I owned. But when life hands you lemons, make a UA-cam channel! So I'm documenting (somewhat) my life living on the road- and hopefully a journey to healing.
Kelly Doyle I was t -boned by a red light runner, I’m sorry you’re going through so much too, as a result of your being hit. I didn’t have a brain injury, just three broken ribs and a very sore shoulder. PTSD sucks though, so much.
thank you soooo much for sharing your story! I am 14 months in from my accident and what i find the most helpful is knowing i'm not alone....and all the difficulties you share are what i experience. Thank you....i hope you will continue to do better and better. x
Worked in canine rehab, cabinet fell on me while at work, suffered frontal lobe and brain stem injury. I lost my life, have the same symptoms still 4yrs later. But I don't give up, I still work with one animal a week. My communication goes, dizziness, vertigo, when I get fatigued. I have sensory overload and I am limited, I forget mid sentence what I was staying, I have outbursts too. I understand symptoms. It is hard. Keep pressing on. Thank you for sharing. You are lovely
@@hrdcpy HI, I have seen a neuro-ophthalmologist. I have not listened to the ghost in my brain. I will look into that. Thanks. Sorry for your injury. I went to cognitive, vestibular, physical, speech, neuro-psych, neurologist, the last therapist gave me the advice to manage time, stimulus. That has helped me the most! Best wishes
I found this channel a few days ago and I have to say : I really love these videos. I've been learning a lot about different conditions through you guys. I work in healthcare and it's always good to see more perspectives. Keep up the good work.
You are a brave, strong and beautiful woman. I recently watched my grandson struggle with a bad concussion from playing football. He had terrible headaches, dizziness, nausea, and eye problems. These were just some of the things he suffered with. It took him over a year before he could return to school . He went to head injury clinics, rehab, neurologist and had numerous testing done. I would never have known how severe the effects of a concussion could be let alone a brain injury. You’re in my prayers and thoughts. I truly believe that with your determination anything is possible.. 💕🙏
2 yrs ago someone crossed the Hwy line & hit me. Brain hemorrhage, trauma rehab …. Doing ok for awhile. All the typical dizzy, walking, Fatigue, understanding & following a conversation. 18 months later I fell, hit the front of my head again, knocked out, concussion but no blood. THIS time it changed my life completely. Lizzie, I can so relate to Everything on how your life has changed. I was a social person but now it hurts to listen to people talking, stimulation, noise, brightness…. I do miss who I was & am still so angry for the turnaround my life has taken. I can’t crochet, see, can, bake… just starting to cook a little but I have absolutely NO taste😢. Tried gardening again but that can be very taxing at times😢 You are so blessed to have your mom by your side & who understands part of what you’re going through. Ops, lost my train of thought.. brain fart🤪. Thank you for sharing. I still haven’t let go of the old me… kinda feel like that would be giving up but I’m working on it. Not one to stay idle but I feel like that’s what I’m doing. And yes, those sharp burning stabbing pains in the head⚡️⚡️ Sorry for the book. You’ve just described this person I have become. God bless you & your mom🌟😇 Northern Nevada USA 🇺🇸🇺🇸🇺🇸 👵🏻👩🌾❣️
Thank you, I also have a brain injury. It was a right subdural hematoma and it happened when I was 16 and riding in the back of a pick up truck. I know the stigma and the way people are and how much they expect of you, I an 47. I try everyday, I even worked as a Medical Assistant for 6 yrears however it is to tiring for me to continue.
This is FANTASTIC!!! I’m finding it a few years after it was posted, but THANK YOU!!! I had a crazy cycling accident that left me disabled. It is SOOO encouraging to see others actually LIVING - regardless of if it’s what they *used* to do or creating a new path!!! THANK YOU for providing encouragement!!! 😁
I recently found this channel and I love it! Very interesting stories. A wonderful look into the lives of those who are affected by disabilities in New Zealand.
I had a AVM Bleed in my frontal lobe deep inside.I went to Wollongong Hospital in Nsw Wollongong and they said there was nothing they could do to save my life, so they said to my family to come and say there goodbyes,After a week i was still hanging in there so Professor Micheal Morgan at RNS at Sydney told my doctor to send me up to him.So i went to him had the brain surgery was in a coma for 3 weeks after the opp i had to learn everything like a baby. Since the opp i have lost all my family i dont have no one but 1 mate.I get very server headaches 24/7 and all the same as the lady in the film..I just hope no one reading is in as much pain :(
you survived for a reason. Interesting you would get such headaches and you need that checked. The brain has no sensation. You can do brain surgery on patients while they are awake. They only get under anesthesia when the cranium is opened. After that, they can wake up and help with the mapping of their brain. It helps a lot to see where important speech centers are, so they do not get damaged. That is only one example when it is very useful to get the patient's feedback.
thank you for sharing...my 27 yr old grandson is trying to find his new normal after tbi...we need all the help we can get...God bless Lizzy and her family
Much thanks. Thoroughly engrossing and inspiring. Your language regarding challenges, moods, fears, sense of loss, dependence, but also that you have also reminded me/us of the abundance of care, support and love from our social networks. That was great to see John Walker again. Remember went he visited our school when he was the primer runner of his time. In January 2019 I had and Industrial Accident (fell 3 metre through a roof) this left me with vestibular, cerebellum damage causing balance problems, I also had hearing lose in one ear(100%) along with other nerve sensory problems (night walking problems) and finally daily head pain. I spent nine weeks away from home in hospital and (ABI) rehabilitation. I have been pushing forward relentlessly, refusing to concede to the OT, PT, ST, Dr of Neurology. A sense of non-improvement in the last two weeks along with sharper head pain means I have become frustrated and angry. Talking to a lady at church today who is still dealing with the effects a farm bike accident 2 years ago, and also scouring the web for answers then finding your story this evening. I sense there will have to be movement of thinking, meaning a deliberate effort toward acceptance, with the constant hope for substantial improvement.
I had a head injury 2 n half years ago my life have been distroyed I’m disabled can’t do nothing always dizzy n headaches 24/7 everything it’s sooo difficult to do even take showers n baths r exhausting it’s been a living nightmare nobody understands what I’m going thru because I look normal
Yes I know exactly. My headaches are better. But yes dizziness...it's been over a year. Everything stopped. My social life work etc. Have a lawyer...Just hope we get better. Neurologist don't know...
I am a brain injury survivor also - caused by a brain tumor in my 20s. I am 54 now and have just been diagnosed with Dementia. I totally identify with this woman and hopes she does get better ~
I was diagnosed with advanced dementia a few years ago. long story short ... I got saved ... then I saw a speech therapist who said I didn't have dementia. doctors are idiots. since being in speech therapy I've been able to get better at organization and memory. I also have aphasia. all those things combined can mimic dementia. go to your primary doctor and ask for a referral for a speech therapist. you'll get evaluated and you can get better. also have a blood panal done. make sure you're not low on B vitamins. and quit eating sugar. let me know how it goes!
so glad that she shared her story! at the time of this upload it was five years for her. It's been ten for me now. I still have many of the same things going on, but especially the, "Did you hit your head today?" It's difficult and recovery is different for everyone, but I think that we all find a way to "live" with it rather than "full recovery".
I wish my accident was fatal. I was knocked out for five minutes. I don’t remember anything for three days. On June 9 21 my life ended. I lost everything. My temper is so fricken nasty. I’m not scared of anyone. I speak my mind 100 percent. I definitely want the old Nick back but he died in June.
I'm sorry. I can relate bc I often wished I'd died too. It's taken years to not feel that way. I hope you find your way back to some kind of normal too.
13:00 the worst anyone with a traumatic brain injury can do is compare the current life to the formal life. There is no now and then. It’s terrible living like that. The best advice I ever had was from a traumatic brain injury therapist from Stanford on UA-cam. She said: think of having a toolbox 🧰 and all your tools ⚒️ inside. Now, take all those tools out. Replace them with NEW tools 🛠 . It took me a long time to get it through my head. When I did , it is the best advice I could ever get. We can never ever be the people we were; follow through on the plans we had. It’s like reading a book 📖 ; you finished ✅. Now you start a brand new book 📚.
Hi Lizzie I also have a head injury which was a crushed left temporal lobe about 11cm x 7 cm when I was 16 and was in a coma for almost a month and in hospital for the next few months on and off. The pain and not being able to remember many things is hardest and outbursts of anger about tiny little things. I had a Titanium and acrilyc plastic plate put into my head about 5 months after the accident were I had no skull and had to wear a special foam helmet till then. Your brain will slowly get better but loss of memory and need for a sleep during the day is common in some acquired brain injuries. And since being on a anti depressants for the last 12 years have improved my outbursts and brain memories has improved. I have many other issues from doubling my weight in the first 7 months since the accident and now have a type 2 diabeties for the last 25 years and have had a quadruple heart bypass in the last 11 years and mini strokes and now seeing eye clinic at the royal Brisbane hospital for the last 7 years with laser and multiple eye injections since about every month it's either seeing doctor or laser or needle in the eye. Lizzie your a smart and beautiful woman and the brain injury will take a long time to heal as you get older you will improve and there is lots of other brain injured people that are in a much worse situation than ourselves. I am now 56 and take life day by day but I'm still living and so are you. It's a long road but you will get better.
I've been diagnosed with post-concussion syndrome and it has similar but milder symptoms than this. in my case it's fatigue, forgetfulness, speech apraxia/dyspraxia (what she calls "cotton mouth"). I'm also a singer so like... I hope I recover soon :/
I suffered an intracranial hemorrhage back in 2006 and suffer short term memory and right side peripheral vision field loss. The head aches were surreal, but I focus more on what I still can do, and less on what I can no longer do.
It is bizarre to me that some patients suffer from headaches after having intracranial bleed, considering the brain does not feel pain. You can operate on patients that are awaken during the mapping of their brain, looking for certain lesions. Making the patient talk is the guarantee, the surgeon do not cut necessary tissue. So, I wonder, why the headaches ? maybe related to small nerve endings that got cut, during the craniotomy ? could have numbness ? or pain ? we need to do more research on these topics. Headaches are miserable to suffer !
I never had a tbi but I do seem to have major issues with memory, focus and cognition. I even though at one point I was developing dementia. But apparently I react to certain foods and have brain inflammation during horomonal changes and certain foods, I may also have a thyroid issue. I've been coping with my symptoms by getting coconut oil, blueberries, avocados, and b12 into my diet more frequently as well as exercising my brain, staying active and reducing inflammation by drastically changing my diet to eliminate most grains and other things my body reacts to.
its the most helpless feeling and at times embarrassing ill see a person and not know them yet we have met many times or telling the same story because i forgot i told it the worst is being with a friend and i cant think of there name I'm glad your doing ok such a great video the main thing people need to realize were not dumb just a wee bit muddled at times
Poor darling I cringe each time she says the word stupid particularly when she says 'Have I done something stupid? Have I hit my head"' You have a brain injury you are not stupid. Anything negative or clumsy is caused by that injury. It not your fault and hasn't a thing to do with your intelligence. Sounds as though many people did not take her seriously enough and it rubbed off on her that since one can not see hr injury that it is not legitimate and serious. I hope that she is able to recover to some degree and if not that she becomes more comfortable and much less apologetic for something that she has no control over. I would probably be the same way so I am in no way trying to chastise this remarkable capable young woman.
avaorchid that's really nice what you've said. Having a so-called invisible disability is very taxing because there is always the social stigma and feeling of not being accepted or believed on top of the difficulty of the disability itself. It's also something of a misnomer, because if people just paid closer attention, almost all of these so-called invisible disabilities would reveal themselves.
Snuggles McSquishbottom You are absolutely right. When I cut my hair short you can see the scar from surgery. My TBI happened at 14 and I'm 40 now. Things have worsening over the past 5 years. Take care and if someone gives you a hard time they aren't worth your time! Peace
I have dysautonomia and it causes awful brain fog, severe full body tremors and on bad days aphasia, I'm constantly apologizing for forgetting what someone said or blanking out and worrying that I appear rude, also with my tremors I'm always knocking things over, dropping or spilling stuff and it is rather embarrassing especially when you try to clean something up but only make it worse as you knock and drop more things trying to fix the first fuck up. With the aphasia I sound drunk and high and so I'm always making a joke about "This is me sober, you wouldn't want to see me any more impaired than I am sober!" To stop the judgement and stares. It is so hard having neurological issues, especially being 25 because so many times people will say things in public about my "tweaking out".
tash5052, same here. So many of us have to deal with this. I've settled into the tactic of inviting skeptics to sit in on appointments I have with my neurologist, and ask him any questions they want, including asking him to explain my MRIs and neuropsychological test results. But no one ever accepts the invitation. These people want to believe the irrational so they can believe the worst about us, and our attitude must be that they can go straight to Hell.
There are sooo Many of us and Nobody Seems To Believe us! I’ve had the same experience within my family and it has been spirit crushing for me. God bless and I hope you are doing better.💕💕
My "mild" brain injury is much as described here: "Invisible". Which can make things both easier and harder. Easier because you don't have the enormous obstacles that those with serious motor and speech problems face (mine weren't affected), but harder because people are entirely unaware of it. You can't say to everyone you meet "Oh, by the way, I have a brain injury so please make allowances". Like others with an injury like mine, the main affects are on cognition, memory, vision, headaches and - hardest of all for me at least - "perception", by which I mean how you percieve the world, the feeling of unreality and unconnectedness which has made me suicidal at times. What she said at 16:38 struck a huge chord with me: "I want my old life back...I was very resentful" With help I have learned to cope, but those feelings have never gone away.
I fell 20 feet on my job and landed flat on my back and head in 2008.spent 2 weeks in hospital.had several brain bleeds.I can tell you life after it has been a tough go.it effects so much.my speech is bad.I stutter and sometimes grind my teeth trying to say a word.severe up and downs,etc etc I can go on and on but not necessary.
My brain injury was from DKA, due to Type 1 diabetes. So I have the non-stop headaches, mood swings and quick fatigue. I totally adore this channel, I’ve watched at least 10 episodes in 3 days, as I’ve been unwell, throw a bad tooth in the mix and now I’m totally a waste. Come on Tuesday, where the tooth will be fixed. I wouldn’t wish TBI/or cerebral damage on anyone, but if you’ve experienced it, do like this beautiful lady and carve a life out that YOU can live with.
I suffered a TBI in 2018, after being hit by an SUV. I also remember how my life was before my accident, and I want that person back too. When I look back, or talk about how I used to be, I talk about her, like she is someone else. Instead of saying, "I was so happy, and outgoing," I say that she was.
@Sister Rose I say the person I was died. She really did. She had to die in order for me to live. Simple. Had she lived, I would not be able to be the person I am today. I owe it to a therapist from a Stanford medical center program here on UA-cam. She said, think of a toolbox 🧰 and all the tools 🛠 in it. Now take out all the tools. Replace them all with new tools. Everything you wanted to do is gone. You are a new person with a new toolbox 🧰 with new toolset ⚒️ It took me a while for this to sink in; for it to be absorbed into my mind. I realized I could not go back. So little by little the change started. I let go. It is the hardest decision. But you know your life depends on it. Do you want a happy life? Or a daily life of regret, anger, sleeping, pills, feeling sick? So I chose a new toolbox 🧰 and new tools ⚒️. I researched nonstop. Still do. You choose Ms Rose. You can be happy with the new you. Just think about it. I don’t even talk about who I was. I just learned this passed week I don’t want to talk about the old me. I only stay on today and my new future. I choose this. And those around me must respect it. Or, I don’t talk to them. Simple. Best regards.
As the lucky recipient of a TBI in 2013, I too have damage to my temporal lobes, making me fatigued, foggy and cognitively very slow, especially when compared to how I was before. I am tankful that I don't suffer from headaches but its offset with brutal and inconsistent fatigue. If I was to give advice it would be to find a way to stay positive and find peace with the new you. I often joke that I wish my injury was more visible as I look completely normal. In fact based on my years of sales and management, I am incredibly good at faking it Diet, exercise and daily meditation to take control of your life......
my son recently hit his head while longboarding thank God he was a city block away from a hospital but he has mood swings and trouble with school work etc but most people don't see it
Thank you for sharing been going through this for the last for year .... my psychologist found that I have TBI and mixed emotions. A relief that I am not crazy/ stupid/ asking what wrong with me !!! Now trying to process ! Thank you for sharing especially we look normal but the injury is in the inside on the most important part of body!!! Thank you 😊
I have a brain injury from a car accident. I had another one month after due to the vertigo and fell down 8 hardwood stairs with my head landing back nd forth on it. 10 months out and I still have stuttering and stammering, brain fog, short term memory loss, nausea headaches and great fatigue. Every thing you said is true. The fatigue is so overwhelming just to do one thing. I get distracted badly and forget simplle things. I go to a TBI center at a military hospital. They are specialists with brain injury. I just learned today of a supplement L Theonine, you can get it at the drugstore that will help calm any anxiety and help with focus. I took one today for the first time and it did make me feel no panic, not the headache though. I am very happy that you focused on helping others. I cannot return to work that I did for 35 years so I don't know exactly what my new purpose in life is. I have tended to isolate myself and don't go anywhere because of the speech impediment. Its so embarrassing.
I feel your pain I have suffered not one but two head injuries 2 my head! Date's time's of events have gone! Remembering is difficult & I am 52 & my TBI was @ age 8 & to young to understand the headaches!! Are where they come from!! Not told that you suffered a injury @ A early age!!
Hi Lizzie, thank you for sharing your story, and for your tireless work to bring awareness to this invisible disability. I really feel people need to learn not to be so quick to judge. You just never know what someone else is going through, as silly as something might seem to you, it can be a struggle for others. I would love to see a follow up video on your life and charity work someday :)
Thanks for your kind words Pleinair! We really appreciate your support and I will pass on this comment on to the team. Thanks again for watching and stay tuned!
I've been fighting to regain my ability to read for a year and a half after standing up into a metal shelf and suffering a depressed skull fracture I ignored for five months thinking it'd get better on its own, head injury awareness is really important even if you feel fine afterwards try to get it checked and monitor yourself as looking back now there are lot of warning signs I should have noticed, even now I struggle to retain information and try to review what I've read two or three times to make sure I got it, it really sucks cause I read all the time and used to be able to do it really fast
Thank you so much for your coverage of head injury, it's time for myself to ascept that I can't keep working full-time and sleeping all the hours outside of work after 3 plus years of trying. Why are ACC so slow? review's? It's been 6 months so far and I have still not seen anyone from ACC or their specialists. I'm lucky to have been seeing one of the top neurologists in NZ and a very understanding Boss.
Wow, I get like that too. I think it’s more my hearing (I have trouble filtering sound), the exhaustion that comes with Fibromyalgia and me being a natural introvert. I hope she has a wonderful life ahead, despite the TBI.
Elisabeth....(?).thank you for sharing. Videos such as this one that you made are starting to give me some insight into what is happening and has been happening with myself for quite sometime now. We have very much in common actually and to be honest it makes me sad to know that we live worlds apart and it would be hard if not impossible to ever have a conversation. Be it at the same the I feel a kind of pride/proudness for you for confronting the TBI and sharing it with the rest of us. So thanks......it seems hopeful. And you will do fine. And you will find it. The thing you are looking for.
All the love from the UK, I suffer a very severe head injury and severe TBI, I am right with you, and I know exactly what you're saying and feeling, I have to have me time too. All the best and love, and my saying now, "Keep smiling" :)
Hi lizzie keep positive keep going we made video on utube things not to say to someone with brain injury it's from our hearts we are still us proud of you so proud well done sending hugs luck love from headway Nottingham UK takecare xx
I think the worst possible outcome from TBI is personality changes. It is one thing to have to deal with memory lapses, physical handicaps, speech challenges, and many other disabilities, but to have your loved one's personality change would be hardest, especially if they were no longer the person you once recognized, and that recognized you too. It is really a failure on the medical community's part not to do a better job at recognizing TBI/DAI and treating it properly quickly to improve chances for the best recovery possible. I know a lot has changed since this was posted, and I trust Elizabeth has had the opportunity to take advantage of these new treatments.
Lizzie I fully understand what you are going through I have had 3 concussions and also 3 brain surgeries and I also have headaches and problems with memory loss and I have had to except my limitations, you are certainly not alone.
@@faisalbi1330 I still have headaches and memory issues and other health issues but my attitude has always been I am upright and moving forward, I can't change the past ,I can only look forward to today and tomorrow.I do the best I can with what I have.
@@beverlydust5381 thank you reply me .ur emotions feelings are same as before I am struggling with emotions feelings I can't feel emotions feelings how I was before.
I love the fact she loves riding horses and it's a passion of hers. I ride myself and this is a wake up call to those riders who don't wear helmets. She was lucky enough to be wearing her helmet or else her head injury would've been so much worse.
@ E ON true. I was placed on meds because of the brain injury. Then the meds started causing sleeping all day, plus others symptoms even anxiety and panic attacks. So asked to stop it. I researched better natural sources. It is a complete lifestyle change. Including the people around you. It is all what is best for you. Simple. It is the hardest thing to do. However, we can only choose to do what is best for our bodies and minds. Then, the external world will benefit from our own well-being. Hope you can slowly turn it around and be a better you. Best regards.
That must be so incredibly frustrating, and you can see that she more than anyone else is disappointed and embarrassed with her condition. I think most kind people would be very willing to be patient with her need for rest . . . but she strikes me as the kind of person who is so used to being independent that learning to be patient with herself is the real challenge. I'm sure it must be thrilling to ride a horse, but after working on a horse farm for a week and watching all these post-horse-riding injuries, I am only afraid of horses. They are hundreds of pounds of pure muscle with hammers for legs . . . you couldn't pay me enough to get too close to one, much less ride one.
Bless you for sharing with many . You are brave ! I share with your Brain injury. I’ve had 4 and concussions. Be Proud of your modeling. I could not do what you did . I hope to hear more . From USA
In 2007 I fell off of the trunk of a Ford focus, and smacked my head of the cement. From what I've been told. I was in the hospital for a month I was in a satiated coma cause the left side of my brain was swelling up and right side of it was bleeding if it didn't stop they were gonna cut into my head, but I guess it all stopped cause they didn't cut into my head. I guess the day I left the hospital to go from I was fine everything was good but a couple days went by after I was home and I was rushed back cause I couldn't walk. And if I'm correct I was never told why it was I couldn't walk. But because of this tbi I have horrible memory. I can't remember anything most of the time and some times I'll remember things some time after the time I'm needed to remember whatever it is. I use to get horrible headaches 24/7 but they died down, now I just get this really really sharp pains like deep in my brain and as I'm getting these sharp pains I get dizzy and this blackness takes over my vision and I can almost not keep my balance. I never got the last MRI I was suppose to get. I went a seen a new doctor about a week ago about my pains to get it checked out. And my eyes seem to always be dilated too. I go on the 18th to get an MRI done and then June 25th I go to a nuerolists about my pains too. I've had these sharp pains happen over 30 times in one day. They're horrible. I've been looking up more info about tbi to find more out. So any info anyone has would be great. All tbi are different.
Hope you get your problems fixed. Seems like you went through an awful lot of complications. Can you learn to meditate ? it could possibly help you, also self hypnosis.....there are people , not in the medical community but in alternative healing that could possibly help you. Check it out. You have nothing to lose and on UA-cam, it is free. There is a lot , the conventional establishment does not know or understands. Cutting and taking pharma is not always "enough".
Keep going doing amazing things stay strong stay positive it does get better in time it's a hard road but worth it in end I have hypoxia brain injury I died 26minutes spent weeks months in coma rehab hospital learning talk walk again been a recovery massive discovery never ever give up on yourself many will never yourselves keep going sending luck hugs love from headway Nottingham UK takecare xxx
Just thinking outside the box here. Have your doctors tried you on migraine specific medications such as Imitrex or Verapamil? Also for the neck pain I feel that I tore every muscle and ligament in my neck in an auto vs bicycle accident. I would suggest yoga to try to stretch and strengthen (it'll help break up any excess scar tissue. Also ask your doctors about Soma. It's a strong muscle relaxant that may help with those pains. Hope some of this helps.
Sorry to hear about your injury Elizabeth. You are not alone, by far! I really want to say thanks to you more people will learn about this. You are still very beautiful, on the inside and out. Maybe visiting sick kids might pick up your spirits, and someone to love you when your parents have left us. Maybe start a foundation for head injuries in kids as a distraction. Or something like that!
My daughter has just be diagnosed with Frontal Lobe injury from 2 accidents in the same year. She's about to start BWRT and OT which apparently helps to reroute brain neurotransmitters. We've been told it can improve substantially. Don't give up ! Try seeing a Clinical Psychologist who specializes in this? Just a thought 🙏
Thank you for taking the time to share your beautiful life. I, too, am a former model who also suffered a traumatic brain injury from a horse accident 10 years ago. Life has never been the same. Some days it’s very lonely knowing others can’t see how truly difficult it can be day to day. Living with a brain injury can get better.
Your vid helped me this day.
God bless you. 🌸
30 years ago met a 16 yr old girl. Horse throw her and went into a coma. Totally different.
I had a frontal lobe brain injury in 2010, an since then my symptoms are pretty much identical to how you have described yours. Constant headaches, fatigue, going off on tangents, which I call it brain farts, depression, an a constant thought of my previous self. Having to accept that life will never be the same.
@Oni I hope this message is not too late and by now you have learned to LET GO.
It is sooooooo much easier, when we let go. Only YOU can do it. Only you can decide for yourself. Trust me. Life with a brain injury is still LIFE. We minimize stimuli. Do not do what she does here. She pushes herself so much! And I ask myself: for what? What is the purpose? Why punish herself like this? I hope by now she has changed her mindset.
Our first goal commitment should be to treat ourselves kindly. Be mindful of your needs. Sleep well. Eat healthy. Take walks, dance 💃 whatever exercise your body and brain can tolerate. Do meditation to train your mind and control your body. Even helps control pain.
Life is so much more easy when we make the decision to take care of ourselves first. Best regards.
We all seem to share the same types of issues, but its the frontal lobe injuries that are so difficult because you are recovering from the death of who you were pre-accident & you have to accept the person you are now, but all anyone wants to talk about is that person NOT the new person because to them you just lost a part of who you were NOT a whole different personality & person. sorry babbling on and on what shatters me is how people use my TBI to attack me hurt me .. I hope people learn & change understand how much changes when everything looks the same to them
Hi how are you now?
@Oni i had a sever frontal lobe injury in 17/12/2009 and still suffering from symptoms of new personality specifically with my hubby 😥
@@marymetry145 do you have long term memory?
My aunt had a brain aneurysm . She was intelligent and beautiful. Unless you knew her and spent time with her, you would not see the deficits. Very similar to yours. Was difficult for her to get disability because she presented so well. It was horrible because it wasn’t an external visible injury so it’s hard for people to see. I’ve had a couple of concussions in my life. One I could only work half a day because my brain got so tired. Some people thought I was being a baby and making a big deal out of nothing. Again, hard for others to see and understand other than the blank look that would come across my face. Thank you for sharing your story and getting people to understand this type of injury. God Bless!
I too suffered from a brain aneurysm due to being a micro preemie. Getting services has been extremely hard and frustrating because like your aunt I present so well.
I had a big brain aneurysm, but localised and had surgery /1995/ accidently on the op table got epileptic. So it was challanging but I was 27 and back then I thought I was healthy, strong. I recovered well but yes I can recognise that my temperament changed, I became bipolar what is also can be handled but not easy. I am on medications since then. At age 50 I got tired with my busy, ,,always on the top,, carreer. I resigned, moved another country, I work in a Restaurant /part-timer/ have less money but hardly have stress and I alwaysed loved this country, ppl and the mild weather and that's all I need. I feel happy, living healthy and volunteering if Im fine. So who knows how long we leave, I wanna enjoy my life and help others as we..
Lizzie, you are not alone. Thank you for sharing..made me not feel so alone. God bless you
Thanks for watching Gina, glad this video helped you!
Lizzie is Beautiful too.
Best wishes
I can appreciate this video and hope it brings more awareness to life after a brain injury. My son suffered a tbi a few years back and has not fully recovered and its painful when my husband says things like he's lazy, or that was a long time ago there's nothing wrong with him. People need education before they judge or speak negatively.
Thanks Lizzie, I'm going through the same thing. It's an invisible injury and people say you look fine, but you're not. I'm hoping I could start some community awareness about TBI like you have. Congrats!
I remember watching this 2 years ago after I had a traumatic brain injury. What a difference another 2 years make! What a difference therapist advice, research, meditation, changing eating habits a complete lifestyle awareness makes.
I truly hope she has learned to listen to her body; rest, and make a decision to start a new life with a positive mindset and healthy lifestyle not punishing herself like in this episode. Let go. Start new. Be the best you that the new you can be.
The brain is a far too complicated of an organ for us to compare one TBI to another. Not all of us respond to lifestyle changes and must trudge through years of medication adjustments.
It breaks my heart how often she puts herself down, calls herself pathetic. She's had an injury that caused permanent damage, and she is now coping. She's doing amazing. I wish she could be proud of how far she's come.
It comes from the frustration of being able to only do some things some ot the time, wanting to do more cause you're a high achiever. Also the brain gets in a negative funk. Makes it tougher to be positive
I cannot speak for her but personally it feels like I'm constantly trying to play a part of someone I *used* to be.
This was very eye-opening for me. I think most of the general public, when hearing "brain injury", automatically thinks of people we've seen in wheelchairs, who have many obvious problems with speech, feeding themselves, & general inability to function without someone doing nearly everything for them. The media rarely shows stories of the Lizzies out there... beautiful, articulate, & appearing quite functional & independent. I hope this video goes a long way in educating the rest of us about the struggles of ALL brain injury victims. I myself have a rather invisible illness, & it is quite embarrassing & frustrating at times, as people don't understand that you're tired, or don't feel well, even though you look fine & haven't done much to exhaust you. Just trying to do the small everyday things is what exhausts me- before I even get out around people! I wish Lizzie all the best.
I am a stroke victim, my disabilities are clearly obvious, so I get treated without respect, and ostracised, I would much prefer to have hidden disabilities, I have had to spend the last 20 years trying to hide my disabilities in order to be accepted by society in general
@@mareewragg177 I don't know which is worse. An obvious disability or a hidden one. I have a hidden brain injury my family don't understand. They think that the symptoms are a curse which is only due to arrogance and lack of awareness 💜
Hidden are worse...I was an ED/trauma nurse...and former paramedic...lost my leg in an accident, have a high end prosthetic...so I can move around...but i suffered nerve damage in my arm and a mild concussion...I can't start an IV very well anymore...and I became tired fairly quickly...and get migraines...fortunately my memory and speech are ok...but these symptoms were far more disabling than losing my leg. I switched to outpatient psychiatric nursing because it's less tiring and doesn't require me to start IVs...🤷♂️ definitely the invisible is worse...I'm going back to school for my nurse practitioner and am nervous but have fingers crossed...
@@mareewragg177 sorry to hear that...
Wow this was so nice to come upon this. I harbour some shame for myself and my life post head injury. I had zero support from the medical system to my own family whom I have cut out of my life and to the close friend I had at the time of my injury. No one believes you, no one can fathom just how bad it is. It was worse than a living hell for about 2.5 yrs after my injury. I am 5 years out. Watching this made me feel less ashamed. I used to be highly athletic like work out at gym for 2 hrs and then go for a long hike and bike ride in the same day. I have pushed myself very hard but after a days work I guess I am very fatigued and have no energy for anything else. All of the things you said remind me of my life. It is terrible. It is limiting. My passions were in dance, sports and the gym. I cant get that back. I am still working on not feeling sick after a walk on the flat. This video clip gave me the comfort to know I am not alone and to remember that the reason why I do not feel very young anymore is because of the accident and its longterm reprocussions. It is living a life in limbo. When you said you feel like a disgruntled 80 yr old man, I totally get that. I am 40 now but I know of 50 and 60 yr olds who are more youthful and athletic than me. Head injury takes your life away and gives you sort of an echo of the life you once had, it becomes a distant memory
I so relate to this dear girl. I survived a brain aneurysm and a stroke on the OR table during the coiling procedure in 2011. I was fortunate to come through it without physical disabilities but the mental part is so bad! I vomit a lot, esp when brushing my teeth so now my teeth are going bad. I've already lost 3. I rly miss the person I was but I remind myself I survived and get to watch my kids grow. Sending love and healing to every survivor here.
I never knew there was so many head injuries, ever since mine I hear nothing but these. The same on and off rage...the confusion, the struggle of others seeing me as a freak because they think I'm taking faking...the burning on fire and pulling nerves back my head....it's hard specially on ourselves and ones we love.
I'm currently dealing with a head injury from work.....I'm always tired, and have mood swings and sometimes forget what I'm talking about during a conversation
depression is the worse....
have your primary physician give you a referral to a speech therapist. a speech therapist can evaluate cognitive functioning ... memory loss ... and more. that's how I started my road to recovery.
Yes. I had minor car accident it's been over a year...headaches are better. But living with dizziness and unable to nod head due to dizziness. Weakness. Know exactly.
LOOK UP DR. MARK GORDON- LISTEN TO PODCAST WITH JOE ROGAN. HE CAN HELP!
Thank goodness you made this video. I had a severe brain injury and appear normal, but my experience of the smallest things is difficult in ways I cannot describe. I fake wellness with my friends and change the subject if I don’t remember the answer to something. Very few people truly understand this fate.
I am so sorry to see anyone with a head injury. It has to take a lot of adjustments to cope with this change in one's life. Bless her heart and cheers for her. She is a trooper. Hopefully, she will get to where she accepts herself again and regains her self confidence.
Thanks for your support TheMinnie419 😀
They have great therapy for that. Special centers are around that make a difference.
I have a head injury and has affected my memory, cognitive function and speech. My family and friends see it outsiders not so much. Only in stressful situation where I try to retreat back to home.
Bobbie Abbott I hit my head twice in less than 6 months. The drs. Kept telling me that I'll go back to normal. But it's been a year and nothing has came back.
:( glad your alive
princessaz79 have you recovered yet? I struggle with this too.
@@mikeb769 Hello ✨ Mike , It's been almost 2 year s since you commented . Hope you are doing well now days 🤜🏻🤛🏻
Thankyou for speaking out about your tbi !!!!
I’m so sorry you suffered like this the hopsitals should have done more .
I also suffered a head injury around 4 years ago , I get really short fused I still feel like a ghost , I have permanent ringing in my ears and my head swells inside sometimes. I’m 25 and still can’t live alone I still need support . Some days I miss the person I was it took a huge part of my life, I think I used to be a happy girl now I’m depressed easily short fused at people and situations , I get angry at many things now but deep down to me it’s not anger. The hopsital didn’t do anything for my head injury they refused me a mri scan. The headaches get too much and make inside my head swell , I also can’t look up at the sky because the injury left me with double vision.
It’s a hidden disability !!!
It’s quite sad to think there are others out there who actually know what a head injury feels like I d hats anybody to understand that feeling.
I get so tired easily by conversation it’s unbelievable I wanted to have time with my family but my concentration is none existent and my focus has gone .
I pray you find inner peace with this awful hidden disability
You are definitely not alone. I had a TBI in 2007 in a car accident. I didn’t lose consciousness and didn’t realize I had hit my head or that I had injured my brain until 2 weeks after the accident when the brain swelling got bad enough. All of the sudden I couldn’t understand what people were saying when they talked and I had trouble talking. I started stuttering and couldn’t remember two things at a time. It took me almost an hour to make a pot of coffee because I had lost my working memory not just short term memory. I couldn’t handle noise, crowds, I couldn’t answer the phone or open mail because it was too overwhelming. I would get angry easily if I got overwhelmed and I wanted to be left alone to lay in bed in a dimly lit room and read for hours. I couldn’t make meals for myself so I lived on peanut butter and jelly and milk and actually lost 15 lbs the first month. I am a nurse but I didn’t know what was wrong with me. I finally went back to the doctor after I tried to drive and realized I couldn’t remember what the signs meant or what the light colors represented and I couldn’t figure out why I was constantly slamming my brakes on behind other drivers who were slowing or stopping. I could see their taillights turn red and could see them slowing down but for some reason i couldn’t respond fast enough and had to eventually slam on my brakes to avoid hitting the cars in front of me. Of course I know now what had happened but at the time I was literally bewildered. My doctor was not help and didn’t even send me for rehab or to a neurologist for testing. I tried to go back to work not having a clue what a disaster that would be as a nurse. I couldn’t remember all the steps to giving a pain medication and I was the charge nurse! I had immense trouble writing and noticed my handwriting had changed and was almost illegible. finding words was torture and it took me hours to finish charting because I had to say in many words what one word or term would have done. I lost three nursing jobs because of trouble with emotional regulation, time organization and not getting the same amount of work done that my peers could. It took 18 months and it seemed some brain swelling was diminishing. I started to be able to make my own meals though it still took a long time. I started being able to visit friends and family more. I could handle more noise and i was able to remember more than one thing at a time. I still have deficits like; i can’t remember events in time unless I write down when they happen. Spans of time are no longer something I can judge with any accuracy. I still have great difficulty with word finding and my handwriting never recovered. I still don’t like crowds and they exhaust me but I can tolerate them for short periods like going to church. I never had any physical deficits that I’m aware of but just cognitive deficits.
Same
I had Severe TBI with Hydrocephalus, among a slew of other injuries in an accident. This happened from a careless driver that ran a stop sign and blocked my path while I rode my Harley. The driver fled the scene, never to be found again. This was July of 2015. I'm trying to restart my life. A few months ago I was finally done with hospitals and rehab. Patience and your videos have really helped me out, thank you very, very much.
So happy to hear our videos are helping you! Wishing you all the best Nick 😊
Hope you're doing well now Nick, and so so sorry to hear about what happened to you. Hope that driver is haunted by that event.
I had sever TBI from riding also, A driver sped up whilst I was trying to pass her on an open road. I entered the corner a bit too fast and couldnt get myself into the corner properly. She fled the scene also, I dont understand why anybody flees the scene when a motorcyclist crashes because of them.
@@joshuadobby8619 yes, it's crazy that people can do that!?! I do my best to ignore what I can't control and focus on what I can, stay safe all.
@@RealElongatedMuskrat it's definitely been quite a journey but I'm texting you as I lay on a couch of my own house I was finally able to get. I lived alone in an apartment when my I had my accident, now I share a house with my dog Mindy! 🤣
Be safe out there!!
Please see a neurologist and a psychologist because you have so much insight, you would be a dream to work with. Good luck for continued recovery. You're braves and courageous, love from Australia ❤️
Thanks for your kind words Janet! Hope you enjoyed the episode!
It's been 5 years for me too, Ive tried working again and I cant make it past the 3rd day. But I keep the faith and am grateful there's people like Lizzie willing to share...
Understand your situation a lot better now Steve. Wondering about frequency therapy to help you focus. Don't give up looking, I know a lot of folks are behind you.
@@alexanderhorvat4836 thank you, been working with that as well as visual options that involve frequency blocking eyewear
Thank you for speaking out about TBI. Same here- someone ran a red light blindsiding me, doctors sent me back to work wrangling packs of dogs WITH a severe brain injury, which resulted in losing my business, my home, and everything I owned. But when life hands you lemons, make a UA-cam channel! So I'm documenting (somewhat) my life living on the road- and hopefully a journey to healing.
Kelly Doyle I was t -boned by a red light runner, I’m sorry you’re going through so much too, as a result of your being hit. I didn’t have a brain injury, just three broken ribs and a very sore shoulder. PTSD sucks though, so much.
Amanda B
Click on her profile picture and you will be taken to her page!
thank you soooo much for sharing your story! I am 14 months in from my accident and what i find the most helpful is knowing i'm not alone....and all the difficulties you share are what i experience. Thank you....i hope you will continue to do better and better. x
Same here about 14months. Yes I know what it is.
Hi how are u now
Worked in canine rehab, cabinet fell on me while at work, suffered frontal lobe and brain stem injury. I lost my life, have the same symptoms still 4yrs later. But I don't give up, I still work with one animal a week. My communication goes, dizziness, vertigo, when I get fatigued. I have sensory overload and I am limited, I forget mid sentence what I was staying, I have outbursts too. I understand symptoms. It is hard. Keep pressing on. Thank you for sharing. You are lovely
TBI front left lobe injured here. Have you seen a neuro-ophthalmologist or read/listened to The Ghost in My Brain?
@@hrdcpy HI, I have seen a neuro-ophthalmologist. I have not listened to the ghost in my brain. I will look into that. Thanks. Sorry for your injury. I went to cognitive, vestibular, physical, speech, neuro-psych, neurologist, the last therapist gave me the advice to manage time, stimulus. That has helped me the most! Best wishes
I found this channel a few days ago and I have to say : I really love these videos. I've been learning a lot about different conditions through you guys. I work in healthcare and it's always good to see more perspectives. Keep up the good work.
Thanks for your kind words Smallie! We really appreciate your support and glad to hear the videos have helped you!
You are a brave, strong and beautiful woman. I recently watched my grandson struggle with a bad concussion from playing football. He had terrible headaches, dizziness, nausea, and eye problems. These were just some of the things he suffered with. It took him over a year before he could return to school . He went to head injury clinics, rehab, neurologist and had numerous testing done. I would never have known how severe the effects of a concussion could be let alone a brain injury. You’re in my prayers and thoughts. I truly believe that with your determination anything is possible.. 💕🙏
2 yrs ago someone crossed the Hwy line & hit me. Brain hemorrhage, trauma rehab …. Doing ok for awhile. All the typical dizzy, walking, Fatigue, understanding & following a conversation. 18 months later I fell, hit the front of my head again, knocked out, concussion but no blood. THIS time it changed my life completely.
Lizzie, I can so relate to Everything on how your life has changed. I was a social person but now it hurts to listen to people talking, stimulation, noise, brightness…. I do miss who I was & am still so angry for the turnaround my life has taken. I can’t crochet, see, can, bake… just starting to cook a little but I have absolutely NO taste😢. Tried gardening again but that can be very taxing at times😢
You are so blessed to have your mom by your side & who understands part of what you’re going through.
Ops, lost my train of thought.. brain fart🤪. Thank you for sharing. I still haven’t let go of the old me… kinda feel like that would be giving up but I’m working on it. Not one to stay idle but I feel like that’s what I’m doing. And yes, those sharp burning stabbing pains in the head⚡️⚡️
Sorry for the book. You’ve just described this person I have become.
God bless you & your mom🌟😇
Northern Nevada USA 🇺🇸🇺🇸🇺🇸
👵🏻👩🌾❣️
Thank you, I also have a brain injury. It was a right subdural hematoma and it happened when I was 16 and riding in the back of a pick up truck. I know the stigma and the way people are and how much they expect of you, I an 47. I try everyday, I even worked as a Medical Assistant for 6 yrears however it is to tiring for me to continue.
This is FANTASTIC!!! I’m finding it a few years after it was posted, but THANK YOU!!! I had a crazy cycling accident that left me disabled. It is SOOO encouraging to see others actually LIVING - regardless of if it’s what they *used* to do or creating a new path!!! THANK YOU for providing encouragement!!! 😁
How are u now???
I recently found this channel and I love it! Very interesting stories. A wonderful look into the lives of those who are affected by disabilities in New Zealand.
Thanks Morgan, hope you enjoyed!
I had a AVM Bleed in my frontal lobe deep inside.I went to Wollongong Hospital in Nsw Wollongong and they said there was nothing they could do to save my life, so they said to my family to come and say there goodbyes,After a week i was still hanging in there so Professor Micheal Morgan at RNS at Sydney told my doctor to send me up to him.So i went to him had the brain surgery was in a coma for 3 weeks after the opp i had to learn everything like a baby. Since the opp i have lost all my family i dont have no one but 1 mate.I get very server headaches 24/7 and all the same as the lady in the film..I just hope no one reading is in as much pain :(
you survived for a reason. Interesting you would get such headaches and you need that checked. The brain has no sensation. You can do brain surgery on patients while they are awake. They only get under anesthesia when the cranium is opened. After that, they can wake up and help with the mapping of their brain. It helps a lot to see where important speech centers are, so they do not get damaged. That is only one example when it is very useful to get the patient's feedback.
thank you for sharing...my 27 yr old grandson is trying to find his new normal after tbi...we need all the help we can get...God bless Lizzy and her family
Thanks for watch simosc2, you might be interested in checking out our TBI UA-cam playlist
ua-cam.com/play/PLAPx32oh7H1prvIJHnxQ8dnU9UL112lEY.html
Much thanks. Thoroughly engrossing and inspiring. Your language regarding challenges, moods, fears, sense of loss, dependence, but also that you have also reminded me/us of the abundance of care, support and love from our social networks. That was great to see John Walker again. Remember went he visited our school when he was the primer runner of his time.
In January 2019 I had and Industrial Accident (fell 3 metre through a roof) this left me with vestibular, cerebellum damage causing balance problems, I also had hearing lose in one ear(100%) along with other nerve sensory problems (night walking problems) and finally daily head pain. I spent nine weeks away from home in hospital and (ABI) rehabilitation. I have been pushing forward relentlessly, refusing to concede to the OT, PT, ST, Dr of Neurology. A sense of non-improvement in the last two weeks along with sharper head pain means I have become frustrated and angry.
Talking to a lady at church today who is still dealing with the effects a farm bike accident 2 years ago, and also scouring the web for answers then finding your story this evening. I sense there will have to be movement of thinking, meaning a deliberate effort toward acceptance, with the constant hope for substantial improvement.
I had a head injury 2 n half years ago my life have been distroyed I’m disabled can’t do nothing always dizzy n headaches 24/7 everything it’s sooo difficult to do even take showers n baths r exhausting it’s been a living nightmare nobody understands what I’m going thru because I look normal
Yes I know exactly. My headaches are better. But yes dizziness...it's been over a year. Everything stopped. My social life work etc. Have a lawyer...Just hope we get better. Neurologist don't know...
MR Esotericana that is horrible. Were the people who beat you ever caught?
Have you guys gotten your eyes checked for( Binocular Vision Dysfunction)?
Same. It's horrible
I was abused when I was a kid and I had several brain injuries.I have short term memory and have issues in school.
I am a brain injury survivor also - caused by a brain tumor in my 20s. I am 54 now and have just been diagnosed with Dementia. I totally identify with this woman and hopes she does get better ~
Thanks for watching Dee Pryor! Hope you enjoyed 😊
I was diagnosed with advanced dementia a few years ago. long story short ... I got saved ... then I saw a speech therapist who said I didn't have dementia. doctors are idiots. since being in speech therapy I've been able to get better at organization and memory. I also have aphasia. all those things combined can mimic dementia. go to your primary doctor and ask for a referral for a speech therapist. you'll get evaluated and you can get better. also have a blood panal done. make sure you're not low on B vitamins. and quit eating sugar. let me know how it goes!
Hi Dee Pryor how are u please reply me I need ur help
@@faisalbi1330 Not sure if I can help but I will try ~
@@DPryorAustralia hi have you recovered fully?
so glad that she shared her story! at the time of this upload it was five years for her. It's been ten for me now. I still have many of the same things going on, but especially the, "Did you hit your head today?" It's difficult and recovery is different for everyone, but I think that we all find a way to "live" with it rather than "full recovery".
Thanks for watching Ready Resilience! Hope you enjoyed 😊
Thanks for sharing Lizzie you are not alone. I'm from Christchurch living with a TBI accident from 2003
I wish my accident was fatal. I was knocked out for five minutes. I don’t remember anything for three days. On June 9 21 my life ended. I lost everything. My temper is so fricken nasty. I’m not scared of anyone. I speak my mind 100 percent. I definitely want the old Nick back but he died in June.
I'm sorry. I can relate bc I often wished I'd died too. It's taken years to not feel that way. I hope you find your way back to some kind of normal too.
13:00 the worst anyone with a traumatic brain injury can do is compare the current life to the formal life. There is no now and then. It’s terrible living like that.
The best advice I ever had was from a traumatic brain injury therapist from Stanford on UA-cam. She said: think of having a toolbox 🧰 and all your tools ⚒️ inside.
Now, take all those tools out. Replace them with NEW tools 🛠 .
It took me a long time to get it through my head. When I did , it is the best advice I could ever get.
We can never ever be the people we were; follow through on the plans we had. It’s like reading a book 📖 ; you finished ✅. Now you start a brand new book 📚.
Todays lesson "don’t underestimate the extent of head injuries" 🧠
Met people with head injuries. And coma. Changed 100 % around.
Hi Lizzie I also have a head injury which was a crushed left temporal lobe about 11cm x 7 cm when I was 16 and was in a coma for almost a month and in hospital for the next few months on and off. The pain and not being able to remember many things is hardest and outbursts of anger about tiny little things. I had a Titanium and acrilyc plastic plate put into my head about 5 months after the accident were I had no skull and had to wear a special foam helmet till then. Your brain will slowly get better but loss of memory and need for a sleep during the day is common in some acquired brain injuries. And since being on a anti depressants for the last 12 years have improved my outbursts and brain memories has improved. I have many other issues from doubling my weight in the first 7 months since the accident and now have a type 2 diabeties for the last 25 years and have had a quadruple heart bypass in the last 11 years and mini strokes and now seeing eye clinic at the royal Brisbane hospital for the last 7 years with laser and multiple eye injections since about every month it's either seeing doctor or laser or needle in the eye. Lizzie your a smart and beautiful woman and the brain injury will take a long time to heal as you get older you will improve and there is lots of other brain injured people that are in a much worse situation than ourselves. I am now 56 and take life day by day but I'm still living and so are you. It's a long road but you will get better.
Definitely not alone! Sever TBI here, I shared your post, so others would understand what I live with, and, that I’m not alone. Thank you for sharing
Well done Lizzie, thanks for sharing your story and raising awareness. Hope you are getting on OK, xxx
I've been diagnosed with post-concussion syndrome and it has similar but milder symptoms than this. in my case it's fatigue, forgetfulness, speech apraxia/dyspraxia (what she calls "cotton mouth"). I'm also a singer so like... I hope I recover soon :/
We wish the best for you Oliver! Thanks for watching
some people have trouble talking but no trouble singing. Pretty amazing.
I suffered an intracranial hemorrhage back in 2006 and suffer short term memory and right side peripheral vision field loss. The head aches were surreal, but I focus more on what I still can do, and less on what I can no longer do.
Thanks for sharing Gil! That's a great way to approach life!! We wish the best for you!
It is bizarre to me that some patients suffer from headaches after having intracranial bleed, considering the brain does not feel pain. You can operate on patients that are awaken during the mapping of their brain, looking for certain lesions. Making the patient talk is the guarantee, the surgeon do not cut necessary tissue. So, I wonder, why the headaches ? maybe related to small nerve endings that got cut, during the craniotomy ? could have numbness ? or pain ? we need to do more research on these topics. Headaches are miserable to suffer !
Really respect your openness and honesty you shown on this
Brave lady 😊, I appreciate your honesty. I experienced a significant head injury when I was young that affected my mood(s) to this day .
I never had a tbi but I do seem to have major issues with memory, focus and cognition. I even though at one point I was developing dementia. But apparently I react to certain foods and have brain inflammation during horomonal changes and certain foods, I may also have a thyroid issue. I've been coping with my symptoms by getting coconut oil, blueberries, avocados, and b12 into my diet more frequently as well as exercising my brain, staying active and reducing inflammation by drastically changing my diet to eliminate most grains and other things my body reacts to.
its the most helpless feeling and at times embarrassing ill see a person and not know them yet we have met many times or telling the same story because i forgot i told it the worst is being with a friend and i cant think of there name I'm glad your doing ok such a great video the main thing people need to realize were not dumb just a wee bit muddled at times
Hope you enjoyed the episode Sharon! Thanks for watching!
Poor darling I cringe each time she says the word stupid particularly when she says 'Have I done something stupid? Have I hit my head"' You have a brain injury you are not stupid. Anything negative or clumsy is caused by that injury. It not your fault and hasn't a thing to do with your intelligence. Sounds as though many people did not take her seriously enough and it rubbed off on her that since one can not see hr injury that it is not legitimate and serious. I hope that she is able to recover to some degree and if not that she becomes more comfortable and much less apologetic for something that she has no control over. I would probably be the same way so I am in no way trying to chastise this remarkable capable young woman.
avaorchid It's not stupid people's fault if they're stupid, right? -also a TBI sufferer
avaorchid that's really nice what you've said. Having a so-called invisible disability is very taxing because there is always the social stigma and feeling of not being accepted or believed on top of the difficulty of the disability itself. It's also something of a misnomer, because if people just paid closer attention, almost all of these so-called invisible disabilities would reveal themselves.
avaorchid no
Snuggles McSquishbottom You are absolutely right. When I cut my hair short you can see the scar from surgery. My TBI happened at 14 and I'm 40 now. Things have worsening over the past 5 years. Take care and if someone gives you a hard time they aren't worth your time! Peace
I have dysautonomia and it causes awful brain fog, severe full body tremors and on bad days aphasia, I'm constantly apologizing for forgetting what someone said or blanking out and worrying that I appear rude, also with my tremors I'm always knocking things over, dropping or spilling stuff and it is rather embarrassing especially when you try to clean something up but only make it worse as you knock and drop more things trying to fix the first fuck up. With the aphasia I sound drunk and high and so I'm always making a joke about "This is me sober, you wouldn't want to see me any more impaired than I am sober!" To stop the judgement and stares. It is so hard having neurological issues, especially being 25 because so many times people will say things in public about my "tweaking out".
You're stronger than you know and I'm praying for you God bless you. 💞
everything she said is what i have been going through for the last 3 years, no one sees it and if i bring it up no one believes me
Hi Tash, thanks for watching! Wishing you all the best for your recovery 😊
tash5052, same here. So many of us have to deal with this. I've settled into the tactic of inviting skeptics to sit in on appointments I have with my neurologist, and ask him any questions they want, including asking him to explain my MRIs and neuropsychological test results. But no one ever accepts the invitation.
These people want to believe the irrational so they can believe the worst about us, and our attitude must be that they can go straight to Hell.
There are sooo Many of us and Nobody Seems To Believe us! I’ve had the same experience within my family and it has been spirit crushing for me. God bless and I hope you are doing better.💕💕
My "mild" brain injury is much as described here: "Invisible". Which can make things both easier and harder. Easier because you don't have the enormous obstacles that those with serious motor and speech problems face (mine weren't affected), but harder because people are entirely unaware of it. You can't say to everyone you meet "Oh, by the way, I have a brain injury so please make allowances".
Like others with an injury like mine, the main affects are on cognition, memory, vision, headaches and - hardest of all for me at least - "perception", by which I mean how you percieve the world, the feeling of unreality and unconnectedness which has made me suicidal at times. What she said at 16:38 struck a huge chord with me: "I want my old life back...I was very resentful" With help I have learned to cope, but those feelings have never gone away.
I fell 20 feet on my job and landed flat on my back and head in 2008.spent 2 weeks in hospital.had several brain bleeds.I can tell you life after it has been a tough go.it effects so much.my speech is bad.I stutter and sometimes grind my teeth trying to say a word.severe up and downs,etc etc I can go on and on but not necessary.
Does ur jaw lock or have spasm in neck ,legs or jaw? Or pain in legs stabbing pitching numbing pain..?
THANK YOU ELIZABETH.. YOUR COURAGE HOLDS MY HAND WITHIN ...WHERE I HURT..
My brain injury was from DKA, due to Type 1 diabetes. So I have the non-stop headaches, mood swings and quick fatigue. I totally adore this channel, I’ve watched at least 10 episodes in 3 days, as I’ve been unwell, throw a bad tooth in the mix and now I’m totally a waste. Come on Tuesday, where the tooth will be fixed. I wouldn’t wish TBI/or cerebral damage on anyone, but if you’ve experienced it, do like this beautiful lady and carve a life out that YOU can live with.
🌸
I suffered a TBI in 2018, after being hit by an SUV. I also remember how my life was before my accident, and I want that person back too. When I look back, or talk about how I used to be, I talk about her, like she is someone else. Instead of saying, "I was so happy, and outgoing," I say that she was.
@Sister Rose I say the person I was died. She really did. She had to die in order for me to live. Simple. Had she lived, I would not be able to be the person I am today.
I owe it to a therapist from a Stanford medical center program here on UA-cam. She said, think of a toolbox 🧰 and all the tools 🛠 in it.
Now take out all the tools. Replace them all with new tools. Everything you wanted to do is gone. You are a new person with a new toolbox 🧰 with new toolset ⚒️
It took me a while for this to sink in; for it to be absorbed into my mind. I realized I could not go back. So little by little the change started. I let go.
It is the hardest decision. But you know your life depends on it. Do you want a happy life? Or a daily life of regret, anger, sleeping, pills, feeling sick? So I chose a new toolbox 🧰 and new tools ⚒️. I researched nonstop. Still do.
You choose Ms Rose. You can be happy with the new you. Just think about it. I don’t even talk about who I was. I just learned this passed week I don’t want to talk about the old me. I only stay on today and my new future. I choose this. And those around me must respect it. Or, I don’t talk to them. Simple. Best regards.
As the lucky recipient of a TBI in 2013, I too have damage to my temporal lobes, making me fatigued, foggy and cognitively very slow, especially when compared to how I was before. I am tankful that I don't suffer from headaches but its offset with brutal and inconsistent fatigue. If I was to give advice it would be to find a way to stay positive and find peace with the new you. I often joke that I wish my injury was more visible as I look completely normal. In fact based on my years of sales and management, I am incredibly good at faking it
Diet, exercise and daily meditation to take control of your life......
my son recently hit his head while longboarding thank God he was a city block away from a hospital but he has mood swings and trouble with school work etc but most people don't see it
Thanks for sharing your story Angela, we hope the best for your son. Thanks for watching!
Wish your son the best.
Thank you for sharing been going through this for the last for year .... my psychologist found that I have TBI and mixed emotions. A relief that I am not crazy/ stupid/ asking what wrong with me !!! Now trying to process ! Thank you for sharing especially we look normal but the injury is in the inside on the most important part of body!!! Thank you 😊
I have a brain injury from a car accident. I had another one month after due to the vertigo and fell down 8 hardwood stairs with my head landing back nd forth on it. 10 months out and I still have stuttering and stammering, brain fog, short term memory loss, nausea headaches and great fatigue. Every thing you said is true. The fatigue is so overwhelming just to do one thing. I get distracted badly and forget simplle things. I go to a TBI center at a military hospital. They are specialists with brain injury. I just learned today of a supplement L Theonine, you can get it at the drugstore that will help calm any anxiety and help with focus. I took one today for the first time and it did make me feel no panic, not the headache though. I am very happy that you focused on helping others. I cannot return to work that I did for 35 years so I don't know exactly what my new purpose in life is. I have tended to isolate myself and don't go anywhere because of the speech impediment. Its so embarrassing.
I feel your pain I have suffered not one but two head injuries 2 my head! Date's time's of events have gone! Remembering is difficult & I am 52 & my TBI was @ age 8 & to young to understand the headaches!! Are where they come from!! Not told that you suffered a injury @ A early age!!
Hi Lizzie, thank you for sharing your story, and for your tireless work to bring awareness to this invisible disability. I really feel people need to learn not to be so quick to judge. You just never know what someone else is going through, as silly as something might seem to you, it can be a struggle for others. I would love to see a follow up video on your life and charity work someday :)
Thanks for your kind words Pleinair! We really appreciate your support and I will pass on this comment on to the team. Thanks again for watching and stay tuned!
I would be concerned how she would cope if her mother was no longer able to help her. Such people need government funding for support workers.
I've been fighting to regain my ability to read for a year and a half after standing up into a metal shelf and suffering a depressed skull fracture I ignored for five months thinking it'd get better on its own, head injury awareness is really important even if you feel fine afterwards try to get it checked and monitor yourself as looking back now there are lot of warning signs I should have noticed, even now I struggle to retain information and try to review what I've read two or three times to make sure I got it, it really sucks cause I read all the time and used to be able to do it really fast
Thank you so much for your coverage of head injury, it's time for myself to ascept that I can't keep working full-time and sleeping all the hours outside of work after 3 plus years of trying.
Why are ACC so slow? review's? It's been 6 months so far and I have still not seen anyone from ACC or their specialists.
I'm lucky to have been seeing one of the top neurologists in NZ and a very understanding Boss.
i cant work full-time anymore i give it ago to, lucky i have an understanding boss to a give me 3hrs a day know, it dose it frustrating
She sounds like the perfect person for hyperbaric treatment.
I can relate.. I've been a TBI survivor for 24 years....
Wow, I get like that too. I think it’s more my hearing (I have trouble filtering sound), the exhaustion that comes with Fibromyalgia and me being a natural introvert. I hope she has a wonderful life ahead, despite the TBI.
HBOT is never too late to try! My daughter has a mild diffuse axonal tbi
Kiora Lizzy, thanks for sharing your story. We live in our own world. Love your farm.
Elisabeth....(?).thank you for sharing. Videos such as this one that you made are starting to give me some insight into what is happening and has been happening with myself for quite sometime now. We have very much in common actually and to be honest it makes me sad to know that we live worlds apart and it would be hard if not impossible to ever have a conversation. Be it at the same the I feel a kind of pride/proudness for you for confronting the TBI and sharing it with the rest of us. So thanks......it seems hopeful. And you will do fine. And you will find it. The thing you are looking for.
All the love from the UK, I suffer a very severe head injury and severe TBI, I am right with you, and I know exactly what you're saying and feeling, I have to have me time too. All the best and love, and my saying now, "Keep smiling" :)
Hi lizzie keep positive keep going we made video on utube things not to say to someone with brain injury it's from our hearts we are still us proud of you so proud well done sending hugs luck love from headway Nottingham UK takecare xx
I think the worst possible outcome from TBI is personality changes. It is one thing to have to deal with memory lapses, physical handicaps, speech challenges, and many other disabilities, but to have your loved one's personality change would be hardest, especially if they were no longer the person you once recognized, and that recognized you too. It is really a failure on the medical community's part not to do a better job at recognizing TBI/DAI and treating it properly quickly to improve chances for the best recovery possible. I know a lot has changed since this was posted, and I trust Elizabeth has had the opportunity to take advantage of these new treatments.
Dealing with this right its so hard..
Lizzie I fully understand what you are going through I have had 3 concussions and also 3 brain surgeries and I also have headaches and problems with memory loss and I have had to except my limitations, you are certainly not alone.
Hi how are u now.?
@@faisalbi1330 I still have headaches and memory issues and other health issues but my attitude has always been I am upright and moving forward, I can't change the past ,I can only look forward to today and tomorrow.I do the best I can with what I have.
@@beverlydust5381 thank you reply me .ur emotions feelings are same as before I am struggling with emotions feelings I can't feel emotions feelings how I was before.
@@beverlydust5381 please help me.
@@faisalbi1330 I hope what I wrote gives you some hope you are not alone and you develop a new normal life and that's okay.
ive had head injuries man it stuffs you up in real life straight up i forget hard no good and doesn't mix well in society in my case to much to list
I love the fact she loves riding horses and it's a passion of hers. I ride myself and this is a wake up call to those riders who don't wear helmets. She was lucky enough to be wearing her helmet or else her head injury would've been so much worse.
Thanks for watching Gabrielledoll 😊
She went right back to it. Good for her💕
Just amazing, how so many of the topics covered hit home for me. Please keep up the great videos, you got a subscriber out of me.
I have lived for 24 yrs with similar and did not get a diagnosis..said it was anxiety. :(
@ E ON true. I was placed on meds because of the brain injury. Then the meds started causing sleeping all day, plus others symptoms even anxiety and panic attacks. So asked to stop it. I researched better natural sources. It is a complete lifestyle change. Including the people around you. It is all what is best for you. Simple. It is the hardest thing to do. However, we can only choose to do what is best for our bodies and minds. Then, the external world will benefit from our own well-being. Hope you can slowly turn it around and be a better you. Best regards.
I still have these same symptoms after having a brain tumor discovered and messed up my frontal cortex and had brain surgery.
Hi how are u please share your experience
She's so beautiful and lovely :')
Very interesting channel with some pretty amazing stories.
Hope you enjoyed the episode Cristovao! Thanks for watching!😀
I hope she gets the confidence back one day. I see people with head injuries all the time at work and it is really hard to live with it.
That must be so incredibly frustrating, and you can see that she more than anyone else is disappointed and embarrassed with her condition. I think most kind people would be very willing to be patient with her need for rest . . . but she strikes me as the kind of person who is so used to being independent that learning to be patient with herself is the real challenge.
I'm sure it must be thrilling to ride a horse, but after working on a horse farm for a week and watching all these post-horse-riding injuries, I am only afraid of horses. They are hundreds of pounds of pure muscle with hammers for legs . . . you couldn't pay me enough to get too close to one, much less ride one.
Bless you for sharing with many . You are brave ! I share with your Brain injury. I’ve had 4 and concussions. Be Proud of your modeling. I could not do what you did . I hope to hear more .
From USA
I had a riding accident like that - but the horse crushed my pelvis and pulverized my hip. Which had to then be replaced.
I feel I was lucky.
I am 77 and I had my head injury thirty years ago this month I am thankful for everyday I am happy
Happiness I haven't gotten. I feel I am , but, I need to know, I have it. Ifeel , I do, but..
It'll be the one year anniversary of my crash this weekend. 🧠 ❤✌️
Why would the mother be embarrassed for forgetting people who cares at least she's alive
In 2007 I fell off of the trunk of a Ford focus, and smacked my head of the cement. From what I've been told. I was in the hospital for a month I was in a satiated coma cause the left side of my brain was swelling up and right side of it was bleeding if it didn't stop they were gonna cut into my head, but I guess it all stopped cause they didn't cut into my head. I guess the day I left the hospital to go from I was fine everything was good but a couple days went by after I was home and I was rushed back cause I couldn't walk. And if I'm correct I was never told why it was I couldn't walk. But because of this tbi I have horrible memory. I can't remember anything most of the time and some times I'll remember things some time after the time I'm needed to remember whatever it is. I use to get horrible headaches 24/7 but they died down, now I just get this really really sharp pains like deep in my brain and as I'm getting these sharp pains I get dizzy and this blackness takes over my vision and I can almost not keep my balance. I never got the last MRI I was suppose to get. I went a seen a new doctor about a week ago about my pains to get it checked out. And my eyes seem to always be dilated too. I go on the 18th to get an MRI done and then June 25th I go to a nuerolists about my pains too. I've had these sharp pains happen over 30 times in one day. They're horrible. I've been looking up more info about tbi to find more out. So any info anyone has would be great. All tbi are different.
And I had to learn how to walk all over again*
Hope you get your problems fixed. Seems like you went through an awful lot of complications. Can you learn to meditate ? it could possibly help you, also self hypnosis.....there are people , not in the medical community but in alternative healing that could possibly help you. Check it out. You have nothing to lose and on UA-cam, it is free. There is a lot , the conventional establishment does not know or understands. Cutting and taking pharma is not always "enough".
Keep going doing amazing things stay strong stay positive it does get better in time it's a hard road but worth it in end I have hypoxia brain injury I died 26minutes spent weeks months in coma rehab hospital learning talk walk again been a recovery massive discovery never ever give up on yourself many will never yourselves keep going sending luck hugs love from headway Nottingham UK takecare xxx
Just thinking outside the box here. Have your doctors tried you on migraine specific medications such as Imitrex or Verapamil? Also for the neck pain I feel that I tore every muscle and ligament in my neck in an auto vs bicycle accident. I would suggest yoga to try to stretch and strengthen (it'll help break up any excess scar tissue. Also ask your doctors about Soma. It's a strong muscle relaxant that may help with those pains. Hope some of this helps.
So strong Lizzy keep being the voice please
Sorry to hear about your injury Elizabeth. You are not alone, by far! I really want to say thanks to you more people will learn about this. You are still very beautiful, on the inside and out. Maybe visiting sick kids might pick up your spirits, and someone to love you when your parents have left us. Maybe start a foundation for head injuries in kids as a distraction. Or something like that!
She's beautiful. I'm glad she is able to model and make money. It's terrible being disabled and being broke
This is what happened to INXS lead singer Michael Hutchence. I'm pretty sure.
My daughter has just be diagnosed with Frontal Lobe injury from 2 accidents in the same year. She's about to start BWRT and OT which apparently helps to reroute brain neurotransmitters. We've been told it can improve substantially. Don't give up ! Try seeing a Clinical Psychologist who specializes in this? Just a thought 🙏